Covid-19 and Gastroparesis: My Motility Specialist Answers Your Questions
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- Опубликовано: 7 июл 2024
- Does COVID cause gastroparesis? Should people with gastroparesis get the COVID vaccine? Join me and Dr. Brian Lacy (gastroenterologist at the Mayo Clinic in Jacksonville, FL and my own motility specialist) as we chat all about COVID-19 and gastroparesis.
0:00 Introduction
1:54 Does COVID-19 cause gastroparesis?
4:46 Does COVID-19 worsen existing gastroparesis?
7:14 If COVID did cause or worsen someone's gastroparesis, would it be expected to resolve over time?
8:45 Is the COVID-19 vaccine safe for those with gastroparesis?
11:30 Wrap Up
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Find my books on Amazon!
- Living (Well!) with Gastroparesis: bit.ly/gastroparesisbook
- Eating for Gastroparesis: bit.ly/eatingforgp
Hi, I'm Crystal. I was diagnosed with idiopathic gastroparesis in 2004 at the age of 23. My experience with gastroparesis has run the gamut, from being malnourished, anxious, depressed, and all but hopeless to being a healthy, happy wife, mom, and dual-certified coach, living with gastroparesis in the background of my life.
I really believe that this kind of freedom from the suffering around gastroparesis is possible for -- and available to -- everyone... regardless of the severity of symptoms or how long you've had the condition. I hope you'll come along as we explore what the inside-out approach to living WELL with gastroparesis is and where freedom really comes from.
Join the mailing list at: bit.ly/crystalsemail
Great information! Thanks for sharing this! I really appreciate how you are using your influence in such a positive and helpful way!
Thanks for being here, Brenda! ❤️
I'm so glad that you did this Gastroparesis channel! I suffered for years with out a diagnosis and I was diagnosed about 2 years ago. I had a really bad episode 4 days ago which I am still recovering from and it made me really want to pay closer attention to my GP diet. I was so sick for 3 days I layed there dehydrated and sick in bed and thought I would have to call the paramedics but I'm finally feeling a bit better and I'm now doing my research because I never want to go through that again! So thank you again. I'm learning so much from you and I'm a visual learner so it is much easier to follow along with a video.
Maybe you’re not seeing it (gastroparesis rearing it’s head due to COVID assault) because many of us are dealing with it on our own, without reporting to anyone.
Great point, Sharon! Anyone who IS experiencing a worsening of symptoms after a COVID infection should definitely talk with their doctor. There’s no other way we will know if this ends up being an issue.
this was great. Thank you for listening and reaching out to someone who could better explain. I sincerely appreciate
the work.
Glad it was helpful, Quinn!
I think I develop gastroparesis from a MMR booster but I was supposed to get the original. I never got it in school and the nurse didn't read the paperwork stating that and thought I needed the booster because I was 18. I'm 95 lb & been sick for 20 years. Maybe it was a bad reaction for me, a 1/1,000,000coincidence that made me sick for life.
Thanks for the informative video! I love the Mayo Clinic's gastroenterology department! Mayo in Minnesota is how I was able to get on Pyridostigmine to treat my gastroparesis, and it ended up treating my POTS and fatigue as well. Mayo Clinic and Pyridostigmine were miracle lifesavers for me!
What does that medicine do exactly?
It took a year and a half for me to get a diagnosis and let me tell you it’s been the worst… this whole time I’ve been wondering if it was because of Covid. I think it might be from Covid and for some reason it’s more common in women too but the last two to three years so many more women in their 20’s are getting it, I’m 21 and it’s like my life is over already. I’m hopeful that I will get further treatment options from Mayo Clinic later this month… thanks for this video
I have hard time getting to sleep before my stomach starts getting this wrenching hunger pains🤢 Then I have to get up on little sleep and beat my sickness🤢That feels like I haven't ate for days and it's just gut-wrenching hunger with no appetite🤮. My esophagus has zebra stripes after 20 years.
My GP was brought in by Covid.
It was before the vaccine was available. When I got Covid again a year later my GP flared up bad and I've been trying to get well. Your videos are helping me so much.
Rachelann, I've been hearing more and more stories like this recently and I suspect this may be something that docs see more over time. My hope for you and others in this situation is that since post-viral GP in general tends to resolve over time, hopefully post-COVID cases will do the same. In the meantime, I'm glad the videos are helping you!! I'll be sending lots of good wishes.
I was badly constipated after the 2nd time I had COVID. One leaf of romaine lettuce constipated me so I think the slowing of stomach happened after covid for me too. It’s been 3 years and I am
Silently suffering and trying to find answers. My gastro labeled it as IBS-c after endoscopy.
Disagree with the statement that vaccines are safe long term. I think everyone needs to understand the risks involved and make their own decision. Good conversation though.
I was diagnosed with gastroparesis back when I had diabetes type 1 ,it was mild and I was put on Reglan which made my entire face and body tremble ,so dr stopped, and I basically just dealt with. Then my diabetes gradually got so bad I was not able to control while on many levels of units so my hospital/dr suggested a transplant which I had and then 2 yrs after started having severe gastroparesis needing a feeding tube it was so bad, I weighed close to 75 lbs being 49 yrs old and 5ft tall . So after many feeding tubes not staying in place and getting clogged and having to go back to the large hospital and I was so weak and did not drive and my husband worked full time the specialist tried other things and finally did a pylorplectomy which helped me for a yr until I caught covid after receiving 2 doses of the Pfizer vaccine and I was so sick I had covid for 37 days and I ended up getting the infusion also to stop it from getting worse, ever since I have had covid I back down to 89 I was back up to 110 and now I am back to having nausea daily, can't eat again, depressed again, live is back to again basically like having gastroparesis all over again. I have all the long haul covid symptoms this was last July since I caught covid and I haven't got better . I've lost my hair , oh it I just feel terrible.
Such great helpful info on GP and COVID-19. Thank you so much Crystal and Dr. Lacy.
Thankyou very informative. I have had idiopathic gastroparesis for eight years 2 and half years ago my gastric stimulators battery died, while waiting for surgery I had gone into remission , nausea very rarely. I had the phtzer vaccine first was fine second 4 days after the vaccine my gastroparesis symptoms came back and I have not had COVID, it could have been coincidence.Seeing my specialist this week to see if he has some answers.
Good luck, Jen! Hopefully your specialist will have some answers for you. Would be curious to know what they say. As someone whose GP resolved and then reappeared, there's something reassuring to me about just knowing that it *can* go away. Hoping this is just a blip for you and you're back on the other side of it soon!!
Can you do a video on Idiopathic gastroparesis? It's completely turned my life upside down. For months we didn't know if I was gonna make it out alive. My husband was my rock he spend many of nights rubbing my back and wiping my mouth and forehead than having to go to work 8 to 5 with only 3 hrs of sleep evenings, late at night/early morning are my problem times I've vomited in sleep.
I went to bed one night feeling off called my Dr. Told him what was going on and he said it was just either the flu or a cold and I'd be fine. Weeks turned in to months turned in to YEARS!!! go by and I'm getting worse AND WORSE I couldn't eat or drink more than a few bites before getting extremely full and sick. keep in mind I was 250 pounds when I started having issue by the time my dr.s got a handle on it I was 140 pounds I lost over Half of me in just a few short months. It got so bad I went to your docs in and this dr. Saved my life he actually took me seriously he did ever bloodwork test he could not long after he came back in the room and ask if I had HEP C because my liver markers were through the roof I guess he believed me by the shock on my face and in my voice (keep in mind I had laryngitis really bad and coukd hardly talk from my throat being so raw)I said wait thats needle drugs right? No I've never touched a drug like that in my life I cried cause I knew something was wrong and it wasn't "just all in my head"and no one listened till him turns out it wasn't HEP anything he referred me to his partners who ran some very uncomfortable tests had a camera shoved down my throat, had a gastric Emptying scan, had my nose and throat numbed and a camera shoved down my nose and throat to see how my swallowing was doing than having it yanked back out my nose I remeber panicking her first try and pulling it out cause I was scared it would get stuck and I'd either die or I'd have to be cut from nose to stomach to get the probe out. After 3 years my symptoms are under control my weight is up and stabilized at 165 my liver and kidneys are back to almost 100% and no thanks to my GI Dr. His solution was to TRY ME ON EVERY oral anti nasua meds HE COULD THINK OF INCLUDING a medicine called DOMPARADONE that I couldn't get at any legal US pharmacy because the side effect are so awful its ban so i would have had to smuggle in an illegal medicine in to the USA which I'm sure the DEA wouldn't have APPRECIATED or I could go more invasive and we could do a PORT or an IV line to run fluids and IV anti nasua meds and a feeding tube. After doing my own research i didn't like all the complications that came with invasive treatments so I kindly passed. Thank you to the girl in my support group who came over one day after my husband was at his wits end and told me about the medical MJ program and how the CBC oil controls the vomiting and nasua while the THC will make you wanna eat like no tomorrow. Having that conversation with my PCP changed my life he got me on the program all these years later you wouldn't know I have gastroparesis unless I tell you.
Do u still have bloating? I am sooo happy for you!
@@sharcipriano2423 yes some days I look like I'm ready to give birth to a full term baby!
@@sharcipriano2423 thank you.
Thanks for this, Crystal! I’ve followed you for a long time. I’ve had Type I since October 1972 And have had Gastroparesis since 2001 (probably long before this date but was diagnosed in 2001). I’ve not had any issues from my first Astra Zeneca vaccine and am anxiously awaiting my second vaccine on 7th May. I was advanced on the list here in France to be offered the vaccine prior to people in my age group (I am 56; 57 in June this summer). In France, people are called in to have the vaccine via their GP when they have a “comorbidity” (perhaps this is a French term, meaning “pre-existing condition”... So Astra Zeneca rendered no complications for me (honestly, a large handful of people have blood clots daily all over the world and perhaps the vaccines exacerbate the already underlying g conditions to have them; but they are not the cause of these already underlying conditions!). Anyway, I’ve not had any worsening complications from my Gastroparesis after having had the A.Z. and do not anticipate having any complications after the second dose. It is SUCH a better option to have a vaccine than to allow the virus to continue mutating...! My issue is all bloating and I know it’s because I don’t follow the “no fibre” rule to the highest level... Will always continue to keep trying. Frustrating; but something with which I can live! Thanks for all that you do! xx
Hi, Denice! So glad you were able to get the AZ vaccine and all was well afterwards. I totally agree that vaccination is far preferable to the alternatives!
I love what you said at the end of your post, that GP is frustrating but you can live with it. I think there’s so much freedom in that simple statement. It can be both frustrating *and* just a part of life. And I’m sure some days it’s more frustrating and some days it’s less frustrating, and either way, there you are, living your life.
Sending lots of good wishes your way! Thanks for being here 💖
@@lwwgp It’s true... We do love with the things we carry; and life is still great... more great some days than others of course. But everyone has Something at some point. Thanks for all that you do for the Type I community and for those with Gastroparesis, Crystal! xxx
I have gastroparesis caused by COVID-19 and I'm struggling to live a normal life what suggestions can you give me
Hi, Stephanie. I'm hearing this more and more and I wonder if we'll start to hear more about post-COVID GP in the future. I think the "upside" would be that post-viral gastroparesis in general tends to resolve on its own overtime so hopefully GP from the coronavirus will do the same thing.
In the meantime, please do download my free Quick Start Guide to Gastroparesis Management. It's a 40 page eBook that takes you step by step through some practical changes that can help to reduce symptoms. bit.ly/3szLvo3
And please stick around here and watch some of my other videos for help with the overwhelm of it all... such a significant factor that can make a huge difference in our experience. ruclips.net/p/PLXAk_p_qTXyYuCu4ubUbnIk9rLW6OBepV
Sending lots of good wishes!
I developed Gastroparesis from Covid and I began to feel better when I would drink items with coconut water because it helps digestion and now I don’t have Gastroparesis symptoms. Hope this helps someone
I have Gilbert’s syndrome and bile reflux as well as gastroparesis, could theses things cause gastroparesis?
Not sure about vaccines?
Nice short to the point information, thank you!.I'm one pfizer dose in and did fine as well. Hopefully this will help others feel more confident and chose to get vaccinated.
Hope so, Lory! Thanks for being here!
Just diagnosed yesterday- likely cause was covid and pnumonia last year. Absolute agony still
So sorry you're struggling! Definitely grab the Quick Start Guide from my website if you haven't already. www.livingwithgastroparesis.com
My symptons started with the covid vaccinations!
Hi from Colorado. Our family all received the Pfizer vaccine. My son, who has GP, had mild flu-like symptoms after his 2nd dose. Please everyone get the vaccine. It will save someone's life. God bless.
Hi from Connecticut. My parents and siblings got the Pfizer vaccine and all of them are now suffering failing health due to a myriad of adverse events caused by the vaccine and it turns out, upon further research into all of the Covid19 vaccines, that they do actually cause severe to fatal adverse events which I'm seeing from my family on a daily basis. What is worse that those like you promoting the vaccines don't bother to educate people that if they get sick from pharmaceutical drugs, including vaccines, they and their supposed doctors are supposed to report any/all adverse events to either the Countermeasures Injury Compensation Program or VAERS. I wish my family knew this because then they would have saved their lives by not getting the vaccines. Don't be afraid to do your own independent research into what you put into your body and just because you may not at first show any damage, it doesn't mean the damage isn't done - just like how drug addicts don't always show adverse events from taking crack cocaine or Angel Dust immediately but over time, the damage will expose itself in chronic disease and even death. God bless.
This doc did not help me at all.