I'm Allergic To Myself | BORN DIFFERENT
HTML-код
- Опубликовано: 3 май 2024
- SUBSCRIBE to Truly: bit.ly/Oc61Hj
MEDICAL MYSTERY, Beth, experiences extreme allergic reactions to "pretty much everything" that comes into contact with her. Doctors have "never seen anything like" the 20-year-old's condition before, so have only been able to suggest a possible diagnosis of mast cell activation syndrome. Beth can react to anything from her own emotions to the smell of food in the air - usually resulting in red, oozing hives covering her skin, which at their worst have left Beth "screaming" in pain. But her allergies can also be "life threatening" - just the smell of paprika or chilli can send Beth into anaphylactic shock and she keeps epipens in every room of the house just in case she has a severe reaction. To protect herself as much as possible, she has had to massively restrict her diet and remain at home most of the time, which has affected other aspects of her life too. When Beth met her partner Sasha, she assumed they would "go [their] separate ways" due to the impact it would have on Sasha's life - and Beth admits that she still struggles with feelings of guilt: "That's always in the back of my mind that I feel like I've made Sasha miss out on so much." But as time has gone by and Sasha has also willingly adopted the role of Beth's full-time carer it has become clear that she is going nowhere. To this day, she continues to reassure Beth that "I want to be by your side and I'm not going to leave just because of your health." The couple have now been together for two years and the relationship has instilled a newfound confidence in Beth: "She completely changed my life, she completely changed the way I saw my health and I saw my skin. She made me feel beautiful." And having recently taken to social media to share her story and advocate for other young people living with chronic conditions, Beth has turned her pain into purpose: "I hope that people take away from my story that you're perfectly imperfect the way you are - don't shy away."
Follow Beth:
/ bethtsangarides
/ bethtsangarides
Videographer: Max Thurlow
Producers: Kim Nguyen, Tom Buckman, Georgia Embling & Courtney Buabeng
Editor: Dalene Low
If you have an amazing story and want to appear on the show, please email trulycasting@futurenet.com and the team will be in touch!
Truly is on TikTok! / truly_show
Click here to follow your favourite Truly shows on Instagram!
Truly - / trulyshow
Born Different - / borndifferentshow
Shake My Beauty - / shakemybeauty
Hooked On The Look - / hookedonthelookshow
Love Don't Judge - / lovedontjudgeshow
Beastly - / beastlyshow
Ridiculous Rides - / ridiculousridesshow
Dog Dynasty - / dogdynastyshow
For more amazing content, click here!
Beastly: / @beastlychannel
Barcroft Cars: / barcroftcars 
Развлечения
Beth, don’t ever feel guilty for Sasha! If she wanted to she could have walked away already long time ago, but she stays for you, because she loves you, and you deserve that love. There is no need to feel guilty, just appreciate that you have someone that loves you as much as Sasha does, you can tell from this video that she means a lot to you and helps you pull through. I really hope your condition will get better some day ❤️
It’s so hard not being feel guilty. I have different conditions, but to a large degree my partner is my caretaker. It’s hard feeling like you’re stripping someone of their youth so that can stay and home and take care of you. I don’t know if there is anyway to get rid of this feeling
@@PaigeweYES!! I’m going through this right now. He keeps reeling me to relax but I just feel so bad. We’re sssooo young.
What a wonderful partner. I’ve been fighting cancer now for five years and my husband has stuck with me the whole time too. My immune system been so low so he can’t see his friends or go a lot of places. He makes the sacrifices anyway.
You’ve got this love. You’ll get through it
"Being able to spend it with you is better than spending it on my own." -Sasha. 💜💜
You're lesbians, so the mystery beyond her condition is solved!
Thank you for loving her
May God bless u, from south africa ❤🇿🇦
@@Ameerah07, I'm not Sasha. I just quoted her from what She said in the video. I loved what she said. Btw, the girl Beth from the video is in the comments though. 💜💜
Right? It's so sweet 😍
100th like :)
Obviously no one can diagnose on the internet but some of this sounds like my Mast CellActivation Disorder. I got diagnose through a bone marrow biopsy. I hope you're able to figure more of it out
My doctors have always treated it as MCAs however because of the severity of it even doctors that specialise in MCAs have turned me away
@@Bethtsangarides Has chimerism ever been considered or tested?
@@Bethtsangaridesu are strong... Have u come to the usa to be treated?.... I sent u luv and prayers... I'm glad ur partner is there be side u.. ❤❤❤
I was also thinking about mcas. I have a histamine intolerance. I’m intolerant of something my body makes!
Unfortunately, it seems a normal thing, MCAS, in the US. So many toxins. Check out Cleveland Clinic and other resources in America for ideas you could help you.
Everyone probably thinks the caring for her or giving up foods/activities is the hardest part, but speaking from experience, watching your loved one go through pain you can't help them with is much harder 😢
I am so greatful to have been given this opportunity 💜remember your perfectly imperfect the way you are 🫶
Thanks for sharing your story and your love. Take care of each other ❤.
I am so sorry you are suffering. It is really clear to me why that is. Your diet is toxic. As someone that has allergies, you simply cannot be eating clover butter, wheat rolls, or bacon. Clover is full of toxic oils that cause inflammation. You need grass fed meat, bone broth and real butter. The redness on your face is showing that inside your body is inflamed and acidic. That’s why it feels like acid has been thrown on to your face, because inside you are literally acidic, you are burning from the inside out. This is not a life sentence and you can heal yourself, but it starts with what you eat every single day. Grass fed beef, no bacon. Doctors are useless healers, but are great at surgery and using medical equipment such as X-rays. This is why you are a medical mystery. Because they don’t understand healing. You can overcome, literally within weeks. This does not have to be your life story🙏✨
@@soulfire. I have tried eliminating many things from my diet. I have been gluten and dairy free. On low histamine. Keto. Sugar free. I’ve tried everything. I’m now at the point where there are only a few foods that don’t cause reactions
@@Bethtsangarides That’s great that you have tried all of those options. Have you tried drinking only grass fed bone broth for a few weeks straight? Your gut is not healthy, that’s why you have so many allergies and can get anaphylaxis, it all comes from the gut. There is no way you can get healthy whilst eating clover butter. It’s impossible. Good luck to you. Healing is possible and I really hope you find it🙏🍀✨
Thank you so much for coming forward and sharing your story. People have no clue about any of this. It's important that they see
When you love somebody, it’s not really caregiving. It’s an act of love. But caregivers also need to make sure they are mentally healthy
I am allergic to dust, mold, pollen and cat hair, and I will never complain again. Sasha is an angel, such a great partner, we all should one day have that kind of person to love us.
The worst flare up looked like a third degree burn which I'm amazed that her skin recovered so well from and her condition is obviously more than just skin deep for her to need full-time help and mobility aids . Even with her flare-ups she's got an amazing bone structure and tall elegant proportions which reminds me so much of a ballerina !
Thank you so much. Yes along with the skin problems I also suffer with many other conditions.
@@Bethtsangarides don't give up searching for a solution either with conventional medicine or alternative. Everyone's different and you never know what's going to work for you!
She gives off gracious vibes also. Like she would be a graceful ballet dancer.
@@Bethtsangarides im not sure what other conditions you have but ehlers-danlos syndrome causes a lot of different problems and mcas/mcad is a semi common comorbidity. i have severe eds but thankfully avoided the mcas. although i have seen people with eds with mcas that is as severe as what you are going through
Awww.That would suck but props to her partner for being so sweet, patient,caring and loving to her.. 💜
i dont expect the subject to read this but.. I have a friend who has a lifelong.. adult anyways similar condition.. misdiagnosed over and over.. tried every medication, diet, lifestyle adjustment.. and has just, finally seen a specialist dentist who discovered pockets of infection from past dental work.. she is going tthru the process of having all root canals removed and hopfully healing her body. Dont overlook dental problems as a strange source
Yeah it seems like if she had extensive testing that someone would have discovered what's triggering it, even if it's a defective gene.... getting to the right person always makes a difference...
@@KarenQJ1 took me 25 years to get diagnosed with my illness. and i know others that took even longer. rare illnesses are unfortunately often hard to find out what they are. especially with so many dr's that turn you away or dont listen.
These last couple of years my wife too has been my care giver I love her so much for beingthere withme!!!! ❤❤❤❤❤
I’ve seen this girl on TikTok on live a few times and she’s so nice. She never gets offended if people ask the same questions especially if her face flares up 💗
Having someone by our side really make fighting thru our bad days worth it. I’m so happy for these two lovely souls, that the found each other, and love each other thru every moment.
I'm allergic to myself too, at least im not alone.
Ugh my god, that looks so incredibly painful. I'm so happy they have eachother and Beth has support
I first had symptoms of nervous allergy reaction 10 years ago. The itchy spots would appear and disappear right before your eyes. Last year I have developed what seems to be food allergy. But the reaction was so intense, that I started to have hives after eating literally anything. So I started to take antidepressants, and this year I started to take antianxiety meds, so there looks like have less symptoms now. If not the war and our f*** neighbors, I wouldn't have to deal with all that awful situation
Make me wonder if she's a twin with in a twin. Not a Dr, but I've watch a lot of documentaries and it really messes your system up. Just possible. Yes you can be your own twin.
Chimerism you might be talking about? Her eyes are different color so that's actually a sign of Chimerism for some but could be coincidence. I wonder if shes had a full panel dna test done. But even with that can be hard to diagnose it seems. It depends which part of her body has twin dna. I don't know much more than this
They have such a beautiful relationship. Beth seems really thankful for everything Sasha does for her. I so wish they will have a beautiful, long and healthy life and that medicine will find a way to help Beth and others with similar conditions
My sister went through a period of time where she seemed to be allergic to her own sweat. Fortunately, she only got hives, so it was annoying but not dangerous. My mom has a friend who is allergic to just about everything and has to wear what she calls a "space suit" anytime she leaves her house because so many things are dangerous for her. Immune systems are just plain weird sometimes. I'm glad this lady seems to be living a good life, all things considered.
What a lovely and kind woman Sasha is. She is one in a billion.
Damn girl that sucks ive heard of people allergic to their own sweat and a story about a baby that was allergic to their own mother i hope they find a cure for your illness stay strong and good luck
Good for her that she found somebody that can help her throw her a type of need and they seem like they love each other
Beth, every time you feel worthless and unlucky, remember there are so many of us out there who despite being grateful for our good health, have never experienced the kind of reciprocal and magical love you are living (and probably never will). Embrace every single of your steps, as I am sure you are as beautiful inside as you are evidently outside. Sending prayers and good vibes to both your amazing partner and yourself! I am sure with the rapid progress of AI, science will find solutions to your oddity and your story and your case will inspire generations to come.
What a beautiful relationship they have, i wish them all the best ❤
I also have chronic illness issues. EDS. I rely on my wife as well and can identify with this. You two are so wonderful and inspiring. I can see the patience calm and great communication you both have navigating your relationship.
The beautiful bond, & Uncondional Love between her, & her partner. Aww. My heart!! 💜💜
her confidence is so beautiful!!!
Thank you ❤
Beth, you are a beautiful, strong young woman. And so is Sasha. I wish you both a happy life.
She’s blessed with a beautiful soul to help her thru life!! That’s awesome I love this but hate she’s going thru it.
Poor thing and she is so strong and sending strength and positive energy and happy life and amazing couple ❤❤❤❤❤
Your story is so touching I’m crying
My sister had PoTS and severe allergies with facial rash like you. She had 6 food she could eat without reacting. She is now on an injectable m9nocl9nal antibody called dupixent, and its been amazing for her.
Is this rash only on the face? Long shot but that's where side sleepers' faces make contact with a pillow when sleeping. Many laundry ingredients are allergens or irritants to sensitive skin.
You have such beautiful eyes.❤
Thank you ❤️
@Bethtsangrides, they remind me of Yuna from Final Fantasy X.
I was just wondering if she has heterochromia 😍 i agree! Beautiful eyes!!!
She is a beautiful girl im glad shes in a good relationship 😊
It really does sound like MCAS!
I have mast cell activation syndrome/pots syndrome and though I haven't been quite as severe I have been close. If it's not a very severe form of it mastocytosis would be a possibility. A lot of doctors don't even know what it is at all so if it hasnt been ruled out I would check those first. I have a very similar but less severely presenting situation because of those and have my whole life. I wish you luck in your medical journey. Lots of love from a fellow house bound allergic to life and gravity spoonie ❤
Thought the same thing: MCAS
yep
I had the same thought, I finally got a formal systemic mastocytosis diagnosis last month after the results of my bone marrow biopsy came back... It's not as severe as her symptoms, but it limited my life so much 😔
Every time I have flushing episodes I get rashes that look like 2nd degree burns, it's the worst sensation ever... I just want to cry, and this is just the tip of the iceberg
I have MCAS too due to long covid
At least she’s not allergic to cats
She probably is.
@@theautisticrebel6064 she has a litter box in the bathroom.
I do have reactions to my cats but sometimes we have to sacrifice certain things and I wouldn’t be here without them I love them and they don’t cause severe reactions
@@Bethtsangarides well said. Glad you have little angels with you.
@@theautisticrebel6064 My Dog is my allergy trigger. Lots of other things affect me because of my dog's allergen. This lady's cat could be making her health much worse.
thanks for sharing your story we appreciate it
Worst case of MCAS ever? I have a much milder version. I really hope they find a way to stabilise you 😢
her partner is WONDERFUL omg ❤❤️❤️
This is heart breaking
What a beautiful couple. I hope this woman can get some help for her guilt over her partners support.
Fact: the same body wash you used for years, the company can slightly change the formula to make it cheaper and you won’t notice unless you have this condition. I’m so sorry that this has happened to you. I hope the doctors can figure it out.
What is the cause of Beth’s mobility issues?
I was going through this for the longest time. I have to keep epipens around. Turns out.. I'm allergic to alcohol (any type) so strong perfumes will often make me break out really. This includes other people wearing it or just.. being around it. Walking around a mall is hell. Having to look at every ingredient in a product including make up. On top of that, I have rosacea and am allergic to cats (I also have Athsma). I take my meds and manage now. It's not fun but... I'm living my life to the fullest :)
*All the very best*
Have you been tested for Acute Contaneous Lupus?
This is spot on mcas
Sasha & Beth you are a blessing in disguise, the empithany of strength, so brave! Keep going Girls,, I'd do the same for my girl too❣️
Awww sending prayers ♥️♥️♥️♥️
The sanitizer and spray has so much chemical.. I would think that's would add to issue???
Exactly!!
I understand the pain. I'm 45 years old and just got developed an allergy to rubber slippers, it's called contact dermatitis. Ever since I was a todler I wore rubber slippers at home, I live in a tropical country. Just this March that I noticed my feet were very itchy, bumpy with trace of my rubber slippers whenever I wore it. The burning sensation from itching was so painful and made me cry. Doctor told me to be careful of allergens, chemical reaction like dye. He recommended me not to wear rubber slippers anymore. Even if it's healed already, the layer my feet skin got very thin now due to wound and scubs.
My daughter and I are allergic to contact with wool, especially wet wool, we both get welts on our skin. It IS so painful! I’ve tested positive allergic to everything on the test: 75 different things. I take an allergy pill daily so I can take care of my cats especially.
I was only tested for allergies as an adult. My mom’s solution was to just take me into be treated for the multitude of sinus infections I got. I say that; but, if I’m being true, I was told by a really good ENT Doctor, that even getting the allergy shots, I would still have allergic rhinitis.
Over the years, the antibiotics that I’ve taken have increased my chances to have a massive stroke, which I am: a massive stroke survivor. (I also smoked. Even though I only had about two cigarettes a day, before I had the stroke, I cannot join in a class-action lawsuit against the pharmaceutical companies of quinolone antibiotics: like Levaquin.)
I don’t know if my allergies are getting worse as I get older. A new development (sort of, use to when I ate fresh fruit before mostly my jaws would just tingle a bit.) Now, when I eat certain kind of fresh fruit, the chemicals contained in those fruits causes my mouth to get welts like the outside of my skin. I searched for the correct medical terms and definitions and couldn’t find the right one that fits my reaction. I think I need to consult a good doctor and get this documented. Anyway, occasionally, my face, neck, and arms break out in severe sores. I’m sure the people who see me think that I’m using illegal substances. Just now, I’m realizing that my face is swollen from drinking lemonade. Screw it! I’m drinking the darn lemonade any freaking way! Grr.
You are beautiful. The 2 of you are such a lovely couple. ❤
I'm allergic to "pretty much everything"
has two cats...
Wow i have been breaking out in hives for a few weeks but I will not complain again about it
Sending love and support and prayers
Poor girl. How awful.
I'm convinced her skin barrier is severely damaged
Ever since I was born they knew I was allergic to most of everything even growing up I don't know why they thought that they were just go away allergies would know they got worse because of the way I was born that's why I had to have feeding tubes and it's beyond painful especially when you have to eat certain things because from the inside out it's it is very very painful can't make whoever understand that that's scary to know can't make someone understand the severity of that
What an absolute beautiful relationship, just absolutely there for anything and everything!
Allergic to everything but she uses Febreze? That stuff’s so toxic.
Well.... Those are true relationships goals
So the chemicals in the hand sanitizer and room spray couldn't cause an allergic reaction?
She's beautiful
Have you tried vagus nerve stimulation? ❤
I will just say she actually looks beautiful though as well as Sasha.
But the caption is wrong, she's not allergic to her self.
You are a strong and resilient young woman Beth, and Sasha you are an angel sent to love and care for Beth. We need more kind and loving people like your two in this world. Sending you all hugs and hopes that one day there will be a cure for this condition. No one deserves this. 🫶
Wow she is beautiful
Dr Aron.....in the uk 🇬🇧 will help you......and have you tried immunotherapy.....will say a prayer for you......
Have you been tested for Lyme disease? Lyme may also trigger autoimmune diseases such as Lupus.
This reminds me of Ehlers-Danlos with Mast Cell Activation Syndrome.
heat give me hives, tumeric, coughing fits with candles, incents and perfumes
There are a lot of people in the comments suggesting different diagnosis. I hope it might be helpful and I will add that sadly a lot of doctors miss the parasite infection. Analysis won’t show much, only treatment and maybe colonoscopy shows some.
I have autoimmune disorder myself and have been lacking help even when the disease that I have is pretty widely known.
Also surprisingly long time fasting makes me feel a lot better too. Less inflammation certainly. Hope that it helps if you see this. In any ways god help you!
Have you tried the carnivore diet? It seems to work well for autoimmune issues
@@julzjohnson8077 I was prescribed accutane and sadly it damaged my liver so I won’t be experimenting with anything that is heavily keto. I also kind of hate most of the meat
@@dariazhempalukh Thats a shame because I've done it for just over a year now and it's cured my type 2 diabetes, graves disease, non alcoholic fatty liver and acid reflux
@@julzjohnson8077 maybe one day! Have you quit it or not yet? I might try it but I for sure won’t be able to keep doing it forever. And since it alters digestion I think it might actually make it worse…
She lives in a first world country. She absolutely does not have a parasitic infection.
Besides MCAS this also reminds me of polimyositis. Maybe you would like to try testing for anti-tropomyosin and then making a vegan gluten free diet for some time.
Awsome people
Sasha is an angel ~ Wishing you both a wonderful life together
Thank you so much
I wonder if Dr. Sandra Lee could diagnose her.
Did they ever test her for MCAS?
she is so beautiful and strong...! I hope some miracles to happen for you. It is paniful to see such strong and beautiful person suffering too much. May god bless you, and heal your condition. 🙏
OH THANK GOD SHE IS NOT ALLERGIC TO CATS!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! Poor girl, breaks my heart so badly
I'm sick and my partner takes care of me as well.
I could never repay him.
i have the same thing beth does, i hope she is doing well :(
I’ve heard of this but i don’t remember where however as a kid i used to be allergic to a lot of soaps and shampoos and I think I still am cus when I use shampoos on my head I get a rash
it almost sounds like a very severe case of MCAS.
Have you heard about the GAPS diet?
interesting that she has multiple cats though...
If your allergic to yourself your allergic to everyone this is the rarest allergy I’ve ever heard of it’s better if you were allergic to animals just
She's kinda remind me of Mckenna Grace ❤
You are still beautiful in every way
Poor girl; she's pretty though. I have the opposite: I'm allergic to other people 😅
Weird that they would have cats - and spray someone with an aerosol "sanitizer" not sure what that could possibly help
Might be the smell
I’m allergic to the sun and heat, and also most foods, I can’t tell you how relieved that I’m not alone. Thank you.❤❤
Silly comment I know, but I LOVE the sweatshirt! Yes, I'm biased, being a Maine girl lol
Her eyes are ever so slightly different colours - cool!
Yes I have heterochromia 1 green 1 blue xx
@@Bethtsangarides - It’s almost imperceptible. I hope you see some way through that illness you have. You two are so sweet together, keep that love strong!
Hi I started crying because my son has always has been allergic to it is painful
What if it's mental? I know when I get stressed or just even think, "oh, I have that or I'm in pain in that area.." then it happens. I think maybe trying to shift your mindset. Rewire your brain could probably work.