Traveling with Gastroparesis: My Must Haves
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- Опубликовано: 3 окт 2024
- Traveling with gastroparesis doesn't have to be stressful but packing the right things can go a long way toward feeling good while away from home. In this video I'm sharing what I pack for a short GP-friendly vacation.
Products mentioned:
Go Macro Bars www.gomacro.com/
Clif Bars www.clifbar.com/
Enjoy Life Cocoa Loco Bars enjoylifefoods...
Ensure Plant Based Protein bit.ly/3yUnaxr
ReMag bit.ly/3fLjKpo
SeaBands amzn.to/3cewWRh
Pepto Bismol Chewables amzn.to/34F1LKL
St. Claire's Tummy Soothers amzn.to/3pfmwWX
Gin Gins Hard Candy amzn.to/2TD6k68
Gin Gins Spice Drops amzn.to/3fIQVd7
QueasEase amzn.to/3g7lc48
Hot/Cold Pack amzn.to/3g7meNy
Handheld Fan amzn.to/2Refnth
Melt Method Balls www.meltmethod...
Yoga Tune Up Balls bit.ly/3uELHmJ
Yoga Tune Up Coregeous Ball bit.ly/3wVN5mL
Pedialyte Sticks amzn.to/2SKeOrD
Liquid IV Sticks amzn.to/3iaVJcM
Find my books on Amazon:
Living (Well!) with Gastroparesis: bit.ly/gastropa...
Eating for Gastroparesis: bit.ly/eatingforgp
Disclosure: All Amazon links are affiliate links. I receive a small commission from Amazon at no additional cost to you for purchases made through these links.
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Hi, I'm Crystal. I was diagnosed with idiopathic gastroparesis in 2004 at the age of 23. My experience with gastroparesis has run the gamut, from being malnourished, anxious, and all but hopeless to being a healthy, happy wife, mom, and dual-certified coach, truly living WELL!
I firmly believe that freedom from the suffering so many of us experience around gastroparesis is possible for -- and available to -- everyone... regardless of the severity of symptoms or how long you've had the condition. I hope you'll come along as we explore what the inside-out approach to living WELL with gastroparesis is and where freedom really comes from.
Join the mailing list at: bit.ly/crystals...
If this was helpful, I have a couple of other travel-related videos that you might like:
Traveling with Gastroparesis: Tips, Food to Bring, & Product Suggestions - ruclips.net/video/ReKp-TzsiCc/видео.html
Ask Crystal: "Gastroparesis symptoms are ruining my vacation... how can I savage it?" - ruclips.net/video/eIMMlIj4t4k/видео.html
I was diagnosed in February, about 2 weeks before my 80th birthday. (Looking back, I've probably had this for a long time because I can't remember a time when I could eat very much at one time without extreme discomfort.) But, in February, the pain seemed to come out of nowhere -- couldn't lay down, couldn't sleep, thought it must be gall bladder, kidney stones, something. I spent a week in extreme pain and my doctor ordered many tests that all came back normal. Then, sent me to the gastro doctor for an endoscopy. Then, the gastric emptying scan. I have gone through all the mental mess about "never being able to eat anything I want again, being afraid to eat, etc.)" Today, after all this time, I came across you, Crystal, and I have been watching your videos all afternoon. Thank you, thank you! I have a whole new outlook and have learned so much from you.
Would love to see a video on what you eat in a day 👏
I’m so glad you brought up the overheated section. Since I have been diagnosed with Gastro paresis, I have found that if I exert myself and become heated, I get very sick. I thought that was just me, but apparently it does have some correlation with this condition.
I’m so glad you brought up the overheated section. Since I have been diagnosed with Gastro paresis, I have found that if I exert myself and become heated, I get very sick. I thought that was just me, but apparently it does have some correlation with this condition.
Thank you so much for this video. I was just recently diagnosed. I have been suffering for years and getting the nothing is wrong with you brush off. I am so relieved to get diagnosed but overwhelmed at the same time . So much different information out there and very little support . Its a very confusing thing to have to deal with without feeling sad
Crystal - I’ve honestly been in tears since I discovered your website. Thank you so, so much for this video and all your other amazing resources! I was diagnosed 6 months ago and it’s been such an overwhelming nightmare physically and emotionally. Finally feel like I have a game plan to enjoy life again. Thank you.
Star, I'm so happy to hear that you're feeling more peace of mind now It can feel so very overwhelming at first but it absolutely does not have to feel that way forever. It is possible to live a really full life with gastroparesis and I hope that you continue to find your footing on that path. So glad you're here!!
Thank you very much Crystal! Your books have helped me a whole lot. Also, I do not know if you have heard of him, but Gordon Ryan, who is an accomplished Brazilian Jiu-Jitsu competitor, has recently shared his struggle with Gastroparesis. He spoke about it recently when he was on the Joe Rogan podcast and has also decided to stop competing due to Gastroparesis. I was sad to hear this news about him, but I think it could help with Gastroparesis awareness and just thought I would share it with you. Thanks again for all your help!
So glad the books have been helpful, Matt! And thanks for sharing about Gordon Ryan. I hadn't heard about it. Definitely good for awareness!
thank you for making these videos, they are so helpful for someone who was just recently diagnosed and still trying to figure everything out!! 💞💞
Meggie, I'm so glad you're finding them helpful and really happy you're here. 💖 Sending lots of good wishes!
Thank you Crystal. I am traveling next week and first time on a plane. I do what you do but I did need this!!!
Hi Crystal, this may be weird trying to contact you through RUclips, but I can't find any other way. I would really love to see a video, book, blog post, whatever, about how to live with gastroparesis when you are poor. It seems like a lot of, not just your suggestions, but most resources out there are for middle class incomes and up. I am going broke trying to keep up with my gastroparesis because all of the stuff I can eat without getting sick is expensive. I am getting so frustrated. I can't find any resources for poor people with gastroparesis. Please help. It would be very appreciated. Thank you.
Did you find anything that helps? My mother was just diagnosed 😢 it really sucks. I really hope you are doing well 💞
That’s amazing that they do that for dietary restrictions.
Great tips as always. I love Normalyte Pure for hydration. No smell or taste and not reflux. I need 2 packs a day so it has to be clean and non acidic.
This is great info, Lory! I haven't heard of that. I'll definitely check it out. Thanks!
Enjoyed your video and i will try some of your ideas! I have had gp for 16 yrs-actually probably all my life- and also Ehlers-danlos. Looking forward to more videos. Your positive attitude is refreshing....thanks
I love the Kate Farms chocolate shake. Plant based n taste amazing. Even people who are on the pump love it. Its a little pricey but so worth it. Plus it has protein in it. Which we need
So glad it works well for you! I was a huge fan of Kate Farms and recommended it frequently before they changed the formula and increased the fat content 🫤
How do you travel, or even leave your house for that matter, when the vomiting is still unpredictable? I’ve been dealing with it for 2 months now and I feel like I’m on house arrest because i never know when I’m going to vomit, so I don’t go anywhere.
This is great, I’m going out of town next week and this helps with packing.
Glad it came at a good time, Quinn! Enjoy your trip!
Thank you very much for this advice. All the best😍
Thank you so much very helpful since I travel a lot ❤
That was a great video!!!! I just ordered a bag of Gin-Gins! I will be picking up a peppermint Inhaler the next time that I see one!
Glad it was helpful, Shannon!
Thanks, very helpful.
Happy Birthday! :)
Thank you! 😄
I enjoy the Cliff Nut Butter bars
It seems like A LOT! 😳Makes me stressed to try n go somewhere!
I'm sorry to hear that! You certainly don't have to do or bring everything that I do but I travel quite often and I really love it, so it's worth spending a little extra time preparing.
How do you use the nerve stimulator? And what brand please?
Hey i was just diagnosed with gastroparesis (cause by ehler danlos syndrome). My GI doctor put me on a liquid diet ( for the future time ,he didn’t said until when). And said for me to not eat things with fat and try not eat things with a lot of fibre. I live in a small country so its difficult to find resources. I wanted to ask if you have any liquid recomendations, recipes, protein shakes, etc ( i am lactose intolerant).
Any other resource would help also, i am having a really hard time restoring my weight and being able to go to my uni classes
Great information. I had gastroparesis and struggled with digestion issues, but after using Planet Ayurveda's Digestion Support and Arogyavardhni Vati, I’ve seen significant improvement. My aunt also benefited from their supplements. Their herbs work wonders!
My wife is facing a GP diagnosis, and she has all of the debilitating symptoms. It's new so she currently feels like a shut-in. Do you have any recommendations for store-bought shakes that don't taste sweet? She hates sweet things, which has been great for her health until now... it just seems like every nutritional supplement either has a lot of sugar or non-sugar sweeteners, which really chokes on.
Sorry if I missed something along the way, but may I ask do you have the pump? I thought I was following you years ago. I downloaded your e-book and then I thought for some reason that you claimed your condition had been cured. I may be wrong about that, but I still would like to know if you, had the pump or if you still have it? Thanks for your help.
Hi, there. Thanks for following along! I'm not sure what you mean by the pump but I do have a gastric neurostimulator. It's been off since 2017, though. That's when I shared that my gastroparesis had gone away. Not cured -- I don't know of a cure for this condition -- but my gastric emptying normalized and my symptoms went away.
I said at the time that I didn't really know why it went away and I had no idea if it would come back but for the time being, I was considering the condition "resolved." That lasted a couple of years until a number of things happened in quick succession (miscarriage, bad stomach bug, extreme stress) that seemed to gradually bring the symptoms back on.
As of last year, my gastric emptying is delayed again and I do experience more symptoms now, though it doesn't cause me a lot of distress at this point. I don't know if that's because the condition is just more mild than it used to be or because of all that I've learned in the last few years. I haven't needed to restart medication or turn the gastric neurostimulator back on. I do follow a more limited diet than a few years ago (though not as limited as prior to that) and I do a lot of walking and take some supplements to help with digestion.
Hope that helps clarify! It's actually really hopeful to me that it went away for a time, even if it did come back, because it just reminds me how dynamic the condition and our experience are and that there are really are so many possibilities for the future.
Here's my original post with updates: www.livingwellwithgastroparesis.com/blog/personal-update-normal-gastric-emptying and here's more about my experience over the past couple of years: ruclips.net/video/c2Z52RMaRs8/видео.html
4hank you❤
Hi Crystal! How did you get your hEDS diagnosis? Did you work with your primary doctor or did you see a rheumatologist? Thanks!
Would you know if the Premier shakes are GP friendly? Thanks🙂
I was reciently diagnosed with FD And gastroparasis. Feeling overwhelmed. Do you councel people? You have recipe books?
Donna
Any suggestions for diabetics
What's your experience with restaurants if you wish to order a half portion rather than an adult size?
I usually just order it how it comes and then take the rest home for a second meal or share it with my husband. I almost always order off the kid's menu, though, at quick service restaurants where you're ordering at a counter or by a computer/mobile app. That's never been an issue.
@csaltrelli Thanks for that! I'm a 60 year old woman in NZ just going through the diagnostic process now ... I suspect I've had a mild form all my life and now it's severe. Thank you for your well balanced and positive information. Arohanui ❤️
When flying, is there a medical card to carry for Gastroparesis or does one need to contact TSA prior to travel for approval of carry on edible liquids/foods?
Crystal hello, could you please advise girls with gastroparethesis do physicians prescribe to you Enzymes? How often do you drink them? Thanks!
Hi, Mikhail. Digestive enzymes are sometimes recommended for those with gastroparesis but it's not a standard, across the board treatment. Hope that helps!
@@csaltrelli could you please advise how often in a year do you drink Domperidone? My physician prescribed to me 2-3 times in a year with pauses for 3-4 months. I drank them 10 mg 3 times in a day during 1-2 weeks. And have you ever drunk such prokinetic as Itopride (Itomed or Ganaton)? Thank you! Regards! Mikhail
Thanks. I thought gastroparesis was a death sentence. God bless
I also have gastropeisis plz help me
Do you have any advice for someone who is vegan struggling with gastroparesis? I am finding it hard to find any information on this and have been struggling everyday for months and months.
Kate Farms nutritional vegan drinks are amazing 😊
I'm a vegan with GP.
Miso soup, buckwheat noodles, tofu, think vegan Korean. I can eat fermented veggies so works for me.
Thanks for the tips.Why did you change from Orgain protein drink?
Great question! My daughter has an anaphylactic milk allergy so we no longer bring any dairy products into our house. I tried the plant-based (vegan) Orgain for a while but I just don't really like it and it doesn't always settle well in my stomach. I've been on the hunt for a replacement for a long time. I really liked the Kate Farms plant based shakes but they changed the formula a year or so ago and they no longer work for me. Orgain was my favorite for a long time and it's been hard to replace!!
@@csaltrelli thanks. I still use orgain vegan but will keep ensure in mind.
@@mail2vw if I liked the vegan Orgain, that would be my choice over the Ensure. So if it's working for you, keep on!