How To Complete A PIP Review Form - Step By Step Guide
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- Опубликовано: 28 май 2024
- In this guide I am completing a ladies PIP Review Form.
If you follow this guide you will:
- Find it easier to complete the form
- It will not seem so overwhelming
- You will understand what is relevant
- You can be confident in your answers
- You will understand how PIP works
- You will be able to communicate how your chronic illness impacts your life in a manner that will ensure you score points
⏱ Timestamps
00:00 Intro
02:39 What health conditions do you have?
04:29 What medication do you take?
06:08 What treatment / therapy / operation are you having?
07:04 How good is your communication?
08:37 How do you prepare food?
14:18 How do you manage your eating & drinking?
21:56 How do you manage your medications / care?
25:04 How I (Charlie Anderson) help people fill in their forms
29:22 How do you manage washing & bathing?
33:01 How do you manage going to the toilet?
36:05 How do you manage your washing & dressing?
43:08 How do you manage speaking to people?
44:15 How do you manage reading & understanding?
44:54 How do you manage mixing with people?
46:45 How do you manage budget decisions?
47:57 How do you manage planning & following a journey?
49:35 How do you manage your mobility / moving around?
51:52 Do you have anything to add?
53:28 What's next?
If you are struggling with PIP Claims and you would like to link with me, check out my sites:
CONSULTANCY: calendly.com/charliesjourney
But, before booking me PLEASE watch the guides as I am trying to provide all of the information for FREE!
WEBSITE: charlies-journey.co.uk
On my website you will find
- PIP points and templates that you can download for FREE
- Our top Frequently Asked Questions
- Reviews
NEWSLETTER:
charlieanderson.substack.com/
SOCIALMEDIA: profile.php?...
This is for future ‘live’ meetings with me where you can ask me questions directly.
WHO AM I:
My name is Charlie and I am disabled. I live with chronic illness, I have a severe form of Psoriatic Arthritis and its crap! I am in pain all the time and always battling fatigue. BUT, I will not let it win. I love to learn and to laugh (even though it hurts my arthritic rib cage LOL). You will often see Ollie (she) my black Labrador. She is currently my trainee assistance dog! We are together, literally ALL the time.
Here is a link to my personal LinkedIn account. You can literally see the past 25+yrs of my career, people who have recommended me (as a Logistician as Disability Specialist is very new for me).
/ charlotte-charlie-ande...
The most important bit: I would like to thank the support network I have around me and YOU for watching this channel.
Please know, I would love to reply to all of your comments but I cannot reply AND film new videos, write the weekly newsletter and work with clients. If I could, I really would reply to you all.
HELPFUL PRODUCTS FOR DISABLED PEOPLE (I only recommend what I know is good):
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-Dyslexia coloured sheets for reading: amzn.to/3w4Uvcg
PS: If you order using these links I get a teeny tiny profit
If you would like to write to me here is my address:
Disabled NOT Dead
PO Box 4928
Stoke-on-Trent
ST4 9RL
Email: charliesjourney2024@outlook.com
Thank you so much for reading all of this
Charlie
Hi everyone, here is a link to my weekly newsletter, I am adding a PIP section due to the increase in questions/feedback, please feel free to check it out if you are interested:
charlieanderson.substack.com/
Thanks EVERYONE for watching and commenting! We will WIN! I send this weekly so its quicker to get updates and I chat about my life that week. Hope this helps as well x
Great opportunity to make money .
Charlie, I will pay, please can you help me asap?? Review has to be in on 19 Feb and I'm very scared and stressed xx please help
Hi Charlie, thank you for everything you do on this channel.
Charlie do you have any advice or experience in filling out a renewal form? Would it be suitable to simply put "No change" in all the boxes if that is the case? When reading the forms it can be interpreted that you only give details if there are no change. I'm not sure about this, if it is a trick or something.
This video is fantastic. I got awarded pip about two years ago and I’ve only just been notified of my review and to be honest, I’m a bit worried about it as I can’t afford to lose my pip I have chronic leukaemia, depression, and anxiety, epilepsy, Hypothyroidism and asthma. I can’t remember whether I made a photocopy of my PIP application form or not I forgotten to tell you that I also Have dyslexia and rely a lot on my mum to help me. Your video has made it seem so simple and I hope it is when I receive it.
I have just recently applied for a blue badge for my mum who gets disability and also enhanced mobility of PIP, her circumstances have now changed and she should be entitled to the enhanced rate of care also, as she has severe CFS (ME) and is bed ridden the majority of the time.
When applying for her I found out that you are automatically entitled to a blue badge if you are awarded the enhanced rate of PIP in the mobility section with 12 or more points.
She now has the blue badge and it has been a real life saver/changer for her and also family, friends and carers trying to help her get as near as possible to places, giving more leg room with parking spaces, it has made a massive difference.
Incredibly helpful, thank you. I was turned down initially (ptsd, anxiety etc), but was awarded enhanced rate for daily living and lower rate for mobility when I requested mandatory reconsideration. I had help from a senior welfare officer for the initial application that was turned down, but handled the MR myself. Have been given 2 weeks to complete and send in my review, so have found your channel incredibly helpful. If I can help you at all re helping people applying for help re mental health, I’d be happy to do so.
Thank you for your message! So glad you got there in the end x
@@CharliesJourney if I can help in any way re getting pip for mental health related issues, please give me a shout xx
Very similar situation to you. On the renewal form do you put No Change in all the boxes if there is simply No change?
@@acquiesce100 a lot of my symptoms have worsened, so I've mentioned in what ways in each box. I've found it best to put something down if at all possible though, even if it's just something like 'not really much change, I still find this very difficult', as it shows you've made an attempt. Hope you get on OK 👍🏼
I know this system is difficult for the vast majority of people, but it is so important to just state the facts of how your illness affects your daily life. It's a lot more straight forward and simple if you just answer the questions you are asked, and not waffle on about other things as it will not help your outcome. I wish it was a better system, but this is what we have. PIP can make your life easier as you can then afford maybe a taxi sometimes, or even a cleaner once a week.... and a blue badge is a game changer when you go anywhere in a car.
YES!!!!!!! YES!!!!! 100% Yeeessssss! Thank you sooo much for commenting on this. I never looked online about PIP until Wendy (the Tribunal lady) told me about it. I cannot believe how much wrong information is out there.
My plan is to be really strict about the comment son here and ensure if someone is giving the wrong information, in the nicest possible way, I correct it.
Thanks again for commenting
Charlie
I’m very stressed out I have a OCD and anxiety and I’m physically not feeling well my both knees need a replacement in few years and I have lost my tribunal with Universal Credit even the welfare person was sitting down during the hearing and she didn’t say a word.
I don’t know who to trust I was frustrated after the hearing and I couldn’t sleep that night so I had to take 7 anti depressants tablets to get sleep the doctor said that I was lucky to survive I could have been dead
I have a tribunal for PIP on the 16 this month I don’t know what is going to happen
@@emadeita1 You need to state very clearly how your disability affects your day to day life and mobility. Go through the points, and have your answer for each point ready, for example..... i need help washing and drying my feet as i cannot bend, and i have to hold on to the safety rail in my shower.
Hi just thought I would tell you I watched this video and I won my review they even gave me the enhanced rate of every day living so I just wanted to say thank you I could not have done it without your help xx
Hi did you have to have another assessment on phone or face to face or automatically rewarded?
@who_godbless1520 mine was a review but did video call
So pleased to have found your channel, have had such issues with ESA & PIP. I went from DLA in 2019, to have to apply for PIP in April 2019. I was attending an M.E. /Fibromyalgia support group, there was an older man without illness/disability, he was a carer for his wife with M.E. He had done many, many applications for ESA, DLA & PIP. He did my ESA late 2018 & I stayed in the support group, without a WCA, amazing. Got that news in early 2019, thought I could relax a bit, but the PIP form arrived😥😮
Anyway, I got standard PIP for both components, for 6 years, thought I should have more, but wasn’t prepared to risk losing it.
I am now 62, moved to a sheltered bungalow last April, got an extra few months added to PIP, (during Covid, don’t know why) taking me to 2026. I have been warned I will get a review form around 2025 & dreading it. I have been done out of state pension at 60, have to wait until age 67. This means another 4 + years of ESA (possible move to UC) & wanting to keep PIP after my pension age. Hope I can find help on this channel🙏
“I promise this form is easy, compared to what you have already been through”. This is the reminder I need to keep my anxiety in check. Thank you, Charlie. I’m new to your channel and barely a few minutes into this video and I already know this information and the way it’s presented - specifically this quote - is going to help me to keep calm and focus on what is necessary through this review. Thank you. I really appreciate it 🙏💚
You can get a higher toilet. It is not unsightly as it is just a normal looking toilet.
At the moment I do not need to do this, but just like to say... You are an Angel. Thank you for your advisories!
Hey Davie, how are you? You are more than welcome, its good for me to work in any way I can. So its win win!
Take care of yourself
Hopefully chat soon
Charlie
Hi Charlie I would just like to say how amazing you are , your help is invaluable to people who genuinely need to claim pip, thank you so much 😊
I received my review form yesterday 4th january and your channel by some miracle came up on my YT page. This video has been a godsend and your advice priceless. Thank you Charlie x
Glad it was helpful! Thank you so much for commenting! Please remember to stick to the POINTS xx
Good luck
Charlie
@@CharliesJourney I will. You have taken away so much terror, all I need now is to actually get through to an 'agent' to get an extension on the deadline for sending it back. Thank you again xxx
Hi Charlie👋 New subscriber here! So glad to have come across you before I start the application process! I feel more informed and supported already just watching you here. Best wishes from a very frosty North Yorkshire today 😬💜🇬🇧
Thank you so much, would have been lost without this video!
I got my reassessment just before Christmas and didn’t have my previous one, so i called them on the 2nd and they sent it out and gave me an extention until mid feb!
Most likely get paper based assesment. I have had one been waiting for decision.
I wish you well with your youtube channel Charlie, it is certainly needed as there is so much really terrible advice out there. I am sure in time your channel will get really big as more and more people are looking for help with their PIP claims.
When i first applied 6 years ago my initial face to face assessment was horrible, but only because the lady that was doing it was abrupt, rude and not at all friendly. However, i did win PIP and then later when i had another face to face assessment when they reviewed my claim the lady i had that time was so lovely, friendly and so, so helpful.... at the review i had my PIP increased which was amazing..... i think the reason my claim was so successful was because i just stated how my disability affects my daily life and my mobility, and i didn't get side-tracked at all.
Hi, thanks so much for commenting! And I think you are right! Hopefully with the channel and the community we are creating we can really help people!
Take care
Charlie
Sounds like my previous review, had one review when they stopped it, just twisted what I was saying and made some of the things up so I'd have no hope of getting it. But the last review though was by them a new application for some reason ended up lasting approximately 2 and a half hours, was great and got the same level of award as I got when after taking it to tribunal (extended, which when going through the descriptors before the tribunal I kind of knew I'd be entitled to, with the advice of a support site, but sadly forgot which one it was).
I am so pleased you had some support, I think that is key. It does not matter where the support is from, so long as those people know what they are talking about!
I am really happy you got it sorted, but wow you really had to fight for it. Thanks so much for sharing your story xx
@@CharliesJourneyPleasure and yeah I don't think anyone knows me as well as them to be honest, well I mean with some of the stuff then I say what it's like within that kind of thing like I miss days of eating my parents won't have a clue about that they'll just expect me to have missed meals because I'm too tired to bother doing anything.
This is a really helpful video!
I do have one question: It’s asking us throughout if anything has changed. If we’re already on enhanced so not looking to get raised but rather just have it renewed, do we just write simply that things are still as they were if nothing has changed? Or should we fill it in with details still?
This is one part I’m just feeling a little confused by.
Brilliant video Charlie, I watched and it seemed like 5 minutes, so much imformation definately going to watch the others.😊
Thank you!!! Please please stick to the points! Thats how you win. I was in a Tribunal yesterday and it was BRUTAL. She kept trying to keep the individuals ON the points.....stick to the points!!!
I have just called pip today . I have put it off for so long. I have been off work since the end of April 80% spent in bed I had back surgery 12 weeks ago didn’t work. Spinal block steroid injections didn’t work now have spinal fusion surgery in two weeks. I have heds ibs . I was at my wits end today. Thank you for sharing these videos ❤
Hi again, I cannot imagine what your pain levels are like.....you really are a warrior!
Just to update you I have my phone assessment on the 26/1 feeling nervous but will keep you updated xx
@@nicolamorgan3283 hi I had my phone review today and it has completely exhausted me how did yours go?
I also should have mentioned that I have terrible trouble with normal bras, even the ones without wires would cause awful pain and reflux. I since have found TEMU, they do bras and vests (which do not ride up and feel like thermal ones) that have no catches, no wires, and are stretchy and so easy to put on. I am a size 16 and have ordered a size 2xl (but an xl would do) as I don't want to mess about with sending them back. Wearing these makes it feel like you are not wearing a bra at all. I absolutely love them and now own 10+. To begin with you will find some amazing deals so get them then, and sometimes there are deals for 90% off.
Love your blogs and thank you for your valuable time x Karen
Hi Charlie. Had my review form in February 2023. Got my decision last week . 11 and 8 points for each section. I wish I'd found your channel last year. I'm slowly going through you list of vids to help with my appeal. Thanks for you help and effort.
Best of luck!
Hi I am going to have to appeal as well would you have any advice on where to start i was told to go to GP and fill a form in to request my medical history takes up to 4weeks and send that in? any help is appreciated thanks.
Am so glad I found your channel, as they have texted me to say my review will be coming to me within 2 weeks, nothing much has changed for me, except my back has gotten worse and can hardly .ove or walk, I get around with my mobility scooter and taxi's. Thanking you in advance Charlie 😊
@@user-nz9he7zv2gI got a text last Monday morning saying my pip review form has been sent but didn’t say within the next 2 weeks? And to have it back by the date they say? Do you think I should phone them as it’s not clear whether a form is on its way or it’s already been sent out …..I hate that they haven’t even given me any notice that a review was even due, it’s sending me into a right panic 😩
hi very helpfull video going through a review at the moment, petty i did not see this before
Thank you for this Charlie.
Oh wow 🤩! Love this video !
Thank you so much, I hope it helped
Great video and advice Charlie. Been looking for years for someone to give me the exact details and help you have just given. I’m up for review of my PIP once again (3rd time) and panicking again and getting all anxious. Every time it comes to this, I just don’t know what to say without the waffle and excess pages of extra information. On my first application I think I submitted 20 pages of extra info. Don’t know if they ever read them but at least I got standard living and enhanced mobility.
Amira, you must have done great to get the level of PIP you did (sorry you are that chronically ill). If you get any questions or your anxiety is building up too much.....just drop me a message and we can chit chat.
If you have a degenerative disease your review will be nice and easy, I know its easy for my to type this and its not easy to try and relax about this as they have our lives in their hands.
I am 100% here if you have any questions!
Thank you so much for commenting
Charlie
Thanks Charlie for your reply. Really appreciate your offer for a chit chat especially nice to speak to someone who shares and understands what I’m going thru. X ❤
Hi.Charlie I’m so glad I found your channel as I’m due a pip review now and just wondered if a review will alway generate a face to face assessment? My last one few years ago was like hell on earth and Im absolutely beside myself with worry.
Really do appreciate you making and posting this, there is too much poor information on online public forums, I expect my review to be requested next summer , stressful...
Hey Smithy,
Honestly, after going through the PIP process, the reviews is EASY! I promise and if you have not had many changes in your condition, its even easier.
Drop me a message nearer the time if you have any questions. I am sure by then I will have a load more guides and examples of other peoples forms. So hopefully that will help reduce the stress for you
Take care
Charlie
Charlie, people also think that the more medication you are on, the more disabled you are. This is not the case. I am disabled but will not take any medication for many reasons and they accepted my reasons. Xxxxxx
I think you are right, 100% right! Thank you so much for commenting about this xx
This is really helpful video. Thank you. Recently, I’ve submitted my PIP Review form for mental health with conditions like PTSD, Depression, Anxiety and OCD. Everything is the same as it was before, except I had some new medical reports to submit, relating to oral care which came under Eating and Drinking. For the rest of the form, I wrote in every single box, repeating the same for each box, like, Everything is still the same. I still struggle with daily living as before and still need the same help. Something along those lines, but I fear now when they complete my PIP Review form it will come back as 0. When I asked a lady at a local charity, a lady there said, if nothing has changed, just state no change, but I noticed on the PIP Review form it’s different from the copy I was sent from the local charity which had a box you can tick, no change. So I feel while I’m waiting to hear back about my PIP Review, I should write up for each task, except Eating and Drinking how it affects me, but I wrote all this before and nothing has changed, so, I’m just repeating it all over again, adding a few more different examples from my dairy, and how a typical day affects me for each task. I’m getting anxious as I write this, imagining the worst case scenario. The charity that helped me apply for PIP is very busy, and I’m not sure they will be able to help me again, should I have to appeal. It’s so unfair, when your condition is still the same, except my oral care, PIP put you through all this all over again. When I submitted my PIP Review form, I took no chances and resubmitted existing medical reports, incase they don’t have them when making a decision about me, as well as new medical reports for oral care.
Hello!
The local charity is correct, if there is no change, simply write 'no change' or tick the box for 'no change'
For the one area there is a change you did the write thing and put in more detail. Did you check the points regarding Eating and Drinking and then word it in a manner that PIP will clearly understand?
Thanks
Charlie
Brilliant advice. Where can we find your templates please? Looked everywhere
Just got paper based and waiting on decision now. Hopefully it will lead to a good outcome.
Good advice CHARLIE Just filling in a review form with intense nervousness
By the way is it worth stating I Only get carers allowance and depend on disability payment for my blind mother too
Hello! How are you?
On your review, keep it simple. If there is no change then simply right: NO CHANGE in the sections. Make sure you fill in EVERY box though please.
Good luck
Sorry, forgot to answer this bit...other payments are not relevant. PIP is not based on anything else in your life other than......how you condition impacts your daily living and/or mobility.
I would advise you leave this out and focus on any declines OR improvements. Try really hard to stick to the important bits i.e. preparing food, etc.
Good luck
Charlie
@@CharliesJourney Thank you CHARLIE will keep watching and see how your freind is
Don't worry about your knickers LOL, they are like great friends, always there when needed LOL
Hi Charlie a new subscriber here love the hard work your doing to help us people. My question is should you have to send evidence with the review form or would they remember the evidence from when you first sent in your.claim.
Wish you all the best
Thank you xx thanks for taking the time to comment
That music is far too distracting to be able to listen to which is a huge shame.
Yes I agree. It’s too distracting Like a brain worm. I really appreciate the help ❤❤❤
Thank you so much
Thank you so much for commenting! And you are more than welcome, I really hope it helped
Take care
Charlie
Ver Very Helpful Charlie. Just finished doing a draft form, Would be fantastic if you could give it a quick look over. More than happy to pay you.
Hi Stuart, I have not set up my consultancy thingy yet......I massively lack in confidence with anything I deem as 'techi'.
Please email it across to me:
charlieisdisablednotdead@gmail.com
And I will take a look for you :)
Cheers Charlie been sent today@@CharliesJourney
Hi Charlie,how can I get assistance from you with my pip forms ?
I have just received my review form. Which makes me feel physically ill as I have problems, with worry and, anxiety and it has set off olfactory hallucinations. However I am going to try your method of filling the form out and fingers crossed. Did you send any evidence off with this ladies form?
Hi I’ve watched your videos and my pip review is due back in 3 wks can I get your help. I’m really stressing out as every time I’ve done it for the last few years they have put my points down. So I need help to get the pip I need. Look forward to your reply. X
Hi just found your channel I have epilepsy since birth been on epilepsy meds since birth now I have osteoporosis through the medication now DWP say osteoporosis is not a disability but I have broken bones in the t 7 of spine is there a chance to get the enhanced rate
It’s a vicious circle with eating. It gets to the point you feel faint then opt for junk which isn’t going to give you the sufficient energy your body needs. I wish I could cook a big healthy meal but live alone. Draining!
Lucas, you are right! Its a nightmare. I need to drop some weight (weight gain = pain on my joints) but I am eating crap at the min.
Hope you are as ok as possible
Charlie
Thank you so much for taking the time to record this❤
May I ask, my daughter is a GP and is writing a support letter for me. Do I add her details to the professional section? or upload her letter as supporting evidence? I am on-line as I can't write (arthritis). Thank you.
Hi,
I am sorry but there is NO point in including a letter from your daughter as it will not be taken into account. It does NOT matter what your loved ones qualifications are. PIP will not take it into account.
Sorry, it needs to be an independent medical professional
Good luck
Charlie
Hi Charlie, I need to hand form in this week (this Friday). Can you please shed any light on following.
1. As space is limted in the sections can I include a word document like you've written and make reference or is it a must to hand write on form?? As due to list of health issues and medication the additional notes section is 70% full already and I am now commencing to fill in Section 3: onwards.
2. I have got lots of discharge letters from A&E, my specialist letters (Renal), CBT discharge letter and current treatment on ankle, since initial assessment. Is it still advisable to have a letter from GP (It's done, but some detail is wrong so hopefully should be sorted - but 100%).
LASTLY - HUGE Thanks, I would love to give you a big hug (after pain meds kicked in) thank you for guidance - Your a RockStar xx
Hi,
1. If you have filled the space you are putting too much detail. People only take in about 10% of written word. Reduce so you get the important bits across.
2. Discharge letters are NOT needed for a claim form (they will check with your GP about diagnoses. I only submit evidence in Mandatory Reconsideration and Tribunals.
Focus on the POINTS
Watch this one, I think this is my best guide to date and the points are in the description of this video:
ruclips.net/video/VYDYTX2Ml1Y/видео.html
Good luck xx
Hello Charlie, I received enhances PIP for the past 8 years (my last review was 3 1/2 years ago. I am now 61 and got a message that i am due to review again !? I read that the try to stop or reduce People on PIP before they get 65. I am worry about that ! PIP is the only Benefits i get (because my wife works full-time) without PIP we could not afford our £750 Rent
hi i have cronic pain and have sufered for years on nhs pain meds i recantly swap to a medical cannabis treatment and i works great would this stop me getting pip as i dont take any nhs meds any more
Did anyone get a motorbility car and did they put that in there reassessment? Wondering where I should put it if so?
Thanks for sharing this advice on PIP reviews.
Please can you kindly let me know how to download the templates, etc?
Do still offer assistance to complete PIP review paperwork?
Thank 😊 you.
Hello, I am so sorry I have not learnt how to load them in the descriptions.....I am good at PIP but crap at tekki stuff LOL.
If you email me at:
charlieisdisablednotdead@gmail.com
I will send them across, I am about to log off so it will be tomorrow now.
I am at capacity for pro bono clients at the moment, I am setting up a system so people can book for assistance or to review the paperwork and give feedback.
I should have that in place by Wednesday 8/11/23.
If you email me and let me know your deadline and if you have any urgent questions, I will really try to help you :)
Thanks
Charlie
What if I can cook 30% of time? My husband does the majority and even helps me when I cook as can’t chop without aid or use hob (drain veg etc I am unable to do even on good days? I saw we meant to write about majority so do I leave out good days- sorry I’m so confused thank you for your videos and time x
Just come across your video from one month ago. I’ve not even got half way through and I’m ticking more boxes that fit my ailments exactly. I never knew. I have severe arthritis plus plus plus. I think I need your help.
Fantastic!!! Please can you watch this one as I REALLY focus on the points, it will really help you:
ruclips.net/video/VYDYTX2Ml1Y/видео.html
I now realised I could of put so much more in my pip form
Got my review assessment on Thursday, really anxious about it but got both my parents support for it so here's hoping, honestly you're amazing!
Hi, have you got the points printed out so you can practice and help keep you on track? Honestly that is the main reason why I win all the time.
Good luck and if you can please let me know how it goes
Charlie
@@CharliesJourneyYeah that's a really great idea just done that actually, thanks for the response!
I just had a conversation with my Dad who helped me with the form (well he actually wrote it and explained its been written by him and I sign for it, as both my parents know exactly where I am with my health) said he can't remember if he put asthma down as a health condition, which it is and actually have an asthma review on Monday as it happens lol.
Have as well monthly blood tests a common one that keeps cropping up is vit D deficiencies (but thats pretty common) why I've been prescribed Adcal and forgot the iron ones that I'm on because of sometimes I get a bit anaemic.
Hi,
Don't worry about missing one condition as the key thing is how your life is impacted......that's the critical bit and what they base everything on.
Good luck and stand your ground.....do not let them make you agree to something that is NOT your actual life!
If you can let me know how it goes! Ooo and do not forget, the points you get will NOT match your life. Appealing is just part of the process.....so prepare yourself for that (of course you can totally ignore me LOL).
Take care
Charlie
@@CharliesJourneyThought by comparison to how I thought it might go, actually went really well. Won't know until get the result but know that if not to get a copy of the report otherwise I suppose its like shooting maybe into the dark with the MR.
Also like I said in a comment of another of your shorts videos, doesn't matter if you film them lying down as long as you feel comfortable and again like I said it shows people they're not alone (were days when I had the ileostomy I had to get up if I wanted to or not, because I'd typically wake up when I'd had an accident lol
I mean with toilet stuff nah you're by no means alone in any respect, me and say who ever IBD (Inflammatory Bowel Disease) likely would attest to that, though I don't have IBD myself, I have polyposis essentially meaning that if I'd not had the large bowel removed (had a J pouch to make a replacement rectum) I'd have inevitably died of bowel cancer.
Was having a discussion on one of the can't remember if was a J Pouch support group on FB, but when you've had fissure(s) tiny tears in the anus because I typically strain, I know I shouldnt especially when it hurts going to the toilet I can't really help it ugh its horrible. But when they start healing you just want to scratch your butt lol had some in hysterics on FB saying that I've sometimes looked behind me when walking or whatever and scratched my bum through my clothes lol.
Ahhhhh I have had fissures too!!! TEAM FISSURES lol
Just to clarify about the MR. Its not like shooting in the dark, plan that you NEED to do this. When ever I work with someone, I always manage their expectations that we will have to do an MR.
No matter how well you communicate they NEVER give you the right points (well I have only seen that once....and I do not count that as its never happened since).
Please please do the MR. They are so easy compared to everything you have been through so far!
Good luck, hope to hear from you soon
Charlie
hi charlie how do you prove that your child has never been out of the house on her own ,got a letter from social worker stating this but is this enough ,planning a journey
I presently have enhanced PIP now up for renewal. I now live alone and my Adult Social Care (paid for) has been stopped. To keep in the system I have one hour a week reduced from two visits a day. I am going to struggle filling in the form because. I only get by! Not sure what to do. During co-vid my son was here and helped cook clean etc. Any of the people making comments do you have advice?
Hi Charlie, great informative video. I need some advise… I am filling out a PIP form for my family member and they have to sign the declaration. Can I print their name and date it for them on the declaration? As long as they give their signature?
Hello, YES you can. That is what I have done for lots of people i.e. print their name and date it, then they just sign it once they are happy.
Good luck and remember, I am here if you have any other questions!
Take care
Charlie
P.S Please say hello to the person you have filled the form out for and let them know I am thinking of them!
@@CharliesJourney thanks Charlie, that’s a relief. Have you heard someone being a PAB? Just discovered it today but haven’t found much info about it, I think it’s for people who aren’t appointment but can help answer the questions for the applicant
Hey, no I have never heard of a 'PAB'. I know there are a few places and companies that offer help.
If possible check the reviews before linking with them
Take care
Charlie
Thanks for the information. I have a review coming up can you tell me if there is another phone call assessment after you have filled in the review forms, like when you first apply? Thanks
I think if you have filled in the review form if there is NO CHANGE , there shouldn't be a phone call assessment. Let see what Charlie says
Thanks Ivy. Hopefully Charlie sees this.
Yes I’m also wondering as I had a face to face assessment a few years back and after I fill out the review form will have to have another face to face ?
Can anyone advise what to write if there haven’t been any changes?. My son has autism and his condition and difficulties have stayed the same. He currently gets enhanced and I am worried about failing him by writing ‘no change’
Does a EHCP help pip?
Due to my many different health conditions spanning over 40 years, I am unable to cook a conventional meal using pans etc so I HAVE to use a microwave yet so many people have said to me (including the benefits advisor who helped me fill out the form) that you must put down that your partner does these day to day things for you but what if you are not fortunate enough to have a partner, what are you in reality meant to do, starve??
All of my meds are missing and doctor history from my decision according to them i don't take medication! how can this happen surely they would say pending your doctors information coming in we will update your claim not just go ahead with the decision anyway! and award a yes but minimum everything! does this make any sense? any help is appreciated as am going to have to appeal this myself I think.
Hi Charlie, your videos are very helpful i am wondering if you can help with a grey area question
The Government says in most of its benefit schemes you can work and you will get help with ESA, PIP, Universal Credit, housing & in the forms it says you can do 16 to 20 hours a week and your other benefits will be unaffected & you can work for an employer, self employed, or have their own business and set their own hours around their chronic illness so
1 if you worked and decided to claim a benefit allowance and had failing health could you get any points or would it be a flat zero ?
2 if you were to ill at the start of your claim for benefit then the government encouraged you into trying to get a job but you still have failing health could you get any points or would it be a flat zero ?
but yes also to know were you put this type of detail in any of your forms for ESA PIP Universal Credit housing tied to your illnesses and how your limited ability would effect you.
If anyone else can point me to the right direction on this info would be helpful also
Thanks :)
In my experience with UC they are never happy, 16 hrs is not good enough for them, they're always pushing you to find full time employment. How the hell can I do that with my chronic illness. It is torture, my health deteriorated just being on UC constantly being on my back for their pittance payment
@@ivy-111 hey their
It comes to my conclusion that for you becoming ill working and having a chronic illness and work the lines seem very blurred and unfair because by no means are unable body people the same as someone who is able.
Can you tell me in what ways they do try to push you into more hours ?
is it by letter ?
text message ?
or do you have a disability adviser that is pushing you ?
or is it a job coach ?
Its annoying that under UC you get a limited allowance weekly but if your chronically ill on ESA LEGACY or NEW Style ESA and in the support group although you can get more but apparently your wrote off and unlikely to work again so i wonder if you got a job being chronically ill but being in the group unlikely to work if they would reduce your weekly allowance even though you would meet the requirement for being chronically ill ?
i wish one day we will get a government that creates a disability benefit were its not intertwined with anyone on job-seekers ESA ESA new Style Universal credit my feeling is these are more to persecute those who are chronically ill
Disability living allowance the original was better than PIP
people need the government to bring back something like the
independent living fund so you do get support to work if you want to feel like you take part in society
if anyone has any more information on this please reply
thank you
hi finally some help I have arthritis I my back have severe mental ilness and breathing problems and am only on standard pip they have been trying to stop me apealing by saying I will lose my pip if I lose the appeal I've been on pip for 5 yrs can you do a video on my symptoms pls as I do need to apeal the decision
In thw review do you only add whats new or do you have to write it all again?
Only add what's new or what has changed, you don't need to write it all again. If there is no change, just write NO CHANGE
I go through mental health, my worst time of life was I didn’t know about PIP. I had to go through everything you can name it as my mental state was extremely bad and PIP interview had taken me out completely, I felt helpless no one could help me because I was not able to explain anything anymore. I became bed ridden. Now after 4 years I’m just about 50% improving because nothing else matters anymore except some peace. I can’t show my inner self, but if it was possible people could understand me. 😢😢😢😢😢😢😢😢😢. I just want to be normal again so that I never have turn to this part of life again. I’ve come along way, I don’t want drop again because of this. So many people don’t understand how PIP works, so thy criticism is always there.
My mental health and physical health is not 💯 yet but all benefits give me more stress and anxiety. 😟 mentally unstable me. I alway struggle of saying I’m not okay. Which leads to misery for me after. You can’t see mental damage in obvious circumstances. 😢I don’t think I can ever explain my self that’s how much harder life gets for me. Over thinking is a mental disorder. I blank now my brain is shattered.
Hi, thank you so much for sharing. It is soooo difficult dealing with invisible illnesses. It makes it so much harder as people cannot see how poorly you are.
Please do NOT give up. You are not alone, there are soooo many people that truly understand how you feel
Take care of yourself
Charlie
Hi it’s feb 3 pip got my forms 10 November and I have not had a reply yet should I have heard by now thanks
Hi, I had phone assessment 22 Dec. Just watched your video and worried now because woman asked me how long it took for me to walk 2 metres....Took me by surprise so I stumbled and said I don't know maybe 3 minutes? I explained I can only walk a couple metres at a time...and only if within arms length of a wall or piece furniture etc....but I felt like she was trying to trip me up. I've been on pip since 2020. High rate on both. Major stroke in 2019. Left side affected. Can't use arm...leg barely...drop foot. Spasticity. I can't lose PIP. I'm waiting for them to send me the report, I requested it yesterday. Hope I've not blown it !!
Hi, the way you explained it in your comment is FANTASTIC. They have moved from bus lengths to asking people how long it takes to walk.
NONE OF US time ourselves!!!! I think you did great. Just be ready to appeal it if they did not fairly record your information.
Unfortunately, she was trying to trip you up. But the furniture explanation was brilliant xx
If you can, let us know how it goes xx
@CharliesJourney hi..I received copy of report today. Looks like she has been truthful what she's written . Looks like 12 points for daily living...and 12 for mobility...yeh !!.... marked down on points for daily living..I got 17 last time. But depends on PIP now to review report...it could change couldn't it ?....🫣
Had txt today saying they've made their decision. Will here within 2 weeks.....dont think that's a good sign do you? Made decision within 9 days. I'm expecting the worst....
no they haven't i got mine yesterday still says bus lengths@@CharliesJourney
Hello Charlie. I have just received my pip review form and after reading through it i have noticed that on pretty much every component they mention, nothing has changed since i did my first pip assessmment. I can't just put N/A on everything or can i? I had a bit of trouble getting pip in the first place due to not scoring enough points even though i believed i deserved more. I eventually had a tribunal which i was successful with but since then nothing has changed with my circumstances.
Hi, you say: NO CHANGE
If you are worried, put brief details but make sure you LINK TO THE POINTS! To ensure you keep the points. If you check my newer guides there is a link in the description!
Thank you @@CharliesJourney. I am still scared to right anything down as although i have a severe disability (Spina Bifida + Hydrocephalus + other issues) it doesn't affect me nearly as bad as it does most other people who have it. I can walk unaided a little longer than i used to, with occassional balance/coordination issues. I am afraid that if i can't answer the questions properly i may not get awarded pip again like i did when first applying for it. I had to go all the way through to a tribunal to get it.
My son suffers badly with mental health issues and is dyslexic, could you please do a video on how to apply for PIP for people in his situation if you have that knowledge? I will be helping him in making the claim but don't know where to start as the form seems geared to people with physical disabilities. He is in desperate problems that I obviously can't go into detail about but I need help to help him
Hi,
Of course I will. But, you are right. The challenge with PIP and how it current works is that it is very focused on physical disabilities. So, if he is 'abled bodied physically' he will not get any points for daily living.
But, on planning and following a journey in the mobility section, he could be eligible.
I wish you all the best and I will do the guide as soon as I can
Take care
Charlie
Have you got any advice for people suffering with 'only' mental health issues? I've suffered with OCD for decades now, usually I'm quite capable of powering through but I've just been completely destroyed by a bad relapse the past six months and I've lost three jobs in as many months because I physically can't do it. I'm an emotional wreck and suffering with horrendous insomnia and depression to boot.
The way that the questions are asked seems like it's almost designed to dance around mental health issues. Like for instance; yes sure 'I can' force myself to cook but most days I have absolutely no energy or willpower to do so. And yes, 'I can' wash myself, but the problem is I end up having numerous baths a day and spend hours in the bath as part of compulsive behaviour.
Hello,
I think you are right. PIP seems to focus more on physical abilities and mental health is not taken into account as much as it should be.
I think you do the same as anyone else. You clearly explain how much your condition limits you. About eating, you explain how many days a week you simply cannot cook.
It does not matter if it is fatigue due to arthritis or due to depression. Fatigue is fatigue and is life changing!
The first Tribunal guide I have online (for Wendy), we won due to her mental health NOT her physical conditions. The Judge, Doctor and Disability Specialist were extremely understanding.
You have communicated how difficult it is for you in a EXCELLENT way here, you need to do that for PIP. But please please follow my guidance to ensure you get the right message across to them!
Let me know if you have any questions and I will try and help
Charlie
Hi i have my pip review form nothing has changed since the last time I filled the form in,
I heard that you just put no change in answer but is that what you put in all 3 parts of the question?
Your help would be much appreciated thanks.
Hi,
Yes, its that simple.....but make sure you do write it in the 3 parts per question. There is some small print in forms about making sure we fill in EVERY box. So, I do it in all 3 so they do not have any excuse to say I/we did not do it right.
Good luck
Charlie
Should i claim for pip over the phone or online to get the forms thanks for any help
Hi, I would ring them to log that you want to claim. Then my preference is to have the forms in my hand. I find it easier to do that due to brain fog.
But you can do it anyway that suits you, good luck
Charlie
Wish I'd seen this a few weeks ago. It suddenly appeared in my timeline hours after I had posted mine.
Hi Ben! I have subscribed to your channel!!
These review forms are different than the actual application then, I thought I going nuts but anyway thanks for the info, I wish I knew this in June last year, 0 points after my telephone assessment (even after writing all the aids, alarms for prompting and help from my mother with my finances. I can't use bath or shower, so sit on side of bath to have a sink wash... I shower at mums a couple times a week cos she has a kitted out wetroom), 0 points after my reconsideration and now waiting for tribunal... nightmare. Also, I'm gonna be a pain, what link should I click on for template; I must be a blind dumbass for not seeing it. If your assistance helps someone win and they win their PIP case, they could at least offer you something for your time cos some people are given thousands in backdated claims (but that's what I'd personally do for all the assistance given).
Richard, I haven't learnt how to upload a document in the description....you not blind LOL. If you drop me an email at:
charlieisdisablednotdead@gmail.com
I will email it across - just remind me you want the review document (or the tribunal one) please
Thanks for commenting, great to hear from you again.
Also, based on how you come across, you are never going to get the points for budget.....it sucks but they won't give them to you.
15:58 I told the lady today for my phone review that I don’t eat because of my vomiting/nausea through the day I eat just dinner as this true I’m over exhausted and don’t have the energy to make or grab something to eat, now all I’m thinking is no points and that is terrible.
Hi, is there anyway I can get intouch with you thanks linda x
hi everyone if someone responds for my question I'd greatful cause it's really tricky and hard I've received my pip review due to end my pip they said that " the information in this letter is about them and so we use the word "YOU" as if we were writing to them directly.my question is I'm filing it out the form when fill it out should use "I or SHE thanks a lot
What is the best thing to do if you have been sent a review form and your circumstances haven't changed they are the same
I need help with renewal of pip where may I get help. thanks.
I’m very stressed out I have a OCD and anxiety and I’m physically not feeling well my both knees need a replacement in few years and I have lost my tribunal with Universal Credit even the welfare person was sitting down during the hearing and she didn’t say a word.
I don’t know who to trust I was frustrated after the hearing and I couldn’t sleep that night so I had to take 7 anti depressants tablets to get sleep the doctor said that I was lucky to survive I could have been dead
I have a tribunal for PIP on the 16 this month I don’t know what is going to happen
Honestly, when I read this....I thought 'sh#t'. Please tell me you have someone supporting you?
Have you gone through the points to see where you score?
I have so many questions for you.....for example: how severe is your OCD? Will you be attending the Tribunal?
If you want, email me the answers: charlieisdisablednotdead@gmail.com
I am so sorry but Tribunals SUCK.
AND please NEVER take that many meds again.....your body can go without sleep (it sucks), do a call for help. You are NOT alone in this, we are here for you xx
P.S If you email me, be blunt in the email and remind me of this comment (as I get a lot of emails.....but when you remind me of yourself (even if you repeat what you have written here...I WILL remember you xx)
My friend has a PIP review due soon and she has no changes so would she just put 'no change' in all the boxes? Thanks
Is that the 6 page light-touch review form your talking about? I'm also wondering if "No change " is all you have to write in the boxes. I read somewhere you might have to add a bit more info. Hopefully someone will know what to do.
@@user-by1wx4kz9j Yes maybe it would be best if she explained in more detail exactly how her disability impacts her life even if it's not changed much since her first assessment, she may realise how she is now more fatigued because of the pain than she was earlier. Thank you for replying
Hi, if there is no change, please just write: NO CHANGE
In every box under each question. You do NOT need to write about the condition again as they already have that on record. Keep it simple and remember the guidelines are:
If there is no change, please write 'no change'
The only time I would write more detail is if your friend did not get the write points last time. Like I did in this guide, the lady canNOT cook. But she did not get the correct points, so I filled in the detail again stating the fact and linked it to the points system.
I hope this helps
Charlie
Thank you so much for your reply
@@CharliesJourney
@@CharliesJourney Thank you Charlie for your reply. I really appreciate it. Thank you again.
How can they refer to an OT. I didn’t know they could do this!
Hi, it was a paragraph in the mass of letters they sent with the outcome. I have it on my list to dig it out and share it.......have a good look and I promise I will do a video on it as soon as I have helped the people I am currently working with.
I am so glad you focused on that bit, she was amazing and the aids massively help me on a daily basis x
Hello! How do you fill this review form when there was no change?
I LOVE this question! You simple write: NO CHANGE in every section.
Its that simple x
You have just helped many many people who have no disabilities or health problems, they have watched your videos and you have put a great way of getting free money into there heads ,the system is going to wrong people and with your help it's giving ideas to the wrong people is the DWP aware of your occupation as you seem to be an advisor
Hi could you help me i have asthma and have recently been diagnosed with copd
Thank you so much for commenting, please check out my other videos for help.
Currently we do not have any space for consultancy bookings. However we will be reopening soon. We will be offering first places to the newsletter subscribers. Here is a link if you would like to subscribe:
charlieanderson.substack.com/
When we reopen, we will give the newsletter subscribers two days to select bookings then we will reopen to the public. If this does not suit your timeline, please be aware you can ask me quick questions via email: charlieisdisablednotdead@gmail.com
I am very sorry I am not free right now to support you
Hi, I can't find the forms mentioned at the start of the vid. Could anyone link to them for me please?
If you go in the description of the video there is a link in there :)
Charlie, i wonder why i keep reading that people are saying things like 'i didn't get PIP even though i sent them tons of evidence about my illness'....... it's like they just don't understand that it's not your illness that gets you PIP but the way your illness affects your every day life. Sending reams and reams of paperwork isn't the way, one person said they actually put all their evidence of their various illness's in a box file and sent that through the post with their PIP form and were astonished when their claim was refused.
This is what is bothering me most at the moment. I had no idea how much miss information and understanding there was about PIP.
I spend most of my time linking with people having to explain exactly what you just said.
I think once people have someone they can talk to who truly gets it and can explain to them using their personal circumstances as examples. Then they get it.
But until then there are so many knobheads on social media giving out the wrong information that is hindering peoples claims.
Thank you so much for commenting!!!
Charlie
Hi Charlie what area do you live in ?
Hi Charlie, I am stuck with pip review form, can please you help me fill up?
Hi, I am so sorry, I have had to turn off my consultancy as I have taken on a smidge too many cases.
If you email me with any specific questions, I will come back to you, but I cannot do the form for you. So sorry
Here is my email:
charlieisdisablednotdead@gmail.com
And please watch this, you must be clear on the POINTS to do the form:
ruclips.net/video/VYDYTX2Ml1Y/видео.html
You CAN do this!!!!
When I received my ATOS form I was marked down drastically on the points even though my friend and social prescriber interjected on the telephone review. She contradicted so much. Annoying!
I am so sorry this process sucks! Great to hear from you again Lucas....I feel like my chat with you is getting less posh as we chat more often LOL
I hope thats ok!
Look forward to hearing from your soon
Charlie
P.S I love the image that comes up with your name....it makes it really easy for me to recognise you, please don't change it ffs hahaha
Hi Charlie, I sent you an email last month. I imagine you get quite a lot of people asking you for specific advice so I didn't expect you to hop to it and reply to me. I am just checking you got my email though?. Mine is about mental health and teeth.
Does anybody know if reviews are behind my letter say they will contact be after August 2023 I haven’t heard a thing thanks in advance.
Hi, they are realllllyyyy behind. Someone was told a couple of weeks ago they are 40 weeks behind.
BUT, to make sure they have not 'lost' you. Either send an email or give them a call and chase them. Sorry I know thats crap
Take care
Charlie
@@CharliesJourney that’s great I will thanks for getting back to me 😀
Just wanted clarity from the Tribunal wins. Do they always expect us to reapply rather than renew. I don’t want to go through the whole process again.
Errr....I think you mean:
When you win the Tribunal, do they then just review you after 3 years as per normal? The answer is: YES.
You do not go back to Tribunal after the 3 years.
If I miss understood, please message me back. Had a bad pain night so only slept about an hour....what makes this amazing is that literally all of the people who comment on here...understand!!!
Please do let me know if I missunderstood!
Charlie
@@CharliesJourney Thanks for replying back. My son won via tribunal and all I’m hearing is it will end on that date and have to re apply as they don’t send forms out to renew or review. Tribunal awards don’t get extended just stopped and then have to do everything all over again. Will they not send forms thats my worry. I will of course chase them up six months before hand. He was awarded for two years last year and this year only, despite tons of evidence supplied. So many are worried that there PIP will be taken off after reviews etc.
Hi,
OK, honestly....I have not been working with someone long enough to know what happens when the amount of time the Tribunal gave someone ends.
BUT, PIP are reasonable. OK the process sucks. But the point of the system, to keep us as independent as possible is why it exists.
If you WIN at a Tribunal you are winning your PIP Claim. Just because you went to Tribunal does not change how they scored the points, how you were funded. You won your PIP CLAIM.
So, you get the points and get the funding the same as everyone. I believe (I could be wrong) that you then move into the: you have PIP category. It does not matter how we win, if its:
- First claim via assessment
- Mandatory reconsideration (appeal)
- Tribunal
Its all the same outcome. Then we go into the same procedure for reviews.
I do not believe they could then just stop your claim. As the reason you won is that you are impacted by your chronic illness.
I think its people fearmongering.
I have Googled it and linked with Wendy (we won the Tribunal together) and everything says: you get a review. The same as everyone else.
Please update me if you experience anything different!
I am sorry I could not give you a 100% answer
Charlie
@@CharliesJourney Thank you, I will keep you updated.
If you win PIP through a tribunal the DWP will not usually review the award. When the award ends you will be required to put in a new claim.
@@CharliesJourney
How do I contact you personally hun?
Hello , I am receiving pip , and I have a review coming up soon . Can you please help me do my assesment. Xx
Hi Paula,
Here is a link to my Calendly:
calendly.com/charlieisdisablednotdead
Please try and use all of the free stuff before you think about booking me xx
I have struggled with my eating for 20 years
I never noticed your undies till you said !! :-) great video and info as always. Take care and look after yourself .. Liza x
Hahaha I was gutted LOL
Hope you are ok Liza x
@@CharliesJourney I’m ok thanks Charlie, just received a copy of DWP’s response to Tribunal , I now have my assessment notes and only had a quick look at it and there are a lot of ‘mistakes’ said and reported, so I need to get energy together and go through it properly.
Take care Liza x
Hi
I got 11 points altogether but they split it and said that 6 was for one part and the other was for 4 mobility I struggle to socialise with other but because I can where there there's loads of toilets but if I go out it's different cuz I have to ask and they refuse me and the toilets are not clean but at work there is four toilets and they are clean and I can use every one of them whenever I need but because of this they said they disagree and said I can go and socialise
I've been getting a full pip for ten yrs now they've stopped it . I also have a assessment phone call . I'm really worried can you put my mind at rest
Check out my other videos on PIP as they might help with the assessment
ruclips.net/p/PLqcdAs2WCJUUgEqYZT_V8_mJgHEeVHtN3&si=kibn3RnNeAut5_2V
community law will help with PIP and ESA
Hi, is that an organisation? Or do you mean people need to Google 'community law'? Thanks Charlie
P.S I am totally open to extra ways to help people! Anything that helps people win, I am all for it and would like to learn more