Can this simple treatment transform patients with POTS and Long COVID?
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- Опубликовано: 6 авг 2022
- POTS stands for postural orthostatic tachycardia syndrome. In this condition, patients complain when they stand up for a prolonged period of time, they feel very uncomfortable with dizziness, palpitations and tremulousness and therefore they either have to sit or lie down or they risk collapsing. When you examine them, the heart rate can be found to be excessively fast.
How do patients develop POTS?
Increasingly we are seeing that they often inherit a genetic vulnerability such as Ehler’s Danlos syndrome/joint hypermobility syndrome and then at some point in their lives they get hit by some kind of infection, this vulnerability is unmasked and the patient starts noticing these symptoms. In essence, people are born with a genie in their lamp and then an infection comes along and the genie is unleashed and they then can't get the genie back in the lamp. The most common infection that I have come across as a trigger for dysautonomias is Glandular fever, However there are other infections that can also trigger dysautonomias including coronaviruses and it is therefore not at all surprising that so many people have developed this condition called LongCOVID which has almost identical symptoms to a dysautonomia like POTS and I would argue that perhaps POTS and Long COVID are indeed the same condition.
Are POTS AND LongCOVID the same condition?
Why do I say this?
Only 10% of patients with COVID develop Long COVID - why? If it were just something about the virus then surely everyone who got COVID would be expected to get long COVID. There must be something about that 10% which makes them more vulnerable.
The severity of COVID does not have a bearing on whether you get Long COVID or not. Well if it was just about the virus then logic would dictate that the more severe the illness, the greater the chance of having Long COVID. We do not see this. Again makes you think that the virus simply flicks the switch in those people who possess that switch.
When you talk to many Long COVID sufferers, they will admit to having some dysautonomic symptoms albeit mildly even before they caught COVID. Many times they had just assumed that those symptoms were normal for them but when they get hit by the infection then they find that all those symptoms which were very mild get so much worse.
So it is highly likely that a majority of patients with Long COVID have POTS and the problem is that because the definition of the term POTS is so narrow, patients with Long COVID will be managed as they have a completely separate condition rather than being managed as a post viral dysautonomia, the way POTS is managed. There are too many doctors who are interested in treating conditions rather than treating patients. This means that many patients with LongCOVID may miss out on lots of helpful treatments which we use in POTS, and just be asked to pace whilst we wait for some fancy American pharmaceutical company to produce a mega-expensive and potentially harmful new drug specifically for Long COVID. I have hundreds of patients with Long COVID and I can categorically say that many of them feel better when they are managed in the same way as I manage my POTS patients.
In terms of optimal management for POTS patients, i use 4 approaches:
Lifestyle management
Physiotherapy
Medications
Patient advocacy where the doctor who is interested in the patient helps the patient maintain their identity by advocating for them to access modifications at school and work.
You will find a lot more details about these 4 pillars of treatment on other videos on my channel. To be honest, these measures make a difference but they dont transform patients. I usually see like a 40-50% improvement but patients still remain enfeebled.
Today I wanted to talk about an intervention that in my experience can be transformative for some patients and in my -opinion should be offered more widely than it is.
Today I am going to talk to you about the benefit of regular intravenous saline infusions in POTS and potentially even in many patients with Long COVID.
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The best thing he said is that he LISTENS to his patients. It’s so important.
Exactly! Most of them do not and are closed minded.
If all doctors were like this one the medical world would be amazing. You can tell that he really cares about his patients.
Exactly what I was thinking! ❤
🎉😊❤
I agree. He is awesome.
he is awesome!
He is correct in his analysis. I went to the ER with a 160bpm resting heart rate only to be told "it's just anxiety", "it's in your head" nonsense even though I was not in a panic mode or anxious mode at all due to the fact that I had been used to this abnormally high random pulse rate since April 2021 after catching cov!d the first time. But as soon as they gave me a saline sodium IV "just cause" (they do this for any and every patient), I started to notice the heart rate coming down to the 80s an hour later. Magic ? Nope!.
You are amazing. I suffer from POTS. I’ve asked my doctors for weekly infusions and they said no. I found a private clinic and I’m getting a liter a week and I live for the following three days. I say this with tears in my eyes. You just validated what I’ve experienced. Thank you.
I'm so happy it's helping you. How do I find a place to do this, where do I look & what do I call it? Is it expensive? I'm desperate as I struggle to just get up most days. Thanks
I suspect my daughter has Pots, is the blood transfusion important because it's oxygenated blood? Sorry for it being a dumb question,that's the only thing that comes to mind. Thankyou anyway 🙂
@@ErenGracynMarshall-jr5mmit's not a blood transfusion, it's a infusion of saline which is a saltwater liquid that's given in an IV usually in a hospital or a doctor's office.
@@ErenGracynMarshall-jr5mm It's not a blood transfusion. People with POTS usually have trouble keeping blood volume up at a normal level. We also have trouble balancing electrolytes. Some POTS people do well with just normal saline by IV while others do better with a vitamin / mineral bag by IV. It's always good to have your vitamin levels checked first just to make sure you don't overdo it with some vitamins like B6, which can cause neuropathy in toxic doses.
@@roseo322 thankyou for replying I wasn't sure exactly what was being described, my mistake sorry. I am aware about issues to do with POTS for my eldest daughter who shows symptoms regarding it. Thanks again 🙂
The second educated doctor I've come across in one week. Such a relief to see doctors actually thinking outside of the normal restrictions
I would love to know the other doctors name. I’ve done the same thing and wonder if it’s the same two docs?
please say 1st one
Hi Linda! People here are wondering/asking who the other doctor is please...? ❤
This treatment sounds like Gatorade without the sugar.
What a breath of fresh air this man demonstrates. He is willing to look outside the medical and phamaceutical boxes. His diagnosis may be wrong but he is searching and learning. Thank you Sanjay
What makes you think he’s wrong?
@@lisamccullough5150 Please read what I wrote and note that I used the word may. If you listened carefully to what Sanjay said he accepted that his diagnosis might be wrong. It is like real science should be. One acts on one's present knowledge until one discovers further evidence that might cause one's opinion to change. Sanjay is a true scienist.
Dr. Blair Grubb, the doctor referenced in the IV study in this video, is my POTS doctor. I'm very lucky to have him, as he is hailed as the best POTS doctor in the country. I was prescribed two liters of IV saline three days per week, and did that for 5 months. Sadly, there was no improvement. Further patient information has shown that IV therapy doesn't have the high success rate as the 2017 study showed. I'm not saying that to discourage patients from trying. I'm saying this to bond with other patients for whom the treatment failed. Additionally, Dr. Grubb and his team have found a link between those who have gone years with undiagnosed Celiac disease and dysautonomia. It seems that the damage from Celiac may somehow damage the vagus nerve, starting the onset of dysautonomia.
So many Drs ignoring vagus nerve issues 💔 only ones that seem to talk about it is holistic Drs
I cried through this whole video because I mourn my old life before doctors who simply will not truly listen. I've been suffering for nearly 15 years now and I still have yet to find a doctor like this. I've begged my Cardiologist for iv fluids and they told me, 'we need to make sure you're drinking enough fluids before we can do that.' I use Liquid IV in my water in an effort to keep myself hydrated, but I know it's not enough. I still feel like I'm dying.
Thank you for creating this video for people like me to take to my doctors. It means more than I can describe.
Plz fire your drs. They're extending your suffering for their profit
The world is full of sick people who desperately need more doctors with your mindset. My daughter has dysautonomia and long covid and has been so very unwell nearly for three years. Thank you for doing this video!
I believe more than 10% got POTS after covid .long haul since March/2021....POTS started 1 year in
Go find Mary Ruddick! She suffered with it for 12 years. 4 years bed bound. Now is healthier than ever and thriving. She's helped SO MANY people!
@@GazeboDweebPeople say Mary Ruddick promotes a fraud program that costs $ 6000.00, at least that's what googling her name showed me.
This Doctor is doing the public a huge favor with his knowledge. Thank you
Agreed!
What a breath of fresh air you are! I had nearly given up on Doctors, thinking I don’t believe any really care. You obviously do! God bless you and thank you.
I was diagnosed with Pots recently. I have had the symptoms of Pots for years and up until a few months ago I was able to live a “normal life” going to the gym, playing sports etc… but since my diagnosis my life has completely changed. I passed out one day(9/31/23) and was hospitalized for a full week and ever since I have to watch what I eat, sleep, work, exercise etc… I would love to know more of your treatment and channel since you are a genuine human being trying to help patients like me understand our condition, treat it, and provide somehow a solution to alleviate our symptoms and better our quality of life. Thank you for your channel and I look forward to seeing more of your videos 🙏🏻
Hi, Dr Gupta-I’m a POTS patient for 3 years with the symptoms you describe. I tried most of the protocols you discussed with minor temporary improvement. Just wanted you to know I had mesenchymal stem cells in Mexico in May and now feel much better, perhaps 85% better. At rest, I feel like my younger self and I can stand up without feeling dizzy and sick for much longer. I can now do some physical work like gardening and shopping that I could not do before, have a more independent life.
Thank you for this video! Is it possible to administer the saline subcutaneously? If it is, then I think many people could administer their own saline treatment. I would expect it to cost less than the intravenous (IV) route. One more thing, the person might be able to find the best dosage for their body. Thank you again!
You should take acidophilus. I take 2 Visbiome acidophilus daily, and never get sick.
Hi Lenna, I'm so glad to hear the stem cells worked for you! Where in Mexico did you go, and would you recommend it? All the best
Hi! Thank you for sharing your experience with post long covid. I have the same problem. Would you please let me know the place of your treatment in Mexico? Blessings 😊
Please let us know where you got treatment. I have heard good things about stem cells...
You have no idea how refreshing it is to hear from a real doctor. Where I live in the united states there are no real doctors. The so called professionals never have any answers and they refuse to treat any condition except hypertension. So called doctors in the united states don't even practice intervention let alone prevention. Thank you for having integrity to your occupation unlike the people with medical degrees in texas. I have alot of respect for you speaking the truth about the unethical practice of modern medicine (united states).
Joe Biden destroyed America
A Doctor who actually wants to make sick people well. The way doctors used to be. Most doctors today are not independent decision makers they are rather corporate employees doing what the boss tells them to do and the boss is ultimately the pharmaceutical industry. My husband died at the hands of such people who refused to do anything outside of their standard CDC protocol. God bless you.
It isn't possible to watch your videos Dr. Gupta without feeling so very blessed that we have you in this world. This horrible illness strips us of our dignity, identity, confidence and power. It can feel so very lonely. Your work and your oh-so-rare attitude makes me feel I have someone on my side at last and makes me want to keep fighting because you give me that most fantastic of gifts - hope.
Those patient accounts brought tears to my eyes. Out there are a few who have been given some of their dignity and power back. Someone's fight has been rewarded. I wish we could all have a mini version of you to carry round in our pockets at all times to remind us to never give up.
Omg, the loss of hope! My brother was such an a-hole to me the other week = you're a whinge, a liar and a hypochondriac... where's the diagnosis...???!
My partner was my part-time caregiver and he died suddenly, alone on my bed at the age of 30 a year and a half ago.
Talk about loneliness and isolation with this disorder! He was the only person/friend that I had.
My brother can go and jump in the lake. I wouldn't wish this on my worst enemy, but I would love my brother to have this for about a year - just to see what his life would look like (ie the things he could no longer do) and how many friends he would end up with. I reckon his wife would probably leave him too and his sons wouldn't look after him - then HE'D be left with nobody & he'd be in the sh#t like I am. Forgive me, but gosh I would love to see that and for him to see what this feels like. I've had this for nearly 10 years - along with MdDS too.
Dr Gupta is a LEGEND and I showed my doctor this video yesterday and he's agreed to get the nurse to give me some IV saline next week.
Fingers crossed 🤞
Sending you ALL healing vibes/prayers and hugs!!!
🙏💪💝🫂
Couldn’t agree more with all of this. Diagnosed with hEDS last week. Had glandular fever 30yrs ago, that’s when the Pots symptoms began. It took for me to be hospitalised this year before anyone would listen to me. Only when I was given 2 bags of IV fluids did I get better. The BP drops stopped. The racing heart and dizziness stopped. So I was discharged. 2 days later, the dizziness, weakness, stomach cramps and pre syncope returned. Doctors have been telling me “it’s anxiety “ for 30yrs. I’m still awaiting a tilt table test. I’ve collapsed 3 times since being discharged, waiting for my ‘urgent’ cardiology appointment. I wish more Doctors had even a fraction of the knowledge Dr Gupta has in these areas. Thank you so much 😢
Dr Gupta is awesome. A true example of a doctor that actually cares about patients and making them feel better.
God bless you! I had POTS for four weeks after viral pneumonia and it was the worst four weeks of my life. My doctors automatically said it was just anxiety and wanted to prescribe antidepressants ignoring that it was my symptoms and the fear that they would be permanent that was the main issue not the other way around. Thank God I found a cardiologist who said he saw this a lot after viral infections and that it goes away after a month or two. He was hesitant to put me on beta blockers as I was only 45. He said to increase fluids and salt and stay optimistic that it was temporary. I wish there were more doctors like you to takes POTS seriously. I pray for all sufferers!
@Vicky I was wondering if you might have some feedback for me as I developed pots post Covid. Over time (it’s been 7mo) my hr has improved but I still have dyspnea which can be quite severe at times. My bp seems to be fine except I really don’t know if it fluctuates when I’m standing.. did you have dyspnea when you had pots? I’m wondering if this is permanent- I hope it’s not!! I will see my cardiologist in a few weeks. Thank you !
I watched a long hauler go through multiple doctors that seemed fixated on prescribing dangerous psychiatric drugs because it was "in her head". Glad to hear you avoided the psych drugs and that you made it through!
Same. Every time anything is happening, my doctor’s office says that it is just anxiety. I am switching to another office now but the wait is 6 months.
Hi Vicky, did your symptoms go away
My doctor also said I just had anxiety and not to worry 😥 I refused taking those anxiety pills. I’m doing much better after eliminating certain foods and beverages. I also been taking supplements and IV fluids. Hope you are doing better.
This video made me cry! Dr Gupta you honestly are one of a kind.. I have recently been diagnosed with PoTS after being misdiagnosed for 6 very long years.. please keep doing what you are doing, advocating for your patients and speaking about doctors not deserving their title.. that is one of the truest things I’ve heard in a very long time!
As a dysautonomia sufferer (POTS) you have hit the nail on the head. When I had Lyme disease years ago that’s when I had POTS. When my Lyme disease got cured my POTS got much better. I just recovered from Covid and my old POTS (dysautonomia) symptoms are back with a bang. You’re right, it’s not just when I’m standing up. I always feel terrible. You’re also bang on about the heat and carb rich meals making things worse.
I too have chronic Lyme and also POTs diagnosed in 2011. However I've felt this way (but it got worse over the years) low tolerance for exercise, extreme fatigue, but wired, brain fog etc since I was diagnosed with Fibromyalgia in 1988 at age 21. Interesting on the hereditary factor bc my Mom was dxd Fibromyalgia after she got a bad flu right after she gave birth to me her 5th child. Out of her 6 kids it was me who developed FM and now she has POTS also dxd a few years ago. Both of us were also treated for Lyme disease for a year after she got an acute Lyme infection. It's just incredible how similar we all are. I've been suffering for so many years and would love to be able to try saline treatment to see if I feel better but now both myself and Mom (ironically) have Chronic Kidney Disease so wonder if they would go for it due to that. Anyways thx for your comment bc it got the wheels turning.
Oh! I also am type 2 diabetic dxd in 2010 and started keto & IF in late 2018. I do notice I feel worse when I eat sugar or carbs so yes I think it will help you to give it a try. I have to remind myself to do more water going forward, with a pinch of Real Salt!!
@@DMWB57 look up a study on fibromyalgia from about 20 years ago. For some reason it was buried even though it has very thorough data pointing in the direction of diabetes. Something about being more sensitive to sugars, so while your bloodwork is in normal range, your body doesn't like that range if that makes sense. It's one of the big issues with healthcare. It's aimed at the average instead of the individual and doctors are always chasing symptoms and medicating said symptoms versus figuring out the underlying cause. When not given an easy answer your given a diagnosis like fibromyalgia which just means they have no clue of the cause if wide spread pain.
ALOT of us got POTS after covid...long haul since March/2021
How did you heal the lyme
Excellent. Very few doctors are aware of POTS, EDS hypermobility, long covid, post-viral dysautonomia and the relationships between them.
Unfortunately :(
Your medical expertise mixed with humanity approach is the blueprint all medics should practice by. I admire that you won’t hesitate to stand by your opinions even if some of your peers are disbelieving. Historically, this is how advancements have been made.
Oh, if only from my lips to Gods ears, this Doctor is every heart patients dream doctor! God bless you Dr. Gupta! Continue the good work. I recently transferred my care from a cavalier cardiologist who could not be bothered to contact me with a treatment plan for new BP spikes. I have long COVID. It was a frightening experience. My new cardiologist is in tune with my needs as a cardiac patient, thank God! I would love to try the saline infusions, but alas I live in the United States where for the most part, medical care is in the toilet. I am 77 and remember when medical care was clinically and patient oriented. Sorry to say, now a days, you have to search for such a doctor and be your own patient advocate.
I hate the corrupt medical system in the US 🤬
Dr. Gupta this is just amazing! As a family with EDS/Chiari, plus a list list of accompanying maladies, we fall directly into your description. I have NEVER heard a doctor who so accurately describes what we go through! There are specialists in EDS here in the US but the costs of traveling to see them, negotiate the healthcare system and then, for me, the improbability I will be able to tolerate the pharmaceuticals they use is prohibitive. If you have been exceedingly fatigued all your life, it's highly unlikely you will be wealthy enough to afford treatments also here in the US. Locally, one rarely finds a doctor who knows what Ehlers-Danlos is, let alone treat it. Having an accurate diagnosis is not the help one would think if the physician is not familiar with it. Mine told me angrily, "That's too complicated. YOU'RE too complicated. " Folks say that one must advocate for oneself but when you are so very tired almost every day it's hard to be consistent with that. Without an attitude of some compassion for the patient, I am fond of saying, the doctor is really just a technician with a degree.
Thank you so much for being a true doctor and shedding this light. And for giving what it no doubt takes out of you personally to do that.
❤
I wish every doctor was as passionate as you are about improving quality of life for patients, no matter how cheap or innovative the treatment may be.
So key🗝Ethical Patient Care over Profits! 💰Thankyou, Doc.
I’ve never seen a doctor who truely understood/empathized with Disautonomia in the way you are in this video. You also explained something that I’ve always wondered. I was in the hospital overnight after what I now know was a really bad Disautonomia day and after being on a saline drip overnight I woke up feeling refreshed despite being woken up a few times in the night for vitals. I never understood why I couldn’t achieve as good an effect from just taking in fluids and electrolytes.
Omg ur literally thee first dr that have explained this thoroughly. I was recently diagnosed with this but I’ve been complaining for 6yrs about the symptoms of pots and was told it was my thyroid and dismissed. N then got worse after I caught covid twice and a mystery illness tht felt like covid & flu mix in January & April 2024. Then just recently 5/19/24 it hit me so hard that immediately upon standing I would drop. N the fatigue and stomach issues became unbearable. Thank you cuz they said more water and salt n thts not helping. I feel defeated 😞
Fantastic. Subscribed. I am an anesthesiologist and interventional pain specialist and I am also hungry to learn how to help these patients. Physiologically, everything you are saying makes perfect sense.
I’d love to collaborate with you and bring this more mainstream. Keep up the strong work!
I wish you were my doctor...😢
I have been sick for a long time with POTS symptoms and I'm continually told that my symptoms are just anxiety....
I'm so glad I found your channel!
I wish so badly you were my doctor! I had Covid Mar 2020 and have struggled so much since, with many of the symptoms you mentioned. I have tried many things to help myself, some of which have made a difference, mostly doctors in Canada just shrug when asked what can be done to help. I started with elevating my bed after I found one of your videos last year, it alone helped immensely with my shortness of breath and heart palpitations, I am still sleeping elevated and doubt I will stop. I have changed my diet, to mainly a liquid diet, high in greens and omega 3’s. I attempt to drink at least 3 litre of water a day, but find that it only helps so much. I have tried salt drinks and salt retaining meds with little success. I wish I could try your method of saline IV. I did do some Iron IV injection almost a year ago and found them to really help, maybe it increased my oxygen carry capacity which reduced my fatigue and helped with the orthostatic intolerance, don’t know really! I can attest that the symptoms are debilitating but the doctors here don’t seem to care much if my quality of life is awful, and my ability to work is nil. It can be very, very discouraging specially when I learn that a simple saline solution could change my life! Thank you for all you do! Without finding your videos last year I would be struggling much more that I am.
Do you have MVP(Mitral Valve Prolapse) ? My cardiologist told me that's what causes these symptoms, including "anxiety".
Dr. Gupta!!! I found one of your videos last year and in an act of desperation, I found a drip IV spa and even though it cost me so much more money than I had to spend, it was worth every penny! I went 1 x a week for 2 months and now go once every month or two and I can honestly say…. It has given me my life back!!!! Placebo or not. I am back to working full time, and while I still have some of the basic POTS symptoms I have not had a major exacerbation since last October!!!! ❤️❤️❤️ Thank you so much for your compassion, knowledge, and willingness to be present for your patients. You saved my quality of life!!!
USA here. From early childhood, my daughter suffered weird symptoms. After many years of misery and feeling crazy, we finally got a diagnosis of POTS and EDS. That was 2011. At that time, there were only a handful of doctors in the country who knew anything about POTS. Hearing you speak (our) truths about POTS and EDS makes me happy that a medically qualified SOMEONE is validating this journey and that today's POTSTERS will get better/faster help than we did. AT the same time it makes me mad and sad for the suffering my daughter has endured. I have a channel and have spoken of you on it...FYI. Press on and thank you. Angela
Vvaxxine damage ?!
@@janeteddddd I believe so also. Many autoimmune diseases can be triggered by a vax I believe. Just as a virus can cause post viral fatigue, ME/CFS, POTS or Long haul CV, MS or cancer in the case of EBV, makes sense that a vax can trigger autoimmunity also since they contain live and/or virus particles.
You are pot stirrers!
@@lauragott2122 covid reactivating my CEBV,and 1 year in got POTS...long hauler since March/2021
Oh stop being a pHARMa shill.. vaccines are dangerous
POTS is a heterogeneous disorder of the autonomic nervous system that can result from multiple etiologies. An increased prevalence of vitamin B12, vitamin D 25-OH and iron deficiencies has been observed in patients with POTS.May 21, 2017
Dysautonomia has been part of my hubby’s life for many years along with PTSD after 27 years of law enforcement. Now, we are one month post 4 stent insertions for 2 vessels blocked at 90% and 98%. The only day he has felt well was the day after an hour trip to ER for hypotension where he was given 3L of NSS IV and told to drink more water. He told me that the 24 hours after that infusion were the best he had felt in years. Me thinks we have a validation across the pond of this theory as well.
Has he ever had his sodium levels checked? If I don't eat ALOT of sea salt, I feel terrible. I think there is an adrenal connection. Best of Health to you and your family.
Thanks so much, Kiki! We have switched to almost entirely sea salt and have even found some recently that is iodized!
Redmond's salt is good.
I got denuge fever - then pots - been hell ! Thank you doctor salt helped me lots
His pots is tms. Please read dr John Sarno
Whatever is going on with me is pretty much what he’s talking about. This all came out of nowhere and it’s been a struggle to say the least. It started over a year ago and it has definitely been life changing. I wish doctors here in Canada would listen and take a few extra minutes to help their patients. I’m not one for taking medication because of the long term effects but doctors still keep giving me different ones with each visit.
I am a cardiorespiratory physiotherapist working in critical and acute care in Australia. These diagnosis and treatment strategies are logical and effective.
Thank you for your work.
Hi Rose - maybe you can help my daughter? She is suffering incredibly post Covid, she’s 14
@@ering4131 Hi Erin, I’m sorry to hear that. The post-COVID problems are many and varied, with perhaps the most common ones being fatigue and dry cough. All need symptomatic management which is best under doctor supervision.
Commonly post-Covid problems result in a reduction of normal activity and need for rest. As the doctor here explained so well, gently-graded exercise with a Physiotherapist can help with gradual reconditioning and fitness.
you are not in SA are you? Do you know anyone who can help me? I have had severe POTS now for almost half of my life and I feel so much better after saline IV but unfortunately I rarely get them. I only being given them in hospital after being ambulanced due to collapses where I couldn't stand again. Due to the POTS I have to rely on a lot of home help from NDIS and need a wheelchair when out. Without support worker, Im stuck at home. I would love to be able to find a way to get saline infusions regularly seeing they help me for 2 to 3 days. (GET does not work for me and meditations have had minimal affect)
@@ering4131 If you are in Melbourne.. Dr Donald Lewis''s old ME/CFS clinic if its still about (he's deceased now but he had trained others who were working at his clinic) used to offer some POTS patients saline IVs. That place is the only place in Australia that I know was using saline IVs regularly for POTS patients. (to see if your daughter has POTS or not, look up the "poor man's test" for POTS and you can test her at home if you cant find a dr to do this test in his clinic. I think it works just as well as tilt table testing to diagnose POTS. Just make sure you get a stable laying heart rate reading before doing the standing part of the test.
Makes so much sense.
One major symptom I had after covid was serious dryness of the eyes nose mouth. I suffered from that for 8 months, my eyes opened difficultly. Then I got RSV (virus) and that dryness went away spontaneously. I feel an obligation to share this bit of experience.
I feel more hopeful about staying in the medical field after listening to Dr. Gupta’s thoughts here. 😆
This couldn’t have come at a better time for me. My poor son, who is 20, just had a bad strep infection and his dysautonomia symptoms went into overdrive but we didn’t realize it was the dysautonomia at first, just attributed it to his underlying infection mainly.
Dr., you mentioned symptoms when lying down and that is so important to remember! POTS really isn’t a good name for this condition. Me and my children have EDS, which contributes to the dysautonomia syndrome. I wish I could move to the UK so I could have you as a Dr! We just do not have many here in this country who deal w/-understand this condition and consequently know how to treat it.
Thank you for all of your hard work and information Dr! ❤
I am a psychiatrist who has had an interest in dysautonomia, the spectrum of EDS and those given the descriptors POTS and chronic fatigue. This interest was first generated by a vulnerability in my own family. In Psychiatry we are the refuge of the destitute and I was able to reassure so many that the problem was not in their minds. One other very important intervention is a magnesium supplement which tend to stabilize twitchy neuromuscular junctions and produce less stretchy connective tissue.
Absolutely amazing video! A doctor who is so genuine and wants to help people have a better quality of life is priceless! POTS used to control my life and I slowly got better. I went from being bedridden to walking between 1-3 miles a day. If you are reading this and feel helpless know you are not alone and there is hope ❤
What helped you, please elaborate.
I am doomed 😭
Please tell us 😢😢
I started eating mostly organic food. I found an amazing naturopathic doctor who did bloodwork and found out I had extremely low Vitamin D and B12. I also take metoprolol that is prescribed by my regular doctor.
I was extremely weak and started doing exercises from on my couch. Leg lifts and simple exercises. I got stronger and stronger and I don’t think about it anymore. POTS does not rule my life anymore. I just got home from a beautiful hike in the rain with my two little boys and there is nothing more precious to me than to be able to go outside and smell the fresh air and enjoy the outdoors with my children. 💕
I am very happy for you having improvement in your POTS symptoms. How are you doing now? I hope you are well. Did you start the leg exercises on your couch before starting walking for exercise?
Thank you for sharing this information. I’ve been telling my doctor for almost 2 years that I think I have dysautonomia. He sent me to neurologist, chiropractors, rheumatologist, cardiologists trying to fix everything individually and nothing works Instead of just getting informed about Long Covid. I do feel tired & wired all the time and I feel like my body is a desert. Regardless of how much I drink it’s not enough, my lips are always chapped, my mouth is dry etc. I feel as if the life has been drained out of me. I’ve mentioned to my family going to a wellness clinic for iv infusions as I always feel dehydrated and figuring it must help. I’ve also developed multiple bulging discs out of the blue with no accident. Interestingly enough I read dehydration can cause bulging discs. I’ve also developed mixed sleep apnea. All these after getting COVID/long COVID. I wish my doctors had a clue.
It's so refreshing to see such an understanding doctor. Been dealing with long COVID for 3+ years now, most doctors have been worse than unhelpful. Thanks for an awesome video!
This is the first time I've seen a doctor who really understands POTS and what we have to deal with. Even though this is still not a 'cure' for POTS, just acting on the symptoms, it can still significantly improve our quality of life. I feel that with your approach you may one day actually contribute to the discovery of a cure for POTS.
I so appreciate Dr Gupta.
His ability to explain the complicated subjects to the common listener is awesome.
You are the best doctor I ever heard about. Very few doctors nowadays really care for their patients. Thank you so much for sharing.
Thank you for donating your time and coming online to help so many of us struggling. I have tried to explain this to 2 cardiologists and 3 pcps. I felt like I was losing my mind (beyond the already ever-present brain fog and fatigue!!). Bless you, Sir!!!!!
I have been telling my cardiologists for two years that I feel so much better after i.v. fluids. I even had reconstructive ankle surgery, and felt great for days because of the fluids. I had my yearly physical with my primary care physician last week and told her the same thing. Fortunately, she listened and ordered me 2 litters a week. Imagine my surprise when I came across Dr. Guptas video confirming what I suspected. Thank you Dr. Gupta, and thank you to my primary Dr. Spielberg.
How are you getting on? I desperately need answers 😔
@@fugginchit1 I'm getting one to two litters a week. It definitely helps.
@@jodystrange1270 that's great I hope your are getting your life back.
@@jodystrange1270 is it a prescription or do you have to pay? I looked around locally and it's sixty dollars for 1 liter! Smh
@fugginchit1 Prescription. It's definitely not a care, but it clears the brain fog. I average a few hundred steps a day, but after my infusion, I get 3000-4000 steps a day.
Bless you! I was diagnosed with POTS, mast cell syndrome and long covid and felt parked due to my condition(s). Your attitude to patients and getting to the heart of the matter is refreshing. I’ve subsequently turned to herbal remedies, tinctures, fresh royal jelly (seems to help due to ATP) and taken private microbiome tests to dig deeper to the heart of the matter… been treating hefty bacterial infection of eggerthella and ecoli/shigella, albeit doctors ignored my findings/private tests…. Tis helping reduce pots symptoms… keep up the great work.
I love bee products but have read somewhere that bees sometimes carry a lot of bacteria, viruses etc as a result of their moving around. Please extract teeth that had tooth canals as some of the bacteria etc also hide there. If you have a rife machine, please rife dental foci. May someone come with a cure is Jesus Name, Amen
I have chronic fatigue and I believe long Covid is the same illness - post viral syndrome. And yes, I have POTS. I have complete faith in your treatment. I get migraine and I often get a bag of saline to start treatment. There have been times the saline cured my migraine ! And I felt so much better afterwards. Thank you
I’ve had to rush to A&E following days of migraines & sickness and each and every time the saline infusion has 100% helped me, migraine gone! My daughter now has PoTS and daily pressure headache. I’m convinced a saline infusion will help her.
@@julesdavis1704 I hope so. I feel so sorry for a child in pain
Real doctor alert. 🚨
A rare phenomenon, indeed.
Finally a TRUE professional and hands down best Cardiologist in the world and they don't exist in the united states
Doctor Gupta, you saved my life. I chanced upon this video while researching about long COVID and dysautonomia and immediately increased my salt intake after I watched this, and I got healed essentially instantly after being bedridden for practically a whole year. I can't thank you enough. Thank you so much.
💜💜💜
🙌 Halleluyah!!
How much salt did you take
Infusions or just took more salt ?
I had hard core pots and would see stars. I took black seed oil and tumeric and methylene blue(for brain fog). Magnesium and vitamin D.
At my worst POTS felt like my life was draining right out of me.
Drinking more PH 9 water has helped me a lot.
How are you now?
@@user-hv8jw1fx7x I feel even better after upping my salt intake because I am drinking too much water maybe. Since then seeing stars have stopped. If I see them again just mean I need more salt in my diet at which I just buy some V8 juice.
So you „only“ did this and it got better?
@@loanadooty Yes I should add that POTS revolves around the pancreas inability or forgets to deal with salt.
Heal the pancreas and salt issues go away so your body knows how to deal with salt again.
So I am not 100% cured but most/majority of symptoms are no longer showing. So today I feel great compared to 1 year ago.
@@inachu thank you🙏🏻
The world would be a much better place if the people in the highest places in healthcare were like Dr. Gupta.
Thank you for doing this video. As a long Covid sufferer and menopausal woman I see so many similarities between POTS, Long Covid and Menopause. It’s definitely difficult to know which came first but I really found this heart warming to watch. 🙏
You are amazing thank you for all you do for POTS/ DYSAUTONOMIA patients like me wish all doctors took it as serious.
Ever since I was little, many decades ago, I have suffered from ill health. Many diagnoses, glandular fever, other serious illnesses. Then diagnosed with Orthostatic Intolerance, similar symptoms to POTS. Wow, what a simple procedure. If only Drs would listen to us as you do, life would be so much easier. That alone can make a world of difference instead of saying no, we can’t do that. Many years in bed, in pain and suffering could be turned into productive society members. Bless you.
Amazing insight into our community of ME/CFS and dysautonomia patients. I love the comment about too many doctors treating conditions instead of patients. Being dismissed by uncaring medical professionals adds to the nightmare of disability that comes with the disease process.
Thank you Dr. Gupta. Could you do a video sometime on neurally mediated hypotension as this is also a huge problem for patients who have it. Our heart rates do not go up on standing but our blood pressure plummets and we start to faint. We also have all the other typical dysautonomia problems. Thank you for these great videos. It is heartening to hear a doctor Who actually takes these conditions seriously.
Tks for that tip! I believe my husband has the problem you’re referring to as he has the lowest BP on standing I’ve encountered (outside of shock) and I’m a nurse. I’ll take that up with my husband’s specialist.
My adult son has been severely debilitated and mostly bedbound since October of 2020 and I have been his caregiver. We will be talking to his physician about these treatments. Thank you for sharing this with us. You are such a blessing to so many.
Very interesting hearing you talk about why one feels much worse after a big carbohydrate meal. It was so noticeable early on with my Long Covid it was the first big lifestyle change I made to eat smaller more frequent protein based meals. I think the Dysautanomia theory is gaining traction in the NHS, two and a half years on from my first bout of Covid I’ve been scheduled for a tilt table test and MRI scan. I wouldn’t say I’m archetypical POTS as the whole heart/pulse pressure/dizziness equation varies from week to week- sometimes classic and sometimes lesser- but that’s how the Long Covid goes overall, waxing and waning in cycles. Whatever, I’ve ended up, by a process of elimination of what works or doesn’t for me personally, with a lifestyle that resembles treatment for POTS. Take supine exercise in a compression suit- swimming in a wetsuit, drinking a gallon or more of water washed down with a couple of electrolytes a day, box breathing exercises and meditation, therapeutic rest stops- three sleeps a day, and Amitriptyline to help sleep at night. Do everything slowly and methodically to avoid the constant threat of being wired and tired.
I lost my daughter due to POTS, dysautonomia; and a neurologist who failed to treat her properly. After seeing him for over a year, she researched her symptoms tirelessly, and approached him with the possibility of POTS. After a delay of over 6 months, we were able to have a tilt table test done in Birmingham, it was diagnostic for POTS. He failed to treat her for it, and we didn’t understand enough about it to realize that what he was doing was wrong. Five years ago, I was out of town, and she drove down to Alabama from Nashville with a friend to get treatment for an unrelenting headache. He left a prescription for a fentanyl patch at the desk for her without seeing her, he hadn’t seen her for over 6 months. She filled it at the pharmacy down the street, recommended to her by his office, and put the patch on. Her friend drove her back to Nashville and she went to bed early, ‘because she was acting goofy and really tired’. She never woke up. I got a call from her friend early that morning, the EMTS were there,and she was non~responsive. She was gone, lost to us forever. A wedding, grandchildren, and a house full of joy during holidays would never happen for her, or for us. We have tried to stop him, but to quote someone we went to for help, ‘he was a big dog in a small town’. No one , it turn out, was willing to try and stop him. So here we are, daughter, sister, and aunt forever lost to us. I am so thankful that people who see this video will have information, and a doctor who cares enough to make a difference. God bless you all.
I am so sorry for your loss!
Sorry for your loss and thanks for sharing. Sharing is caring.
I'm so very sorry for the loss of your daughter
Im so sorry. .. I got scared for a second you said you lost her to POTS but really it was the lack of care she recieved from her DR. And the fentanyl that killed her. Gosh im so sorry
My God - my heart goes out to you and your family. ICam suffering with POTS for 3 years now and can sympathize with what she was going through . Life is so unfair.
Thank you so much for this information. This has been a very difficult journey. In 1979. I was a 27 year old Mother of three little boys, i managed a Health Club, kept a three family house running and had won a trip to SF. A few days after I arrived home, I became so ill. I was told I had Mono. I will not get into details, since, I think you know what one struggling with finding out what is wrong with a patient is like. So, first Mono, then EBV, the Chronic Fatigue, next CFIDS, the neruo cardigenic syncope. Then POTS and today as we know it is all under the heading of dysautonomia. I will be 69 in a few weeks. . I am 95 percent of the time, flat down. YOur video just gave me so much HOPE. Thank you.
Whenever I've had chronic infections the only thing that helped was adrenal glandulars. I needed the whole gland, ie not just the cortex, so All Adrenal by 'Natural Sources' was the best and the cheapest too. I would take one at night and one in the morning and everything that had broken down in my body would be turned around in 72 hrs and completely better in 2 weeks if I also fixed my diet, or a few months if not. There are other things like pregnenolone, DHEA, ubiquinol, etc, but they're not as good and can lead to imbalances.
Me too, 1979 EBV, 1984 total crash CFS. Now 71, still don't have my full life back and it's too late.
@@riteasrain Please don't give up. I understand. I feel the same way. I've had misdiagnosed POTS since I was a child.
1st a surgery caused symptoms to flair up at 29 as an adult, then a car accident, then in 2006 a respiratory infection landed me in dysautonomic crisis. I almost died. I recovered for the most part after 2 years. My neurologist still hadn't diagnosed me. He moved away. A botched spinal tap and spinal fluid leak caused my Dysautonomia to come back with a vengeance and also caused complex regional pain syndrome from the injury.
I was doing well on meds. Recently tizanidine has been changed to a different formula and I cannot sleep now or do physical activity. Alpha adrenergic agonists help me. I have a bad tremor also.
God Bless you ! I have never met a more genuine intellectual Doctor in my life ♥️
You are the best Dr. Gupta !
So basically most family doctors are intellectually smart, but humanly completely dumb. I concur. My husband has been struggling with CFS for 10 years, including POTS, and it has been a HUGE struggle to get any help from his doctor (yes, even switching and consulting with so-called specialists). I have personally become incredibly cynical about medical professionals.
WHY do doctors REFUSE TO HEAR and BELIEVE their patients?!! This is so incredibly frustrating. As if people just like pretending to be sick and have a terrible life. Right.
Your real concern for your own patients and search for answers is wonderful to see. How lucky they are to have you in their corner!
I was living in hell after 2 times of covid....everyday miserable. I watched yr videos. Started doing the things u said....changed my life. I now have a life thanks to yr advice 🙏.
Wow. I contracted covid last December. Didn’t think too much about it. Thought I was over it, never heard of long covid or anything else. After covid I started feeling fatigued, which I never had in my life, always lots of energy. Although I do suffer with depression, which makes it so much worse, but never fatigued. This video explains so much, exactly what I am experiencing. I will ask my doctor to possibly listen to this video. Maybe he knows about it. Thank you so much for being a caring doctor.
Did you have the vaccine? I also have POTS
Dr Gupta. Hats off to you. I've worked in the NHS and can completely relate to what you say about the doctors unfortunately. In my little quest to help these patients along with ME (chronic fatigue syndrome) and the similar illness which baffles main stream medicine, I came across HBOT and sauna therapy (+/- cold plunges) seem to have some benefit. And SIBO testing and treatment and chronic heavy metal toxicity (functional medicine approach) seem to be helping a lot of similar patients.
Keep up your great work.
Thank you
You got me when you spoke about American pharma companies.
Dr Gupta you wonderful man. I have been suffering with POTs alone for 17 years. It took 9 years to get a diagnosis and the consultant who saw me told me to consume 10 extra grams of salt a day and extra fluids but without any monitoring so I ended up with high blood pressure and tachycardia. He also told me he had way worse patients than me even though I could not work, was NFA and had lost my social life and hobbies. When i explained i struggled to exercise and could not do any exercise at all if i returned to work he told me he found it difficult to find the time as well - when for me it would leave me unable to communicate properly, recongise faces or perform basic self care.
Alone for another 8 years I have managed to self rehabiliate but i should not have had to endure such dreadful sickness alone and with such uncompassionate care from the NHS.
Thank you for your understanding of quality of life and how devastating this badly named illness actually is.
I have been struggling ever since I had COVID in 2020. You begin to feel crazy being the symptoms are not significant from the outside. Part of me just wondered if it was my hormones shifting being I was 40 but it seemed like it massively complicated my life. I’m not sure if it’s scarier to go from having freakishly low blood pressure, all of my life, to heart palpitations and noticeable rushed heart rates or these weird moments in the day wherein my mind doesn’t seem like it’s processing external information in an understandable way. Videos like this make me feel like there has to be a resolution to my issues. I have American healthcare (which means I have no healthcare) so there will not be a diagnosis by a professional anytime soon so this is the closest to a doctors office I can get! Thanks for the content.
@Michelle how are you doing now? I developed dysautonomia post Covid - fast hr, shortness of breath, indigestion. I’m wondering if this will improve??? It’s been 7mo. My hr is mostly improved but dyspnea persists…. I’m concerned this is permanent. Will se cardiologist in few weeks. Thanks
I'm dealing with these same horrible symptoms. Including what you said about not being able to take in too much information
I have had shortness of breath, muscle aches,sleeping issues, palpitations since March 2020 24/7 I was very sick in March 2020 and my doctor suspects Covid. 2.5 years later the palpitations are gone but the shortness of breath persists and sleeplessness is persistent as well.
@@Tracy71 I hope you get 100% relief. Have you tried a Magnesium supplement??
@@ladyvirgo9514 how are you feeling now that 2 months have past?
Most of the symptoms you describe here are what I've been experiencing for many years having been diagnosed with M.E. I've largely been left to just self-help treatments. Videos like this are very helpful, thank you
Interestingly, I was just doing research on CFS/ME as I have that and POTs. The evidence points towards hypercoagability of the blood making it hard for all systems to get correct energy or oxygen.
Saline would do the trick for CFS and POTs.
Im thinking low dose blood thinners too.
@@jjqchomes8443 yes, that is interesting
Thank for explaining the jargon verses the actual clinical condition. And POTs is incorrect and a disservice I mean people still think its just anxiety. Which is crazy.
Your video was very helpful. I had a case of COVID in the fall with a rebound a few week after. Since this time I have had brain fog, extreme fatigue, imbalance with gait, I feel very unsteady, light headed and just down with symptoms for such a long time.My PCP encouraged me to see a neurologist in case she was missing something. So I followed up with a neuropsychology exam . The psychiatrist and Dr; Averell totally disregarded my having COVID and the fact that I was functioning and very independent prior to being tested for COVID, which I did at home after my hospitalization.They have diagnosed me as pre Dementia .The meds they recommended was the one that requires infusion and arecept after studying the side effects do not want to go this direction. I don't see what the dr.'s see, I function independently I'm 78 and agree I may have some brain changes and only God knows what the future has, but I function as normal 78 yr. old and actually better than most of my peers. I would like to know if supplements would help. I felt the diagnoses was made without looking at the whole picture. If I dwelt on their conclusions I would have given up, but as I reflect on my life and the person I have grown into , I will let life take it coarse and rejoice in what God blesses me with each day.
Thank you Doc, going on three years next May with Long Covid..Short of breath, lung pain, left leg weakness and muscle weakness!! Thank you for listening! I wish you lots of love in life! ❤
Have you had X-rays or mri?
How r u now.. Me too have same symptoms..
Thank you. I have POTS and other conditions. I’m almost Bedbound because I can do more if I’m lying down.
When I had saline solution during my cancer treatment it made me pee a lot (but I was drinking enormous amounts of water due to having radiation treatment on my abdomen). Im surprised your patients did not need to pee a lot with the saline solution.
Thanks for realising the problems for bedbound, exhausted people when they need to pee a lot.
It sounds wonderful. Imagine, even if it was just one day a week, being able to be “normal”! Being able to attend a wedding…..
I truly understand!
A highly commendable approach to medicine as the original “Hippocratic Oath” intended.
In analysis, medical practice based on PHYSIOLOGY as the first point and basis of diagnosis. Not simply matching supposed common general symptoms with Big Pharma's financial interest or highly profitable lab tests which a doctor in the 40s to 80's had little access to is a breath of fresh air.
The mention of highly effective “intravenous saline infusion” in certain cases was very telling; rarely practiced nowadays unless you are dying in an emergency ward; and we know why.
As a long covid victim struggling with vagus nerve inflammatory damage, and all the organ metabolic dysfunction symptoms that go with it, I wish this were my physician.
I will definitely come back here as I am sure to find some valuable knowledge towards self-treatment as the only alternative left in addition to what I am already doing on my own.
I LOVE you!!! Wish more doctors thought like you. It’s infuriating that any good medical intervention that doesn’t include big Pharma dollars to be made is always unfounded or dismissed 🤬🤬🤬
You are amazing! I’ve been a exercise physiologist in the field for 30 years and very few physicians think like you do with such understanding outside the box, more holistic tx’s-treatment approaches.
Your wisdom is beyond your years and your compassion is endearing.
I can tell you most of the patients I’ve seen in the last 2 to 3 years who have received the jab, present with many cardiovascular imbalances, including pots.
It’s more than unfortunate, as I have patients weekly in physiotherapy report these type of symptoms after since there jabs and many have died.
But thank you again for your knowledge and informing people of other improving QOL.
Many blessings to you.
Not sure he said anything about the vaccine. I believe he was speaking strictly about people who have POTS and how his theory might translate to treatment for people who have had COVID.
Agree but pertinent clinical evidence
I feel like crying reading your message … how did we ever reach this position?
I can understand where Keith is coming from. Thanks! My mother has been receiving a similar health benefit through IV saline even if she might not have POTS.
A doctor who calls the Covid vaccine the "jab"? SURE.
Edit: Oh never mind you are an exercise physiologist. Still, not very professional language.
Such a refreshing change to hear a doctor who focuses so clearly on the whole patient and quality of life. Very interesting
In the late 80s had this treatment along with IV vitamins because I was malnourished and had multiple vitamin deficiencies. I was taking medication also. It was amazing! The first 2 months was twice a week and afterwards 1x weekly just fluids. I was able to enter and complete a physical therapy course which I hadn't been able to do before, I started being able to digest food better. My life was worth living! After a year it was discontinued. I've battled Dr's to try it again ever since with no success.
Saying "I appreciate you so much" just doesn't do your effort justice! You don't have to spend your free time doing this...and yet you do. If a fraction of the doctors approached medicine with your attitude this world would be a much healthier happier place. Many blessings to you Sir!
Thank you for this. Doctors can definitely have naivety that PoTS is just a simple illness where the heart rate increases and this is not the case at all. However I have had situations where I have tried to give drs information (PoTS on a page etc) and they have simply said they don’t have time to look at it, to just keep coming back as & when you have an issue. This results in increased appointments, misunderstandings and misdiagnoses. If drs read information that places like your website & PoTSUK make available, it would save so much of this and give drs a much greater understanding of what they’re working with when dealing with patients.
I bicycle with pots... it seems to be a lot easier than standing and exercisiing. Im in the US and will be seeing dr. novak in Boston... I will bring this up. I am still able to work with the understanding of a great boss, have no family to care for me... so would like to remain independent and not left homeless and probably dead if I cannot control my POTS in the future.The US is not a tolerant society for the disabled.
I listened to patient’s statements. I cried! Oh, please, call doctor and help her help me and others. Try sending your patients to their Local infusion Centers at hospitals.
So glad I'm still in the control group.
My wife and I both got long covid starting in March 2020. Didnt know we had even had covid. Started with a 6 week headache then progressed to the most bizarre set of symptoms. Peaking in severity dec26. Our doctor had turned us away. Didnt believe us. And long covid was unknown at the time. So all we could do was experiment. One of our first discoveries was that large amounts of coconut water reduced symptoms greatly. Eventually we switched to water and electrolytes and thag worked. But we had to consume a full gallon per day. Sometimes I would reduce it if I had somewhere to go and knew I couldnt make the car trip without stopping to pee evety 10 minutes. Symptoms would return. Now, 2.5 years later, most symptoms are gone if I keep up the water intake, some electrolytes and b vitamins. Especially b1. The b1 eliminates dysatonomia in about an hour. I use benfotiamine but other forms work S well.
This gives me some hope. I too have PoTs symptoms. One Doctor said my symptoms sound like Long Covid which may have caused PoTs. Can I ask which Electrolytes you use? Some are laced with so much sugar. I find my blood sugars have been affected also, some foods are also an issue. Low blood pressure more so on standing, palpitations , chest pain (under cardiology which have taken so long to get answers or results back - 6 months so far and have an appointment at the end of September to discuss my stress test as I reported pain on arriving home after running on treadmill in my chest and up the sides of my neck. . They put me on a small dose of Bisoprolol, I couldn’t tollerare this made me worse. Blood pressure and heart rate dropped even more. This was 3 months after I had initially seen them. As had 48 ECG tape done and was very symptomatic. Chest pain was worse after three days in it and SOB. I understand how much pressure they are under. I recently saw my doctor, as I felt so ill she put me on Mirtazapine- anti depressant and demised the PoTs theory. She said my heart rate was still in normal ranges where as the other doctor said it could be POTS, after doing a Lean test at home myself. My resting heart rate is around 51 shoots up by 30 or more when I stand. Always feel weird standing, so many weird symptoms, not sleeping. Have been off sick from work for 6 weeks now. As things have gotten worse. Been ill for 2 years.Past from pillow to post. So many tests. Doctors think I am making it up I am sure. However I was never an ill person. Miss my normal life. Are you both better now?
Also how much vitamin B1 did you take please. I have just started taking a Vitamin B complex. Plus Magnesium Taurate once daily., and the 15mg of Mirtazapine doctor prescribed as I begged her in tears for something to help me sleep.Dr Gupta you are amazing. Without your videos I think I might have given up. The depression that comes with not knowing what’s wrong with you is just horrendous. I just wish I could get rid of the chest pain, palpitations I get after exertion or eating. Sometimes at rest also. Thank you for your post about B1. I hope you and your wife are both well now?
We dont eat any processed foods. I am a regenerative gardener. All our foods come fro. The garden or reputable ranchers
I started with 400mg b1 and did go as high as 1400. I now take 100-200 of benfothiamine which is a fat soluble b1. If I stop a few symptoms come back. Not extreme like before. Also b3 in the for. Of nicotinic acid but start slow with that. The flush can intensify symptoms
Eat healthy, rest, lots and lots of water, manage stress. And b vitamins. I take all of them individually. A multivitamin wont do it. With time youll be fine. But I know how hard it is now.
I am enjoying and admiring the beautiful English being spoken.
An angel on earth. What a caring and brilliant doctor!
I have recently found a good neurologist. I have an appointment on December 6th. I plan on asking her about IV fluids a week. You are a gift from God. PLEASE, keep working to help those with POTS.
Dr SG is the definition of care.
Isn't this what all doctors set out to do? Help their parents. Keep it up!
Wow! A doctor that understands complex conditions. God bless you ❤️
After receiving covid vaccine on 2nd October, 2021 since then I never felt better. Frequent ER visit and now finally nurse practitioner diagnosed me with POTS. I would like to learn more about neurocardiogenic syncope. Also I totally agree what Mr. Gupta explain. When I went ER multiple times before they did this and I felt so much better and was able to get out from bed. I wish I can find good doctor here .
What a wonderful attitude towards meeting the needs of his patients! Truely an inspirational and creative professional
The symptoms of POTS include many of the symptoms of fibromyalgia syndrome, I have been diagnosed with with fibro, high blood pressure, type two diabetes, Vasovagal syncope, often feel light headed or dizzy, am on BP meds with diuretic. Have had the flu many times. Have an Atrial ventricular block. After viewing this I think I might need to talk to my doctor again. Thank you for the video.
sounds familiar. you are not alone.
This explains so much! IV fluids in the emergency room in 2014 really made me feel better, at least for a while. I was told as a child that my near blackouts after standing was because I was tall! Severe symptoms set in in my 20’s, likely post infection of some sort. In my 40’s my IBS got so bad I finally tried a meat based diet. 99% meat only. No dairy or processed meats. This manages my symptoms rather than curing it but I am very grateful. My dysautonomia is mild now for the most part, as long as I stick to my diet.
I maintained a carnivore diet for a good portion of 2018, and can attest that eating this way was helpful for me too.
@@praxedes2 I wish more people gave this way of eating a try! I know sticking to it is challenging but you can learn so much just by using it as an elimination diet.
@@deborahspooner251 I think it has to do with our underlying motivations for eating. A lot of us use eating as a pleasure-seeking mechanism moreso than as nutritional fulfillment. When you are only eating meat for a lengthy period of time, there's very little pleasure in that experience compared to eating a varied diet. Disconnecting from the psychological reward of eating carbs requires discipline. There's also a lifetime of programming, (that fruits & vegetables are necessary), that needs to be overcome. Basically, a carnivore diet despite providing vast benefits for our health, can be scary and boring. You really have to want a change to try and/or stick to it.
This sounds weird... But I crave meat. Some of my favorite snacks are things like beef/turkey sticks, dried or smoked fish, smoked clams, eggs etc.
I snack on meat... I don't have a sweet tooth.... I have a salt tooth. Lol
Carnivore, sadly, causes severe insomnia for me. It seems I require a decent dose of carbs for circulating hormones to switch from excitatory to calming.
Has anyone experienced similar?
Thank you for this video..the world needs more Drs.like you .I agree 100% with what you are saying about the infusion for potts ..my daughter has this and is in the emergency room weekly for the symptoms of pots .they give her Iv.fluids and it helps her temporary.soon she is going down hill again ..and about the Drs not understanding potts ..that is a fact and all the years she has suffered she has only found one that knows it to be real ..I fear for her life and feel so helpless to watch her suffer ..I send her your videos and am thankful for your information.you do make a big difference in our world ..GOD BLESS YOU..THANK YOU.
This is so interesting. It’s a great example of how physicians can treat patients holistically when given the freedom to do so, rather than responding only to the diagnosis with an ‘if this, then that’ approach.