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Ostomy Life: Unfiltered
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Добавлен 19 сен 2013
Welcome to Ostomy Life: Unfiltered! I'm Kayla Glumac, soon-to-be, Heflin, and I’m here to give you an honest, real-life look into living with an ostomy bag. From everyday moments as a new mom to fashion tips and personal stories, this channel is all about breaking down the stigma and showing that life with an ostomy can be bold, beautiful, and empowering. Join me as I share unfiltered insights, helpful advice, and a positive outlook on navigating life with an ostomy!
GRWM: Why I’m Getting Barbie Butt Surgery in 9 Days + My Ulcerative Colitis Journey
Join me as I get ready and open up about my journey with ulcerative colitis and the decision to undergo Barbie butt surgery in just 9 days. I’ll share the highs, lows, and everything in between-from my diagnosis to living with an ileostomy, and why this surgery is the next step in my health journey.
If you’re curious about what Barbie butt surgery is, how it’s connected to ulcerative colitis, or just want to learn more about living with an ostomy, this video is for you! Let’s chat about the challenges, the lessons, and the hope that comes with taking charge of your health.
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If you’re curious about what Barbie butt surgery is, how it’s connected to ulcerative colitis, or just want to learn more about living with an ostomy, this video is for you! Let’s chat about the challenges, the lessons, and the hope that comes with taking charge of your health.
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Looking for ways to support me? Here are some easy (and fun) options:
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Просмотров: 19
Видео
Preparing for Surgery: Cute Outfits, Tough Emotions, and My Honest Mindset (26 Days Out)
Просмотров 30014 дней назад
Hey everyone, In today’s video, I’m sharing some comfy and cute outfits I picked out for post-surgery recovery. But this isn’t just about fashion-it’s a raw look at how I’m feeling with my surgery just 26 days away. I had an emotional moment while filming, and I hope that by sharing my mindset, it helps anyone else facing something similar feel less alone. Thank you for being part of this journ...
Getting a Pelvic CT Scan with an Ostomy Bag: What to Expect
Просмотров 340Месяц назад
Getting a CT scan when you have an ostomy bag can be quite different from a traditional CT scan experience. In this video, I share my recent experience with a pelvic CT scan and walk you through the unique steps that come with having an ostomy bag. I’m so excited to get rid of ulcerative colitis once and for all, even if it means going through one more surgery. The protectomy, or proctocolectom...
Mom Life with an Ostomy Bag: Juggling Challenges & Chronic Illness Flares
Просмотров 298Месяц назад
Being a mom is challenging enough, but add an ostomy bag and chronic illness flares, and the journey takes on a whole new level. In this video, I open up about the real-life struggles of balancing motherhood with an ostomy and managing the ups and downs of chronic illness. From daily routines to unexpected flares, I share the obstacles I face and the strategies that help me push through. Whethe...
Starting The Journey to My Final Surgery | Barbie Butt | Proctectomy
Просмотров 539Месяц назад
Well, it’s finally time. I’ve met with the surgeon and we are heading towards the surgery that will my my ostomy bag permanent! I will have my rectum removed and butthole sewn shut. The surgery is called a proctectomy and nicknamed “Barbie Butt” by the ostomy community! Follow along as I go through this much-anticipated procedure! Catch me real-time on IG: @Kaylaheflin1010 #ostomylife #ostomyba...
Dealing with an Ostomy Blockage: My At-Home Management Tips & Experience
Просмотров 303Месяц назад
Did I have a blockage in my ostomy? So much is subjective, but I’m going to call it a “partial blockage.” I have seen others end up in the hospital due to a blockage, so I wanted to try anything I could at home to avoid being in the same situation myself! In this video, I share what worked for me! Regardless, lesson learned: chew my food better! Support My Content! 🌟 Looking for ways to support...
Finding the Perfect Wedding Dress with an Ileostomy: Style Tips & Confidence Boost!
Просмотров 203Месяц назад
Trying on wedding dresses with an ileostomy bag? In this video, I share my experience finding the perfect gown while accommodating my ostomy. I’ll give you practical tips on selecting styles that are comfortable, stylish, and flattering for your big day. Whether you’re a bride-to-be with an ostomy or simply curious about the process, this video is all about feeling confident and beautiful on yo...
Behind the Smile: Battling Chronic Illness When You Look ‘Normal’
Просмотров 2762 месяца назад
In this video, I open up about the realities of living with a chronic illness that’s often invisible to others. While I may look fine on the outside, the truth is that I constantly battle symptoms that leave me feeling far worse than I appear. I’ll share my personal experiences of what it’s like to feel sicker than I look, how I cope with the disconnect between how others see me and how I actua...
Surviving a Stomach Bug with an Ileostomy: Diarrhea & The Importance of Staying Hydrated
Просмотров 3752 месяца назад
Getting a stomach bug when you have an ileostomy can be challenging, especially when dealing with diarrhea and dehydration. In this video, I share my personal experience of handling a stomach virus with an ostomy bag. Whether you’re new to life with an ostomy or just looking for helpful tips, this video is for you! Be sure to like, comment, and subscribe for more content on living confidently w...
My Ulcerative Colitis Health Update - Ugh… Big Flare & What’s Next For Me?
Просмотров 3763 месяца назад
My Ulcerative Colitis Health Update - Ugh… Big Flare & What’s Next For Me?
Why Do I Have Ulcerative Colitis Symptoms After Ileostomy Surgery? | A Visual Representation
Просмотров 5193 месяца назад
Why Do I Have Ulcerative Colitis Symptoms After Ileostomy Surgery? | A Visual Representation
Ostomy Bag Supplies Restock & Organization: Essentials for Smooth Bag Changes
Просмотров 3613 месяца назад
Ostomy Bag Supplies Restock & Organization: Essentials for Smooth Bag Changes
Swimming with an Ostomy Bag: Tips for a Secure Seal & Longer Wear Time
Просмотров 6503 месяца назад
Swimming with an Ostomy Bag: Tips for a Secure Seal & Longer Wear Time
My Fiancé Changes My Ostomy Bag for the First Time | In-Depth Guide & Tips for Caregivers
Просмотров 1,1 тыс.3 месяца назад
My Fiancé Changes My Ostomy Bag for the First Time | In-Depth Guide & Tips for Caregivers
Style Hacks: Choosing the Best Clothes for Your Ostomy
Просмотров 5744 месяца назад
Style Hacks: Choosing the Best Clothes for Your Ostomy
Post-Abdominal Surgery Workout Routine: Safely Rebuild Strength
Просмотров 1854 месяца назад
Post-Abdominal Surgery Workout Routine: Safely Rebuild Strength
2024 Fall Decor | Hobby Lobby Shop & Decorate With Me
Просмотров 1594 месяца назад
2024 Fall Decor | Hobby Lobby Shop & Decorate With Me
His Thoughts ~ On Dating Someone With An Ostomy | Part One
Просмотров 4034 месяца назад
His Thoughts ~ On Dating Someone With An Ostomy | Part One
What Kind of Underwear Do You Wear? | Ostomy Bag
Просмотров 8724 месяца назад
What Kind of Underwear Do You Wear? | Ostomy Bag
My Full Pregnancy Journey with an Ileostomy Bag: Challenges, Triumphs & Tips
Просмотров 8034 месяца назад
My Full Pregnancy Journey with an Ileostomy Bag: Challenges, Triumphs & Tips
Try-On Haul for Pink Lily x Kalee Rogers Collection Giveaway | postpartum fashion
Просмотров 3685 месяцев назад
Try-On Haul for Pink Lily x Kalee Rogers Collection Giveaway | postpartum fashion
4 1/2 months postpartum | Ulcerative Colitis symptoms, flare
Просмотров 6817 месяцев назад
4 1/2 months postpartum | Ulcerative Colitis symptoms, flare
Ostomy Bag LEAKED. How I know when to change it.
Просмотров 67 тыс.8 месяцев назад
Ostomy Bag LEAKED. How I know when to change it.
Labor & Delivery With An Ostomy Bag | My Birth Story | Ileostomy Bag & Pregnancy
Просмотров 1,1 тыс.11 месяцев назад
Labor & Delivery With An Ostomy Bag | My Birth Story | Ileostomy Bag & Pregnancy
Ostomy Bag Change at 37 Weeks Pregnant!!
Просмотров 6 тыс.Год назад
Ostomy Bag Change at 37 Weeks Pregnant!!
Everything you said! Living with colitis and taking prednisone and biologics=extreme urgency, bloody stools, anemia, extreme weight loss, hair loss, daily pain, minimal sleep, and isolation (due to unpredictable bowel movements), not to mention all the risks associated with the prednisone and biologics. Surgery = Feeling normal and healthy and getting your life back and no more pharmaceuticals. Honestly, as someone who has had the BB surgery, I don't think it will be too bad for you. Hugs.
I’m also feeling nervous as well about my upcoming surgery. But I have remember with what I’ve been through I can do this. I was 26 years old when I was diagnosed with UC that was in 2011. I lived with UC for 5 years. At 31 years old (2016) I ended up getting an ileostomy on October 26, 2016. After the surgery cancer was found in my liver it was stage 4 Non Hodgkin’s lymphoma cancer. I was 32 years old (2017 when I lived in the hospital for 5 months. trying to recover from the surgery and I was doing my chemo treatments fighting the cancer in my liver. I was 32 (2017) when i ended up having a seizure that is when the doctors thought there was a tumor in my brain. It ended up being an old blood clot. I was 33 years old (2018) when I was in the hospital for the last two times. Once was in April 2018 when I had a mini stroke and the other time was in May 2018 when a cyst burst near my ovaries. Now I’m 39 years old, I’m a cancer survivor I’ve been 6 years cancer free. And I’ve lived with my ileostomy for 8 years now.
My Barbie Butt surgery is also in December the 11th I will also be getting a hysterectomy done at the same day as my Barbie Butt Surgery. I wish you luck on your surgery and recovery
You’re so strong and beautiful, you’re such an inspiration. I hope your surgery went well and you have a smooth healing journey ❤️🩹 I wish I was there for you
I am feeling the same way
Just had mine on the 19th i also got a new stoma. I couldnt feel anything down there until 9 days post op its been great so far. I have been sitting to i was scared and ny surgeon did amazing. Each day gets easier.
Hang in there girl !! Hugs .
That was me today! I hope you're feeling better x ❤
Hey kayla, I know exactly how your feeling. The strong mix of emotions i had. In a way I wanted the surgery asap, then I had times were I become very stressed, anxious and sad. Sending you hugs and prayers ❤
God bless you now and always ❤
Oh kayla. your video made me cry because i felt the exact same way as you. I had a good few emotional days but you are spot on!staying positive is the best thing you can do. They are exactly what i wore after surgery and im still wearing. Absolutely love your pretty new items. They look so comfy! Love love love the matching idea. Thats how i am too. Stay strong 💪
Having a reputable, experienced surgeon truly makes a huge difference in faster recovery with minimal to no complications. Wishing you the best of luck and a speedy recovery.
The only person I had to help me was my partner...the more people you have around you during this time, the better!
Kayla, I was in your position 6 months ago now. I had a rollercoaster of emotions, and absolutely no family or friends supporting me. To anyone having this surgery, having a support system is a blessing and will help you get through this. I was scared and happy at the same time. What got me through this time is always thinking forward. You will feel soo much better kayla. My rectal stump made me suffer so much so I understand exactly how you feel. I will be here all the way through your journey kayla. Thank you so much for having the courage to share your journey to health and healing with us! It is truly invaluable to many! 🎉❤😊
You'll be okay.
It's the right decision you will be fine you will recover fast. The pain is minimal don't worry . God is gonna get you through.
Honestly, Kayla, I had a complete proctocolectomy on a Friday and came home Tuesday. Obviously, pain was managed in the hospital, and I came home using only Tylenol and Advil. I was terrified to get the Barbie butt stitches removed because of everything I'd heard, and it ended up being completely painless. I'd say the BB part of my surgery was more annoying (not being able to sit) than painful.
@@michellem8284 thank you so much for sharing your experience!! That actually makes me feel so relieved!! I hope you continue to heal well and you are able to get back to normal in no time 🙏🏼
I am very happy to hear others have healed well from this surgery.
It's brilliant. It's been probably 20 years since mine was done, I'm losing count. It's uncomfortable of course but hang in there because down the track you have your life back to enjoy with your little cutie and other loved ones. Be patient, nurture yourself and cry when you need but follow up with a smile. You too will come out the other side way better off. Love and healing light coming your way. Bron from Sydney ❤
@@bronwynread-andia3555 this gives me so much hope!! Thank you!! 😊
God speed recovery prayers for you ! Baby will be okay, you are an awesome Mom!
@@lisah.1448 thank you! I appreciate your prayers! ❤️
Completion Proctectomy in January for me. I am so invested in your recovery as I am in information gathering mode too right now.
@@CarolineLewton yay! We are so close! Keep me updated with when you get a date scheduled!
@@OstomyLifeUnfiltered I will do! All the best to you for your surgery xx
Best of luck yo you both. 6 months out here. I had open abdominal surgery again for my completion. I am doing well. At times you may feel overwhelmed but just know that it will so be worth it once you are healed! You will be a whole new person! Much healthier and happier!
@ Thank you!!! I very much hope so! How long before you could go up and down stairs again? My surgery will be open too.
Your very welcome! At the 2 month mark. I had my entire rectum removed howevhadthey preserved my anus due to no disease activity (uc) and due to the fact im currently on fertility path. I was jumping in and out of my 4wd after 2 months. Start building up strength by walking slowly more and more each day as long as the pain is controlled. You will build strength much better that way by starting as soon as possible after surgery. You will get there in the end.
I'm getting my ileostomy on 12/19 😬
It will go great!! Any concerns or questions you can always ask me or message me on instagram ❤️
You will finally be able to live the life you wanted. Go team ileo's!
It is the right decision, it will be painful, but be patient. Don’t over do it durning your recovery, that was my issue. Hang in there.😉
@@denselman I should put a note by my bed that reminds me to not overdo it because I am the same way! But I know it’s important to be patient and heal!
All the best to you x
I just drank it down as quick as I could. It was absolutely the worst crap I have ever had to do before a procedure. It was just a full day of discomfort and all that. I could not sleep. I worked 6 pm to 6 am the day before my prep and that was a mistake. I was awake for two full days.
Good Luck with your coming up barbie butt surgery. You will be good. I have one and have had no problems. You'll be in my prayers . Ostomate buddy from Ohio.
I’m so happy to hear that!! Thank youn
Bless your heart. So educational.
Wishing you the best of luck for your surgery and recovery period. The day will come before you know it! I felt scared and excited at the same time just like you kayla, but once i woke from my surgery, i already felt healthier somehow? Like something unhealthy left my body ❤
That makes me feel so good to hear!! I felt the same way after my ileostomy surgery 4 years ago and was hoping for the same result!
God bless you always ❤
Much luck and prayers. You got this!
You've got this kayla! ❤
That's fantastic news kayla! I know exactly how you feel kayla! Just had mine done 5 months ago. My surgery is a little different to yours, they kept my anal canal and anus and just removed my entire rectal stump. My anus wasnt affected by the uc so they were happy to leave it. Also, im in my late 30s and am currently on my Fertility journey. I was advised that removing them would be a longer recovery which wasnt an option unfortunately! I definitely feel soo much healthier overall though. Sending prayers all positive energy and hugs to you all the way from Australia! I'm soo happy to hear you finally have a date! Look after yourself a little extra, indulge and relax until then. Take care, Angie xo
Oh that is so interesting, but makes total sense! I’m sending you baby dust and good luck to get pregnant 🙌🏼 thank you so much! I am excited to be on the other side of surgery!!
Yes i am not your typical case. I guess it depends on each individual and situation. Like yourself, I've suffered from chronic pan uc since very young! We have suffered for far too long kayla! Thank you soo much 💓. Your daughter is a sweet little angel! I'm soo happy watching your videos! Women with uc are real warriors!
Thank you! If you can do it then I can ❤
Good luck with butt surgery 🙏🏻🙏🏻 all will go well xx❤😊
Thank you!!! 😊
All the best! Yay to being fully healthy!❤❤❤
I just finished 3/4 of my Prep right now. Chased it with a bit of ginger ale. Took 2.15hrs
Sending you positive energy and hugs from down under. Look forward to seeing more videos.
I add some into my jello mix
Praying that they offer you a surgery date real soon kayla!
Does the stoma hurt when you grab on it?
How long did it take for you to recover from surgery and eat normal again
Wow!!! Thank you so much for sharing this information.
Keith is such a sweetheart. That is true love! 💕
@@AliceLexington he really is! I got so lucky!! 🥹❤️
Can your baby get Crohn’s disease?
@@christinadejuliis5465 I can’t say 100% that she will never develop it, because there are a couple other women in my family who have a form of ulcerative colitis, but I sure hope she never gets it. -> Last time I talked to my doctor, he said that studies have not proven it to be genetic
That’s what they used on a catheter for urine. But through the stoma.
Thank you for sharing your journey with us kayla! It is truly invaluable ❤
I'm excited for you to get some relief. Only those of us who have lived with colitis or crohns can understand how miserable it can be. I completely understand why you didn't have your rectum removed initially. I elected to have everything removed all at once, and am so glad that I did. Best of luck to you!
Now I wish they would have taken it all right away for me! I’m happy that you are glad with that decision 🙌🏼 Until I get a surgery date, I feel like I’m just in this “waiting” period where it feels so far away. But it will come!
Hello you mentioned that they are going to sew your anus shut. Are they going to remove your anal canal and anus or just going to sew these up from the inside or outside? I just had my proctectomy surgery done 6 months ago...best wishes on your journey. May you finally find peace in your life from uc!
Good question!! They are going to remove the whole anal canal as well! I hope your recovery is going well after your surgery ❤️
👍. Thank you so very much! It's been a tough recovery but 100% worth it for me! My rectal stump was making me feel very sick! Sending you lots of positive energy and love. I know how you feel right now, waiting for the surgery date and wanting it to be all over! Hang in there 🙏
Thank you so much for sharing this! You inspire and reassure me. Greatly appreciate it.
I'm so glad!
Freedom💪Best wishes! Keep cool
You are an inspiration to so many in all walks of life ! A beautiful momma for a beautiful baby girl.
@@lisah.1448 awe! Thank you so much!
I threw up two or three times looked like a cartoon where the character commits everything