I Woke Up Paralysed From The Waist Down At 19 | BORN DIFFERENT

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  • Опубликовано: 21 сен 2024
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    MARI-JADE is 24 and from Winchester. She started experiencing spasms in her legs and arms when she was 18. Initially doctors put it down to anxiety but after a night out, she experienced paralysis in her legs and the left-hand-side of her face froze. Doctors thought she might have been spiked but after spending three-and-a-half months in hospital, she was diagnosed with Functional Neurological Disorder (FND). Due to the condition, Mari-Jade was having 30 seizures a day but after therapy, she now experiences up to 15 seizures a day including absence, chronic or sleep attack ones. Her memory doesn’t go completely but she said her memory jogs and she can forget her name or birthday but after a couple of hours/days, she’ll remember. She experienced periods of paralysis and had to learn how to walk again after a particularly bad episode in September 2020. Her dog Gracey is her best friend and has even saved her life on multiple occasions. She has said that she is grateful for the amazing community of people around her.
    Videographer: Jan Bednarz
    Producers: Georgia Embling, Natalia Giorgi
    Editor: Jonny Poole
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Комментарии • 308

  • @Tezah89
    @Tezah89 2 года назад +304

    This really made me 😢 I have multiple sclerosis and I found out because I became paralyzed basically overnight and I was 19. I’m so happy she’s trying to live her life and she’s not letting her disability control her. People don’t know how lucky they are and instead of judging, they should be thankful!! I think it’s so disrespectful to tell someone “they don’t look disabled” but there are people in the world that can’t help themselves. I really hope she gets control of her seizures. They look so scary and extremely dangerous 😢

    • @maryagyemang9870
      @maryagyemang9870 2 года назад +5

      Daily remainder to spread positivity

    • @TheKatarinaGiselle
      @TheKatarinaGiselle 2 года назад +11

      I agree completely. Gratitude is as important as intention in this life.. otherwise it becomes so easy to lose our light..to lose ourselves and our way. When I am stressed, resentful, or feel myself depressed or heading in that direction, I slow muawld down and give thanks for every little thing. Even the most baaic of things because we take them for granted when we forget how much harder life would be without them. This is what keeps me going when life is it's hardest on me.

    • @amaza888
      @amaza888 2 года назад +9

      I thought about the same thing. I too have multiple sclerosis and some of her symptoms really speak to me.
      I'm often told "oh, you don't look disabled", or "you seem to be doing great today".
      Looks can be decieving...
      Best of luck to this amazing young lady, what an inspiration!!

    • @phylliskelley1570
      @phylliskelley1570 2 года назад +4

      Prayers 🙏.

    • @juliemaldonado7500
      @juliemaldonado7500 2 года назад +2

      @@Becca_MS-fighter yv

  • @gic8849
    @gic8849 2 года назад +193

    Several seizures captured within this little bit of time and she leaves us all with a smile on her face
    Man I pray she gets EVERYTHING she needs and wants in this lifetime to make it a safe and fulfilling one. She deserves it. What an inspiration

    • @sarahb7795
      @sarahb7795 2 года назад

      Try praying to god to stop creating these diseases and to stop making people suffer.

    • @iggyreilly1546
      @iggyreilly1546 2 года назад +1

      dont give up praying for you girl gods on oyur side

  • @Sukitbitch123
    @Sukitbitch123 2 года назад +164

    I used to be epileptic and it's scary before and during a seizure. I had brain surgery about seven years ago. Been seizure free since

    • @rockingrandmaof2
      @rockingrandmaof2 2 года назад +14

      Bless you!

    • @_am.ber_
      @_am.ber_ 2 года назад

      I hope you stay seizure free for life!

    • @jenniferwhite746
      @jenniferwhite746 2 года назад +3

      What kind of surgery did you have? I am also epileptic too and also have many seizures of a wide variety. My medical team can't nail down what kind of epilepsy that I have. I am a preparing to spend two weeks in the hospital for a variety of tests and brain surgery. I have anywhere from one to 20 seizures a day. I live in Canada 🇨🇦 where our health care is fairly good.

    • @Sukitbitch123
      @Sukitbitch123 2 года назад

      @@jenniferwhite746 I had brain surgery at yhe Cleveland clinic in Ohio. My seizures were caused by an inner ear infection that spreaded to my temporal lobe when I was 6 months old and over the years it had caused scar tissue to develop which worsened my seizures. The surgeon's removed the scar tissue about 7 or so years ago and I've been seizure free ever since. Do you the doctors know the cause of your seizures or are they doing an exploratory surgery?

    • @mumofcuties5873
      @mumofcuties5873 2 года назад +4

      @@Sukitbitch123 sorry to interrupt your conversation, but I find it quite interesting you say that yours was cause by an inner ear infection and scar tissue. My daughter had fluid on the ears when she was younger. It was finally rectified after I demanded for something to be done. She had grommets and then she could actually hear. She started having absences 19 months ago, then three weeks later, had her first tonic clonic seizure. She has been diagnosed with Juvenile Myoclonic epilepsy and despite being on 12 tablets a day, is very uncontrolled. I'm wondering whether this is what has caused her epilepsy. She was 12 when she was diagnosed, and her neurologist and doctors and paediatrician know she had ear problems as a child and have never told me this could be a reason. Thanks so much for this information, I will be asking them to investigate my daughter further.

  • @willcookmakeup
    @willcookmakeup 2 года назад +65

    It’s really amazing that dogs have the ability to recognize seizures and when they’re happening. Ugh what an awful thing to go through and live with. But what incredible strength to continue to do so and to share her story.
    I can’t imagine suffering from this, but even more so to be continually called a liar and not believed about something happening to you. That has to probably be the worst part

    • @amorgan4984
      @amorgan4984 2 года назад +1

      I can imagine . It's so scary . I started having seizures in late December early January, and eventually a.strome with no known cause in may . It's scary when things happen on your body that you don't understand and can not explain .

  • @khalilahd.
    @khalilahd. 2 года назад +57

    Wow this just broke my heart. I’m so sorry this happened to her but I’m so proud of her for still living life to the fullest 💜

  • @Bettinasisrg
    @Bettinasisrg 2 года назад +8

    All people who say/think "they don't look disabled" need a reality check! I've got a degenerative disease that causes a lot of pain and cluster headaches which are insane and although I don't look disabled I am not ok. Just remember there is a big net of what's disabled from not too bad to really severe but all deserve compassion and respect.

  • @jessicabellone913
    @jessicabellone913 2 года назад +48

    Omg this is so crazy! I’ve just been referred to a functional neurologist because I suddenly became paralyzed too!!! Some of my symptoms come and go but my weakness has developed all over my body. I’ve been undiagnosed for over a year and a half now. It’s been such a devastating life changing event. Nobody knows what’s wrong with me and now I’m also being referred to a place that deals with mysterious illness. Sending all my love and support to all those who are suffering 🙏💖🙏💖🙏💖🙏💖🙏💖🙏

    • @palesasefurutshe6832
      @palesasefurutshe6832 2 года назад +4

      Sending lots of love to you🙏🏾😻!!

    • @mais00
      @mais00 2 года назад +5

      I’ve got fnd and not many people know about it including doctors, a lot of people get mis diagnosed and left there not being diagnosed for years, I got ignored by doctors when I was having tremors in my legs in hospital and one of them even said “get up and walk”, I was 9, u can’t just tell a 9 year old to get up and walk when I clearly couldn’t, long story short I get tremors in my legs and weakness in them, wishing u luck ❤💕

    • @carmenriegert8118
      @carmenriegert8118 Год назад

      It will be interesting if she falls down when there's nobody

    • @LexiNc8284
      @LexiNc8284 Год назад

      @@mais00 hi is FND genetic or can it happen to anyone?

    • @mais00
      @mais00 Год назад

      @@LexiNc8284 nobody really knows yet cause doctors haven’t done enough research to know, it could be genetic but it could also happen to everyone.

  • @toronto75x37
    @toronto75x37 2 года назад +28

    In spite of her condition, she is a symbol of regardless of her condition, she lets us know that we will overcome by the grace of God within us.

    • @janwinter4257
      @janwinter4257 2 года назад +6

      god has nothing to do with it. she is doing this with her own strenght. would there be a god she wouldn't have that condition in the first place. i wish her all the best

    • @sunshinemcfarland6445
      @sunshinemcfarland6445 2 года назад +2

      @@janwinter4257 There is a God and the only reason there are conditions and sickness like her’s and many many others. Is because of us and our sinful nature. Have a blessed day. Check out First Church of Our Lord Jesus Christ.

    • @toronto75x37
      @toronto75x37 2 года назад +2

      @@janwinter4257, trusting in your strength is useless, but trusting in his is reliable.

    • @toronto75x37
      @toronto75x37 2 года назад +1

      @@sunshinemcfarland6445, yes. His word is never a lie.

    • @sarahb7795
      @sarahb7795 2 года назад +2

      God shouldn’t of given her this horrible, cruel condition in the first place. No loving god would intentionally create suffering, and that means god isn’t good.

  • @robinwagner3293
    @robinwagner3293 2 года назад +25

    I can't imagine going through something like this. It also made me angry that people judge you because you quote "don't look sick." Well, I have disabilities being born with a birth defect. On the outside, to many people, I look fine. They don't know what I deal with medically. Same with you. You never know what someone is going through. Bless you and thank you for sharing your story.

    • @oldwomanranting
      @oldwomanranting 2 года назад +1

      When I got sick with severe Rheumatoid Arthritis I remember a co-worker who was a therapist who asked if I wasn’t just b n a hypochondriac. I was so sick and couldn’t walk and he asked me that question. He ate crow when I got the diagnosis and he did apologize but often I look fine but nobody knows the severe pain and deformities I endure and have acquired. I am always sick but unless I am struggling walking I may look fine which isn’t true. I even get looks when I park n handicapped spaces because people don’t realize that I may walk into a store fine and not be able to make it out fine in a matter of minutes. Now I am not fussing because these viewpoints r normal because we as humans judge with our senses, mostly our eyes so for those of us who struggle let’s give people a pass and educate if possible. I just told all of my coworkers that I am hearing impaired because of this disease and nobody knew but it was time for me to share that I wear hearing aides and that I need help sometimes. It was hard to do but I am glad I took the leap to educate. It is okay sometimes

  • @jessewru6425
    @jessewru6425 2 года назад +29

    Warrior woman! She's so strong to live that struggle and look that good at the same time!!

  • @laurenschenck5355
    @laurenschenck5355 2 года назад +55

    She is so beautiful inside and out and have so much strength and brave and amazing inspiring and god bless her and incredible unique and strong positive sprits and proud of her for sharing her story ❤️✨❤️

    • @farrukhahmad453
      @farrukhahmad453 2 года назад

      Hey can we friends truly and will you Hire me ??

  • @checkermaker480
    @checkermaker480 2 года назад +24

    Love her and her mum for being so brave and being there for each other. I suffered a stroke close to 10 years ago, and have still not regained all of my ability, I don't think I ever will. But it's all about getting better and never losing hope. Please try and incorporate as many movement based activities as you can in your lifestyle. The brain recovers miraculously with it, trust me. Iam a dancer, and do have progressive peripheral neuropathy, but dance has helped me maintain control of my extremities. As much as is possible. Good luck to you, beautiful woman💜

  • @theproject568
    @theproject568 2 года назад +16

    A very brave young lady. Puts my life in perspective. I was having one of my pity party days for myself today and saw this video. Good reminder to count my blessings and be grateful for my health.

    • @chinchillamdgamer
      @chinchillamdgamer 2 года назад

      When I feel I'm struggling or if I feel "my life is getting too hard" or if I'm in pain (i have a chronic disease but honestly it's veeeeeen mild slightly annoying if anything) i watch this videos and these people inspire to give my best. You always see them with a smile on their face and talking about what they CAN do rather what they can't. Watch one this vids a day, your depression will improve (not cured duh, but helps a little, it's therapeutic).
      Hugs from Mexico

    • @wakingup1441
      @wakingup1441 2 года назад

      Same'

  • @mumofcuties5873
    @mumofcuties5873 2 года назад +6

    Oh darling, my heart breaks for you, and also for your mother. My daughter doesn't have FND, but she does have epilepsy. Uncontrolled epilepsy. Everything your mum said is absolutely true. It's heartbreaking to watch your child in a seizure. It's even more heartbreaking when we as mother's can't prevent these seizures. I feel guilty when I can't prevent my daughter from falling and hurting herself, resulting in an ambulance ride to the hospital. I'm so glad you have a beautiful family who love and care and support you. You should be very proud of yourself for being so determined and strong.

  • @katelynwilliams7147
    @katelynwilliams7147 2 года назад +24

    I used to have frequent seizures so the statement she made about trying so hard to not let it happen really hit home. I know how that feels. They used to come on at the least convenient times. I had more out in public than at home which was VERY embarrassing due to having bladder and bowel incontinence nearly every time I seized. Never qualified for a dog or anything to help though. Not was I ever paralyzed. Temporarily maybe but never long term.

  • @niaashmore9227
    @niaashmore9227 2 года назад +6

    Thank you for having the courage to show your seizures with FND. You have a disability but aren’t defined by it - much love x

  • @king-gv3bk
    @king-gv3bk 2 года назад +8

    She's such an inspiration. Her spirit is unbreakable. But my heart breaks for her mother. 😢

  • @sassykaren7587
    @sassykaren7587 2 года назад +37

    I can completely relate to what she is going through. In March of 2018 I slipped into a coma for almost a month. The doctors told my grown kids that my brain wouldn’t stop swelling, and for them to plan my final expenses. I was blessed that I came out of the coma, but quickly found out that I now suffer from seizures and panic attacks. I have had times when the seizures caused me to not be able to walk, or function normally. I pray for the both of us that doctors will find something that will stop our seizures, and my serious panic attacks. 🙏

    • @marion5198
      @marion5198 2 года назад +2

      That sounds incredible. You are young healthy people and all of a sudden.... this can happen to anybody anytime. Those who are 100% alright can be sitting in a wheel chair tomorrow. There is a Scripture in the Bible about a time yet to come : lsaiah 35 : 5, 6 " At the time the eyes of the blind will be opened and the ears of the deaf will be unstopped. The lame will leap like a deerand the speechless will shout for joy."

    • @marion5198
      @marion5198 2 года назад

      @@laurag8126 thanks for your reply.

    • @LexiNc8284
      @LexiNc8284 Год назад +1

      Hi what caused your coma? I’m so happy you’re here ❤

    • @sassykaren7587
      @sassykaren7587 Год назад

      @@LexiNc8284 The doctors could never find the reason why I fell into the coma. I’m just glad that I made it through so I could watch my grandson grow up. Thank you for your reply, and kind words.

  • @chonky_bun2647
    @chonky_bun2647 Год назад +3

    It always makes me mad when people say, "you don't look disabled." You never know what's going on in someone's life, so I don't think it's okay to say that someone doesn't look disabled.

  • @LifewithDjena
    @LifewithDjena 2 года назад +10

    Is it just me or does she resemble Drew Barrymore? I love her positive outlook on life. You got this mamacita 💛

  • @elrea-lynnpeach6640
    @elrea-lynnpeach6640 2 года назад +5

    I woke up paralysed at 36, from the neck down! Long story too much for the comment box, STAY AMAZING!! Haters are ever where i swear that's all this world has on it, But Your story made my heart break, I'm not alone anymore with this crazy life i now live. I think your beautiful inside and out, Grabbing at all life has to offer. Means more to both of us, because we know what its like waking up and NEVER THINKING we will HOLD anything ever again. XO Elly Ontario, Canada

    • @sugandhadogra1781
      @sugandhadogra1781 2 года назад

      Plz try yoga. There is some thing called anulom vilom. In India people have even cured their cancer while practising yoga for years. Do anulom vilom. Watch it on RUclips by swami ramdev. If you do for two hours daily you will see the results within a year or maybe before that. God bless you. I wish people knew about these yogas more :(

    • @LexiNc8284
      @LexiNc8284 Год назад

      Oh wow? What caused your paralysis?

  • @JaneAquaz
    @JaneAquaz 10 месяцев назад +1

    As someone who also has physical disabilities and chronic illness I myself have lost count of how many times people have told me .."Well you do not look disabled". What does someone with disabilities supposed to look like? People can be so darn ignorant and judgemental. They have no idea what we go through on a daily basis and how difficult life can be last thing we need is being accused of faking our illnesses, chronic pain or physical disabilities or conditions. I wish this young lady all the best and hope that the treatment she is currently trying will help her to control her seizures.

  • @cathytestagrossa6198
    @cathytestagrossa6198 2 года назад +8

    You must've been so afraid that first episode of seizure n paralysis. Don't waste your time with those that say you don't look disabled. The only thing that matters is you..you living your life the best you can with your illness. It's good having support. I hope things will turn out better for you.❤️

  • @marywatkins9438
    @marywatkins9438 2 года назад +37

    Has Mari-Jade considered a service animal? I think that would definitely be something that would help regain some of the independence she lost. Do they offer financial assistance to get service animals in England?

    • @TheKatarinaGiselle
      @TheKatarinaGiselle 2 года назад +6

      Yes, that would be not only so helpful, but so healing! These animals xan be so incredibly expensive though. Butbaje has a following and could kost likely raise the funds! But at least she has her one dog that does help and has saved her life before. But a dog that iabtraijes for it would be less stressed than how her dog gets when she goes through a seizure as showed in the video.

    • @chinchillamdgamer
      @chinchillamdgamer 2 года назад +2

      They're absolutely crazy expensive I've heard , no?

    • @KenziiThaBaddest
      @KenziiThaBaddest 2 года назад +7

      She has one? In this video she shows the dog and it barks when she’s having an episode and helps her by laying under her head when seizing. I would consider that a service animal.

  • @lilajane7820
    @lilajane7820 2 года назад +6

    Literally what is it with people and hate…she is so strong..really it’s scary what she’s been through…but she keeps getting stronger and I’m proud of her…

  • @sheenagriffith2635
    @sheenagriffith2635 2 года назад +7

    I'm so sorry to see what you're going through, but I'm glad you overcame the obstacles of not walking. I hope you keep fighting for your health, I know you have it in you.

  • @mytwitchylife
    @mytwitchylife 2 года назад +4

    As someone with FND, I definitely understand the struggle and how scary it can be. You are not alone! ❤️

  • @AleinWonderland
    @AleinWonderland 2 года назад +4

    I’ve been diagnosed with a random brain condition and I’ve started getting seizures every day and my husband has become my full-time caretaker so I resonated with us so much and thank you for showing me that you can still be amazing and beautiful and powerful even when you have a chronic illness

  • @ambrebaughman159
    @ambrebaughman159 2 года назад +2

    Her strength and beauty is overwhelming. She is a true inspiration for us all. Thank you for sharing this with us. You're incredible 💗

  • @Raymlewis23
    @Raymlewis23 2 года назад +4

    Thank you for sharing your story with us. I could see some of the light and the dark within her life. The light when she’s with her brother, just chilling and living life in her backyard with her dogs and enjoying the nice weather outside, fading into the darkness when she randomly has a seizure and her brother drops everything to comfort his sister. To the gray area when everything ends up alright and she regains her consciousness and her train of thought. Even though it was scary, she got up again. Even though she doesn’t know if she might end up blind, or paralyzed again after this seizure, she faces another day and is grateful for every moment. Doesn’t mean some days will be harder than others, but she continues never the less. In a sense, that’s how we all should strive to live life. Because we never know what the next second holds.

  • @heather_bee
    @heather_bee 2 года назад +15

    This must be so exhausting for her. I hope they find help.

  • @Momof5grannytomany
    @Momof5grannytomany 2 года назад +2

    Don't let the haters get to you there's gonna be people who think people who look normal are normal but your just a perfect person who shows light to the world

  • @terriehumphries6028
    @terriehumphries6028 2 года назад +2

    Twice my brother-in-law became paralyzed after having seizures. The second time he was in the hospital for months. He still has seizures today and has to be watched carefully. He has other special needs and is so sweet. I myself suffered with seizures for a long time. Mine is controlled by medication. I to was told I did not look disabled. I just had to Stop ignoring people. You are an inspiration.

  • @zoe_dawg
    @zoe_dawg Год назад +2

    You and your mom look so similar! Truly brave of you ❤️
    I do like how you aren't just showing it like everything is always amazing. It's hard and I'm glad you are trying to live day by day

  • @eugeniajones1895
    @eugeniajones1895 2 года назад +9

    Don't get down on yourself this condition is something you can't control. You have a beautiful smile and soul. Do all you can to keep up your spirits. I know it 's hard but your still here by God's grace and mercy.
    I believe that you will walk even more than you are at this moment. Believing in the impossible can be possible.
    Take it from someone with experience.

    • @mais00
      @mais00 2 года назад +1

      It’s hard to not be down when you have fnd, I’ve got it, i can’t control yourself, I can’t ever control myself, it’s a permanent condition and I got it and a young age for the condition, I got it when I was 9, I spent the whole summer just so doctors could ignore me and force me to stand up when I clearly couldn’t

  • @pulloutsange
    @pulloutsange 2 года назад +8

    Her story will inspire others to push through life.

  • @karensanders2120
    @karensanders2120 2 года назад +3

    God bless you! You are an amazing person. Don't let anyone make you feel less. They don't walk in your shoes. You are beautiful!
    Love.from the US! ❤

  • @lisacolledge7624
    @lisacolledge7624 2 года назад +5

    Darling girl, you are still you. Still rocking it, just in limited times!!. But now, by sharing your story, so many more people know of you and can be inspired by you. Remember, sometimes we are the student, sometimes the teacher. You may just be both. I wish you things that bring you happiness always. 😊 ❤🌹

  • @Autobahn4537
    @Autobahn4537 2 года назад +1

    I’m so sorry this is happening to you. I wish you the best with the therapy. You have a sweet brother and mother. You are correct, dogs are our babies.

  • @angelaegan7511
    @angelaegan7511 10 месяцев назад +1

    What a very attractive and brave young lady. I wish her luck for the future. ❤

  • @nikkijooste-strombeck5045
    @nikkijooste-strombeck5045 8 месяцев назад

    Oh man I cried when she had some of the seizures. I have a 24 year old daughter who is me tally disabled, she started having seizures about 2 years ago. Her seizures are finally under control with 2 anti-seizure meds. It took ages to get to that. I really feel for you. Be strong!

  • @novawallenda7848
    @novawallenda7848 10 месяцев назад

    I'm literally holding back tears right now, I'm so sorry sweet girl that you have to go through this. You're so strong. Have a friend here! Thank you for telling us your story and you're beautiful. You should have lots of confidence❤

  • @shredasaur8857
    @shredasaur8857 2 года назад +10

    I used to work with a guy that had epilepsy that would cause him to black out very much like this. You'd be talking to him and within a couple of seconds he would just drop to the floor. It would take him a good 20 minutes or so after walking up to realise who he was or where he was, it was really scary at times. A few times he would even black out whilst cycling to work, luckily he's never had any serious injuries.

    • @shpup
      @shpup Год назад +3

      As an epileptic, that guy is braver than the troops for riding a bike to work frfr

  • @mamarobyn
    @mamarobyn 2 года назад +9

    That's so interesting I've known people that have done EMDR fortrauma and I was looking into it with my therapist as as well I never thought of it for somebody that had seizures.
    I have however been sitting next to a friend that went into a full body GM seizure and it was the scariest thing I've ever seen so God-bless her..

  • @scatromommy789
    @scatromommy789 2 года назад +2

    I have several chronic illnesses that have left me disabled and the thing I hate most is people telling me I don't look disabled. As if disabilty has an image.... it irks me!! Some days are great and other days are miserable and I need a wheelchair to get around out side of the house if I'm even able to leave home that day. So if anyone reading this takes something from it, please, please don't judge someone's disabilty by how they look because disabilty comes in many different forms

  • @mizzhllywd
    @mizzhllywd 2 года назад +4

    This is so sad. I'm glad she was able to walk again though.

  • @apara2005
    @apara2005 2 года назад +27

    Crazy how the disorder just happened all of a sudden. The brain is a mysterious organ. I too am dealing with neurological issues (although mine happen right after I got the vax). It's Horrible. I'm not having seizures, but constant vertigo and headaches that happen all of a sudden. It sucks not have any control. I hope her treatment works 🙏🏾 ❤️

    • @palesasefurutshe6832
      @palesasefurutshe6832 2 года назад +2

      Am so sorry to hear about your health struggles😰🙏🏾..

    • @gloryglory5688
      @gloryglory5688 2 года назад +3

      Yawnnnnnn

    • @mais00
      @mais00 2 года назад +2

      I’ve got fnd and it’s horrible, I’ve been paralysed before and I couldn’t move from the head down for about a week, I get tremors and stuff now, atm I don’t have any control over my legs, wishing the best for u 💕

    • @doubtingdennis
      @doubtingdennis 2 года назад +2

      I developed these symptoms after the vaccine as well, they're still daily a year later. Thank you for sharing because it makes people like us feel else alone ❤️

    • @LexiNc8284
      @LexiNc8284 Год назад

      @@mais00 hi do you know what caused your FND? That sounds horrible I’m sorry!

  • @arielxmoore
    @arielxmoore 2 года назад +4

    Beautiful souls.... All of them.

  • @epicplayz6132
    @epicplayz6132 2 года назад +25

    I'm honestly impressed by the time and effort you put into these videos, Keep it up!💙

    • @r.r911
      @r.r911 2 года назад +4

      Shut up with these copy/paste comments.

    • @chinchillamdgamer
      @chinchillamdgamer 2 года назад +2

      @@r.r911 it's a bot i think. Very sure it is

    • @adamdavis5383
      @adamdavis5383 2 года назад

      Why do u say that on every single post brooo. It's mad annoying EpicPlayz you be saying it on videos of people who post daily the same thing. Can u come up with something new man

  • @tdm0fr
    @tdm0fr 2 года назад +1

    She's seems like a really nice person. It's difficult to have this condition this young, but she's overcoming it really well with her loving familly and pets !
    If I can give her a recommandation:
    Throw all the hate comments in the garbage : you sufer a condition, you didn't choose it. When something is not a choice it cannot be critized.
    What we could comment is how you handle the situation and you handle it extremely well, you seem to have an awesome life, take care and enjoy !

  • @Thefitty
    @Thefitty 2 года назад +2

    *I'm blessed to have seen and know her in person ❤️ she is such a vibrant soul when she's feeling like her self. You are an amazing, talented girl!* --Linda

  • @blackhairblueyes1
    @blackhairblueyes1 Год назад

    I’m so appreciative of her share. Her strength and beauty speaks volumes. I wish her so much peace and happiness. Watching her cry, stating she has lost so much confidence made me want to grab her and tell her how amazing & beautiful she is. ❤

  • @mendmywings7238
    @mendmywings7238 2 года назад +74

    Dogs are amazing. So is this girl. She's strong, and she's pretty. Wish the best for her x

  • @hayleymariemills
    @hayleymariemills 2 года назад +3

    That's one fantastic little brother!

  • @a.h.s5152
    @a.h.s5152 2 года назад +3

    Prayers for her healing I hope they can find an cure🙏🕊️🙏

  • @C.kirk1287
    @C.kirk1287 Год назад

    She’s such a beautiful young lady 😢 man my heart goes out to her, please remember that your a beautiful, strong woman! My sister in law woke up paralyzed around the same age, and also has sporadic seizures.. it’s really heartbreaking to hear the sadness in her but I thank God everyday that she’s still here ❤ you got this sweetheart and your a beautiful inspiration to everyone 🙏🏽🙌🏼

  • @taniasprout7102
    @taniasprout7102 2 года назад +1

    What a brave and beautiful women. Thank you Mari-Jade for sharing your story.

  • @lilyem97
    @lilyem97 2 года назад +3

    Moms are everything

  • @karinadebbage5452
    @karinadebbage5452 Год назад

    You are Such a Very Brave Young Women, Watching You is Incredible How Honest you are of your Condition...You And you’re Dog Are Absolutely Perfect companions... I Think You Should be an Ambassador for your Disability...Life is So Cruel Sometimes...But You Are A Fighter...And that’s great, Maybe You Could Think About Helping Other Children who are Younger than You, Help Them to Understand their illnesses...It’s scary to think that a child of say 7-8yrs old could possibly understand better from a person who has That Same Disability as Yourself...With Your Positive Aptitude And Willingness I’m Sure You Would Be An Teacher 👩‍🏫!!!!, It’s Lovely to See You Real Friend Is Their For You!!!, Shame on the Others, Cause That Must’ve Hurt A Lot- Bless You And Your Family for Being Their...I Wish You All The Very Best for Now And a Very Bright Future ⭐️⭐️❤️❤️🍒🍒

  • @wakingup1441
    @wakingup1441 2 года назад +1

    When she said she was so tired after the seizure I could tell it was not just physically she tired of it all. I cried when she started seizing. I hope she pulls thru this.

  • @MummyDiaries024
    @MummyDiaries024 Год назад

    Jesus this really made me cry. What a wonderful, strong woman.💞

  • @movieedge7370
    @movieedge7370 2 года назад +2

    Omg I feel so bad for her but at least she is not alone she has family and friends and her dog that all look out for her with love .

    • @mari-jadeanita5271
      @mari-jadeanita5271 2 года назад +1

      Thank you 🙏 I’m getting by and I have a great support team to help me x

  • @violetwilliamson2570
    @violetwilliamson2570 2 года назад +1

    ,such an inspiring story of a beautiful strong young woman!!! Th!nks so much for sharing...we need more people like you in the world!😊

  • @dontworrybehappy5431
    @dontworrybehappy5431 22 дня назад

    3:42 😢 May Jesus give her strength and comfort when dealing with this. Broke my heart to see this.
    A good reminder of how lucky we are to have a working body because we forget how others struggle everyday of their lives like this.

  • @nickygray8019
    @nickygray8019 2 года назад +1

    What a wonderful video. ! You are such an amazing and incredibly brave young woman. Your family is so supportive, it was so lovely to see. Nothing will stop you from succeeding at anything you put your mind to.

  • @enfant.terrrible
    @enfant.terrrible 2 года назад

    People like this beauty are real life inspirations. I am in awe at how strong gentle and determined some humans can be. And how they can overcome horrible misfortunes, often with grace and a smile, while there’s people who vent for objectively futile and shallow things. Be strong honey, you are an amazing example ✨

  • @faith_God
    @faith_God 2 года назад +10

    May God bless her 🙏🏼

  • @laura-maywhittingham3681
    @laura-maywhittingham3681 Год назад +1

    She’s not making it up she really has this

  • @johnnyshd8250
    @johnnyshd8250 2 года назад +1

    You find out who your real friends are when things are down and out. Kudos to her bro.

  • @southerncaltattooedbiker3643
    @southerncaltattooedbiker3643 2 года назад +2

    I have seizures and they didn't start until my late 30's I had moved from California to New Mexico and with in 4 months I started having seizures they don't know why and I can go years with out having them. I couldn't imagine having them like this lady I shack and bite my tongue and inside my mouth it's hard because you are tiered and sore after having one. I hope that she gets better soon 💓

  • @shaniajnbaptiste7379
    @shaniajnbaptiste7379 2 года назад +3

    Such a sweet soul🥲🥺🥺

  • @nataliewestby7696
    @nataliewestby7696 4 месяца назад

    She is so brave to share her story.

  • @kenterminateddq5311
    @kenterminateddq5311 2 года назад +3

    Damn, Mari-Jane, I'm so sorry that you are having seizures and was paralyzed at a young age.
    At least you are smiling and not in a wheelchair. :)

    • @mais00
      @mais00 2 года назад

      I got fnd when I was 9…

  • @katrinarepine3879
    @katrinarepine3879 Год назад +3

    I also have FND, was diagnosed about 7 years ago when I kept having seizures. I went into a period of remission and then they came back and haven’t gone away. Other symptoms I have is bladder retention, blindness, I can go unresponsive, lose feeling in my legs, trouble swallowing, nausea and vomiting, dystonia and severe tics.

  • @martindavies4970
    @martindavies4970 Год назад

    I suffer with fnd also and its horrible.... you are truly amazing and watching your progress has given me hope at a time when I was ready to give up 😢 thank you. You pretty much saved my life #hero. Kind regards Martin xx

  • @julierstjohn
    @julierstjohn 2 года назад +3

    Fabulous Story Thank you for sharing ❣️❣️❣️

  • @Lfly7
    @Lfly7 2 года назад

    Thank God for her brother and her mother!! Beautiful!! 🙏🏼❤🙏🏼

  • @ritaakalele4801
    @ritaakalele4801 2 года назад

    Proud of you. do you realise how much it would take for camera etc in your face , and to talk to the world about it . huge hugs, not pity. xxxx you diamond. xxxxx

  • @bluejem1315
    @bluejem1315 2 года назад +1

    She is so brave.

  • @gemmi1
    @gemmi1 2 года назад +3

    There's evidence to suggest that FND is caused by anxiety and emotional distress. I don't know what to think about that, my neighbour had it and was so unwell.

    • @LexiNc8284
      @LexiNc8284 Год назад +1

      That terrifies me as someone who gets anxious quite easily. I really hope it can’t just spawn out of nowhere to anyone who has anxiety.

  • @JoelMooney12
    @JoelMooney12 Год назад

    I have had this disorder for four years. FND is no joke. It has changed my entire life.

  • @cutebutrandom
    @cutebutrandom 8 месяцев назад

    I just want to let you know that I have FND too and haven’t been able to move my legs for months. It’s always a back and fourth with my doctors about whether or not their is something else going on. FND is not fun and I can relate to you.

  • @1kimkia
    @1kimkia 2 года назад +2

    Wow this was a bit hard for me to watch. I’m really sad that she has to go through this.

  • @blackamericanlesbianprofes4357
    @blackamericanlesbianprofes4357 2 года назад +2

    Thank you for posting this insightful interview.

  • @vipboyrockywilliams6577
    @vipboyrockywilliams6577 2 года назад +1

    Yall British London folks be so kind and have the best shows if she was in the US she would've been under so much pressure,💯💨🤷🏿‍♂️

  • @dawndouglas922
    @dawndouglas922 2 года назад

    She is gorgeous. wishing her the best health possible and every happiness

  • @CraigTodd924
    @CraigTodd924 Год назад

    What a beautiful human being.....Warrior!!! ❤️❤️❤️

  • @KirstiStephenson
    @KirstiStephenson 2 года назад +1

    Bless Your Heart Sweetheart🙏 You are so Beautiful and Strong! Don't ever Give Up❣️ Love and Hugs from Canada 🥰

  • @sorthstudios
    @sorthstudios 2 года назад +4

    There is a seat in hell for people who pull the "you don't look disabled/sick" line. A lot of disabilities and illnesses are invisible! Disabled people don't need to "prove" their disabilities to anyone!

  • @Lipsticktricks
    @Lipsticktricks 2 года назад

    Thank you so much for sharing your vulnerability and what it’s like to live in your shoes. You are incredible and I’d love to hug you. I wish you the best sista!

  • @ashleyburrup149
    @ashleyburrup149 11 месяцев назад

    What a beautiful strong young gal. Props to you dear- you are a true inspiration!!!❤

  • @nunyabusiness3496
    @nunyabusiness3496 Год назад

    As someone who also experiences a chronic illness, needing your mom to clarify/know that she knows the answer to all your treatment questions even when you don't warms me, for example, I ask my mom once a year what I've been diagnosed with cause I always forget but she doesn't and that makes me also sad knowing my life/illness is impacting her that much more than me.

  • @twingytwango6971
    @twingytwango6971 2 года назад

    This poor girl!!! Such a lovely personality!!!

  • @sheriherrick4420
    @sheriherrick4420 Год назад

    I will never understand why people feel the need to be so mean! We can't control everything that happens to us and to be so downright mean and nasty about someone's "differences" is ridiculous! We should he supporting each other and learning about these things!

  • @cerysjohns3752
    @cerysjohns3752 2 года назад

    Your amazing girl,your an inspiration to everyone and strongest person I know.I’m lucky to have you as my bestie ❤️

  • @roselinemanono3282
    @roselinemanono3282 Год назад

    Oh my goodness this has to be tiring. I hope you feel better

  • @patricia753
    @patricia753 2 года назад

    Oh sweetheart ❤🏋️‍♀️, you have to deal with So much!!! You are so Strong and Resilient!!! Your Beautiful supportive family is Amazing! I'm sending prayers and Love your way! 🌈🙏❤🌷

  • @katebull2460
    @katebull2460 2 года назад

    I also have conversion disorder, seizures and ticks are a big thing going on right now, I’ve had paralysis but never lasted more then 3 days. Unfortunately a couple years ago I had a seizure at the top of my stairs and fell down all them. I had dislocated my shoulder and broken my neck and caller bone was horrible, been about 2 weeks since my last seizure thank god I’ve been doing better , hang in there lovely you aren’t alone

  • @theunforgiven2885
    @theunforgiven2885 2 года назад

    🥺She's a fighter you keep going Hun .God bless you 🙏Hats of to her little brother he's a good young man 🙏❤️

  • @NomadLand666
    @NomadLand666 Год назад

    Your brother doesnt have to love you and care for you,he's a really great friend. :)