My Gastroparesis Story: Finding Freedom After 17 Years
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- Опубликовано: 23 мар 2021
- Hi, I'm Crystal. I was diagnosed with idiopathic gastroparesis seventeen years ago, at the age of 23. This year I turn 40 and, though I still have the condition, I'm finally free of the suffering that consumed my life for so many years.
In addition to managing my own gastroparesis, I spent a decade as a Certified Health Coach helping others work to reduce their symptoms and improve their quality of life. Through my books, Eating for Gastroparesis and Living (Well!) with Gastroparesis, and coaching programs, I helped thousands of people with gastroparesis around the world.
But it was all from an outside-in approach that only went so far. People were still suffering from having gastroparesis. I was still suffering from having gastroparesis! What changed everything for me was a very different approach... one that comes from the inside out.
I really believe that finding freedom from the suffering around gastroparesis is possible for -- and available to -- everyone... regardless of the severity of symptoms or how long you've had the condition. I hope you'll come along as we explore what the inside-out approach to living WELL with gastroparesis is and where freedom really comes from.
Join the mailing list at www.CrystalSaltrelli.com.
The Little School of Big Change program that I mention in this video can be accessed here: bit.ly/crystallsbc
(Note: this is an affiliate link. If you sign up, I will receive a commission but rest assured, I have been recommending this program for years without any incentive at all for no other reason than it changed my life and I believe in it so whole-heartedly.)
This is spot on. As for me I’m not your average gastroparesis patient. In the beginning i thought this was gonna be forever etc But the more I researched about gastroparesis, health, and lifestyle changes, the more I realized that gastroparesis can get better if one is willing to make changes. Gastroparesis is really a symptom of something else rather than a disease. Once I realized that, I wasn’t afraid of gastroparesis anymore. I address the root cause of my health mentally & physically . My stomach is normal now, and I’m gaining weight.
Sadly people never realize this and never make the change.
Yes!! Not being afraid of it changes everything. So glad you’re doing well!
In the process of finding out if I have either gastroparesis and or endometriosis and this comment made me feel so much better.. I’ve been reading so many horror stories and so afraid that this will be my life from now on.. but this gives me so much hope!
please contact me i need all the help i can get! are you really normal now like no pain and eat whatever you want?
What lifestyle changes did you do?
What is the root cause of your GP?
Just diagnosed this week. You are the best and most hopeful resource available and I think, the Lord put you in this position to help others! Thank you
How did you get diagnosis? What was the process?
@@BreezeWithAfrica I went to a doctor who specializes in digestive issues. They performed the various tests on my digestive system, including how long it took for food to digest out of my stomach. It turned out my stomach was digesting slower than average and that is why they believe it’s Gastro paresis. However, since that time I went to another doctor, who believes that it could be acid reflux, causing my issue, because my stomach, although emptying slower than usual, didn’t have any food in it when they did the endoscopy. Also, if I took prescription strength Nexim regularly, it relieved my symptoms. For the last 3 weeks I have been eating a diet for Acid Reflex and have not been sick. So, I am still experimenting with food and have any doctor appointment this week.
@Penny it will be ok. Consider getting this gals books- really good advice and recipes. Get a good doctor and maybe a second opinion. I went to my doctor again this week and she said I have viral Gastro paresis or at least that’s what she thinks which means over time six months to a year she thinks it will go away and it’s a mild case. That has made me feel better.
@WIWomanful
Hello!
Hope you are doing well
Have you seen an improvement or did you get better already?
@@WIWomanful
Hello !
How are you doing now ?
So happy to hear from you and glad you’re back. When I was diagnosed with Gastroparesis 9 years ago, thank God I discovered YOU! You made a tremendous difference in my life and you continue to do so. Thanks for sharing your story. Keep up the great work. You’re amazing!
June, thank you for those sweet words. It is so heart warming to be welcomed back with such enthusiasm. I love this community and I'm so grateful that I get to continue sharing and learning alongside everyone. ❤
I have been with you from day one. So excited you’re back. Thank you!
Aw, thank you Josette! It's so good to "see" you again!
Glad you are back and doing well! I am learning how to live my best with gastroparesis and have just had surgery for the gastric stimulator. Every day is a new challenge for me with this illness. But seeing people do live with this and surviving it brings hope. So thank you for sharing your wisdom with me.
Thank you so much for sharing.
I was a happy healthy athlete. Three months ago I overdosed on sodium diclofenac (completely accidental!). I gave myself reactive gastritis and was put on very strong PPIs for 6-7 weeks.
I had an endoscopy and colonoscopy, and everything came back structural normal, except I had very slow gastric emptying. I was diagnosed with Gastroparesis. As soon I was labelled with a chronic condition, my health and mental health deteriorated. I'm going to be honest, I've fallen into a deep hole of sadness and anxiety. I've been crying and feeling like my oldself has died.
Listening to this video has really made me feel like I'm not alone. It has given me hope. Thank you 🙏🏻
How are you doing?? May God grant you healing.
@@elhpasu thank you so much! I am thankful I don't have Gastroparesis anymore, but my digestion is still an absolute mess. Lots of bloating and cramping. Still improving day by day and feeling more positive. Thank you for the kind message
Im trying to overcome gut issues after so many antibiotics. Kefir and fermented foods are helping. Look up matula tea for yourself. I recommend watching a few of Dr. BERG'S videos on RUclips. I find them very helpful :)
@@bennym1326 how did you get rid of gastroparesis? My dad is dealing with it now...
@@elhpasu I had very slow digestion due to disbiosis. I was misdiagnosed. I did a gastric emptying scan and it came back normal, but now I have functional dyspepsia 😔
So good that you are back! You are a gift for anyone living with GP.
Thank you for the kind words! I'm so excited to be back and sharing stuff that's been so impactful for me.
The way you tell your story is really easy to relate to. And your voice and on-camera presence is really something else! 🥰
I certainly can relate. I'm suffering with this condition 30 years. It started when I was 21 years old. I also tried everything that I could before I was diagnosed just 2 years ago.
What’s ur symptoms dear
Thank you so much for this, I have followed you since the beginning and I look forward to learning even more from you again,you are offering an invaluable resource which is so appreciated.
Carolxx
So glad to have you here, Carol! Looking forward to hearing what you see in all of this as we chat more.
You are truly inspirational. Every word you have said I can relate to. I pray daily I can become free like you. So happy for you.
Can you tell me how you put weight back on after you lost 50lb please i lost lots, your story i related to everything you said please let me know
I cannot thank you enough for your videos!! They are keeping me going right now. I have suspected for 9 months or so that my teenage daughter has gastroparesis, but the endocrinologist has dismissed this possibility. On our most recent visit to the ER, the doctor there said he’s quite certain that’s what it is and now I am in pursuit of information to help us manage this as we work with our doctor. Your videos make it feel like we might be able to manage this, as opposed to the doom and gloom I’ve found in all the support groups. Thank you so much!! You truly are the light in the dark when it comes to this condition and it’s nice to hear something positive for a change. I hope you know what a difference you make for people dealing with this condition. Thank you for giving us hope. 🙂
Thank you so much for your kind words. I really hope you're able to get your daughter the support she needs. There is SO much hope to be had! Sending lots of love and good wishes ❤️
Crystal I’ve have Gastroparesis. I was diagnosed in 2011. I also have the gastric neurostimulator since 2014.
Crystals I want you to know your videos have helped me so much through the years. I was so excited when you came back with more videos. They are such an encouragement to me, I listen to them over and over as I’m doing things. I pray you will continue to do more of them. Thank you again. I am one you’ve helped and continue to help.
Happy almost birthday! Good to see you again!
Oh my goodness, so good to "see" you, too!! 💖
Thank you so much for this update! We appreciate you. I am too living with Gastroparesis
I appreciate you watching and following! I hope that sharing this newer stuff brings more hope and relief to all dealing with GP ❤️
please keep talking about all of this. it took me 8 years of suffering b4 i got a diagnosis 3 months ago, got put on Reglan which has helped tremendously. I too went through the diet/anxiety/try everything like my life depended on each new protocol craze. Then about 2 weeks into feeling so much better I had a catastrophic event occur. Our house burned down and we barely made it out. We lived in a hotel for 3 weeks and are now in a rental house while ours is being rebuilt. At first I was on such a high from the freedom of terrible symptoms that I didn't even process the fire situation until PTSD symptoms arose. I'll be starting counseling for that soon but wanted to share that not being so focused on GP has helped me become more "normal" in my day to day eating and attitude toward GP.
I now allow myself to make eating mistakes without feeling guilty because at times I can enjoy the foods that in the past caused me lots of pain. When I have a flair up I know that it will eventually subside and just take a few rest days. I'm finally up to 100 lbs and have found some favorite foods like the choc chip mint Yasso bars that i truly love and can eat everyday. I've also found that chocolate is no longer an enemy. For some reason i do well with a Entennmens choc donuts, i probably eat at least 5 per week and they digest well and satisfy my dessert cravings. I'm not sure if I'm in a sort of "remission" or if my Gp will flair like it had been in past years but I do know that my more relaxed attitude over the diagnosis has had a positive effect even during this trial. Thank you for what you do and being the calm voice in the midst of so many crazy-scary GP stories online.
Super vlog! Great! Thank you a lot!
So happy to see you on RUclips again. I was reading one of your books the other week and was wondering how you are going and here you are! I’ve been suffering from gastroparesis for 17 years too too. Mine is heaps better than the start, thank goodness 😅 but it’s still there. Please know you were the light in my dark of dealing with gastroparesis. You are the only one who gave me hope. I’m so sorry to hear your symptoms are back again.
Thank you for the sweet words! My hope is that sharing this new stuff brings even more hope and helps people find peace when things are tough and/or the GP sticks around. Sending you ❤️!
I need some help
@@parthmadan2545 I definitely recommend watching Crystals videos and getting her books. It’s a slow process working out what you can eat but you’ll get there I promise. Just know you’re not alone and there is wonderful information to learn from Crystal. Best wishes on your journey 🤗
SO HAPPY to see you in front of the camera again! Woohoo!!!!!
I think this makes sense! I feel like I would heal better or even get rid of gastroparpies if I lived in my own world. The fact I have to go out and feeling anxious about how I look to others makes my symptoms worst
Yvonne, isn't that so interesting? This idea that things would be easier if you were by yourself. You're not alone, I've heard that from other people, too, so I'm going to expand on it a bit here. It's something to get super curious about because it really points to what's actually causing a great deal of the suffering.
If you have gastroparesis whether you are alone or with others but your experience of it is different depending on the situation, it can't possibly be "gastroparesis" that you're experiencing. The difference is all of the habitual thinking that so many of us have about how others see us and how others treat us and what it all means about us and them. Our brain has so many stories around all of that and the anxiety we feel is an indication that we're wrapped up in those stories. We often interpret the yucky feelings as meaning the stories are true or our worries are warranted, but that's just a misunderstanding. What we're feeling is a really busy brain.
The great thing about starting to look in this direction is that you no longer have to be alone on a deserted island OR get rid of the gastroparesis to reduce the suffering. Because you start to see that it's not the other people or the condition that's causing it. It's just a lot of thoughts that you're innocently believing and taking very seriously. Your brain is going to continue to run those thoughts through your head. It's what a brain does. But once you get on to what they mean (nothing) and what they are (habit), you just naturally take them less seriously and get less caught up and things start to feel easier and more relaxed all the way around.
You are an angel 😇 I am 4 years in and recently started thinking 🤔 I'm not going to allow you (gastroparesis) to destroy my life! I'm exhausted, I don't want to think about you anymore!!
So I started waking up whether I'm dizzy 😵 nausea, vomiting... I don't care! Today is going to be a good day! Directing my energy to other things and slowly but surely I can see a change!! I don't wake up and talk about gastroparesis, I don't log on the blogs and chat about how miserable I am, I go for a walk (it ain't always easy) but I honestly feel better for trying, and my body thanks me for it!
You are my soul sister, 💚 thank you for your obedience and sharing your truth! (thank you, God, for guiding me here) ❤️
There's so much wisdom just in seeing that we don't have to continue down a path that's not working for us just because it's the path we're on. So many other possibilities... just a thought a away! So glad you're here!!
How are you now?
Hi Crystal! I'm Kelly....I'm 51....and I'm now almost 100% certain I suffer....well....now I'm going to switch my mindset and say....I have gastroparesis....I'm going to try and to not let it have me by saying I suffer from it! I love this shift as mindset can impact any health issue....good and bad. My mindset has always been woe is me...why me...I work soo hard to be thin and healthy but I have to fight soo hard too to try and "cure" myself 😔 I don't see myself as being thin as most people see me....all I see is my pouch poof of a pregnant tummy.
I needed to hear this as I'm at an all time low right now and my mental wellness/attitude isn't good 🥲 Soo stressed 🥴 And of course stress goes to my stomach....which in turn exasperates my gastroparesis and then I have more stress and I just can't come out of that viscous cycle! I'm just tired of trying to figure it out....figure out what to eat...how to eat...when to eat....I hate eating and I don't want to eat but I know I need to. My eating has become soo restrictive and stressful. Every bite I take I'm stressed if it will bloat me and constipate me more....making me look 4-6 months pregnant 😔 I've done soo much food elimination/e experimentation my husband has said all I have left to eat is air 🥲 It's how I feel! I really wish I didn't have to eat to live 😔
I've lived most of my life with what I call a pouch....like a mom kangaroo.
I've never seen anyone for it or have had any tests. I would/have seen improvements with everything I'd change and I knew docs may not have a clue so I went about it myself.
However....today....now....it is overcoming me....I'm in that cycle I can't get out of....a viscious depressing stress induced cycle 😥
However....last night I started researching gastroparesis more...and I think almost 100% it's me as it just makes sense....finally! Today....finding you....reading your story and printing out your guide and listening to your journey....ive realized this is most likely me....and.....it finally gave me some reprieve/relief....finally some hope....and I say some but I hope it's just the beginning 🙏🏼 Hope that it is my body and maybe not all the foods I've come to avoid...but still maybe some. I did have an MRT food sensitivity test! Hope of acceptance.....trying to come out of the why me woe is me I can't eat anything restrictive mentality. I'm going to try and approach it from a what can I do to ward it off or better control it mentality! I'm soo glad you are making the shift and approaching from more of a mindset mentality cure! Mindset is really crucial to life and to acceptance for healing to take place I truly believe!
I just found you today and I truly feel it was fate and such perfect timing ❤️ I'm still going to go through your guide as I'm just beginning to try and heal 😍
Thank you for sharing your personal journey and thoughts! I know it was out of your comfort zone as your approach has changed so I applaud you for still sharing your honest heartfelt feelings 🥰
Quick question.....if I've never had the gastric emptying study is that something that would be beneficial? Maybe to put my mind at ease more as then I'd finally have a reason for the frustrating symptoms I've experienced for 20 years....? Thank you! 😀
Last thing....2 years ago I thought my daughter was dying. It was all I could do to put all my focus on her ❤️ I was eating simply and eating foods I knew wouldn't have as much a negative impact on me. My focus was 100% on her! And you know what....I had no gastroparesis! This just hit me as to possibly why...and it could be that mind shift. My mind wasn't focused on me it was all on my daughter! I don't know but it might ring true 🤷♀️
Once I started thinking about me again and eating more variety and worrying about what the foods would do....I started having flare ups again 😂
Thanks for listening and sharing ❤️
Kelly, I am SO glad you are here. Truly. I love what you've already seen around what happened when your focus shifted to your daughter. How interesting, right?! The best thing we can do is to be curious about stuff like this. To ask questions like, "What if focusing so hard on solving this problem is actually making things harder?"
Have you seen the interview I put up with my client, Samantha? If not, check that out. She went from trying VERY hard to fix her health to holding it all more loosely and she has found she's still doing the things that help her and make sense, but it has taken the struggle and frantic out of it... which makes so much difference! ruclips.net/video/eqnRw69Ia5A/видео.html
You know, what I hear in your post is a very busy mind. A brain that's doing what a brain does... trying to solve a problem. I recently heard someone say, "the answer you're looking for isn't at the end of your thinking," and I think that's true in most cases! Our brains go round and round trying to figure things out so that we will feel better, but isn't it often that busy, frantic mind that leaves us feeling so out of sorts? When our minds are quiet, that's usually when we make the best decisions and know what to do.
If you'd like to reach out to me via email (you can find it under Contact on my website), I'd be happy to chat more.
Sending lots of good wishes!!
Thank you for this video.I want to get there xxx
You're only one thought away, Jodie ❤ So glad you're part of this conversation!
@@lwwgp thank you having a bad flare so need this xxxxx
Thank you
Thx Crystal. U look amazing.
Thanks for watching, Sue! 💖
Very happy to hear from you. I’m diagnosed for about six months now. Your videos are and have been so important to me. Thank you!
Hi, Janet! Oh my goodness, am I glad you’re here. I was just saying last night how different I think my whole experience with GP would’ve been if I known what I know now right from the beginning. Though it doesn’t always look that way - especially online - there is so much hope for a “normal” life after GP (whatever that means!) and living well is totally possible! Thanks for following ❤️
What are your symptoms and cause?
What if your gastroparesis is the result of an autoimmune disease, like mine. I have scleroderma that has affected my small intestine. My gastric emptying study showed 17% retention at 4 hours. I have bloating and discomfort every day, late in the day. It is relieved somewhat with simethicone. I am losing so much weight even though I eat, albeit less than I used to. The triggering event was a hysterectomy exactly 1 year ago that caused an intestinal obstruction, so I’ve been struggling for a year. I don’t know what to do or how to even think about this, or myself. I hate thinking of myself as sick.
How did you get diagnosed with scleroderma?
She says a lot without saying anything.
True!
Thanks For Walking "And Carrying" Me Thru Gastroparesis Hell..I love you Nan.
I was just diagnosed with GP last year and even though I wasn't able to eat or anything I went in the opposite direction and I have gained over 20 lbs. I still can't eat very much or certain things but I am not able to lose any weight. Do you have any suggestions on how to handle this?
The Bible says even as my soul prospers my body prospers
It’s about believing in the decision to shift focus as we stay focused on truth over the facts of what we see until the truth becomes our facts
Focusing on truth over what we see makes so much sense to me. We're seeing everything through our own thinking but the truth of it all is much deeper. Thanks for watching and sharing what rings true to you!
New diagnosed have gastroparesis
How did you fix your gastroparesis?
What medication r u on for your palpitations cuz im taking propanolol and im having gastric delay
How often do you get a gastric emptying test?
I wanna know did you get the tube in your stomach?
I love your channel and your videos! Also id like to write I've had GP for 9 years. I entered remission back in 2017. However, since having a GI bug back in March, Ive went downhill again. Can GI bugs worsen Gastroparesis? Even after months?
Hi, there! I don't know of any research on the topic but anecdotally it definitely seems like GI illnesses can bring back or worsen GI symptoms for a period of time. We do know that some GI illness can cause gastroparesis (post-viral GP) but that it fortunately tends to resolves over months to years. My guess (only a guess) is that flare ups or a recurrence of symptoms following a GI bug may be similar. I hope you'll be feeling better again soon! In the meantime, I'm glad you're here!
What was the medication?
Thyroid issues can cause GP also so have ur PCP test your TSH, T3, T4
I related to this story its lot's of pressure
❤
Hey does gastroperosis go away i do not have any surgery or diabetes why this happened I don’t know?
My thinking isn't really about anxiety of having GP ... it is a lot of anxiety around keeping myself alive. I had it for a year and my body wasn't seeming to make a change. All of a sudden I could digest literally nothing and was fighting to keep my potassium and phosphorus up. I feel like im stressing waiting for blood results constantly to see if im at an ok level. I am never back to normal, a lot of times critical (having to go get potassium iv's and phosphorus). I keep having such major body reactions to these low minerals. At one point, for about two weeks, I stopped feeling any nerves in my body. I could not feel pain, my stomach, my heart, my lungs, my eyelids, was unable to cry etc. It feels like my body is constantly attacking itself. I go to sleep a lot of the times worried I won't wake up. Worry from these long term deficiencies and weight loss that it is causing serious damage. Any suggestions? I'd really appreciate it as you all seem to have dealt with it for so many years.
I'm so sorry you're dealing with all of this. It makes total sense that your brain would have a field day with all of that uncertainty. When I was dealing with serious complications after the birth of my daughter, it felt like I had to be so vigilant just to make sure I made it from day to day. But what I've come to see is that level of stress and worry a) doesn't help a body get better and b) doesn't really prevent anything, anyway.
Waiting on bloodwork is such a great example of that. All of the thinking doesn't change the results and the results were the same before you even knew what they were (and felt anxious or relieved). A brain will tell all kinds of stories about what will happen if the result is X or Y, but it's just a guess. It doesn't know. AND you'll respond to whatever you need to respond to as it happens. If the result indicates actions needs to be taken, you'll take action. Our worried thinking will say, "good thing I'm here, I'm responsible for this action!" but it's not. You'd take action whether you were worried or calm while you waited on those test results.
The vigilance, the kind that feels exhausting and overwhelming and frantic, is a habit of thought EVEN in the context of very real circumstances that require action. I've come to see that we just do what makes sense when something arises. But before it arises, there's nothing to do and that's where these kinds of thoughts spiral and things just feel really bad... particularly when we don't see it for it is, just a thought storm.
All of this to say, it's so relatable that you're struggling with lots of thinking around your current health circumstances AND even with those circumstances there's still the possibility for a difference experience, while still doing what needs to be done from a practical standpoint.
Does that resonate at all? Sending lots of good wishes!!
How are you doing now? Any improvements?
I'm confused, exactly how did you find freedom?
Can you just say it in 2 or 3 simple sentences so I can understand.
Thanks.
I’m suffering from gastroparesis ..I donig vomit after having my meal
And heart burn
And I’m so worried there some thing wrong with me😭😭😭
How i contact you ma'am
Why did you turn off your device?
I just felt I didn't need it anymore between the drastic improvement in my symptoms and the normalization gastric emptying. I talked with my doctor and the Medtronic reps and everyone agreed it made sense to try. I didn't feel any difference with it off, so I left it off. Now that I'm on a medication that has caused symptoms to increase, I've considered turning it back on but so far haven't done so.
Hey I was just wondering if you were aware of thiamine B1 deficiency? Apparently it causes all sorts of digestive issues. IBS, SIBO AND GASTROPARESIS. 😱 Im praying 🙏
No thanks I need practical real tangible advice I'm already in therapy for anxiety and I've already dealt with the cognitive aspect of those things I need real solutions
Did u regurgiate your food similar symptoms like reflux
Hi, there. Yes, I had significant effortless regurgitation for many years -- I think this is sometimes called rumination syndrome. It wasn't intentional but I think it almost became a habit of my body. Diaphragmatic breathing helped and it actually got better as my anxiety improved, though I don't know that the two are related. Now it really only happens if I have a larger amount of a thick liquid (smoothies, for example).
Thankyou. So, in conclusion are you getting less symptoms because of your new mindset?
Hi, Trish! It's been a while now since I recorded this video and I can't remember exactly how I explained it but I'll share what I see about all of this right now (March 2023).
When I was constantly monitoring my symptoms, unsurprisingly I was constantly aware of my symptoms. The more I looked, the more I experienced. I think we can all relate to the idea that the more you look for something, the more you find it. I think that's compounded by the gut-brain connection and the fact that when we're stressed, our digestion slows down. So it's really a cycle. The more stressed you are about digestive symptoms, the more likely you're going to have digestive symptoms.
I definitely still have symptoms, but I don't spend my time looking for them or focusing on them or trying super hard to prevent them, and so they're just less of a problem to me. It doesn't mean I don't still do things symptom-management wise, I do. But I'm not afraid of experiencing symptoms anymore and that's a game changer. They're not as severe as they were in the past, and I don't know if that's objective or subjective but it doesn't really matter to me because either way, I have so much more freedom and peace of mind.
It's not so much that I changed my mindset to get to this place (I honestly don't know how one changes their mindset) but that I came to see that the intense focus on gastroparesis wasn't serving me. I realized that it wasn't the "gastroparesis" that had me feeling desperate, overwhelmed, exhausted, etc. Rather, it was the incessant thinking about the gastroparesis. How do I feel? What do I eat? What should I do? What if...?
When my thoughts were very focused on gastroparesis management, everything related to gastroparesis management felt very important and very urgent. At the time, I thought the worry and anxiety around those feelings meant that it WAS all important and urgent. When I came to see that the worry and anxiety were really just pointing me to the fact that I super caught up in my thinking (almost always about stuff that wasn't happening in the moment), it started making less sense to spend my time that way.
There's so much relief to be found in simply understanding that this experience we call gastroparesis does not have any feelings inherent in it. People with this same label have ALL kinds of experiences of the condition. I don't mean physically because I see that as separate to what most of us are looking for, even though I know that is counterintuitive and nearly everyone will say, no I just want my symptoms to go away. But if we really dig into it, we want our symptoms to go away BECAUSE of whatever our story our brain has decided to tell about them and the feelings we feel when we believe that story is true. That's where the desperation and the frustration and all of that comes from and that's what we are all looking for relief from.
To a busy brain, this can all sound ridiculous, I'm fully aware. But I believe whole-heartedly that we can have all kinds of symptoms of gastroparesis and not suffer. Again, this doesn't mean we don't do common sense things to feel as well as we can physically but it's just that that's not really where the freedom lies. We don't have control over that, not as much as we think/assume we do anyway.
I don't know if that helps to answer your question. If anything in that resonates with you, though, please do let me know. I'm happy to follow up if I can clarify.
@@lwwgp
Dear Crystal, that's very helpful. I also have CFS but am much improved.
Basically from just putting it to one side and enjoying life in whatever way I can with each moment I am in.
I think I may have become caught up in the 'have to fix' gastroparesis mentality and as separate issue.
Thanks so much. I feel like
I'm back on track with how I want to deal with this.
Off to do some fun painting.
Blessings to you 🙏
@@lwwgp what anxiety medication were you prescribed? Are you still taking it?
How can you get better from GP? I was recently diagnosed.
How are you now?
@@Rob__James Hi Robbie. In regards to GP I manage it. The one giving issues is MCAS. That there is a monster.
BeautyFromAshes14 how did you manage?
I've been suffering for 11 years and it's ruined my life. Every ounce of enjoyment from my life has been hijacked by this condition. I was only diagnosed 2 months ago. Any advice is much appreciated.
My friend gave me no cow Fiber Bars and they help try them they help .
Interesting do you take anything. I have upper stomach pain might be despesia. Might try Dr Joe Despenza meditations lots of testimonies. Ive tried lotsof things like you.
I don't currently take any medication for gastroparesis. I did try Joe Dispenza's work for quite a while about 8 years ago or so. In my opinion, there's absolutely something to relaxing our mind and nervous system. For me, though, trying so hard to fix myself ultimately just created more stress. Learning about the Three Principles, working with Dr. Amy Johnson, and going through the Little School of Big Change is really what made a huge difference for me. Even with symptoms now, it's a totally difference experience.
You dont actually say what it is that you did other tham "you feel your thinking"
Could you turn your volume up, please? You speak very quietly. My volume is all the way up and I can't hear you. And please, get to the point because I am in severe pain right now.
Hi, Christine. Sorry that you can't hear. I'll be sure to check audio levels in the future. I'm also sorry that you're in pain. I don't know that there's a point to get to per se, this video is simply about sharing my story and my journey. I do hope it helps others, of course, and I hope whether it's here or somewhere else, you find/hear something that is helpful to you. Sending you lots of good wishes!