As a type 1 diabetic for 6 years now, I’m honestly surprised that the percent of Type 1 diabetics struggling with mental illnesses isn’t higher. It can be SO DRAINING to have to manually calculate something that your body is supposed to do 24/7 all the time. It is even harder when you feel you have to do it alone. Please reach out to someone for help when you need it. ❤️ And please remember that you are not alone in the daily struggle of T1D
I agree! As a type 1, I would have thought the percentage of T1Ds struggling with mental health was a bit higher than that, but to non-diabetics it is quite a shocking statistic. Some people have no idea that there is any sort of struggle with mental health in the T1 community.
Michelle Lord Yeah, it makes sense that a vast majority of people wouldn't know. Now I'm really curious about other diabetic's experiences of coping with and feeling prepared for mental health struggles!
My roommates newborn nephew was diagnosed and his parents were SO stressed out. Partly from having all these stereotypes and assumptions pushed on them from other parents that don't know anything about T1, from the extra stress and worry on top of caring for a (now) toddler, and the banal well wishes (like "oh it'll get better") from folks that don't understand. My roomy was able to talk with them from a context of "no, it's a lot of hard work and it's NOT going to be all sunshine and roses" and that actually was a big stress relief for the parents. It's OK that its hard. Ya know what kind of people DO hard things? Hard badass people. Anyway, you're not alone Marie. We're all in this together with you.
The only reason why the statistic isn't higher is because of denial, we're told it's manageable and a bunch of other crap, and we collectively repress what we're going through, and diabetic men are less open about what they're going through, trained to suck it up because of societal standards. All diabetics suffer from mental illness, diabetes happens to deal with the thyroid gland and hormones, not just the pancreas, right there says it all.
I have type 1 diabetes with a sensor and a pump. I also have a order in for a pen I dislike the the needles pen and pump more efficient. But I’m not constantly worrying about my blood sugar. I’m not depressed too. I can eat whatever I want. I just have to match it with insulin. Pump and pen depending on what you use can do that very fast and efficiently.
I’m guessing you do have type 1 right? Manage your blood sugar right and make sure when you take insulin you are taking the right amounts. Your carb count and correction if you need a correction. You shouldn’t be always worrying about your blood sugar. A sensor can give you updates constantly and the sensor I have I don’t has to prick my fingers anymore. Also you should know when your blood sugar is to low or to high. You will know. And once you get sensor and the pump and pen it makes that process which was long for me prick then draw up insulin on needle no bubbles. I used to hate that. Glad I got a sensor and pump rn. I’m getting a pen too if I’m not wearing pump. Just tell pen how much insulin you want and inject. So type 1 for me has been pretty fine. I don’t have any mental health issues Except carb counting can fustrate me at times.
I’ve been type one for 9 years and have just been diagnosed with a second chronic illness . People don’t realize how daunting it can be to know that you’ll never have a forever “fix”. We work so hard and take into account so many things just to get through the day. It’s just a lot of work that none of us signed up for
Could someone please put online that the numbers of people being diagnosed is rising and Type 1 Diabetes can be found in adulthood as well? 😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭 Thank You I would appreciate it. Everyone seems to read the wrong information.
I know this is late, but I completely agree! I’ve had diabetes for almost 11 years now, since I was 4. I also have Gilbert’s syndrome. It’s benign, but it can get bad when I’m sick. It’s really exhausting for me, especially because I know no one else with diabetes to talk to.
Sometimes I wish people knew how crippling diabetes is. How sometimes I don’t leave the house because I don’t feel good or just don’t have to energy to leave my bed. It’s been worse since having my thyroid removed.
Same here. Some days I have literally nothing in the tank. I don't have energy to have fun, think, or achieve much at all. It's like I'm not me. Keep fighting to get healthier. That's my main focus 2021. Get better. Failure is not an option.
Michelle, as you know, I am on 60 years with type 1. I have never admitted to myself much of what you lay out here, especially the mental health part of it. I just want to tell you and your watchers how valuable you are, how GREAT your concern is, but most of all how kind you are. The #1 thing that I want to add is that we are not diabetics, but rather we are people that have diabetes.
I got diagnosed last night at 31 years old. Spent the past week chugging Gatorade and juice and soda without quenching my thirst, thinking I had a stomach bug and finally came to to the hospital. They found my blood sugar level at 696. Still on IV now getting rehydrated I've spent today learning how to prick and inject myself, and just studying what information I can find. Seems I have a lot to learn and a big change in diet/lifestyle ahead of me.
I just got diagnosed too at age 23, only 2 weeks ago. Definitely has been an enormous adjustment but I think itll get easier with time. Hope you're adjusting well
I know how you feel. I was diagnosed 49 years ago at age 26 with a blood sugar of nearly 1,000 mg/dl. As I was at the time a freelance photojournalist I had both a meager income and no health insurance. The doctor in the emergency room at a county hospital outside San Francisco looked up from by blood sugar test results and said, "You've got Type 1 diabetes if you don't get on insulin and a decent diet you'll be dead in six months." His nurse then handed me a bottle of NPH insulin and a box of syringes and sent me home. Back then there was no way to self test blood glucose levels. You had to collect urine in a container, put five drops of it in a glass test tube, add five drops of water, wait a minute or two and then compare the color of the mixture to a color chart. All that chart told you was whether the amount of sugar in your urine was normal, medium, high, or very high. Since everyone's renal threshold is different, and since the sugar doesn't appear in the urine until a good amount of time after eating the info provided was next to worthless. Happily diabetic tools and techniques have advanced a great deal in the past 50 years and managing the disease today is a great deal easier! Sadly many if not most medical professionals have simply not kept up with these advances in care. So my advice to you is to walk up to your bathroom mirror, take a look at your reflection, and say aloud "So that's my doctor." Simply put your future as a diabetic will almost entirely depend upon your willingness to take control of your own treatment. A good, caring doctor can help, but the real work unfortunately falls squarely upon our own shoulders. While a newly diagnosed diabetic will almost inevitably have a tough time in the beginning learning diabetes management has never been easier due to the incredible resources available via the Internet! Back when I was diagnosed I immediately went to the library to see what I could find and all they had were two very basic books on diabetes. Today there are dozens of excellent books, podcasts, and other sources of information, sympathy, and inspiration. Count thy lucky stars and dive into researching the "need to know" info now easily available. Last, but not least, please check out the various continuous glucose monitoring devices available today. One of the first diabetics in America to use home glucose monitoring systems I began pricking my fingers in 1980 and before switching to CGM systems a year ago I had pricked my fingers in excess of 150,000 times! Not anymore! Now once every 14 days I apply a sensor to the back of my arm and any time I need to measure my blood sugar I simply scan the sensor and Presto! the result appears on the reader! Best thing since sliced bread! and if I had to pick up returnable bottles and cans on the side of the road to be able to afford my cgm supplies I'd happily do it. Simply the most important breakthrough in diabetic technology since the discovery of insulin by Banting & Best in 1921! I use a Freestyle Libre 2 cgm system manufactured by Abbott as it is the least expensive but there are other excellent systems out there as well. So chin up! and get started on your course in diabetes management.
I was hospitalized with DKA less than a year ago at age 35. Now I’m diagnosed with Type 1. I’ve been extremely stubborn and angry at this and accepting this. I don’t want this, it’s a burden, I come undone when I do the right things and think I found a groove and my blood sugars have a mind of their own. Womens menstrual cycles also big time mess with insulin. As if the hormonal ups and downs in a cycle isn’t already hell- now having to give yourself more insulin during this time is the worst. Sigh… I’ve been very anxious and depressed over this.
What a great video! Today I’ve had a bad diabetes day because everything just hit me with the fact I have to live with diabetes for the rest of my life! This happened with a hypo because I suddenly got emotional and upset and I tested and I was having a hypo! It shows how quickly everything can change when one moment I’m happy and then I’m crying and I have got all worked up!
The same thing just happened to me! But it was because of hyperglycaemia, man it got me so stressed and intense emotionally I started crying after realizing I couldn’t do the presentation for economics
This is what I tell my daughter with Type 1 diabetes. Accept it and make it part of your everyday routine just like brushing your teeth. Be strong many people have this. Some of my family members that have it lived to be long in to their late 80's and 90's. You can do this.
My son was diagnosed with Type 1 at the age of four. He hates it when he goes to the doctor and they ask if he is still on insulin? It blows his mind that a doctor/nurse will even ask him that question. He bites his tongue and says yes.
It hasn't gotten any better over the years. I have changed general practitioners multiple times since I was diagnosed at 12yrs old. I am now 32 and I have gotten that question a few times, as well as having a doctor prescribe me metformin! Type 1 awareness is lacking here in the states. No offense to the type 2 diabetics out there, but every time I see a commercial that says "not for treatment of type 1 diabetes", I want to punch something. Who is with me on this? Thank God for my CGM and pump. They have come a long way since I was first diagnosed. I swore them off until recently.
Here Type 1 diabetes is considered a life changing disease and can cause depression that's why over here in NZ a professional Psychologist is an integral part of a diabetics medical team should they require one. I inherited my type 1 from my mum. We got ours later in life, in our fifties, mum 55 me 52. What the medical professionals here term Latent Onset Diabetes. My younger daughter got type 1 last year in her 30s. So far not enough is known about type 1 Latent Onset Diabetes. I'm not depressed or anything. The thing I don't like is having to force myself to eat when I'm not even hungry. I hate when people think type 1 and 2 diabetes are the same thing. Even when you explain it to them they still don't get it. Thanks Michelle Great video👍
We just found out my daughter has type 1 diabetes. She's 11 she was just diagnosed with it March 2020. I empathize with you because my daughter went i into diabetic ketoacidosis that's how we found out
This is a great video, Michelle! I was hospitalized and diagnosed with Type 1 Diabetes almost 4 years ago less than a month after my 70th Birthday. My Endocrinologist says that being a Type 1 is like having a child that has to be constantly taken care of...it is so true. I really never knew what my older brother, who is a Type 1 Diabetic, went through every day since he was 13 until it happened to me. Your videos are great and I really appreciate what you are doing for the Diabetic community. Thank you so much!!! 😘
Oh, also, I just finished the Saline trials for the Tandem t:slim X2 and will be getting my Insulin Pump soon. I am already using the Dexcom G6. So, I am psyched to start on the pump.
Oh my goodness - what an INCREDIBLE VIDEO!! That was sooooo well thought out and presented. I honestly got chills. Thank you for being such a shining light of truth and positivity and inspiration in this community!!! 👏🏻👏🏻👏🏻
I was also 12 going on 13 when I was diagnosed. I appreciate content like this ... Cause this disease is no child's play so having a community of type 1 diabetic is the best. Wishing everyone living with diabetes health and peace of mind.
Dang. I was diagnosed at 21. All the other T1 crew I know were either diagnosed as young adults or as toddlers. I had a hard time accepting and adjusting to the lifestyle change I got slapped with but I was kinda sorta "grown up" . I can't imagine having a healthy young childhood and being hit upside the head with it all as a pre-teen. Keep up the good work and thank you for T1 lifestyle channel to keep normalizing our mostly invisible, somewhat visible condition.
I live with type 1 diabetes and its so important for videos like this, it not only helps me but it helps give people real education about a serious life long disease.
Omg my response was in the video!! lol so cool! Thank you for making this video - it’s such a unique and personal way to let others in the community know about T1D - having our voices be heard, not only yours! X
Amazing video. One thing I wished I was told when I was diagnosed was you will have bad days. Nothing is perfect especially when it comes to management for this disease. Also it's ok to be sad, angry, frustrated with being diabetic, it is a very difficult disease to maintain.
Great video! 1 thing I wish people knew is how difficult it is dealing with a low blood sugar. From literally breaking you down mentally, emotionally and physically to how time consuming it is. "Ok your sugars low? Eat something." Sounds simple but unless you experience any episode for yourself you will never really understand.
I am a T2D, but you and Nerdabetic are my best resources for information. Hypoglycemia drove me to using Freestyle Libre, which I learned about from you guys. Thank you so much, and keep the videos coming.
Thanks for the wonderful video! You definitely touched on all my comments about this horrific disease. I'm proud to say I'm in my 32nd year of having Type 1 with a great A1c and almost no complications. I couldn't do it without my pump!! It makes me feel as close to "normal" as someone could with Type 1.
Thank you for making this video and showing light on mental health side of type one. I think especially when it is a disease that no one can see they dont think is possible that u are struggling with food and mental battles connected to food. I know that was something I was struggling with when I'm was first diagnosed 11 years ago.
Thank you for having the courage to make this ! It was a really good and informative video. It can be so difficult being a young woman with t1D and I’m happy you touched on mental illness, etc.
WOW!!!!! This is literally the best video ever! Thank you so much for sharing! I think that like this should be like a TV ad or commercial. I'm definitely sharing this amazing video! Thanks for all you do in the T1D community.
I find that having hobbies that help you exercise is a great way to deal with our common stressors! and when I’m not moving around or busy I find comedy really helps with my spirits! All the best
WOW ! This video is absolutely amazing . I am mind blown by how you covered literally everything so perfectly ! Thanks for making this video and being so amazing !
Thank you so much for making this video! It’s so true. I hope it helps others understand what it’s like to have T1D!! One thing that I find that most people don’t understand is actually how hard and frustrating it can be to exercise. I find that I either have a spike or a low when I exercise. Exercise is crucial for diabetes management but knowing I’m likely going to have a low can sometimes make me not want to exercise. It can be really frustrating!
Inherited severe anxiety and major depression disorders from both parents as a baseline AND got Type 1, so I wonder if that's why I struggle so hard to have energy for basic life activities. I believe I get burnout at work easily because of the above issues and my driven-to-succeed personality making me push myself beyond what my health can handle. Just want to remove this stupid chain from my leg and fly high on life. Keep on fighting to be healthy. We've got so much good to do in this life
Been type 1 diabetic for 30 years. Am now middle aged, so this may be more specific to my situation, but not everyone who is over the age of 40 is type 2. Telling me that, "Someone I know went on such and such diet and decreased their need for insulin/ was able to go back to oral medications," isn't going to get more than an eye roll from me. There is a reason it is no longer called juvenile diabetes. Many people live into older adulthood with it. (Side note, I did have a young 20-something in a grocery store ask me if I was type 1 when he saw my Dexcom, as his girlfriend has type 1 and he knew there was a difference. I wish more people knew that.)
Michelle, this was such an important video!, and you presented it so well. I will definitley share this video to help spread awareness about T1D. Keep it up👍💪❤
Thankyou soo much Michelle....I love you for making this video. Since childhood I've been mocked and teased for having diabetes by my friends, relatives and even some teachers. I have always told everyone about the reason but no one actually understood it because they were busy making fun of my illness.
I relate to having people wondering how I got diabetes. I have always been very thin, even before I developed T1D. I am sick of hearing people say "oh you don't look like you have diabetes!" or "how did *you* get diabetes?" or even (this comes from unaware people who don't know I have the disease, but it's still frustrating) "oh you're so small. You don't have to worry about what you eat/how many carbs are in that!"
I guess you can say that one somewhat related thing I observed was a local obituary of a woman who died at age 39. The obit said that donations could be made to Canadian Mental Health Foundation or the Canadian Diabetes Association. I guess it is quite likely that the stress of managing diabetes on top of being a parent added up.
I’ve been surprised how many of my work colleagues did not seem to know that T1 autoimmune can happen in adults. I’m talking about senior pharmacists (working in Paediatric hospital pharmacy that have previously worked in adult healthcare) because in paeds we see children with a new T1 diagnosis all the time because of course it’s a lot more common to be diagnosed as a child but as you state it can happen at anytime. I was 47 (now 49) when diagnosed with LADA.
THANK you so much Michelle! Your support is really the peak of my week, i usually watch your vlogs every friday and i really look forward to it every week! What a great, great video! Im a norwegian being diagnosed almost 2 years ago when i was pregnant and i find it hard living with T1D and being a toddler-mom but im focusing on staying positive and strong, and it really is easier with your support! So thank you ever so much!
Great video , good information & lets us know we are not alone. Thoroughly a breath of fresh air for type 1's & the struggles we go through . Thanks for posting this video .
Thank you very much im type 1.5 LADA i got diagnosed around 39 years old so ive only been dealing with it now 3 years i was in DKA 16 times in that time till i got an insulin pump i lost about 45lbs and it has given me neuropathy and retinopathy i try explaining it to friends and family and they say oh you ate to much sugar or just take your insulin or diet and exercise will help..i got divorced around the same time I started getting sick ive struggled with it alone..times ive been sick i try hiding it from my boys and friends and family..i appreciate you very much all diabetic people..lol mom always said i was to sweet
Michelle, dare I say Lordy Lordy, but you are one fine lady for speaking up as well as you do for all of us living with Type 1 diabetes. You are a true warrior on the subject and you could easily be a speaker on TedTalks. I think there are so many things that people do NOT understand has a lot to do with the commercials on TV which are for Type 2 diabetics. They make it look like it is a simple walk in the park and proper diet. If only this were true. Also, as you have said - so many people do NOT understand the differences. I was diagnosed 15 years after a bad car accident. As it turns out they did NOT figure it out because all of my doctors simply thought the fact that I was not feeling right was due to my meds and injuries. I was told it may be up to 2 years, if at all for me to fully recover. Well, once I found out I had Type 1 Diabetes I was put on insulin and thought as long as I take the insulin all would be fine. Nope. The car accident had traumatized my body so that my Diabetes ended up on the fast track and I have yet to this day to be able to manage it. I am a compliant patient but I have nearly died too many times due to Diabetic Ketoacidosis. I have had many more complications show up even though I have done all that I could to manage it well. My grandmother taught me while growing up that I was to be my own best advocate with regards to my health and supported doing research and looking for natural cures. I thank her for this as I did my homework once diagnosed but still ended up with a bad case of Diabetic Ketoacidosis which put me in the ICU for six nights. I finally found out that my stomach was not working properly which is why I could not control my blood sugars, unless I would fast for most of the day. Family members and lovers ones need not judge anyone who ends up with this disease. I have learned so very much from your videos and I thank you for all of the hard work you do to educate us. Just recently I heard you talk about the importance of water to prevent dehydration since it can cause your sugars to spike. I also never knew that throwing up for more than 6 hours and not responding to insulin means get to an ER right away. Well, this is more than one thing you asked for - oops, my bad. I just like to share what I have learned!! Keep up the good work, and may all of us Diabetic warriors continue to find the path that works best for us!! Stay healthy, Heather
Thank you for this video. When noone in my life understands what i go through this video is nice to watch. Gives me validation and reminds me im not alone.
there should be a video like this for every chronic illness - one thing I wish people knew about type one diabetes is don't believe everything you read on the internet about it, and other type ones can not give anyone medical advice just because someone using x amount of insulin or a certain thing to treat a low or a place to put their dexcom doesn't mean to just do that talk to your medical team and make the best choice for your body that's two things but they weren't mentioned I see too many people in the comment sections asking other type ones for medical advice. Really like how you mentioned that all chronic illness are hard and are for life.
Thank you for posting this. I was diagnosed w a 3rd autoimmune issue this yr. My endocrinologist just rattled it off like it was no big deal. It’s been almost a year, I’m still reeling, and having to educate myself. i was originally diagnosed w T2, then T1.5, then told no, it’s T1 😳🙄...and they go to school for this? TY again ❤️, I do love your positive, solution-oriented approach.
I was recently diagnosed with type 1 last month. 23 years old, going trough DKA. BG @1,100. Bad days and good days since I'm very new to this. Thank God for Insulin!
Great video, I will share it with my son who is 31, started with Type 1 diabetes at age 4...he is one of that 15% who suffers badly from anxiety, some of which has arisen because of being told off in cafes, gyms etc. for giving his insulin injections and blood tests anywhere but in the toilets!! And he has just been discharged from his diabetic clinic at the local hospital for missing ONE appointment!!!
I don’t understand why type 1 diabetes isn’t talked about enough in schools etc. Definitely needs to be covered with the rate of type 1 diabetes in children. Thanks for making this video
When I was 14 and found out I was diabetic type 1, at first I remember crying every day for the first months that I didn't want to inject myself, I would feel pain.(I found out about my diabetes bc I had cataracts). Then the next year's my health and mind kept going downhill feel in alcohol and stopped injecting myself for a hole year and of course there were health issues in that time. Then my mom beg me to get back on treatment and I did. Took a few years to get my mind to be on the same page has my body but I made it so far. Now am 27, I have 7 year old twins and exercising and living every day full of gratefulness to God to see another day and enjoy my family. There are still some days that it gets dark but I try to be more positive now.
I once had a pre assessment for a septoplasty, and when I told the nurse I was type 1 diabetic, she asked me if it was because I ate too much sugar as a child..! A genuine nurse in the UK. I was absolutely stunned to silence.
I have been Type One for 45 years. I wish people knew that being a Type One Diabetic is a 24 hour math problem. Check your sugar, take so many units of Insulin, counting Carbs, calculate your activity and how much to eat, or not, and how many carbs vs units,over and over again. If your math is not correct, the results can be physically and mentally devastating. By the way, those who are diagnosed with diabetes, 91.2 percent have type 2 diabetes and 5.6 percent have type 1 diabetes. Type 2 can, and is in many cases is, “self induced” by obesity and bad diet. Thank you , Michelle
Going on 19 years in July T1D.On minimed pumps the whole time.Just got the 670G a few weeks ago.Went into ketoacidosis in 2017 and nearly died.Have neuropathy in the hands and feet now and bad diabetic leg cramps at night along with major depression and anxiety.T1d is a job in itself 24/7.Very good video wish people understood. It's just not the diabetes we deal with it's the other complication that go along with it as WELL.
Amazing video as usual! Great to read all the responses and know we’re not alone in feeling those feelings 💖 Also thank you for including the stats on mental health and diabulemia - it’s shockingly under acknowledged xxxx
I would like people to know how expensive it is to maintain , or try to maintain a healthy life that is done on a day to day basis. I cant count the number of people who have said to me " Why don't you have it covered under insurance". People need to realize that not everyone have benefits for everything. Drives me crazy!!!!! Oh well :) Love the videos keep up with the great work.
Agreed, before the ACA, I had insurance companies who wanted to charge me $700 a month to cover me because diabetes is a pre-existing condition. I couldn't afford it so I had to write letters to churches and even the companies that made my insulin. It was completely humiliating. If you are in the states, try blue cross blue shield. They have a great program for diabetics. My pump supplies are free and a nurse from the company calls every month to see how I am doing.
Great video! Go girl!! I've had T1 for over 42 years. Depression has been a huge issue for me. I just laugh at 'well meaning' people who give me advice on how to cure myself 🤣
Thank you for acknowledging that T2 is a huge burden also that is extremely genetic and for recognizing that the T1 community needs to support the T2 community and vise versa! You’re great, thanks for continuing to share your story and help bust the many myths associated with diabetes!!!
I got diagnosed at 8 years old, my blood sugar was over 800 and I had been rushed to the hospital. I stayed in the ICU for 5 days, getting blood drawn every 2 hours for each of the 5 days. It was absolutely horrifying if you can imagine an 8 year old hooked up to a bunch of machines and not even knowing what was happening. I wish people knew how much it affects our mental health. We are working full time jobs with no breaks, no pay, and no vacation! We are worries, don’t forget it.
Since I'm an insulin dependent diabetic and am older (have had diabetes for almost 50 years), I've been very, very lucky that up to now, the most severe complications of the disease have given me a break. However, they have begun in a variety of ways. Depression, of course, is always an issue and begets many other problems. All I can do is hang in there and do the best I can under the circumstances. I have to use an insulin pump and just began to use a Dexcom G6 CGM unit. People must realize that I do this to stay alive but there comes a time in which the temptation to give up becomes all encompassing and one must constantly battle to keep going. Battling insurers, suppliers, manufacturers of pumps and CGM equipment is never ending and will only subside upon death.
getting ready to go out and having to make sure you have your diabetes supplies "bag" and it is very important for education about the pancreas and what it does. I've been asked a few times by people "what is a pancreas and what does it do? " if people at least new about the anatomy of the pancreas and how it works.
having type 1 for 52 years I can tell you to expect some sort of complication. I have most of them now but still work and live as best I can. please tell those who are not controlling there diabetes to look at those with complications for you will be one of them. When i was younger we didnt have pumps multiple injections or blood testing equiptment. it was urine test and two injections a day also a very strict diet. of course relebion as a teenager happend and now aged 62 i am blind in one eye and partialy sighted in the other eye. i have heart disease nerve damage. gastroperisis and kidney disease. I have spinal stenosis and bone outgrowths. all over the body. so not to frighten anyone but please with the new ways to control do it, i know it is hard but complications are harder bless you for doing videos on this thanks for posting
Nice video! I've been a Type 1 for 34 years and have taken over 50,000 shots in my life. I just turned 50 years old and was in a rock band for 21 years. You wanna talk about difficult! All the partying and drinking going on around you and wanting to be in the middle of everything. Being the singer and getting all that attention, but still feeling like you don't belong. This was a complete downer and only fueled my depression of being different. I was the center of attraction, but felt like the biggest loser! After I got older and grew out of the nightlife, I started to realize I couldn't do anything about having the disease, only that I could control it without it controlling me. I was totally done with waking up to the sound of paramedics and hospital emergency rooms. I cant tell you how many times I seen my sugar readings in the 20's and still coherent. Bottom line is, Diabetes is NOT a death sentence, but it takes a lot of work and discipline to conquer. The sad truth is, people often get tired of trying and decide to give up or just end it all. Keep your head up and keep your eye on Jesus. He is the only hope for us all!
Great video! Having had type one diabetes for nearly 4 years now... it’s hard! Some days are better than others but you just keep going and trust me if cinnamon was a cure I would have ate it four years ago 😂!
When i was first diagnosed (when I was 10) I told my friends I had type one diabetes and they laughed saying I should eat less and exercise. I asked if I was fat and they said that I must me because I was diabetic. I nearly died 5 months later due to diabetes complications like I was going low at best 7 times a day and I had high ketones. I was diagnosed with anorexia a week later and had an NG tube placed. I had to be sent to a specialist eating disorder clinic for nine months away from my family. Type one diabetes needs to be understood better within the community...
Cinnamon is definitely not a cure. If it was I'd eat it all day everyday! But, it has shown some good results in controlling BG's. Unfortunately there are no official studies on it. Another great video, Keep up the good work!
I think you said it so well when you said 'you have dealt with all the stereotypes and misconceptions that come with *any invisible illness* ' As someone who is dealing with ADHD, I found myself resonate more than one would initially think. Depression and other mental illness (additional to ADHD ofc) is also more likely in those who have ADHD. Just like the misconceptions, and the condescension thats usually packed in there. I really think I can understand you when you talk about people saying "you were just too fat, irresponsible and unhealthy" because I think you already know where I'm going with this. On one hand I want to say I feel really close to you guys, even in things like changing your lifestyle. But then I can't bring myself to put my problems on the level of "if I dont use these strategies I die". You guys are just fucking strong as fuck. I want to end by saying that - and this might be offensive in a certain way - I kind of envy you, because I know that facing the challenges that my invisible illness gives me has made me stronger, and your challenge being "care about your diet, your body and your schedule or *die* " would make me so much stronger.
I'm so happy I found this video. I have co workers that get mad because I dont diet or follow low carb. I eat whatever but just take insulin. They are not educated
Thank you for this! I've had a history of T2 in my family, so when I was diagnosed with T1 my family flipped out and I personally have had a LOT of days where I question if this was my fault or not (even when I know it wasn't). And also thank you for talking about mental health. It's never my first thought because I'm personally always trying to get rid of the stigma that comes when people confuse T1 for T2, but I didn't take care of my diseases for almost 2 years because depression hit me so hard after I was diagnosed.
Awsome video...i have been living with type one diabetes for 35 years. Its been tough mentally. I wish there were more support groups for diabetes. I also have gastroparesis where the vagus nerve in your stomach slows down causing slower digestion. This is due to battling this disease for so long. Thank you for your info. So helpful. Keep us up to date on any info. On cures please...do you have info. On the bionic pancreas? Its a pump that contains glucose and insulin. Needs FDA approval first. Thank you...jennifer from wisconsin
Cinammon is definitely NOT a cure but it helps against insulin resistance. Thank you for going over these misconceptions!! Love your positive energy and how informative your channel is
I have had type 1 diabeties since i was 2 and now im 11. I hate when people say that I can't have some type of treat or something just because I have diabetes all my teachers and stuff say that to me at like class party's and stuff but I know there wrong but there's a lot of things I wish people knew. Thank you for making this video💗 and I hope you don't mind me asking when is your dieaversery?
Hey I just want to tell you that you are very brave and so intelligent to be searching for this kind of knowledge at your age. And it’s so courageous of you to be engaged and responding to this video. You are an inspiration young lady. I just wish the video creator would have acknowledged you. Good luck in life!
As a type 1 diabetic for 6 years now, I’m honestly surprised that the percent of Type 1 diabetics struggling with mental illnesses isn’t higher. It can be SO DRAINING to have to manually calculate something that your body is supposed to do 24/7 all the time. It is even harder when you feel you have to do it alone. Please reach out to someone for help when you need it. ❤️ And please remember that you are not alone in the daily struggle of T1D
I agree! As a type 1, I would have thought the percentage of T1Ds struggling with mental health was a bit higher than that, but to non-diabetics it is quite a shocking statistic. Some people have no idea that there is any sort of struggle with mental health in the T1 community.
Michelle Lord Yeah, it makes sense that a vast majority of people wouldn't know. Now I'm really curious about other diabetic's experiences of coping with and feeling prepared for mental health struggles!
My roommates newborn nephew was diagnosed and his parents were SO stressed out. Partly from having all these stereotypes and assumptions pushed on them from other parents that don't know anything about T1, from the extra stress and worry on top of caring for a (now) toddler, and the banal well wishes (like "oh it'll get better") from folks that don't understand. My roomy was able to talk with them from a context of "no, it's a lot of hard work and it's NOT going to be all sunshine and roses" and that actually was a big stress relief for the parents. It's OK that its hard. Ya know what kind of people DO hard things? Hard badass people.
Anyway, you're not alone Marie. We're all in this together with you.
I can most definitely relate
The only reason why the statistic isn't higher is because of denial, we're told it's manageable and a bunch of other crap, and we collectively repress what we're going through, and diabetic men are less open about what they're going through, trained to suck it up because of societal standards. All diabetics suffer from mental illness, diabetes happens to deal with the thyroid gland and hormones, not just the pancreas, right there says it all.
Being type 1 is depressing 🙁 always constantly worrying about bloodsugar and what's to high and to low gives me anxiety
#cosign...….. this struggle is so real!
OMG me too
You are not Alone, remember that
I have type 1 diabetes with a sensor and a pump. I also have a order in for a pen I dislike the the needles pen and pump more efficient. But I’m not constantly worrying about my blood sugar. I’m not depressed too. I can eat whatever I want. I just have to match it with insulin. Pump and pen depending on what you use can do that very fast and efficiently.
I’m guessing you do have type 1 right? Manage your blood sugar right and make sure when you take insulin you are taking the right amounts. Your carb count and correction if you need a correction. You shouldn’t be always worrying about your blood sugar. A sensor can give you updates constantly and the sensor I have I don’t has to prick my fingers anymore. Also you should know when your blood sugar is to low or to high. You will know. And once you get sensor and the pump and pen it makes that process which was long for me prick then draw up insulin on needle no bubbles. I used to hate that. Glad I got a sensor and pump rn. I’m getting a pen too if I’m not wearing pump. Just tell pen how much insulin you want and inject. So type 1 for me has been pretty fine. I don’t have any mental health issues Except carb counting can fustrate me at times.
I’ve been type one for 9 years and have just been diagnosed with a second chronic illness . People don’t realize how daunting it can be to know that you’ll never have a forever “fix”. We work so hard and take into account so many things just to get through the day. It’s just a lot of work that none of us signed up for
You speak what's on my mind every millisecond of the day
Amen! I have several chronic illnesses and theyre ALL autoimmunes...
That's what I have to deal with all the time
Could someone please put online that the numbers of people being diagnosed is rising and Type 1 Diabetes can be found in adulthood as well?
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Thank You I would appreciate it. Everyone seems to read the wrong information.
I know this is late, but I completely agree! I’ve had diabetes for almost 11 years now, since I was 4. I also have Gilbert’s syndrome. It’s benign, but it can get bad when I’m sick. It’s really exhausting for me, especially because I know no one else with diabetes to talk to.
Sometimes I wish people knew how crippling diabetes is. How sometimes I don’t leave the house because I don’t feel good or just don’t have to energy to leave my bed. It’s been worse since having my thyroid removed.
Same here. Some days I have literally nothing in the tank. I don't have energy to have fun, think, or achieve much at all. It's like I'm not me. Keep fighting to get healthier. That's my main focus 2021. Get better. Failure is not an option.
Michelle, as you know, I am on 60 years with type 1. I have never admitted to myself much of what you lay out here, especially the mental health part of it. I just want to tell you and your watchers how valuable you are, how GREAT your concern is, but most of all how kind you are. The #1 thing that I want to add is that we are not diabetics, but rather we are people that have diabetes.
Exactly
@Kristin Smith have to say I agree with this 100%. It is or it isn't the outcome is still the same.
I got diagnosed last night at 31 years old. Spent the past week chugging Gatorade and juice and soda without quenching my thirst, thinking I had a stomach bug and finally came to to the hospital. They found my blood sugar level at 696. Still on IV now getting rehydrated I've spent today learning how to prick and inject myself, and just studying what information I can find. Seems I have a lot to learn and a big change in diet/lifestyle ahead of me.
So sorry to hear this :(! You will be completely fine though! It's a big adjustment, but you will soon go back to doing everything you used to 💙
I just got diagnosed too at age 23, only 2 weeks ago. Definitely has been an enormous adjustment but I think itll get easier with time. Hope you're adjusting well
I know how you feel. I was diagnosed 49 years ago at age 26 with a blood sugar of nearly 1,000 mg/dl. As I was at the time a freelance photojournalist I had both a meager income and no health insurance. The doctor in the emergency room at a county hospital outside San Francisco looked up from by blood sugar test results and said, "You've got Type 1 diabetes if you don't get on insulin and a decent diet you'll be dead in six months." His nurse then handed me a bottle of NPH insulin and a box of syringes and sent me home. Back then there was no way to self test blood glucose levels. You had to collect urine in a container, put five drops of it in a glass test tube, add five drops of water, wait a minute or two and then compare the color of the mixture to a color chart. All that chart told you was whether the amount of sugar in your urine was normal, medium, high, or very high. Since everyone's renal threshold is different, and since the sugar doesn't appear in the urine until a good amount of time after eating the info provided was next to worthless. Happily diabetic tools and techniques have advanced a great deal in the past 50 years and managing the disease today is a great deal easier! Sadly many if not most medical professionals have simply not kept up with these advances in care. So my advice to you is to walk up to your bathroom mirror, take a look at your reflection, and say aloud "So that's my doctor." Simply put your future as a diabetic will almost entirely depend upon your willingness to take control of your own treatment. A good, caring doctor can help, but the real work unfortunately falls squarely upon our own shoulders. While a newly diagnosed diabetic will almost inevitably have a tough time in the beginning learning diabetes management has never been easier due to the incredible resources available via the Internet! Back when I was diagnosed I immediately went to the library to see what I could find and all they had were two very basic books on diabetes. Today there are dozens of excellent books, podcasts, and other sources of information, sympathy, and inspiration. Count thy lucky stars and dive into researching the "need to know" info now easily available. Last, but not least, please check out the various continuous glucose monitoring devices available today. One of the first diabetics in America to use home glucose monitoring systems I began pricking my fingers in 1980 and before switching to CGM systems a year ago I had pricked my fingers in excess of 150,000 times! Not anymore! Now once every 14 days I apply a sensor to the back of my arm and any time I need to measure my blood sugar I simply scan the sensor and Presto! the result appears on the reader! Best thing since sliced bread! and if I had to pick up returnable bottles and cans on the side of the road to be able to afford my cgm supplies I'd happily do it. Simply the most important breakthrough in diabetic technology since the discovery of insulin by Banting & Best in 1921! I use a Freestyle Libre 2 cgm system manufactured by Abbott as it is the least expensive but there are other excellent systems out there as well. So chin up! and get started on your course in diabetes management.
I was hospitalized with DKA less than a year ago at age 35. Now I’m diagnosed with Type 1.
I’ve been extremely stubborn and angry at this and accepting this. I don’t want this, it’s a burden, I come undone when I do the right things and think I found a groove and my blood sugars have a mind of their own. Womens menstrual cycles also big time mess with insulin. As if the hormonal ups and downs in a cycle isn’t already hell- now having to give yourself more insulin during this time is the worst.
Sigh… I’ve been very anxious and depressed over this.
Same thing happened to me, about the thirst, drank so much Gatorade and water and nothing happened could never quench thirst, found out randomly at 22
This video is so so so so IMPORTANT. Everyone should watch this video👏🏻👏🏻👏🏻👏🏻👏🏻👏🏻
Thank you so much Kamil ❤️❤️
What a great video! Today I’ve had a bad diabetes day because everything just hit me with the fact I have to live with diabetes for the rest of my life! This happened with a hypo because I suddenly got emotional and upset and I tested and I was having a hypo! It shows how quickly everything can change when one moment I’m happy and then I’m crying and I have got all worked up!
I'm sorry you had a tough day :(! It is hard to think about diabetes long-term. We just have to stay strong and take one day at a time 💙
The same thing just happened to me! But it was because of hyperglycaemia, man it got me so stressed and intense emotionally I started crying after realizing I couldn’t do the presentation for economics
One thing I wish people knew about type one diabetes is that...it is on are minds 24/7 we always think about it and what are blood sugar might be.
This is the best type 1 diabetes video I’ve ever seen. Great work!!😊❤️
This is what I tell my daughter with Type 1 diabetes. Accept it and make it part of your everyday routine just like brushing your teeth. Be strong many people have this. Some of my family members that have it lived to be long in to their late 80's and 90's. You can do this.
My son was diagnosed with Type 1 at the age of four. He hates it when he goes to the doctor and they ask if he is still on insulin? It blows his mind that a doctor/nurse will even ask him that question. He bites his tongue and says yes.
Wow that is insane!
It hasn't gotten any better over the years. I have changed general practitioners multiple times since I was diagnosed at 12yrs old. I am now 32 and I have gotten that question a few times, as well as having a doctor prescribe me metformin! Type 1 awareness is lacking here in the states. No offense to the type 2 diabetics out there, but every time I see a commercial that says "not for treatment of type 1 diabetes", I want to punch something. Who is with me on this? Thank God for my CGM and pump. They have come a long way since I was first diagnosed. I swore them off until recently.
Here Type 1 diabetes is considered a life changing disease and can cause depression that's why over here in NZ a professional Psychologist is an integral part of a diabetics medical team should they require one. I inherited my type 1 from my mum. We got ours later in life, in our fifties, mum 55 me 52. What the medical professionals here term Latent Onset Diabetes. My younger daughter got type 1 last year in her 30s. So far not enough is known about type 1 Latent Onset Diabetes. I'm not depressed or anything. The thing I don't like is having to force myself to eat when I'm not even hungry.
I hate when people think type 1 and 2 diabetes are the same thing. Even when you explain it to them they still don't get it.
Thanks Michelle Great video👍
We just found out my daughter has type 1 diabetes. She's 11 she was just diagnosed with it March 2020. I empathize with you because my daughter went i into diabetic ketoacidosis that's how we found out
This is a great video, Michelle! I was hospitalized and diagnosed with Type 1 Diabetes almost 4 years ago less than a month after my 70th Birthday. My Endocrinologist says that being a Type 1 is like having a child that has to be constantly taken care of...it is so true. I really never knew what my older brother, who is a Type 1 Diabetic, went through every day since he was 13 until it happened to me.
Your videos are great and I really appreciate what you are doing for the Diabetic community. Thank you so much!!! 😘
Oh, also, I just finished the Saline trials for the Tandem t:slim X2 and will be getting my Insulin Pump soon. I am already using the Dexcom G6. So, I am psyched to start on the pump.
Michele Lord your positive attitude is helping me accept my daughter's type 1 diabetes. Thank you for helping me.
Oh my goodness - what an INCREDIBLE VIDEO!! That was sooooo well thought out and presented. I honestly got chills. Thank you for being such a shining light of truth and positivity and inspiration in this community!!! 👏🏻👏🏻👏🏻
Thank you so much! I'm so grateful to everyone who lent their voices for this video ❤️
I was also 12 going on 13 when I was diagnosed. I appreciate content like this ... Cause this disease is no child's play so having a community of type 1 diabetic is the best. Wishing everyone living with diabetes health and peace of mind.
Dang. I was diagnosed at 21. All the other T1 crew I know were either diagnosed as young adults or as toddlers. I had a hard time accepting and adjusting to the lifestyle change I got slapped with but I was kinda sorta "grown up" . I can't imagine having a healthy young childhood and being hit upside the head with it all as a pre-teen.
Keep up the good work and thank you for T1 lifestyle channel to keep normalizing our mostly invisible, somewhat visible condition.
Same bro in my 20s it crazy how this could sneak up
I live with type 1 diabetes and its so important for videos like this, it not only helps me but it helps give people real education about a serious life long disease.
Omg my response was in the video!! lol so cool! Thank you for making this video - it’s such a unique and personal way to let others in the community know about T1D - having our voices be heard, not only yours! X
ugh, seriously the most relatable video I have ever watched. thank you for making this.
Amazing video. One thing I wished I was told when I was diagnosed was you will have bad days. Nothing is perfect especially when it comes to management for this disease. Also it's ok to be sad, angry, frustrated with being diabetic, it is a very difficult disease to maintain.
Great video! 1 thing I wish people knew is how difficult it is dealing with a low blood sugar. From literally breaking you down mentally, emotionally and physically to how time consuming it is. "Ok your sugars low? Eat something." Sounds simple but unless you experience any episode for yourself you will never really understand.
Oh, wait till your sugars are so low that your fingers don't work HA! gives new meaning "low sugars"
Got diagnosed today so starting the journey living with type 1. Thanks for these videos :) Trying to learn as much as I can ❤
I thank God all the time that he helps me deal with these struggles! It really sucks! Great video!
I am a T2D, but you and Nerdabetic are my best resources for information. Hypoglycemia drove me to using Freestyle Libre, which I learned about from you guys. Thank you so much, and keep the videos coming.
Great video. Fantastic idea to get people’s voices across. Thank you for representing us
Thanks for the wonderful video! You definitely touched on all my comments about this horrific disease. I'm proud to say I'm in my 32nd year of having Type 1 with a great A1c and almost no complications. I couldn't do it without my pump!! It makes me feel as close to "normal" as someone could with Type 1.
I have depression and had eating disorder diabulimia.. type 1 diabetes is really a never ending hard work
Thank you for making this video and showing light on mental health side of type one. I think especially when it is a disease that no one can see they dont think is possible that u are struggling with food and mental battles connected to food. I know that was something I was struggling with when I'm was first diagnosed 11 years ago.
Having T1D since 1 year. I'm (almost) 42 years old. Great video. Greetings from Switzerland (Europe)
Hello we are in the same boat was misdiagnosed for t2 3 years frail n weak had bloodwork done camt out to be t1 worse nightmare ,how are you doing
this was such a great video:,)) today is my ten year anniversary so it was nice seeing this on my feed💙
Thank you for having the courage to make this ! It was a really good and informative video. It can be so difficult being a young woman with t1D and I’m happy you touched on mental illness, etc.
No one ever tells you about the mental torcher this disease can have!!!! #cosign
WOW!!!!! This is literally the best video ever! Thank you so much for sharing! I think that like this should be like a TV ad or commercial. I'm definitely sharing this amazing video! Thanks for all you do in the T1D community.
Aww thank you so much Zach ❤️
You’re welcome! 💙
You’re welcome Michelle!!!! 💙
I find that having hobbies that help you exercise is a great way to deal with our common stressors! and when I’m not moving around or busy I find comedy really helps with my spirits! All the best
the one sentence explanation of the difference of type 1& type 2 is type 1 is autoimmune like you said and type 2 is a metabolic disease
WOW ! This video is absolutely amazing . I am mind blown by how you covered literally everything so perfectly ! Thanks for making this video and being so amazing !
Aww thanks Dave! I really hope this video can bring awareness to the seriousness of T1D ❤️
Michelle Lord oh I’m certain it’s going to do just that !
Thank you so much for making this video! It’s so true. I hope it helps others understand what it’s like to have T1D!!
One thing that I find that most people don’t understand is actually how hard and frustrating it can be to exercise. I find that I either have a spike or a low when I exercise. Exercise is crucial for diabetes management but knowing I’m likely going to have a low can sometimes make me not want to exercise. It can be really frustrating!
Inherited severe anxiety and major depression disorders from both parents as a baseline AND got Type 1, so I wonder if that's why I struggle so hard to have energy for basic life activities. I believe I get burnout at work easily because of the above issues and my driven-to-succeed personality making me push myself beyond what my health can handle. Just want to remove this stupid chain from my leg and fly high on life. Keep on fighting to be healthy. We've got so much good to do in this life
Excellent video. In seven minutes you nailed it.
Been type 1 diabetic for 30 years. Am now middle aged, so this may be more specific to my situation, but not everyone who is over the age of 40 is type 2. Telling me that, "Someone I know went on such and such diet and decreased their need for insulin/ was able to go back to oral medications," isn't going to get more than an eye roll from me. There is a reason it is no longer called juvenile diabetes. Many people live into older adulthood with it. (Side note, I did have a young 20-something in a grocery store ask me if I was type 1 when he saw my Dexcom, as his girlfriend has type 1 and he knew there was a difference. I wish more people knew that.)
Michelle, this was such an important video!, and you presented it so well. I will definitley share this video to help spread awareness about T1D. Keep it up👍💪❤
Thankyou soo much Michelle....I love you for making this video.
Since childhood I've been mocked and teased for having diabetes by my friends, relatives and even some teachers.
I have always told everyone about the reason but no one actually understood it because they were busy making fun of my illness.
I relate to having people wondering how I got diabetes. I have always been very thin, even before I developed T1D. I am sick of hearing people say "oh you don't look like you have diabetes!" or "how did *you* get diabetes?" or even (this comes from unaware people who don't know I have the disease, but it's still frustrating) "oh you're so small. You don't have to worry about what you eat/how many carbs are in that!"
I guess you can say that one somewhat related thing I observed was a local obituary of a woman who died at age 39. The obit said that donations could be made to Canadian Mental Health Foundation or the Canadian Diabetes Association. I guess it is quite likely that the stress of managing diabetes on top of being a parent added up.
I’ve been surprised how many of my work colleagues did not seem to know that T1 autoimmune can happen in adults. I’m talking about senior pharmacists (working in Paediatric hospital pharmacy that have previously worked in adult healthcare) because in paeds we see children with a new T1 diagnosis all the time because of course it’s a lot more common to be diagnosed as a child but as you state it can happen at anytime. I was 47 (now 49) when diagnosed with LADA.
THANK you so much Michelle! Your support is really the peak of my week, i usually watch your vlogs every friday and i really look forward to it every week!
What a great, great video! Im a norwegian being diagnosed almost 2 years ago when i was pregnant and i find it hard living with T1D and being a toddler-mom but im focusing on staying positive and strong, and it really is easier with your support! So thank you ever so much!
Great video , good information & lets us know we are not alone. Thoroughly a breath of fresh air for type 1's & the struggles we go through . Thanks for posting this video .
Thank you very much im type 1.5 LADA i got diagnosed around 39 years old so ive only been dealing with it now 3 years i was in DKA 16 times in that time till i got an insulin pump i lost about 45lbs and it has given me neuropathy and retinopathy i try explaining it to friends and family and they say oh you ate to much sugar or just take your insulin or diet and exercise will help..i got divorced around the same time I started getting sick ive struggled with it alone..times ive been sick i try hiding it from my boys and friends and family..i appreciate you very much all diabetic people..lol mom always said i was to sweet
Love your channel❤️ it was my one year diaversary two days ago😊 and I have been following you since my diagnosis
Lauren Freyne aww yay!! Happy DIABIRTHDAY ❤️❤️
Michelle, dare I say Lordy Lordy, but you are one fine lady for speaking up as well as you do for all of us living with Type 1 diabetes. You are a true warrior on the subject and you could easily be a speaker on TedTalks. I think there are so many things that people do NOT understand has a lot to do with the commercials on TV which are for Type 2 diabetics. They make it look like it is a simple walk in the park and proper diet. If only this were true. Also, as you have said - so many people do NOT understand the differences. I was diagnosed 15 years after a bad car accident. As it turns out they did NOT figure it out because all of my doctors simply thought the fact that I was not feeling right was due to my meds and injuries. I was told it may be up to 2 years, if at all for me to fully recover. Well, once I found out I had Type 1 Diabetes I was put on insulin and thought as long as I take the insulin all would be fine. Nope. The car accident had traumatized my body so that my Diabetes ended up on the fast track and I have yet to this day to be able to manage it. I am a compliant patient but I have nearly died too many times due to Diabetic Ketoacidosis. I have had many more complications show up even though I have done all that I could to manage it well. My grandmother taught me while growing up that I was to be my own best advocate with regards to my health and supported doing research and looking for natural cures. I thank her for this as I did my homework once diagnosed but still ended up with a bad case of Diabetic Ketoacidosis which put me in the ICU for six nights. I finally found out that my stomach was not working properly which is why I could not control my blood sugars, unless I would fast for most of the day. Family members and lovers ones need not judge anyone who ends up with this disease. I have learned so very much from your videos and I thank you for all of the hard work you do to educate us. Just recently I heard you talk about the importance of water to prevent dehydration since it can cause your sugars to spike. I also never knew that throwing up for more than 6 hours and not responding to insulin means get to an ER right away. Well, this is more than one thing you asked for - oops, my bad. I just like to share what I have learned!! Keep up the good work, and may all of us Diabetic warriors continue to find the path that works best for us!! Stay healthy, Heather
Thank you for this video. When noone in my life understands what i go through this video is nice to watch. Gives me validation and reminds me im not alone.
Such a great video! Yesterday was my 5 month diaversery this video makes me so happy especially that you put my T1 and T2 wish in😊😊😊😊😊😊😊
Yesterday was my 4 month diaversery :)
there should be a video like this for every chronic illness - one thing I wish people knew about type one diabetes is don't believe everything you read on the internet about it, and other type ones can not give anyone medical advice just because someone using x amount of insulin or a certain thing to treat a low or a place to put their dexcom doesn't mean to just do that talk to your medical team and make the best choice for your body that's two things but they weren't mentioned I see too many people in the comment sections asking other type ones for medical advice.
Really like how you mentioned that all chronic illness are hard and are for life.
I agree! There should definitely be a video for every chronic illness! ❤️
Thank you for posting this. I was diagnosed w a 3rd autoimmune issue this yr. My endocrinologist just rattled it off like it was no big deal. It’s been almost a year, I’m still reeling, and having to educate myself. i was originally diagnosed w T2, then T1.5, then told no, it’s T1 😳🙄...and they go to school for this? TY again ❤️, I do love your positive, solution-oriented approach.
I was recently diagnosed with type 1 last month. 23 years old, going trough DKA. BG @1,100. Bad days and good days since I'm very new to this. Thank God for Insulin!
You'll get used to it mate, becomes second nature (it bloody has too) I've been diagnosed ten years now so come back here if you ever need advice
Great video, I will share it with my son who is 31, started with Type 1 diabetes at age 4...he is one of that 15% who suffers badly from anxiety, some of which has arisen because of being told off in cafes, gyms etc. for giving his insulin injections and blood tests anywhere but in the toilets!! And he has just been discharged from his diabetic clinic at the local hospital for missing ONE appointment!!!
I don’t understand why type 1 diabetes isn’t talked about enough in schools etc. Definitely needs to be covered with the rate of type 1 diabetes in children. Thanks for making this video
When I was 14 and found out I was diabetic type 1, at first I remember crying every day for the first months that I didn't want to inject myself, I would feel pain.(I found out about my diabetes bc I had cataracts). Then the next year's my health and mind kept going downhill feel in alcohol and stopped injecting myself for a hole year and of course there were health issues in that time. Then my mom beg me to get back on treatment and I did. Took a few years to get my mind to be on the same page has my body but I made it so far. Now am 27, I have 7 year old twins and exercising and living every day full of gratefulness to God to see another day and enjoy my family. There are still some days that it gets dark but I try to be more positive now.
I once had a pre assessment for a septoplasty, and when I told the nurse I was type 1 diabetic, she asked me if it was because I ate too much sugar as a child..! A genuine nurse in the UK. I was absolutely stunned to silence.
I have been Type One for 45 years. I wish people knew that being a Type One Diabetic is a 24 hour math problem. Check your sugar, take so many units of Insulin, counting Carbs, calculate your activity and how much to eat, or not, and how many carbs vs units,over and over again. If your math is not correct, the results can be physically and mentally devastating. By the way, those who are diagnosed with diabetes, 91.2 percent have type 2 diabetes and 5.6 percent have type 1 diabetes. Type 2 can, and is in many cases is, “self induced” by obesity and bad diet. Thank you , Michelle
Thank you! Great video. So helpful.
Going on 19 years in July T1D.On minimed pumps the whole time.Just got the 670G a few weeks ago.Went into ketoacidosis in 2017 and nearly died.Have neuropathy in the hands and feet now and bad diabetic leg cramps at night along with major depression and anxiety.T1d is a job in itself 24/7.Very good video wish people understood. It's just not the diabetes we deal with it's the other complication that go along with it as WELL.
I love this idea for a video, thank you for speaking for all us diabetics (my answer was also featured so thank you for that 💙)
Amazing video as usual! Great to read all the responses and know we’re not alone in feeling those feelings 💖
Also thank you for including the stats on mental health and diabulemia - it’s shockingly under acknowledged xxxx
I would like people to know how expensive it is to maintain , or try to maintain a healthy life that is done on a day to day basis. I cant count the number of people who have said to me " Why don't you have it covered under insurance". People need to realize that not everyone have benefits for everything. Drives me crazy!!!!! Oh well :) Love the videos keep up with the great work.
Agreed, before the ACA, I had insurance companies who wanted to charge me $700 a month to cover me because diabetes is a pre-existing condition. I couldn't afford it so I had to write letters to churches and even the companies that made my insulin. It was completely humiliating. If you are in the states, try blue cross blue shield. They have a great program for diabetics. My pump supplies are free and a nurse from the company calls every month to see how I am doing.
Amen to the comments!
Great video! Go girl!! I've had T1 for over 42 years. Depression has been a huge issue for me. I just laugh at 'well meaning' people who give me advice on how to cure myself 🤣
Hope you yuse the type 1 forums on reddit. They are a godsend for interacting with people that get what it's like to deal with this condition
thank you i have had type 1 sense was 21 i am so glad to find this channel thanks
Thank you for acknowledging that T2 is a huge burden also that is extremely genetic and for recognizing that the T1 community needs to support the T2 community and vise versa! You’re great, thanks for continuing to share your story and help bust the many myths associated with diabetes!!!
“Eat some cinnamon!” “What???” 😂😂😂
I got diagnosed at 8 years old, my blood sugar was over 800 and I had been rushed to the hospital. I stayed in the ICU for 5 days, getting blood drawn every 2 hours for each of the 5 days. It was absolutely horrifying if you can imagine an 8 year old hooked up to a bunch of machines and not even knowing what was happening.
I wish people knew how much it affects our mental health. We are working full time jobs with no breaks, no pay, and no vacation! We are worries, don’t forget it.
thank you!! i wish people knew i didn’t give myself this.
Thanks for this ! I shared to my Facebook to help educate!
How hard it is being a woman with T1D…the added hormone fluctuations can make each day a day of adjustment and challenge.
Since I'm an insulin dependent diabetic and am older (have had diabetes for almost 50 years), I've been very, very lucky that up to now, the most severe complications of the disease have given me a break. However, they have begun in a variety of ways. Depression, of course, is always an issue and begets many other problems. All I can do is hang in there and do the best I can under the circumstances. I have to use an insulin pump and just began to use a Dexcom G6 CGM unit. People must realize that I do this to stay alive but there comes a time in which the temptation to give up becomes all encompassing and one must constantly battle to keep going. Battling insurers, suppliers, manufacturers of pumps and CGM equipment is never ending and will only subside upon death.
getting ready to go out and having to make sure you have your diabetes supplies "bag" and it is very important for education about the pancreas and what it does. I've been asked a few times by people "what is a pancreas and what does it do? " if people at least new about the anatomy of the pancreas and how it works.
Absolutely love your channel!!!
having type 1 for 52 years I can tell you to expect some sort of complication. I have most of them now but still work and live as best I can. please tell those who are not controlling there diabetes to look at those with complications for you will be one of them. When i was younger we didnt have pumps multiple injections or blood testing equiptment. it was urine test and two injections a day also a very strict diet. of course relebion as a teenager happend and now aged 62 i am blind in one eye and partialy sighted in the other eye. i have heart disease nerve damage. gastroperisis and kidney disease. I have spinal stenosis and bone outgrowths. all over the body. so not to frighten anyone but please with the new ways to control do it, i know it is hard but complications are harder bless you for doing videos on this thanks for posting
Nice video! I've been a Type 1 for 34 years and have taken over 50,000 shots in my life. I just turned 50 years old and was in a rock band for 21 years. You wanna talk about difficult! All the partying and drinking going on around you and wanting to be in the middle of everything. Being the singer and getting all that attention, but still feeling like you don't belong. This was a complete downer and only fueled my depression of being different. I was the center of attraction, but felt like the biggest loser! After I got older and grew out of the nightlife, I started to realize I couldn't do anything about having the disease, only that I could control it without it controlling me. I was totally done with waking up to the sound of paramedics and hospital emergency rooms. I cant tell you how many times I seen my sugar readings in the 20's and still coherent. Bottom line is, Diabetes is NOT a death sentence, but it takes a lot of work and discipline to conquer. The sad truth is, people often get tired of trying and decide to give up or just end it all. Keep your head up and keep your eye on Jesus. He is the only hope for us all!
Thank you for sharing your experience.
Thank you for posting this.
Thank you for making this video Michelle:) I can relate to this so, so much.
Great video Michelle, you are an inspiration, I certainly learned a lot from it.
Thank you so much Denise! ❤️
Great video! I love how you incorporated the responses from IG☺
love this video i have type 1 to im in 6th grade and got diagnosed in 4rth grade
Great video! Having had type one diabetes for nearly 4 years now... it’s hard! Some days are better than others but you just keep going and trust me if cinnamon was a cure I would have ate it four years ago 😂!
When i was first diagnosed (when I was 10) I told my friends I had type one diabetes and they laughed saying I should eat less and exercise. I asked if I was fat and they said that I must me because I was diabetic. I nearly died 5 months later due to diabetes complications like I was going low at best 7 times a day and I had high ketones. I was diagnosed with anorexia a week later and had an NG tube placed. I had to be sent to a specialist eating disorder clinic for nine months away from my family.
Type one diabetes needs to be understood better within the community...
Cinnamon is definitely not a cure. If it was I'd eat it all day everyday! But, it has shown some good results in controlling BG's. Unfortunately there are no official studies on it. Another great video, Keep up the good work!
I think you said it so well when you said 'you have dealt with all the stereotypes and misconceptions that come with *any invisible illness* '
As someone who is dealing with ADHD, I found myself resonate more than one would initially think. Depression and other mental illness (additional to ADHD ofc) is also more likely in those who have ADHD. Just like the misconceptions, and the condescension thats usually packed in there. I really think I can understand you when you talk about people saying "you were just too fat, irresponsible and unhealthy" because I think you already know where I'm going with this.
On one hand I want to say I feel really close to you guys, even in things like changing your lifestyle. But then I can't bring myself to put my problems on the level of "if I dont use these strategies I die". You guys are just fucking strong as fuck. I want to end by saying that - and this might be offensive in a certain way - I kind of envy you, because I know that facing the challenges that my invisible illness gives me has made me stronger, and your challenge being "care about your diet, your body and your schedule or *die* " would make me so much stronger.
I'm so happy I found this video. I have co workers that get mad because I dont diet or follow low carb. I eat whatever but just take insulin. They are not educated
Can you make an updated version of this video?
Thank you for this! I've had a history of T2 in my family, so when I was diagnosed with T1 my family flipped out and I personally have had a LOT of days where I question if this was my fault or not (even when I know it wasn't).
And also thank you for talking about mental health. It's never my first thought because I'm personally always trying to get rid of the stigma that comes when people confuse T1 for T2, but I didn't take care of my diseases for almost 2 years because depression hit me so hard after I was diagnosed.
electric-artss i think i have it lol. I pee alot dry mouth, Blurry Vision.
@@isael5992 how r u doin rn
as T1D patient, I think I'm in Love
Awsome video...i have been living with type one diabetes for 35 years. Its been tough mentally. I wish there were more support groups for diabetes. I also have gastroparesis where the vagus nerve in your stomach slows down causing slower digestion. This is due to battling this disease for so long. Thank you for your info. So helpful. Keep us up to date on any info. On cures please...do you have info. On the bionic pancreas? Its a pump that contains glucose and insulin. Needs FDA approval first. Thank you...jennifer from wisconsin
Cinammon is definitely NOT a cure but it helps against insulin resistance. Thank you for going over these misconceptions!! Love your positive energy and how informative your channel is
Hi Michelle awesome video. There some type 1 in my school and some people stare at them. I fell bad for that. I going share your video.
This is an amazing video. Thank you ❤
I have had type 1 diabeties since i was 2 and now im 11. I hate when people say that I can't have some type of treat or something just because I have diabetes all my teachers and stuff say that to me at like class party's and stuff but I know there wrong but there's a lot of things I wish people knew. Thank you for making this video💗 and I hope you don't mind me asking when is your dieaversery?
Hey I just want to tell you that you are very brave and so intelligent to be searching for this kind of knowledge at your age. And it’s so courageous of you to be engaged and responding to this video. You are an inspiration young lady. I just wish the video creator would have acknowledged you. Good luck in life!