Kayla, I am in nursing school and found your channel as I am studying for a GI exam. Your videos helped me so much! Thanks for being so positive and brave. You rock!!
New to your channel I think you are awesome and so positive I’m having the same surgery this year and I’m really struggling but your videos are really helpful thank you 😊
Welcome!! Thank you for leaving such a positive comment! If you have any questions at all, I am more than happy to answer them! Sending positive vibes you have a smooth surgery and easy healing!
What a BEAUTIFUL Young Lady YOU ARE…..I watch these types of Videos because of my Mom I know she will have to have 1 of these 1 DAY Soon……She stays so SICK and has so many Problems with her small Intestines, they say it’s like her stomach is asleep and Undigested food just lays there and then she becomes so ill and it’s HARD to see her go through this almost daily…. There’s another Young Lady like yourself who I have been following and she just got her bag in December due to cancer…..OMG she is a New Person and I just ADORE Her ……Her name is Tiffanythinks she lives in London you 2 are about the same age… It truly blows my Mind to how many people do have Colostomies and makes me so sad to how many people Died back in the Days Before this and People today can life there lives to the Fullest….You are a Doll Baby and this Video will HELP so many…
You’re awesome, Kayla, this is so important to discuss! Thank you! As I’ve mentioned in your other video I’m 77 and just had my surgery a month ago but did not need the external bag. Now I’m wondering whether I should have asked for the bag as I’m having rectal burning. I’ll have to talk to my surgeon.
Hey there! I have surgery planning next week... I'm terrified on making this decision but your videos have been comforting. I'm still researching "life after" but with you being a fashion gal, can you suggest more male "concealment" options? Again, greatly appreciate your openness and honesty!
Hey just stumbled across your channel and thought I’d comment on your latest video :) I’m 34 and recently had surgery for a loop ileostomy i’m nearly 2 months post op (I had an ileostomy when I was in my late teens for a couple of years whilst I had the jpouch formed etc). After 10+ years of the jpouch it just wasn’t for me and wanted to go back to the ileostomy. Oh and I was suffering with UC from 13 before I had my first surgery - vital part missed out there haha. Would be great to chat :)
I just found your channel tonight and oh my God I wish I had known about a years ago I am 67 and have had an Asked me for 14 years and unfortunately there's not enough information out there. I woke up in the hospital 5 days After my bowl had burst So I did not have to make the surgery I am not sure if that was a good thing or bad thing. My Aunt had Chrone's disease and suffered greatly and would never have the surgery and I can't say I blame her it is a h*** of a way to liv
Hi Kayla and Nick, Love your work. As you know most of us who comment or watch many of your vids are contemplating an ileostomy or surgery to do with a colon procedure of a similar nature. Just wanting to know how have you gone with hydration. The last gastroenterologist I saw really went on about the problem of hydration and stated - With an ileostomy a bad stomach bug can dehydrate you so quickly -to a point of death. he told me to keep doing what I was doing. It seems like 50% (not sure of official stats) of ileostomy recipients have to take IV fluids one a week ? You don't seem to have any problems here. What have you heard and what is your understanding with Ileostomy's and hydration ? I figure that the gastro-mentioned perhaps may have his risk rewards table a bit skewed or isn't across my situation. So happy your going so well.
I've just caught up with you and you now have a bag. What happened?? I was watching you take Entyvio. I'm on the verge of getting a bag as nothing is working for me. Sorry I need to catch up on your channel. I'm so sorry this happened.
Hey girl! I do have a couple videos talking about it, but the short version is my body didn’t respond to any new med I tried.. :( I ended up being only responsive to prednisone, so it was time for surgery! So the same situation as you!! Now I feel the best I have ever felt!! I’m an open book if you have any questions!! Feel free to message me on insta @kayla.Glumac
@Kayla Glumac Thanks a million. The Entyvio has worked for me. I was having a flare up from hell and it worked within a week. I just hope now it stays this way. I went on the infusions last year and they did the same but I got terrible side effects such as hair loss, shingles and picking up colds and coughs so I did not resume treatment. I was in remission for months, and in December I got a nasty flare up after taking pain killers for a filling that fell out, I got desperate with the pain. 2 week wait here for a dentist because of the Ukrainians we have in town now. But nothing worked they tried .e on, the bum foams, steroids and I just asked to try this as an injection form this time and so far so good, no puss poops the last 2 mornings and blood baths in the toilet bowl. Oh they joys, I bet you don't miss that !!! 😏 I'm delighted it went well for you and you're out of misery now. Watching your attitude towards this has changed my mind on how I feel about this procedure. Well done and fair play to you. Xx
Kayla, I am in nursing school and found your channel as I am studying for a GI exam. Your videos helped me so much! Thanks for being so positive and brave. You rock!!
I am SO happy to hear this!!
I so appreciate your videos. Diagnosed in 2013 and looking at surgery soon! Super excited. Thank you for clearing up so many questions!
Let me know if you have any other questions!
New to your channel I think you are awesome and so positive I’m having the same surgery this year and I’m really struggling but your videos are really helpful thank you 😊
Welcome!! Thank you for leaving such a positive comment! If you have any questions at all, I am more than happy to answer them! Sending positive vibes you have a smooth surgery and easy healing!
What a BEAUTIFUL Young Lady YOU ARE…..I watch these types of Videos because of my Mom I know she will have to have 1 of these 1 DAY
Soon……She stays so SICK and has so many Problems with her small Intestines, they say it’s like her stomach is asleep and Undigested food just lays there and then she becomes so ill and it’s HARD to see her go through this almost daily….
There’s another Young Lady like yourself who I have been following and she just got her bag in December due to cancer…..OMG she is a New Person and I just ADORE Her ……Her name is Tiffanythinks she lives in London you 2 are about the same age…
It truly blows my Mind to how many people do have Colostomies and makes me so sad to how many people Died back in the Days
Before this and People today can life there lives to the Fullest….You are a Doll Baby and this Video will HELP so many…
Thank you so much Dee! Ooh! I will have to find her channel! I’ll be praying for your mom to get relief soon!!
You’re awesome, Kayla, this is so important to discuss!
Thank you!
As I’ve mentioned in your other video I’m 77 and just had my surgery a month ago but did not need the external bag. Now I’m wondering whether I should have asked for the bag as I’m having rectal burning. I’ll have to talk to my surgeon.
You’re simply amazing!!!👍🏼😎🙌🏼
You are truely such an inspiration positive and informative you are awsome thanks for sharing 💜
Hey there! I have surgery planning next week... I'm terrified on making this decision but your videos have been comforting. I'm still researching "life after" but with you being a fashion gal, can you suggest more male "concealment" options? Again, greatly appreciate your openness and honesty!
Hey just stumbled across your channel and thought I’d comment on your latest video :) I’m 34 and recently had surgery for a loop ileostomy i’m nearly 2 months post op (I had an ileostomy when I was in my late teens for a couple of years whilst I had the jpouch formed etc). After 10+ years of the jpouch it just wasn’t for me and wanted to go back to the ileostomy. Oh and I was suffering with UC from 13 before I had my first surgery - vital part missed out there haha. Would be great to chat :)
Hi Kayla, what are the gummies called, I would be interested...
I just found your channel tonight and oh my God I wish I had known about a years ago I am 67 and have had an Asked me for 14 years and unfortunately there's not enough information out there. I woke up in the hospital 5 days After my bowl had burst So I did not have to make the surgery I am not sure if that was a good thing or bad thing. My Aunt had Chrone's disease and suffered greatly and would never have the surgery and I can't say I blame her it is a h*** of a way to liv
Hi Kayla and Nick, Love your work. As you know most of us who comment or watch many of your vids are contemplating an ileostomy or surgery to do with a colon procedure of a similar nature. Just wanting to know how have you gone with hydration. The last gastroenterologist I saw really went on about the problem of hydration and stated - With an ileostomy a bad stomach bug can dehydrate you so quickly -to a point of death. he told me to keep doing what I was doing. It seems like 50% (not sure of official stats) of ileostomy recipients have to take IV fluids one a week ? You don't seem to have any problems here. What have you heard and what is your understanding with Ileostomy's and hydration ? I figure that the gastro-mentioned perhaps may have his risk rewards table a bit skewed or isn't across my situation. So happy your going so well.
Ostomy Diaries lady speaks about that, there's a video entitled ' what I eat', or in another one but she definitely speaks about IV.
Would like to know the name of the gummy thing and where can I get them .keep up the great work your information is very helpful
Hi there what is those gummy things called
I've just caught up with you and you now have a bag. What happened?? I was watching you take Entyvio. I'm on the verge of getting a bag as nothing is working for me. Sorry I need to catch up on your channel. I'm so sorry this happened.
Hey girl! I do have a couple videos talking about it, but the short version is my body didn’t respond to any new med I tried.. :( I ended up being only responsive to prednisone, so it was time for surgery! So the same situation as you!! Now I feel the best I have ever felt!! I’m an open book if you have any questions!! Feel free to message me on insta @kayla.Glumac
@Kayla Glumac Thanks a million. The Entyvio has worked for me. I was having a flare up from hell and it worked within a week. I just hope now it stays this way. I went on the infusions last year and they did the same but I got terrible side effects such as hair loss, shingles and picking up colds and coughs so I did not resume treatment. I was in remission for months, and in December I got a nasty flare up after taking pain killers for a filling that fell out, I got desperate with the pain. 2 week wait here for a dentist because of the Ukrainians we have in town now. But nothing worked they tried .e on, the bum foams, steroids and I just asked to try this as an injection form this time and so far so good, no puss poops the last 2 mornings and blood baths in the toilet bowl. Oh they joys, I bet you don't miss that !!! 😏 I'm delighted it went well for you and you're out of misery now. Watching your attitude towards this has changed my mind on how I feel about this procedure. Well done and fair play to you. Xx
i need advice and information plse. I have sergry for anstoma 01/4/ 2023
GENIUS!!!
what medication are you on....Lexapro?
Yep! Lexapro!