The worst part of it is losing a massive part of yourself. I have had little sympathy from so called freinds sadly I had to disconnect from them to save my mental health. Fortunately I have some new people around me who do understand they see me fighting for my health everyday.
"losing a ... part of yourself". I can relate.... Said exactly the same sentence last week. Who am I, not able to do 90% of things (job, hobby/interests, social interaction) I've done before Covid? Who am I struggeling with daily basic life issues (household, selfcare, sitting upright on bad days...)? Losing control of my body, losing autonomy. It's so hard.
Absolutely agree with every sentence 👏....fn A. I am barely hanging on.....my longcovid is busting me up!!! Cause having to DEAL with Trump has caused so much energy for nothing....im exhausted. The man committed, Espionage. Leaking classified information. And a attempted coup, with 5 dead people after. WHY, IS HE NOT IN JAIL? O forgot about Treason- punishable by death. Problem is, I have longcovid. So I can't deal w this. I'm exhausted. Millions of Americans feel like I do....but longcovid is just killing me. I feel I will never be me again. Yes, a part is gone. I read that someone w a brain injury heals slowly. Very slowly. And I have a TBI from a car wreck in 2013. I miss me. Now I kn how someone feels w dementia. Or a family member they love with dementia. I must write EVERYTHING DOWN. OR IT WILL NOT BE REMEMBERED. EVERYTHING. I'm scared and sad.
I’m glad you found a new crowd. When I was extremely sick from mold and breast implants, not one person helped me, and in fact they laughed behind my back that I was a druggie and a hypochondriac. Now I broke my shoulder and have Lyme and Babesia (a live form… not the antibodies. I’m the caregiver to my grown son who has mold toxicity from his father’s house, this manifested latent Lyme, king civid, and now neck issues; CCI, and I’m using one arm to take care of him. He gets Lyme rage and can be nasty, which makes it worse. His father has not had his house remediated yet, so for the past two years, he’s been here at nights and weekends to visit our son. This has ruined my life, and I’m ready to cash it in.
Got covid in March 2020. I see lots of us super long haulers here. We are lucky to have survived that wild strain. The fatigue is my biggest enemy. Antihistamine helped the most, but still have bad days. In bed all day on the bad days. Thank you Doctors for your perseverance to try to help ! I wish you ALL a full recovery, SOON!
First got Covid March 2020 and was only sick for a month. Then Got Covid January 2022, and have been suffering with debilitating symptoms since. Decided to avoid antihistamine since they are linked to dementias.
@@jonathanisrael9714 in the same boat as you . Feb 2020 and jan 2022 its been a rough journey have a really hard time taking care of myself. But trying to find ways to manage to be self sufficient. What are your symptoms if you don't mind me asking ? I show obvious signs of pots on top of long covid . Debilitating fatigue, excercise intolerance, cognitive function out of wack, dizzy light headedness , if I do to much my whole body shuts down and I just lay down for hrs and suffer until it goes away . Im 29 unvaxxed wish you full recovery
@@kylechavez7961 it's so unfair to spend so much time out of sync. I identify with your symptoms. I really hope we find answers. Sadly, the coronavirus and the injection contain gain of function research and spike protein. I also never had the toxic injection. We need to keep eliminating the pathogens and parasites contained (in our case) in the vector (coronavirus).
@@kylechavez7961 There are POTS and Dysautonomia groups on FB. Try making an electrolyte solution ~ 6 level teaspoons sugar and 1 level teaspoon salt in one litre of water. I don't like all that sugar so I make mine with an isotonic drink and add the half teaspoon of salt to a litre of water. It helps with the crazy dizziness. I also wear a Garmin watch which monitors my heart rate. The moment it goes too high, I rest and then resume working when I feel better. I would like to try hyperbaric oxygen and go for vitamin C IV infusions. I swim a 25 meter length at the gym, stop, and do 5 more lengths at my own pace, follow this with a sauna and then a cold shower to assist vagus nerve function. Don't over exert yourself as you will probably get Post Exertional Malaise and land up exhausted. Niacin, as nicotinic acid is a suggestion, as is Vit D, Vit C, Zinc, Quercetin. Meditation and breathing are recommended. Drink water (ensure that you also have the electrolyte solution to stay hydrated). Pace yourself and understand that any anxiety being experienced is as a result of what you're experiencing and in my view, has much to do with toxicity of the central nervous system. I'm a long time Rife practitioner and am using Rife frequencies to eliminate pathogens and parasites contained in the virus. If you're experiencing any pain, use DMSO applied externally. Look for the DMSO handbook online in pdf format for proper instructions. That much maligned equine liquid is a good idea, H1 and H2 inhibitors assist with histamine levels which go out of whack and create inflammation. CBD is good for insomnia and try to go to bed at the same time every night go get some solid sleep. I'm saying this but am awake now when I should be sleeping 🙈 Please feel better soon.
My only child, my 4 year old son, passed away 7 months ago. Then I got long Covid, and this has been the most hellish year of my life. Not to mention I had almost no support besides from my wife. I hope this goes away soon.
@@mwngw for adults. No. According to Dr Berg it's fine. Must be taken with Vit K though for proper absorption. I also found a new supplement that helps people greatly for long term COVID. Moringa capsules daily will cure you up along with Graviola tea two times a day for 2-3 weeks.
Watching this is bittersweet. I had EBV decades ago which progressed into years of chronic ME. Almost no one believed me and the lack of belief was such that it led to abuse. Eventually I got about 70% of my pre-EBV health back. And then I got Covid - and all my familiar post viral fatigue symptoms came back. It's a real joy seeing so much support for those with Long Covid now. I commend Gez for his research and sharing his journey. I just want to send my best to anyone else with a history of ME/CFS who might be experiencing mixed feelings and a surge of memories.
I have this exact situation. Mixed feelings. Hopeful that maybe some of the long covid treatments might overlap with us who are still (after 30 years) dealing with CFS/ME.
I had severe POTs as well as virtually every other problem. Now virtually fully recovered thanks to Gez and his videos. H1 blockers, Iron, high dose vit c, b vitamins and gentle reconditions. Genuinely cannot thank Gez enough. He gave me hope and the tools of my recovery. Thank you.
@@timmy34400 no salt, the water didn’t make much difference. I believe it was because I addressed the underlying cause which I believe to have been MCAS. I took an over the counter h1 blocker for months. Iron supplements, high dose vitamin c to aid the pots directly and general vitamins. Reconditioning is important too.
The grief of Long Covid is so real! Thanks for talking about the mental health side of this illness that makes getting through every day stuff so challenging
long covid is easily healed in hours by safely raising the atp levels take 4 x 1000mg caps liposomal vit c an hour later take 2 more do this each hour until all symptoms are gone,its gone in hours
Gez, I can only echo Dr. Hirsch: "Thank you for the beautiful vulnerability and sharing that with us." Thank you so much for this very personal glimpse of the reality of life with long COVID. Your professionalism in presenting facts and analyses has always been admirable. Your courage in presenting the human-ness of this journey is deeply touching and vastly encouraging.
I remember reading about a doctor who took her own life because she couldn't find relief from long covid and I could sympathize with her decision. I'm glad I found channels like this and Dr. Been to help me stay motivated and focused on getting better and grounded in sanity. The Facebook support groups really helped as well.
I follow Dr. Been. He's an intelligent guy, very artistically talented. But his pro vaccine stance is troubling, even if the science backs it up. But I think he has corrected himself now, as new findings are coming in.
Don’t give up guys, healing is possible!! I felt the same way… nearly bedbound and felt hopeless and despair like nothing else. But I am SO much better! And you will be too. Do whatever it takes to get thru the bad times… I relied on Xanax for a looong time just to deal with the breathlessness. Not proud of it but if I hadn’t of had it, I probably wouldn’t have made it. Point being, do what you have to do to get yourself to the next day. There is tons of hope and holistic treatments. Heck, earthing, sunlight daily, calf liver, raw milk, nicotine gum along with thyroid support and H1 has helped me tons… even dedicated liver pills. Build your body up from the inside.🙌
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I found myself grieving the loss of my health a few weeks ago. I finally have money and time to do whatever I want to do and I can't. I have to go to bed and sleep.
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Thank you Gez for another masterful piece. Approaching 2 years and can’t imagine what it would have been like without your videos. It’s a solo path, even with well meaning health professionals and loved ones around us, and your videos continue to confirm the direction and treatments I’ve intuitively found to recover. You’ve been a Godsend. Thank you again!
Yes there’s no gel with Drs! I’m so fed up of trying to get meds I need and even bio identical cream hormone! If I am out of a script my symptoms come back 10 fold! The word LONG COVID on a chart should give us some credibility… so sick of struggling to get maintenance meds!
I got sick in March of 2020 and still have some significant symptoms that ebb and flow and I have sort of given up on directly trying to resolve them because it seemed futile. Recently Ive been forcing myself into older activities like lifting (Paced as best as I can, PEM is still wicked). Appreciate these videos a ton, really looking forward to the book coming out, the one stop summary of all the info you've collected over this journey is going to be great, hope to put some of the ideas to work. Also love the new guests and introductions to others that are taking Long-Covid/ME seriously. Going to check out Evan's book and do more research into Bruce Patterson's work. Keep up the good work! No clue how you manage to put in this much effort while dealing with Long Covid yourself. Huge props
Please read if you have long Covid. This worked for me! I’m not a doctor. I’m male, mid 50’s, average height, slender build. Got jab mar 2021 (required for job) a month or so started having slight difficulty breathing and got slowly worse as time went on. By September 2021 at times would throw up. Thought I was allergic to new dogs. Tried every allergy pill, nothing worked. Then tried Primatene Mist, everything cleared up, no issues with breathing at all. Never had asthma my entire life and now 18 months later still use it when breathing issues arise. Got Covid Jan 2022. Few weeks later slowly started having heart issues, skipping heart beats, instant high BPM, massive pounding heart beats. Did battery of tests at cardiology dept, they found no issues at all, along with other docs saying there is nothing medically wrong. The worst for me was feeling like is was going to faint multiple times a day. Mainly standing outside and talking, driving to work at night after dinner, and while at work sitting. Fainted once at work. Had to go on medical leave for months. Started to get better then it all came back slowly (also anxiety with almost panic attacks). Watched so many long covid videos and read 1,000+ comments and took notes on what people did. This is what i did and worked (i’d say I’m 95% free at this point). I stopped taking powder fiber supplements (can cause iron not to be absorbed). I’ve only eaten lunch and dinner before but now had carnation instant breakfast with milk in the AM and a banana with a men’s 50+ multi vitamin and one iron supplement pill at that time. Normal lunch and dinner but tried to have a more protein involved. Snacked on pumpkin seeds, sunflower seeds and beef jerky. An apple around 3pm. Would mix a packet of propel electrolytes with a few shakes of table salts in it and drink throughout the day. At dinner would take another multi vitamin and another iron pill. At night before bed took an Antihistamine pill. Would try and eat smaller meals more often throughout the day and night. Worked out on elliptical 25 minutes every other day. At 3 days noticed a feeling of not so severe symptoms. Every day was better and better and 3 weeks later, 0 skipping heartbeats, no feeling of fainting, no pounding heart. An amazing feeling just to feel normal after a year and a half of issues everyday. Hope my story and remedy works for at least one person
How has the antihistamine helped.Rather how much of it?Iam so hopeful after reading your write up.Iam having ME/CFS and Dysautonomia..Incorporated salts and magnesium,NAC,Nattokinase,.Starting with the antihistamines today..Await your inputs thought on what made it work for you or the dosage
Thankyou for your continued hard work, gathering and being an advocate for yourself and others. Everything you said was so right on the mark, it could have been me talking! You are an amazing human being! You are so very courageous and honest! Thankyou!
So glad to see this discussion. As a long hauler and microbiologist/biochemist, I totally believe I'm dealing with viral persistence. I wonder why we don't develop a stool test to look at the individual microbiome, after hearing you indicate that viral particles can be detected in stools. We need a biochemical test to show long covid diagnosis first and foremost, IMO. Am looking forward to getting your book, sounds like a wonderful resource.
Than you Dr Mez for this channel. Seems I am constipated most of the time, I had IBS before covid. Not any more. When that happens my breathing is labored and pulse goes up. I start sweating really bad. Had the Delta with pneumonia. I was off of work for 6 months. I'm really suffering. I have pre-ordered your book hoping to find answers.
Thank you for your podcast from Ontario Canada. Personally, I got COVID on Jan 9/22, with 3 vaccines in me from working in a long term care facility, and became very I’ll. Then turned into long convid. Was pushed back to work too soon by wsib. This august, I fell well stepping into an elevator and broke my femur. Still on crutches. I also became depressed, which is not like me and now on anti depressants. It really touched me with your emotional story of yours. As I felt I was the only one and ‘letting down my guard’. Thank you again
I’ve carved out a space for me to unleash the grief, frustration & chronic suffering from LC, then afterwards, I proceed w my day much lighter & less in the grips of my pain. It definitely helps to have a strong support group around u, and I have that. Journaling, meditation & grounding myself to the good I have in my life has helped tremendously. When we’re suffering, the lens through which we view our world can be cone-like. I knew I had to broaden that perspective in order to deal w my new body and life. I had to also, connect with my kindness, except this time, it’s towards myself. Forgiving myself for NOT being active, productive & a super mom like I use to, was so hard to empathize. I’m still struggling with that, but learning to go easy. I watched a video on pacing, and that appears to have helped some with my LC symptoms. So I’ve been breaking down my chores in chunks. That is also a way to express self love. Other areas I’m also working on is the quality of sleep & stress level. So I find myself watching standup comedies, rather than feed my anxious mind with more anxiety inducing information. I’m taking it one day at a time, which my Buddhist philosophical beliefs has helped in how I view every minute. I wish all the LC sufferers the best, and hope we will see a medical breakthrough soon. If not, we have to dig deep to love ourselves harder & know we are MORE than what we DO for others. Our existence is valuable in itself, w or wo LC. Sending positive energy to you all. ❤
Gez, it's so inspirational to hear you talk open heartedly about your emotions. I've not been dealing with this as long comparitively, just since the begining of 2022. But it has been a ride, had to quit my medicine studies and drop all types of exercise (which I was heavily dependent on before to maintain my sanity), also all creative stuff had to go. Such a loss! Mentally it's been a rollercoaster too, every month I travel into some dark place for some days, I know something is off when I start crying when reading the news. I now tackle this with sertraline, get less poeticly sentimental but a lot more stable. Also, thanks to antihistamines I'm playing with the thought to get back to studying. Keep up what you are doing, you are helping so many of us! Greetings from Sweden
Feb 2020. I was finally able to read about 6 months ago but no longer than 30 minutes. I got your book Thursday and i read from 6-9:30 AM. a big deal for me. I can't thank you enough for writing this book.
@@RUNDMC1 even better ouraring said i got 15 minutes restorative time while reading. Thinking maybe feeling a bit of peace from understanding why i am such a mess. Thank you for all your hard work
Thank you for talking about the mental health component, this has been the hardest part of my long covid journey. They way I understand it now is that I always had a low level dysregulated nervous system due to childhood trauma, and I managed to keep this pushed down and live a life (ok, addiction, then long term recovery, but you get the drift). But then covid came along and strapped rocket boosters to my dysfunctional nervous system and I've been on a rollercoaster since, with flashbacks to traumatic events, intrusive thoughts (sometimes untrue), hypervigilence, fear of abandonment, high anxiety... I could reel off more. I think you're the first medical person I've heard talk so candidly about this, and I feel a little less alone.
Dear everyone , please know you are going to get better . Our family has been through sooooo much because of my son's long covid . Its such a heartbreaking sickness and so much confusion and crying and anger , hopelessness , the worst thing I've ever been through and way worse for my son . Theres so much good information coming each day . Love to you all .❤️
I’m so glad I found this video. I’ve been to 12 doctors and finally one doctor thinks it’s long Covid. No one has believed me and said I had anxiety. I’m experiencing muscle pain, joint stiffness, food allergies, eye pain, loss of strength, facial flushing, strange neuropathy. The list goes on. I figured there was a root cause to this somewhere. This random shit just doesn’t happen. I think there’s some answers in peptides, stem cells, NAD, exosomes etc I just cannot drop $30k on this right now. I’m going to do a steroid pack, h-1/h-2 blockers, NAC, quercetin, vitamin C and maybe IV vitamin C, Niacin. And possibly NAD+. I’m really to be well and live my life!
Gym/golf nut and healthy 36 year old struck down for 2.5 years. My health is now improving after the addition of a daily pro-biotic tablet. Whether this is the only reason or not I am unsure, but sharing this info for others.
Exact same boat my friend. Was feeling much better this summer then I got covid again in sept and all my symptoms came flooding back. Heart Palpitations/pain, Brain Fog/Dizziness, intermittent kidney pain, shin pain, poor gut health. What pro-biotic are you using?
Probiotics do help for sure. Have you checked Symprove, personally has been one of the best things I tried (I do not work for them but they are really good though a bit expensive) I was taking it for my IBS but I think it will help people that got guts issues from Long covid too
I'm a long hauler. I have been suffering for 9 months. I'm 41 years old and after I got covid my period Stopped ! (I used to be regular) I have an autoimmune disease and thyroid is irregular. I get vertigo, headaches, heart palpitations, low and high blood pressure...but worst part is CRONIC Fatigue. I can't even do laundry without feeling I'm going to LITERALLY faint and die. I'm miserable :( I used to be active, my daughter is 5 years old and questioning why I can't/ won't play with her anymore. I get severe mood swings depression ....I mean this is horrible! Please please HELP dont give up on us. Please continue until you find a cure !
Am so sorry dear, your not alone. Even me am single mother with 2kids 11 and 21 . I was 3 months in bed and also depression. But I started to do meditation 🧘♀️ 3times a day. and now I started taking probiotics since now 10 days it’s seems to help me. I even do breathing exercise.am still house bound but i can now cook for my kids and even cleaning my house too.with alot of break. Not easy but its work. Pacing pacing pacing not easy dear. I hope it can help you too. Don’t give up.
Doing the laundry, doing the washing up, cleaning the house and taking a shower or washing one's hair, all have something in common. They all cause the air you breathe to be polluted with endocrine disrupting chemicals. Sometimes it is not what we do, that triggers the immune system, it is what we breathe while we are doing it. The physical effort increases the oxygen needed, which increases the intake of the endocrine disrupting chemicals too.
For fatigue what helped me is Creatine, it helps replenish ATP and energy of the mitochindtia in both body and brain. Can get it from amazon or any suppliment store. Also Dopamine levels in the brain is also related to feeling "energetic" and motivated. To increase dopamine in a natural way sleep before 10pm and get quality 7-8hr sleep. Also get 1hr of sunlight a day as it promotes melatonin production. Latest research suggests that melatonin is not just for sleep quality but it also cleans the mitochondria of the cells, thus emabling it to vlean away the waste products and gunk to make way for energy production. Also lower sugar and carb consumption, as I felt that it lowers dopamine levels in the brain when insulin spike occurs, thus high carb foods will make you feel less motivated/energetic. If you have brain fog or memory or sleep issue post covid it can be due to low serotonin in the brain..I went on an SSRI called Fluvoxamine that was reported by others to work for post covid brain fog and sleep issues. Out of all other SSRIs this have the least side effect and you can stop it after 10months..meaning not an addicting prescription drug, talk to your doctor about fluvoxamine if you have brain fog or sleep issues. But Creatine, proper sleep schedule, and low carb diet if chronic fatigue is the only issue you have...some caffeine in the morning also helps as it helps release dopamine...but dont take caffeine after 12pm as it can hinder proper deep sleep.
I am same age as you. Mom of 2. Bedbounce for 4 months. Covid make blood circulation bad. Then, my chinese medicine doctors gave me herbs to improve blood circulation, have sunbath every morning. Then, I can do exercise, yoga again though still lots of symtoms and CFS. But, I can work from home, do regular tasks. I think The key for this CFS is improving blood circulation. So yoga and sunbath helped me a lot.
@@sadnagoso456 thank you for your comment I have an update that will give you hope. After 10 months of long term covid, one day I woke up, and like magic, I felt better. I didn't have vertigo, no headache , and the fatigue i was experiencing was almost gone,,,after 2 weeks of feeling better, I went back to see my doctor, he said that due to covid my hypothyroid had converted to hyperthyroidism which was causing alot of my symptoms. He worked with me on regulating my thyroid medication, and he also looked into my breathing issue (apparently covid also scarred my lungs which was causing shortness of breath and fatigue). Please note ALL other doctors I went to during those 10 months did not catch the fact I now had hyperthyroidism. Its been 1 month and I can happily say I feel GREAT ! It feels amazing to wake up feeling good. I thought this day would never come. One thing I learned was "dont give up!" If a doctor is not taking you serious, go to other doctor. You may have something that was triggered by covid but it can be cured. I hope this gives you and everyone on this thread hope. There is an end to this illness. I hope the end for you is soon.
I got POTS/ME at age 46 in 2016 after an autumn severe cold. Long Covid has brought so much more knowledge to the overall broad symptoms. And this channel has condensed it perfectly in an user-friendly way while maintaining a scientific approach. Well done. Thanks!
Your book offers so much information about LC! Great resource! Thank you Gez!!! The first 12 months is definitely a roller coaster:((( It’s so difficult to describe it.
I have had long covid for almost 8 months, and have seen so many docs for treatment: now I have a doc for my headache, one to treat my fatigue, one for insomnia, one for my PoTs, and another one for my mental health. On top of that, I have acupuncture and massage, but my fatigue and brain fog are still so severe that prevent me from going back to work😢 thanks for sharing the insight on how hard it is to live with longcovid! I am really hoping those trials come out sooner. Looking forward to the longcovid book!
I hear you! I’m at 10 months and still struggling. However, feeling month 9 forward I’ve perhaps turned a corner with some relapses along the way. How are you feeling these days?
Gez, this was great! I recommended you to show up on Dr. Drew in the US. The LC community is being gaslighted somewhat, the same way the ME community has, and your voice is so important, to rectify that. I have ME from sepsis 7 years ago, and I relate to everything you say. Hang in there. You'll eventually be incredibly thankful for the things you're able to do, little and big, and eventually, you'll be better. I started a greenhouse 3 summers ago, and do the bare minimum, but it gives me great joy.
rhey call it ME but as I said to a doctor of mine, how do you know if someone has ME since you don't do SPECT scans to show encephalomyelitis LOL. If they don't do a scan (they don't here in the UK) how can they call it ME???? I had ME/CFS for 16 years and it just went away suddenly.
Appreciate the discussion of the emotional side of these conditions. I've had ME/CFS for a bunch of years and work hard at emotional stability. When my thinking goes down the rabbit hole, it is always an indication that I need to rest - well more than the usual amount.
Sick since 3/2020 Tried just about everything and no real improvement to mention. I have a Dr that lets me try just about anything I ask for. I have given myself permission to feel sorry for myself and I now cry. Yes, it hurts while crying, like Gez mentions. I cannot make plans. I go from bed to couch and my bones ache from this. The hopelessness is a major part of this condition. Thanks Gez, for mentioning this topic. I am sorry for all that suffer so greatly. At least we have Drs. like Gez trying to figure this out. Thanks Gez
@@yaakovmiller7342 I can tolerate Natto K, but Serra made me black out, twice! I am afraid to try the Lumb. Now that you reminded me, I may do another round of Natto. Thank you.
i was fortunate that the first year and a half after March 15 2020 of long covid, I was working from home, that rollercoaster did not destroy my life because of that. The return to work was wild... but it was a few hours a day a couple days a week at my own pace and then I switched to more of a 'desk job'. I am super super lucky and I cant imagine what its like for those trying to maintain a full schedule and relationships with this. Much luv and respect. I remember crying everyday during that first year and a half... not sure if thats the brain stem, lol, but that crying was super helpful for me. It stopped when i found a social outlet online where i could connect from home.
I just want to thank you for all of the information on your channel. Back when I HAD long covid I watched all of the expert panel discussions and followed the low-histamine diet, got anti-histamine prescribed by my doctor, and followed the supplement protocol. I was able to reduce my symptoms (low energy, and post exercise-malese) in about a month and slowly get on the road back to normal. After about one month, I was able to stop taking the anti-histamine (I noticed it started to make me sleepy - whereas when I started it gave me energy), and by three months later I was at 80% of my old self. THANK YOU! Just knowing that I was not alone and being able to name the symptoms was an incredible emotional help. But you also gave me the tools to work on the resolution. Thank you and I hope your Handbook will get the recognition it deserves. Ciao, from Italy L P.S. What a shocker it was to re-introduce caffeinated tea!! P.P.S. Had mono as a teen, too.
I’m in tears right now watching this podcast. I have found it so hard to describe to family and friends what I’m experiencing. Gez is exact in the description of the physical, mental, and emotional trauma this monster virus brings with it. So amazing that people around the globe can share the same symptoms post COVID. At least now, I don’t feel so isolated and alone. I have hope in the ongoing active research, the suffering experts personally invested in the cure, and most of all in God and his healing power. THANK YOU so much for this podcast and thank you Gez for sharing your story and testimony about treatments, supplements, self-care, and discussions with one’s medical team that might help improve the journey to total wellness post Long COVID. I’m purchasing the book! Wishing you and everyone wholeness and wellness. ❤🙏🏾
@@RUNDMC1 I just started your vitamin stack . Im doing D3, c , niacin and zinc but im wondering when should I taken the antihistamines (zyrtec) do I take it all together ? Or should I wait a few hrs to take it ? Thanks for all your hard work and research. You're helping so much people giving us hope and a voice ibcant thank you enough
"Yes" to everything that is covered in the video, that's my life today, it's almost three years later since the initial infection. Striving to stay in a state of gratitude, the journey has been one of self-discovery, and the acceptance my pre-covid life is a chapter now closed. My love interest pre-covid is settled with someone else, and I am glad they are both happy. It's a one day at a time deal for this long hauler. I've found some things that work for me, and thanks to Gez and people like him, I hope to continue to improve.
It is all to do with the Vagus nerve. Do vagus nerve stimulation and vagus nerve breathing exercises. The answer is in your fingertips The vagus nerve is stuck in the sympathetic mode ( fight or flight ) Take a deep breath using your stomach muscles and breathe out through your nose. If the left nostril is dominant your vagus nerve needs reset
I figured this out myself 2 yrs ago but my dr gave no input.. probably rehab would help or finding breathing exercises online! I do some but my brain fog has me forgetting every few hours!
I’m in month 29 of long Covid. I feel like a shell of who I was. It’s horrific. There’s so much anecdote and trial and error on the treatment side. Fortunately I can work, and drive, (with extreme misery) which was impossible for a while. I can’t do anything else, all my hobbies, sports and activities are a no go. Work, come home, sleep, that’s it. Can’t travel, socialize, take any alcohol, nothing. I’m barely existing. If anyone figures this out and comes up with a treatment I’ll kiss their feet.
My fog comes with sinus issues. My head feels tight, I sneeze 6xs every morning when I wake, runny/stuffy nose, random sharp pains in my head, I feel sleepy but not sleepy. Im just sitting here like fuck it. The fog is always there, im not myself, this shit sucks. I feel like anyday now I might have a heart attack or stroke. I wish people understood, most never even heard of Long Covid. Smfh😢
@@goeasyfitness2339 I can honestly say I am much better than I was from my 1st visit on Jan25th. No more heart flutters, sharp pains in my chest, head tightness. The biggest thing that still lingers for me is my brain fog. It's still there. Hopefully in time that to will go away.
@@goeasyfitness2339 I just looked at your channel. It seems you were very fit before this long covid or Vax injury. He specializes in vax injury but he helps people like me to who contracted long covid through infection. He bring people like you back to full health. Definitely see him. UAB and St. Vincent's was no help to me. UAB said I had vertigo, St. Vincent's gave me depression pills lol smfh.
@@msmarauder37 yeah I was a personal trainer then I got the vax and covid and that put me out for the past two years. Been trying to get help only to be gaslight and told i have anxiety even though they see changes in my ekg. The medical system is collapsing. I'll never trust our government with my health ever again. Haha I hope so I'm definitely hopeful 🙏😊
Gradually accepting all my symptoms over the last year point to long covid, now the challenge of getting my GP to accept the same and help me in a meaningful way instead of just never ending blood tests that show I’m absolutely fine.
Hi James, having to go through that too and it is not easy. a few things that helped me. Ask for checking Cortisol level and if possible synacthen test. This will show whether you producing cortisol properly. For me it was found that covid had affected somehow the production of cortisol. Worth checking.
This is the only channel that ever gives a clear picture of helpful resources and hope so thank you so much for all the work you’re doing (March 2020 long Covid patient)
I was a fit 57 year old postman 9 weeks ago then collapsed 4 weeks after covid. They send me out of hospital in a wheelchair 6 days later and told me it’s long covid. In the 9 weeks of wanting to die every day (symptoms multiple and debilitating) I’ve been rushed to hospital 5 more times with crazy BP and nausea that lasts days on end with zero sleep. The GPs and hospital doctors I have found have zero knowledge and at times, hostile towards me and dismissive. One suggests I am mentally ill only. I had no reason to be mentally ill previously. I have felt suicidal because of psychically terrible symptoms and insomnia. Gez videos are awesome, although photophobia and crippling nausea means I have to pace the watching. I also have terrible vertigo with BPPD. If I do any light food prep or say, take a shower I pay for it later. The brain fog and confusion is scary.
@@RUNDMC1 I have Gez. Although there is no low BP just high. The autonomic system is broken so it fits. Mr Gupta got it spot on as I had a stress related episode AFTER covid that shut me down (loss of consciousness). I caught covid in Thailand, stressed if I could ever get back then went back to work on arrival to Plymouth. A dog bit me 2 weeks later (antibiotics) then 24 hours after my last set of antibiotics I was put on them again for stabbing pains in my ear (Possible covid eating that nice inner ear protein). I was gobsmacked after Mr Gupta said your brain shuts down in a perceived threat. I lost consciousness, boom, writhing with delirium in a hospital bed with hallucinations (covid in brain). I watched you say about viral persistent Gez and my eyes are bizarre. Pin prick pains, sensitive to everything and bright red after a shower. Impossible sometimes to focus. It’s a mystery but your wonderful videos are flushing out Colonel Mustard 😄
This is interesting Gez to take a look at. Great compassion from him and he is seeing links to neck/vagus nerve causing most post covid symptoms ruclips.net/video/x2Wz8kp5ClU/видео.html
@@pauldavid167 By chance are you also experiencing tinnitus and a tight neck? Some of your symptoms sound like some of mine. I suspect that I have been dealing with MCAS since mid 2018 with minor symptoms my whole life , the doctor paid no attention and I had to figure out ways of patching myself up back then. Since april 2022 when I had covid my symptoms went up 100x again to the point of straight up having blood diarrhea multiple times a a day (they are paying some attention now but the public health care takes its sweet time and are somewhat clueless). Several things that helped me, still do a bit (just barely) but one of them when I have tinnitus+photophobia+tense neck is 2 grams of choline bitartrate, if it is not that, it is sodium (but my BP is low) or more rarely potassium. Usually when I am low in choline, the tinnitus ,tense neck and brain fog would be worse, when I am low in sodium the nausea and muscle pain would be worse and my heart rate will be high, when it is the potassium the tiredness is worse but all simptoms are somewhat present when any of those goes wrong and indeed have only fully left me for a few rare days since covid. When I am in that state it is very hard to tell apart which is which and my gut won't tolerate them all at the same time or I will go straight to the toilet again, and sometimes it is all of them and I may or may not manage to prop myself up in a given day as multiple doses may be needed. In short, there is a chance that some of your symptoms may be low choline.
Thank you Gez. Hope you are having more better days than less. So happy for you to be putting the resource book together. It's been such a light in this process to have you helping us all figure this out. Hard to believe we are approaching three years.
@@RUNDMC1 yes it has been. exhausting on so many levels, but I'm so glad you are helping get some answers of possibilities and sharing understanding out there. It means so much to have you in our corner. Truly. Thank you!
I’m the March 2020 cohort. As usual you articulate things so beautifully - but also tell it as it is. It’s so difficult to get anyone to understand the misery of the illness. Thanks for another great interview. Looking forward to reading the book. Ps. I miss coffeeeeeeee!
This makes me feel so validated because every single thing Gez talks about describes my new life with long covid (that no one understands) and I am extremely grateful that I found this video.
Have you been diagnosed with ME/CFS? if not, why not??????everything you talk about on here and all of your videos describes ME/CFS. I am a 20 year sufferer of ME after a bad viral infection and was left in the same state. I do not understand why anyone with all these symptoms are still saying they have 'long Covid'. It just baffles me!
Thanks again, Gez! I totally relate. You’ve been a huge emotional lifeline. Appreciate your research. I think I’m at the acceptance stage for now, thinking this is my new normal. But I guess we’ll see what the future holds. Excited to get the book!
Thanks Karen :) I’m more or less at acceptance but that doesn’t mean there aren’t periods where the frustration and loss come back and hit you pretty hard.
Thank you for verbalising our condition and our struggle Gez, as a fellow sufferer, 65 yr old, normally very healthy and active. I've had LC for 2 years now, symptoms of daily afternoon into evening, intense fatigue and brain fog, with breathlessnes. Have tried various supplements, which help for a month or two only. The time I feel whole and normal, is my thrice weekly Taichi and Qigong classes. I need to ensure I'm well rested for the classes and for those 90 minutes, I'm in a state of bliss. 2 of the 3 classes, I am the teacher. Makes sense that I should only practice Taichi and Qigong, all day, everyday, which, as a teacher I'm striving for but there are all life's other requirements that need my energy and attention. I live in hope and faith .....
I didn't realize so many others were still suffering from long coivid also. I deviated from my anti-inflammatory diet and paying dearly for it but it is worth the effort to adhere to thank you so much for your help
Thank you for expressing the reality of illness that is so often suppressed due to societal expectations and taboos. It takes profound courage to be as vulnerable as you have been. I wish you every blessing on your recovery journey. Nothing stays the same. The path to recovery can be a rocky one. Always maintain a hopeful perspective. Be very gentle with yourself, it is a war of sorts that you are engaged in. Both internal and external. Mostly because this is such a new condition and causes are largely unknown. I can relate having had M.E. twice and after effects continue. So be assured that you will be in my prayers. Take care 😊
Awesome interview Gez, as always! One on the thing that I discovered back in August is that I'm now very sensitive to monosodium glutamate, which is present in different forms in almost every food at the groceries store. By avoiding it, I can sleep better, I no longer have tachycardia and it has given me back some energy. Not all of it, but some. I'd say half of the fatigue is gone and my brain seems to work better, less foggy.
I’m very tired of the the swings of feeling better slightly for a week then seems full symptoms come back some times it feels like it’s getting worse. Going on low histamine’s diet has helped reduce the length of my down days of no energy and brain fog. Now that fall is here seems symptoms are worse summer seemed to be better months for me. How do you get signed up for research autopsy when I pass which feels like it will be sooner rather then later. My wife passed 7 months ago with long COVID symptoms and corner deemed no autopsy needed. I was pissed and later her doctor was pissed at the corner. I’m am tired and being alone doesn’t help. Trying to change the loneliness but you don’t make the best decisions when you’re in pain and depressed. Thanks for letting me vent.
I had the Omicron variant back at the end of March 2022, tested negative at the beginning of April and have had Long Covid ever since. My persisting symptoms are extreme fatigue, extreme brain fog, balance problems and vertigo symptoms, as well as not being able to think as quickly as I could before. The balance problems and vertigo have been the most debilitating and seem to get agitated and get much worse if I push myself with too much movement, even leaning my head back past 90 degrees causes extreme vertigo for hours even if i do it just for a few moments. I can feel it all in my right ear, along with periodic high pitched noises that come and go very quickly, just above my ear is also the part of my brain that hurts if I push myself not just physically but also mentally. I was prescribed Betahistine Dihydrochloride which has helped a lot with the brain fog, allowing me to think clearly for the first time in 9 months, but the balance and vertigo still persists and keeps me from doing too much movement or exercise. The other strange thing is the fatigue and not being able to think as quickly as I could before, I used to travel so quickly down the roads of mind and now I have to trudge along in second gear otherwise my brain physically hurts! Its nice to see I'm not alone on my journey but this whole things still feels so lonely, has anyone else experienced extreme vertigo or balance problems?
I've had a very similar LC timeframe. Balance issues much better now and starting to think quicker recently too. Headaches and fatigue still huge issues though. Overall some improvements so I hope this is of help to you and you also see some improvements soon.
I have had the exact same symptoms as you. I found an NP who recommended a cocktail of NAC/Oregano/and Tincture for 6 weeks to eliminate SIBO which WORKED! Got rid of all my brain fog and vertigo and thinking issues. I really hope you check out SIBO elimination for yourself to be rid of it as well and I hope it helps you! Oh and the brand of NAC and Oregano was “designs for health”.
My Long Covid is the SOB, cough, headache and fatigue. 71 F, when I was first positive for Covid Oct 4th and then neg on Oct 12th when I randomly tested negative. I had felt better for a few days but then the fatigue hit. I had taken Ivermectin pills for 5 days when first positive, then when fatigue started I did 8 days more. I now have an inhaler and a cough med perls , benzonate 200 mgs. Now Nov 22 the extreme fatigue seems to have eased up. My cough is just a few times in morning and SOB is way better. I am not very mobile but try to do chores then rest. Ps I have been on Prednisone 10 mgs average dose for the last 6 yrs for PMR and GCA.
As a 48 year old Long Hauler from March 2020 I have tried many ways to get better (thanks to you and you alone Gez), including flying to Cape Town and taking anticoagulants. Nothing has made me feel like I have felt the last 5 days. I know its early days but HAD to share it with you. On a Long Covid group someone mentioned how they recovered from taking antidepressants, I always prefer natural remedies if I can so I researched and am trying RHODIOLA. Up to now I have been taking 2x 500mg but might reduce to one a day after further research. I feel the best I have felt since this who nightmare began. ways I feel better: my muscles are much more relaxed, I can think more clearly and feel more considered and careful doing stuff, I feel stronger walking up stairs for example, I have more energy in general and feel a lot more positive (Oh yes, maybe life is worth living.......) cognitively I am taking care at this early stage. Overall I feel SO excited but am trying to rein myself in so I don't over do it, also what if these feelings don't last... then I will take a nose dive! Anyway HAD to share this with you and your followers.
I'm a march 2020 victim too and I got better after 16 months and 6 months into my recover suddenly I got Infected again with the new covid variant and I had relapse and im on square one again . So watch out. If you want a very good supplement for anxiety and mood look into Serene Saffron by Xtend -life and take their fish oil too! They instantly reduce anxiety in my case . They address every area of health almost . Best wishes
I have "Pots" . I got it after an infection in 2016. Not from covid... Life is pretty bad and I have tried so many things that haven't worked. Even though I don't have long covid, I subscribed to the channel in case I find something helpful.
@@carmella88 yes. Some days are worse than others. I have never had a normal good feeling day in over 6 years. I also know many people who have been sick longer.
@@carmella88 I ve tried, beta blockers, midodrine, I've also tried antihistamines.., water, salt... all types of supplements, yoga, meditation, all types of different diets. Gluten free, dairy free, GAPS, keto, paleo, etc and trying to very slowly exercise, pacing and I ve had all types of testing and imaging. Found brain lesions but not MS, say it's likely migraines or ischemia. Found hypothyroid and taking meds for that.. Found arthritis and nothing helps with that.. Hopefully you can find something that works for you or maybe you'll get better over time.
I’ve had Covid twice (1st 2020 2nd Oct 2022). After about 2 weeks of moderate symptoms the fatigue seems to linger on and off for several months after for me. I’m fortunate it wasn’t worse then this
15:20....YES. On top of being type I diabetic, being a woman in early 40s (hormones, pre menopausal), and having a wicked acute phase with NO breaks, went right into long covaids (felt like HIV, that's why I say that), worked in a moldy place, have allergies, hyper immunity, and yes yes yes on all. I would tell people, please stop saying "praying for speedy recovery"...at the one, then two year mark?!? Flippancy! I'm writing a book, and that's part of the chapter -- kidney stones -- obstructed renal calculi, in the ureter....is easier than this. It's all encompassing, and debilitating 'deep down.' The "you look good!"..I'd say, I'd rather look bad and feel like I did! Feeling like it's vascular dementia, it's also scary with the loss of very short term memory.....it's been a multi-approach, and quite lonely! And I'm a proactive person, but with this. I'll read your book, and I'll send you mine :) Yes on the emotional. I "had" PTSD. Now, it's c-PTSD. especially seeing people being murdered before your eyes in the hospital, and I was almost one of them
You are amazing!!! You've just summaried so many things all my doctors within the last 2+ Years haven't been able to do. You are fantastic and are great help. I will definitely be trialling these new techniques!
In case it is helpful for anyone the supplement regimen I have found helpful for long Covid patients is omega 3s, NR (precursor of NAD) NAC (anti inflammatory) b complex and quercetin (flavonoid and anti oxidant) it doesn’t surprise me that Niacin alone, especially if non- flush doesn’t do much….. I think NR is a better NAD precursor. I have also found iv NAD with glutathione can be effective.
Thank you Gez! I think you are spot on with everything you said in this video. Good luck with your book! I'm sure lots of covid clinics and newer upcoming long haulers will all benefit from this. Thank you for being vulnerable and telling the truth as well. Speaking of this, I should also be meditating much much more than I do now ( which is next to never ) Thanks for the reminder. Take care pal. I hope you and all other long haulers ( including myself ) can get back to our old normals.
Gez,thanks for making these videos, they help people suffering in the long covid community drastically. You stated that you can only eat a few different foods while you have been going through this long covid journey. I'm able to eat about 7 different foods, and I'm about 19 months into long covid. Just out of curiosity what foods can you eat now? Have you been able to try new foods? If not, when can you begin to try new foods? Lastly, maybe my food list can help you incorporate some other foods. I can eat gluten free oatmeal, gluten free crackers, gluten free bread, little bit of apple, organic peanut butter, and lastly vegetables, (boiled or steamed broccoli, carrots, asparagus, cauliflower, and brussel sprouts) Maybe this list can help. Thanks again for all that your doing for the long covid community.
Hi Nick, I was pretty much just limited to the ‘safe’ foods on here: www.mastzellaktivierung.info/downloads/foodlist/21_FoodList_EN_alphabetic_withCateg.pdf
March 2020. Still have varying symptoms. Seeing functional dr for almost 2 yrs . Found to have reactivation of EBV(latest info is MS might also be latent EBV) & Lyme/coinfections. Treating with microcurrent and mainly meds from functional md. Was doing better until wasp sting 3 wks ago. Which caused a dramatic back slide a little better now. Good luck all.
I'm now on a cocktail of antihistamines, vitamins and now heart medication. Never has a heart issue before 2021. Got it after 2nd does of Covid-19. Missing heart beats and raised heart beat when doing activities.
If I don't take my medication regularly I'm finding my chest and along the vegus nerve tells me to tell me to take my medication. It takes a while for the pain to ease after taking the tablets. Today it told me it again.
I also find if I push my body too much and keep going for too long, my body goes into a fizzing sensation and tells me to shut down my body and eyes and rest.
Thanks for the good talk. I have found many people have a persistent glutathione deficiency. Glutathione is the primary way our bodies defend against the superoxide produced by COVID. Many of these people cannot restore their glutathione levels without help. Many also have issues with histamine and inflammation in general. Glutathione and lipoic acid address both of these issues. There are a large number of studies in the literature linking low glutathione to COVID issues, yet few are using this cost-effective treatment. I have seen it work over night many times in long covid.
Hi Gez, I've come back to this video just as a point of contact for an idea that you may or may not have already considered. When I read articles or watch certain videos I can have panick attacks in fear of my own death as I have chronic chest inflammation likely including my heart. I've listened to your videos for some time now and I never have that feeling with you as you are sensitive to the information you are providing and tend accompany symptoms with potential solutions even if that is just rest. Also lucky for me I am past that phase now but lots of people have alot of fatigue and seeing reviews (all posative) on your book some have suggested it's taken them days to read when usually would have taken hours. Those two things combined had me think you should also offer this as an audible audio book option aswell if you were able. Just an idea to try and help my long covid friends. Wishing everyone well in recovery.
This is the most frustrating thing I have ever experienced in my life ,Random dizzines ,fatigue, in fact every Long covid symptom I think I've experienced , Currently on BP medication and a Beta blocker ,very helpfull, but to get to a point ,No matter how bad I felt every evening I would do 45 minutes of retention bands workout and increase slightly every month ,Now I do a full blown heavy weight training workout and run twice a week, just keep trying to improve your situation no matter how hard it feels your body starts to adapt the more its put in uncomfortable situations, trust your body to start adapting and it does ,I literally thought I was having heart attacks in the beginning but I pushed through and two years later I feel 100 times better ,you just have to allow your body to do what it's built to do and that is fight and heal itself as best it can , What actually helped me was the more I pushed through a workout the more I convinced my body and mind i was getting better not worse and the longer you do it the more you start to believe trust me.
@@wildhorses6817 Absolutely , I had Crashes literally every few days ,point is I pushed through anyway, not recommending this to anyone but I felt my bodies natural memory of how I used to feel started kicking in.
Are anti viral medications indicated for LC ? Have they been tried ? How are they tolerated ? Why anti histamines and not anti virals? Why as a person who has had CFS for 20 years, has Ai and past EBV, have I never been offered to try anti viral meds ?
This is the saddest thing I've ever witnessed! I watched my fiance go from the most vibrant, healthy, sweet, outgoing woman I've ever met, to 2 months after the poison, fatigued, hair falling out, depressed, in pain, zero sexual function, so on. And we just can't seem to get help! I'm reaching out to as many Drs as I can that are claiming treatment and healing. So I'm praying for an answer. She's only 27yo, and has crashed so hard! Says there's a Vail in-between her and joy. She cries so often now. If I hadn't known her before the poison, I wouldn't have believed this! Any advice, please please give it! We've been to several Drs, (pointless waists of funds and time and hope) the ones we've been to who don't have answers seem to just not care. They act like your a nuisance. She's on hormones now, AT 27 AND THE HEALTHIEST WOMAN IVE EVER MET!! And it's only helping a very little. And still has flip flops back into the crash.
What has worked for me is B12 and Lemon Balm Drops from the brand Vemergy. It saved me from being totally handicapped. I am working on my health at this moment, now my platelets are low, let’s see what my doctor will do for me now. I am afraid, but at least I know that pure B12 WORKS, I can’t believe I have energy after 1 year and a month. Thank you for this video ❤🙏
Love these videos. For my lasting long-covid issue, I cannot find anything to help. 22 months out and struggle with lightheadedness/dizziness every single day. I can't function on most days and it's horrible. Doctors have not been able to prescribe anything that helps. Still holding out hope there is an answer out there.
What should the antibody count be after 9 months of LC? Just tested at >2500 (0.0 - 2500 U/mL standard) on the SARS-COV-2 SPIKE AB, SEMI-QUANT, S. The mental part is huge. Especially when you feel people just don’t believe you anymore. I’m semi grateful for the daily fever spike I get. I carry my thermal thermometer and when it spikes I record it. It’s actually tangible proof to show my wife I still feel terrible. (11:35 note to self. Moved to Florida 2019). 14:54 felt this in my soul. I’ve had mold sickness since 2013 and have said many times I’d rather have cancer than that or this. At least people would see my bald head and say, oh, he’s still sick.
Same. I want to die most days. I was a fit postman 9 weeks ago then I collapsed, kicked out of hospital in a wheelchair 6 days later and arsehole GPs and hospital doctors telling me there is nothing wrong with me or it’s mental illness. Thier lack of knowledge of LC is scary
@@pauldavid167 so sorry to hear that 😔. But it's still early in your recovery. It can get better with time. I am 16 months in. It's been a hellish rollercoaster. There were some improvements, but right now I am back to square one. I had a huge setback in October.
Thank you again, Gez. And your community, too. Reading the comments helps a lot, feeling less alone with this condition. Edit: For those with muscle pain eventually ACC (Acetylcystein) would be helpful. My pain is reduced from 6 to 2-3 (Scale 1 to 10) with ACC 600 mg daily. I write it down because it has less potential adverse effects and (I think) it's available without prescription in most countrys.
Gez, I love that you want to help in any way you can with the mental health tips intended for people suffering from long covid. But wouldn't it be better if we found some way to resolve the core issue? As Evan said, finding a resolution? I know it's probably obvious to say, but surely there's got a be a final solution to this viral persistence.
@Michael the research is taking way too long in my opinion. Yes we know it takes time but 3 years already.. ?? Are they waiting until it’s been so long that the damage is permanent and people can’t heal? For all I know didn’t take long for vaccines to be developed and administered!
I successfully self-treated a main symptom of Long Covid, significant heart palpitations, by regular, daily doses of Ibuprofen. Being of an analyst mind, I researched my chronic fatigue and found a medical paper submitted by a cardiologist who successfully treated a patient with post-Covid myocarditis with higher dose Ibuprofen, an anti-inflammatory. I followed suit with lower dose Ibuprofen, and my very significant symptoms vanished. However, I still suffer from daytime sleepiness.
Still suffering with long covid since March 2020. I took a full allergy panel to rule out. I found out my only reactions were level 4 /10 for cats and 3/10 for dogs. It's not allergies
Could be? I have a flares that are sometimes tied to hormones( I've noticed). Never ok with breathing, just at what degree of SOB and chest pain/tightness. Immunologist saw me last and said I'm a long hauler. She tried antihistamine route with me, but I don't think it helps. Pepcid/loratidine. I am starting nattokinase and serrapetase next. I will also be trying bromeline and NAC.
The late Les Simpson, Ph.D., who studied the hemorheology of ME/CFS as well as a number of other chronic diseases, noted the increased proportion of non-deformable erythrocytes in these conditions. This increased number of non-deformable red cells causes oxygen-deprivation in areas served by the microcirculation - muscles, cognitive areas of the brain, the endocrine system. This can account for many of the symptoms of ME/CFS - muscle failure after minimal exertion, and a very rapid shift from the aerobic to the anaerobic metabolism; brain fog, and dysregulation of appetite, diurnal rhythms, body temperature. (The ongoing low fever, sore throat after exertion (!), painful lymph glands seem more relevant to ongoing immune response, which suggests that the immune system is on red alert - as though it is looking for a virus that it can’t find, or can’t fight. On this subject, it’s interesting that many people with ME/CFS never catch anything else, and others catch everything going - this supports the concept of a hidden virus - and fits very well with Dr. Bruce Patterson’s theory about monocytes carrying viral fragments around, stimulating inflammation - and his injunction against exercise for this reason.) Back to Les Simpson’s work: he did not claim to know what the cause of the increase in non-deformable erythrocytes, and he did not claim to be able to cure ME/CFS. (And he wasn’t selling anything that he recommended) He found that some patients symptoms were very much improved by taking 6 g of fish oil a day, or 4 g of (genuine) EPO, or pentoxyfilline, or vitamin B12 as hydroxocobalamin. As too often happens, while ME patients were very grateful for the help his suggestions offered, researchers seemed more interested in disproving his information. Les specified that the altered erythrocyte shapes would only be seen in samples which were immediately fixed - the usual practice of leaving blood samples in saline for 30 min allowed the erythrocytes to resume the usual biconcave discocyte shape. Despite this, one research paper which purported to dismiss his concept had ignored his protocol, with the consequences he had pointed out. Another claimed that EPO didn’t help. Les responded by testing samples of EPO and found that of 11 brands he tested, only 4 were genuine. As I am not a scientist, I can only ask questions of those who are. Professor Rezia Pretorius has said that all of the 150 symptoms of Long Covid can be accounted for by oxygen deprivation. They know that microclots cause lot of the problems. Dr. Amy Proal has found microclots in ME/CFS patients. One question I would put to you all is whether these non-deformable erythrocytes might be the precursors of microclots. The next is whether any of the suggestions Les made for improving the blood flow situation might have uses for Long Covid patients. And while I’m at it….NICE has finally paid attention to the experience of ME/CFS patients who have been made seriously worse through exercise, treatment based on the idea that it is psychological, the belief one is harmed by exercise must be changed, and the patient then treated with graded exercise, assuming the problem is deconditioning. The very powerful lobby of psychiatrists promoting this treatment have protested violently when NICE finally revised the relevant guideline, advising against exercise. These people now seem to becoming active in providing treatment programmes for Long Covid patients, encouraging them to ‘push through’. These programmes are based in local gyms. The massive public health problem created by Long Covid is going to become an increasing disaster if this approach is allowed to create the complete incapacity, intractable pain, lasting for decades which it has done for so many sufferers of ME/CFS . WHO, in advice for Long Covid treatment, states that any patient experiencing PEM (Post Exertional Malaise - worsening of all symptoms - after exertion should not exercise. I fervently hope that all these Long Covid programmes will have to recognise and abide by this injunction. But I don’t think this is happening. Finally, Ramsay prescribed six months complete rest (no one would dare to do that now!). It may be that whatever the cause is, if the immune system is given all the patient’s energy for long enough, it can finally sort the problem out.
What type of issues are people with mould exposure experiencing? Lung issues? I have a small amount of mould which I recently removed. My LC symptoms are fatigue and brain fog. No lung or breathing issues though.
Good question. I don’t experience any breathing issues, but fatigue, dizziness, cold feet, and brain fog, although that doesn’t really describe what’s actually happening to my brain. Can’t find words for it. Any relief on your end?
Great video as ever! Thank you! Are you thinking of covering covid weight gain / weight loss? I’ve been on the gain side and I think it’s been caused by dysbiosis. Getting a food sensitivity test & cutting them out & adding YourGutPlus probiotics have helped me sort it. First week without dairy I lost 4lbs. It also ties back to the whole microbiome piece. Am finding more and more ppl on Twitter and in forums who are struggling with this aspect and thought it could be good to share info to help on your platform. Keep up the great work!! 🤩
I am almost sure I am dealing with this on some level on top of multiple life issues and possible mold issues. Originally I thought it was just trauma but its 10 months now and I’m nowhere near back to full strength .
The worst part of it is losing a massive part of yourself. I have had little sympathy from so called freinds sadly I had to disconnect from them to save my mental health. Fortunately I have some new people around me who do understand they see me fighting for my health everyday.
"losing a ... part of yourself". I can relate.... Said exactly the same sentence last week. Who am I, not able to do 90% of things (job, hobby/interests, social interaction) I've done before Covid? Who am I struggeling with daily basic life issues (household, selfcare, sitting upright on bad days...)? Losing control of my body, losing autonomy. It's so hard.
Absolutely agree with every sentence 👏....fn A. I am barely hanging on.....my longcovid is busting me up!!! Cause having to DEAL with Trump has caused so much energy for nothing....im exhausted. The man committed, Espionage. Leaking classified information. And a attempted coup, with 5 dead people after. WHY, IS HE NOT IN JAIL? O forgot about Treason- punishable by death. Problem is, I have longcovid. So I can't deal w this. I'm exhausted. Millions of Americans feel like I do....but longcovid is just killing me. I feel I will never be me again. Yes, a part is gone. I read that someone w a brain injury heals slowly. Very slowly. And I have a TBI from a car wreck in 2013. I miss me. Now I kn how someone feels w dementia. Or a family member they love with dementia. I must write EVERYTHING DOWN. OR IT WILL NOT BE REMEMBERED. EVERYTHING.
I'm scared and sad.
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@@beknight9399 I'm doing all of that...God thank you for sharing!!!
I’m glad you found a new crowd. When I was extremely sick from mold and breast implants, not one person helped me, and in fact they laughed behind my back that I was a druggie and a hypochondriac.
Now I broke my shoulder and have Lyme and Babesia (a live form… not the antibodies. I’m the caregiver to my grown son who has mold toxicity from his father’s house, this manifested latent Lyme, king civid, and now neck issues; CCI, and I’m using one arm to take care of him. He gets Lyme rage and can be nasty, which makes it worse.
His father has not had his house remediated yet, so for the past two years, he’s been here at nights and weekends to visit our son. This has ruined my life, and I’m ready to cash it in.
Got covid in March 2020. I see lots of us super long haulers here. We are lucky to have survived that wild strain.
The fatigue is my biggest enemy. Antihistamine helped the most, but still have bad days. In bed all day on the bad days.
Thank you Doctors for your perseverance to try to help !
I wish you ALL a full recovery, SOON!
I had CFS for 16 years. Fatigues and stuff came and went. Then one day it just went away. The body is a miracle healing organism.
First got Covid March 2020 and was only sick for a month. Then Got Covid January 2022, and have been suffering with debilitating symptoms since. Decided to avoid antihistamine since they are linked to dementias.
@@jonathanisrael9714 in the same boat as you . Feb 2020 and jan 2022 its been a rough journey have a really hard time taking care of myself. But trying to find ways to manage to be self sufficient. What are your symptoms if you don't mind me asking ? I show obvious signs of pots on top of long covid . Debilitating fatigue, excercise intolerance, cognitive function out of wack, dizzy light headedness , if I do to much my whole body shuts down and I just lay down for hrs and suffer until it goes away . Im 29 unvaxxed wish you full recovery
@@kylechavez7961 it's so unfair to spend so much time out of sync. I identify with your symptoms. I really hope we find answers. Sadly, the coronavirus and the injection contain gain of function research and spike protein. I also never had the toxic injection. We need to keep eliminating the pathogens and parasites contained (in our case) in the vector (coronavirus).
@@kylechavez7961 There are POTS and Dysautonomia groups on FB.
Try making an electrolyte solution ~ 6 level teaspoons sugar and 1 level teaspoon salt in one litre of water. I don't like all that sugar so I make mine with an isotonic drink and add the half teaspoon of salt to a litre of water. It helps with the crazy dizziness. I also wear a Garmin watch which monitors my heart rate. The moment it goes too high, I rest and then resume working when I feel better. I would like to try hyperbaric oxygen and go for vitamin C IV infusions. I swim a 25 meter length at the gym, stop, and do 5 more lengths at my own pace, follow this with a sauna and then a cold shower to assist vagus nerve function. Don't over exert yourself as you will probably get Post Exertional Malaise and land up exhausted. Niacin, as nicotinic acid is a suggestion, as is Vit D, Vit C, Zinc, Quercetin. Meditation and breathing are recommended. Drink water (ensure that you also have the electrolyte solution to stay hydrated). Pace yourself and understand that any anxiety being experienced is as a result of what you're experiencing and in my view, has much to do with toxicity of the central nervous system. I'm a long time Rife practitioner and am using Rife frequencies to eliminate pathogens and parasites contained in the virus. If you're experiencing any pain, use DMSO applied externally. Look for the DMSO handbook online in pdf format for proper instructions. That much maligned equine liquid is a good idea, H1 and H2 inhibitors assist with histamine levels which go out of whack and create inflammation. CBD is good for insomnia and try to go to bed at the same time every night go get some solid sleep. I'm saying this but am awake now when I should be sleeping 🙈
Please feel better soon.
My only child, my 4 year old son, passed away 7 months ago. Then I got long Covid, and this has been the most hellish year of my life. Not to mention I had almost no support besides from my wife. I hope this goes away soon.
I am so, so sorry to hear this. I can’t imagine what you’ve been going through
Did you try Nattokinase, Bromelain and NAC together yet? Also 10-15,000 IU of Vit D a day ?
@@scottp6761 ...is that level of D3 toxic?
@@mwngw for adults. No. According to Dr Berg it's fine. Must be taken with Vit K though for proper absorption. I also found a new supplement that helps people greatly for long term COVID. Moringa capsules daily will cure you up along with Graviola tea two times a day for 2-3 weeks.
I am so sorry for your loss. Hang in there and let your wife know just how much you appreciate her. Praying for you.
Watching this is bittersweet. I had EBV decades ago which progressed into years of chronic ME. Almost no one believed me and the lack of belief was such that it led to abuse. Eventually I got about 70% of my pre-EBV health back. And then I got Covid - and all my familiar post viral fatigue symptoms came back.
It's a real joy seeing so much support for those with Long Covid now. I commend Gez for his research and sharing his journey. I just want to send my best to anyone else with a history of ME/CFS who might be experiencing mixed feelings and a surge of memories.
I have this exact situation. Mixed feelings. Hopeful that maybe some of the long covid treatments might overlap with us who are still (after 30 years) dealing with CFS/ME.
Wish you better @@leeanngorne8517 and that you find your energy again.
Am in same situation….like a recurring nightmare
I had severe POTs as well as virtually every other problem. Now virtually fully recovered thanks to Gez and his videos. H1 blockers, Iron, high dose vit c, b vitamins and gentle reconditions. Genuinely cannot thank Gez enough. He gave me hope and the tools of my recovery. Thank you.
So glad to hear how much better you’re doing!
Did you POTS gone by itself? Or did you take some supplements (salt or other things?)
How did you heal from POTS? What did you do?
@@karmenashikian2479 im interested how they healed too. I guess they said. H1 blockers iron high dose vit c b etc
@@timmy34400 no salt, the water didn’t make much difference. I believe it was because I addressed the underlying cause which I believe to have been MCAS. I took an over the counter h1 blocker for months. Iron supplements, high dose vitamin c to aid the pots directly and general vitamins. Reconditioning is important too.
The grief of Long Covid is so real! Thanks for talking about the mental health side of this illness that makes getting through every day stuff so challenging
A big hug from the Netherlands 🫂❤️🙏🏼 i know how you feel! I know you from your own channel. Lots of LOVE, Sending you strenght!
@@pilarkrol thanks so much Pilar 💛. Big hug to you too this is so tough
long covid is easily healed in hours by safely raising the atp levels take 4 x 1000mg caps liposomal vit c an hour later take 2 more do this each hour until all symptoms are gone,its gone in hours
Am so depressed head either head pressure / ache sinus so dizzy heart problems all since covid / shots
Gez, I can only echo Dr. Hirsch: "Thank you for the beautiful vulnerability and sharing that with us." Thank you so much for this very personal glimpse of the reality of life with long COVID. Your professionalism in presenting facts and analyses has always been admirable. Your courage in presenting the human-ness of this journey is deeply touching and vastly encouraging.
Thank you Nancy!
I remember reading about a doctor who took her own life because she couldn't find relief from long covid and I could sympathize with her decision. I'm glad I found channels like this and Dr. Been to help me stay motivated and focused on getting better and grounded in sanity. The Facebook support groups really helped as well.
I follow Dr. Been. He's an intelligent guy, very artistically talented. But his pro vaccine stance is troubling, even if the science backs it up. But I think he has corrected himself now, as new findings are coming in.
I'm a doctor and I've contemplated. I'm sonexhausted and in so much pain
@@luisamarquez5735I see you. I'm also in so much pain. Let's keep going. We got this. ((Hugs))
Don’t give up guys, healing is possible!! I felt the same way… nearly bedbound and felt hopeless and despair like nothing else. But I am SO much better! And you will be too. Do whatever it takes to get thru the bad times… I relied on Xanax for a looong time just to deal with the breathlessness. Not proud of it but if I hadn’t of had it, I probably wouldn’t have made it. Point being, do what you have to do to get yourself to the next day. There is tons of hope and holistic treatments. Heck, earthing, sunlight daily, calf liver, raw milk, nicotine gum along with thyroid support and H1 has helped me tons… even dedicated liver pills. Build your body up from the inside.🙌
Hello Have you tried ArtemiC Support ruclips.net/video/B2kRGUuk7Wk/видео.html
Long Covid 30 day ruclips.net/video/B2kRGUuk7Wk/видео.html or
Long Covid 32 day combo treatment ruclips.net/video/CxibS0mPRO4/видео.html
I found myself grieving the loss of my health a few weeks ago. I finally have money and time to do whatever I want to do and I can't. I have to go to bed and sleep.
“Everybody has tried *everything.*” I laughed so I wouldn’t cry.
Some day we’re going to get this all sorted and be healthy again.
Have you tried ArtemiC Support ruclips.net/video/B2kRGUuk7Wk/видео.html
Long Covid 30 day ruclips.net/video/B2kRGUuk7Wk/видео.html or
Long Covid 32 day combo treatment ruclips.net/video/CxibS0mPRO4/видео.html
😢
Thank you Gez for another masterful piece. Approaching 2 years and can’t imagine what it would have been like without your videos. It’s a solo path, even with well meaning health professionals and loved ones around us, and your videos continue to confirm the direction and treatments I’ve intuitively found to recover. You’ve been a Godsend. Thank you again!
Thank you!! :)
People they don’t want to understand and even to believe us. This is very sad 😢. God help us all. Thanks GEZ.
Yes there’s no gel with Drs! I’m so fed up of trying to get meds I need and even bio identical cream hormone! If I am out of a script my symptoms come back 10 fold! The word LONG COVID on a chart should give us some credibility… so sick of struggling to get maintenance meds!
I got sick in March of 2020 and still have some significant symptoms that ebb and flow and I have sort of given up on directly trying to resolve them because it seemed futile. Recently Ive been forcing myself into older activities like lifting (Paced as best as I can, PEM is still wicked).
Appreciate these videos a ton, really looking forward to the book coming out, the one stop summary of all the info you've collected over this journey is going to be great, hope to put some of the ideas to work. Also love the new guests and introductions to others that are taking Long-Covid/ME seriously. Going to check out Evan's book and do more research into Bruce Patterson's work.
Keep up the good work! No clue how you manage to put in this much effort while dealing with Long Covid yourself. Huge props
It’s a challenge! Thanks Scott - my book is out now by the way if you’re interested :)
@@RUNDMC1 Oh no kidding. I'll have to get it ordered. Appreciate the heads up!
Same here March 2020😢
❤
Please read if you have long Covid. This worked for me! I’m not a doctor. I’m male, mid 50’s, average height, slender build. Got jab mar 2021 (required for job) a month or so started having slight difficulty breathing and got slowly worse as time went on. By September 2021 at times would throw up. Thought I was allergic to new dogs. Tried every allergy pill, nothing worked. Then tried Primatene Mist, everything cleared up, no issues with breathing at all. Never had asthma my entire life and now 18 months later still use it when breathing issues arise. Got Covid Jan 2022. Few weeks later slowly started having heart issues, skipping heart beats, instant high BPM, massive pounding heart beats. Did battery of tests at cardiology dept, they found no issues at all, along with other docs saying there is nothing medically wrong. The worst for me was feeling like is was going to faint multiple times a day. Mainly standing outside and talking, driving to work at night after dinner, and while at work sitting. Fainted once at work. Had to go on medical leave for months. Started to get better then it all came back slowly (also anxiety with almost panic attacks). Watched so many long covid videos and read 1,000+ comments and took notes on what people did. This is what i did and worked (i’d say I’m 95% free at this point). I stopped taking powder fiber supplements (can cause iron not to be absorbed). I’ve only eaten lunch and dinner before but now had carnation instant breakfast with milk in the AM and a banana with a men’s 50+ multi vitamin and one iron supplement pill at that time. Normal lunch and dinner but tried to have a more protein involved. Snacked on pumpkin seeds, sunflower seeds and beef jerky. An apple around 3pm. Would mix a packet of propel electrolytes with a few shakes of table salts in it and drink throughout the day. At dinner would take another multi vitamin and another iron pill. At night before bed took an Antihistamine pill. Would try and eat smaller meals more often throughout the day and night. Worked out on elliptical 25 minutes every other day. At 3 days noticed a feeling of not so severe symptoms. Every day was better and better and 3 weeks later, 0 skipping heartbeats, no feeling of fainting, no pounding heart. An amazing feeling just to feel normal after a year and a half of issues everyday. Hope my story and remedy works for at least one person
How has the antihistamine helped.Rather how much of it?Iam so hopeful after reading your write up.Iam having ME/CFS and Dysautonomia..Incorporated salts and magnesium,NAC,Nattokinase,.Starting with the antihistamines today..Await your inputs thought on what made it work for you or the dosage
Thankyou for your continued hard work, gathering and being an advocate for yourself and others. Everything you said was so right on the mark, it could have been me talking! You are an amazing human being! You are so very courageous and honest! Thankyou!
That’s so kind of you - thank you Cindy!
@@RUNDMC1 she’s spot, what you’ve done/achieved for the long covid community is magnificent and I hope you receive some recognition for this 🙌
@@nickywellman594 thank you Nicky!
Yup second that x
So glad to see this discussion. As a long hauler and microbiologist/biochemist, I totally believe I'm dealing with viral persistence. I wonder why we don't develop a stool test to look at the individual microbiome, after hearing you indicate that viral particles can be detected in stools.
We need a biochemical test to show long covid diagnosis first and foremost, IMO.
Am looking forward to getting your book, sounds like a wonderful resource.
Thank you Mary!
Than you Dr Mez for this channel. Seems I am constipated most of the time, I had IBS before covid. Not any more. When that happens my breathing is labored and pulse goes up. I start sweating really bad. Had the Delta with pneumonia. I was off of work for 6 months. I'm really suffering. I have pre-ordered your book hoping to find answers.
Look up Dr. Habine for Long Covid and the microbiome
have tried Alpha GPC - it has helped with my vision focus -brain fog and fatigue
Thank you for your podcast from Ontario Canada. Personally, I got COVID on Jan 9/22, with 3 vaccines in me from working in a long term care facility, and became very I’ll. Then turned into long convid. Was pushed back to work too soon by wsib. This august, I fell well stepping into an elevator and broke my femur. Still on crutches. I also became depressed, which is not like me and now on anti depressants. It really touched me with your emotional story of yours. As I felt I was the only one and ‘letting down my guard’. Thank you again
Wishing you the best in your recovery Joanne - a broken femur is plenty to deal with by itself!
I’ve carved out a space for me to unleash the grief, frustration & chronic suffering from LC, then afterwards, I proceed w my day much lighter & less in the grips of my pain. It definitely helps to have a strong support group around u, and I have that. Journaling, meditation & grounding myself to the good I have in my life has helped tremendously. When we’re suffering, the lens through which we view our world can be cone-like. I knew I had to broaden that perspective in order to deal w my new body and life. I had to also, connect with my kindness, except this time, it’s towards myself. Forgiving myself for NOT being active, productive & a super mom like I use to, was so hard to empathize. I’m still struggling with that, but learning to go easy. I watched a video on pacing, and that appears to have helped some with my LC symptoms. So I’ve been breaking down my chores in chunks. That is also a way to express self love. Other areas I’m also working on is the quality of sleep & stress level. So I find myself watching standup comedies, rather than feed my anxious mind with more anxiety inducing information. I’m taking it one day at a time, which my Buddhist philosophical beliefs has helped in how I view every minute. I wish all the LC sufferers the best, and hope we will see a medical breakthrough soon. If not, we have to dig deep to love ourselves harder & know we are MORE than what we DO for others. Our existence is valuable in itself, w or wo LC. Sending positive energy to you all. ❤
Gez, it's so inspirational to hear you talk open heartedly about your emotions. I've not been dealing with this as long comparitively, just since the begining of 2022. But it has been a ride, had to quit my medicine studies and drop all types of exercise (which I was heavily dependent on before to maintain my sanity), also all creative stuff had to go. Such a loss! Mentally it's been a rollercoaster too, every month I travel into some dark place for some days, I know something is off when I start crying when reading the news. I now tackle this with sertraline, get less poeticly sentimental but a lot more stable. Also, thanks to antihistamines I'm playing with the thought to get back to studying. Keep up what you are doing, you are helping so many of us! Greetings from Sweden
Best wishes to you in your recovery Tekla! I know exactly where you’re coming from :)
Feb 2020. I was finally able to read about 6 months ago but no longer than 30 minutes. I got your book Thursday and i read from 6-9:30 AM. a big deal for me. I can't thank you enough for writing this book.
That’s incredible - thanks Bill, and don’t overdo it!
@@RUNDMC1 even better ouraring said i got 15 minutes restorative time while reading. Thinking maybe feeling a bit of peace from understanding why i am such a mess. Thank you for all your hard work
Thank you for talking about the mental health component, this has been the hardest part of my long covid journey. They way I understand it now is that I always had a low level dysregulated nervous system due to childhood trauma, and I managed to keep this pushed down and live a life (ok, addiction, then long term recovery, but you get the drift). But then covid came along and strapped rocket boosters to my dysfunctional nervous system and I've been on a rollercoaster since, with flashbacks to traumatic events, intrusive thoughts (sometimes untrue), hypervigilence, fear of abandonment, high anxiety... I could reel off more. I think you're the first medical person I've heard talk so candidly about this, and I feel a little less alone.
Dear everyone , please know you are going to get better . Our family has been through sooooo much because of my son's long covid . Its such a heartbreaking sickness and so much confusion and crying and anger , hopelessness , the worst thing I've ever been through and way worse for my son . Theres so much good information coming each day . Love to you all .❤️
I’m so glad I found this video. I’ve been to 12 doctors and finally one doctor thinks it’s long Covid. No one has believed me and said I had anxiety. I’m experiencing muscle pain, joint stiffness, food allergies, eye pain, loss of strength, facial flushing, strange neuropathy. The list goes on. I figured there was a root cause to this somewhere. This random shit just doesn’t happen. I think there’s some answers in peptides, stem cells, NAD, exosomes etc I just cannot drop $30k on this right now. I’m going to do a steroid pack, h-1/h-2 blockers, NAC, quercetin, vitamin C and maybe IV vitamin C, Niacin. And possibly NAD+. I’m really to be well and live my life!
How are you doing now?
Have the anti histamines worked
?How are you feeling now?
@@downtoearth1982anti histamine works awesome. Worked for me. Zertec
Sounds like endotoxemia
Similar symptoms. LDN low dose naltrexone really helped call my immune system and took my brain fog away overnight
Gym/golf nut and healthy 36 year old struck down for 2.5 years. My health is now improving after the addition of a daily pro-biotic tablet. Whether this is the only reason or not I am unsure, but sharing this info for others.
The only positive of having long covid has been no golf. My self esteem has sky-rocketed
Exact same boat my friend. Was feeling much better this summer then I got covid again in sept and all my symptoms came flooding back. Heart Palpitations/pain, Brain Fog/Dizziness, intermittent kidney pain, shin pain, poor gut health. What pro-biotic are you using?
Probiotics do help for sure. Have you checked Symprove, personally has been one of the best things I tried (I do not work for them but they are really good though a bit expensive) I was taking it for my IBS but I think it will help people that got guts issues from Long covid too
Can you provide the name of this probiotic?
I'm a long hauler. I have been suffering for 9 months.
I'm 41 years old and after I got covid my period Stopped ! (I used to be regular)
I have an autoimmune disease and thyroid is irregular. I get vertigo, headaches, heart palpitations, low and high blood pressure...but worst part is CRONIC Fatigue. I can't even do laundry without feeling I'm going to LITERALLY faint and die.
I'm miserable :( I used to be active, my daughter is 5 years old and questioning why I can't/ won't play with her anymore. I get severe mood swings depression ....I mean this is horrible!
Please please HELP dont give up on us. Please continue until you find a cure !
Am so sorry dear, your not alone. Even me am single mother with 2kids 11 and 21 . I was 3 months in bed and also depression. But I started to do meditation 🧘♀️ 3times a day. and now I started taking probiotics since now 10 days it’s seems to help me. I even do breathing exercise.am still house bound but i can now cook for my kids and even cleaning my house too.with alot of break. Not easy but its work. Pacing pacing pacing not easy dear.
I hope it can help you too. Don’t give up.
Doing the laundry, doing the washing up, cleaning the house and taking a shower or washing one's hair, all have something in common.
They all cause the air you breathe to be polluted with endocrine disrupting chemicals.
Sometimes it is not what we do, that triggers the immune system, it is what we breathe while we are doing it. The physical effort increases the oxygen needed, which increases the intake of the endocrine disrupting chemicals too.
For fatigue what helped me is Creatine, it helps replenish ATP and energy of the mitochindtia in both body and brain. Can get it from amazon or any suppliment store. Also Dopamine levels in the brain is also related to feeling "energetic" and motivated. To increase dopamine in a natural way sleep before 10pm and get quality 7-8hr sleep. Also get 1hr of sunlight a day as it promotes melatonin production. Latest research suggests that melatonin is not just for sleep quality but it also cleans the mitochondria of the cells, thus emabling it to vlean away the waste products and gunk to make way for energy production. Also lower sugar and carb consumption, as I felt that it lowers dopamine levels in the brain when insulin spike occurs, thus high carb foods will make you feel less motivated/energetic. If you have brain fog or memory or sleep issue post covid it can be due to low serotonin in the brain..I went on an SSRI called Fluvoxamine that was reported by others to work for post covid brain fog and sleep issues. Out of all other SSRIs this have the least side effect and you can stop it after 10months..meaning not an addicting prescription drug, talk to your doctor about fluvoxamine if you have brain fog or sleep issues. But Creatine, proper sleep schedule, and low carb diet if chronic fatigue is the only issue you have...some caffeine in the morning also helps as it helps release dopamine...but dont take caffeine after 12pm as it can hinder proper deep sleep.
I am same age as you. Mom of 2. Bedbounce for 4 months. Covid make blood circulation bad. Then, my chinese medicine doctors gave me herbs to improve blood circulation, have sunbath every morning. Then, I can do exercise, yoga again though still lots of symtoms and CFS. But, I can work from home, do regular tasks. I think The key for this CFS is improving blood circulation. So yoga and sunbath helped me a lot.
@@sadnagoso456 thank you for your comment I have an update that will give you hope.
After 10 months of long term covid, one day I woke up, and like magic, I felt better. I didn't have vertigo, no headache , and the fatigue i was experiencing was almost gone,,,after 2 weeks of feeling better, I went back to see my doctor, he said that due to covid my hypothyroid had converted to hyperthyroidism which was causing alot of my symptoms. He worked with me on regulating my thyroid medication, and he also looked into my breathing issue (apparently covid also scarred my lungs which was causing shortness of breath and fatigue). Please note ALL other doctors I went to during those 10 months did not catch the fact I now had hyperthyroidism. Its been 1 month and I can happily say I feel GREAT ! It feels amazing to wake up feeling good. I thought this day would never come. One thing I learned was "dont give up!" If a doctor is not taking you serious, go to other doctor. You may have something that was triggered by covid but it can be cured.
I hope this gives you and everyone on this thread hope. There is an end to this illness. I hope the end for you is soon.
Thank you for your candor Gez - You are the voice of the long covid community 🙏
I got POTS/ME at age 46 in 2016 after an autumn severe cold. Long Covid has brought so much more knowledge to the overall broad symptoms. And this channel has condensed it perfectly in an user-friendly way while maintaining a scientific approach. Well done. Thanks!
Your book offers so much information about LC! Great resource! Thank you Gez!!! The first 12 months is definitely a roller coaster:((( It’s so difficult to describe it.
I have had long covid for almost 8 months, and have seen so many docs for treatment: now I have a doc for my headache, one to treat my fatigue, one for insomnia, one for my PoTs, and another one for my mental health. On top of that, I have acupuncture and massage, but my fatigue and brain fog are still so severe that prevent me from going back to work😢 thanks for sharing the insight on how hard it is to live with longcovid! I am really hoping those trials come out sooner. Looking forward to the longcovid book!
It’s so brutal isn’t it? Wishing you the best in your recovery
Checkout NAC, paracetamol, high dose melatonin in relation to microglia
I hear you! I’m at 10 months and still struggling. However, feeling month 9 forward I’ve perhaps turned a corner with some relapses along the way. How are you feeling these days?
@@MK-gy1ug still deep in the journey
@@RUNDMC1 Sorry to hear this. How long has it been? Have you noticed any improvements at all over this time?
Gez, this was great! I recommended you to show up on Dr. Drew in the US. The LC community is being gaslighted somewhat, the same way the ME community has, and your voice is so important, to rectify that.
I have ME from sepsis 7 years ago, and I relate to everything you say. Hang in there. You'll eventually be incredibly thankful for the things you're able to do, little and big, and eventually, you'll be better. I started a greenhouse 3 summers ago, and do the bare minimum, but it gives me great joy.
Thank you Heidi!
Thank you Heidi!
rhey call it ME but as I said to a doctor of mine, how do you know if someone has ME since you don't do SPECT scans to show encephalomyelitis LOL. If they don't do a scan (they don't here in the UK) how can they call it ME???? I had ME/CFS for 16 years and it just went away suddenly.
@@MP-uo6qd I'm so happy for you. That's what I hope will happen for me as well.
Appreciate the discussion of the emotional side of these conditions. I've had ME/CFS for a bunch of years and work hard at emotional stability. When my thinking goes down the rabbit hole, it is always an indication that I need to rest - well more than the usual amount.
That last sentence is very true. Never had it put that way but means so much now❤take care
Sick since 3/2020 Tried just about everything and no real improvement to mention.
I have a Dr that lets me try just about anything I ask for.
I have given myself permission to feel sorry for myself and I now cry. Yes, it hurts while crying, like Gez mentions.
I cannot make plans. I go from bed to couch and my bones ache from this.
The hopelessness is a major part of this condition. Thanks Gez, for mentioning this topic.
I am sorry for all that suffer so greatly. At least we have Drs. like Gez trying to figure this out.
Thanks Gez
So sorry you’ve been suffering so much Kim :(
Did u try nattokinase serrapeptase lumbricase ?
@@yaakovmiller7342 I can tolerate Natto K, but Serra made me black out, twice! I am afraid to try the Lumb. Now that you reminded me, I may do another round of Natto. Thank you.
Looks like you suffer from vitamin D deficiency as well...
i was fortunate that the first year and a half after March 15 2020 of long covid, I was working from home, that rollercoaster did not destroy my life because of that. The return to work was wild... but it was a few hours a day a couple days a week at my own pace and then I switched to more of a 'desk job'. I am super super lucky and I cant imagine what its like for those trying to maintain a full schedule and relationships with this. Much luv and respect. I remember crying everyday during that first year and a half... not sure if thats the brain stem, lol, but that crying was super helpful for me. It stopped when i found a social outlet online where i could connect from home.
How are you feeling now ? Did you recover fully?
Thanks for the research and for getting the word out to everyday people. Bless you,bless you, bless you.
I just want to thank you for all of the information on your channel. Back when I HAD long covid I watched all of the expert panel discussions and followed the low-histamine diet, got anti-histamine prescribed by my doctor, and followed the supplement protocol. I was able to reduce my symptoms (low energy, and post exercise-malese) in about a month and slowly get on the road back to normal. After about one month, I was able to stop taking the anti-histamine (I noticed it started to make me sleepy - whereas when I started it gave me energy), and by three months later I was at 80% of my old self. THANK YOU! Just knowing that I was not alone and being able to name the symptoms was an incredible emotional help. But you also gave me the tools to work on the resolution. Thank you and I hope your Handbook will get the recognition it deserves. Ciao, from Italy L P.S. What a shocker it was to re-introduce caffeinated tea!! P.P.S. Had mono as a teen, too.
Hi Laura - so glad to hear about your recovery from LC!
I’m in tears right now watching this podcast. I have found it so hard to describe to family and friends what I’m experiencing. Gez is exact in the description of the physical, mental, and emotional trauma this monster virus brings with it. So amazing that people around the globe can share the same symptoms post COVID. At least now, I don’t feel so isolated and alone.
I have hope in the ongoing active research, the suffering experts personally invested in the cure, and most of all in God and his healing power.
THANK YOU so much for this podcast and thank you Gez for sharing your story and testimony about treatments, supplements, self-care, and discussions with one’s medical team that might help improve the journey to total wellness post Long COVID. I’m purchasing the book!
Wishing you and everyone wholeness and wellness.
❤🙏🏾
Thank you so much Roz! Wishing you all the best in your recovery.
Realize that God and his 'healing power' have failed you already if you have long covid. Wake up!
@@RUNDMC1 I just started your vitamin stack . Im doing D3, c , niacin and zinc but im wondering when should I taken the antihistamines (zyrtec) do I take it all together ? Or should I wait a few hrs to take it ? Thanks for all your hard work and research. You're helping so much people giving us hope and a voice ibcant thank you enough
@@kylechavez7961 we don’t really have any data to show the difference - so it’s pot luck really. Sorry!
"Yes" to everything that is covered in the video, that's my life today, it's almost three years later since the initial infection.
Striving to stay in a state of gratitude, the journey has been one of self-discovery, and the acceptance my pre-covid life is a chapter now closed.
My love interest pre-covid is settled with someone else, and I am glad they are both happy.
It's a one day at a time deal for this long hauler. I've found some things that work for me, and thanks to Gez and people like him, I hope to continue to improve.
It is all to do with the Vagus nerve. Do vagus nerve stimulation and vagus nerve breathing exercises. The answer is in your fingertips
The vagus nerve is stuck in the sympathetic mode ( fight or flight )
Take a deep breath using your stomach muscles and breathe out through your nose. If the left nostril is dominant your vagus nerve needs reset
I figured this out myself 2 yrs ago but my dr gave no input.. probably rehab would help or finding breathing exercises online! I do some but my brain fog has me forgetting every few hours!
Any recommended videos for this?
@@JRESHOW There are plenty on search cant recommend on here, good luck
I’m in month 29 of long Covid. I feel like a shell of who I was. It’s horrific. There’s so much anecdote and trial and error on the treatment side. Fortunately I can work, and drive, (with extreme misery) which was impossible for a while. I can’t do anything else, all my hobbies, sports and activities are a no go. Work, come home, sleep, that’s it. Can’t travel, socialize, take any alcohol, nothing. I’m barely existing. If anyone figures this out and comes up with a treatment I’ll kiss their feet.
Literally I'm in exactly the same position. It's fucking horrible. I feel robbed of my soul 😔
My fog comes with sinus issues. My head feels tight, I sneeze 6xs every morning when I wake, runny/stuffy nose, random sharp pains in my head, I feel sleepy but not sleepy. Im just sitting here like fuck it. The fog is always there, im not myself, this shit sucks. I feel like anyday now I might have a heart attack or stroke. I wish people understood, most never even heard of Long Covid. Smfh😢
Are you seeing dr. Vaughn? Is his treatment helping? I will be seeing him soon just wondering if it's worth it
@@goeasyfitness2339 I can honestly say I am much better than I was from my 1st visit on Jan25th. No more heart flutters, sharp pains in my chest, head tightness. The biggest thing that still lingers for me is my brain fog. It's still there. Hopefully in time that to will go away.
@@goeasyfitness2339 I just looked at your channel. It seems you were very fit before this long covid or Vax injury. He specializes in vax injury but he helps people like me to who contracted long covid through infection. He bring people like you back to full health. Definitely see him. UAB and St. Vincent's was no help to me. UAB said I had vertigo, St. Vincent's gave me depression pills lol smfh.
@@msmarauder37 what is he treating you with? Glad your feeling better! Dealing with health issues as young as we are definitely sucks!
@@msmarauder37 yeah I was a personal trainer then I got the vax and covid and that put me out for the past two years. Been trying to get help only to be gaslight and told i have anxiety even though they see changes in my ekg. The medical system is collapsing. I'll never trust our government with my health ever again. Haha I hope so I'm definitely hopeful 🙏😊
Gradually accepting all my symptoms over the last year point to long covid, now the challenge of getting my GP to accept the same and help me in a meaningful way instead of just never ending blood tests that show I’m absolutely fine.
Hi James, having to go through that too and it is not easy. a few things that helped me. Ask for checking Cortisol level and if possible synacthen test. This will show whether you producing cortisol properly. For me it was found that covid had affected somehow the production of cortisol. Worth checking.
@@timmy34400 thanks for the tip, i have a call booked for the 10th with a doctor, fingers crossed he’s in the mood to listen
@@timmy34400producing too much cortisol or not enough? What was your treatment to fix?
This is the only channel that ever gives a clear picture of helpful resources and hope so thank you so much for all the work you’re doing (March 2020 long Covid patient)
Thank you Meredith! Wishing you the best in your recovery :)
I was a fit 57 year old postman 9 weeks ago then collapsed 4 weeks after covid. They send me out of hospital in a wheelchair 6 days later and told me it’s long covid. In the 9 weeks of wanting to die every day (symptoms multiple and debilitating) I’ve been rushed to hospital 5 more times with crazy BP and nausea that lasts days on end with zero sleep.
The GPs and hospital doctors I have found have zero knowledge and at times, hostile towards me and dismissive. One suggests I am mentally ill only. I had no reason to be mentally ill previously. I have felt suicidal because of psychically terrible symptoms and insomnia. Gez videos are awesome, although photophobia and crippling nausea means I have to pace the watching.
I also have terrible vertigo with BPPD. If I do any light food prep or say, take a shower I pay for it later. The brain fog and confusion is scary.
Have you seen my films with Dr Boon Lim? Your symptoms sound like massive dysautonomia
@@RUNDMC1 I have Gez. Although there is no low BP just high. The autonomic system is broken so it fits. Mr Gupta got it spot on as I had a stress related episode AFTER covid that shut me down (loss of consciousness). I caught covid in Thailand, stressed if I could ever get back then went back to work on arrival to Plymouth. A dog bit me 2 weeks later (antibiotics) then 24 hours after my last set of antibiotics I was put on them again for stabbing pains in my ear (Possible covid eating that nice inner ear protein). I was gobsmacked after Mr Gupta said your brain shuts down in a perceived threat. I lost consciousness, boom, writhing with delirium in a hospital bed with hallucinations (covid in brain).
I watched you say about viral persistent Gez and my eyes are bizarre. Pin prick pains, sensitive to everything and bright red after a shower. Impossible sometimes to focus. It’s a mystery but your wonderful videos are flushing out Colonel Mustard 😄
@@pauldavid167 Colonel Mustard needs to be flushed out of billiard room!
This is interesting Gez to take a look at. Great compassion from him and he is seeing links to neck/vagus nerve causing most post covid symptoms
ruclips.net/video/x2Wz8kp5ClU/видео.html
@@pauldavid167 By chance are you also experiencing tinnitus and a tight neck? Some of your symptoms sound like some of mine. I suspect that I have been dealing with MCAS since mid 2018 with minor symptoms my whole life , the doctor paid no attention and I had to figure out ways of patching myself up back then. Since april 2022 when I had covid my symptoms went up 100x again to the point of straight up having blood diarrhea multiple times a a day (they are paying some attention now but the public health care takes its sweet time and are somewhat clueless). Several things that helped me, still do a bit (just barely) but one of them when I have tinnitus+photophobia+tense neck is 2 grams of choline bitartrate, if it is not that, it is sodium (but my BP is low) or more rarely potassium. Usually when I am low in choline, the tinnitus ,tense neck and brain fog would be worse, when I am low in sodium the nausea and muscle pain would be worse and my heart rate will be high, when it is the potassium the tiredness is worse but all simptoms are somewhat present when any of those goes wrong and indeed have only fully left me for a few rare days since covid. When I am in that state it is very hard to tell apart which is which and my gut won't tolerate them all at the same time or I will go straight to the toilet again, and sometimes it is all of them and I may or may not manage to prop myself up in a given day as multiple doses may be needed. In short, there is a chance that some of your symptoms may be low choline.
One od the best and insightful interviews I’ve seen! So we’ll explained and truthful. Thanks guys!
Thank you, your videos do make such a difference and I feel less alone in this thing that is almost impossible for people around to understand ❤️
Wishing you the best in your recovery Mia!
Thank you Gez. Hope you are having more better days than less. So happy for you to be putting the resource book together. It's been such a light in this process to have you helping us all figure this out. Hard to believe we are approaching three years.
Thank you Tracey - and yes the time is mad isn’t it?
@@RUNDMC1 yes it has been. exhausting on so many levels, but I'm so glad you are helping get some answers of possibilities and sharing understanding out there. It means so much to have you in our corner. Truly. Thank you!
I’m the March 2020 cohort. As usual you articulate things so beautifully - but also tell it as it is. It’s so difficult to get anyone to understand the misery of the illness. Thanks for another great interview. Looking forward to reading the book.
Ps. I miss coffeeeeeeee!
I’m back on coffee but still have to be careful!
I feel you. Coffee has been hard to stop but on top of Long covid I had an IBS so it was the best decision with no alcohol too
@@timmy34400 Yeah exactly, and the caffeine makes my nervous system wired. We just have to get our kicks from smelling it when someone else has it!
I thought I was going crazy 🤪, knowing it's "just" part of long COVID19 gives me so much relief. Thank-you
Thanks about the validating and acknowledging grief and loss 👊👊
This makes me feel so validated because every single thing Gez talks about describes my new life with long covid (that no one understands) and I am extremely grateful that I found this video.
I’ll never be the same Long haul Covid and surviving. It’s been a long road. But I know now I’ll never be the same.
I feel the same way
Me to.
Yep!
We need more people like you, trying to find a cure for this
I'm just experiencing this every single day, I'm teared up after watching this. 😢😢😢
Have you been diagnosed with ME/CFS? if not, why not??????everything you talk about on here and all of your videos describes ME/CFS. I am a 20 year sufferer of ME after a bad viral infection and was left in the same state. I do not understand why anyone with all these symptoms are still saying they have 'long Covid'. It just baffles me!
You are a really nice person. So honest. So real and so relatable.
Thanks again, Gez! I totally relate. You’ve been a huge emotional lifeline. Appreciate your research. I think I’m at the acceptance stage for now, thinking this is my new normal. But I guess we’ll see what the future holds. Excited to get the book!
Thanks Karen :) I’m more or less at acceptance but that doesn’t mean there aren’t periods where the frustration and loss come back and hit you pretty hard.
@@RUNDMC1 Oh for sure! I’m right there with you. ❤️🙏🏻
So glad I found your channel, so sick and tired of being sick and tired. Thank you, will have to watch all your videos July 2020 long hauler
Great summary of possible causes and possibly helpful treatments. Looking forward to the book.
Thanks Mark! The book is out now in fact 👍
Thank you for verbalising our condition and our struggle Gez, as a fellow sufferer, 65 yr old, normally very healthy and active. I've had LC for 2 years now, symptoms of daily afternoon into evening, intense fatigue and brain fog, with breathlessnes. Have tried various supplements, which help for a month or two only. The time I feel whole and normal, is my thrice weekly Taichi and Qigong classes. I need to ensure I'm well rested for the classes and for those 90 minutes, I'm in a state of bliss. 2 of the 3 classes, I am the teacher. Makes sense that I should only practice Taichi and Qigong, all day, everyday, which, as a teacher I'm striving for but there are all life's other requirements that need my energy and attention. I live in hope and faith .....
Wishing you the best in your recovery Diane
I didn't realize so many others were still suffering from long coivid also. I deviated from my anti-inflammatory diet and paying dearly for it but it is worth the effort to adhere to thank you so much for your help
Soooo many of us😢the diet changed my life. Still have symptoms but worth sticking to it
Thank you for expressing the reality of illness that is so often suppressed due to societal expectations and taboos.
It takes profound courage to be as vulnerable as you have been.
I wish you every blessing on your recovery journey. Nothing stays the same. The path to recovery can be a rocky one. Always maintain a hopeful perspective.
Be very gentle with yourself, it is a war of sorts that you are engaged in.
Both internal and external. Mostly because this is such a new condition and causes are largely unknown.
I can relate having had M.E. twice and after effects continue.
So be assured that you will be in my prayers.
Take care 😊
That’s so kind of you - thank you Frances :)
Well done Gez. You are one of the smartest and most articulate Long Covid voices out there. :)
Very kind of you James!
@@RUNDMC1 just had a friend who is a documentary DOP approach me with long covid
Splendid Gez . Good summary. But still we all are suffering. Thanks for your hard work and book
So right about the mental and emotional component 👍🏻
It’s an absolutely huge part of it
Awesome interview Gez, as always! One on the thing that I discovered back in August is that I'm now very sensitive to monosodium glutamate, which is present in different forms in almost every food at the groceries store. By avoiding it, I can sleep better, I no longer have tachycardia and it has given me back some energy. Not all of it, but some. I'd say half of the fatigue is gone and my brain seems to work better, less foggy.
Def no fast food
Great to hear you’ve identified one of the triggers for you - such a big part of our individual puzzles!
I’m very tired of the the swings of feeling better slightly for a week then seems full symptoms come back some times it feels like it’s getting worse. Going on low histamine’s diet has helped reduce the length of my down days of no energy and brain fog. Now that fall is here seems symptoms are worse summer seemed to be better months for me. How do you get signed up for research autopsy when I pass which feels like it will be sooner rather then later. My wife passed 7 months ago with long COVID symptoms and corner deemed no autopsy needed. I was pissed and later her doctor was pissed at the corner. I’m am tired and being alone doesn’t help. Trying to change the loneliness but you don’t make the best decisions when you’re in pain and depressed. Thanks for letting me vent.
Oh gosh Jim, I’m so sorry to hear of all this. I hope you’re coping ok and have enough support. I can’t even imagine that level of grief on top of LC
I'm so sorry. Don't give up.
Try go on carnivore diet.
What symptoms did she die from?
I am so sorry for your loss, and long haul struggles. We are in this together. (Fie on that coroner!!)
230 symptoms so we got through a whole list of them which change over times. I've had 70 so far over 31 months Long Covid.
17th January 2023. My 34th month anniversary of Long Covid. Slowly getting better but symptoms keep changing.
I had the Omicron variant back at the end of March 2022, tested negative at the beginning of April and have had Long Covid ever since. My persisting symptoms are extreme fatigue, extreme brain fog, balance problems and vertigo symptoms, as well as not being able to think as quickly as I could before. The balance problems and vertigo have been the most debilitating and seem to get agitated and get much worse if I push myself with too much movement, even leaning my head back past 90 degrees causes extreme vertigo for hours even if i do it just for a few moments. I can feel it all in my right ear, along with periodic high pitched noises that come and go very quickly, just above my ear is also the part of my brain that hurts if I push myself not just physically but also mentally. I was prescribed Betahistine Dihydrochloride which has helped a lot with the brain fog, allowing me to think clearly for the first time in 9 months, but the balance and vertigo still persists and keeps me from doing too much movement or exercise. The other strange thing is the fatigue and not being able to think as quickly as I could before, I used to travel so quickly down the roads of mind and now I have to trudge along in second gear otherwise my brain physically hurts!
Its nice to see I'm not alone on my journey but this whole things still feels so lonely, has anyone else experienced extreme vertigo or balance problems?
Yes - vertigo and balance problems common!
I've had a very similar LC timeframe. Balance issues much better now and starting to think quicker recently too. Headaches and fatigue still huge issues though. Overall some improvements so I hope this is of help to you and you also see some improvements soon.
I have had the exact same symptoms as you. I found an NP who recommended a cocktail of NAC/Oregano/and Tincture for 6 weeks to eliminate SIBO which WORKED! Got rid of all my brain fog and vertigo and thinking issues. I really hope you check out SIBO elimination for yourself to be rid of it as well and I hope it helps you! Oh and the brand of NAC and Oregano was “designs for health”.
My Long Covid is the SOB, cough, headache and fatigue. 71 F, when I was first positive for Covid Oct 4th and then neg on Oct 12th when I randomly tested negative. I had felt better for a few days but then the fatigue hit. I had taken Ivermectin pills for 5 days when first positive, then when fatigue started I did 8 days more. I now have an inhaler and a cough med perls , benzonate 200 mgs. Now Nov 22 the extreme fatigue seems to have eased up. My cough is just a few times in morning and SOB is way better. I am not very mobile but try to do chores then rest. Ps I have been on Prednisone 10 mgs average dose for the last 6 yrs for PMR and GCA.
Thanks for this video - exactly what I’ve been struggling with - “what’s wrong w me ?” Thanks for the exposition and research 👊👊
As a 48 year old Long Hauler from March 2020 I have tried many ways to get better (thanks to you and you alone Gez), including flying to Cape Town and taking anticoagulants. Nothing has made me feel like I have felt the last 5 days. I know its early days but HAD to share it with you. On a Long Covid group someone mentioned how they recovered from taking antidepressants, I always prefer natural remedies if I can so I researched and am trying RHODIOLA. Up to now I have been taking 2x 500mg but might reduce to one a day after further research. I feel the best I have felt since this who nightmare began. ways I feel better: my muscles are much more relaxed, I can think more clearly and feel more considered and careful doing stuff, I feel stronger walking up stairs for example, I have more energy in general and feel a lot more positive (Oh yes, maybe life is worth living.......) cognitively I am taking care at this early stage. Overall I feel SO excited but am trying to rein myself in so I don't over do it, also what if these feelings don't last... then I will take a nose dive! Anyway HAD to share this with you and your followers.
I'm a march 2020 victim too and I got better after 16 months and 6 months into my recover suddenly I got Infected again with the new covid variant and I had relapse and im on square one again . So watch out.
If you want a very good supplement for anxiety and mood look into Serene Saffron by Xtend -life and take their fish oil too! They instantly reduce anxiety in my case . They address every area of health almost .
Best wishes
How are you now??
Thank you both!
have tried Alpha GPC - it has helped with my vision focus -brain fog and fatigue
I have "Pots" . I got it after an infection in 2016. Not from covid... Life is pretty bad and I have tried so many things that haven't worked. Even though I don't have long covid, I subscribed to the channel in case I find something helpful.
You've had it that long consecutively?
@@carmella88 yes. Some days are worse than others. I have never had a normal good feeling day in over 6 years. I also know many people who have been sick longer.
@@lessons9745 thats discouraging ☹ what have you tried ?
@@carmella88 I ve tried, beta blockers, midodrine, I've also tried antihistamines.., water, salt... all types of supplements, yoga, meditation, all types of different diets. Gluten free, dairy free, GAPS, keto, paleo, etc and trying to very slowly exercise, pacing and I ve had all types of testing and imaging. Found brain lesions but not MS, say it's likely migraines or ischemia. Found hypothyroid and taking meds for that.. Found arthritis and nothing helps with that.. Hopefully you can find something that works for you or maybe you'll get better over time.
@@lessons9745 darn that's really awful. . . Im so sorry to hear. Im trying hawthorn berry and b1 .. high dose vit d3 .
I’ve had Covid twice (1st 2020 2nd Oct 2022). After about 2 weeks of moderate symptoms the fatigue seems to linger on and off for several months after for me. I’m fortunate it wasn’t worse then this
15:20....YES. On top of being type I diabetic, being a woman in early 40s (hormones, pre menopausal), and having a wicked acute phase with NO breaks, went right into long covaids (felt like HIV, that's why I say that), worked in a moldy place, have allergies, hyper immunity, and yes yes yes on all. I would tell people, please stop saying "praying for speedy recovery"...at the one, then two year mark?!? Flippancy! I'm writing a book, and that's part of the chapter -- kidney stones -- obstructed renal calculi, in the ureter....is easier than this. It's all encompassing, and debilitating 'deep down.' The "you look good!"..I'd say, I'd rather look bad and feel like I did! Feeling like it's vascular dementia, it's also scary with the loss of very short term memory.....it's been a multi-approach, and quite lonely! And I'm a proactive person, but with this. I'll read your book, and I'll send you mine :) Yes on the emotional. I "had" PTSD. Now, it's c-PTSD. especially seeing people being murdered before your eyes in the hospital, and I was almost one of them
Yes i have PTSD over this situation. Im a scientist and was fired for having an opposite scientific opinion than my peers. Hand in there
You are amazing!!! You've just summaried so many things all my doctors within the last 2+ Years haven't been able to do. You are fantastic and are great help. I will definitely be trialling these new techniques!
In case it is helpful for anyone the supplement regimen I have found helpful for long Covid patients is omega 3s, NR (precursor of NAD) NAC (anti inflammatory) b complex and quercetin (flavonoid and anti oxidant) it doesn’t surprise me that Niacin alone, especially if non- flush doesn’t do much….. I think NR is a better NAD precursor. I have also found iv NAD with glutathione can be effective.
Thank you Gez! I think you are spot on with everything you said in this video. Good luck with your book! I'm sure lots of covid clinics and newer upcoming long haulers will all benefit from this. Thank you for being vulnerable and telling the truth as well. Speaking of this, I should also be meditating much much more than I do now ( which is next to never )
Thanks for the reminder. Take care pal. I hope you and all other long haulers ( including myself ) can get back to our old normals.
Hope so too :) Cheers buddy!
Gez,thanks for making these videos, they help people suffering in the long covid community drastically. You stated that you can only eat a few different foods while you have been going through this long covid journey. I'm able to eat about 7 different foods, and I'm about 19 months into long covid. Just out of curiosity what foods can you eat now? Have you been able to try new foods? If not, when can you begin to try new foods? Lastly, maybe my food list can help you incorporate some other foods. I can eat gluten free oatmeal, gluten free crackers, gluten free bread, little bit of apple, organic peanut butter, and lastly vegetables, (boiled or steamed broccoli, carrots, asparagus, cauliflower, and brussel sprouts) Maybe this list can help. Thanks again for all that your doing for the long covid community.
Hi Nick, I was pretty much just limited to the ‘safe’ foods on here:
www.mastzellaktivierung.info/downloads/foodlist/21_FoodList_EN_alphabetic_withCateg.pdf
Great, thanks Gez for the food list... and for the videos
My wife is a vegetarian and can only eat like 5-6 foods. It’s like a really restrictive adrenal fatigue diet or MS diet.
She will be in our prayers
@@revelation12_1 praying for your wife my dear brother
March 2020. Still have varying symptoms. Seeing functional dr for almost 2 yrs . Found to have reactivation of EBV(latest info is MS might also be latent EBV) & Lyme/coinfections. Treating with microcurrent and mainly meds from functional md. Was doing better until wasp sting 3 wks ago. Which caused a dramatic back slide a little better now. Good luck all.
I'm now on a cocktail of antihistamines, vitamins and now heart medication. Never has a heart issue before 2021. Got it after 2nd does of Covid-19. Missing heart beats and raised heart beat when doing activities.
If I don't take my medication regularly I'm finding my chest and along the vegus nerve tells me to tell me to take my medication. It takes a while for the pain to ease after taking the tablets. Today it told me it again.
I also find if I push my body too much and keep going for too long, my body goes into a fizzing sensation and tells me to shut down my body and eyes and rest.
@@victoriahouse9969 same here with the fizzing. I believe it’s just blood vessel inflammation
Thanks for the good talk. I have found many people have a persistent glutathione deficiency. Glutathione is the primary way our bodies defend against the superoxide produced by COVID. Many of these people cannot restore their glutathione levels without help. Many also have issues with histamine and inflammation in general. Glutathione and lipoic acid address both of these issues. There are a large number of studies in the literature linking low glutathione to COVID issues, yet few are using this cost-effective treatment. I have seen it work over night many times in long covid.
Hi Gez, I've come back to this video just as a point of contact for an idea that you may or may not have already considered. When I read articles or watch certain videos I can have panick attacks in fear of my own death as I have chronic chest inflammation likely including my heart. I've listened to your videos for some time now and I never have that feeling with you as you are sensitive to the information you are providing and tend accompany symptoms with potential solutions even if that is just rest. Also lucky for me I am past that phase now but lots of people have alot of fatigue and seeing reviews (all posative) on your book some have suggested it's taken them days to read when usually would have taken hours. Those two things combined had me think you should also offer this as an audible audio book option aswell if you were able. Just an idea to try and help my long covid friends. Wishing everyone well in recovery.
Hi Mark, thanks for writing! You’ll be glad to know the book is available as an audiobook too. Audio is making up about 40% of sales at the moment!
@@RUNDMC1 awesome ill check it out cheers
Excellently put Gez. Thank you for speaking up for us all ❤️
This is the most frustrating thing I have ever experienced in my life ,Random dizzines ,fatigue, in fact every Long covid symptom I think I've experienced , Currently on BP medication and a Beta blocker ,very helpfull, but to get to a point ,No matter how bad I felt every evening I would do 45 minutes of retention bands workout and increase slightly every month ,Now I do a full blown heavy weight training workout and run twice a week, just keep trying to improve your situation no matter how hard it feels your body starts to adapt the more its put in uncomfortable situations, trust your body to start adapting and it does ,I literally thought I was having heart attacks in the beginning but I pushed through and two years later I feel 100 times better ,you just have to allow your body to do what it's built to do and that is fight and heal itself as best it can , What actually helped me was the more I pushed through a workout the more I convinced my body and mind i was getting better not worse and the longer you do it the more you start to believe trust me.
That actually does not work well for Most people. Glad it worked for you.
@@wildhorses6817 Absolutely , I had Crashes literally every few days ,point is I pushed through anyway, not recommending this to anyone but I felt my bodies natural memory of how I used to feel started kicking in.
I tried this too and ended up bed bound for four years and still have not recovered.
Are anti viral medications indicated for LC ? Have they been tried ? How are they tolerated ? Why anti histamines and not anti virals? Why as a person who has had CFS for 20 years, has Ai and past EBV, have I never been offered to try anti viral meds ?
Have you ever looked into the herb Cats Claw?
This is the saddest thing I've ever witnessed! I watched my fiance go from the most vibrant, healthy, sweet, outgoing woman I've ever met, to 2 months after the poison, fatigued, hair falling out, depressed, in pain, zero sexual function, so on. And we just can't seem to get help! I'm reaching out to as many Drs as I can that are claiming treatment and healing. So I'm praying for an answer. She's only 27yo, and has crashed so hard! Says there's a Vail in-between her and joy. She cries so often now. If I hadn't known her before the poison, I wouldn't have believed this! Any advice, please please give it! We've been to several Drs, (pointless waists of funds and time and hope) the ones we've been to who don't have answers seem to just not care. They act like your a nuisance.
She's on hormones now, AT 27 AND THE HEALTHIEST WOMAN IVE EVER MET!! And it's only helping a very little. And still has flip flops back into the crash.
Praying for both of you .
What has worked for me is B12 and Lemon Balm Drops from the brand Vemergy. It saved me from being totally handicapped. I am working on my health at this moment, now my platelets are low, let’s see what my doctor will do for me now. I am afraid, but at least I know that pure B12 WORKS, I can’t believe I have energy after 1 year and a month. Thank you for this video ❤🙏
Love these videos. For my lasting long-covid issue, I cannot find anything to help. 22 months out and struggle with lightheadedness/dizziness every single day. I can't function on most days and it's horrible. Doctors have not been able to prescribe anything that helps. Still holding out hope there is an answer out there.
Hang in there friend!
How is your headache.its different right?if its like numbness and tingling .I had this . intermittent fasting and good sleep are soo helpful
Have you tried nicotine gum or patches?
What should the antibody count be after 9 months of LC? Just tested at >2500 (0.0 - 2500 U/mL standard) on the SARS-COV-2 SPIKE AB, SEMI-QUANT, S. The mental part is huge. Especially when you feel people just don’t believe you anymore. I’m semi grateful for the daily fever spike I get. I carry my thermal thermometer and when it spikes I record it. It’s actually tangible proof to show my wife I still feel terrible. (11:35 note to self. Moved to Florida 2019). 14:54 felt this in my soul. I’ve had mold sickness since 2013 and have said many times I’d rather have cancer than that or this. At least people would see my bald head and say, oh, he’s still sick.
Hard comment.. but, I agree.
I really like his explanation of life with LC. It's unbearable. Sometimes I think that I'd better lose my arm or leg rather than living with LC.
I feel the exact same way friend. i feel like i lost who im supposed to be. never give up.
Ditto, LC PEM is no awful to deal with.
@@yaakovmiller7342 I have tried that, it had no effect on my PEM.
Same. I want to die most days. I was a fit postman 9 weeks ago then I collapsed, kicked out of hospital in a wheelchair 6 days later and arsehole GPs and hospital doctors telling me there is nothing wrong with me or it’s mental illness. Thier lack of knowledge of LC is scary
@@pauldavid167 so sorry to hear that 😔. But it's still early in your recovery. It can get better with time. I am 16 months in. It's been a hellish rollercoaster. There were some improvements, but right now I am back to square one. I had a huge setback in October.
Thank you again, Gez. And your community, too. Reading the comments helps a lot, feeling less alone with this condition.
Edit: For those with muscle pain eventually ACC (Acetylcystein) would be helpful. My pain is reduced from 6 to 2-3 (Scale 1 to 10) with ACC 600 mg daily. I write it down because it has less potential adverse effects and (I think) it's available without prescription in most countrys.
Thanks for your advice bro I've been suffering from muscle pains for almost 2 years because of the fucking LC 😑 , I'll try it thanks again 💪
@@mustafaavc9007 Hope it works for you 👍🏼
Gez, I love that you want to help in any way you can with the mental health tips intended for people suffering from long covid.
But wouldn't it be better if we found some way to resolve the core issue? As Evan said, finding a resolution?
I know it's probably obvious to say, but surely there's got a be a final solution to this viral persistence.
Yes there is - we need trials of antivirals!!
@@RUNDMC1 do you know which antivirals ? Or which antivirals Evan is using ?
@Michael the research is taking way too long in my opinion. Yes we know it takes time but 3 years already.. ?? Are they waiting until it’s been so long that the damage is permanent and people can’t heal?
For all I know didn’t take long for vaccines to be developed and administered!
I successfully self-treated a main symptom of Long Covid, significant heart palpitations, by regular, daily doses of Ibuprofen. Being of an analyst mind, I researched my chronic fatigue and found a medical paper submitted by a cardiologist who successfully treated a patient with post-Covid myocarditis with higher dose Ibuprofen, an anti-inflammatory. I followed suit with lower dose Ibuprofen, and my very significant symptoms vanished. However, I still suffer from daytime sleepiness.
Still suffering with long covid since March 2020. I took a full allergy panel to rule out. I found out my only reactions were level 4 /10 for cats and 3/10 for dogs. It's not allergies
Everybody has their own individual set of triggers - yours may be more dysautonomic
Could be? I have a flares that are sometimes tied to hormones( I've noticed). Never ok with breathing, just at what degree of SOB and chest pain/tightness. Immunologist saw me last and said I'm a long hauler. She tried antihistamine route with me, but I don't think it helps. Pepcid/loratidine. I am starting nattokinase and serrapetase next. I will also be trying bromeline and NAC.
The late Les Simpson, Ph.D., who studied the hemorheology of ME/CFS as well as a number of other chronic diseases, noted the increased proportion of non-deformable erythrocytes in these conditions. This increased number of non-deformable red cells causes oxygen-deprivation in areas served by the microcirculation - muscles, cognitive areas of the brain, the endocrine system. This can account for many of the symptoms of ME/CFS - muscle failure after minimal exertion, and a very rapid shift from the aerobic to the anaerobic metabolism; brain fog, and dysregulation of appetite, diurnal rhythms, body temperature. (The ongoing low fever, sore throat after exertion (!), painful lymph glands seem more relevant to ongoing immune response, which suggests that the immune system is on red alert - as though it is looking for a virus that it can’t find, or can’t fight. On this subject, it’s interesting that many people with ME/CFS never catch anything else, and others catch everything going - this supports the concept of a hidden virus - and fits very well with Dr. Bruce Patterson’s theory about monocytes carrying viral fragments around, stimulating inflammation - and his injunction against exercise for this reason.)
Back to Les Simpson’s work: he did not claim to know what the cause of the increase in non-deformable erythrocytes, and he did not claim to be able to cure ME/CFS. (And he wasn’t selling anything that he recommended) He found that some patients symptoms were very much improved by taking 6 g of fish oil a day, or 4 g of (genuine) EPO, or pentoxyfilline, or vitamin B12 as hydroxocobalamin.
As too often happens, while ME patients were very grateful for the help his suggestions offered, researchers seemed more interested in disproving his information. Les specified that the altered erythrocyte shapes would only be seen in samples which were immediately fixed - the usual practice of leaving blood samples in saline for 30 min allowed the erythrocytes to resume the usual biconcave discocyte shape. Despite this, one research paper which purported to dismiss his concept had ignored his protocol, with the consequences he had pointed out. Another claimed that EPO didn’t help. Les responded by testing samples of EPO and found that of 11 brands he tested, only 4 were genuine.
As I am not a scientist, I can only ask questions of those who are.
Professor Rezia Pretorius has said that all of the 150 symptoms of Long Covid can be accounted for by oxygen deprivation. They know that microclots cause lot of the problems. Dr. Amy Proal has found microclots in ME/CFS patients.
One question I would put to you all is whether these non-deformable erythrocytes might be the precursors of microclots. The next is whether any of the suggestions Les made for improving the blood flow situation might have uses for Long Covid patients.
And while I’m at it….NICE has finally paid attention to the experience of ME/CFS patients who have been made seriously worse through exercise, treatment based on the idea that it is psychological, the belief one is harmed by exercise must be changed, and the patient then treated with graded exercise, assuming the problem is deconditioning.
The very powerful lobby of psychiatrists promoting this treatment have protested violently when NICE finally revised the relevant guideline, advising against exercise. These people now seem to becoming active in providing treatment programmes for Long Covid patients, encouraging them to ‘push through’. These programmes are based in local gyms.
The massive public health problem created by Long Covid is going to become an increasing disaster if this approach is allowed to create the complete incapacity, intractable pain, lasting for decades which it has done for so many sufferers of ME/CFS .
WHO, in advice for Long Covid treatment, states that any patient experiencing PEM (Post Exertional Malaise - worsening of all symptoms - after exertion should not exercise.
I fervently hope that all these Long Covid programmes will have to recognise and abide by this injunction. But I don’t think this is happening.
Finally, Ramsay prescribed six months complete rest (no one would dare to do that now!). It may be that whatever the cause is, if the immune system is given all the patient’s energy for long enough, it can finally sort the problem out.
What type of issues are people with mould exposure experiencing? Lung issues? I have a small amount of mould which I recently removed. My LC symptoms are fatigue and brain fog. No lung or breathing issues though.
Good question. I don’t experience any breathing issues, but fatigue, dizziness, cold feet, and brain fog, although that doesn’t really describe what’s actually happening to my brain. Can’t find words for it. Any relief on your end?
Is it possible that the viral reservoir is in the lysosomes and that's why it's so hard to identify?
Great video as ever! Thank you! Are you thinking of covering covid weight gain / weight loss? I’ve been on the gain side and I think it’s been caused by dysbiosis. Getting a food sensitivity test & cutting them out & adding YourGutPlus probiotics have helped me sort it. First week without dairy I lost 4lbs. It also ties back to the whole microbiome piece. Am finding more and more ppl on Twitter and in forums who are struggling with this aspect and thought it could be good to share info to help on your platform. Keep up the great work!! 🤩
Thanks Gael - leave it with me!
I am almost sure I am dealing with this on some level on top of multiple life issues and possible mold issues. Originally I thought it was just trauma but its 10 months now and I’m nowhere near back to full strength .
Are you and a lot of others still using the recommended supplement stack gez?
Niacin, zinc, quarcetein, selenium, Vit C, H1&H2?