Very well said Crystal! You’ve helped me so much with my own journey with gastroparesis. My gastroparesis is in remission after 2+ years, and now I am managing colonic inertia (that likely caused my GP) and eating well! I personally have relapses of gastroparesis-y digestion whenever I get sick, but it goes back to normal after a week or so usually. It’s taken me a while to grow and come to peace with my condition, but gastroparesis does not control me or scare me anymore. And that right there is true freedom!
Thank you so much for this video! All your videos/books have really helped me. It will be a year in Father’s Day that I was diagnosed with idiopathic gp. It has gotten better to the point where I put weight back on but it’s not completely gone for now. I joined a Christian gp support group and fortunately it’s been really helpful and encouraging. God bless and have a great day! 💗
Edith, I’m so glad you’re doing better and very happy that you found an uplifting support group! Feel free to drop the name/link here for others who may be looking for similar support. So important to highlight truly helpful resources! Sending you lots of good wishes ❤️
Hi I want to say that your videos are helping me out a lot I was diagnosed with gastroparesis today May 26th 2023 you're helping me understand it what I can and you're helping me understand it I want to thank you very much and I will continue watching your videos and keep a lookout for more videos thank you very much and God bless you
I had gastroparesis in 6th grade-freshman year, just a couple months ago I got a virus and its back! I watched you when I had it the first time an here I am binging now!
These was extremely helpful! I am newly dealing with this condition. I joined a “support” group and quickly had to leave for my own sanity. Crystal you are the only person I will listen right now! I just got your have your book and that has been so helpful as well. Thank you for your work.
Erika, I'm so glad you're listening to your gut (what a horrible pun, huh?) and doing what feels right for you. It's comments like yours that keep inspiring me to create content for the GP community. 💖
Hi I have gastroparesis I was diagnosed last year. I’m currently on tpn. I also have problems with my esophagus and colon as well (delayed .) the support I’ve found are from peers my age.
I know you said living in the "now" moment. but its the thought that what if in the future i do need a feeding tube? i dont want to live like that is why its scary
I have had gastroparesis for years. I have times when I am good and then for no reason its back! This time, I wasn't vomiting as much, but the belching is terrible! I drink or eat anything and it is worse...😢 I'm praying it gets better again soon. I wish I knew what triggers it...the constipation is awful. My stomach feels hard and hurts constantly....it's been bad since early November. I feel somedays it's getting better but.....
I was on strong antibodies for 10 days. Also (ciprofloxacin) up to 800 mg of ibuprofen and up to 1000 mg of tylenol for about a week. One night I had something spicy and my stomach locked up. I've had early satiety for 12 days now and feel full for 4-5 hours after small meals. I have no clue whats going on. Ulcer, gastritis, and very afraid it's gastroparesis but idk. Sorry I'm venting anxiety
Hey recently i used steroid now am facing gp from unknown cause does it,s go away? I have bad nausea but not have early satiety i have bloating after eating
Can you add a closed caption in your videos? I was recently diagnosed with gp (72% sitting in the tummy..ugh) several weeks ago. Mine wasn’t sure what caused but I think it is related to reflux and hiatal hernia since I have a specialist/surgeon reviewing my case. I have heard that online groups give a lot of depressing comments. I did join, but this is not helpful, even talking about what they are eating which seems to be an alarm. I'm pretty much frustrated about what to eat and such. I'm tired and no energy. My breathing is hurting. I'm pretty much on bone broth, Orgain powder, water, chicken, sweet potato, and a couple more. I only take multivitamins and d2 - k3. I don't take any medication at this time because I took too many GI medications, narcotic pills, and such. This is partially probably what caused me to have slow motility as well. I'm pretty much overwhelmed. So now I'm trying to figure what to do in the next step. My ruthless GI (4th or 5th) is no helpful but urged me to take Domperidone. I refused because of the side effects. He said there was nothing more he could help. I pray there is hope. Sigh.
First, regarding closed captions, I believe if you just hit the "CC" button on the bottom of the video, it will bring up the captions. If that doesn't work let me know; I certainly want the videos to be accessible to all. Now, to your post... there's so much hope! Truly. Stick around here (or check out my website) and you'll see lots of people who are living well despite the condition and those who have improved greatly or no longer have gastroparesis. I love your insight around even the conversations on what people are eating feeling unhelpful. I think sometimes the more attention we pay to things, the more all consuming they become. There's a balance to be found between ignoring symptom management and being consumed by it. The freedom is somewhere in the middle, where we do what makes sense to feel as good as we can physically and then we keep on living our lives with gastroparesis a part of it but not the focus of it. That's what I talk about and so I'm really glad you're here!
Thanks. I found the closed caption. When I first learned about the gp from the result of GES, I was upset and couldn't figure out what it has caused. But no GIs here can help me. Also I'm waiting for a specialist/surgeon for hiatal hernia/reflux to review my case soon and I have already maxed out the conservative treatments, except Domperidone. No medications can help with this because the hiatal hernia has opened up the hole and the reflux goes up despite of everything I have tried. I'm also on 8-month post op second neck surgery (not caused to go, though). I also had hysterectomy two years ago. Now with gp, it drives me nuts. I'm in pain from tummy to throat. I have lost weight without intention. Too much all at once. So I hope I can get all the help and be able to move forward. I just don't know what to do to help easing my tummy, nausea, chest pain, sour taste and such. I will watch this video soon.
@@bdyslin5039 Sorry you're experiencing all of those issues. My gastroparesis and intestinal dysmotility is caused by hypermobile type Ehlers Danlos syndrome, which is a collagen disorder that can cause motility issues, hernias, joint issues, and a wide array of other systemic issues. I have adverse reactions to dopamine blocking drugs like Domperidone, so that one isn't an option for me. My doctor put me on an older and safer prokinetic medication called Mestinon (Pyridostigmine), which Mayo Clinic has pioneered as a repurposed medication to treat gastroparesis, chronic constipation, and other motility issues. Mestinon is what fixed my digestive issues, thankfully. Hoping you can find a good doctor who can work with you to find the best treatment option for you, so you can feel better!
Crystal, in 2014 Albany med New York diagnosed me with liquid gp yet in 2020 they said they no longer offer this test. Any idea why? Thx for your videos.
I was diagnosed in 2018 we were to the point of putting a pacemaker in me in 2019 ....took test and emptying had gotten better but, I still major days of nausea stomach pain cramping diarrhea and constipation and i have been able to put weight back on. My question is is this normal or can it all a combination of my ibs-b, Gerd with the GP, and gallbladder removal ?
Hi, Whitney! Thanks for being here. It sounds like you have a pretty common combo of functional GI issues (GP + reflux, IBS, "sluggish" gallbladder, etc.) I have dealt with all of this myself, so I definitely understand how overwhelming it can feel. I can't tell from your question if you did get a stimulator implanted or you were going to but then your emptying improved. If you're asking if it's still normal to be symptomatic after you have the device implanted, I think that's not uncommon. It's a symptom management tool and typically doesn't completely alleviate symptoms on its own. For me, it was helpful as one part of a management plan that also included dietary changes, lifestyle practices, good sleep, addressing anxiety, etc. I also still took medication for nausea and constipation while I had the device turned on. (Mine has been off for a few years now.) If I misunderstood your question, just let me know and I'll be happy to follow up. Sending good wishes!
@Crystal Sorry no we didn't have the pacemaker put in and it is all tolerable at time with all these problems but I feel I can't trust my body to go back to working since everything is so unpredictable, just before covid hit I decided to stop all the different medications due to ever new med causing a new problem or aggravating a existing one. I take something for stress, for my diabetes and Gerd as well as something for the bad bad bad nausea spells.
@Crystal I guess I am asking are all these feelings normal ? I feel like I letting my family down by not being able to work due to the horribly unpredictable way my body acts. I have days where I just feel that I am so sick and tired of being sick and tired (no I'm not suicidal by any means Im just so tire of feeling like this)I love my family and my life aside from the health issue.
@@whitneysims8505 Ok, I understand and I'm so glad you're here. I think there's so much in this conversation for you. Yes, I think what you're feeling is super common. I can certainly relate and I bet a lot of others can too. One thing that I've found really interesting over the years is how my perspective has shifted on my body. What you say about not being able to trust your body to work again... I very much used to feel that. I didn't trust my body at all and I felt like I had to constantly be monitoring and manipulating it to do what I wanted it to do. I see it really differently now. I see that my body was faced with all kinds challenges (genetic, viral, hormonal, nutritional... stress of all kinds) and in spite of it all, has done the very best it could do to keep me going. I have a lot more gratitude and compassion for my body now and it has really made a lot of difference in how I feel about my health and my wellbeing. It was also helpful for me when I realized that being "sick and tired of being sick and tired" (so human by the way! we have these common sayings for a reason!) was just a reflection of my state of mind in a moment. It wasn't reflective of my situation (because that feeling changed now and then, even as my situation stayed pretty much the same). And by seeing that, it felt less like I had to *do* something about feeling sick and tired, and somehow there was relief just in that alone. Again, this is all part of the larger discussion we've been having here around the inside out nature of life and I think it's so much more transformative than initially seems. It's the thing that really gets people back into the lives, even if their bodies aren't doing exactly what they'd like them to do. Would love to know if you hear anything in this, Whitney. Sending you lots of good wishes!
@@whitneysims8505 Do you happen to have underlying or undiagnosed Ehlers Danlos syndrome (EDS)? That's what turned out to be the cause of my digestive issues, as well as all of my other health issues. It's a collagen disorder which can cause issues all around the body, since collagen is everywhere in the body. There are also 13 different types of EDS, which makes it very confusing for doctors to identify and diagnose.
Hi, Armando. Carrie was speaking specifically to idiopathic/possibly post-viral GP (a detail I probably should've included in the video!🤦♀️). Diabetic gastroparesis is typically a long-term condition as it's a result of the diabetes itself. That said, I do think the discussion around our experience is still extremely relevant (and maybe even more so!) in that case. I think that's the real beauty of talking about gastroparesis from the "inside out" perspective -- it's applicable to all us, regardless of cause, severity, length of diagnosis, etc. Glad you're here!
Very well said Crystal! You’ve helped me so much with my own journey with gastroparesis. My gastroparesis is in remission after 2+ years, and now I am managing colonic inertia (that likely caused my GP) and eating well! I personally have relapses of gastroparesis-y digestion whenever I get sick, but it goes back to normal after a week or so usually. It’s taken me a while to grow and come to peace with my condition, but gastroparesis does not control me or scare me anymore. And that right there is true freedom!
YES! That's exactly it, Reina. When we're no longer afraid of our experience, everything changes. So glad you're doing well and so glad you're here!
Thank you so much for this video! All your videos/books have really helped me. It will be a year in Father’s Day that I was diagnosed with idiopathic gp. It has gotten better to the point where I put weight back on but it’s not completely gone for now. I joined a Christian gp support group and fortunately it’s been really helpful and encouraging. God bless and have a great day! 💗
Edith, I’m so glad you’re doing better and very happy that you found an uplifting support group! Feel free to drop the name/link here for others who may be looking for similar support. So important to highlight truly helpful resources! Sending you lots of good wishes ❤️
Hi I want to say that your videos are helping me out a lot I was diagnosed with gastroparesis today May 26th 2023 you're helping me understand it what I can and you're helping me understand it I want to thank you very much and I will continue watching your videos and keep a lookout for more videos thank you very much and God bless you
I had gastroparesis in 6th grade-freshman year, just a couple months ago I got a virus and its back! I watched you when I had it the first time an here I am binging now!
I cant applaud this enough. Thank you!!
You are a wise young women. Thanks for your help.
These was extremely helpful! I am newly dealing with this condition. I joined a “support” group and quickly had to leave for my own sanity. Crystal you are the only person I will listen right now! I just got your have your book and that has been so helpful as well. Thank you for your work.
Erika, I'm so glad you're listening to your gut (what a horrible pun, huh?) and doing what feels right for you. It's comments like yours that keep inspiring me to create content for the GP community. 💖
Same. The support groups on FB terrified me. You don't see support groups for people that are "doing well".
Hi I have gastroparesis I was diagnosed last year. I’m currently on tpn. I also have problems with my esophagus and colon as well (delayed .) the support I’ve found are from peers my age.
Hello. Your books are the greatest. My Dr recommended them and he led me to the best information. Thank you Gastroporesis forever
Michele, I'm so glad the books have been helpful for you! If you feel comfortable sharing, who is your doctor?
I know you said living in the "now" moment. but its the thought that what if in the future i do need a feeding tube? i dont want to live like that is why its scary
Thank you for this video so true.The internet is a very scary place thank God for you xxx x x
So very glad you found your way here and we were able to connect! 💖
I have had gastroparesis for years. I have times when I am good and then for no reason its back! This time, I wasn't vomiting as much, but the belching is terrible! I drink or eat anything and it is worse...😢 I'm praying it gets better again soon. I wish I knew what triggers it...the constipation is awful. My stomach feels hard and hurts constantly....it's been bad since early November. I feel somedays it's getting better but.....
Very helpful smart and encouraging thank you.
I was on strong antibodies for 10 days. Also (ciprofloxacin) up to 800 mg of ibuprofen and up to 1000 mg of tylenol for about a week. One night I had something spicy and my stomach locked up. I've had early satiety for 12 days now and feel full for 4-5 hours after small meals. I have no clue whats going on. Ulcer, gastritis, and very afraid it's gastroparesis but idk. Sorry I'm venting anxiety
Hello there, how are you doing now? Your experience sounds very similar to mine.
Thank you
"Competitive suffering" no truer words were ever spoken. I checked a few of the sites and found it awful.
Hey recently i used steroid now am facing gp from unknown cause does it,s go away? I have bad nausea but not have early satiety i have bloating after eating
Thank you for this video!!
Thanks for watching, Tinnia! Glad it was helpful!
Can you add a closed caption in your videos? I was recently diagnosed with gp (72% sitting in the tummy..ugh) several weeks ago. Mine wasn’t sure what caused but I think it is related to reflux and hiatal hernia since I have a specialist/surgeon reviewing my case. I have heard that online groups give a lot of depressing comments. I did join, but this is not helpful, even talking about what they are eating which seems to be an alarm. I'm pretty much frustrated about what to eat and such. I'm tired and no energy. My breathing is hurting. I'm pretty much on bone broth, Orgain powder, water, chicken, sweet potato, and a couple more. I only take multivitamins and d2 - k3. I don't take any medication at this time because I took too many GI medications, narcotic pills, and such. This is partially probably what caused me to have slow motility as well. I'm pretty much overwhelmed. So now I'm trying to figure what to do in the next step. My ruthless GI (4th or 5th) is no helpful but urged me to take Domperidone. I refused because of the side effects. He said there was nothing more he could help. I pray there is hope. Sigh.
First, regarding closed captions, I believe if you just hit the "CC" button on the bottom of the video, it will bring up the captions. If that doesn't work let me know; I certainly want the videos to be accessible to all.
Now, to your post... there's so much hope! Truly. Stick around here (or check out my website) and you'll see lots of people who are living well despite the condition and those who have improved greatly or no longer have gastroparesis.
I love your insight around even the conversations on what people are eating feeling unhelpful. I think sometimes the more attention we pay to things, the more all consuming they become. There's a balance to be found between ignoring symptom management and being consumed by it. The freedom is somewhere in the middle, where we do what makes sense to feel as good as we can physically and then we keep on living our lives with gastroparesis a part of it but not the focus of it.
That's what I talk about and so I'm really glad you're here!
Thanks. I found the closed caption. When I first learned about the gp from the result of GES, I was upset and couldn't figure out what it has caused. But no GIs here can help me. Also I'm waiting for a specialist/surgeon for hiatal hernia/reflux to review my case soon and I have already maxed out the conservative treatments, except Domperidone. No medications can help with this because the hiatal hernia has opened up the hole and the reflux goes up despite of everything I have tried. I'm also on 8-month post op second neck surgery (not caused to go, though). I also had hysterectomy two years ago. Now with gp, it drives me nuts. I'm in pain from tummy to throat. I have lost weight without intention. Too much all at once. So I hope I can get all the help and be able to move forward. I just don't know what to do to help easing my tummy, nausea, chest pain, sour taste and such. I will watch this video soon.
@@bdyslin5039 Sorry you're experiencing all of those issues. My gastroparesis and intestinal dysmotility is caused by hypermobile type Ehlers Danlos syndrome, which is a collagen disorder that can cause motility issues, hernias, joint issues, and a wide array of other systemic issues.
I have adverse reactions to dopamine blocking drugs like Domperidone, so that one isn't an option for me. My doctor put me on an older and safer prokinetic medication called Mestinon (Pyridostigmine), which Mayo Clinic has pioneered as a repurposed medication to treat gastroparesis, chronic constipation, and other motility issues. Mestinon is what fixed my digestive issues, thankfully.
Hoping you can find a good doctor who can work with you to find the best treatment option for you, so you can feel better!
Crystal, in 2014 Albany med New York diagnosed me with liquid gp yet in 2020 they said they no longer offer this test. Any idea why? Thx for your videos.
Hi, Sue. I'm really not sure. I have experienced similar changes in testing and treatments offered at various clinics, though. Thanks for being here!
I was diagnosed in 2018 we were to the point of putting a pacemaker in me in 2019 ....took test and emptying had gotten better but, I still major days of nausea stomach pain cramping diarrhea and constipation and i have been able to put weight back on. My question is is this normal or can it all a combination of my ibs-b, Gerd with the GP, and gallbladder removal ?
Hi, Whitney! Thanks for being here. It sounds like you have a pretty common combo of functional GI issues (GP + reflux, IBS, "sluggish" gallbladder, etc.) I have dealt with all of this myself, so I definitely understand how overwhelming it can feel.
I can't tell from your question if you did get a stimulator implanted or you were going to but then your emptying improved. If you're asking if it's still normal to be symptomatic after you have the device implanted, I think that's not uncommon. It's a symptom management tool and typically doesn't completely alleviate symptoms on its own.
For me, it was helpful as one part of a management plan that also included dietary changes, lifestyle practices, good sleep, addressing anxiety, etc. I also still took medication for nausea and constipation while I had the device turned on. (Mine has been off for a few years now.)
If I misunderstood your question, just let me know and I'll be happy to follow up. Sending good wishes!
@Crystal Sorry no we didn't have the pacemaker put in and it is all tolerable at time with all these problems but I feel I can't trust my body to go back to working since everything is so unpredictable, just before covid hit I decided to stop all the different medications due to ever new med causing a new problem or aggravating a existing one. I take something for stress, for my diabetes and Gerd as well as something for the bad bad bad nausea spells.
@Crystal I guess I am asking are all these feelings normal ? I feel like I letting my family down by not being able to work due to the horribly unpredictable way my body acts. I have days where I just feel that I am so sick and tired of being sick and tired (no I'm not suicidal by any means Im just so tire of feeling like this)I love my family and my life aside from the health issue.
@@whitneysims8505 Ok, I understand and I'm so glad you're here. I think there's so much in this conversation for you. Yes, I think what you're feeling is super common. I can certainly relate and I bet a lot of others can too.
One thing that I've found really interesting over the years is how my perspective has shifted on my body. What you say about not being able to trust your body to work again... I very much used to feel that. I didn't trust my body at all and I felt like I had to constantly be monitoring and manipulating it to do what I wanted it to do.
I see it really differently now. I see that my body was faced with all kinds challenges (genetic, viral, hormonal, nutritional... stress of all kinds) and in spite of it all, has done the very best it could do to keep me going. I have a lot more gratitude and compassion for my body now and it has really made a lot of difference in how I feel about my health and my wellbeing.
It was also helpful for me when I realized that being "sick and tired of being sick and tired" (so human by the way! we have these common sayings for a reason!) was just a reflection of my state of mind in a moment. It wasn't reflective of my situation (because that feeling changed now and then, even as my situation stayed pretty much the same). And by seeing that, it felt less like I had to *do* something about feeling sick and tired, and somehow there was relief just in that alone.
Again, this is all part of the larger discussion we've been having here around the inside out nature of life and I think it's so much more transformative than initially seems. It's the thing that really gets people back into the lives, even if their bodies aren't doing exactly what they'd like them to do.
Would love to know if you hear anything in this, Whitney. Sending you lots of good wishes!
@@whitneysims8505 Do you happen to have underlying or undiagnosed Ehlers Danlos syndrome (EDS)? That's what turned out to be the cause of my digestive issues, as well as all of my other health issues. It's a collagen disorder which can cause issues all around the body, since collagen is everywhere in the body. There are also 13 different types of EDS, which makes it very confusing for doctors to identify and diagnose.
can gastroparisis caused by a horrible eating schedule go away?
What about diabetic gastrioparesis...it can go away?
Hi, Armando. Carrie was speaking specifically to idiopathic/possibly post-viral GP (a detail I probably should've included in the video!🤦♀️). Diabetic gastroparesis is typically a long-term condition as it's a result of the diabetes itself. That said, I do think the discussion around our experience is still extremely relevant (and maybe even more so!) in that case. I think that's the real beauty of talking about gastroparesis from the "inside out" perspective -- it's applicable to all us, regardless of cause, severity, length of diagnosis, etc. Glad you're here!
Sad to say dietitians could use some instruction regarding gastroporesis .