POTS - the 4 pillars of management
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- Опубликовано: 16 сен 2024
- POTS stands for Postural Orthostatic Tachycardia Syndrome. This means that patients with this condition find that they feel unwell with symptoms of tremulousness, dizziness and heart palpitations when they stand up. On objective assessment,there is an exaggerated and sustained increase in heart rate ( more than 30 beats/ per minute in adults; more than 40 beats per minute in children) compared to when the patient is lying down.
Healthcare professionals around the world have therefore started seeing POTS as a condition that is only manifest when the patient stands up. As our understanding and experience has improved, it is now clear that POTS is not just a condition that manifests when patients stand. Virtually all patients complain of other debilitating symptoms even when they are not upstanding. These symptoms include:
Severe fatigue
Lack of refreshing sleep
Chest pains
Breathlessness
Brain fog
Temperature dysregulation
Pain
Gut symptoms including nausea, bloating, slow transit constipation and even diarrhoea.
In this sense, the term POTS is too restrictive to capture all patients who suffer from the symptoms of POTS especially as symptoms can vary from day to day and not all patients with this condition will consistently have the obligatory exaggerated rise in heart rate to confirm the diagnosis. This is why I believe that a better term for this condition is dysautonomia which basically means a disequilibrium between the ‘flight and fight’ and ‘rest and digest’ systems of the body. Patients with this condition will complain of always being in ‘flight and fight’ mode and rarely in ‘rest and digest’ mode. They always feel tired AND wired.
The diagnosis of dysautonomia can easily be made by listening to the patient's history and if they describe the symptoms above and if they find that some of their symptoms are made worse when they are standing up then a diagnosis of POTS/dysautonomia can be entertained and this may then be confirmed by doing a tilt test. Whilst a tilt test can help confirm the diagnosis, I do not believe that a negative tilt test reliably excludes the diagnosis.
I think there are 4 pillars to the management of POTS/dysautonomia and all four should be undertaken simultaneously to hasten recovery. I list them below:
Lifestyle modification - I have previously made a comprehensive video on the type of lifestyle changes that can help symptoms. This can be accessed on my youtube channel / yorkcardiology .
Medications: The aim of medications is two-fold:
To reduce the standing heart rate - Medications that can help with this include: beta blockers and Ivabradine (in general Ivabradine is much better suited to this than beta blockers but there are some patient groups in whom beta blockers will be preferred e.g pregnant women/children)
To increase the circulating plasma volume and venous return of blood to the heart (these include medications like Fludrocortisone and Midodrine).
3) Physiotherapy - this is vital as many patients with POTS become extremely deconditioned which makes their symptoms a lot worse. Regular physiotherapy can be as effective as medications at improving symptoms and overall quality of life.
4) Social/ work-place based adjustments/rehabilitation - Once a diagnosis of POTS is made, your doctor should become your advocate and liaise with your employers/schools etc to facilitate adjustments such as flexible working, late starts etc to help you go back to your normal life without compromising on your health.
I hope you find this helpful. More on POTS can be found on my RUclips channel: / yorkcardiology
Keywords: POTS; long COVID; dysautonomia; postural orthostatic tachycardia syndrome; yorkcardiology
I wish you were my doctor! You actually get it. It's so hard to advocate for yourself when you're often bedridden, exhausted and your brain won't work properly.
I’m sure most of us wish the same. After being in the ER where I worked for 30 years I didn’t even get a call light when I was having a MI work up???? Stay healthy people.
Me too I wished he was my doctor
It’s surprising to hear you say that you don’t consider yourself an expert on POTS, because I think it is hard to find a doc that understands all of the aspects of POTS more than you do! Thank you for this video!
I have Long Covid, and this is how I feel everyday since 2020, I lost the quality of life, I wish I could have you as my doctor, you sound so empathic and kind, that just watching this videos make me feel validated and a little less lost, I’m sorry for my English, thank you for this videos,
Your English is excellent. Don’t worry. 🙏🏼Blessings.
Your explanation of symptoms has greatly validated my physical symptoms. I feel like you actually listen to your patients and treat as human beings, as opposed to if they don’t have textbook symptoms confirmed by standard tests they are not really sick, which is exactly how I feel I’ve been treated. I don’t know how to find a doctor who really listens so I will continue to treat myself and my symptoms as I learn from people like you, who are hard to find, especially locally. Thank you for your service and your humanity.
Absolutely superb and so informative, thank you so much 🙏
There are few around including our GP’s who actually know about or acknowledge this condition.
I developed POTS after Covid. Life changed to a point where I couldn’t get out of bed for long periods of time. Thankfully this year after 3 years, I found a Dr in Scotland specialising in long Covid and POTS. Keep up your good work, it is invaluable.
1000 THANK YOUS for being the brilliant Cardiologist that we all wish that we had physically near to all of us battling POST COVID-19 Dysautonomia🌹
Many Blessings to You and Everyone Here💗🙏💗
Dr. Gupta? I have had this condition off and on for 50 years and I have been bingeing your dysautonomia videos and this is the most validated I have ever felt. I am petitioning your viewers right now to "like" my comment if they believe you to be an expert on dysautonomia! There are so many symptoms (and even more that listed here) and you are empathetic enough to validate us. I will be the first vote to tell you that you ARE an expert and even THE expert! I don't know what you feel you need to feel like an expert but what could be better that patient votes and support?
your sincere debonairness is spectacular
Awesome video, as a Family Nurse Practitioner and a POTS patient I found this video helpful! Thank you for sharing!
His explanations are always awesome ❤
There is a similar condition called spontaneous intracranial hypotension which is often due to a spinal CSF leak. It’s important to consider this in patients with upright neurological weirdness. It’s a secondary headache type but it might not include significant head pain. They’re completely fixable!
Interestingly my research of PoTS makes me think it’s an expression of autistic/adhd overload, see also mast cell activation syndrome.
And Ehlers Danlos Syndrome.
I've lived with Dysautonomia & POTS for 43 years. You are one of two doctors I believe understands the symptoms, struggles and overall burden that can accompany this diagnosis.
Because there are people who have literally tried everything you mention, and more, without improvement or significant improvement that allows them to return to work it begs the question then what?
Just to add a few suggestions, as a sufferer, I got a great relief from lifestyle changes that you described plus good sleep, some supplements specially a balanced vitamin D level around 40 ng, magnesium 100 to 200 mg every other day and B vitamins specially Thiamine. Beta blocker is my option on account of hypertension. Thank you Sir for your great suggestions and overview of the difficult subject often not diagnosed and treated properly.
Please does this your suggestion help to heal heart palpitations?
Brilliant video thank you Sanjay. I’ve started propanol the antihistamine starting with pyr 😂salt tablets and fludro and finally I’m starting to get better after 3 years in bed. Dr gall prescribed for me. Thank you for all your help support and most importantly empathy ❤
I used to get spinning episodes out of the blue just sitting watching TV. It used to be bad when I was younger, but subsided a lot as I have grown older. I still have it when I stand up sometimes. I had a sudden cardiac arrest in 2017 due to Takotsubo. Don't remember being stressed at all. I'm perfectly happy.
Do you have POTS?
Another excellent video. Are you able to get your views across at Cardiology seminars. It is a worry that an holistic analysis as you do is not practised more widely.
I understand your disclaimer but yes you’re the expert! So sorry to have not been able to meet you in my city. I hope you enjoyed!
So glad you are back
Absolutely brilliant-from the comprehensive list of symptoms to four areas of treatment to downloadable resources. Thank you.
Excellent - thank you!
Like many others I was completely healthy before 2020, then I got the virus and have had POTs ever since. It has greatly reduced the quality of life.
I'm so happy to see you again Dr Sanjay Gupta every time I run across your Channel which for some reason has been much less often than it used to be and I don't know why, I'm so happy to see and hear you! You are the only one that really has ever validated what I'm dealing with both with my heart issues and possibly because of this dizziness and varying and sometimes very uncomfortable rise in my heart rate perhaps is why I was not getting the help I need! Nobody's ever mentioned that particular illness to me and I have a feeling that even if they did they would have ended with the Tilt test which is what happened to me when I went in I didn't show any signs that my eyes were you know bouncing and they said that I don't that's not a problem for me and then the hearing test and found that I have I don't know how but lost my high sensitivity hearing something like that! The bottom line is I live every day every minute every second of every day that especially when I'm getting up moving around I'm so dizzy it makes me look at times like I'm drunk and staggering until I can kind of get myself together again where I think I looked normal but in my head I'm still experiencing it! There have been times when I started to think seriously that I can't go on like this anymore and I started fighting back by getting adamant and sometimes angry with my doctors and it seems to be the only time that I get or I'm more likely to get something along the lines of what I need this time it was cardiac rehab which I was told I couldn't have the first time because I missed the deadline because I couldn't get off the couch after surgery go figure there was no accommodation for the fact that I was not well after having two for millimeter centimeter whatever they are stents put in the Ramos artery also with at the time 40% blockages in my LED and I'm just recently learned that at least one my understanding and my reading the reports after not having looked at them and while one is in the position where it's not great it's further in to the down into the LED artery can't quite make out exactly where the other one is but I having the one where it is is bad enough! I also had a three arteries totally blocked in my legs, pardon me I know too for sure right now I'm so tired of writing this I can't remember if there was a third but all my blockages that they fixed by either just blowing up a balloon and Plastering the plaque along the walls or as in the case of the heart putting the stents in and never checking to see if that's what was causing what's been going on with me because I really thought I was going to have a stroke and sometimes I feel like I am going to have a stroke and nobody wants to do anything and this is what I experienced in the beginning I had to bitch moan groan and make the doctor pissed off at me in his words challenging him as if I don't believe in him which kind of like you know you can't say you don't when you're not getting anywhere and they don't want to do any tests and you're not getting any better and you know what you feel and you know you're not right and you're sure what it is and lo and behold that last test that you weren't going to give along with the other half a dozen that I had to push them on they're all the blockages were it actually scared the technician that was doing the last and of course the most definitive test that scan you can have was scared to death because he thought that if it wasn't a stand which I already had my heart which I didn't that I had 100% Block in my heart which I did go figure I mean literally 100% nobody believed that I didn't feel well I guess and that cuz they couldn't find it nothing was there at least in my cardiologist he actually got in my face menacingly angry because I wanted to get the last scan done before I would give up and he didn't like that he thought I didn't trust him and I had to play possum and say well of course I trust you because I picked you and I'm still with you I said don't you trust me I need you to trust me! Well that didn't happen but I did need my way into getting the test and got surgery and still think they need to go in and make sure that the stent is open because that was why I didn't get to have cardiac rehab the first time because good the second week and horrible but by the beginning of the third week and couldn't get off the couch so let's make a long story short which nobody really found at this point I'm really glad that I ran into your videos again I am subscribed but I'll have to be more conscious of looking for your videos cuz you're the one that has been inspiring me and why I've gotten some of the help that I've gotten is because of you and knowing that you have explained things in a way that lets me know that I have to trust myself and that what you're telling me is what I'm experiencing it's been a blessing to hear you and see you! Sorry folks for all the many words but I think we all like Dr Sanjay Gupta and I think we all would love to have him as our doctor I know I would I would Cry tears of joy if he were my doctor then I would know I'm in good hands!
Hello Dr. Gupta from the USA. I just discovered your channel after having an AFIB a month ago and find it very informative and reassuring. Thank you for taking the time out of your busy life style to address the public with such essential information! I saw on one of your videos that was 8 years old that you started another channel called “More than Just Medicine” that seems that it has not been updated for 4 years. It is such a good idea. Do you think you will make it active again? Keep up the good fight and God bless you and your family!
Sounds like what their calling M.E. (Which includes pots disorder) It used to only be called “Chronic fatigue” syndrome ” or immune deficiency “ (Cfids) in the US. But Name now changed In Britain & Australia from “Chronic fatigue syndrome” to M.E. Saying it’s a hypothalamic caused situation.- affecting hypothalamic-pituitary- adrenal axis
I have hyperadrenergic POTS, heds, mcas, hypertrophic cardiomyopthia. Now my kidneys are taking a hit. The organ that was OK! 😢 I have aneurysm in brain and on my celiac artery because of MALS. Also left iliac vein compression. This life sucks! I have a son that has a lot of this and severe autism so he keeps me going, but I am so tired!
Just dx with MCAS. That with being overly hyperthyroid my HR was 125-135 for 6 days and I was completely worn out.
So sorry this world is horrible. Prayers for you!@jillr759
Do you have Ehlers Danlos Syndrome?
Thank you so much❤
Your gifts of compassion & understanding etc are awesome- thank you
You are such a good and clever doctor . We are very greatful for you 🙏
So kind!
I had it for a while, but I also had ESRD, but off dialysis for a couple years now and completely blind for seven years, but especially after a treatment, when I would stand up my blood pressure would drop at least 80-100 points instantly; at the beginning I used to not snack but when my sugar and blood pressure would drop I would faint, when I started eating a snack to prevent that I didn't faint ever again but my blood pressure would drop and I would still get disoriented, which you can imagine is even more scary as a newly blind person ... i'm fine now with my new kidney in eating normal again
God bless you. Stay well. 🙏🏼Blessings.
Thank you so much, you are a true gift to the world
You are such an awesome doctor and I highly admire the fact that you just want to help people … something that helped me in regards to cardio is jumping on an indoor bungee rebounder. My guess as to why I can do that better than walking is maybe it pushes blood up from bouncing on my feet but I obviously have no idea. Just thought I’d mention if it might help someone else. I’m still figuring out medications and I’m a couple years in…. It sure is a life altering condition.
😊Be well, Dr. Gupta. I have found that pulse rate goes high when my allergies are terrible. Your knowledge is always appreciated. ☕☕💖
BLESSINGS to You and Continued Appreciation to You. I have been suffering for over four years with POST COVID-19 POTS Dysautonomia and FINALLY have professionally diagnosed this year. Dysautonomia Cardiologists in my area are scarce and hard to get referrals to. What can you do for temperature intolerance? Hugs to You, Dear Doctor🌹
Question: Would people who have an exaggerated response because of years of bullying and torment (ALWAYS in "fight or flight" because there is ALWAYS a threat close by) *break* their adrenaline response, possibly making it more "hair trigger"? What would THAT look like from a medical perspective?
Use Celtic salt as it’s the healthiest salt in the world and actually keeps you hydrated.
Excellent! Thank you ❤
Great presentation Sanjay!
Thank you some of your meds advice sound like it could be useful to discuss with my doctor thank you!
Thank Dr. Gupta! Are you aware of any patients having upper cervical misalignment, putting pressure on the vagus nerve causing all of the symptoms you describe? I've just learned of this last week after I put 2 & 2 together after my Brilliant Dr. made a comment that I look misaligned when standing in front of him so Im searching for answers as my life is completely debilitating from these awful symptoms I cannot function on a day to day basis. Thank you for all your help! 😊
Allison, yes, it’s called cervical (neck) instability and it affects the vagus nerve. I have it myself. There’s a channel called Caring Medical: Hauser Neck Centre (Florida) - sadly, miles from me - that carry out Prolotherapy. A good Chiropractor should be able to gently manipulate your neck, which could help, too. You might want to look into this, if it’s appropriate for you. I wish you healing and all the luck in the world in your search for answers, treatment and healing. 🙏🏼Blessings.
@@Christinegardiner8117Do you have Ehlers Danlos Syndrome? POTS and cervical instability are common with Ehlers Danlos Syndrome.
@@Catlily5 Yes, I’ve had hypermobile Elhers-Danlos Syndrome and PoTS (postural orthostatic tachycardia syndrome - properly known as Dysautonomia) since birth. I’m 74 now! Had chiropractic adjustments for years as also have mild scoliosis causing eight problem areas in my spine, with spondyloarthritis. Neck a problem and the atlas and C1 and C2 adjusted as goes ‘out’ regularly. Haven’t had an adjustment, now, for about 18 months, but know about cervical instability, which affects the vagus nerve and exacerbates PoTS. Hope that helps. Take care of yourself and keep well.
@@Christinegardiner8117 Thank you! I hope that things go well for you!
Super informations . Thank you so much for this video ! 💐
Brilliant!
Biggest thanks doc .
Goid morning u have soo. Much experienced. all u say it soo true. God bless u ALWAYS ❤
Wow Dr. you are so knowledgable and compassionate. Is dysautonomia same as ME/CFS?
@RobinPalmerTV It sounds similar to what I just discovered last week, the Atlas and or Axis the C1, C2 can be misaligned causing pressure on the vagus nerve which therefore is causing all kinds of weird issues is my understanding. The cerebral fluid cant flow properly causing brain fog, dizziness anxiety panic etc There is treatment for this by an upper cervical Chiropractor they do a very gentle adjustment to put the Atlas/Axis back into place, is this similar to what you are saying?
Symptoms don't only vary from day to day, sometimes it's from moment to moment. It's so frustrating. Also, it used to be when I got up, but nearly 4yrs after covid ( I believe it started mine). I saw a cardiologist, was discharged, and told me everything is fine. I'm seeing a Neurologist tomorrow. I also suffer from high bp as a norm. BTW, of the meds you have suggested, are there any to avoid if you have preexisting kidney issue?
I agree! My symptoms come and go somedays I'm okay & other days I'm totally debilitated 😢 Have you heard of upper cervical misalignment that might be causing alot of these symptoms? It's my understanding the Atlas and or Axis can be misaligned causing all kinds of weird symptoms and an upper cervical Chiropractor can do a simple adjustment
My grandson was hit w POTS at the sge of 12 we think after he had some severe flu like infections (lyme test positive) and his symptoms were frightening......sleep walking, screaming in pain, intestinal problems (colonoscopy done) could not be woken up in mornings, collapsing, fainting, vomiting.....went for many tests by specialists and never correctly diagnosed till he had neurological tests done... had to be home schooled before Covid......collapsed in school and we had a hard time w lawyers etc to get him home schooling.......now 18, college and advanced classes. He overcame the worst without special treatment but salt and water. His parents had officers come to the house sent by school bc they did not accept the POTS diagnosis, there was a law suit to get him teachers to come to house in addition to virtual studies, etc etc etc.......now he finished his last two hi school years in school w honors , many friends. First day in a top notch college today. What happens to the poor kids whose parents cannot afford the best specialists? This is New Jersey school system and NYC doctors who diagnosed ......
@@sussika1231 oh my! So very sorry your grandson went through all that! Are you actually saying Salt water helped him?
@@allison471 Yes, salt and lots of water, plus electrolytes (Dioralyte) helps Dysautonomia (PoTS) - if you listen again, Dr. Gupta explains. Also, look on his channel: York Cardiology loads of helpful info on there about PoTS. Hope this helps.
Is it posible that an extreme elimination diet such as the carnivore diet might be worth trying? For just 30 days?
I took an also curious about it + fasting. Some foods trigger people and they don't even realize it! I'm interested in trying this myself.
I'm mostly carnivore and do time restricted eating; I feel great. If you do decide to try it, do yourself a favour and transition slowly over at least a few weeks. Big sudden changes in diet can have negative effects in some people.
As always, tons of great info; after listening, I believe that my afib may be (at least in part) the result of PTSD resulting from a dog attack a decade ago... since that time I have been hypervigilant whenever outside (even to the point of carrying a gun on my walks)...I definitely live in "fight or flight". I have SOME POTS symptoms, but I don't think that I have POTS... definitely an inappropriate neurological response to perceived threats... I'll delve more deeply into this.
I have had this condition for years and only recently figured out what I have. I figured it out my self, not any doctor. Is it common to be deconditioned to the point of having walking/balance issues? I also cannot lay flat without blacking out.
Listening to patients?
Solving real world problems for REAL people?
Caring about humanity?
In the US your medical license would be REVOKED for doing THOSE kind of things ...
What are your thoughts on people that don’t get DX after having a TTT and autonomic disease. But is constantly getting symptoms and signs of heart failure that doesn’t show up on test. For example shortness of breath, jaw discomfort, chest pain, left arm and hand stabbing etc…💯🙏🏽🙏🏽🙏🏽
As a thyroid cancer survivor I’m constantly hyperthyroid or out of balance which adds to my insomnia. Now my chronic urticaria or better hives I started on Claritin briefly and pleasantly said goodbye to my pelvic floor pain. My lower legs are still flared and burning but hopefully they will calm in time. MCAS ? Who knows another chronic illness.
Hi Dr., thanks for your videos. Can you give us information on Bicuspid Aortic Valve, please? Also, it would be great to get some insight on impact of Anabolic Steroids, smoking or drinking on Bicuspid Aortic Valve.
Awesome video - thank you Sanjay! Unfortunately, I have both POTS and persistent Afib. It would be wonderful to have a video that gives guidance to people who suffer from both (there is nothing out there to help).
I feel caught in an impossible situation, not knowing if increasing my sodium levels to help with POTS will make my Afib worse or hasten heart failure. (Although my blood pressure is low, particularly the diastolic pressure.)
Anyhow, just in case you feel like a challenge. 😉
Sir you should make few videos on Heart Failure ( all types ) , as their are many latest updates in field !
Myalgic encephalomyelitis = M.E= ME/Cfids ( includes pots)
Good morning
I have nearly all these issues since getting long covid so why has nobody suggested this?
I have dysautonomia and this is a very good video. At least he recognizes that dysautonomia can be a life-wrecker. I have a question. I just started keto 3 weeks ago and I feel horrible. I know about "keto flu" but I think this is much worse. I am very weak and shaky. Is the stress of a keto diet not good for dysautonomia sufferers? Is there a work-around? Thank you!
make sure you increase your fluids and salt even more if you're doing keto! Carbs cause our bodies to hold onto fluids and when you stop eating them, we release these fluids and can cause ppl (specifically ppl with dysautonomia) to feel horrible.
My POTS has led to severe GI issues and I had to have an Ileostomy. So now I have to worry about increasing my fluid intake to manage POTS, but also the risk of dehydration from the Ileostomy. Do you know of any cases where POTS gets progressively worse?
I’m a woman of 74 and was born in 1950 with hEDS and PoTS/Dysautonomia. I have had chronic migraine since age 11. I had glandular fever, very badly, when young. I now have 5 autoimmune diseases and am pretty ill. When I was on the pill and then on HRT, the symptoms were less severe. Off of those and following menopause, I have gradually got worse and worse. I’ve been bedbound for three years, now. BUT, it doesn’t always follow, so be guided by someone who knows what he or she is talking about - like Dr. Gupta.
🙏🏼 Blessings.
Wow
I also wonder if you’ve seen other patients have big heart rate drops as a response to stress in the fright or flight scenario… this happens to me all the time now where it will go down in the 30s and 40s from normal stress like reporting out numbers to a group at work and it drops and I start shaking and get brain fog.
Does the vitamin K2 interact with the Plavix blood thinner?
Multiple sources indicate there is not an interaction between K2 and Plavix, or any other blood thinner. Bear in mind K2 is not a blood thinner.
The’r saying long Covid - (unfortunately gotten from the coronavirus) is also cfids or “M.E. Also-
Are you back in York Mr Gupta?
Question for you, Dr. Gupta - could the sensation of a bounding or hard heartbeat/pulse - but not necessarily fast - also be indicative of POTS? I have so many of the symptoms you describe, but a rapid heart rate is something I never experience. I constantly feel like my heart is beating very hard, however. Thanks for all you do.
A specific symptom for POTS is tachycardia, it's in the name. Doesn't mean you don't have e something else going on but if you never have the 30+ heartbeat then you don't have POTS
I had a heavy/pounding heart beat for a while. It was caused by an electrolyte imbalance after exercise. In my case, it was magnesium.
I get burning feet when standing. Skin is starting to change 😢 it's like the blood pooling is damaging the nerves ?
Pleaseeeeeeeeere😢😢😢😢
If you spoke in Hindi, all the countries could listen to you, who have no one to tell about such diseases😢 pleaee dr we need you make some videos in hindi
I do not have POTS, but I have chronic low blood pressure, and my heart rate is normal. I do not get dizzy or faint when I stand or have any low blood pressure symptoms except for getting lightheaded occasionally. I have seen a cardiologist about this "condition." The doctor talks about Medadrin, but he is hesitant. Low blood pressure seems to be "normal" for me.
I am not comfortable with having low BP, should I be concerned about this and what are your thoughts (female 68) Ty.
Blood pressure would generally be considered low when you are getting adverse symptoms due to your blood pressure. If you do not have any symptoms, then maybe 'low' is perfectly fine for you. It is after all just a number. If that number was really low, then it might be worth considering further. If I was to put a number on really low, I might suggest under 90/60.
👍👍👍
My mom and little brother both died from Marfan Syndrome and I have dysautonomia. Are these related somehow?
Oh PS I had covid before I knew I had covid and then I had covid again I think maybe a year and a half after the first bout I didn't know I had the first one until later when they started talking about the blue toes which is what I had and just thought it was something else yeah maybe I ate something wrong and it you know a little higher in uric acid or purines rather than I usually had in my diet! And then I had covered again so that's two times and it's also possible that covid could be responsible for some of what I'm going through but the pot seems more likely now that I've heard about it and understand it through your eyes! What I will say about this if you do read my comments I really would like an answer to something my sister heard acknowledges my experience but can't find it because I didn't get to talk to her and she had already seen this people talking about having the same experience that I had! And the experience is that when I got covid they gave me pack sloped and when they gave me the Pax Lovid within a couple of hours I started to feel better and just thought oh I'm lucky I'm feeling lucky that I'm having a good moment and but oh my symptoms were gradually going away one by one till I had nothing no dizziness no imbalance no chest pain no shortness of breath no tingling and numbness or ants crawling on my feet feeling gosh I cannot think of all the things that I've been experiencing but you get the gist and I don't know but I know in critic rehab want to happen to talk to a nurse who was one of the nicest ones there who was sent a lot when I told her what happened and that my sister had found that other people had commented on the same thing and just didn't know where she read it and couldn't find it the woman's nurse said to me you know I'm wondering if it's the antiviral part of it which treats AIDS perhaps you have also something of viral thing the triggered all this food for thought duck food for thought because I I would swear on my life that the HIV medicine had some kind of effect on my illness is going to say symptoms but when they all disappeared at least until I had a really really bad stressful. A time with a lot of arguing going on that I felt my symptoms coming back which I don't know I don't believe they would have come back without that stressful situation it was really bad if you know anything at all about this or if anyone does and has heard something please I guess the only way on here you can let somebody know is to like it and then make your comments please doc or anybody else out there let me know what you know if you know anything at all about this connection with covid and the antiviral portion of it helping the symptoms I mentioned and if I didn't mention dizziness cuz I can't see all the writing now I don't have a day or an hour when I'm specially when I'm moving around that I don't have it and it makes everything I do so much harder because of the dizziness as well sometimes I feel my heart's going to beat out of my chest cuz I'm so tired of trying to keep my balance because I lost my high sensitivity hearing unbeknownst to me and suddenly now I know it feels like I'm holding up the weight of the planets on my shoulders and it just wants to push me down to the ground and this is along with the dizziness! I don't know what I'm going to do when I don't have cardiac rehab to continue to condition me and I'm going to try and be creative because it sounds really and it's helped me gain some core stability which helps me with the dizziness and balance!
Could anemia lead to POTS?
Yes.
Never had POTS but had PANS once.😊
PANS or PANDAS?
Sorry, not funny. We hear it all the time and, if you suffered from it, it’s awful and totally wrecks your life 😢
@@Christinegardiner8117 My first experience of pots was, waking up to go to the toilet in the middle of the night and on arrival at the wc blacking out and waking up on the floor, having bounced of the side of the bath. So I know what it is and what it is like. I will always believe 'humour' is the best medicine.
LOL
What POTS?¿ Is it like PAC's?¿
No it’s postural orthostatic tachycardia syndrome. Or your heart races when you go from laying to standing.
@jillr759 That sounds like running, jogging, and swimming twice daily, coupled with 2 weeks of Kava Kava might help. I jog when it's 102°F. It helps my PAC's, I got rid of them twice, but they came back somehow. It may be a hiatela hernia or a damaged Vegas nerve causing my PAC. The cardiologist says I'm fit as a fiddle, but sometimes it feels like death is trying to tap my left shoulder and unravel my luminosity.
@@billcullen8380 Kava is bad for the liver and causes hepatic damage. Maybe taking it short term every so often is fine.
@trail.blazer I took it in the 90's to sooth my anxiety, but it is only for short term use.
We shouldnt have to 'manage'. We need to recognise POTS is merely a manifestation of nervous system dysregulation. You dont have a disorder, in fact your autonomic nervous system is doing its job extremely well. Nervous system regulation will make it disappear. Once your body is out of fight or flight, it wont need to give you pots symptoms.
how do we do this?
@@daniellethomas6989 You must teach your brain you are safe and that it doesn't need to protect you anymore. There are tons of resources online, lots of books. 'Heal your Nervous System' by Dr Linnea Passaler is a good starting point. Look up recovery stories, lots of people completely recover using this concept.
@@daniellethomas6989 Read Heal Your Nervous System by D r Linnea Passaler
@@daniellethomas6989grounding, lots of quality sea salt, methylated Bs particularly B1, herbs such as holy basil, lemon balm, ashwaganda. And most importantly limbic retraining!
I was thinking the same. I suffer with anxiety (GAD) and health being one of them. I swear anxiety mimics POTS symptoms
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