Hi Sarah! I have long Covid too. I am also doing the Perrin Technique with the help from my chiropractor and massage therapist! I have been doing this technique for 8 weeks now. I am glad to see it has helped you too. I am about 85 to 90% recovered! I first got sick April of 2020. I look forward to when we are all fully recovered! Thank you for sharing your experience with the Perrin Technique!
Hi everyone I am a covit longhauler. Its tough. I haven't seen all your videos Sarah.. but glad to hear and see you looking pretty good and talkative and sharing .I havnt done or heard of perrin method its sound reasonable and quiet promising .for my part I am a fan of of Chi kung as well it helps so much specially for lingering fatigue my mentors and the teachers are Mantak Chia (plenty of free videos /youtube) and Dr Pang Zhinen Qi gong .everything is Energy I hope you will find good relief from this dreadful lingering issue .🙏🙏really good stuff to watch and practice not taxing easy to do any age 🌹🌹
Hi Sarah, I can see your almost out just by the way you present yourself. Just want to thank you for spreading the word.this is the true answer to me/cfs.you don't want to know where I have been. I have this severe. I have made improvements but bieve I have a structural issue which may be hindering any further progress.i live in Canada. Not a great area to live if a person is seeking help.you are a true gem for all that you are doing!!!!
It's fantastic that you're drawing attention the importance of the lymphatic system in CFS/ME but the the dysfunction doesn't occur because of physical inactivity due to symptoms per se according to Perrin's theory. Acute or chronic stressors cause the lymphatics draining away from the brain to collapse and the flow starts to occur in reverse way before the onset of chronic symptoms
@@sarahchristine7869my theory is that there is a collagen defect in CFS. Why do we break when others don't. We have a lower allostatic load. A lower tolerance. Many many patients have a form of EDS or subclinical EDS . This lends itself to weak connective tissue. It's disposes you to easier insults to the body and nervous system. Look at the RCCCX theory. It's convincing. The oerrins technique is definitely a good tool in your box and for some milder sufferers it may be all you need. But the collagen tissue defect is there. Ehlers danlos is way more common than previously thought and the criteria for diagnosis are no longer fit for purpose. Problems in tissue lead to leaky gut, predisposing you to autoimmunity. Also means your more likely to be attacked by viruses. Also means you will be attacked by all the toxins in our environment. Because of the collagen defect, we have leaky blood brain barriers that leads to many inflammatory problems as viruses and heavy metals can get into the brain. Indeed CFS suffers seem to suffer from selenium depletion meaning heavy metals are in the body and brain. Another problem with a virus that gets into eds tissue is mast cell degranulation. Most people with CFS have MCAS..depending on where your mast cells degranulate ( they're hyperactive and trying to kill these viruses or toxins) will show up as issues in your body. Reflux , contractions like IBS, breathing issues, tachycardia,palpitations, urinary and bowel problems and of course if you get degranulation in the brain then it's surges if anxiety and adrenaline. Also our metabolism switches to catabolic and we begin to eat our own bodies muscle. This used to be known as adrenal fatigue. Again some of this is structural. There's issues in the spine, likely coming from eds type architecture and oerrins will help with that. The root defect in my opinion is a collagen defect. That's ground zero. Everything flows from there. Virus, toxins, weak connective tissue creating negative feedback loops. Overactive nervous system because they're made weaker and also have mast cells degranulating them. There are things you can do to relieve symptoms and in some cases cure yourself completely. Here's a heads up. Have you heard of Whitney dafoe? His dad is part creator of the human genome project and came out of retirement to try and cure his very sick son. He's doing great work in his non for profit organization " the open medicine foundation". He has novel laureates working for him and they have a working theory for a possible cure. If any of your guys can afford a bit of money here or there it would be worth donating. If not. Follow their work. They're making great strides
i start with 20 meter running every day back to 10 meter and 25 and and i runn 5 km every day the last 20 years a lot of hiking surfing ,but also rest ,relax . and acept the bad days weeks and months ,
Thanks again! Because of you I’m getting a Lymphatic massage. Your videos have given me some excellent tips. Do you recommend any supplements? Thanks again
Thank you! I take vitamin D, vitamin C, vitamin B-complex, a multivitamin, zinc, fish oil, & magnesium. I also recommend evening primrose oil & milk thistle to help support the liver while detoxing.
Really interesting video Sarah, thanks for posting. I am 18 months into my recovery and am managing 3 x 10 min walks a day but I am stuck. I've only just come to learn about the importance of the lymphatic system and its impact on health. What is your thoughts on mitochondria? From what I have experienced or perhaps have felt is happening, it feels very much like the mitochondria struggle to make the energy to sustain activity and are sehow down regulated due to the immune system dysregulation. Do you see a link between what you have outlined in the video re CNS and mitochondrial function?
Yes. I agree about mitochondria, and think that as the autonomic nervous system regulates, (through a holistic approach to healing) the mitochondria should start to function optimally again.
@@sarahchristine7869 This is the missing piece of the puzzle as far as I can tell; whether/how restoring proper ANS function brings the mitochondria back into proper functioning. I hope so! It seems to be the case going by others' recovery stories
thank you, nice comprehension! I wonder how anything can change the direction of this flow, both triggered and reverse. How can we tell the flow is back to normal 100%?
Thank you for this video. How are now please? I started yesterday and i am very fatigued today. How many days did you experience fatigue before feeling well ? Thank you
Hi I have post covid insomnia. Even when I sleep with medication it is non refreshing ? can you please advise something for this ? will be forever grateful
This is a common symptom of Long Covid/CFS. I’m going to talk a bit about this in my next video. What has helped me is taking a holistic approach to heal the nervous system dysfunction, which is at the root of all of the symptoms. I talk about the different things you can do in my other videos. I have magnesium before bed and a small amount of melatonin. I dim the lights in my room an hour before bed, and make sure I’m unwinding and relaxing during that hour. I try to get out in the morning light each morning, which can help you sleep better. And I try to just have a relaxed approach. If I’m stressed about not sleeping, then I won’t sleep well!
hello i love these tips i do some but i will try the others you mentioned to see if anything will help. Im on 8 months with long covid :p so anoyying. Can i ask are you fully recovered? or still symptoms lingering?
i was very very sick 32 years ago cfs this name even exist , so i start my jurney becouse nobody help me , after 4 years body hell , broke ,lonley ect ,i got a job on a small greek iland ,it safe my life ,I lied for the job, no one knew how sick I was, it probably saved my life, heat, fresh air, sun, cold clear water, and a simple life. The trip wasn't easy but when I feel really bad again I pack my things and go back to the island, I wish I had more money to be there permanently, but life is not a ponny farm ,
Thank you so much for this video. I have long Covid chronic fatigue and it makes your life a misery - it's not just feeling tired, it's feeling unwell as well as tired! I just tried the hot/cold shower thing - how many times do you recommend alternating between hot and cold in one shower?
@@sarahchristine7869hi Sarah Just wondering how you’re doing with the chest pains I am two years and two months in that I was getting better but now suffering with chest pains wondering if it’s to do with clotting in my cardiovascular system 🤔🙏 I’ve got 90% better as well, but this last couple of weeks after getting flu things have come back again very depressing Hope you can reply. Sorry it’s been awhile since you’ve done the video ❤
So sorry to hear that you're experiencing chest pains again, and that you've had a resurgence of symptoms! I really hope you find lasting healing soon. I would say that I am fully recovered (and have been for a long time), except for continuous chest tightness. I'm used to it now, although, I still hope that it will one day be fully healed. Best of luck on your full recovery!@@Reg-Edit
Hi Sarah! I have long Covid too. I am also doing the Perrin Technique with the help from my chiropractor and massage therapist! I have been doing this technique for 8 weeks now. I am glad to see it has helped you too. I am about 85 to 90% recovered! I first got sick April of 2020. I look forward to when we are all fully recovered! Thank you for sharing your experience with the Perrin Technique!
This is great news, Linda! Thank you for sharing. I’m glad that the Perrin Technique is helping you, too, and that you are nearly fully recovered!
May I ask you what were your symptoms and how long you had long COVID before finding the Perrin technique? Thank you
Hi happy for you!! you recovered but doing only the Perrin technique ? I am long covid since 2020…
I'm going to try this. I've been sick for 15 months
Hi everyone I am a covit longhauler. Its tough. I haven't seen all your videos Sarah.. but glad to hear and see you looking pretty good and talkative and sharing .I havnt done or heard of perrin method its sound reasonable and quiet promising .for my part I am a fan of of Chi kung as well it helps so much specially for lingering fatigue my mentors and the teachers are Mantak Chia (plenty of free videos /youtube) and Dr Pang Zhinen Qi gong .everything is Energy I hope you will find good relief from this dreadful lingering issue .🙏🙏really good stuff to watch and practice not taxing easy to do any age 🌹🌹
Excellent! So much good information!
Thank you!
Hi Sarah, I can see your almost out just by the way you present yourself. Just want to thank you for spreading the word.this is the true answer to me/cfs.you don't want to know where I have been. I have this severe. I have made improvements but bieve I have a structural issue which may be hindering any further progress.i live in Canada. Not a great area to live if a person is seeking help.you are a true gem for all that you are doing!!!!
Thanks for this information and so glad you’re recovering! 😊
I use Far Infra Red Mat .. but still work 100% , but after working 3 days I am exhausted and need 1 day almost flat to recover .
It's fantastic that you're drawing attention the importance of the lymphatic system in CFS/ME but the the dysfunction doesn't occur because of physical inactivity due to symptoms per se according to Perrin's theory. Acute or chronic stressors cause the lymphatics draining away from the brain to collapse and the flow starts to occur in reverse way before the onset of chronic symptoms
Yes, I covered that cause very specifically in this video.
@@sarahchristine7869my theory is that there is a collagen defect in CFS.
Why do we break when others don't.
We have a lower allostatic load. A lower tolerance.
Many many patients have a form of EDS or subclinical EDS . This lends itself to weak connective tissue.
It's disposes you to easier insults to the body and nervous system.
Look at the RCCCX theory. It's convincing.
The oerrins technique is definitely a good tool in your box and for some milder sufferers it may be all you need.
But the collagen tissue defect is there. Ehlers danlos is way more common than previously thought and the criteria for diagnosis are no longer fit for purpose.
Problems in tissue lead to leaky gut, predisposing you to autoimmunity.
Also means your more likely to be attacked by viruses.
Also means you will be attacked by all the toxins in our environment.
Because of the collagen defect, we have leaky blood brain barriers that leads to many inflammatory problems as viruses and heavy metals can get into the brain. Indeed CFS suffers seem to suffer from selenium depletion meaning heavy metals are in the body and brain.
Another problem with a virus that gets into eds tissue is mast cell degranulation.
Most people with CFS have MCAS..depending on where your mast cells degranulate ( they're hyperactive and trying to kill these viruses or toxins) will show up as issues in your body. Reflux , contractions like IBS, breathing issues, tachycardia,palpitations, urinary and bowel problems and of course if you get degranulation in the brain then it's surges if anxiety and adrenaline.
Also our metabolism switches to catabolic and we begin to eat our own bodies muscle.
This used to be known as adrenal fatigue.
Again some of this is structural. There's issues in the spine, likely coming from eds type architecture and oerrins will help with that.
The root defect in my opinion is a collagen defect. That's ground zero.
Everything flows from there. Virus, toxins, weak connective tissue creating negative feedback loops. Overactive nervous system because they're made weaker and also have mast cells degranulating them.
There are things you can do to relieve symptoms and in some cases cure yourself completely.
Here's a heads up. Have you heard of Whitney dafoe? His dad is part creator of the human genome project and came out of retirement to try and cure his very sick son.
He's doing great work in his non for profit organization " the open medicine foundation".
He has novel laureates working for him and they have a working theory for a possible cure.
If any of your guys can afford a bit of money here or there it would be worth donating.
If not. Follow their work. They're making great strides
Very well done and thank you so much for posting this.
Good information and a really good job explaining it as well
Very interesting. Thank you.
i start with 20 meter running every day back to 10 meter and 25 and and i runn 5 km every day the last 20 years a lot of hiking surfing ,but also rest ,relax . and acept the bad days weeks and months ,
Good info!!!!!!
Thx for the info!
Thanks again! Because of you I’m getting a Lymphatic massage. Your videos have given me some excellent tips. Do you recommend any supplements? Thanks again
Thank you! I take vitamin D, vitamin C, vitamin B-complex, a multivitamin, zinc, fish oil, & magnesium. I also recommend evening primrose oil & milk thistle to help support the liver while detoxing.
And spirulina
Now I’m on to the gut health, also thanks to your tips I’m learning how to pace myself. It’s hard to break the “boom & bust” cycle
Can i use a massage wand for lymphatic massage
Really interesting video Sarah, thanks for posting. I am 18 months into my recovery and am managing 3 x 10 min walks a day but I am stuck. I've only just come to learn about the importance of the lymphatic system and its impact on health.
What is your thoughts on mitochondria? From what I have experienced or perhaps have felt is happening, it feels very much like the mitochondria struggle to make the energy to sustain activity and are sehow down regulated due to the immune system dysregulation.
Do you see a link between what you have outlined in the video re CNS and mitochondrial function?
Yes. I agree about mitochondria, and think that as the autonomic nervous system regulates, (through a holistic approach to healing) the mitochondria should start to function optimally again.
I hope you experience breakthrough in your recovery soon.
@@sarahchristine7869 This is the missing piece of the puzzle as far as I can tell; whether/how restoring proper ANS function brings the mitochondria back into proper functioning. I hope so! It seems to be the case going by others' recovery stories
thank you, nice comprehension!
I wonder how anything can change the direction of this flow, both triggered and reverse. How can we tell the flow is back to normal 100%?
Thank you for this video. How are now please?
I started yesterday and i am very fatigued today. How many days did you experience fatigue before feeling well ? Thank you
Hi I have post covid insomnia. Even when I sleep with medication it is non refreshing ? can you please advise something for this ? will be forever grateful
This is a common symptom of Long Covid/CFS. I’m going to talk a bit about this in my next video. What has helped me is taking a holistic approach to heal the nervous system dysfunction, which is at the root of all of the symptoms. I talk about the different things you can do in my other videos. I have magnesium before bed and a small amount of melatonin. I dim the lights in my room an hour before bed, and make sure I’m unwinding and relaxing during that hour. I try to get out in the morning light each morning, which can help you sleep better. And I try to just have a relaxed approach. If I’m stressed about not sleeping, then I won’t sleep well!
hello i love these tips i do some but i will try the others you mentioned to see if anything will help. Im on 8 months with long covid :p so anoyying. Can i ask are you fully recovered? or still symptoms lingering?
I have been about 85 to 90 percent recovered for several weeks. Very nearly there; feeling so much better. I hope you make full recovery soon!
i was very very sick 32 years ago cfs this name even exist , so i start my jurney becouse nobody help me , after 4 years body hell , broke ,lonley ect ,i got a job on a small greek iland ,it safe my life ,I lied for the job, no one knew how sick I was, it probably saved my life, heat, fresh air, sun, cold clear water, and a simple life. The trip wasn't easy but when I feel really bad again I pack my things and go back to the island, I wish I had more money to be there permanently, but life is not a ponny farm ,
How long have you been a long hauler??
16 months
Sarah Christine Im in my 7th Month. Have you almost recovered yet?
I have been about 85 to 90 percent recovered for several weeks now. Getting better all the time. I hope you make full recovery soon.
I live in france and nobody here knows the perrin technique. Do you think that doing the exercises alone at home will be beneficial ? Thank you
Hello. There's Dr. Vincent Staf in Bordeaux who does the Perrin technique. Any osteopath can help though. I'm in France as well.
Thank you so much for this video. I have long Covid chronic fatigue and it makes your life a misery - it's not just feeling tired, it's feeling unwell as well as tired!
I just tried the hot/cold shower thing - how many times do you recommend alternating between hot and cold in one shower?
Hi Sarah! I'ts been a while but I would like to know how you doing with long covid after this time.
I’ve been completely recovered for quite a while now! (I just have a bit of lingering chest tightness, but other than that, completely well!)
I can hardly walk if I move an arm i get more symptoms Heart, pain no energy
Hey just wondering how you are doing now ? :)
I have been fully recovered for quite a while now! (except for some mild lingering chest tightness)
@@sarahchristine7869 oh that’s great news! Really glad to hear it - I’m sure it will go as many other symptoms do come and pass
@@sarahchristine7869hi Sarah
Just wondering how you’re doing with the chest pains I am two years and two months in that I was getting better but now suffering with chest pains wondering if it’s to do with clotting in my cardiovascular system 🤔🙏
I’ve got 90% better as well, but this last couple of weeks after getting flu things have come back again very depressing
Hope you can reply. Sorry it’s been awhile since you’ve done the video ❤
So sorry to hear that you're experiencing chest pains again, and that you've had a resurgence of symptoms! I really hope you find lasting healing soon.
I would say that I am fully recovered (and have been for a long time), except for continuous chest tightness. I'm used to it now, although, I still hope that it will one day be fully healed.
Best of luck on your full recovery!@@Reg-Edit
Been a Nightmare!
ARTHRITIS
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The sympathetic nervous system causes long covid, live youre life, be happy, switch to parasympathetic
I can not move bed only 2021 to 2024
I never see any long haulers on oxygen
Thank you so much for your knowledge!!!!!!!!!!!