Flexible Sigmoidoscopy | my current UC symptoms and 10-month ileostomy update!
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- Опубликовано: 5 сен 2024
- It’s been 10 months since I had the life changing surgery of removing my large intestine due to uncontrollable ulcerative colitis.
I go into detail of some of my current ulcerative colitis (UC) symptoms, so you’ve been warned! ;)
Thanks for watching!
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I did my surgery in may this year, I was so stressed but then I found you channel and thanks to you I went through with it. I am so happy cuz I feel so much better now with my colon gone. So thank you for sharing your journey!
Oh my gosh that makes me so happy to hear!! I’m so happy you are feeling so much better! Doesn’t it feel amazing to have your life back?
How are you now ? Can you share your experience after surgery
I’m just coming to the point were having my colon removed for ulcerative colitis seems my healthiest choice. I tried Biologics with lots of side effects and I’m not happy with that I was very afraid thinking I had to have my rectum removed at first, and your videos really put me at ease. So thank you so much. I feel much better starting down this path after seeing your videos. Good luck with your business!
I'm so happy to hear that my videos have put you at ease! It can definitely be scary, but the ostomy community is so supportive! I'm here if you ever have any questions, you can definitely message me on instagram!! Thank you!
Your entyvio video brought me here, sorry it didn't work for you but glad the surgery was a success !! I'm going on Entyvio soon myself.
Excellent post, thank you. I was diagnosed with Pan Ulcerative Colitis about a year ago (at the age of 74). Like you, I tried everything and nothing worked; however, when my Large Intestines/Colon was removed and I woke up from surgery I felt like being reborn again and life was beautiful again. My surgery was Sept 2021 (they left my rectal stump) and I just plan on keeping my ileostomy. My Doctor set up a sigmoidoscopy check to make sure there's no active UC in what's left of my colon around my 75th birthday (what a birthday present--a sigmoidoscopy). Hearing you say that the prep for colonoscopy is not required made my day. Good luck and just have a wonderful future.
Thank you Tim! Oh wow! Isn't it crazy what a difference it makes to your life before and after surgery? I am so happy you have had a similar experience to mine! I hope you have no active UC in your rectal stump! Sometimes I wonder if they schedule things like this on our birthdays to be funny ;) Thanks for commenting and I hope you have a wonderful future as well! Keep me posted on your results of your sigmoidoscopy!
@@OstomyLifeUnfiltered I will keep you posted. Even if I do have a little active UC, there is something that can be done about it. I recently learned that a Facebook friend that I went to high school with (60 years ago) was diagnosed with Crohn's disease 50 years ago.(back then his doctor did not use the same surgical procedure with robotics like they did on you and I). He's doing great and has not had any complications in 50 years.
@@MrTimFarnham Yes! I have some active UC in my rectal stump as well. A simple Mesalamine suppository does the trick for me! I could insert it daily, but I just do it as needed, which seems to be just a few days a week when I drink too much caffeine, too much alcohol, or both in the same day ha!
@@OstomyLifeUnfiltered You just reminded me when I was first diagnosed they put me on Mesalamine (1.5 grams or what I called four big horse pills). The Mesalamine was not in my body long enough to do anything. Within a very few minutes the four pills passed through the other end.
@@MrTimFarnham Me too!! That was the medication I was on for about 13 years and I always asked them why it came out whole...
Hi Kayla! Im glad I come across your channel, Hope you are doing good. Im having a flexible Sigmoidoscopy tomorrow morning, I had my colon removed on may 2022 after 21 yrs with UC and my plan is to go for the J pouch. Will see 😊😊
Hey Eddie! Good luck!! Are you planning to stay awake for the flexible sigmoidoscopy?
Isn't it wild how long we go with a disease and now we don't 'have it anymore??
I wish you all the best!! & I hope your future j pouch surgery goes well!! 🥰
As promised, I would like to update you on my flexible sigmoidoscopy that I just had after my 75th birthday (at least it wasn't ON my birthday). First, good results...nothing precancerous; however, I do have active UC in my rectal stump. I, like you was prescribed Mesalamine; but not in the form of a suppository, it came as an enema. In 75 years on this earth I have never had an enema before and all of a sudden I am suppose to have 28 of them (one every 24 hours) at bedtime each night. The directions read "hold it in for 8 hours" (of course there is enough Mesalamine for an entire colon where I only have about a 16 centimeter stump) I'm thinking, you've got to be shitting me (pun intended). Bottom line, out of the 8 hours I could hold it just under 5 minutes. it still turned out Okay, the Mesalamine cleared it up...no mucus discharge since.
I'm so happy you had good results besides the active colitis! I giggled out loud about your pun haha! I'm so happy you still had good results even while holding it in for shorter than the recommended! (We know our bodies best anyways!)
Sigmoids are painful. I once yelled at a doctor for not having a bath tub in the office where I could soak in a warm water. Colonoscopy is so much easier.
You are healthy and also had surgery....i m having crohn's from last 1yr.. taking adalimunab...but my weight is not increasing... decreased by 9,10 kgs really worried 😟
❤
How are you doing now?
any updates for us? thank you
I have been meaning to film an update! I’ll get one up here soon :)