Right now i am controlling mine by staying 100% carnivore. I have decent poo, #2 on the bristol chart. My trigger is the fat because i dont have a gallbladder, so i do ox bile if i eat fat and i follow with metamucil. That helps greatly. The fodmap is a joke for me. I do meat, bacon, eggs, etc. No veges and certainally NO sugar. I do eat small home grown tomayoes and smsll tender cucumber in smsll amounts. I have NO watery diarrhea anymore. My family docyor told me thst everybody over 50 have MC because of all the NSAIDS being taken. Anyway, im taking 1/2 of mt anxiety meds every couple of days instead of 2 a day every day. 🎉🎉 im off ALL depression meds. No more aspirin. I do white willow bark instead and only drink CLEAN coffee . 2 cups a day down from 4-5 a day. I tske tumeric for inflamation and magnesium foot soak. Ditched all commercial soaps and use Clean People soaps and clean bath soap and shampoo. 🎉 Thats my story.
Hi Sarah, I've been following your channel for a while now. I have 2 autoimmune liver conditions - PBC and AIH. I've struggled with digestive issues since my AIH diagnosis in '22. I started out on Prednisone and my AIH is being managed by Cellcept and Budesonide for the last year +. I'm going through some testing because my doctor wants to rule out colitis (it may be induced by Cellcept or could be autoimmune). Fun times as you can relate! I've taken cholestyramine during my pregnancy in 2019 because of PBC and severe itching...God I hated it! Hope you find answers soon and feel better! Keep sharing your journey..you've been incredibly helpful in mine ❤️.
You are so kind and generous! Sending you tons of care. It's funny how we've had such parallel journeys -- I feel you on the cholestyramine! I hope you get some answers on your colitis!
@@SarahCarr We do seem to have parallel journeys which is why I love watching your updates! Very few people sharing what we go through in real time like you do :). Hope you feel better soon!
Hi Sarah, I loved your name because my daughter’s name is Sarah. Thank you very much for the useful information regarding microscopic colitis. The problem is that I do not suffer from diarrhea, but rather constant pain and bloating without stopping. I do not eat anything except chicken breast, rice for lunch, and eggs in the morning until I get tired of this routine. My skin has become very pale and my hair has begun to fall out. It dried up a lot until it became like dry straw. The doctors did not help me much. I have no desire to leave the house or work. Everything stopped for me two years ago, because I used Budesoneide and it improved a lot for only three months and the pain stopped, but ten days ago the symptoms of pain and gas returned again and I am not... I know how long I will remain like this. I would like to ask you about a nutritional supplement I have heard about called Glutamine. Is it useful for these cases? Greetings to you. I wish you good health and an end to your suffering.
I'm so sorry that you're having such a time -- I pray that you will catch a break soon and get some improvement. I have never heard of or used glutamine -- perhaps a good thing to talk to your doctor about? Each person is so different so I wouldn't want to comment on the best treatment for you. I hope you get answers!
@@Nightwind-nn9wn Thank you very much for the response, this disease has really made me tired and I have suffered from severe depression.i seek help from the doctors.They say that they haven’t found an affective medicine other than cortisone, which raised my blood sugar and blood pressure, and I was not suffering from them before that .perhaps I will go to alternative medicine until I found solution .
Hi Sarah, I am in your camp, 7 years with Microscopic Colitis. I was in remission before Covid and because of the stress of losing my livelihood, ( I'm a fitness trainer in California, tyrannical lockdowns ) my MC came back and is still here. I've tried all the stuff you've mentioned, I now have osteoporosis because of the lack of absorption so Budesimide is out. I started seeing a Functional medicine doc and am trying Low Dose Naltrexone. I will let you look into it if you are interested but it helps with a lot of autoimmune conditions because it calms down the immune system and helps with inflammation. It takes from 3 to 6 months to know if it works and I'm almost at the 3 month mark, it has helped in terms of urgency and frequency, I go a bit less at night so I'm getting a little better sleep. ( which is not saying much ) I just wanted to throw this your way in case you want to go another route, the good thing is that it is a very safe drug, no longer under patent so no money for Big Pharma if you catch my drift. Good luck to you, thank you for saying it is not our fault, I got tears in my eyes when you said it because I too keep thinking I have done something to cause this awful condition. God Bless.
Right now i am controlling mine by staying 100% carnivore. I have decent poo, #2 on the bristol chart. My trigger is the fat because i dont have a gallbladder, so i do ox bile if i eat fat and i follow with metamucil. That helps greatly. The fodmap is a joke for me. I do meat, bacon, eggs, etc. No veges and certainally NO sugar. I do eat small home grown tomayoes and smsll tender cucumber in smsll amounts.
I have NO watery diarrhea anymore.
My family docyor told me thst everybody over 50 have MC because of all the NSAIDS being taken.
Anyway, im taking 1/2 of mt anxiety meds every couple of days instead of 2 a day every day. 🎉🎉 im off ALL depression meds. No more aspirin. I do white willow bark instead and only drink CLEAN coffee . 2 cups a day down from 4-5 a day.
I tske tumeric for inflamation and magnesium foot soak. Ditched all commercial soaps and use Clean People soaps and clean bath soap and shampoo. 🎉
Thats my story.
I’m honored to have found your channel ❤I feel the same way and u give me hope!I wish u the best ❤
You are so kind! Sending all of the hope that you need your way!
Hi Sarah, I've been following your channel for a while now. I have 2 autoimmune liver conditions - PBC and AIH. I've struggled with digestive issues since my AIH diagnosis in '22. I started out on Prednisone and my AIH is being managed by Cellcept and Budesonide for the last year +. I'm going through some testing because my doctor wants to rule out colitis (it may be induced by Cellcept or could be autoimmune). Fun times as you can relate! I've taken cholestyramine during my pregnancy in 2019 because of PBC and severe itching...God I hated it! Hope you find answers soon and feel better! Keep sharing your journey..you've been incredibly helpful in mine ❤️.
You are so kind and generous! Sending you tons of care. It's funny how we've had such parallel journeys -- I feel you on the cholestyramine! I hope you get some answers on your colitis!
@@SarahCarr We do seem to have parallel journeys which is why I love watching your updates! Very few people sharing what we go through in real time like you do :). Hope you feel better soon!
Big hugs, Love! ❤
You sound so much like me ,. I never go where no bathrooms are in store .
Hi Sarah, I loved your name because my daughter’s name is Sarah. Thank you very much for the useful information regarding microscopic colitis. The problem is that I do not suffer from diarrhea, but rather constant pain and bloating without stopping. I do not eat anything except chicken breast, rice for lunch, and eggs in the morning until I get tired of this routine. My skin has become very pale and my hair has begun to fall out. It dried up a lot until it became like dry straw. The doctors did not help me much. I have no desire to leave the house or work. Everything stopped for me two years ago, because I used Budesoneide and it improved a lot for only three months and the pain stopped, but ten days ago the symptoms of pain and gas returned again and I am not... I know how long I will remain like this. I would like to ask you about a nutritional supplement I have heard about called Glutamine. Is it useful for these cases? Greetings to you. I wish you good health and an end to your suffering.
I'm so sorry that you're having such a time -- I pray that you will catch a break soon and get some improvement. I have never heard of or used glutamine -- perhaps a good thing to talk to your doctor about? Each person is so different so I wouldn't want to comment on the best treatment for you. I hope you get answers!
@@SarahCarr
@@SarahCarr I am grateful for the kind response.
MY DAUGHTER'S NAME IS SARA TOO. THIS ALL SUCKS I HAVE THIS STUFF TOO....GOD BLESS...LETS STAY STRONG
@@Nightwind-nn9wn Thank you very much for the response, this disease has really made me tired and I have suffered from severe depression.i seek help from the doctors.They say that they haven’t found an affective medicine other than cortisone, which raised my blood sugar and blood pressure, and I was not suffering from them before that .perhaps I will go to alternative medicine until I found solution .
Hi Sarah, I am in your camp, 7 years with Microscopic Colitis. I was in remission before Covid and because of the stress of losing my livelihood, ( I'm a fitness trainer in California, tyrannical lockdowns ) my MC came back and is still here. I've tried all the stuff you've mentioned, I now have osteoporosis because of the lack of absorption so Budesimide is out. I started seeing a Functional medicine doc and am trying Low Dose Naltrexone. I will let you look into it if you are interested but it helps with a lot of autoimmune conditions because it calms down the immune system and helps with inflammation. It takes from 3 to 6 months to know if it works and I'm almost at the 3 month mark, it has helped in terms of urgency and frequency, I go a bit less at night so I'm getting a little better sleep. ( which is not saying much ) I just wanted to throw this your way in case you want to go another route, the good thing is that it is a very safe drug, no longer under patent so no money for Big Pharma if you catch my drift. Good luck to you, thank you for saying it is not our fault, I got tears in my eyes when you said it because I too keep thinking I have done something to cause this awful condition. God Bless.
You don’t trust your body anymore,awful feeling