I’m 23 And Turning To Stone | BORN DIFFERENT
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- Опубликовано: 28 май 2024
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A RARE medical condition has left a young woman in effect ‘turning to stone’. At just 23-years-old Carli Henrotay’s mobility is already severely restricted: she can’t raise her arms above her head and uses a wheelchair to get around; while her jaw only opens a few millimetres. Carli has Fibrodysplasia Ossificans Progressiva (FOP), which causes muscle and connective tissue to slowly change into bone. FOP has a life expectancy of 40 and there are currently only 800 people worldwide known to have the condition. But despite suffering from the condition, Carli lives as positive a life as possible and recently moved in with her boyfriend of six years, Billy.
To find out more, click here:
www.ifopa.org/
/ ifopa
/ cure_fop
Video Credits:
Videographer / director: Gerrit Messersmith, Brian Gadt
Producer: Nathalie Bonney, James Thorne
Editor: James Thorne
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Idk why but knowing she had a boyfriend made me really happy. I'm so glad she found a guy so supportive and understanding.
Dreamie Queen totally agree! I would like this comment but it’s at 69.. so you can comment back if it goes past 69 likes (which I’m sure it will) so I can like this 😊
@@roasta9013 it's past 69....I was wondering y can't you like it at 69?😊
Avocado June well I’m sorry but I already noticed it was past 69 and I’ve liked it. It’s just a silly number
@@roasta9013
Haha you are cute not telling her
But its a bit stupid to dont like when its 69 haha
@@honks9484 you are mean :c
Dad: “she wasn’t very good”
Mom: n u d g e
Cute picture
Nessa P you too! also thanks, it’s my dog
@@dogtoes3192 np, and thanks! 🥰 Cute dog! 🐾
@@dogtoes3192 is it a lucky dog?
Big Brody what do you mean?
Can we all just say congrats to that doctor who knew what her condition was despite it being very rare and unheard of. Usually you would hear of people having to go to several doctors before getting a proper diagnosis.
THIS.
His name is Dr William Schmit, he diagnosed FOP on mystery diagnosis
Cheers to Dr schmitt
St. Louis has great hospitals & staff
for real. I'm so jealous of her. I've been undiagnosed for 19 years.
“Not often do you need to talk to the ground” she has such a good attitude and is so funny 😄
That tickled me lol
Great sense of humour. Made me laugh, too.
Not that funny
@@The_German_reich the name 💀
@@bruh-104 buttcheck
Thank God for loving parents.
ironically God might be responsible for this whole thing
God has a reason everything... Even the things we cannot understand. He doesn't want bad things to happen but gives evil permission because his plans will always turn for good
Watermarqkiki we don't apply the same excuse to a murderer, why the double standard here
There is no double standard. God allows evil knowing that his ultimate plan will turn it for good. It is that way because of the fall of Man. He knows all things. All things that will happen in the end. Why are we asking " why did you let this happen God? Why are you doing this?" As if we are just in questioning a holy and perfect God. Until we have committed no since we have no place to judge what is just stand worthy of God.
Watermarqkiki that’s your belief. Everyone has the right to express themselves.
I feel so horrible for her... It’s sad because she did nothing to deserve this.
unfair world maybe unfair god
@@punsiemckale6690 that's not funny
@Honey lol
Punsie Mckale your mean
Punsie Mckale it’s not funny
WHAT A BLESSING that the doctor immediately checked her feet and made sure she avoided any unnecessary surgery. I was wondering why she seemed to be less advanced in the course of the disease at her age than most people I've seen in the past...it's GOT to be because of being diagnosed immediately by the first doctor to see signs.. WOW.
she does more than i do in a month, and she is almost stone-
she is a queen.
Just a bunch of lazy heathens
@@Mini-wd7qz can I play with u
@@nettkiyajoseph507 Weirdo.
@@nettkiyajoseph507 ⚠️🤨⚠️
weirdo alert?!1?1!
@@nettkiyajoseph507 Weirdo
"Its a condition where your muscles turn into bone"
And then I realized that the heart is a muscle too 😖😭
Wait so what's gonna happen? Is her heart going to turn into bone and her heart will stop?
@@barbiana5493 yes
Well your heart is also an organ so it might not turn to bone but it could happen. 😭😭😡😰
Pray for her :(
does like movement help it stay active and not turn to bone? or is it just boom now its bone?
@@ellab3511 the moviments that she have right now will stop someday cause the legs gonna turn into bones.....sorry for my bad english
"not often do you need to talk to the ground."
Ikr! She cracked me up there!
I thought that was adorable
@@Me-zt1gk how's that adorable lol 😂🤣
@@mariehicks8472 I have no idea just found it cute XD
@@Me-zt1gk oh
4:37
the way her mom nudges her dad warmed my heart❤️
4:33
Dad: “She wasn’t very good,”
Mom: 😅😬
I love the Mom’s look and elbow when the Dad said, “She was on the swim team, she wasn’t very good.” 😂😂😂
Dad is a savage
Moms so cute😂
Project Lullaby Lmao chill
@@danielacosta-xc9rx Its probably good advice tbh
Hi sister xxdd straight BOIIIISS
Lord I am not thankful enough...bless her❤❤
Amen 😊
@Chase bricks 7 why so racist?
The lord? Girl the lord was the one who did this to her
@@peachytv5102 pretty sure that was science.
@@Joy2ThaWorld No. That's not how it works. I'm guessing you don't go to church or talk about lord stuff
*Billy deserves an applaud for holding up humanity, and I wish Carli the best in life...*
@Shakipyo Wow, so nice of you, Sending you some good vibes... 😊
Are you suggesting that he is doing charity work?
Sounds like you’re saying she’s a burden. She’s a human being. Billy doesn’t need a round of applause for loving her. It’s not charity work. That’s really offensive, what you said. Do better.
i’m so glad that she has a positive attitude, and it really makes a difference. she seems like a genuinely nice and caring person. i’m also really glad that she’s has caring parents who really care about her. 💕
her family are members at my country club. some of the nicest and genuine people I have ever met.
One day; I wish. You'll wake up& everything will be back to normal.
That was so sweet. I agree.
My prayer🙏🏾
I like your comment, however, this is her ‘normal’ now unfortunately
Facts
🙏🏻
Bless these people who have to cope with horrible conditions while I feel sorry for myself when my phone is taken away.
(: xd god bless Carly
Aman to that! 🙏😇
you just exposed half of us in the comments 😔
I agree so much. :((. I can’t even stand a hour without internet.. other than when I sleep..
Mashel Khan I don’t even sleep
Caring boyfriend , her outfit, inspiring quotes all over her house.. She's like a real life Hazel Grace
She even seems like a nice girl
ISTG
ikr
@@teresasaputo7972 No choice. With all that , do you even have time to be a bad person 😕?
Yeah...
I have very severe allodynia on my skin my clothing my blankets anything that touches my skin feels like a million tiny glass shards scraping my skin 24/7 never goes away, I watch these videos to get the feeling of not being alone with horrible medical conditions, I appreciate these types of channels and the support they get from everyone
@China Cash thanks for the comment, I still feel exactly the same 24/7 the only thing that's seeming to change is my mindset... as in like accepting this pain is never going away and accepting anything I do is going to cause pain... so I am trying to ignore it and just live life much as I can
Hello Shawn.. how are you doing?
Bless her heart. Hopefully they find a cure
Yea I hope they find a cure as well
support researchers ! every day students and people like you are working for a cure
Angelo Stevens I would donate and start something to find a cure but I’m poor
So all I have is hope
EVERY YEAR THAT PASSES, CURE OR NOT, HER BODY IS IN WARFARE...ALL SORTS OF INTERNAL DAMAGE IS OCCURRING FROM THIS DISEASE THAT CAN'T BE REVERSED UNFORTUNATELY
Omg so sad ,why do we complain about silly stuff?
Because we're human. I'm sure she complains about "first world problems" as well. It's natural
Because everyone's issues are still issues
Michelle Clarke because we believe no one has health issues and we’re selfish
Just because your issues may not be as severe as hers, doesn’t mean they can be disregarded.
@@kikimadison1804 speak for yourself, that's not the case for everyone...
Shout out to Carli's Mom and Dad being so supportive and doing everything they can to help her.
this woman is a hero, she still does everything she can.
Bless her 😭 whenever she talks she sounds like she’s in so much pain and she still manages to smile 😫❤️ I hope she gets better.
Survival of the fittest
Yeah bless her she's amazing 😢
Umm yeah and I hope she gets better too but idk if she will
I don’t think she will get better i don’t think she can😢
God please bless her!
No one here is talking about her boyfriend
Seems like he is a brave guy to take care of carly eventhough he knows she is suffering from a serious disease.....
God bless him
Thanks for the likes.....these likes are not just likes but PROVES HUMANITY.
It just proves his love is unconditional ❤️
yeah, cute guy.
@@gaboulgaboulgaboul ... she's living a full life just fine. If you'd be too cowardly or weak or full of self-pity to do so that's fine, but don't project.
ya true ... no one is talking about him
carli*
She is so strong 🥺, if I was here, I couldn't handle this situation
I actually know someone personally that's dealing with this. I think she's 11 now. She has to fly to Florida to get the bones broken every few weeks. People that deal with this illness are so strong
Tall girl: I hAvE sIzE 13 nIkEs
This girl: Literally growing a second skeleton
Eli Eschenbach and least give her the courtesy of spelling literally correct.
What?
Being tall is still worse lmao
Sk8er boyz ur stupid
Sk8er boyz what noooo it’s like if you where saying that being short is worse then cAnCeR 😐
I love how her parents arent afraid to joke about things.
what
and she also herself is able to smile and be proud of herself and feeling as if this is something that pushes her down
What
What do you guys mean, "what"? Her dad said she wasn't good at swimming and her mom said she doesn't cook. It's nice they joke and laugh as if she is normal in every way ❤😊
Most ppl with disablities r kindered souls.i feel i might just be a brat and fk the world and god or w/e.
Let’s just all take a moment to appreciate our amazing bodies and everything they do for us.
"there is an abnormality in the big toe of these patients"
*aggressively checks toes*
Born different genuinely scares me. Because if my child was born different my heart would
shatter.
If your child was born with some of these deseases you would at least know what to do and how to treat them
It would scare me because I truly believe I would become physical regularly due to mean people. I do not like people who are cruel especially to the disabled population.
Yeah you would have to homeschool and stuff
And your love for your child Will move you to pick up ur heart and become strong for not only yourself but for her - a mother’s love for her child is really phenomenal - take care.
It does shatter your heart...But then you adapt and love your child regardless. You just let them be what they are and cherish the moments. My special needs daughter is now 14.
If my child was born different, my heart would shatter but I'd still love my child anyway
like im saying this is actually one of my biggest fears, bc i will have to see my child suffer or go through all of that. I would be terrified, like what if i lost them. And it will pain me so much to see and feel all of it. But no matter what my childs battle is my battle, i will love them no matter what!!
@@simplymichele5946
Adopt.
Dont have a child, you risk putting them through this. Dying a slow and painful death and in mental pain.
@Maou Sama
Selfish as hell. I know it will be better to have my own. But you could save a child from orphanages and not contribute to overpopulation.
@Maou Sama
Yes I do understand I have asian parents but I'm going against all that because I dont want to bring another human being into this world out of my own selfish wants. More people hurts the environment and they may end up with a mental or physical disease. There are many children in orphanages. I want to contribute to this world not harm it.
1:27 That Doggo do look cute though.
The joy and support this family has and seeing Carly still full of spirit to fight for a better future are just amazing. Bless you, all.
Docuseries like these remind me that we are all fortunate to have our health, even if we do not have Kylie's followers, Jeff Bezos net worth, etc. I am not saying we shouldn't improve or complain, but rather be more mindful in areas we are fortunate. Be strong.
Well said young man.
Amen 🙏🙏
vyugzs vyugzs
Nobody would want to be Jeff bezos 🤮 sorry I reallllly hate him
@@BobTheBuilder-dk5ry hate kylie too
🙌🏻
her parents are amazing and she’s so beautiful. wishing you the best 🙏🏻🙏🏻
She's not.
She is beautiful what are u talking about shes not stacy
I mean stan what ever she has a dense and u playing what if u were in her shoe
Stan34 no you are the not beautiful if your saying this
Thats the high five emoji
(On iPhones)
Omg I’m so glad they did a video on this! A friend of my brother’s in my neighborhood has FOP and we do fundraisers and stuff for him as often as possible!! And I try explaining his condition to my other friends and they don’t really understand how serious it is. I knew there had to be others with it but all I’d ever heard of was our friend, so I’m glad people are starting to talk about it. I really really hope they can find a cure or a treatment asap!! 🙏
I honestly wish her all the best in the future. She looks so sweet and caring, I hope that one day they will find a cure to FOP and she will be able to achieve all of her goals and live her dream life, along with all of the people that are in her situation.
0:52 She did not just compare herself to a flamingo😭❤️
She did lol
@Clorox Bleach Sad but true
Flamingos are graceful and beautiful :o ❤️
She did
im the 1000th like
“She wasn’t very good “
*elbows him *
“but she tried “
hahahaha
lmao i love this
Time stamp?
@@Pippa11 4:36 (:
That was so cute
Everyone in this family is staying so strong and brave. It's not easy for any one of them. My heart goes out to them.
This really does make me feel more grateful for the things I have. My heart goes out to this girl and everyone who suffers from this or any other illness.
The people who disliked were crying so hard that they didn’t see which button they pushed.
I sure hope so. I really don't feel comfortable with judging people I have not seen, but I hope they disliked because they didn't like seeing this dear angel in such discomfort. 💟
This comment is getting annoying I see it on every video like this.
@@changedusernameaagain1676 Okay?
@@changedusernameaagain1676 your name is more annoying🤣
Ir they disliked cause they felt bad for her??
Dad: she was on the swim team and she wasn’t really good but she competed anyway
Mom: bangs elbow in to him
Me: 😂
Thanks for the likes it would mean a lot if you subscribed to my RUclips channel
Camya Thompson Its funny cus its a typical familly thing. No need to get ur nipples in a twist, snowflake
@@bogdanstojanovic2540 damn you tell her 😂
@@bogdanstojanovic2540 IKR?
@@bogdanstojanovic2540 Lol 😂😂 Can u be my friend ?
HAHAHA I WAS going to comment that until I saw your comment HAHAHAHA LOL
The fact that she's getting on with life and is doing well is so inspirational to me.
This kind of story is something that makes us pause and reflect about our life's journey. Be always thankful of what we are into because the gift of life itself is the greatest gift we could ever had.
Her back swelling was so scary....i feel so bad for all the pain she went through.
when her father said "she was on the swim team but she wasnt very good" and her mom nudged him...THAT WAS SO CUTE
yeah ahahaha they're amazing though ^^
What a remarkable young woman! I'm so sorry that she, or anybody, has to face such adversities, but her inner strength is to be admired.
These stories make us realize what to be thankful For.
✨She is so strong✨
I just thought about how periods must suck. She literally can’t move her hip. Bless her soul 🙏🏼
She might had surgery to stop having her periods
There's a chance she doesn't have a period. A lot of people that develop serious conditions stop experiencing things like periods or have them more rarely, like once a year or every few months randomly. Sometimes the medications they're on contribute to that as well
I haven't gotten my period but I've got the signs. my birthday is next week. if anything, I just want my period AFTER my birthday lol that would suck if I got my period to share with my birthday though..
@@sillysadupe 😂 ya I feel you ❤️
@@raziyaazeez760 😂😂😭😭
God protect this girl at all cost she is living from a horrible medical condition may god bless her💝
God would have protected her by not making her suffer in the first place
God doesn't exist
If he did he wouldn't have given her this in the first place
@@mandygouw2745 Shut up just believe in your own religon ! I don't mean it to be rude .
God??? 🤦♂️🤦♂️🤦♂️ What a joke!!!
@@alanthomas110 agreed
I’m glad she’s working on doing things independently and not letting her condition get in the way💖 you go QUEEN 👑✨
I’m so sorry. Stay strong and keep your head up. You can do this, sending love and support ❤️
She always sounds like on the verge of tears I feel so bad
Awww 😭 I need to stop complaining about the little things in life when others have it worse 😭😭 God Bless you girl I hope they find a cure to help u
@RIXETHEM facts my guy. We can't beat ourselves up over complaining. Complaining is natural!
God bless me that he (God) could have stopped it before but DIDN'T hmm seems selfish to me
Imane Pink he’s not selfish- some things he (God) wants us to figure out. But at least he not letting her die and she’s has loving parents and everything💖
That's what I was thinking as well
But you won’t stop complaining. It’s human nature.
She is so strong, god bless her beautiful soul. I can’t imagine how hard living this way is, and yet she stays positive and has a beautiful spirit.
“Not often do you need to talk to the ground”
Why is this so true tho
I talk to the ground personally on some occasions
Why would people dislike this video I mean like what?
Like there is nothing to dislike here
Exactly!
I think they do it because either they think it’s a bad thing and don’t understand what disliking means. Or they just are rude and need to grow up
Clare K yeah, when I was little and first started RUclips and I watched sad videos..I didn’t know if I should like or dislike because it’s sad and i felt like it was cruel to like something like that.
pop tarts that’s what I thought as a little kid too
"I remember what I still have, and I'm thankful for that" She is a super hero!
Happy for her to have someone who loves her who doesn’t see the disorder. Great parents super support system she’s blessed.
This girl is a CHAMPION to have to deal with-this everyday she is so strong!!
She's so sweet. I really hope that a cure is found soon. I teared up when they talked about her love for sports. I can't imagine my life without figure skating. She's so incredibly strong
This sort of thing can't really be cured, only slowed down or stopped but it will still be in your system. The surgeons would have to individually splice the DNA in every cell in the patient's body.
It's chronic.
I have seen another girl, Ashley Kurpiel, who also has FOP
Figure skating is lame.
SAME FIGURESKATING IS MY LIFE BRO
“She wasn’t very good” then her mom just hits her dad softly💀😂
Timestamp?
@@user-fs3dw9no4t 4:38
It’s cool how she can balance on one feet!!
i was scared she'd fall over
It´s videos and stories like these that make me continously realize how lucky I am. I have taken countless falls in my life, many cuts, some small surgeries, and somehow, as I see that such small things can trigger bigger issues I am still able to do anything. I am very thankful for the people that have shared their stories and helped me learn more about them. Bless them and their beautiful souls
amazing family.
amazing boyfriend.
i’m so happy that she is so loved and supported.
It is because she is a woman. If I was in this position my family would get rid of me and hate me. No camera crews no nothing, just poisoned food and water.
Justin Nix Sounds about right. I’m a guy with a different disability, but never had this support.
TheUKNutter I’m so sorry to hear that
J Keeping it 100 That’s alright. She told me to “stop faking it”.
@@TheUKNutter it depends on the parents, not gender
I really need to stop complaining about my life...
No you don’t! You have the right to express and feel negative emotions about your life! Don’t hide them just because you don’t have the same struggles as her!
Just because someone has a more drastic situation than you doesn't mean you can't feel sad over things. Life can be hard at times, and dismissing your problems is unhealthy and self-destructive. Never feel bad or as if you're ungrateful for being a normal person with struggles. 😣
We all have struggles, it is not good for you to never complain or feel bad. It is like feeling bad every time you eat and drink because there are others who cannot, it is just bad to think that way.
I really need to stop complaining about my wife...
@@auveus5036 Dad what are you doing here?
This channel just shows me wayyyyy more things i should be grateful for.
Brave woman. Glad you have such a supportive family and boyfriend.
she was not good at swimming
-Dad
Zachary Franco mom comes in defense! Jejeje 😏
Zachary Franco so me
"So i stand like a flamingo" she did not 😭💛
Nice you stand like flamingo the roblox youtuber cool 😎
COOL STUFF this is the problem with kids nowadays
@@scarletthecat632 and bts fans.
: video about someone dying
*Somebody with bts profile picture comments*
Replies: omg army 💜
Huge props to this supportive family, half of the win is on their shoulders
Bless her heart she is so pretty and inspirational
I feel bad for her I can’t imagine how scary it would be to wake up every day knowing that
Or taking a fall and having to patiently wait if it's going to make your life significantly harder.
My mom has a friend who has FOP. It’s horrible, but, I think there are a few medications for it that somewhat help with it. I’m very sorry for you guys.
Whats fop?❤️
@@chelsea7208 The disease
• P U R P L E S N O W C O N E • they're asking what the disease is
I hope your mom's friend is okay. I don't know what FOP is, though, sorry, but I still wish her a happy life
@@ender4344 The disease in the video
I had a friend who had this disease. God bless you, I am praying for you!
she is so strong and amazing im so proud of her i want more people like her around
"Not often do you need to talk to the ground" lol, she's really funny. I hope she gets better somehow...
😭 why can't everyone just be born without bad things is that so much to ask for poor girl
they are the the gift from God for all those people who aren't grateful of their body.and im one of those but this kind of people changed me.
FLORAME CABATINGAN so being born with something that causes pain and death is a gift for others to see themselves better? Screw that
Mango Grapes you have a great point
I call people who was born like that "special" I never seen one but. If I do, I want to take care of them..
@@floramecabatingan2221 what?? So God cursed this girl with this disease so others are more grateful for their health? What kind of evil god are we talking about?
Her bravery and endurance is amazing. She is a hero.
“..she wasn’t very good at it !” Haha 😅 I love this family they are just so adorable. Best luck for this girl !💗🥰🥺
Me:I’m 23 and turning to stone
Mom: *its because of that phone*
😂 😂 😂 I rarely laugh out loud but this was it!!!
Going to hell. ☠️☠️
😂 😂😂😂😂😂
😂😂🤣🤣
Niya Jasmine ikr, these people aren’t thankful enough at all
So much sadness and illness in this world. I complain about 1 dreadlock falling out of my head, when I should be forever grateful to the Most High for allowing me to be healthy. God bless her and her family. Stay strong!
Everybody's struggles are valid though, you shouldn't feel bad for complaining if its something that affects you♥️
@@chloerebecca2399 Still good to appreciate what you have.
This makes me appreciate just having the ability to walk easily, and without pain. We take so much for granted
her family and friends are so supportive, wish her best luck, hope medical develop faster
She's got that positive energy that will help her and the people that love and surrounds her to get though this bull. Keep that energy sweety
And here I am complaining about getting 3 chin hairs because I am girl. Not knowing that there are people who have serious conditions. Forgive me lord if I am ever ungrateful. God bless you Carly💞
Girl its called tweezers cuz thts what i do
Some girls have actual beards. Some just naturally have a little bit of hair. It's nothing wrong with you, it's just how your body grows
😂😂😂😂😂
Gordan Ramsey's Lamb Sauce disgusting
@@Super122291 :/ just stop, if a guy has hair its fine?? But a girl its gross? And they cant even help it dude, born that way
I am so glad that her parents support her with everything going on ❤️
This makes me sad, but also hopeful that these stories being told will inspire people to work harder for treatments in the future
She's a strong woman 💪🏻👩🏻💪🏻
I love how she and her family strives to be positive, despite her condition.
Beautiful lady, sweetest smile, kind and soft spoken, I wish her the best!
AND I HAVE THE NERVEEEE TO COMPLAIN ABOUT MY WISDOM TEETH GROWING IN YET THIS BEAUTIFUL LADY IS GOING THRU SO MUCH GOD BLESS HER❤️
Damn I gotta get myself a billy 😩 he seems so caring
Philip s are caring
Michele Mcguire LMAO So are guys named Carlos :D
I gotta get me one of them billies... *We’Re gOing tO tHe SUperMarkEt, kiDs*
It’s kinda rude to say she is Turning to stone like just say bone
Views and views ohh yeah did I forgot? Views
True
It's for DA VEIWS
YT FortNite kid people do forget and they could have dropped the s and the t and replace it with a B
Classic Chip YT Why? It’s literally called “Stone Man Syndrome”. Unless you want them to say the scientific name every time they talk about it (90% of the video), by the way, the scientific name is Fibrodysplasia Ossificans Proggressiva (FOP)
She is a brave girl. I can't imagine her conditions. Every day is a real battle for her. My prayers are always with you dear.
Despite how hard her life is, it must be impactful to know the research you are put under for such a rare disease can potentially help others who get diagnosed. I hope she is living life to fullest