The World's Rarest Allergies | BORN DIFFERENT
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- Опубликовано: 11 окт 2024
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THESE people live with some of the rarest allergies in the world. Their conditions have brought about some startling physical reactions, like Natasha who became allergic to her own hair growing, or Beth whose allergies have restricted her diet so much that she can now only eat two things. Their Allergies mean they have had to learn to live their lives differently to everyone else. But just because they live with such rare and unusual allergies - that doesn’t mean they’ve let that get in their way...
Producer: Ruby Coote
Editor: Reuben Yarwood
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Beth has such a beautiful and precious being on her side. I hope she’ll always acknowledge that. ❤
We very much need to study the relationship between anxiety and allergies.
For real
Yep.
They feed each other. You eventually become so fearful of a reaction…and if you’re not careful that anxiety takes over.
My brother has aquagenic urticaria, getting hives and welts all over his body and anaphylaxis. He started a monthly allergy shots when he was formally diagnosed at 13. This shot helps prevent the large reactions and allows him to lead a normal life.
I have MCAS. It took 35 years and about 100 MD to get a diagnosis other than "Crazy Woman Disease"! I can get the mast cell stabilizer, Ketotifen, in 3rd World Countries, but NOT in the US, so I left. Luckily I studied Molecular Biology at uni and can treat myself. You have no idea the damage US male docs did over a lifetime of telling me there's nothing wrong with you. You're just crazy!
I kind of went through the same thing. 28 years of male doctors telling me that it was just anxiety, all in my head, I needed anti-depressants and therapy, etc., and eventually I just got sick of it and figured out what was wrong with me on my own: Hashimoto's Thyroiditis. They were going to try me on anti-psychotics before I got frustrated and figured it out myself.
I've only had 1 single doctor in my entire life who's listened to me. I'm 34.
Wow! What an inspirational group of people. I have a sun allergy, I have to wear spf 50 in the winter and spf 100 in the summer. Instead of boosting my vitamin D, it depletes it and I am left exhausted and in excruciating pain. I rarely go out now, which is fine, I'm almost 58. The Drs think that it's something to do with my Lupus. These young people are missing out on the most important times of their lives. It's incredibly sad.
The last girl and the comment "why aren't you thin" made me so mad. She's so thin but since she's no Eugenia thin then she's lying?
I've been experiencing this issue myself. I haven't yet be fully diagnosed, so thank you for letting me know that I'm not alone. I also want to point out that there weren't any men experiencing this. Coincidence?
My allergies aren't that bad but growing up in a small area where no one else had mine level of allergies I can relate somewhat! 😢
Couple of my family members called me the bubble girl back in the 80's.
I know how some of these girls feel when they have a flare up. Because I'm allergic to myself. My immune system attacks it's self, making me to live with out an immune system. Yes, I get sick often. Some of the side effects from the disease, is that I have extremely sensitive skin. Any sun, latex, rubber, plastic, and many other products make my skin blister at the lightest touch. I do my best to live my life to the fullest, despite my disease. Down side of this disease is the a hospital is like my second home. When my hives come on my skin, they are white in the middle with red around it and stick out from my body. At this point they are in and on every one of my organs. They are very hot as well as extensively itchy. The only relief I can get from them is to have a "hot bath." A hot bath for me is like a luke warm water for others. My voice comes and goes due to the hives. My throat closes off quite often nowadays. When I feel it happening I due my best to get any this cold to eat or drink, which has been helping to stop it from fully closing off.
Watching this has put so much into perspective. I will never whine about ragweed or maple pollen again. Seasonal allergies are nothing compared to the suffering in this this video. At least I get a reprieve during the cold winter season, no matter how miserable I feel the rest of the year. ❤
Caroline is so sweet and beautiful. And thin! I can't believe anyone would say otherwise. Her mom is a dear.
Everyone needs a partner like sasha
"Shed light on her condition" 💀
was Natasha microwaving foil???
Right!! I was like girl is that tin foil!!
How did her house not burn down lol
Lord Bless everyone with severe allergies I'm siiting here looking at them my body is very itchy broke out badly from my food acid allergies it feels like ants, bees biting under my skin I'm irritated too
Aw im sorry . I hope it can vet better . Stay strong
What is wild to me, is that Lizzie's brother decided to procreate without undergoing genetic tests, even though he knew he could be a XP carrier, and he now has daughter that will suffer her whole life...
What’s wild to me is you assuming life isn’t worth living just because of a disability
@@girlfromdabay93 it’s not a disability though, it’s a severe medical condition, that causes intense pain and suffering… if it WAS a disability than yeah, I would agree, but it’s not.
@@tocasmiley360actually, I have it too, and it is disabling. So it is a disability. 🙄
I see your point, but Lizzie and her niece seem to have a pretty good quality of life (at least from what we’re seeing here). It’s not like she has microcephaly or something.
assuming that somebody who if exposed to UV light will develop skin CANCER will suffer their entire life, isn’t assuming her life isn’t worth living because of a disability… i mean i guess we don’t know we aren’t the person who wrote that but…
Thanks for sharing 🌹
God Bless everyone who has to endure these uncontrollable allergies. ❤❤❤❤
Im also allergic to myself ! But i never had anaphylactics ! But i am a severe asthmatic with a rare kind of asthma !
I too have Mast Cell Activation
Sending prayers for them ❤️❤️❤️❤️❤️❤️❤️🙏🙏🙏🙏🙏🙏🙏
I had MCAS for several years but not to this severity.
MCAS is not curable. You can't just not have it anymore. You can be on treatment to make it less severe.
Same I have mcas but not to this intensity.
And I get mad when paracetamol take more than 3 mins to work 😮
I can relate to these stories! MCAS is no joke. From one spoony to another stay safe everyone.
❤❤❤
| 2:16 | I adore the fact the mother decided to protect herself - as well - though. ps: *Adored* seeing the interaction between the daughter and mother. 🩷🤍🤍
Allergies
woah
You all should eat an ONLY steak and salt diet like Jordan Peterson's daughter Makayla. She was also extremely sick and lives on steak only and is fine.
this is ridicoulous. My daughter is highly allergic to beef. She would never be able to live on this diet. Every person is different.
😮😮😮😮😮
😍
❤❤