A Gastroparesis Patient's Journey To Recovery
HTML-код
- Опубликовано: 13 сен 2024
- Registered Dietitian Beth Rosen is joined by one of her patients, Addison, who shares her unique experience with gastroparesis, which was spurred by an eating disorder. Gastroparesis is a serious condition that affects the normal spontaneous movement of the muscles (motility) in the stomach. Beth emphasizes that not everyone with gastroparesis has an eating disorder, but in Addison’s case, her eating disorder contributed to the motility issues and symptoms often associated with gastroparesis. Addison explains how her condition evolved over her childhood and how, with Beth's guidance and care, she was able to overcome her fear of eating, and today has a much healthier relationship with food.
For more info:
gastrogirl.com
gi.org/patients
giondemand.com
Follow Gastro Girl
Facebook / gastrogirlinc
Instagram / gastrogirl_inc
Twitter / gastrogirl
Follow ACG
Facebook / amcollegegastro
Instagram / amcollegega. .
Twitter / amcollegegastro
Follow GIOnDEMAND
Facebook / giondemand
Twitter / giondemand
Instagram / giondemand
Disclaimer: The sole purpose of the Gastro Girl podcast is to provide educational and informational content. Gastro Girl, Inc., American College of Gastroenterology, The Gastro Girl Podcast, host, Jacqueline Gaulin, and any and all guests appearing on any Gastro Girl podcast episode [Collectively the Service Provider] do not provide any medical advice and the Information will not be so construed or used as medical advice. Using, accessing and/or listening to the Gastro Girl Podcast and/or providing personal or medical information to the Service Provider does not create a clinician-patient relationship between the Service Provider and you or your patients. Nothing contained in this or any Gastro Girl Podcast episode is intended to create a clinician-patient relationship, and you will not rely on anything contained in any podcast episode in diagnosing or treating yourself or anyone else. THE INFORMATION CONTAINED IN THESE PODCAST EPISODES IS PROVIDED FOR EDUCATIONAL PURPOSES ONLY AND IS NO WAY INTENDED TO DIAGNOSE, CURE OR TREAT ANY MEDICAL OR OTHER CONDITION. PLEASE CONTACT YOUR HEALTHCARE PROVIDER WITH ANY QUESTIONS RELATED TO YOUR HEALTH AND WELLBEING. If YOU ARE EXPERIENCING A HEALTH Emergency Please CALL 911
I've just recently been told by an MD that she's 97% sure I have gastroparesis. This was devastating for me because I've got so many health issues already, and I didn't want yet ANOTHER one. She told me I wouldn't be able to eat most of the things I love like salads, oil & vinegar salad dressing, most fruits, green beans, steak, nuts, etc. I literally cried all the way home not bc she told me I probably have gastroparesis, but more because something else health-wise was being taken away from me, my joy of life, and of course being told a person can't heal from gastroparesis made me incredibly depressed (more than I already was). The MD wants me to do all the tests beginning with gastric emptying. Well, I DON'T WANT TO. I know I sound like I'm four yrs old, but OMG! I had my gallbladder removed in 2000. In 2007 I became deathly ill at only 42 yrs old and nearly died from idiopathic heart disease (I now have an ICD/PACER). I was already dealing w/ depression/anxiety/panic attacks/insomnia/hypothyroidism, etc. My quality of life plummeted. In 2015, I began a weight loss journey and decided not to focus on my weight (170 lbs) but to just eat healthy foods. I chose to try a gluten-free diet, but also told myself IF I wanted a cookie or slice of cake at a party, I could, but then not again for a while. Over two years I dropped down to 126 lbs. I was no longer flagged for being prediabetic. I felt fantastic! Then, slowly but surely, symptoms began w/ digestion. I began having to cut out parts of my nightly treat; a bowl of grapes, blueberries, raspberries, kiwi, and some cheddar cheese, until I couldn't eat any fruit at all. Maybe a banana, but I don't really like those. My fruit bowl was what helped me loose weight in the first place bc I looked forward to it and it helped get rid of cravings. Now it seems all I can eat "safely" is carbs like crackers and jello w/out triggering my stomach. I had been doing so well and bc of this, since 2020, I have gained back about 15 lbs! I don't want to be overweight again! I don't know what to do to help myself, and my PCP isn't a supporter of more naturopathic methods so I'm not getting any aid from her either. I'm completely at a loss. I don't know what to do. I'm searching the internet for alternatives but not coming up w/ anything much. Addison's story is helpful to hear, but how can I find a Beth Rosen to help me LIVE MY LIFE free of diseases?😭💔
Dear Bonny, First of all, thank you for sharing your story. You are brave and resilient. Are you under the care of a gastroenterologist--and one who specializes in gastroparesis and motility issues, as this type of doctor may be most helpful. Also, there is a GEBT (gastric emptying breath test) that you may want to check out and speak with your doctor about cairndiagnostics.com/patients to see if this will work you. I know tests can be scary, but as a patient in my opinion it is better to know what is happening in our body so we can make informed decisions with our HC providers about treatment options and management. You have gone through a lot and its totally understandable to feel the way you do. But I sincerely hope you can find the right provider to help and guide you. If you are not getting the support you need from your current provider, please think about contacting a Gastroenterologist. ACG has a directory gi.org/patients/find-a-gastroenterologist/. Also, you can contact Beth Rosen directly via her site bethrosenrd.com/ and she can help you find an RD to help you. We have a list on giondemand.com as well and you can search for one there too. Hang in there. Help is out there that is evidence-based and led by medical experts. Please check out the links. And let us know how you are doing.
Thank you so much for posting this interview. I am so glad Addison was able to get through it. I am really struggling with gastroparesis-like symptoms on top of other things like IBS, recurring UTIs and whatever else my plumbing can throw at me. I seem to have gotten idiopatic gastroparesis after what seems like gastroenteritis. I feel like I am facing a mountain and that I am speaking in the void when talking to doctors. It's a big struggle to get things to move forward. It was really good to hear about someone else's journey. Thank you.
I hear you SketchyMarieArt. I just posted above yours about many of my issues, gastroparesis being the latest one. Have you been able to find help? Are you feeling any better?
@@BonnyScotland17 Hi Bonny, I have read your story below. I am so sorry you are going through all of this. I understand how dark things can be at times and the feeling of helplessness. For over a year now, I have been working daily on figuring out what is going on, healing, and feeling better. I got several answers since I posted this comment and progressed a lot in feeling better. I have many things combined (post-infectious IBS and functional dyspepsia, Dysbiosis -> bacterial overgrowth, damage to my gi tract from repeated antibiotics, mold exposure, heavy metal toxic load, and I am now testing for SIBO) I used both traditional medicine and functional/holistic/naturopathic methods. I would be happy to share my experience with you and all the things I have been doing to feel better, eat, deal with panic attacks, fear of nausea, abdominal pains, bloating, the psychological side of things, etc. I eat berries daily, but I cook them. I have some nice recipes, books, supplements, protocols, etc. Ginger is my best friend. You can DM me on Instagram @chartrand.marieeve.
I'm at my doctor office like almost every week. Everybody probably knows me there.I have been seek since the beginning of this year, and I finally was diagnosed with gastroparesis. It gave me some release and for them to believe me.
Thank you so much for your kind words. You can listen to the other podcast episode mentioned here on Apple Podcasts or any other of your fave podcast platforms like Spotify, Audible, Google, etc. Here is link to GG Podcasts on Apple podcasts.apple.com/us/podcast/gastro-girl/id1545993954 Here is link to the episode, What a Patient and Doctor Want You to Know About Gastroparesis - podcasts.apple.com/us/podcast/what-a-patient-and-doctor-want-you-to-know/id1545993954?i=1000512209330 💗💗💗
Brilliant podcast as always. Please can tell me where I can listen to the other podcast about gastroparesis. Podcast 13 that you mentioned at the end of the video? I suffer from gastroparesis and I’m very interested to find out more please. Xxxx 🌸❤💕
Thank you so much for the kind words. You can listen to the episode , What a Patient and Doctor Want You to Know About Gastroparesis, here on Apple Podcasts (or your fave podcasting platform, like Spotify, Audible, etc.) podcasts.apple.com/us/podcast/what-a-patient-and-doctor-want-you-to-know/id1545993954?i=1000512209330 💗💗💗
PS Here are links to GG Podcast on other platforms gastrogirl.com/gastro-girl-podcast/
I have this because I suffered from anorexia and eating disorders 😢
I have Gastro paresis, and I am always full. I can’t understand how discovering that someone has anorexia helps the gastroparesis. What was the diet change what happen? This is not enough information for your viewers
Hi Louisa, this patient's GP was caused by her eating disorder. By not eating adequately, her GI system slowed. Once we increased her intake using foods that would not exacerbate her GP, and she ate regularly and adequately, her GP went into remission. I suggest you meet with a GI registered dietitian to help you with dietary changes to reduce your symptoms. If you are in the US and want to share what state you live in, I can recommend someone from the GI OnDEMAND network.
I live in northern idaho
Please help me I have it
Mine was caused by a hiatal hernia.
I would like contact info for Beth Rosen. Please. And thank you.
Here you go. bethrosenrd.com/ Thank you for your note.
You can also search for a GI expert Registered Dietitian on our sister site giondemand.com, where we have RDs in each state. Just register for a free account to access. Also check out education.giondemand.com for RD-led online education programs.
Do you have a list of foods that sufferers can eat🙏🏽
Thank you for your question. There is no one-size fits all. It depends on what works best or each patient. Here is a good resource from the Cleveland Clinic my.clevelandclinic.org/-/scassets/files/org/digestive/gastroparesis-clinic/diet-for-gastroparesis.pdf?la=en But it is always best to speak with your healthcare provider about your health condition and/or consult with a registered dietitian with specific expertise in working with GI patients. You can search for one on giondemand.com
Was her vagus nerve damaged? What was the actual damage to the body that caused the gastreoperesis?
The eating disorder led to GP. Up to 98% of folks with eating disorders end up with functional GI disorders - most commonly GP, reflux, and irritable bowel syndrome. Her lack of eating and the disordered behaviors she had at the time contributed to the slowing down of her GI tract and led to GP and constipation. This is not how everyone develops GP but this is how this patient did.
What are you eating now??
Please re-title this video. It is a half hour about eating disorders and almost nothing about gastroparesis
I'm sorry this video content did meet your expectation based on the title. Respectively, this video is about a young women who was diagnosed with gastroparesis related to an undiagnosed eating disorder. It is about her journey. The title and description clearly state this. As always, we are open to suggestions and questions you may have about a particular digestive health-related topic. Feel free to let us know what questions you may have about gastroparesis. We take all suggestions into consideration for future episodes. Thank you for your feedback.