THINGS I WISH I KNEW WHEN DIAGNOSED WITH TYPE 1 DIABETES

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  • Опубликовано: 3 дек 2024

Комментарии • 150

  • @MichelleLord
    @MichelleLord  4 года назад +3

    Are you newly diagnosed? Here is another great resource to use as a starting point: beyondtype1.org/new-type-1-diabetes-diagnosis/
    Make sure to check out all the other resources I listed in the video description box as well :)

    • @nickraptis3499
      @nickraptis3499 4 года назад

      Hi Michelle. I like your channel! I have been a type 2 diabetic for 29 years and a pump user for 20 of those years. Since the MD that diagnosed me told me literally nothing, I began my research and haven't stopped. I have kept my A1C around 6.5 for the last 15 years so I thought I was doing pretty good. NOT. After beginning CGM 2 months ago I discovered that I wasn't doing as good as I thought I was, previously checking my BG 8 times a day. The CGM revealed that I was having some pretty bad post-meal spikes. The Nurse/DE that trained me on my new pump recommended that I read Dr. Richard Bernstein's book, "Diabetes Solution". I just finished the book (over 500 pages) and my life has changed! I've been doing his regimen for 4 weeks and my CGM stays 100% in range now instead of the roller coaster on my graph, not to mention losing 12 pounds (and dropping). For anyone reading this, please consult with your physician before making any changes in your therapy, and hopefully you are seeing either an Endocrinologist, Diabetes Educator, Dietitian, or combination of these. Here's a link to his website page that tells his story: www.diabetes-book.com/bernstein-life-with-diabetes/

  • @chrissyfoley7361
    @chrissyfoley7361 4 года назад +102

    I've been a T1D for 53 years. My biggest piece of advice for newly diagnosed people is this. I know it's scary at first but soon you will learn so much and feel more in charge of your own body. Don't listen to the horror stories of possible complications. They are real. However there is so much technology out there to help you that I know you will do well. I was diagnosed at age 12 in the 1960's. Yes I'm that old! 😆 It was very hard to take good care of myself without all these wonderful modern things. However even with that I am doing well. I just want to encourage you that what seems like the worst thing can be not as bad as you may think. If you work with your Diabetes team and take good care of yourself you will be fine. Just like Michelle said there will be days when for no apparent reason your sugars go crazy on you even if you've done all the right things. As she said (I'm paraphrasing) tomorrow is a new day. Another thing is allow yourself to grieve because this is hard. Just don't live there. After all these years I need to do that once in awhile. Sometimes I just get tired of it. For the most part this has just become a lifestyle for me. Sorry this is so long. I wish all you newbies the best! You are not alone. ❤️

    • @MichelleLord
      @MichelleLord  4 года назад +6

      Love this!! Thank you Chrissy ❤️

    • @chrissyfoley7361
      @chrissyfoley7361 4 года назад +6

      Michelle Lord you're welcome! Also you are doing a fantastic job with your channel. You're helping more people than you can imagine.

    • @maryjwood
      @maryjwood 4 года назад +3

      I agree with Chrissy! This coming November will be 50 years for me. I was diagnosed just after my 16th birthday. I had been at Disneyland in a walking coma, my parents took me to the hospital afterwards at 2

    • @maryjwood
      @maryjwood 4 года назад +4

      2:00 am and all the way to the hospital, I was worried about getting a shot. I was on shots for 33 years and then started pumping. It’s been a blessing to be able to use this new medical technology. I’ve been very careful and my lifestyle is not bad. Anyone who is newly diagnosed will have a cure someday soon. Hang in there.

    • @hayleymarie8633
      @hayleymarie8633 4 года назад +4

      It makes me so happy to see comments from ‘older’ diabetics. All I’ve heard my life are horror stories and hearing this is encouraging. I was diagnosed 16 years ago at age 11.

  • @meek1ns
    @meek1ns 4 года назад +13

    Hey Michelle! I got diagnosed with Type 1 Diabetes in January at the age of 31 years. Since then I am struggling more than I think I should, not with my Bloodsugar, it's more the mental problems that suddenly came up.
    I found your videos recently and they really helped me.....so just to let you know: Thank you, you helped me alot already :)
    Greetings from Germany

    • @cabajo
      @cabajo 4 года назад +2

      I also am a LADA (diagnosed at 30, I am now 41 and father of two babies) and I agree on the fact that sometimes D1 can really take you down. The good news is that the more you live with it and the more it will be easer for you to understand that what is taking you down is not the real situation but a temporary combination if hormons and sugar. 💪

  • @lucieni
    @lucieni 2 года назад +1

    The difficult thing about T1 is there are just so many variables to take into consideration. Food, exercise, insulin dosage…. Then there’s exercise, insulin dosage & food plus all the different nutrition values you have to take into account… Fibre, Carbs, fat content… It’s exhausting and challenging for anyone to take on board! Also basic sanity plays a very good part in our decisions so we just have to keep on keeping on and make the best of a situation that without engagement could land us in a whole heap of sh*t down the line! Yet another great video Michelle… Thank you from Kent, U.K. xx

  • @pxxch
    @pxxch 4 года назад +11

    I was diagnosed around 3 months ago and I'm so glad that I immediately found your channel once I got released from the hospital. It is extremely helpful seeing how others cope with T1D and how well they are doing + all the tips that I can incorporate in my daily life! :)

  • @candytoo3729
    @candytoo3729 4 года назад +2

    My Grandad was TID for over 60 yrs. Awesome man

  • @rebeccasavage3289
    @rebeccasavage3289 4 года назад +4

    I was diagnosed during the lockdown, and I'm 45 years old. I was told I'm T1D an hour before I was discharged from a 4 day stay in the ICU, and I was only shown how to count carbs and how to inject. No education class, nothing. Social media is literally my only resource, because even libraries are closed.

  • @mikemccune7329
    @mikemccune7329 4 года назад +2

    I'm 48 years old and was just recently diagnosed with type 1. After months of being sick I finally went to the doctor. January 14, 2020.
    I've been to more doctor visits in the last 4 months than in my life before. I feel U-Tube is half of my "diabetic team".
    Vloggers like yourself and others are like guardian angels.
    Please take care and God bless you.

  • @TypeOneTalks
    @TypeOneTalks 4 года назад +5

    So helpful video for newly diagnosed. Thank you for doing this Michelle! And thanks for listing my channel in the description as one of the sources! I really appreciate it!

    • @MichelleLord
      @MichelleLord  4 года назад

      Thank you!! Of course! You have a great channel with lots of helpful information 😊!

  • @candytoo3729
    @candytoo3729 4 года назад +1

    I was diagnosed at 54! out of the blue. Glad to be alive and to all us TID peeps, Follow the diet and rock on.

  • @mohamedosman-jp6fg
    @mohamedosman-jp6fg 4 года назад +2

    My daughter is diabetes for 3 years now and she diagnosed when she was 1 year and 5months old still trying to be positive and as parent some times it makes me nervous when her blood sugar is high or Iow with no reason you are guys stay strong and keep it up all T1D Team

  • @srussell8141
    @srussell8141 4 года назад +3

    Sometimes being a diabetic is really hard and sometimes you just have to just let yourself go and have a day to relax and just take care of yourself

  • @briazar237
    @briazar237 3 года назад +1

    I was diagnosed just over a month ago. I’m 21 and so shocked to be going through this. Excited to start following this channel and learn more and more about this disease.

    • @alial-qasim2453
      @alial-qasim2453 3 года назад

      I am 22 y.o and diagnosed T1D a week ago, how are you doing right now?

  • @katiepetersen4929
    @katiepetersen4929 4 года назад +5

    Thanks for sharing and good advice to newly diagnosed Type 1's. I so wish I there had been the internet 33 years ago to answer questions for me (I really received some horrible education way back then.)
    33+ years and still learning.

  • @estycoopersmith7570
    @estycoopersmith7570 4 года назад +1

    I am eighteen and I've been diagnosed with T1D about six months ago and i really enjoy ur content!
    seeing how other people handle their diabetes is a great form of support for me!
    because only a diabetic could truly understnad the struggle and frustration of living with diabetes...

  • @GlenysDempers
    @GlenysDempers 4 года назад +3

    Thank you for this. Only got diagnosed 2 days ago so I'm still processing. This video has been very motivational. I can do this!

    • @mikemccune7329
      @mikemccune7329 4 года назад +1

      Go see your doc as often as you like, tell them its for a wellness check. Listen to the Endocrinologist. Make sure and reinforce checking of any other health ailments, the doc may tend to just focus on diabetes and other things could get overlooked. Hang in there, you can do it!

  • @ellewillis5954
    @ellewillis5954 4 года назад +2

    My 4 year old daughter was just diagnosed with t1d the end of March. Thank you for sharing so much! I look forward to your videos. You really help me understand more about what is going on with my daughter 😊

  • @lindseyquennell1457
    @lindseyquennell1457 4 года назад +1

    Hello Michelle my name is Lindsey and I just got diagnosed in April of this year with LADA (Late Autoimmune Diabetes of Adulthood) which is a very rare form of Type 1 Diabetes. I was told at first that I would most likely go through a honeymoon period before needing numerous injections a day. Needless to say that honeymoon period did not last as long as I would have liked or hoped and I am now doing 3-4 insulin injections a day. This really affected me mentally as I felt as though I had done something wrong to not allow the honeymoon period to last longer. Not very long after being diagnosed I found your channel and it has been so very helpful. By this time next year I will have a pump which my team feels is a good fit for me at this point. Thanks for being willing to share your experience with T1D. Lindsey from Ottawa, Ontario.

    • @anujbabbar607
      @anujbabbar607 4 года назад

      Hi there could you please tell me what sort of insulin are you taking and what is the dosage?

    • @MichelleLord
      @MichelleLord  4 года назад

      Hey Lindsey! I'm sorry that you were disappointed with the length of your honeymoon period, but it definitely wasn't anything you did wrong! That is totally understandable. I remember being sad when my honeymoon period ended as well. I'm happy to hear you are working with your team in Ottawa and that you will be getting a pump! Keep up all the hard work 💞! Sending love your way!

    • @MichelleLord
      @MichelleLord  4 года назад

      Hey Anuj, the type of insulin and dosage an individual takes is personal and can vary greatly from person to person. If you are looking for your insulin dosage, make sure you consult a doctor :)

    • @anujbabbar607
      @anujbabbar607 4 года назад

      @@MichelleLord thanks ma'am, actually I am from India and I was just wondering what sort of protocol do other nations follow for Lada treatment. But, what you said is correct, maybe it was inappropriate to ask about your personal medicinal regimen. Sorry and yet thanks for replying back. Greatly appreciate.

  • @pragyab5045
    @pragyab5045 4 года назад +17

    When I got diagnosed with type 1 diabetes I was 10. I did not know what was going to come and what was going on. Now I am 13 and now I know diabetes is not easy to deal with.😂😂

  • @dknyisles
    @dknyisles 4 года назад +22

    When I was diagnosed 62 years ago, treatment was nothing but a primitive glass syringe that I had to boil, with a screw on metal needle. Insulin effectiveness was still in its’ early stages. There weren’t even alcohol pads. BUT.......Now, with all the really AMAZING tech toys for diabetes control like insulin pumps, CGMs (continuous glucose monitors), like the Dexcom 6, or the very cool InPen syringe with the brains of a pump, my diabetes life is actually FUN. Just being able to glance at my Apple Watch and see my blood sugar reading and....no more finger sticks thanks to the Dexcom 6, I now have diabetes by the throat instead of the other way around. Lastly, if you had to pick a time to get diagnosed with diabetes, this is the time. 😀

  • @ReyOfLight
    @ReyOfLight 4 года назад +4

    Non-D myself but living with other chronic condition(s) and have several friends who live with diabetes. It’s really a case of there are as many types of *insert condition here* as there are people diagnosed with it because of how much management can vary between individuals. You simply have to find what works for you, and learning things from others living with the same diagnose can hint you in the right direction, but there’s really no universal magic solution, just as those One Size Fits All never actually fit on most people. Finding ways that works for you is especially important for people with diabetes or another condition where you have a lot of self management and have to make decisions many times per day to minimize the impact from your condition and keep your balance on the tight rope that is your life with diabetes or another chronic illness. It’s fine and only human to have bad days, or do something you “shouldn’t” but that gives you so much joy and satisfaction that it’s worth the extra hassle or backlash. Typing this as I’m recovering from a road trip yesterday, traveling or even just being up and about a lot can put me out of order for days due to the increased pain and fatigue I get. I had to take extra medicine to manage the day (both for pain and hay fever) which in a sense can be looked upon as a temporary basal, and now the day after I’m having to counter yesterday with extra rest, maybe some more medicine and just try to get back to my normal range again. Yesterday was a pizza or Chinese takeout of a day, but it was an amazing day of just driving around in my home region together with my parents (we’re all self isolating) and enjoy the beautiful spring landscapes outside. Days like that, that give you so much joy are just worth the extra hassle both during and after! Yesterday was a pizza that’s lingering with me for a long time, but yesterday was a very good pizza so worth the discomfort today! (I know how difficult pizza or Chinese takeout can be to bolus for, hence the visual comparison)

    • @MichelleLord
      @MichelleLord  4 года назад

      Thanks you for providing your perspective on living with other chronic conditions. Although it isn't diabetes, it sounds like we face the same general challenges of finding balance, and what works for us as individuals. I'm glad you got to go on a nice spring drive yesterday! Take care 💞

    • @ReyOfLight
      @ReyOfLight 4 года назад

      Yeah, different condition but similar concept of having to find balance and stay within a range and constantly juggling with actions and counter actions to stay in that “Golden zone” as much as possible

  • @graceeechoi
    @graceeechoi 4 года назад +2

    MICHELLE I love this! Your videos definitely helped me when I was first diagnosed. I also love the zooming into your face throughout the video lol. I think something that has helped me was learning to treat my diabetes like a relationship, got to put the work into to get the good out!

  • @samanthahelsper1453
    @samanthahelsper1453 3 года назад

    I just want to say this video has really spoke to me as 6 days ago my 3 year old son was just diagnosed with T1D. Thank you for making this video!

  • @twintaamiiradamaafiyadafro4166
    @twintaamiiradamaafiyadafro4166 4 года назад +1

    I just Diagnose type 1 and I’m 23 years and honestly is killing me like last week I was at the hospital for DKA and I also have hyperthyroidism and I lost a lot of weight. And here I am watching your videos and I honestly learning a lot and thank you

  • @rogerlyngeng6903
    @rogerlyngeng6903 4 года назад

    Very good video. 52 yrs old,dia1 since 17,35 yrs. Best wishes from me here in North of Norway.

  • @markschmidt2562
    @markschmidt2562 4 года назад

    Hi Michelle, I was diagnosed at age 53, (60 now). I was actually diagnosed with T2, so I REALLY struggled for the first year and 3 doctors, until I found an endo who figured out I was T1. But your advice is so good for newly diagnosed T1's, carry on, engage, there is SO much help out there, and the tech just keeps getting better. You can live a normal life....

  • @hannah3655
    @hannah3655 4 года назад +1

    Thank you, Michelle. I wish I would've known that I was susceptible to more autoimmune conditions and the burnout that one can face--the mental battle is always a struggle--but I am pretty sure you talked about that in your video talking about what you wish others knew about t1. Definitely have to take this day by day and recognize the positives that come with this disease. I have been quite burned out and sad/insecure about having t1 recently, but your videos are always helpful.

  • @nessg4441
    @nessg4441 4 года назад +1

    Hi everyone! Love the advice from everyone on here and this video! I was diagnosed with T1D at age 28. This year in April was made it 2 years with diabetes. Been recently struggling with my BG lately 😔. But very encouraging words here!

  • @jeffasquith7708
    @jeffasquith7708 4 года назад +1

    I'm thrilled that I went to a pump. It's not for everyone. There are days when I contemplated throwing it through a window. The one caution I would offer is that you check out the differences before choosing. My doctor set me up with a Medtronic 670g. I wasn't even told that there were other choices. I now use a Tandem X2 with Dexcom 6 and I find it FAR superior. Check them all out. Do the research for yourself!

  • @Hani-qo9kp
    @Hani-qo9kp 4 года назад +2

    I’ve had Type One Diabetes for 10 years. I love your channel so much ❤️

  • @Reon-yr6xz
    @Reon-yr6xz 4 года назад +1

    I was diagnosed when I was pregnant with my first child 18 years ago... and doctors said I probably always had it but never was diagnosed before... and now thinking about it I know I had some symptoms...definitely wish I was diagnosed way before so I could take care of myself better. Oh well... I’ve been with injections for long time and now “ finally” I’m on insulin pump, always try to work out and keep a healthy diet , but I have bad days and good days ...so, take care of yourself diabetics friends!!!, and thank Michelle for always share your life with diabetes in such a graceful and calm way... ❤️

  • @joannegibbons2
    @joannegibbons2 3 года назад

    Amazing! Thank you so much for your video. My 11 year old daughter as just been diagnosed and your video was so encouraging. Appreciate all your tips! Much love!

  • @vidhijoshi207
    @vidhijoshi207 4 года назад +3

    Hey i just experienced one thing through out this last decade living with type one is that after some time it become part of you, it becomes invisible and you do it just like it’s your regular routines. Yes some days are hard I agree but beside those days it is quite a companion now.

  • @jenaselvage3614
    @jenaselvage3614 4 года назад

    i was diagnosed at 2 years old and i’m now 17. As someone who does not remember life without T1D or being diagnosed let me say this, you will go through many ups and downs, but never let being T1D stop you from anything. The hard days get better, i promise! Don’t be so hard on yourself, it’s a learning process that never stops. This disease will teach you so much about yourself and make you stronger than you ever knew possible.

  • @isabellaboccuzzi3959
    @isabellaboccuzzi3959 4 года назад +1

    It is so nice to know you on RUclips and I think you doing a great job with this Channel and all I can say is thank you. ❤️😘💙

  • @9001012
    @9001012 4 года назад +1

    Thank you, very informative. Passed your video to my friend who struggles with Diabetes I

  • @kristalculler3928
    @kristalculler3928 4 года назад +9

    I would say 1 step at a time you got this!

  • @sugarhighchannel
    @sugarhighchannel 4 года назад +2

    Great insights! Hearing this perspective helps prepare guys like me to interact better my my patients when they are first diagnosed and equip them with more than just insulin. I’ll be sure to integrate some of these views into my Diabetes Channel as well.

    • @MichelleLord
      @MichelleLord  4 года назад

      Thank you!! I'm glad this video provided some perspective 😊

  • @tomulek3
    @tomulek3 4 года назад

    T1D for 43 years here. Diabetes is scary at first, especially if you have been relatively healthy, do not be scared just take it seriously, take good care of yourself/your diabetes. When I was diagnosed I was really scared (why me, it so terrible sickness ...) but when the scare went away I returned to just care free myself, big mistake. I lost my kidneys, and part of my vision. Diabetes is scary at the beginning but believe me it's much more scary later if you neglect it. So do not be scared, that's waste of energy which is better spend on learning how to take care of your diabetes from wonderful people like Michelle, She's Diabetic .... even I , more experienced diabetic learned so much from them you would not believe it. Thank you Michelle.

  • @candytoo3729
    @candytoo3729 4 года назад

    Michelle you are awesome. Stay healthy and safe and you have done nothing wrong. I love your channel. THANKS

  • @JenGrieves
    @JenGrieves 4 года назад

    Such a helpful video Michelle! Love the letter to your younger self, that's so nice. The tips are really great without being overwhelming for someone newly diagnosed - and you're SO right about each person managing their condition in their own way, the most important tip for sure! Thanks so much as well for linking me, this community is so fab. Hope you're keeping well lovely xxx

  • @CosmicAlleyVintage
    @CosmicAlleyVintage 4 года назад

    Michelle - you should be so proud of what you're doing. I just found you 2 days ago. You are poised, professional and genuine and I'm feeling very grateful for you and your videos. My daughter is 8 and she was just diagnosed mid-March at the beginning of this global pandemic. My girl is strong and fiesty and brave....and it is still hard. She's on MDI and I'm working hard to share your videos of the CGM with her to educate her and alleviate her fears of a device on her body (mostly fear of reaction to adhesive) so that we can move toward getting a CGM pronto. I feel like I'm walking blind sometimes with just the glucose metre. One thing I've been thinking about is how there is so much support out there for people with T1D that are old enough to peruse the internet and connect, but that this is so much harder for kids. They can't just go on and start chatting to strangers plus their conversational skills are somewhat lacking at this age when they are talking with their peers. My daughter and her friend often end up just staring at each other over Facetime not knowing what to do or say. Wouldn't it be great if there was another mentor program that could match up 'screened' young adults like yourself with young kids? JDRF connected me with a mentor family which has been super helpful to me, but my daughter just has me. Don't get me wrong...I'm pretty great, but sometimes it's better to hear things from someone else than your mom :-). I wonder if there's something we could do here to make that happen? Thoughts? Could we team up and talk to JDRF to get something going? Yes, I'm a total keener :-).

    • @MichelleLord
      @MichelleLord  4 года назад

      This is a huge compliment - so thank you❤️!
      I totally get what you mean about kids not being able to connect online the same way that teens and adults can. I see a lot of T1D kids making connections with both children and mentors at conferences such as Friends for Life ( childrenwithdiabetes.com/conferences/ ), or diabetes summer camp. These are in-person connections though, which is not possible during the current situation, but you could look into these two things post-pandemic. I like the idea you have for matching a child with a mentor, and I'm surprised that something like this isn't already in place! I work a bit with Beyond Type 1 and sit on the global ambassador council. The next time we meet, I can bring this up to see if there is anything out there 😊

    • @CosmicAlleyVintage
      @CosmicAlleyVintage 4 года назад

      @@MichelleLord Thanks for taking the time to reply :-). I agree...it is surprising that nothing like that exists already. I love the idea of you bringing that up at the next meeting. That would be fantastic. Thank you! Global ambassador... how do I get a title like that? I'd really love to be able to throw that title around to my kids...maybe they'd listen to me more. Doubtful, I know. Kidding aside, thanks for the others ideas for connecting in person. I was aware of the D-camps but clueless to the conferences. That helps. Take care of yourself and please update me if anything moves forward with a youth mentor program or if there is anyway I can help. FYI - we're BC'ers :-). And keep up the great work!

  • @JimRuth-zd8gj
    @JimRuth-zd8gj 2 года назад

    Thank you….. learning a lot

  • @meganlodge6326
    @meganlodge6326 3 года назад

    I have often heard the statement of how I am not treating my Type 1 diabetes correctly, and this can even be from some physicians. When it comes to finding a physician I looked for one with an open mind, who has the understanding that this disease is as individual as the person who lives with it. The biggest struggle I faced when it came to diabetes was what I should be eating. I was told to carb count and base my insulin intake off of that, and after many trips to the hospital, some that were near fatal, I managed to find a endocrinologist who looked beyond the carbs. My body processes carbs extremely fast, so fast that it can be like I just drank a can of pop. So we decided to move towards a diet with more protein, (when it came to carbs in my diet it typically came from the vegetables that I ate with the meal) my blood sugars stabilized. So in the end it is definitely a disease that has alot of trial and error, but the main thing you need to focus on is how your body works.

  • @rebeccaharmon6861
    @rebeccaharmon6861 4 года назад

    I was diagnosed with diabetes on the 2/9/2019 Steptember. Just recently newly diagnosed with diabetes. Love watching your videos about diabetes. You are inspirational to me. I was 24 when diagnosed with diabetes now I’m 25. I’m currently in hospital with DKA been here over week now.

    • @MichelleLord
      @MichelleLord  4 года назад +1

      I'm so sorry you are in the hospital with DKA! I hope you feel better soon 💓💞

    • @chrissyfoley7361
      @chrissyfoley7361 4 года назад +1

      Rebecca Harmon I'm sorry. That stinks. Been there done that early in my youth. Rest and I'm sure you'll be back on track soon.

    • @davidwalls2304
      @davidwalls2304 4 года назад +2

      Rebecca, I've been a T1D for over 45 years now. I have experienced DKA twice within the last few years and it isn't fun. I know what you are going through. Don't worry through, listen to the doctors, take some time to think about what brought it on, and most importantly, what you felt like when DKA started. After my first 2 DKA "incidents", I talked with my doctor to understand how to treat DKA earlier rather than later. It has saved me a few trips to the hospital.

  • @smalltime0
    @smalltime0 4 года назад

    I'm not Type 1, but I am Reactive- Hypo.
    We had an emergency at work, and whilst nobody wasn't clear headed - I was the calmest person in the room, mostly because I am so use to adrenaline entering my system.
    The person I helped was actually the person who was there for me, when I got really low. So it has a nice symmetry.

  • @hyperhypo3236
    @hyperhypo3236 4 года назад +1

    Thank you diabetes 'cause we are able to see your face on RUclips!! 😂 One thing I wish I knew as you said was that I was not alone, even if it felt so true at the time! So many of us are warriors and have to be disciplined with our health!

  • @cookingwithauntie8257
    @cookingwithauntie8257 4 года назад

    Michelle you are a great role model for young girls with Type1. Our 9 year old was diagnosed when she was 5. She has been steeling food lately and we don’t know how to deal with it. We are trying to find professional help but during this pandemic is hard. Any advice?

  • @kaleighcapasso212
    @kaleighcapasso212 4 года назад

    I am on the tslim x2 and is suited my lifestyle so much. You only “take shots or get pricked” every 2-3 days. Also The CGM Dexcom g6 is a glucose monitor that you change every 3 days but there are a bunch of ways to take care of your self with diabetes. These are just my preference of care

  • @LauraTrippy
    @LauraTrippy 3 года назад

    and a tip for younger (or older) newly diagnosed people: you can get loads of different stickers for your devices that make your diabetes way more happy and colourful :)

  • @davidmina6775
    @davidmina6775 4 года назад +2

    Michelle, can I just say how proud I am of you?! You are beyond incredible for how you carry out your RUclips channel and life in general. I am so incredibly grateful to know you and call you my friend. Thank you for being YOU 💙

    • @MichelleLord
      @MichelleLord  4 года назад +2

      Aww thank you Dave!! You are too kind 😘💙. I'm so grateful to call you my friend too!!

  • @Dr_Breakincheeks
    @Dr_Breakincheeks 4 года назад +1

    I'll be 29 in June and was diagnosed in January with T1D

  • @heyhey4356
    @heyhey4356 3 года назад +1

    I was diagnosed with diabetes right before Christmas but I did not find out what type i had until January. I have type one but I had been doing insulin right off the bat so I knew how to do it. My blood sugars where in the 560 but the first time I checked it all it said was hi the I checked it later that night and it was around the 560.

  • @xXHanagetsuXx
    @xXHanagetsuXx 4 года назад

    I was diagnosed with Type 1 Diabetes when I was 6 in 1997 :) I remember being taken to psychologists and me saying "I wish I was normal" and then getting told I'm definitely depressed and then getting angry and confused because they were telling me what I was feeling when I didn't even know what I was feeling. Take time to figure out your own feelings and listen to others, but don't let it influence you. As an adult I can say I'm probably depressed for a number of reasons :P I don't remember life before diabetes honestly. It's always been hard and some days are harder than others. Remember it's important to take care of yourself because even though you may be young and nothing bad has happened yet because you're not taking care of yourself, one day it will. I had a central retinal vein occlusion happen in my left eye when I turned 19 and while I didn't go blind, my vision is slightly damaged now and it's never going to get better. It can feel lonely, but there's a whole community behind you that you didn't know about :) I'm learning about them now at 30 years old. It's scary and it's hard, but you can do it. Like Michelle said, we only get one body to live the best we can with. We're with you

  • @debbiewithtype1diabetes559
    @debbiewithtype1diabetes559 4 года назад

    Canadian Diabetes association also has a support group

  • @induthampytype1diabeticwar157
    @induthampytype1diabeticwar157 4 года назад +1

    Thankyou Michelle. Loved it. I'm a type 1 diabetic from India. And I am 31 and was diagnosed when I was 7. Nobody knew what it was itself as I was from a remote area. Would you mind if I shared your advice through a video in my regional language? I have a RUclips channel in that language to help my people. They dnt understand or follow English and our national language- Hindi. So it may help them a lot. But I need your permission first. I'll be tagging this video of yours in the description too. Can I?

  • @hannahmartin770
    @hannahmartin770 4 года назад +6

    When I was first diagnosed, I would have liked to know God is with me. Every Type 1 Diabetic is different, God is the only one there with you. Now that I believe in God and asked God into my heart, I talk to God about my T1D.
    I would also have liked to know about diffrent diabetes community platforms like Beyond Type 1.

  • @tonykelly1679
    @tonykelly1679 4 года назад +1

    I got my bad news at age 28 years old ten years later and still hear!! You have good days and bad days some days will be harder then others!! But it because life 🤷🏻‍♂️😎👊🏻

  • @pattymcgowan1423
    @pattymcgowan1423 4 года назад

    So appreciate your videos. My husband is a type one diabetic and I have now turned into his caregiver. I have gotten him a dexcom G6. It will be arriving any day my question is where to place it. It's supposed to go on the stomach but I think that would be a bad placement for my husband. At what point did you switch to your arm are your readings as good there? I didn't see anything that says dexcom should be placed on the arm but would be perfect for my husband. Since he can no longer manage his diabetes I have had to take a crash course in the last few months!!!! It is so overwhelming having someone else's life literally in your hands.

  • @Ripslurq
    @Ripslurq 3 года назад

    I was just recently diagnosed last Tuesday, I’m only 11 and the doctors said i could’ve been diagnosed within the last 6 months and I got taller too so my mom thought I got skinny because I was getting taller I’m currently out of the ER gaining all my weight back working with diabetes

  • @dianesheridan841
    @dianesheridan841 3 года назад

    Do you trust the Dexcom or finger sticking

  • @HallieShepard
    @HallieShepard 4 года назад

    I've been a T1D for 5 years. My biggest piece of advice would be not to be so worked up over an A1C or not being in range all the time. We are all imperfect people and nothing is ever going to go exactly the way we want it to, so it's OK to have a rough time. I just hope newly diagnosed T1D's or somewhat new ones know they will move on and get past the what may seem like a "bad" A1C or a "bad" blood sugar.

    • @MichelleLord
      @MichelleLord  4 года назад

      Love this advice Hallie!! Don't get so caught up with the numbers :)

  • @StephanieMT
    @StephanieMT 4 года назад

    Caregivers remember to take care of yourself too. From a mom to a 3 year old type 1

  • @AaronMenchions
    @AaronMenchions 4 года назад +2

    1) Diabetes is an art, not a science. You can do exactly the same things 3 days in a row and get different results, as Michelle mentions under her roller coaster point. The sooner you stop beating yourself up over bad days from outta know where, the better.
    2) Eat cake. No, really. Don't restrict your diet and decline a tasty piece of cake at a party, and seek out carrots instead. Yes, until you get experience you will misjudge the bolus. Yes, you may go high, and have to correct. I'd under bolus than over if carb guessing. But in my opinion, the small sacrifice in a "normal" blood sugar is outweighed by the gift of mental pleasure. Don't be super hard on yourself, or you'll resent the disease and it will make your life a boring mess. Live a little, enjoy cake, or cookies, or a beer. A good mental state is 75% of the diabetes battle IMO.
    37 years of living with T1 here.

    • @bjduncc
      @bjduncc 4 года назад

      my secret has been to chug a natty light if I need to bring my blood sugar down

  • @marin4220
    @marin4220 4 года назад

    I was diagnosed when I was 7 and now I’m 12 so I’ve had it for 5 years

  • @jackclark962
    @jackclark962 4 года назад

    Hello my name is Jack. I have had type 1 diabetes for 63 years. One thing I would like to say is the most important thing is to “Take control of your diabetes otherwise it will take control of you “ This is not easy at first but will become the way you live and enable you to stay healthy for the rest of your life. Regards Jack.

  • @maddiewilmoth9989
    @maddiewilmoth9989 4 года назад

    I come to your channel to learn about t1d and now I know a lot about t1d. I know way too much about this topic😂

  • @robcahill5943
    @robcahill5943 4 года назад

    I have had it for 1 year now

  • @debbiewithtype1diabetes559
    @debbiewithtype1diabetes559 4 года назад +5

    That you will always have 2 full time JOBS

  • @Gilly__-xs1vq
    @Gilly__-xs1vq 4 года назад +1

    Hey I was diagnosed when I was four...I’m thirteen now....I’ve basically just grown up with it since I can remember...I have a pump and my tummy has sooo many bumps...probably cause I put the needle at the same spot... do u have any ideas how to get rid of the bumps? I have been moving my pump spots but it there any other way???

    • @ripnreptar
      @ripnreptar 3 года назад

      Hey gilly I also have had the bumps on my belly and although I haven’t completely gotten rid of them. I have been able to make it a lot less noticeable by avoiding the belly for injection sites all together if you can and applying some vitamin e oil on your stomach.

  • @richtributionprime4471
    @richtributionprime4471 4 года назад

    I’ve been diabetic since 1996 and lately I’ve been getting more hypos

  • @debbiewithtype1diabetes559
    @debbiewithtype1diabetes559 4 года назад

    JDRF sunlife walk around wonderland was Amazing

  • @slimepup5116
    @slimepup5116 2 года назад

    I got it 2 months ago lol I'm getting my design

  • @twintaamiiradamaafiyadafro4166
    @twintaamiiradamaafiyadafro4166 4 года назад

    I’m so scared because is so new 5 month ago they told me that I have type 2 and one week ago they said I have type1 and Im still confused and scared at the some time and I have millions questions😩😩

  • @michieidinger8943
    @michieidinger8943 3 года назад

    Diagnosed with typ 1 on 7th march 2021 :O

  • @Nerdabetic
    @Nerdabetic 4 года назад

    Soooo true with learning! It’s crazy how frequently everything changes. Amazing video!

  • @Amy_jane21
    @Amy_jane21 4 года назад

    i was diagnosed just over a month ago

    • @MichelleLord
      @MichelleLord  4 года назад +1

      Hi Amy! I hope you are doing well since your diagnosis. Sending love ❤️❤️

    • @Amy_jane21
      @Amy_jane21 4 года назад +1

      @@MichelleLord i am, thank you :)

  • @rimhassouna2167
    @rimhassouna2167 4 года назад

    I didn't feel well this days and i saw some videos about tipe 1 disbetes simptoms and i actuakly have a lot of them, and im scared now. My dad has tipe one diabetes, a lot of my family has type one diabetes. Idk what to do

    • @onai1782
      @onai1782 4 года назад

      Go to the doctor you don't want to risk going into DKA

  • @melis_roses
    @melis_roses 4 года назад

    Can someone help me out. How do you guys deal with extreme anxiety when trying to put a Dexcom on? I already have anxiety with normal shots and sugar checks as it is, and I haven’t used my sensor in months because of my anxiety. I’m trying to use it again but each time I have the tape on and all I have to do is press the button, I get so anxious I end up holding it there for about an hour (not exaggerating AT ALL) and I end up hyperventilating and crying and I take it off without even pushing the button or anything. I can’t get myself to do it. I don’t know if anyone has this problem but please if you do, what can help with this? I’ve tried music and watching a show and different things to try to keep my mind off the task but nothing has helped. I’m really terrified even though I’ve used it in the past and I know it doesn’t really hurt too bad

    • @MichelleLord
      @MichelleLord  4 года назад

      Hey Melissa! I will sometimes feel nervous when inserting a pump site or Dexcom. Actually, for some reason for my last Dexcom sensor I was too nervous to push the button, even though it does not hurt at all! So I had my husband push the button while I looked away.
      If you are struggling with really bad anxiety over diabetes related tasks, and if you have access to a counsellor/psychologist, you could consider seeking help from a professional. I know this isn't for everyone, but it's just a thought :)
      Sending you love, and I hope your next Dexcom insertion is smooth sailing 💖

    • @melis_roses
      @melis_roses 4 года назад

      Michelle Lord thank you for the reply! And yeah I do have a therapist I see that’s helping me work through the anxiety I have. Maybe I’ll give that a try, it’ll probably be easier if someone else did it for me. Thanks for the advice I really appreciate it 💜

  • @FreeAgent99
    @FreeAgent99 4 года назад

    What about keto diet?

  • @gregwocher4877
    @gregwocher4877 4 года назад

    I am 44 and I was diagnosed when I was 4. Please, Please take care of your blood glucose levels and watch what you eat. 18 years ago I lost my eyesight from diabetes because I did not take care of myself like I should have.

    • @chrissyfoley7361
      @chrissyfoley7361 4 года назад

      Braso you don't have to have site to use a computer. 😊 Do you have an Endocrinologist? Guessing how much insulin to take all the time isn't good. Counting carbs is the best. Your doctor should tell you your carb to insulin ratio. For example I take 1 unit of insulin for every 13 grams of carbs I eat. Once in a while I take an educated guess based on several factors but for the most part I use carb counting. Do you check your blood sugars regularly? All these things are part of taking care of yourself.

    • @chrissyfoley7361
      @chrissyfoley7361 4 года назад

      Braso I’m not totally understanding what you’re saying but if you’re not checking the carbs that’s not good. Do you see a doctor for your diabetes? What do your blood sugars run? If you don’t take this disease seriously it will kick you in the butt later on. You think you’re getting away with it until it catches up to you and by then you have complications that you can’t reverse. Unless I’m misunderstanding what you’re saying.

    • @sanchunam4716
      @sanchunam4716 4 года назад +1

      @@chrissyfoley7361 Hi..I was diagnosed 4 months ago..Doctor suggested me to take fixed insulin dosage..not on carb basis..is it serious issue??
      i am on pens and 4 injections per day..Give me suggestions..

    • @chrissyfoley7361
      @chrissyfoley7361 4 года назад +2

      Sanchuna M always do what your doctor says. I’m on an insulin pump. I took a break from pumping awhile ago but now I’m back on my pump. When I was on injections I took the same amount of long acting every day at the same time. For meals I counted carbs to know how much short acting to take. DISCLAIMER I’m not offering medical advice. You should do what your doctor tells you. I find carb counting very beneficial. If you want ask your doctor what he thinks. The OP (original poster) was basically saying he guesses how much to take which is never good.

    • @gregwocher4877
      @gregwocher4877 4 года назад +1

      Braso You need to check your sugars more. You need to do it at least four to six times a day. You also need to watch your carbs as close as Possible. I try to eat no more than 45 carbs in a meal with about 15 carbs for a snack. I did not watch this when I was yonger and now I am blind.

  • @FatimaJabir
    @FatimaJabir 4 года назад

    Hi I would like to ask can you relate I sometimes feel weird about diabetes. I love your video. hope your safe during the pandemic.
    ‐Fatima

  • @debbiewithtype1diabetes559
    @debbiewithtype1diabetes559 4 года назад

    There is No wrong way to manage your diabetes! Don’t let your Drs tell you what you need to do for your body, remember they can give you guidance, but ultimately it’s you who makes the choices at the end of the day!!!

  • @debbiewithtype1diabetes559
    @debbiewithtype1diabetes559 4 года назад

    💗

  • @debbiewithtype1diabetes559
    @debbiewithtype1diabetes559 4 года назад +1

    Go to Diabetes Camp if you can it saved my life! Been type 1 for over 30 yrs

    • @chrissyfoley7361
      @chrissyfoley7361 4 года назад

      Deb with Diabetes that's one thing I always wanted to do as a child but never got to. I never knew any other Type1's growing up. I'm glad you got to go.

  • @meaganphillips3847
    @meaganphillips3847 4 года назад

    Do you have any general tips I just found out I have type 2 I understand that type 1 and type 2 are different for obvious reason but come with similar worries

    • @MichelleLord
      @MichelleLord  4 года назад +1

      Yes! They definitely come with similar worries. I think that a lot of these points would apply to type 2 as well. I'm sorry to hear about your diagnosis and I wish you all the best in your diabetes journey. Stay well ❤️

  • @sarahschlotfeldt8698
    @sarahschlotfeldt8698 3 года назад

    Meeting Dr IGUDIA RUclips channel was the beginning of a new life for me after using his herbs medication in curing my Diabetes disease.

  • @wilfordbrimley4324
    @wilfordbrimley4324 4 года назад

    It’s pronounced diabeetus, goddamnit.

  • @ammarif618
    @ammarif618 4 года назад

    This is terrible