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Sarah Carr
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Добавлен 1 авг 2007
Advocate for your physical and mental well-being! Come for Barre With Sarah and Adventures in Anxiety. Let's connect!
Microscopic Colitis: Flares and My Pancreas?
I'm back with a Microscopic Colitis flare update. The good news is that my flare is much better with one of the suggestions from my nurse practitioner. But the confusing news is that a test suggested I have pancreatic insufficiency(?!), so I'm trying to make sense of THAT now.
As a reminder, this is not medical advice. I'm a lady talking to a phone. Talk to a doctor for medical advice.
As a reminder, this is not medical advice. I'm a lady talking to a phone. Talk to a doctor for medical advice.
Просмотров: 369
Видео
Microscopic Colitis: Flares!
Просмотров 3182 месяца назад
I'm back today to talk about my current microscopic colitis (we think?) flare. For those of you newer to my channel, I was diagnosed with microscopic colitis in November 2020, and after a year of initial challenges it has been relatively well-managed. You can go back on my Chronic Illness playlist for more information about my journey with MC: bit.ly/3ybN4B2 As a reminder I am just a lady talki...
Autoimmune Hepatitis: Remission Continues!
Просмотров 3533 месяца назад
It's been *almost* a year since I've shared an autoimmune hepatitis update, and I'm happy to still be remission! Mentioned in the video: - Autoimmune Hepatitis Association (aihep.org) - Podcasts: Conspirtuality and Maintenance Phase - Book: Saturated Facts (Dr. Idrees Mughal)
Chronic Illness: Naturopathic Missteps, Part 3 -- Gluten-Free Diet!
Просмотров 484Год назад
I'm back with Part 3 of my series on my naturopathic missteps. Today I'm sharing my experiences with going gluten-free for 13 months at the direction of my registered dietician. However, even after testing negative for celiac disease, my registered dietician suggested additional tests a gluten-free diet, and, against the recommendations of my doctors, insisted that I had celiac disease. I'm hap...
Autoimmune Hepatitis: FULL REMISSION!
Просмотров 1,5 тыс.Год назад
I'm still crying as I type this, but I had an appointment with my hepatologist today and learned that not only am I in full remission for my autoimmune hepatitis, but the Fibroscan went from a 3 (significant fibrosis) to a 0 (no detectable fibrosis). In straightforward terms, the azathioprine (immunosuppressant) has decreased or stopped my body's attack on itself (my liver) we know this is the ...
Chronic Illness: Naturopathic Missteps, Part 2 (Supplements!)
Просмотров 185Год назад
In Part 2 of this series, I'll share about another aspect of working with my registered dietician supplements! Supplements aren't inherently good or bad, but in this video I'll share the information I wished I had before venturing into that territory. I wasted a *lot* of money on supplements that did *nothing* and hopefully this will help you be a bit more skeptical than I was in this process. ...
AIH: Liver Values are... Normal?
Просмотров 548Год назад
It's the end of the year and I've gotten my final blood draw and... my ALT and AST values are... normal? Some resources I mention in the video: www.aihep.org/ Previous videos on this playlist: ruclips.net/p/PLO720YUXh6teoyEcnAV3UzOKeb6KOL-uY
Autoimmune Hepatitis: Azathioprine seems to be working!
Просмотров 2,4 тыс.Год назад
It's been a minute, but I'm back to talk more about my autoimmune hepatitis and my treatment. I have also been attending some great meetings through the AIHA and can't recommend it enough! Here's their AIH bootcamp for the newly diagnosed: ruclips.net/video/0b9LkpJOenE/видео.html
Controlling My Control Issues
Просмотров 121Год назад
So the universe seems to keep reminding me that I don't have control over my life, yet despite so many "opportunities" I still hold onto my control distortion! Case in point: I threw out my back on Sunday and I seem to keep pivoting my attention back to what I want to change, not acceptance of what is. Letting go of control among all of these health issues = really, really hard.
Adventures in Anxiety: Is it actually normal?
Просмотров 91Год назад
A short check-in about how to stop normalizing unhealthy (for you) things and how to use a reset to your advantage!
Chronic Illness: Nutrition and Naturopathic Missteps!
Просмотров 541Год назад
I've shared a bit about the tension I've felt between my physicians and my registered dietician on my chronic illness journey this video is about the struggles I've had lately and why I've decided to stop seeing this practitioner. Even though I know her heart is in a good place, it feels like we keep searching for something that is not there, or is probably not there, or, if it is there, isn't ...
AIH: Initial Treatment Update
Просмотров 1,8 тыс.Год назад
I'm 2 weeks into my autoimmune hepatitis (AIH) treatment, so this video is about what that's been like, as well as finding community in the AIHA FB and support group calls. Given all of the potential challenges, I am not sure it could be better at this point! Thanks y'all for the support.
Autoimmune Hepatitis (AIH): Liver clinic + treatment plan
Просмотров 1,9 тыс.2 года назад
This video is about my first liver clinic appointment (huge success) and how we're going to treat my (confirmed) AIH. I've had very strong reactions to steroids so we'll be proceeding with Azathioprine only to see if that can put me into remission.
I Have Autoimmune Hepatitis (AIH)!
Просмотров 4,6 тыс.2 года назад
Not a surprise, but it's true I finally got my autoimmune hepatitis diagnosis! My liver values would put me as someone with moderate AIH, so the next steps aren't necessarily as clear. There is relatively standard treatment for this disease, but my body had a heck of a time with steroids in the last two years. So... it's referral time! I'm a little too excited about going to a liver center, but...
The Liver Biopsy... Waiting for the Diagnosis...
Просмотров 3 тыс.2 года назад
The Liver Biopsy... Waiting for the Diagnosis...
Mental Health Awareness Month: How Do I Overcome Avoidance Behavior?
Просмотров 7102 года назад
Mental Health Awareness Month: How Do I Overcome Avoidance Behavior?
Moving Forward With My Liver (Plus MC + IBS)
Просмотров 1652 года назад
Moving Forward With My Liver (Plus MC IBS)
Mental Health Awareness Month: How Can I Be an Ally?
Просмотров 562 года назад
Mental Health Awareness Month: How Can I Be an Ally?
Plot Twist (AGAIN): Possible Liver Problems?
Просмотров 2542 года назад
Plot Twist (AGAIN): Possible Liver Problems?
Microscopic Colitis? IBS? SIBO? But progress, nonetheless!
Просмотров 1852 года назад
Microscopic Colitis? IBS? SIBO? But progress, nonetheless!
Microscopic Colitis and Me: Gut and Nutrient Supplements
Просмотров 1972 года назад
Microscopic Colitis and Me: Gut and Nutrient Supplements
Adventures in Anxiety: Better Help *AND* Meditation
Просмотров 392 года назад
Adventures in Anxiety: Better Help *AND* Meditation
Right now i am controlling mine by staying 100% carnivore. I have decent poo, #2 on the bristol chart. My trigger is the fat because i dont have a gallbladder, so i do ox bile if i eat fat and i follow with metamucil. That helps greatly. The fodmap is a joke for me. I do meat, bacon, eggs, etc. No veges and certainally NO sugar. I do eat small home grown tomayoes and smsll tender cucumber in smsll amounts. I have NO watery diarrhea anymore. My family docyor told me thst everybody over 50 have MC because of all the NSAIDS being taken. Anyway, im taking 1/2 of mt anxiety meds every couple of days instead of 2 a day every day. 🎉🎉 im off ALL depression meds. No more aspirin. I do white willow bark instead and only drink CLEAN coffee . 2 cups a day down from 4-5 a day. I tske tumeric for inflamation and magnesium foot soak. Ditched all commercial soaps and use Clean People soaps and clean bath soap and shampoo. 🎉 Thats my story.
I was just diagnosed with MC a week ago. I refuse to take the B pill and and have chosen to get back hard-core on my carnivore....no carbs, no dairy, no sugar, all ruminent meat (beef). No fruit or vegetable. And prayer. Food is medicine. God has this, not big pharma.
Thank you so much for talking about your experience! I've been looking for a video like yours. My biopsy is coming up next week, and it is much more involved than the doctor made it out to be.
@@elisabetk2595 I'm glad it helped! Wishing you a safe procedure!
Very helpful. Thank you for this video!!
You need to change to the carnivore diet
I'm following the guidelines of my doctors
I have just got the diagnose, don't know what to expect from now. Feel worried and yes, anxious. No surprise coming from an autistic person also diagnosed with anxiety.😢😂🥴
Wishing you all of the best as you go on this journey. I hope you get all of the treatment you need!
Hi Sarah, I am in your camp, 7 years with Microscopic Colitis. I was in remission before Covid and because of the stress of losing my livelihood, ( I'm a fitness trainer in California, tyrannical lockdowns ) my MC came back and is still here. I've tried all the stuff you've mentioned, I now have osteoporosis because of the lack of absorption so Budesimide is out. I started seeing a Functional medicine doc and am trying Low Dose Naltrexone. I will let you look into it if you are interested but it helps with a lot of autoimmune conditions because it calms down the immune system and helps with inflammation. It takes from 3 to 6 months to know if it works and I'm almost at the 3 month mark, it has helped in terms of urgency and frequency, I go a bit less at night so I'm getting a little better sleep. ( which is not saying much ) I just wanted to throw this your way in case you want to go another route, the good thing is that it is a very safe drug, no longer under patent so no money for Big Pharma if you catch my drift. Good luck to you, thank you for saying it is not our fault, I got tears in my eyes when you said it because I too keep thinking I have done something to cause this awful condition. God Bless.
Congratulations sweetie 💖 🙏 i have that too😢
I’m honored to have found your channel ❤I feel the same way and u give me hope!I wish u the best ❤
You are so kind! Sending all of the hope that you need your way!
Hi Sarah, I loved your name because my daughter’s name is Sarah. Thank you very much for the useful information regarding microscopic colitis. The problem is that I do not suffer from diarrhea, but rather constant pain and bloating without stopping. I do not eat anything except chicken breast, rice for lunch, and eggs in the morning until I get tired of this routine. My skin has become very pale and my hair has begun to fall out. It dried up a lot until it became like dry straw. The doctors did not help me much. I have no desire to leave the house or work. Everything stopped for me two years ago, because I used Budesoneide and it improved a lot for only three months and the pain stopped, but ten days ago the symptoms of pain and gas returned again and I am not... I know how long I will remain like this. I would like to ask you about a nutritional supplement I have heard about called Glutamine. Is it useful for these cases? Greetings to you. I wish you good health and an end to your suffering.
I'm so sorry that you're having such a time -- I pray that you will catch a break soon and get some improvement. I have never heard of or used glutamine -- perhaps a good thing to talk to your doctor about? Each person is so different so I wouldn't want to comment on the best treatment for you. I hope you get answers!
@@SarahCarr
@@SarahCarr I am grateful for the kind response.
MY DAUGHTER'S NAME IS SARA TOO. THIS ALL SUCKS I HAVE THIS STUFF TOO....GOD BLESS...LETS STAY STRONG
@@Nightwind-nn9wn Thank you very much for the response, this disease has really made me tired and I have suffered from severe depression.i seek help from the doctors.They say that they haven’t found an affective medicine other than cortisone, which raised my blood sugar and blood pressure, and I was not suffering from them before that .perhaps I will go to alternative medicine until I found solution .
Big hugs, Love! ❤
Hi Sarah, I've been following your channel for a while now. I have 2 autoimmune liver conditions - PBC and AIH. I've struggled with digestive issues since my AIH diagnosis in '22. I started out on Prednisone and my AIH is being managed by Cellcept and Budesonide for the last year +. I'm going through some testing because my doctor wants to rule out colitis (it may be induced by Cellcept or could be autoimmune). Fun times as you can relate! I've taken cholestyramine during my pregnancy in 2019 because of PBC and severe itching...God I hated it! Hope you find answers soon and feel better! Keep sharing your journey..you've been incredibly helpful in mine ❤️.
You are so kind and generous! Sending you tons of care. It's funny how we've had such parallel journeys -- I feel you on the cholestyramine! I hope you get some answers on your colitis!
@@SarahCarr We do seem to have parallel journeys which is why I love watching your updates! Very few people sharing what we go through in real time like you do :). Hope you feel better soon!
❤
Hello, I hope you can update her on microscopic colitis, because I was diagnosed with it eight months ago and used Budesoneid for three months. It improved a lot, but the symptoms returned. Yes, I am like you, and my liver enzymes are always high, and doctors do not know the reason. Thank you for the topics you raise, and we would like more. What is the quality? Food that suits us, following you from Germany
Ok, now it seems I really need to do an MC update!
@@SarahCarr thanks a lot ,I was pleased by your response
❤
Have you also looked in bile acid malabsorption rather than Ibs?
Yes, that was ruled out back in 2020 before the microscopic colitis diagnosis.
CONGRATS!!! im on month 2 of AIH with minor fibrosis and its terrifying. My ALT was at 1,114 and my AST was at 2,554. Today my AST are at 28 and ALT 19. I've been tapered to 10mg of prednisone and 100 of azathioprine. I'm working towards remission and hopefully it comes with my way. Im so happy for you. Hopefully you stay in remission <3
Thank you so much -- and WOW! I am so happy to hear that your numbers recovered like that. You'll be here soon, I hope <3
I have crohn's or colitis disease My life change I get pan alone with Everything else getting harder waking good days bad days I sopos I'm so grateful to everyone That helped me , still great to be alive , thank you for video,
Love the positive vibes in this video! 😊🌟 So inspiring to see how embracing a gluten-free diet can make such a difference in managing chronic illness! Keep up the great work! 💪👏 #Inspiration #HealthJourney
Thank you for sharing your experience. It is so helpful to hear what to expect, even if it is someone else's experience.
You're welcome! I hope you have a safe procedure and a quick recovery :)
❤
CONGRATS IM SO HAPPY FOR YOU!!!!!!!!!!!! i also have AIH and watching this makes me hopeful.
I'm hopeful for you as well!
Thank GD!!!🙏🙏🙏
é.è <3 <3 more feet stretch please
é.è 💜💜 add tip button for your fans please
Thanks for this video just had mine Wednesday I am so glad the shoulder nerve pain happened right after my procedure was done it felt like I was having hard attack lol but not lol. They gave me pain meds right away . I was also given fentyl for pain. Over all everything went well got my results in 2 days which was surprising because I was told a week. But was glad I have fatty liver inflammation etc nothing my provider was to worried about just need to continue to lose weight. Almost a week in I am still having mild breathing issues meaning not to where I originally was so I am waiting on that to resolved. I only had to take pain med the nx day that Thursday and again today five days later which is weird. Again thanks for video it helped alot.
Have had MC since 2019 nothing has helped until now 1month on full carnivore with half to 1 cup blue berries with pot set natural yoghurt every day, have now stopped meds
You did good ❤ happy to hear that some people can overcome this, I hope I don’t have to take these meds for the rest of my life. Thank you for posting this.
Thank you! I hope that we both can get to a medicine-free AIH life :)
Which type of aih type you are diagnosed?
@@akshayrana840 Type 1. ~95% of people are Type 1.
Congratulations madam,and bless me you heal from this disease from last 15 days I too have AIH and please guide me to be strong and courageous to come out of it.
Thanks for sharing your story. I had high liver enzymes that lead to a ultrasound then MRI which said i stage 1 to 2. Then a biopsy that was better than the migraine I had the the day before that I couldn't take any pain killers for due to biopsy. Preliminary report says stage 2 with some stage 3 but vague on anything else. Waiting on doctors interpretation vs my monkey mind making assumptions.
Best of luck for you as you wait for your results, and I know the monkey mind all too well.
I got microscopic colitis in 2023 😂 my problem is pain, diet problem and insomnia 😢 Thank you for your video.
Congratulations Sarah! I am so happy for you. Your video gives us hope ❤
You are so kind -- I hope you are in remission soon too!
R u ok now
I am in remission! AIH is not curable, so remission is the best possible state!
😊What level of ALT, AST do you have now ?
My latest test was two weeks ago -- current AST is 21 and current ALT is 16 :)
@@SarahCarr that's like healthy person :)
@@Kanonka28Yes!!!
Anyway you can recommend based on your experience about vitamins for autoimmune disease or hepatitis? Im taking vitamin calcium with d3 for now
I'd recommend talking to your doctor to see what's right for you. I only take a multivitamin at this point.
Did the gluten free diet help with the autoimmune desease?
It didn't help me, but I recommend talking to a doctor to see what's right for you.
May I ask why you don’t take a multivitamin with vitamin A? Which vitamin do you take please??
I take a standard multivitamin that has only the beta-carotene type of Vitamin A, at the guidance of my hepatologist. That's it!
@user-ir3bq3il2p пре 3 недеље Try NAC!
I commented on your biopsy post (will be having that this week) but was happy to see your treatment as my doctor is testing to make certain I can tolerate this medication.
Fingers crossed for good results. I've had amazing luck so far with Azathioprine...
Hi Sarah! Found your videos this morning and looking forward to viewing the series. I'm going in for a biopsy this week to rule out/in AIH. I work in pathology, so I know all the things that were an unknown to you. Can't decide which is better? Anyway, I appreciate your honesty.
Good luck on your procedure! In some ways it's better to not know how it can go wrong, but on the other hand, my brain probably doesn't understand the real risks in a way you would!
I just found your videos looking for videos on liver biopsies since I was recently referred to a GI for possible AIH. I am a very anxious person and suffer from health anxiety so this whole thing is terrifying. Your videos are so helpful to me. You explain everything so well and in such an informed manner. I also love how open you are about your anxieties and doubts with the whole process. I'm hoping I don't test positive but if I do I'm glad there are people out here informing on their experiences and making this whole thing less stressful.
Oh my goodness -- you are so very kind. I am so thankful that my little videos have been helpful to you. When I look back on the early ones, wow -- it's been a journey. I hope that you get some answers and can make a plan. As a fellow anxious person, the not-knowing was very hard for me, so I hope you are through that time period soon.
I just got this arrangement in the mail today and I really want to learn it. Great job 👏
I am so happy for you! I was just diagnosed about 3 months ago and I also am at a 3. I am taking Prednisone and Azathioprine. This is the first video of yours that I have watched, and what a good one to see!! I saw in one of the comments about eating a high protein diet, but my doctor has not told me this. I'm trying to find all information that I can, because it is my understanding that it's a rare disease, but one of the most common among rare diseases (if that makes sense). Anywho, so glad for you. What a wonderful blessing.
Sending you so much care and I hope that your treatment continues to be helpful! If you haven't joined the Autoimmune Hepatitis Association I really recommend it -- it's a great community of folks with lots of helpful information!
@@SarahCarr Thank you! I will definitely do that!👍
I just had my biopsy done few days ago and I’m still having pain and still waiting on results
I am so sorry you are in pain -- sending you healing thoughts!
@@SarahCarr I appreciate it. It’s very difficult as a whole and having everyone outside that don’t know the pain and everything from the biopsy want to put their options in too. I got my results back and I do have cancer.
@@jessicat9179 I am so sorry for your news. Praying for successful treatment for you 🙏
@@jessicat9179how are you doing??
I have a pile of ‘stuff’ at the bottom of the stairs going into the basement. It makes no sense but I can’t seem to make myself go through the pile to get rid of it. I have been trying to force my self to get down there and clean it up for weeks. It came fro my office, it’s probably junk that can be thrown out but I did have a bad episode of depression between the time I cleared out my office and now. I don’t think this is a useful or reasonable avoidance. Is there a technique to get started to overcome this particular avoidance obstacle?
Type 2 autoimmine hepatits is any hopd,?
Is autoimmune hepatitis is curable in alopathy. What's your doctor say its can be cured or only manageable.
There is no known cure for autoimmune hepatitis. It is possible to be in remission/not in active inflammation, but not cured.
Thanks for sharing your journey !! Very happy for you!
does full ression mean you are back to eating a normal diet? like not worrying about your salt and protein Intake?
Yes, though I didn't make major dietary changes for my AIH. In talking with my gastroenterologist and then hepatologist, I stuck to my normal way of eating. TBH there are things I tend not to eat already (few snacks, no soda or alcohol, no fast food, etc), so as everything on the CMP/CBC was normal, I kept eating as I had before.
Hi Sarah. Not sure if you'll see this post. I also have aih and have been prescribed azathioprine. In your opinion is it worthwhile to take it. 😊 are you still in remission?
Hi Janet-- yes, I am still in remission, and my latest numbers are even lower. Two things my doctor did was to run a test about how I metabolize the medication (IIRC it was a genetic test) and then with my blood draws they check for 6MMPN and 6TGN toxicity (a potential consequence of Azathioprine). I hope you have a doctor that is caring and answering all of your questions