Autoimmune Hepatitis: Remission Continues!
HTML-код
- Опубликовано: 8 сен 2024
- It's been almost a year since I've shared an autoimmune hepatitis update, and I'm happy to still be remission!
Mentioned in the video:
- Autoimmune Hepatitis Association (aihep.org)
- Podcasts: Conspirtuality and Maintenance Phase
- Book: Saturated Facts (Dr. Idrees Mughal)
I love Conspirituality & I’ll definitely check out Maintenance Phase, I really enjoy listening to podcasts too. I found your channel because my daughter (22 yo) was just diagnosed with AIH & your videos have been very helpful & informative for me. Thank you!
I'm so glad it's been helpful! Sending her good thoughts to find a safe and effective treatment :)
CONGRATS!!! im on month 2 of AIH with minor fibrosis and its terrifying. My ALT was at 1,114 and my AST was at 2,554. Today my AST are at 28 and ALT 19. I've been tapered to 10mg of prednisone and 100 of azathioprine. I'm working towards remission and hopefully it comes with my way. Im so happy for you. Hopefully you stay in remission
Thank you so much -- and WOW! I am so happy to hear that your numbers recovered like that. You'll be here soon, I hope
Have you also looked in bile acid malabsorption rather than Ibs?
Yes, that was ruled out back in 2020 before the microscopic colitis diagnosis.
Hello, I hope you can update her on microscopic colitis, because I was diagnosed with it eight months ago and used Budesoneid for three months. It improved a lot, but the symptoms returned. Yes, I am like you, and my liver enzymes are always high, and doctors do not know the reason. Thank you for the topics you raise, and we would like more. What is the quality? Food that suits us, following you from Germany
Ok, now it seems I really need to do an MC update!
@@SarahCarr thanks a lot ,I was pleased by your response
Hi Sarah, I have been diagnosed with AIH and they want to put me on for transplant however i am trying to avoid that. If you dont mind can you please guide me through your treatment process? I am in the UK and my doctors have only started me on moderate steroids however the damage is beyond 3 just like you. If you could spare me a few minutes or may be give me an email for yourself IF only you feel comfortable to do so.
I am with you -- I hope they find an effective treatment so you can heal! I'm not sure how American-centric it is, but I can't recommend aihep.org enough. They have great documentation on common treatment plans, link to doctors, and also offer support groups. You can also join the FB community which is a good way to crowdsource a bunch of ideas. Let me find the link to my video about how I started out!
Here's the playlist -- the first AIH video is called PLOT TWIST (again?): ruclips.net/p/PLO720YUXh6teoyEcnAV3UzOKeb6KOL-uY&si=5QA3PZY9dSPHTJUl
You need to change to the carnivore diet
I'm following the guidelines of my doctors
Interesting point. Have you tried to change your diet and did it make any change?
@@patoss92 My diet has been to minimize my microscopic colitis symptoms first and foremost (limit fried food, spicy food, a few high-FODMAP foods my body struggles with). The only liver-specific guidance is 2 alcoholic drinks per year.