Here's How You Treat Long Covid | Lessons From MCAS - Dr Tina Peers
HTML-код
- Опубликовано: 3 июн 2024
- If you've been suffering from Long Covid, chances are you've had every man and his dog telling you that what you REALLY need to be taking is Vitamin D. Or probiotics. Or some godawful supplement you've never heard of. And as a result many long haulers have been taking every vitamin and supplement under the sun to see what works. But it's hard to tell through the fog.
In this film I talk to Dr Tina Peers, one of the leading group of doctors with a special interest in Mast Cell Activation Syndrome, who has been successfully treating patients with MCAS for five years. She has lots to say about the comparison between MCAS and Long Covid, and what treatments have successfully worked in her clinical experience.
----------------------------------------------------------------------
The Long Covid Handbook (Oct 2022), by Gez Medinger and Professor Danny Altmann and published by Penguin Books is now available in paperback, ebook and audiobook. A singular resource that brings together everything patients, clinicians and academics have learnt about the condition since early 2020, as well as lessons from sufferers and researchers of ME/CFS and other chronic conditions. It offers world leading expert advice on understanding, managing and treating Long Covid. The Long Covid Handbook is available from the following links:
US: a.co/d/0gvkJCU
UK: amzn.eu/d/9KjurGb
-------------------------------------------------------------------
IMPORTANT: It is ESSENTIAL to talk to your doctor before taking any supplements that you have not taken before, or begin taking them at a larger dose. This regimen is NOT appropriate for children so they should speak to their doctor before taking any of these.
Nicotinic acid / Niacin also has several strong counter-indications, they can be seen here:
www.nice.org.uk/donotdo/do-no...
REFERENCES:
Dr Tina Peers
www.drtinapeers.com
MCAS and Long Covid, Afrin et al:
www.sciencedirect.com/science...
Atopy / Autoimmune conditions in Long Haulers:
• Who Gets Long Covid, a...
Low Histamine food list:
www.mastzellaktivierung.info/... 
Наука
Should be up for an award in investigative journalism as well as public health!
Haha, thank you!
@@RUNDMC1 Do you have any website as a source to recommend?
Thank you for doing this. It’s difficult to deal with long covid symptoms and be treated like you’re anxious or crazy. You provide a glimpse of hope for people like me.
@@RUNDMC1 important question . My issues are primarily body aches . Is MCAS protocol primarily only applicable to
People with respiratory issues ? I’m taking the supplements but for last few days went back to high histamine foods and it’s not affecting me negatively . Having said that , if it’s not a good idea , how long does it take to get bad symptoms again if high histamine
Foods are reintroduced. It’s been 3 days and not feeling worse .. any feedback is greatly appreciated!!
long covid is a leaky gut syndrome. A doctor in pakistan is treating people long covid by prescribing them proton pump inhobitor like pantaprazole, eatung honey and yougurt in morning, eating raw onion and garlic with rice veggies, avoiding gluten, sugar, fast food, using olive oil etc. And people are healing in about 1 month of doing this
I had long covid, I used copious amounts of vitamin c, pineapple juice, lemon, honey, cinnamon, plus everyday I made a tumeric, milk,and black pepper drink in the morning. I pushed myself everyday, walk until I couldn't walk anymore, rest repeat. I'm now in better shape than I was before I got long covid.
What we’re your symptoms
Shortness of breath, fatigue, weak, loss of smell, taste, joint pain, brain fog wich I still have that symptom and still have some smell deficit.
Hi how are you doing nowadays and did you keep yourself on any antihistamines.H1 and H2 blockers
@@downtoearth1982 doing pretty good, still get winded randomly. No , I just kept the same regiment as above
@@oldArmyVet 3:59
I unfortunately contracted long covid back in March with relapsing remitting symptoms. 3 weeks ago I fasted for 48 hours then introduced a low histamine diet with n-acetylcysteine supplements and within 3 days my GI symptoms resolved, last week the tachycardia, palpitations and POTS resolved and this week the lethargy and breathlessness with speech resolved. Just started climbing hills! It may be anecdotal evidence but I genuinely think that long covid may be a result of the virus triggering mast cell reactivation syndrome!!!
NAC and D3 are the golden ticket!
Same here. I’ve been eating bananas daily for their potassium and now that’s not something I shouldn’t be eating along with the daily soy milk. I finally feel like there’s some hope.
Also added in berocca drink with high dose vitamin B { niacin} 3 weeks ago, my energy levels have improved enormously. Also managed to loose 2 stones weight after cutting out all processed meat / red meat/ all dairy and processed carbohydrates. I think we are just not designed to eat that stuff. Makes sense with all the food intolerances, inflammatory diseases, newborns to dairy, risk to pregnancy {bacteria}, Bowel, breast , prostate cancer risk, cardiovascular disease. In hindsight 3 years ago I had a bad viral chest infection with chest pain, lethargy, cough, POTS, waking up breathless at night {airways close without wheeze} all investigations were normal but diagnosed with post viral hyperactivity syndrome. I had lethargy for 5 months {triathlon training ruined} then one night of drenching sweats and woke the next day feeling amazing. Training returned to normal. I do wonder if the T-regulator cells aren't mounting a coordinated effort and there is a residual infection with the energy pathways affected and MCAS continuing to cause symptoms. Really interested in the T-Cell immunity tests that may be released giving a better picture than the antibody tests which I feel have not been the game changer they were sold as.
Congrulations...
Can you describe / explain how you fasted 2 days? What have you drank (or eat maybe)...just water or something else with it?
What are n-acetylcysteine supplements exactly?
Thank you for your answer.
I hope and pray we all get better.
I am literally crying reading this. Finally, some hope.
Hey Gez, I know you are hearing it all the time, but your work is essential. You are doing what governments should do - collecting scientific data and making it palatable for all of us. Your way of presenting is objective and trustworthy. I'm also in the club, but after 8 months, I'm using my running shoes again. The brain fog is still persistent, but I'm hopeful. There are some clear minutes daily which wasn't true a few months before. Keep hangin' on, we need you. Thank you.
Hey, thank you :) And congrats on getting those running shoes on - I’m eagerly awaiting the day I can do the same thing.
💯 % agree 👍
To eliminate brain fog, make sure you're not taking synthetic D.
@Will Gmail Hey Will. Thanks for your question. It was a long journey, I was constantly monitoring my symptoms, stopped running and other sports, gained a few kilograms :) Physically I'm 100%, but the brain fog still persists. Strangely it's worse when I'm passive. I'm about 65-70% of my old self. A few more years to go :) How about you?
@@lacisz How are you now ?? Hope you feel better and get your normal life back ???
This video was EXTREMELY helpful! My post-exercise long-covid symptoms were worsening (fatigue, muscle aches, weakness febrile pains) week after week and I couldn't figure out why. This video made it clear. I was reducing my hi-dose Vitamin C that I had been taking during COVID, and fresh tomatoes just came into season and I was gorging on those every day, twice a day - the absolute opposite of what is recommended here (and I was feeling it!). Going to re-up my Vitamin C, double my Vitamin B dosage (I have MTHFR gene mutation) and add Quercetin. I am already taking the other supplements but right after watching this video I also ran out to my terrace, stripped down, and got 15 mins of sun top and then bottom to increase Vitamin D production. I am so relieved to have found the reason I was getting worse and look forward to improving!!!! I was really scared. THANK YOU!!! Ciao from Italy, L
How are you tiday Laura 9 months later??
@RUN-DMC I had post viral fatigue or ME in the early 90's for 2 years full time, and then relapses, pre internet and i had everything - from shortness of breath to brain fog, diarrhoea, insomnia and crippling exhaustion.Yes and very poor tolerance to exercise. Any exercise would set me back for weeks apart from very gentle walking if i had the energy. Big meals would also set me back for weeks, i would ache all over for days after a big meal. When i finally found a book in a library explaining about post viral, chronic fatigue, i cried with relief just to know I was not alone, but trying to convince a doctor was something else entirely. Also everyone around me thought i was making it up because i always looked so well.
I tried exclusion diets, and very strict regimes and whilst they helped the game changer for me was total fasting and acceptance. People talk of acceptance but somehow that really does allow the body to heal.It's like you have to tell your own body ' I know i am ill and very tired, and i accept that, I give in, I will not fight against it, and i will be better in the future' And fasting helps very quickly, well it did for me. One supplement really helped me too, and that was Q10. I would even say that with a very good diet that was the only one i needed. But certainly I did try all sorts of vitamins and supplements. I did not find anti - histamine foods the culprit. Avocado, tomato etc, these things are fine. And white rice was very healing for me. Heavy oils and raw onion was bad for me. But the main thing was to have very little food. To fast. And when eating to eat very slowly and to learn to stop before being full, and then eat more if needed after it was properly digested. And if i felt a bad bout of exhaustion etc coming on - to fully fast. I know its boring but so better than being unwell. I highly recommend when you can (when we are allowed) going to thailand and doing a 7 day fast and having some colonics. I swear this will really help you heal. It's a miracle (well it was for me) Another thing very good for ME or Post Viral - is cold showers and a sauna followed by cold water plunge pool - i think it has been proven to regenerate the immune system (also was good for me)
has the viral fatigue went away since then?
My doctor told me that quote "my husband and I do not look like people who have mast cell syndrome" and he does nothing for us, thank God for your videos! Since I started treated us, my rashes went away, the chronic fatigue went away, and my flair-ups are a lot less! I really am grateful your sharing this and I've been telling everyone I meet with long covid to look into mast cell syndrome.
@Elizabeth Fondse it was sort of a weird white peeling rash all over my arm. I ended up using milkweed from a plant and it took it away, but I heard it can have a reverse effect for different people. I basically followed her advice, low histamine diet, Quercetin, zinc, vitamin B and vitamin C and I'm on a 0 histamine probiotic and I'm finally healing. 😊 I also did a 2 week cleanse and it worked wonders. For the first time in 13 months, I can drink coffee again!
I don't have LC but my health was ruined by a terrible virus 18 years ago. Very similar symptoms. One single dr decided to try giving me H1 and H2 blockers for Mast Cell. Since then, my fatigue has lifted enough to give me a far greater quality of life. Not perfect but I don't need to sleep every afternoon anymore. My brain fog is less, my skin rashes are gone.
@@latestlindsey5620 YOOOO Congrats! I still drink coffee even though I can tell its a trigger for me. I really need to stop or at least get my health back in order first lol
@@NoesKicker thanks so much! I know it sucks but now I'm back to 5 cups a day lmao, you'll get there 😂😂
Get a new Dr
I successfully improved my post COVID immune response with a water fast. On the second day migraines occurred which disappeared after drinking a small glass of distilled water as mast cells burst consequently. At least in my case the symptoms improved tremendously after water fasting for three days and it had a sustainable effect. I know there are so many different remedies being praised on the internet what makes people sigh and resign, but this is what helped me speeding up the recovery process. I was struck by the coronavirus two times in 2023 and still struggle with the consequences. Maybe this is helpful to at least someone, so I just wanted to share this.
Can you tell me exactly how to conduct a successful three day water fast? I was literally thinking this is something I need to try, just earlier today. 🙏🏼
@@tacocat8608 Don’t eat but drink water instead. My body told me with intense feelings of hunger when to quit. When I felt weak I did push ups because this stabilized my cardiovascular system. You need to drink plenty of water. I drank about 4-5 liters per day. A pinch of salt without additives a few times per day did also help me stabilize. It also helped me with headaches. When they got heavy on day two and three I had a small glass of distilled water to ease the pain. The distilled water destroys mast cells in your blood which build histamine what is responsible for your headaches during the fast. But be careful with the amount you take because distilled water can be dangerous when consumed in large quantity.
My son is a year long Covid sufferer. He’s on a strict low histamine diet and doing supplements. He is still struggling …. He’s found the answers trial and error after his MD just brushed him off as anxiety problem.
kaylabrison
anxiety is the normal reaction to the postcov syndrome and its bunch of symptoms. A medic who diagnoses PCS as a manifestation of anxiety should be obliged to restitue his medical diplome and go back to the medical faculty to renew his / her medical diplome.
Unbelievable. I never heard of long COVID. I just went to the doctor today and he said I have it, with all the symptoms I have. This video is excellent. Thank you. I already do the diet and vitamins but I eat alot of Avacados and bananas so I will stop them and do the rest of the protocol. The best health to all who have this and hoping you will be well sooner than you think. ❤️
This makes so much sense to me. I always believed there were a few common denominators that were stirring up so much misery in my life.
You’ve been so incredibly helpful to many of us suffering from this. Thank you thank you thank you
I followed this regime and I feel so much better! THANK YOU!
After my first night time Benadryl, I felt 75% better. After a week, I feel 90% better with my energy!
Before, I was so exhausted, I went from the bed to the couch for over 2 years.
Gez, you and your research saved my life!
Forever grateful,
Kim.
Update 9/16/22:
After learning that benadryl is super bad for your brain, I switched to Allegra, unfortunately it only helps about 60%. At this point anything is still appreciated, but I went back to bed / couch, unless I need to struggle along in a task.
I have added in Nasalcrom nose spray & Alaway eye drops, as they are mast cell stabilizers.
Desperately trying to get back into life.
I take 1 chewable children benadryl and seems to enough! Sometimes 2.
Hey KRG, I'm a systemic mastocytosis patient. We have this same problem for years. What is prescribed is TWO antihistamines for us. Whats called an H1 and an H2. It takes time to figure out the right combination for you. I'm currently taking Famotindine 20mg every 12 hours and Xyzal 5mg every 12 hours as needed. NSAIDS are triggers for many of us, so I stay away from them, but many also take a baby aspirin with this combination. Hope that helps. Benadryl is reserved as a "rescue med" only for a really bad flare up or before any invasive procedures like surgery.
I hope that helps
Sadly, long term use of benadryl can cause long term constipation.
Taking allerga above suggested dosage by manufacturer can cause tachycardia, sleep deprevation, and heart palpitations. I had patients using toxic dosages.
@@pattijesinoski1958 i take up to 12 times the recommended dose of antihistamines. This is my prescription from doctors because I have a very rare incurable disease called systemic mastocytosis. It causes the same cytokine storms that covid has only I get them constantly. I have zero issues. I get blood work every 3 months plus a dexa and PET scan to be sure. Zyrtec or Xyzal plus Pepcid up to 4 times a day. No side effects at all.
Gez - this entire series is totally amazing and has helped me get back onto my feet after suffering for over 6 months with long-COVID, including getting blown-off by several doctors. Can I send you some money or something? I mean - this work is absolutely fantastic! Please keep up the great work - you are truly serving humanity and you work is greatly appreciated!
No need to send money, just get better - that’s all I want for all of us!
how is your progress now?
Pls share what you did.
What supplements you took?
How much mg a day?
What food to avoid etc
Thanks
@@GlamandFabQueenTV I did the vitamin stack for NAD+ deficiency. It's in one of Gez's videos. For me, the nicotinic acid was the key. I've actually been increasing the dosage of that lately, as it truly helps with my fatigue after physical activity.
@@scsu11iv What is the name of the video please?
Really appreciate what you’re doing!! Thank you for keeping our hope alive!
Thanks Brittany!
Excellent interview and content!!! Thank you both very much :)
You’re a hero, being ill yourself I think the effort you put in these videos is incredible 🙏🏽
I had covid in October with few symptoms and was nothing more than a bad cold, then I got worse with headaches, heart palpatation, body twitches, chest pain, fatigue ,anxiety and depression.I had a severe headache for 3 months after which led to me having a brain MRI but everything was normal, it does get better, im 5 months down the line and am a lot better but still got a bit more to go👍🏻
Glad to hear you’re recovering!
Happy to hear that you are recovering
Did you follow a low histamine diet or what did you do that helped you get better? I am suffering with daily headaches everyday for going on 3 months now and am thinking of starting a LH diet.
Hi Novaaa how are you doing?
I know exactly how your feeling I’ve been going through the same exact symptoms including internal tremors. My headaches have improved and I no longer have palpitations. We will get through this!
THANK YOU for your research. You sir, have helped me alot along my journey to recovery as a Long Covid patient. Keep up the good work!...
I'm so tired of feeling terrible. So grateful to hear what some of the triggers are for long covid as well as what vitamins can address my symptoms. It's exhausting to not feel good all the time. Thanks for your information and expertise.
That’s ok - I know how you feel Teresa. Best of luck with your recovery.
I’m the same 4 years no one can understand how bad it is 🙏
Thank you for all of your videos. You truly are an awesome guy!
I have had ME/CFS for 14 years. I’m aware of the similarity between Long Covid and ME and when I heard Dr Peers talking about MCAS the symptoms were almost exactly those I suffer from. Thank you for your work and for this very useful video. I’ll be following the recommendations and reporting back.
common conditions miss diagnosed MCAS x
Hi @janealbinson7190 any update? Thanks so much
Hi @Jane Albinson - did you follow this and has any worked? I've been diagnosed with ME since 2012 but had it years before. Has anything worked for you? I'm so fed up of the fatigue. I'm currently trying nega dosing B1 (Elliot overton yt and Dr Eric Berg.) To see if that's a piece of the puzzle. Hope you're doing ok
@@charlieb9144hi, is B1 works for you?
Thank you so much!! I've been feeling so abandoned. I'll be on this tomorrow for sure.
Thank you for this video. I am at the end of my rope here with 2 yrs of long covid and vids like these keep me going.
What a great video very helpful 👍🏻 Thank you
Nice one Gez. As always, articulate, succinct and full of information. Thanks!
Thanks Michelle!
I don't have the energy to pull out all my vitamins
oh my god yess I don't even have the energy to drink water
Thank you for this work that you are doing. I find your information more helpful, information, and cutting edge than what is shared via most media platforms.
Pleasure - glad you’ve found it helpful!
Another great video, thank you so much Gez, your videos have helped me so much these past 8 months. I really don’t know how you’re managing it!
Thanks Gillian! Hope you’re seeing some recovery.
This is brilliant as always Gez, thank you! One thing that wasn't so clear in regards to MCAS - is it a lifelong management? I know the partial answer was that once the mast cells are replaced in 6 months they can be less sensitive, but wasn't quite clear if that means they would no longer need to be managed..
This has to be some of the most informative information I've come across throughout this entire pandemic. So refreshing to to know that there are still a few people capable of thinking outside of the box and not just regurgitating government propaganda.
This was so so helpful. My symptoms had improved until I stopped taking the vitamins and I feel like I’m back to stage one and I couldn’t remember the regimen. Thanks so much for doing all the work you have compiling this resource, I always trust what is here amongst all the endless information. X
I have MCAS from black mold poisoning and Lyme. I was at the best I've been in years, then got Covid. Recovered great, but then MCAS came back with a vengeance. Suicide fuel. Haven't slept in days. Already had severe insomnia. Not even a bar if xan knocks me out after this Covid MCAS.
So how do you no mold caused the mcas and it wasn’t your nervous system.😊
Thank you again for the most important research for us, the long haulers! Hope we get better, soon!
What are you issues?
@@jaisarmiento1188 At 8 months after Covid, I still have troubles with fatigue, chest tighteness and, sometimes, digestive issues.
Excellent content! Thank you for all you are doing!
Well done, Sir. Thank you.
Walk tall, as is said in Jamaica👍
Thanks Rosalind :)
This guy deserve noble prize, what a useful information
Haha, thank you Santosh!
I agree! I was close to giving up until I found this channel. His research & information have given me hope.
Thank you!
Thank you!
Thank you!
I have a chronic mast cell activation syndrome from the first dose of AZ "vaccine" which I lined up for seven weeks ago.
Brain fog, fatigue, lightheadedness, headache, eye pain, swelling and itchiness, nausea, neck stiffness and pain, and tingling in my face, tingling in my arms to fingers.
Wow. This was really helpful.I have been eating some things I thought were really good for me, but are not. And, no tea for now. Your podcasts have been more helpful than many others..or even my doctor. Thank you!
It’s a pleasure.
In some ways, this is good news in that it may provide a way forward, but I have to say, my heart sank when that list of supplements/over the counter meds came up. The problem is, many, if not most, people with a chronic illness end up on low incomes. All those supplements & antihistamines are therefore not an affordable option.
I am low income and I prioritize. Many of these supplements are cheap.
They should really be available on prescription.
Piping Rock are an online company in US who do the cheapest best quality for your money. I use to use other more expensive UK based companies until l discovered this . Look at their prices, cheaper than others.
@@alicequayle4625 most doctors would not be willing to prescribe them. Because insurance would make it more difficult to get them in the first place.
Doctors would only prescribe them if you have tested you need them. And there you probably will fail too. Because their tests are also ecpensive. So the doctor would not test you. Because again the insurance does not want to pay it. The medical system together with insurance companies and pharma and share holders and investesters are complicated issues. People do not understand this topics yet.
Brilliant analysis. Finally a coherent post infection strategy.Thank you so much for sharing this
Pleasure Tristin!
There is no single perfect post infection strategy Humans are a not homogenous cluster so there are subgroups and outliars . Even if an approach works for most it may not work for a quarter to half of the population. Tailoring is required. Rules of thumb to not work on all ten digits as only two of them are thumbs
@@sleepsmartsmashstress740 You are your own laboratory. At birth no one came with an owner's manual. However, we do learn through the shared experiences with each other. In undertaking a healing journey, a great deal of therapeutic insight can be gained through the personal testimonies of others that have sorted out things that worked for them.I value greatly the efforts of others in bringing health to those around them.
Very interesting. Yet another excellently produced educative film on Long Covid, sighting MCAS as the probable major underlying culprit , with very accessible advice on how to manage it via diet and supplements. Hopefully, this advice will be a major breakthrough for many. Thank you so much for doing the research to elucidate this for Long Haulers but also for those of us that have EDS
Thank you Carol! :)
@@RUNDMC1 Keep taking the tablets! Cx
Thanks for this. Explains the symptoms I'm having before and after covid. Will try your recommendations and hopefully will improve.
I admired what you have done. Thank you and a warm hug if I may!
I have directed my physician to view your interview with Dr. Tina Peers. This video answered so many questions.
We have two 9 month long haulers in the family, this is incredibly helpful and high quality info, thank you so much!
That’s alright! Got some very good data on the efficacy of the treatment too to show in my next film
How are they now Clare?
I absolutely relate to the 'getting of histamine high foods' . When Long Covid hit me hard for three months from early January 2022 - it was straight after a slightly binge based Christmas period - of increased dairy, meats and alcohol
Really appreciate your personal drive & commitment to supporting long Covid recovery. Living with this bizarre menu for 8 months now. Rest & pace aid basic functions. Does anyone know of a blood test - private or otherwise - to support the mast theory. Great work & admire you dealing with fatigue but delivering your much needed videos.
I think Tina Peers might mention someone that does tests on her website.
The symptoms you explain are so similar to the ones I have had for the last 10 years after recovering from alcohol induced pancreatitis,it's unreal.The fatigue,itching,brain fog,stomach,rapid pulse,.....I was diagnosed with Fibromyalgia but have always thought it much more to it than that.Thank you so much for this video.
Dr. Frid in NY claims that fibromyalgia is actually a symptom of something larger. I believe her. I have it, and I didn’t get it until I got breast implants, which are so toxic inside the body, I got sicker and sicker with autoimmune diseases, mold toxicity (saline), and infections. I lost so much, I’ll never recover my family, friends, relationships, money, etc. 🥲
Hi, hope you're well now. Alcohol really depletes B1 thiamine - which causes fibro symptoms. If you still need help check out Elliot overton on RUclips he talks all about high doses of B1 also Dr Eric Berg has a few good videos on it. Wish you well
Wonderful information, thank you!
Great questions, so good to be starting to hear some answers from practioners who have actually been trying to find treatments. We know they are out there and having successes... we need to hear their results and their voices!
Love all your videos! Top go-to channel for fresh thinking during all these days.
Thank you! Hope you’re doing ok :)
Sooooooo informative. I love this channel. Thank you for sharing! 😊🙏🏼
Thanks Anna!
I'm an MCAS/Ehlers-Danlos patient. My MCAS is FORTUNATELY well managed now, but it took a long time and lots of suffering to get the treatment right. Thank you to my great immunologist, biweekly Dupixent injections, quercetin, vitamins C&D, H1 & H2 blockers, famotidine, and taking precautions before eating/drinking that might trigger my mast cells.
Maybe it was coincidental, but I started to feel consistently better after starting to eat more fresh fruit on a daily basis; I had been unwell with long Covid symptoms for 4 months up until that point.
All in all it took me six months to get my fitness levels back up to where I was prior to being unwell, that is, from the end of March to the end of September this year.
I wish all long Covid sufferers an eventual recovery and soon !!!! Peace.
I am happy for you. Seriously. I had a timeline for building my health back. But, it is not working. I have tried several paths. Right now, it seems, I have to focus on my physical activity level or my cognitive activity level. I am going with the cognitive level for now. However, over winter break I am going to experiment more with my physical activity level.
@@petinapowers2869 I roadwalk every day up to 10 miles a day and this I could not do anywhere near a few months ago when I was unwell; even mild exertion would set me back almost a week every time.
So, with regards to physical activity I say take it easy and don't push yourself too hard. Good luck.
It's good to hear, that you are better. For me, It was almost 8 months to get back to running (5km, daily). But the "brain fog" is not lifted. I still feel if I'm away from my life. I just wonder, will it go away?
@@tonymack66 It is a lovely day in north Texas. I just finished a short walk. One block. That is all I can manage. Thank you for giving me hope.
@@lacisz Lacisz. I am the opposite. My brain fog is less frequent. I can mentally multi-task at times. I am still disorganized though. That is not normal for me. My physical activity is the primary issue. So, perhaps one area recovers first, and the other later? Also, congratulations on your physical recovery!
You are so great. Thank you. You are changing lives.
Very kind. Thank you 😊
Wow, cheers to Dr Tina Peers, she really knows what she's talking about and thank you for having her on your show/ channel!!
I’m very happy to see this video! As soon as I heard about long haul Covid symptoms I immediately thought of MCAS! Thank you for sharing! 🙏
Thank you Tammy!
This video may well have changed my life. As soon as I saw it my partner and I started to follow the advice. We are both long-haulers (since March/April) and both have mild asthma, bad allergies, and he has rheumatoid arthritis. He developed covid toes/fingers which were diagnosed by our doctor as eczema and successfully treated with a topical cream.
We are changing our diet and buying the supplements. I can't begin to tell you now important this video was for us. I think even if it's not a perfect cure, it will improve our health. Of all the media sources on L-H Covid, you are the single one who's helped us. Please keep posting - I look for a new video from you every day.
Hi Dede, gosh I’m so pleased to hear it’s helped but do wait on improvement in symptoms before you offer me any credit! And if you subscribe you don’t have to look every day 😊
Best of luck with your recovery.
This is so helpful. It mirrors all my post covid problems, as a allergic ridden person in bloom.
Allergies plague me too, which seems to contribute to Long Covid symptoms.
Very helpful this. I've had longcovid for nearly 10 months, and will be applying some of the suggestions here.
Niacin (nicotinic acid) and low histamine diet shown to be the most effective by the subsequent study I did
Thank you...very interesting and great that diet and rinks are primary considerations
Hallelujah for this interview!!!!!!!! Finally someone that is saying what I have been thinking all a long with my 5 years of ME/CFS Dr Peers you are a godsend
I've had literally every symptom on this list. Some have gone away, some have went and come back. So shortness of breath and fatigue, gastric issues have been the ones that are lingering the last 2 years. I'm taking PPIS for GERD (Post Covid) and antihistamine. I'm also trying a low histamine diet. Sick of it. Agony. Also I'm 35 and was very fit before covid.
Know how you feel Andy!
Yep same Andy! I was healthy before except for some anxiety issues. Fatigue is brutal. Heavy eyes, muscle issues. It’s awful. Praying for healing for u
Thank you for sharing. Very useful information.
Thank you for this ibfo!! Altho, if your MCAS has salicylate triggers, watch the quercetin. And im so grateful for this information. I've been watching long covid triggering mast cell issues and since covid, I'm now ragingly reactive to salicylates. And my quercetin was giving me raging nerve pain. You are an ANGEL!!!
I’m glad you’re getting on top of it Amy!
I´m salicylate sensitive, plus I´m diagnosed with histamine intolerance by my allergy doctor. I have had covid for 8 months now and my main symptom right now is vertigo. I walk like a penguin. When my covid started, I had a huge histamine release with itchy rash on the inside of my arms and on my back. Recently, I bought the enzyme DAO, diamine oxidase (made of kidneys from pigs), and I noticed an improvement after only one day! After five days the itchy rash was gone! Then I tested what happened without DAO and the itchy rash came back. And then I started to take three pills DAO per day again and the itchy rash disappeared again. Now I´m trying to find cheaper replacements for DAO.
Thank you so much Tina and RUNDMC. I've been experiencing long covid symptoms for around 7 months and this series as well as this video in particular has given me a lot of hope.
Did you follow their suggestions? How are you feeling?
How are you doing Omar?
Yes, how are you doing? :)
hello?
This totally makes sense. I have long covid and was diagnosed with MCAS about a year after I got covid. Also have had autoimmune diseases and allergies for years although my immunologist says my immune system is very peculiar and based on biopsy results and so on my autoimmune dieases are not tied to my MCAS - he says it is almost like I have two different immune systems.
Did you try the low histamine diet? Did it help?
I was suffering from long Covid. Going on a low histamine diet with vitamin D, C and Zinc supplements worked wonders for me. I felt better every single day until after a week all my symptoms were completely gone. Thank you!
What were your symptoms
@@samanthar5123 chest pain, numbness in my left arm, tightness in my shoulder, nausea, diarrhea, and just generally feeling like hot garbage every day
Did you eat any meat?
@@andrewjones3826 my primary meal every day has consisted of eggs and broccoli cooked in olive oil with an orange on the side. I’ve started eating some chicken breast and apples as well. I’ve been experimenting with other foods to mixed results. Peanut butter and tomato soup are off limits, but pizza surprisingly seemed okay.
Alcohol is off limits. One of my worst nights during long covid was when I got home after drinking five beers. At the time I had no idea why I felt so horrible.
Before I went on a strict antihistamine diet I was eating a banana every morning along with tomatoes, avocados, spinach, whole wheat, and sliced chicken breast unaware that they were high in histamine or that histamine could affect my body the way it did.
Something else to note is that I had an allergic reaction to the J&J vaccine as well. The side effects were very similar to what I experienced from long covid and lasted about five months.
@@ryancparker glad for you. I'm only 4 weeks in but I know I'm not shifting it.
Been on low Hist diet for 3 days and the vit stack. Feeling better I think but still have moment I feel like death for an hour.
I too was pounding down the spinach and avos, plus bread.
Hopefully in time I'll feel normal
Thank you for all of your work and for your posting.
Thank you so much for posting this!!! I’ve had debilitating long hauler covid for almost six months! The brain fog is INSANE!!
I'm sorry, man. I know that has to be tough.
Yeah it’s completely paralyzing
What’s up Evan - So I just recently nearly passed from Covid Delta 2 SARS 2, or whatever they want to call it.
Anyways, I am now in recovery phase, but some things I’m dealing with are Confusion, Irritability, Anger, getting worked up easily and my hands / head / body will start sort of shaking, maybe like nervousness, etc.
How long did the fog last?
I call it Covid Confusion / Feeling Lethargic..
I’ve never been sick before, so this has all been a culture shock for me..
Thanks, Brother
@@LordVeroeven how are you now ?? Did you recover fully and get your normal life back ?
Did you feel any improvement ?
Literally have nearly all these symptoms. GP is absolutely adamant theres nothing wrong!
My doctor is less than helpful. Decided I had sleep apnea though I have no symptoms for that. I had COVID before the recognition and so, no positive test months later. Testing was rare for some time anyway. Without a positive test, but most of the symptoms, I am treated like a hypochondriac. That attitude certainly doesn’t help my determination to recover.
@@jzinser-mandala9117 I've had blood tests, ecgs and chest xrays, all have come back absolutely clear yet I'm still getting bad headaches, keep going light headed, stomach ache , ribs ache and chest aches and get short or breath easily, along with being constantly tired. GP says theres too many symptoms to diagnose me with anything!
Jon Davies Seems like the doctors are leaving the battlefield on walkover. I guess some other professions will have to take up the slack. A lot of money in this if one would have a protocol for recovery.
I went undiagnosed until my late forties. There are some wonderful supportive groups on Facebook and www.TMS.org (the mastocytosis society) is a wealth of information and lists of doctors who work with us mast cell patients. This is how I finally got help that put me into remission. I still have flares and need to take extra care but I’ve been able to have a mostly normal life.
@@jondavies1593 I too have had rib aches/ chest aches along with shortness of breath etc. My pulminologist diagnosed the rib and sternum pain as costochondritus. It can be triggered by respiratory viruses or harsh coughing. If you look it up on you tube there are stretches that if done consistently should help along with anti- inflammatory supplements like turmeric.
God Bless you Gez ! thank you so much for this.
The info provided here makes so much sense... Extremely Helpful Video! Thanks very much! I assume you're still experiencing symptoms of Long Haul Covid? For me its been around 8 months now...
Looking at the low histamine diet…that's already what I'd been doing for the most part, though I do like my legumes. This could explain why I feel better when I'm taking antihistamines regardless of whether I have active "allergy" symptoms or not.
i have been researching my nightmare symptoms for 8 months now... and in 5 minutes this video has nailed it... thank you so much!
how is your progress now?
I know for a fact I have long COVID. I've had repeated wet dreams and nightmares every night. I've never had it before in my life. Covid really did me dirty.
How you doing now?
Thank you and keep up the good work 👍🏻
Good interview and really useful to hear this - thanks
Pleasure tedster!
Thanks brilliant work as always ☺️
Thanks Nay!
Excellent content, as always. So soooo helpful. Thank you so much for putting this together for us. Very grateful :)
It’s a pleasure Kekil!
Just found your channel, thank you for giving me hope.
I changed to a mostly carnivore diet out of desperation when I thought this must be auto immune related and people had success. I felt much better. The problem is anytime I have a small amount of carbs, almost all the symptoms come back within a day.
I keep thinking about how I really hope I don't need to eat this way forever. The bit on cycling MCs in 6 months gives me hope that I can overcome this and slowly bring other foods back in.
Keep up the content, you're doing an amazing job!
Thanks Patrick. Best of luck with your recovery.
I've eaten nothing but meat for he last 2 1/2 years. It cured my gout and my cholesterol is perfect. I still caught COVID and am slowly getting better if I take it slow - no crazy exertion. As far as carnivore goes, it can be sustained indefinitely, in most people who try it. YMMV. Carbs mess me up too if I test them in larger than about 5o mg/day test dose
Hi Gez, Thanks for your all videos and effort. It's been extremely helpful, a quick question tho, how much Niacin are you taking daily?
100mg
Thanks to your info and the long covid FB group, where I learned about it, I managed to move from lying flat on my back for whole day to functioning almost normaly within months. I am able to do long walks again :-). Another thing that worked for me was fasting. I used to fast 2 days a week before Covid and as soon as I switched to low histamine diet and started to feel better, my body kinda required it again. What I find interesting is that in the days when I fast, I can push myself physicaly without negative effects the next day. This is how I was building my stamina: normal days taking things very easy, fasting days exercising more (within limits, after spending 2,5 months in bed, even a brisk walk is an exercise). Perhaps this may help with your running.. BIG THANKS for your tremendous work!
So glad to hear you’re recovering! Fasting does seem to work for a lot of people
Had mild covid in January then in February I got pots symptoms and shortness of breath . And couldn't exercise . I would get short of breath and weird anxiety after trying to exercise even lightly. Fast foward to this may and I decided to take benadryl cause I got shortness of breath after eating food. Took it cause I heard it was good for anxiety and it helped me breathe ALOT better . She's definitely spot on. This is a mast cell issue
How are you doing today, Miguel?
THANK YOU GEZ!!!!! I watch all your awesome videos often,to remind me of the great information.
I have been struggling with Post Covid syndrome since 2020 and have been forced to take medical retirement from my 27year profession👮🏻🚓.
Worker's Compensation laws in California 🇺🇲 make it very difficult to obtain specialty medical care.
I’m so sorry to hear this Luis - I really do wish you the best in your recovery.
Thank you! Great interview!
Thank you Sita!
Interesting!! Great tips, too! Chilis and red onions allegedly help stabilize mast cells. (Interestingly, they are loaded with quercetin). Regarding the low histamine diet, I think the low-histamine plant diet rocks. A problem with meat, fish, eggs, and dairy is that they allegedly increase TMAO via the gut flora. TMAO reportedly increases inflammation, which calls to question the validity of the low-histamine cookbooks that promote animals products. (If you got bit by a lone star tick, meat can potentially give you anaphylactic shock !) If you have Type 2 diabetes or are prone to Type 1 diabetes, better follow PCRM guidelines! Despite all this, I do take the listed supplements (D3, zinc, etc.) and drink mineralized water (not sparkling) to keep kidney pH up. (COVID flourishes rapidly at pH 6...).
Would've been easier to follow this without all of the abbreviations.
Finally, there is a light at the end of the tunnel! Been sick with covid since March 2020 and I showed this to my doctor!
Best of luck with your recovery!
Yes, I had it as well since March, I get extreme fatigue, bit the main issue is I can't catch my breath, I feel chest crushing tightness as if I ran a marathon and I just got moving!!
@@myopinonz how are you how is your breathing do you feel breathless when you walk around or when you even sitting down
Sputster how are you feeling now I am also suffering from nearly four months
@@manindermanku8667 I used to do cardio twice a week and weights three times a week. Today I feel far from how I used to be. I have days where I can run with no issues and other days where I can't even go up the stairs without being out of breath. I have started the intake of antihistamines to confirm what they say in the video. It might not work for everyone, but I am no doctor.
I've had long covid for 2 1/2 years, with all the usual symptoms. Breathing and heart palpitations are the worst symptoms, but I also had severe fatigue until I discovered the amino acid, glycine. I take a spoonful three times a day in warm water. It has been the only thing that has helped me. I still am out of breath and I take metoprolol for my heart, but my energy is much better.
Thank you so much for making these videos
Thanks Phillip!
Thank you for this!
Would love some info on mitochondrial dysfunction and the extent this affects long haulers. The extent to which normal activities need rest to be able to get up again for normal around the home activities 9 months later, makes me thing there’s something wrong with how our body stores energy and I would love to know more about such theories and what we can do to help ourselves if that is one of the issues here. Thank you for all your research and time you put into all of this!!
Thank you for your serious research. We really need this. Ive had ibs for years and now LongCovid.
Do you know if there is more research being done on LongCovid in relation to MCAS?
Not directly as far as I know, but some of the jigsaw pieces might start to line up
@@RUNDMC1 have you seen this? lab tests show antihistamines effective against virus. seems newish report. also some statistical analysis - that people on antihistamines had less severed CV. The annoying thing is they had indications in MARCH that antihistamines could be effective but didn't seem to tell anyone? Or if they did it didn't get spread properly.
m.ufhealth.org/news/2020/existing-antihistamine-drugs-show-effectiveness-against-covid-19-virus-cell-testing?fbclid=IwAR1Zz2EsDgqhxMvflvjgz6zG_jfPjG7Yl3Kvl3Mj7WHA5WIUjnpZRZnGSSU
Thank you for all you are doing kind Sir!! VG :-)
Thanks Vaughn!
This makes so much sense! 🙏
Thanks Annie!
I am eds, mcas and pots I can't thank you enough for this. This is the best ever and I learned somethings as well
Thanks Amanda, I really hope it makes a difference for you!
@@RUNDMC1 thank you me too
The trifecta! I too have the trifecta and am here for this man's work. Both SO and I got Covid-19 and it's been fascinating to see the way it's been affecting us differently.
He's experiencing dysautonomia for the first time, and mine is WILDLY out of control, as is my mast cell. I often wake up with parts of my face swollen, which is shocking to see in the mirror.
SO notices the chest tightness right before he leaves for work (he was bedridden for 3 months, and it's 6 months he's upright since then. He can work, but that's all the energy he has, and back to bed until work again). I suspect his chest pain right before work is due to the stress of trying to get ready for work, rushing to try not to be late, etc, and the stress of it causes a mast cell reaction.
@@josephinethornton3823 if you're mast cells are going out of whack you might not be on the right protocol and if you're not on a protocol you must be you have to find the right doctor to get you on the right protocol everybody is different so different protocols for different people it's all about trial and error in the beginning . If you don't have a Mast Cell Doctor please get one and the pots need to be taken care of by a cardiologist first and then a neurologist afterward if everything is okay with cardiology.
Thanks so much! I have exactly the problem,that was described. I feel awful the next day(or days) after even minimal exercise. When I tell about that to doctors,they look at me like I'm crazy and tell me,that I'm making things up.
You need some better doctors! Post exertional malaise is one of the primary symptoms of long covid. Unfortunately you have to manage your activity levels below the point which triggers it. This might be a very low bar.
Very much informative and useful for public health. Please continue your work to boost all in a better way of medical education to public
Thanks Shamita!
Thank you for doing this
WOW. I am the person with the MCAS before the COVID. I got COVID in March, was super sick, got a bit better, then worse again. Repeat x 2. Started finally feeling better, until 2-3 weeks ago, started low grade fever with worsening of cough. Cannot express how fatigued I am. I have Fibro, MCAS, Eh-Los Danlos, Hashimoto's etc... Yeah, having the MCAS helped, because I was already on meds. Harder, because all my symptoms were to the Nth degree. I identified with everything she said- totally hit the spot. Would like to add Mangosteen power is a Mast cell stabilizer, and so is marijuana. I use both daily. I am getting better, just the 2 step forward, 1 back is, well, adding to fatigue. It will get better. Slow and sure. Just wanted to let you know I hear you- and I needed to hear you.
thank you all- JAFO
Great to hear that JAFO :)
Thank you for your post, including the marijuana bit. I have access to it, but didn’t know if it would help. I’m willing to try, along with the other protocols. I’ve been to the point of giving up, but this channel has given me hope.
So that explains why Famotine -taking covid patients had better out come than PPI-taking covid patients who developed severe covid:. The mass cells were somewhat inhibited producing histamine by Famotines' competition for H2 receptor sites.
I still have prescription,Should we start taking famotine?
I take it (I've had long Covid since March). It does nothing whatsoever. I'm going to stop, it's not worth the money. Tbh, a lot of the MCAS symptoms don't sound familiar at all. Oh, I take cetirizine as well, was already taking it before I got ill. It helps a bit with the rashes but that's it.
excellent, dawgy!
Great information. Thank you. All of this information will help us get back to normal life again. Thank you.
Pleasure. Best of luck with your recovery.
@@RUNDMC1 I am doing much better now. Thank you.