Thank you for making this video ❤️ I'm being sent to Cleveland Clinic to be evaluated for a gastric stimulator. I don't have severe Gastroparesis, but my doctor wants me to try the stimulator and thinks it can help with my symptoms. This gave me a lot of information and what to expect.
Interesting and glad its helped you. However most sources read that it does in fact stimulate the nerves and muscles to contract and help with the emptying as stated by several doctors. The gastric pacemaker signals the stomach to contract to try to improve patients' gastroparesis,” Dr. Hodgett said about the gastric pacemaker.
No, that wasn't my experience. Enterra therapy is really intended to alleviate the nausea and vomiting associated with gastroparesis rather than speed up gastric emptying. Some people do experience improved gastric emptying but based on the studies I've read, the majority do not.
I got my neurostimulator Feb 23 2015. Before having it I struggled with dry heaving and nausea. I am not happy with my results at all. Now I throw up fully with solids, and my pain has increased. I am on pain medication to manage it. This was not my plan. I had it turned off to see if my symptoms got better with it off. I still experienced pain and nausea. My puking slowed way down though. I also have a gj and was venting some. My dr just recently turned it back on and I am puking again. I just want it out. So upset cause recovery was rough on me. 8 day hospital stay. Months of in home care and pt. my bp was really bad and I walked with a walker for a long time. Wish it had helped me.
+Erin McGinnis That sounds terrible! I can only imagine how frustrating it is to have gone through all of that and the result to be worse. I hope that your doc is able to help you figure out the best course of action from here in order for you to get relief. Maybe your doc could consult with Dr. Abell or one of the other experts in the device (assuming you don't already see him) to see what they'd do in that situation. Sending good wishes your way!
+Stronger Thru Him +Crystal Saltrelli I saw this thread and I know it's a year old but I wanted to reply as I just heard a motility specialist talking about this very problem. My last appointment with the motility specialist he mentions to the medical students about gastric stimulators and feeding tubes. He explained to them why he never puts gastric stimulators into patients that have feeding tubes (gj or peg). He said it causes extreme pain because most of the time chances are the tube will rub up against the electrodes or brushes them at times. Also there's just too much stuff on that side causing pressure and if you get distended a lot there's just too much of a likelihood of greater pain. I hope your problems were already resolved. But I thought I should reply just incase. Of course this is just one motility specialist's opinion and I'm not a doctor. I'm sorry for the horrible explanation it probably didn't make much sense but I do know he was very adamant about it and his reasoning made sense at the time but I didn't relay it back very well.
BAsketball3023 I got my stimulator out Almost a year ago. I will always have that scar and the scar tissue. I have not been able to get off pain meds for over 14 months. It is maddening to say the least.
I'm thinking about it, but not sure. I've lost over 287lbs in about 1yr 8 mos. I live in the finger lakes and not sure where would be the best place to get it done. Can you contact me and help me? Ty
Hi, there. We don't have great GI doctors in western NY unfortunately, so I don't have anyone to recommend locally. I had mine implanted and managed at Mayo Clinic but they no longer implant them. You can find a provider on Enterra's website if you're willing/able to travel: www.enterramedical.com/find-a-doctor/. It's certainly not a cure -- and I'm looking to have mine removed at this point, as it's been off for almost 7 years -- but it was helpful during a time when nothing else was making much of a difference.
I'm just curious do they do feeding tubes and the gastric stimulator at the same time. Because I am somewhat malnutritious. But I am also having a lot of complications with the GP. And my doctor says that my next appointment next week she's going to talk about or refer me to the Cleveland clinic to get a feeding tube. But I'd rather opt for what I think would be a better option and I won't have something hanging out of me instead of have something in me with the gastric stimulator. And control the nausea and vomiting as well as it can anyhow.
+Ariel Noriega No, I didn't have a temporary stimulator. It depends on the doctor, usually, as to whether they choose to try a temporary one first or just implant the permanent one. Good luck to you!
I've been dealing with a lot of nausea and dry heaving. My GI doctor has recommended the gastric pacemaker. I've heard from most people that it has changed their life. Do you recommend the stimulator?
Dear God you poor women you have it very bad:( I wished you could just quickly tell me how you cope with GP if you have any tidbits for us GPers:) like one do this two do this a list for quick reference!
Thank you for making this video ❤️ I'm being sent to Cleveland Clinic to be evaluated for a gastric stimulator. I don't have severe Gastroparesis, but my doctor wants me to try the stimulator and thinks it can help with my symptoms. This gave me a lot of information and what to expect.
Interesting and glad its helped you. However most sources read that it does in fact stimulate the nerves and muscles to contract and help with the emptying as stated by several doctors. The gastric pacemaker signals the stomach to contract to try to improve patients' gastroparesis,” Dr. Hodgett said about the gastric pacemaker.
A lot of people say it helps with gastric emptying as well was that not your experience?
No, that wasn't my experience. Enterra therapy is really intended to alleviate the nausea and vomiting associated with gastroparesis rather than speed up gastric emptying. Some people do experience improved gastric emptying but based on the studies I've read, the majority do not.
Hi Crystal, tomorrow I'm having my pyloric sphincter dialated and botox injection administered in my stomach.
I'm worried.
I got my neurostimulator Feb 23 2015. Before having it I struggled with dry heaving and nausea. I am not happy with my results at all. Now I throw up fully with solids, and my pain has increased. I am on pain medication to manage it. This was not my plan. I had it turned off to see if my symptoms got better with it off. I still experienced pain and nausea. My puking slowed way down though. I also have a gj and was venting some. My dr just recently turned it back on and I am puking again. I just want it out. So upset cause recovery was rough on me. 8 day hospital stay. Months of in home care and pt. my bp was really bad and I walked with a walker for a long time. Wish it had helped me.
+Erin McGinnis That sounds terrible! I can only imagine how frustrating it is to have gone through all of that and the result to be worse. I hope that your doc is able to help you figure out the best course of action from here in order for you to get relief. Maybe your doc could consult with Dr. Abell or one of the other experts in the device (assuming you don't already see him) to see what they'd do in that situation. Sending good wishes your way!
+Stronger Thru Him +Crystal Saltrelli I saw this thread and I know it's a year old but I wanted to reply as I just heard a motility specialist talking about this very problem. My last appointment with the motility specialist he mentions to the medical students about gastric stimulators and feeding tubes. He explained to them why he never puts gastric stimulators into patients that have feeding tubes (gj or peg). He said it causes extreme pain because most of the time chances are the tube will rub up against the electrodes or brushes them at times. Also there's just too much stuff on that side causing pressure and if you get distended a lot there's just too much of a likelihood of greater pain. I hope your problems were already resolved. But I thought I should reply just incase. Of course this is just one motility specialist's opinion and I'm not a doctor. I'm sorry for the horrible explanation it probably didn't make much sense but I do know he was very adamant about it and his reasoning made sense at the time but I didn't relay it back very well.
BAsketball3023 I got my stimulator out Almost a year ago. I will always have that scar and the scar tissue. I have not been able to get off pain meds for over 14 months. It is maddening to say the least.
@@csaltrelli hello
I'm thinking about it, but not sure. I've lost over 287lbs in about 1yr 8 mos. I live in the finger lakes and not sure where would be the best place to get it done. Can you contact me and help me? Ty
Hi, there. We don't have great GI doctors in western NY unfortunately, so I don't have anyone to recommend locally. I had mine implanted and managed at Mayo Clinic but they no longer implant them. You can find a provider on Enterra's website if you're willing/able to travel: www.enterramedical.com/find-a-doctor/. It's certainly not a cure -- and I'm looking to have mine removed at this point, as it's been off for almost 7 years -- but it was helpful during a time when nothing else was making much of a difference.
Can you use a cell phone to monitor your gastric pacemaker?
No, there is a receiver that the doctors use in their office to monitor/change settings.
I'm just curious do they do feeding tubes and the gastric stimulator at the same time. Because I am somewhat malnutritious. But I am also having a lot of complications with the GP. And my doctor says that my next appointment next week she's going to talk about or refer me to the Cleveland clinic to get a feeding tube. But I'd rather opt for what I think would be a better option and I won't have something hanging out of me instead of have something in me with the gastric stimulator. And control the nausea and vomiting as well as it can anyhow.
did you ever have to get a temporary gastric stimulator? I'm getting one next week and don't know what to expect. any info would help
+Ariel Noriega No, I didn't have a temporary stimulator. It depends on the doctor, usually, as to whether they choose to try a temporary one first or just implant the permanent one. Good luck to you!
Does the device help with bloating and fullness associated with gastroparesis?
@@rachellefebres4183 Thanks for your very detailed medical response.
I've been dealing with a lot of nausea and dry heaving.
My GI doctor has recommended the gastric pacemaker. I've heard from most people that it has changed their life.
Do you recommend the stimulator?
Alicia Anderson it changed my life for the worse.
with this pacemaker, have you resolved problems?
Marcelo4215 hello
Dear God you poor women you have it very bad:( I wished you could just quickly tell me how you cope with GP if you have any tidbits for us GPers:) like one do this two do this a list for quick reference!