Without My Parent's Help I Would Eat Myself To Death | BORN DIFFERENT
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- Опубликовано: 27 дек 2021
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CAMILLE, from Connecticut, lives with a rare genetic condition called Prader-Willi Syndrome, a condition best known for creating an insatiable sense of hunger in the individual. The craving is so strong that if left alone and with access to food, a person with Prader-Willi Syndrome could eat themselves to death. That means Larry and Camille’s mother Kim must create a completely ‘food secure’ environment, including padlocking kitchen cabinets and having an alarm on the kitchen door to stop Camille foraging for snacks. Camille’s sneakiness around food has earned her the nickname the ‘stealth ninja’, but despite her ever-present hunger, people with Prader-Willi have low muscle tone and burn calories slowly, meaning she is required to subsist on a diet of 1,000-1,200 calories a day. Larry said: “Prader-Willi syndrome is what Camille lives with, it’s the diagnosis she’s been given, but it certainly does not define her. She is so much more, she’s loving, caring, kind, compassionate, giving, if you have some sort of animal she’ll never forget the story you tell about them or the animal’s name.”
Videographer: Rajah Samaroo
Producers: Tom Midlane & Natalia Giorgi
Editor: Omar Gobere
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If you enjoyed this video, we have a compilation here of more inspiring people living with incredibly rare conditions:
The fact that they kept her from getting morbidly obese (which is frequent for patients with Prader-Willi) shows how well they take care of her.
I can’t imagine feeling hungry non-stop and not being able to satisfy that hunger. This girl is STRONG !
I'm a dietitian and I've seen prader willi children rush across the room as soon as they spit some food or drink, and desperately rip open out of date food packets and drinks and guzzle them down in front of me. The fact that Camille is a healthy weight is a testament to how fantastic her parents amd siblings are at caring for her.
Wow, she's 23? I thought she was like, 15. I'm so glad her family is supportive of her and do what they can to keep her focused on other stuff.
Can you imagine what the world would be like if everyone grew up with parents this caring? It would be radically different.
Take a moment to remember she's 23 yrs old. They've been adjusting and figuring out what works for her for years.
She went to my highschool! I never knew this was what her life was like! Thanks for sharing her experience with us!
My cousin has this disease too. She was told shed never walk, never talk and wouldnt live till 5. Shes now in her 40's, walking, talking and an incredible sweet and sensitive person. She even has a boyfriend for a few years now. She also loves babies and kids in general, she LOOOOOOVES coloring with them and playing boardgames.
I could not imagine being hungry literally all the time. The fact that this girl still finds the joy in life while starving all the time is incredible. I can tell she’s a very resilient person.
Let’s take a second to honor how respectful the parents are to each other…it definitely starts there. Beautiful family.
The look on her poor face is so… pained. She feels like she’s starving. I’m just so sorry for her and her family. That’s so… I can’t imagine.
I love how her parents are helping her and making sure she’s getting nutritional foods and giving her great portion sizes. It’s sad that she’ll be starving all the time and that she can end up eating to death if left with food. It breaks my heart, but I’m super glad she has help and support.
The dad is such an empathetic person great analogy "it's like hitting your thumb with a hammer and trying to tell yourself it doesn't hurt"
Never seen someone with PW that has been this thin. The parents are clearly doing a great job in controlling her food intake. Poor woman.
There are parents who can't even make the effort for their kids, and then there are these parents - just the polar opposite. Wow, what a strong family to help each other and Cam.
I took care of a 20-year-old young man in a psychiatric unit with Prader Willi's
When she said "it's hard feeling hungry all the time, it gives me anxiety. " that broke my heart. What an amazing young woman and wonderful family. They are all very blessed to have each other. I wish them all nothing but the best.
Poor girl. I thought she was about 12. Her parents are doing a fantastic job keeping her healthy. Then again, what parent wouldn't? That's their baby and they need to do what they can.
I was starved literally until the age of 6. My grandparents and my aunt adopted my sister and I. I started hiding food to ensure I had some for later. My grandparents called me a liar and sneaky for doing it and punished me harshly and did punishments to try and humiliate me. They were not like theses parents at all. Many years later I was able to cut them off and I have a healthy relationship with food. Very thankful their daughter has great parents.