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I did try Reglan not too long after I was diagnosed. For me, it caused extreme anxiety and didn't alleviate my symptoms very much, so I didn't take it for very long. I think it's an option that is certainly helpful for some people but is not appropriate or effective for everyone. Definitely a discussion to have with your doctor regarding the pros and cons in the context of your personal circumstances.

Currently, I'm working on a new podcast called Living Well (When You Don't Feel Well). It will launch in July. I'll post about it here on my RUclips channel and also via email to my mailing list. All of my gastroparesis stuff is at www.livingwithgastroparesis.com.

Glad you found the info helpful! Thanks for your kind words.

A low-fat diet is a symptom management tool for gastroparesis. That's because a meal higher in dietary fat will take longer to empty from the stomach than a meal lower in fat -- that's true for everybody, whether you have gastroparesis or not. So when you already have a delay in gastric emptying and do not want to exacerbate that delay, the advice is to reduce overall fat in the diet. A high-fat diet, then, is likely to exacerbate the symptoms of gastroparesis, including fullness, nausea, pain, bloating and/or vomiting. It doesn't damage the stomach or make the condition more severe in the long-term, but it's not great for symptom management. Hope that helps!

Hi, Nancy. I hope you find the book and recipes helpful! Sending lots of good thoughts your way.

Yes, people _can_ get worse, of course and many people do. I'm not denying or negating anyone's personal experience. But people can also get better or stay relatively the same and I think it's important to highlight the fact that delayed gastric emptying itself is not an inherently progressive condition. When someone receives the diagnosis, it doesn't mean they're going to get worse and worse forever, which is what people who contact me are often afraid of. I also think it's important to point out that often times new or worsening symptoms can be related to things like nutrition rather than a progression of gastroparesis, and nutrition is something that we're often able to address through a variety of means so it's important that that is part of the conversation, which is why I made videos like this. I'm really sorry to hear that you're struggling and that your symptoms have worsened. I hope you find something that works for you and brings you some relief. Sending you lots of good wishes!

No, it didn't.

Thank you! I really enjoy doing them. Hopefully more to come!

Glad it was helpful!

So beautifully said.

I'm so glad it's been helping you💖 (Samantha and I are actually working on a new project together, so stay tuned for that soon, too!)

You're welcome, Arlene! I'm glad it resonates with you ❤️

Hope you find something that's helpful for you!

Sending you lots of love, Leah! Since you're newly diagnosed, definitely download my Quick Start Guide to Gastroparesis Management. The better we're able to manage gastroparesis in general, the better all of the symptoms tend to be, including reflux. You've got this! www.livingwellwithgastroparesis.com/quick-start-guide-to-gastroparesis-management

For sure -- as I said in the video, the cost is definitely the downside. I pay $44 for 90 capsules of the Heartburn on a recurring subscription twice a month and $49 for the Khelp once a month. So definitely not cheap but, for me, it's worth it since it works so well.

I'm so glad this was useful information for you and I hope the products are helpful! Definitely update and let us know since I'm only a sample size of one at this point. As far as the symptoms after eating, it could be reflux related or perhaps histamine related (that is a rabbit hole itself!) but I'll be interested to know if that's something that gets better for you with either of these supplements.

I'm sorry that you're struggling. I hope you're able to find something that's helpful on my channel or website: www.livingwellwithgastroparesis.com. Sending lots of good wishes!

Hi! No, that didn't become necessary for me. Getting the gastric neurostimulator implanted helped me enough that I was able to start restoring my nutrition with food.

You can open Heartburn capsules and mix with warm water and drink according to the Arrae website. Just an FYI for those who have trouble with capsules. I know sometimes they take a long time to dissolve in my stomach, so I'm actually going to be experimenting with that, as well. I follow a similar gastroparesis-friendly diet to what I recommend in my resources, so mostly low-fat, lowish fiber, smaller meals with a focus on nutrition. I don't think it's super helpful to share exactly what I eat because there is no one size fits all diet that works well for people with gastroparesis. My diet is also limited by factors that others likely don't have -- for example, my daughter has life-threatening milk, egg, and nut allergies, so we don't eat any of those in our house. I would eat differently if that weren't a factor. I'm also sensitive to certain FODMAPs, which not everyone is, and I no longer have a gallbladder, which impacts what I eat but doesn't apply to everyone. That said, some of my staples are things like chicken breast, ground turkey, potatoes, rice, quinoa, sweet potatoes, carrots, smoothies, soups, MacroBars. Lots more about diet on my website: www.livingwellwithgastroparesis.com/blog?category=Diet%20and%20Nutrition Hope that helps!

@csaltrelli yes it helps. Thank you for taking the time to answer. I'm not diabetic and do not have a gallbladder. I also have hereditary hemochromotosis. I have been dealing with this for 7 years. I have not found a good protein powder for shakes. I have tried a few things but still a big learning curve. My goodness, I have eaten chicken every way but fried lol and turkey and some fish. I get nervous when my hair falls out or thins, among other things. I have found there is way more to this than they tell you. Thanks again!!

Finding a good protein powder/shake is so challenging. I've literally thought about trying to crowdfund the development of one that would work well for those of us with GP!

@@lwwgphi. What macrobars do you find to be easier to digest?

@Kukkema I eat the peanut butter chocolate chip and the chocolate peanut butter chip. I also eat the sunflower butter flavors, but I find those cause more constipation and a little more reflux for me. My daughter has nut allergies so I avoid all of those, but I used to eat the almond butter ones and did well with them, as well.

I don't! I should've mentioned that in the video. I took very high doses of PPIs for many years and they never took care of my symptoms. I think likely because, for me -- and I think probably for many people with GP, it's not an issue of too much acid. Rather, it's an issue of the stomach contents being outside of the stomach and into the esophagus/upper respiratory tract, which acidic or not are still going to be irritating to those structures. I did try PPIs again not too long ago but it was giving me stomach pain and making my other gastroparesis symptoms worse so my GI doc and I agreed that's just not the solution for me. That said, I do believe you can take both of these while on a prescription reflux meds. I'd double check with your doctor but that's what their websites say. Hope that helps!

Thanks. It does. I appreciate your support in this journey.

You're welcome, Anette! Hope the info was helpful for you.

I'm so sorry that you're struggling and that it was so hard for you to get the attention and care that you deserve. Aside from the practical steps that I recommend in my Quick Start to Gastroparesis, I think it could be really helpful to just get curious about some of the things that look really true right now. For example, what if food doesn't hate you? What if food is totally neutral and completely impersonal? Similarly, what if the functions of your body are equally impersonal and, in fact, what if your body is doing the absolute best it can for you, despite whatever circumstance it's in? Sometimes a great deal of the stress that we feel around food and eating is wrapped up in these stories that our brains have made up that look very real and true. Not to say that our physical experience isn't real -- of course it is -- but just those feelings of hating eating, etc. are often lessened when we start to question the stories that our brain has been repeating to us. Just some food for thought! Sending good wishes your way.

When I can't do formula with protein in it cuz of my kidneys

I don't know but I will say that I have come to believe that our bodies are much smarter than we often give them credit for -- if your body is accumulating weight, there might be a protective reason for that. I would continue to work with your doctors/nutritionist to be sure you're getting adequate calories/nourishment on your feeds.

I'm sorry to hear you're struggling. If you haven't already, you might consider downloading my Quick Start Guide to GP Management to see if there's something in there that might help you: www.livingwellwithgastroparesis.com/quick-start-guide-to-gastroparesis-management

OMG I could have wrote this also. They did a surgery but never learned to eat again. I'm terrified of foods and down to 2 foods and tea. Now high cholesterol cause the 2 foods are highly processed. I'm so afraid of food due to pain. I'd rather starve than suffer that pain.

I'm so glad that the encouragement has been helpful for you. It's been helpful to me, too, and that's why I think it's important to share it. I'm sorry you've had such a hard time lately. I'm sending you lots of good wishes ❤️

Similar issues, I can relate, I heard a chiropractor can help??? Something about the nerve being pinched? I had a major surgery last year to fix it and I still cannot eat but I no longer vomit 10x a day

What is it that's interfering with your sleep? Specific symptoms, general insomnia, anxiety?

I have no clue, my symptoms started a week ago. I’ve never had sleep problems in my life and the last 2 nights I’ve had insomnia.

@@lwwgp I’m waking up with heartburn, that’s what I think the cause is.

Glad it was helpful! Lots more info about juicing here if you need it: www.livingwellwithgastroparesis.com/blog/all-about-juicing-amp-smoothies

You can find the list here: www.livingwellwithgastroparesis.com/blog/the-gp-friendly-rainbow Hope that helps!

If you're not _struggling_ with gastroparesis, maybe not much. But for those who are feeling overwhelmed, scared, hopeless, worried, etc., it's really important. Having worked with people with gastroparesis for 15 years, I've seen so many people who are negatively impacted by the things I talk about in this video. Hope that helps!

~ Absolutely ♥️ Magnificent ~ So Very True for myself. I strive to eliminate negativity of this type, and my efforts have greatly helped my Gastroperisis management ~ My Heartfelt Thank You, and Gratitude for you, Crystal, for this video, and all that you do, Arlene ❤

Thank you ❤

I'm sorry that you're struggling with worries about cancer. There are lots of potential causes of gastroparesis but, honestly, cancer isn't one I've heard of. The most common known cause of gastroparesis is diabetes, which is easy to rule out. It can also occur after abdominal surgery or after a viral illness. There are some underlying conditions that can lead to gastroparesis, such as Parkinson's disease, multiple sclerosis, amyloidosis, scleroderma, cystic fibrosis, lupus, thyroid disorders, and connective tissue disorders, but typically you'd have other symptoms associated with them. One of the most commonly diagnosed "types" of gastroparesis is idiopathic and that just means "of unknown cause." That's the kind I've been diagnosed with. There was a long time when I thought I absolutely had to figure out why I had gastroparesis -- and if you do have an underlying condition that can be managed in order to improve gastroparesis then that makes sense. But I underwent dozens of tests at the Mayo Clinic -- I was there for weeks at a time -- and everything was ruled out. I eventually realized that the stress I was creating trying to find an "answer" wasn't supporting my desire to live well with gastroparesis. I was eventually diagnosed with Ehlers Danlos syndrome (not at Mayo Clinic), which is a connective tissue disorder that might be the reason I have gastroparesis or was susceptible to getting gastroparesis, but that hasn't changed anything about how I handle the condition. The good thing is that, for the most part, regardless of the cause of your gastroparesis, the comprehensive management plan that I talk about works to reduce symptoms and improve quality of life. And the mental health stuff that I talk about definitely applies across the board. Hope that info helps a little! Sending you lots of good wishes.

I actually recorded one and just haven't had a chance to edit and release it yet. I'll take this as a push to get that done when I can!

Glad you're finding the info helpful! I've done a few personal updates though I'm not sure if I've talked specifically about what I eat. I generally follow a gastroparesis-friendly diet like what's outlined in my book, Eating for Gastroparesis. I probably eat a little higher fiber than my recommendations, though I don't track it. I mostly just follow the guidelines in my updated Gastroparesis Diet Guidelines video, particularly doing what feels right to me, knowing that symptoms are feedback and incorporating that information into future choices. I follow a dairy-free diet because my daughter has anaphylactic allergies and a mostly gluten-free diet because that's what seems to work best for me. I also follow a reflux digest, as I have LPR and those are my most bothersome symptoms at this point. I think it really comes down to figuring out what works best for you over time. Hope that helps!

Hope you enjoy the book! (The videos on my channel span nearly 15 years, with pregnancy, weight gain, weight loss, haircuts, and aging happening in between, so definitely different looks over time!)