There's a reason for us not being perfect diabetics, cause we are people not a pancreas. We are essentially doing the work of an organ. Makes you realize the pancreas has a tough job! Thanks for the video 🙂
My son was diagnosed at 4, he's now 8, and I still struggle almost daily. Haven't made all of these mistakes, but made some and also different ones. My dad is Type 1 as well (diagnosed at 6) and he calls Type 1 "just a numbers game." Trial and error, always changing, ups and downs. New subscriber!
Your last one was so right on for me too! I don’t want to go low. I hate going low - I’d rather be high. I’ve had lows where I thought I was going to pass out. The fear is real. ❤️
Lows are super scary!! Especially if no one is around to help you. I'd rather be high (not all the time) than have a dangerous low. I've been doing this for 52 years and I'm still here so I'm not going to stress about it.
I've been on insulin for 1.5 years, dx'd at 49. I'm afraid all the time. It's so hard to be on the rollercoaster of "oh no, I'm going low, I'm going to die" and "I'm going high, my organs are going to fail and I'll die".
I remember when I was younger, I had a great diabetes team who educated me on injecting myself. As I realised I was different from everyone else, for some cringeworthy reason I thought to myself “Why should I inject? Maybe they were wrong” They weren’t wrong. I stopped injecting and testing for 2 weeks then I went into DKA. So severe that I will NEVER not do it again. We all learn from our mistakes. We’re human.
I’m not type 1 diabetic but I recently started dating someone with it, so I appreciate this video. It seems like it is a continuous learning experience and we each need to keep a mindset of being informed. Always Be Learning. Thanks for being a resource!
Just found this video and I didn’t know other people were also afraid of going low when they’re not home, even if I’m at home but have guests over I will underbolus without even thinking about it - so glad I’m not the only one!
The faking BGs thing was so real for me as a teen! 😂 Thank goodness for the CGM now. On that note though, one of my bad habits is overriding my pump’s insulin on board warning to correct when I’m sick of staring at high numbers that don’t seem to budge on my Dexcom. Shocker: oftentimes I go super low after. 🤦🏼♀️
At first, I also reduced my glucose levels on a glucometer, which I wrote in a diary and showed to an endocrinologist. It seemed to me that if she saw big numbers, she would scold me that I had poor control of blood glucose levels. but now I understand that this is self-deception and no one will scold me, I just need to understand why this is happening, and not hide the numbers. Thank you so much for your videos ❤❤❤
Mine is probably over-treating hypos. I probably go into panic mode; my Freestyle Libre runs 15 mins behind and hey-ho, extra jelly babies for me! Doh!
Me too! I get so confused and HUNGRY I tend to eat until the number is better but then im going to be high for hours. Its been tough getting the discipline to just consume 15-20 carbs and wait.
So happy I found this channel I’ve been a T1 for 7 years now and always wondered if someone had a channel like this updating my pump soon and now I feel like I have a community of people that get it😁 thank you for creating this channel!
Amber DeHoyos do you have Instagram? There's so many people with diabetes there. I made one just for the diabetes community. I've learned so much and I met a lot of great diabetics there. I love watching people make videos about it on RUclips but you can't always watch videos depending on what you're doing but I always hop on Instagram numerous times a day. You're not alone
Please don’t ever stop doing your videos. They are so informative, and I have learned soooo much from you. You are an angel. Thank you for what you do!!!
Hi Michelle, My son was diagnosed with type 1 just over a year ago. He’s managing the disease exceptionally well and my wife and I have so much admiration for him. I’ve been using your ‘switch my site with me’ video for those rare times when he asks me to help and tonight I stumbled onto this one and watched. I’m grateful you put these resources together. I’m ordering a ketone meter this weekend. Thank you
I was diagnosed a year ago with type 1 Diabetes, the doctor told me to see an endocrinologist. But me being dumb, didn't seemed to take it seriously, I didn't go to an endocrinologist and I really didn't take it seriously, I thought diabetes isn't that of a big deal. I really regret that decision tho. Tomorrow I'll be seeing an internist because I want to take it seriously this time. I hope it's not too late 😭
Awesome video!! In the 80's when I was diagnosed (juvenile diabetes) NPH and Humalog were my partners in crime. At that time I was only taking about 9 units of NPH per day! Now at 37 yes into T1D it's a split dose of 38 units of Tresiba in the morning then 38 units in the evening! Insulin resistance is taking a toll on manageable blood sugar levels. Do you have any videos on helpful ways to help combat Insulin resistance??
I have a very cringe worthy mistake. Taking MDI and mixing up your pens. On vacation in unfamiliar surroundings, I grabbed the Humalog pen instead of the Lantus pen and gave myself 25 units of fast acting instead of long lasting, 3 times what I normally take for meals. Lots of sugar water, multiple times over a few hours until all the fast acting insulin was gone from my system. Now I'm on a pump, never have to worry about that one again.
I do the same thing underestimating how many carbs , I just got diagnosed about 4 months ago , and I suffer with hypoglycemia for about 5 years before I became diabetic and I am just so terrified of going so low because I’ve passed out before from it so I always underestimate my carbs , it’s a bad habit haha
Mine is, I do it or, but get soo busy and leave for work, and in the middle of my shift I drop, it's scary, the girls had to stop me and made me sit down and eat something, gave me some plain icecream and a hot dog for balance, and.then test in 15 minutes, sometimes I grabbed a apple sauce pouch out of the fridge
I can totally relate to the last one! I always underestimate the carbs when I’m eating out.. I’m slowly learning to bolus for the full amount of carbs, but sometimes I get too anxious about going low, so I underbolus and my blood sugar spikes like crazy :(
I can so relate to subconsciously "miscalculating" carbs to avoid hypoglycemia... Sometimes we know what's right... but the emotions just modify our actions or final judgement... it's really great to hear I'm not alone
Thank you Michelle !!..I learn something new from every one of your videos ! I have been a Type 1 diabetic for about two years. I was mis-diagnosed as a type 2 for about 2 1/2 years. What a miserable time. Soooo not pre bolusing is a big bad habit for me. I also often underestimate (on purpose) the carbs in a meal ! Thanks for reminding me what bad habits can lead to. I really enjoy your channel !!
Our stories are similar! I was also misdiagnosed for 2 1/2 years. Nothing i did helped because i was treating for T2 but was T1. Glad we both lived through it!!
I have been a T 1 diabetic for 30 years .Afflicted at 35. Only discovered your videos today.They are interesting and your style of presentation is commendable. I would be interested to hear a presentation devoted to Hypos.
Thank you for your videos-I am 57 and insulin-dependent following a pancreatectomy and the changes to my lifestyle have almost been overwhelming. Your encouragement and honesty has been so helpful-keep it up!!
I also don't change them often as they are expensive where I stay in Zimbabwe. I'll use one for 3/4days. Also don't use spirit or alcohol paper. Bad habit
i tend over estimate carbs, especially when eating out😋 ❤️ your videos ... have learned so much 😊 cheers from Dana in Tennessee, a 65 year old newbie Type 1 diabetic 🥺
I am just switching from the G4 Dexcom CGM to the G6 and have come across your videos among the many I’ve watched, and I enjoy them. I love my CGM. It has allowed me to better manage my A1C because I am not as afraid of going low since I now have a loud warning when a low is about to happen. So I now inject the proper amount of insulin before a meal based on my current blood glucose reading as well as carbs I plan to eat because I’m confident I can fix any low if I take too much insulin. However, this loud, urgent warning for low blood sugar has caused me to make the following mistake many times. Due to the lag between eating some high-sugar food and its effect showing up on my CGM, it is very easy to way overdo the sugar intake in response to a low sugar warning. This is particularly the case with my CGM as it makes very loud warning sounds again and again when my blood sugar is low, and it is very easy to panic and overdo the sugar intake and swing from very low to very high in 15-30 minutes. Here are a couple of other mistakes I’ve made: 1) not having a backup source of glucose with me at all times, and 2) injecting a bolus of insulin too soon before eating when I’m eating out (pre-coronavirus obviously). I’ve had really slow service occasionally, especially with large groups being served. I only somewhat joking say that I don’t inject before a meal until my food is clearly in sight. My wife has had to watch me open sugar packets on the table and pour them into my mouth on a couple of occasions.
I have done all of them and continue from time to time. D1 is a full time job. It's hard at times and you are correct. Everyone is different. Thanks for the great video. 💕
I found you videos two days ago on 10/17/2020. I enjoy seeing that people can live successfully with type 1 diabetes for more than decade, and lead a relatively normal life. I was diagnosed 5 years or so ago. My doctors actually call me on my phone and told me to park my car safely and then call 911. My blood sugar was at 700mg/dl. Now as I write, it's at 111 mg/dl. Quite a difference. So keep up the good fight. And, best wishes to you and your husband! :) If you don't mind, I would appreciate you doing a podcast on bad habits of type 1 diabetics. I think it would be quite informative. Thanks again for sharing you life with people whe have a similar chronic disease. :)
You are awesome. Yes, I am guilty of being afraid of lows. I hate the feeling, but I'm guilty of not counting carbs correctly and eating right after I bolus.
Hats' off to you for recognising your mistakes. I will have to research ketone testers. My rationalising is that I don't need one as blood sugars are seldom over 180 for very long. My A1c proves this out. I used to severely crash from insulin stacking. Now with the T-slim Basal IQ those days are over but I am still very aware of how this occurs. My biggest problem is accurately knowing carb value of restaurant food. These are people you just can't trust because A) they don't know what a carb is & B) they don't care. I have become a very good cook knowing exactly what is in my food.
Great video Michelle! I have two mistakes, one minor and one which was serious. Let me start with the minor one. I never change my lancets and only do so only when it is so dull, it will not draw blood! Now onto the major mistake. When I was on M.D.I. many years ago, I was going to bed and accidentally confused my Novorapid with my long acting Insulin. Luckily I realized my mistake immediately and took action to correct the 19.0 units of quick acting Insulin I took by mistake! Needless to say I didn’t get much sleep that night! #strugglesofdiabeticsisreal
I have the same fear with my 5 year old, she just had an ER visit from going too low and i was terrified. Also thank you for these videos! it really helps me as her mom kind of get ahead of things and even pal ahead for her future IE the mensuration video!
If these are your worst you are doing great. Been a T1D going on 46 yrs. My biggest are: 1 - Forgetting to bolus even well after eating, OUCH. 2 - Pre Bolus, then stuff happens and you forget to eat, Double Ouch and the final one is the one that ALWAYS happens and its hard to get over. Getting a BS of 60 or so and you dont really feel all that bad but I do believe that symptoms are many times triggered by just knowing then over treating, or better yet......treat till I feel better. Big Mistake but as you say, its difficult.
#2 is MASSIVE. I mean HUGE. Beyond what's mentioned in literature that comes in my insulin packaging, this concept was never mentioned to me by a Dr or medical professional so reading it wasn't nearly as impactful to me as specifically being told. It took a lack of discipline where prebolusing is concerned to really prove to me the undeniable importance of it. Thank you for including this on your list because it's a reminder to me personally, but more importantly it could serve as introduction for someone who is unaware like I was. Job well done! E S
I mistakenly took the wrong insulin. I took my fast acting Humalog at the nighttime instead of my slow acting Lantus. Luckily I immediately realized my mistake. My husband, the one not freaking out, calculated I needed 200 mg of carbs to make up for all that extra insulin. Only problem is we don't have carbs in the house at that level. Glucose tablets? I would have had to eat 50 of them. No bread, no cooked grains, no juice. We found a frozen english muffin in the freezer. Defrosted it and ate with honey. Whew! I'm about to get an insulin pump so that won't happen again. Love your videos!
For some reason, I thought pre-bolusing was not necessary with the pump. I have only had a pump 5 days but have realized that was VERY WRONG thinking. So I am guilty of that mistake and starting NOW, will change my ways. Thanks Michelle!
Oh man when I was a teenager I used to fake readings in my log book as well! I would do the same as you, or I would just look at other numbers from the same time frame and fill them in my book so it looked like I was testing more frequently than I actually was... SO BAD! but I was young and thought my endo was stupid apparently haha 😂. And I too under estimate carb counting. I feel it stems from a fear of having that low blood sugar so we do less thinking that it will prevent the low..
Me too. My cousin, 48 years old and type 1 since age 2, does as well. He also eats garbage. I was diagnosed at 43 and I'm horrible at picking up habits. Horrible. I resent having it so much! I hate, hate, hate the feeling of low sugar so I always take less than I need in fear of low sugar. Oh, and my endocrinologist is so mean!
Hello Michelle Lord, my name is Andy Johnson type 1 diabetic since I was 8 and now I am 52 so just a mire 44 years I believe! So a lot of years to look back on, near death experiences, 3 different insulin pumps, so many needle pokes and fingers stick pokes. So I will come back at a later time and give you some of my most difficult times.
I just hate going high, and quickly bolus and then go low because I stack up if I'm not going down fast enough! The second is over treating a low and going up way over my target range. After a day of this makes me feel like a ran a marathon and the rest of the day is gone. Now on a pump with CGM and still make these mistakes! Oh so frustrating!
Everything. I was diagnosed at age 43 with type 1. I'm ADD with poor executive dysfunction, and went my entire life eating what I wanted, when I wanted. It's been awful. It's so hard to take on a lifestyle in middle age like diabetes. Plus I've had very little diabetes education. My cousin has had 1 since age 2 and does not take care of himself. My A1C is awful. It's gone from a 6.9 A1C to 14!!! I subscribed, thank you.
Hi Micehelle, I love watching your videos. They are as real as it can get. I am a new T1D person and I am wondering if I am on right Insulin. All the people I see online use your kind of Insulin but I am recommended by my doc - human mixtard twice a day. I am wondering if you know anyone else (as you know a lot of T1D people) using my kind to manager Type 1? Also, can you please also make a video about insurance that you are on, how much it can cost per month and related expenses. ( I will be moving to USA soon and these are my concerns). Sorry to bother you and ask so many questions. But I just dont know whom to ask. Thanks a ton in advance. You rock
Was searching for someone to own up to doing this…managed it last week.. but it was with only 7 units of novorapid…just chugged a few boxes of juice… wondering how you fixed for 35 units
I am type two but this use insulin pump. On number one, I am more afraid of being killed by an air bubble like on the spy movies so have never done this. I am terrible about prebolusing but your reasoning made sense. Sometimes people just don't tell me why in a way that I understand. I have downloading the Calorie King app which has the carbs for thousands of foods. Cupcake is 56g on there, lol. It has fast food and restaurants and individual foods. I have ketone strips for urine check but they expire quickly too. I have never heard of the test strips for a meter. Awesome! Thanks for sharing!
Great info, thanks. On another note: If you raise your camera level a bit higher, you'll like the result. Notice the video leading up to :43 seconds then a brief change as you lower your head for a few seconds. Keep up the good work.
Love your videos Michelle Lord and as I am in Ottawa it feels like a friend with Type 1 next door to me giving me advice just from watching your videos.
This is so interesting to hear as i have the opposite - extreme fear of HYPERglaecemia, which sadly led to an eating disorder for many years. So i'm working on not OVERestimating carbs! Hopefully we can find a balance, this does make me with too that i had T1D friends!
A combination and sequence of technical issues and mistakes, all while in the car: CGM indicates very high unexplainable glucose level → large correction bolus → suspicious of CGM measure, checking with glucometer, confirms CGM not working well, realize mistake with bolus → eats fruit jam found in the car → glucometer again, but didn't wash my hands, so it indicates super high glucose levels → more insulin → realize mistake of not washing hands → wash hands → glucometer: I'm ver low! → more and more jam… etc…
I enjoyed watching your video I’ve been a type one diabetic for over 40 years my body has changed I have to take at least one unit more for English muffin or most foods that I eat and seems to be helping and then I give a square bowls or duel for half an hour to 45 minutes and helps with the spiking thank you and good luck
Great idea for a video! So good to hear your experiences from this point of view. In a way it also gives us your top best advice for T1D as you tell us how you corrected these mistakes to make life better. :)
You talk about PreBolusing and that is something we don['t do. My grandson is 14, diagnosed 18 months ago. He does typically spike after dinner, not too high,. but I know pre-bolusing would help even more however here is what I don't understand. We count and weigh and measure everything and get as accurate of a carb count as possible. How do you do that prior to food preparation to be able to pre bolus? I may not know exactly how much of a portion he will be getting or the actual weight if it is frozen . Should we focus more on the importance of prebolusing and be less carb accurate. Being in puberty his insulin use is pretty high right now. He has a carb to insulin ratio of only 5 and therefore inaccurate carb count could make the difference of a couple of units or more. Am I overthinking this?
I got ketones a few weeks ago really bad. I drank the night before and I thought I was hung over and I puked. It wasn’t until later in the day that I realized my pump site wasn’t working and I hadn’t gotten insulin all day. I was very sick. ☹️ And I didn’t know it was my blood sugars for a while because I didn’t have my cgm on like I normally do. I definitely learned my lesson.
Pre Bolusing definitely a big one for me. This is probably the most important one because not timing your insulin intake properly causes spikes and you spend the rest of the day trying to lower your BS...accurate carb counting also important...
I think this is a more realistic list of Biggest mistakes type 1 diabetics make: 1) not bringing backup insulin/pods with you (who ISN'T on a pump now?) 2) not using xDrip+ software so you can use your dexcom sensors/transmitters for like 3x the time that Dexcom allows! 3) def not prebolusing. so annoying. Delaying a bolus for complex carbs is even harder to do 4) keytones I don't worry about unless my sugar WILL NOT go down. It usually wont go down because the site where my pump is won't take any more insulin and it just pukes the insulin back out. 5) yup. oh im going down let me eat a whole bag of gummy fruits LOL i had another one in my head before but now I don't remember, of course.
Mistake #2, great point to know about pre-bolusing. Mistake #3 is so funny because i would sometimes think my BG level was high and know i needed insulin. I would do the same thing as you but sometimes what i felt was actually completely opposite of what my BG level was... yes another cringing moment! All that changed when i went on a CGM. It happened early on for me as well, young and dumb lol Mistake #4... My diabetic mgmt teams haven't really talked to me about having a keytone meter at all. Mistake #5 underestimating carb counting is always a work in progress for me. It's been limiting on what types and kinds of food i eat. I hate to go low as well. But, i just keep liquids or simple sugar foods around if i do go low or start to go low. The CGM i'm on really helps on being more proactive. With the Tandem slim, being proactive is even better!!
I am newly diagnosed with LADA (Late Autoimmune Diabetes of Adulthood) as of April this year and in the beginning was so focused on diet that I completely forgot about prebolusing.
I no longer pre-bolus since I switched to Fiasp! It is SO fast acting (2.5 minutes) that I wait until I go over 125 (7) before bolusing up to 5 units. Any more needed I extend the bolus over 30-60 minutes. I do, however, end up underestimating carbs sometimes to avoid going low, but I can always stack later....
Mistake 5 is definitely me. I hate going low especially when i’m at work and I try to avoid it at all cost. Also my big problem is not giving myself insulin when i’m going to get a snack. I’m on pens and sometimes I just choose not to give myself insulin to avoid that stick. Hopefully i’ll get on the pump soon.
I do the underestimating carbs thing as well because my bolus schedule is quite off the mark to be honest. Unfortunately I haven't been called in to see my diabetes nurse for close to a year now so not really getting much in terms of help and it scares me a little bit to start making the adjustments necessary as I imagine they're quite big really. I seem to have become quite sensitive to insulin in the past year or so.
I totally underestimate carbs when I'm outside of my home. I talk to my Endo about it. I KNOW it's not good, but I have such a fear of lows, and how going low will affect me and everyone around me, and everyone's experience, that I can't help it. It is particularly bad a to work. I'd rather be at 250 all day than have a low in a meeting or have to lay down in someone's office shaking and sweating. I still feel so much guilt and shame when I have these experiences, that being high is just the better option. It is validating to hear that I'm not alone.
Hi Michelle, I guess we are all human. Lol. I did even a worst mistake, I didn’t flush my tubing before putting it in my pump but I filled the cannula I thought. No I didn’t. You see it was a new infusion set and I thought I’ll do it after I inject myself. Never did that mistake again. I climbed all night didn’t realize until about 5 am, I kept giving bolus injections with my pump but obviously I was getting air. I even changed my infusion set that’s when I realized what I had done. So silly. I then gave myself a bolus injection with a needle. I was high 22. All worked out it came right down. Thanks for sharing. Enjoy your day. 🙋😉😊
I have the same issue around worrying about hypoing out in public. I still after 17 years purposely eat carbs before going out and take a few less units of bolus to give me a buffer zone. Don't think I'll ever trust my body enough to be able to stop this habit. One mistake I keep making is forgetting to input 'good' blood sugar results into my pump. If I test and it's in range 4-7 I just forget to still transfer that info to my pump, as no correction insulin is needed. Therefore when I upload my pump data it looks like I'm always out of range, and is pretty much a load of useless charts.
My worst mistake was when I was adjusting to a new very fast acting insulin. One morning, as usual, I was sleepy, I gave myself the dose of insulin, drank my coffee. Suddenly, I felt so bad and both of my legs went numb. I fell down and broken my ankles, one needing 2 surgeries. At the floor level, there is no sugar! I screamed for help! I spent 11 weeks in 3 hospitals! One physician reported me at the Government Driver’s permit. My driving permit was suspended. I had to take the bus with a big boot. It took 4 months to be allowed to drive again! I know it is not a contest, but I think I top most of you!
I think my biggest mistake was going to a Chinese all-you-can-eat restaurant and eating all I could. My sugar was high from 2PM to 2AM, probably peaking somewhere in the 300s (don't remember). I've been on MDI for about 4 yrs and just ordered a Tandem pump - covered by Medicaid :) I'm a bit nervous about how my body will react and the time it will take to learn the system. My last A1C (lab) was 7.0 in January, .2 higher than the Dexcom meter said it was.
I was never taught to pre-bolus. No clue why. Just one of the things my team missed. Now I have to do a duel wave and take insulin later than when I eat because my digestive system is slow. If I pre-bolus my BG will drop and then spike. My biggest bad habit that I need to stop doing is eating even with a high blood sugar. I never wait for it to go down AND THEN eat. It's like oh, my BG is at 18? Sure I'll still have ice cream right at this moment!
Hey Michelle 👋🏻 I’m wondering if the 90• sets have made a big difference for you with scarring. I used to use mios as a kid but switched to the silhouette a few years ago because of kinked cannulas but they’re causing a lot of scarring :/ Thanks 😊
My husband is guilty of not pre bolusing, but when he does he gets low alerts, and tries to correct it with juice and then goes high, then he has to correct that so of course he gets the roller coaster affect on his meter. Where is the happy medium 🤔 it's very frustrating. He just got his Dexcom a couple of weeks ago so he is still getting use to that, hopefully things will balance out soon. Thanks for your videos that are very helpful and appreciated. 💁🏻
one of my main ones is priming the cannula but forgetting to press done, i’ve lost count of the times where i’ve gone to bed without pressing done so i’m not getting insulin until i realise in the morning when i have ketones😬 think i’ve learnt my lesson to change it before a meal
Hi Michelle thanks for sharing! I am also specialist in not pre bolusing! and I am like why exactly? kind of lazyness or I dont know...but indeed it helps so I am trying to get better at that ;) I also did do the one of injecting previous to checking to see a nice number ;) oh well
i recently got the insuin pump and i kinda also forgot pre bolusing was a thing so id give insulin and eat right away and have my blood sugar sike hahahahha but thankss now i am actually gonna pre bolus hahaha love u
bad habbit for many years 18yo-22yo not using a meter for blood sugar because i couldn't afford strips or just frequently forgetting to check, just went by feeling if i started to fill higher i would bolous for 15g of carbs about 5 units at the time and well it would work out fine, my a1c at the time were like 14s. mistake 1 i learned this after it really happened, not much we could have done to avoid it, but a year or so after i was diagnosed i got stomach sick and trying to settle my stomach and get fluids to stay we fed me sports drinks that had sugar in them.... yeah 1200 bg DKA hospital visit 3 days icu a life lesson learned that i didnt know in my "training time" when i was with my doctor when i was first diagnosed. mistake 2 not waiting to make sure the pump site is attached before moving on to doing something else, did this once the tubing came out under the patch and was laying ontop of the skin not in and the rest of the patch was sealed, i didnt know and went about my day i got sick throw up sick over the next 2 days and one day 3 i was found passed out naked (just getting out of the shower) in the hotel bathroom by the maid with a blood sugar of 1600 no joke worst time of my life i ended uo having a stroke while trying to recover from this dka and spent 2 weeks in the hospital icu, later found out that the tubing fell out from under my patch and the pepsi i got the night i got in was not a diet pepsi but a normal pepsi as the gas attendant got the syrup mixed up for the fountain drinks just wasnt a good combo. and i was no where near family or friends.
Relate to number 3 so much 😂 definitely guilty of placing too much emotion on the numbers. Going to start pre-bolusing. Was told not to by my team in case I didn't finish my food but this rarely happens to me and is definitely not the best advice!
Hi Michelle, my wife is a T1D since she was 7. We live in Montreal and I always watch your videos. Her most worrying bad habit is not checking her blood sugars often enough, so instead of anticipating a high or a low, she ends up treating them. She uses the miaomiao and I’m thinking to get her an iwatch. Maybe that’s easier for her to check more often. How accurate you think the miaomiao is?
Alejandro Navas I have a Miao Miao and an Apple Watch and it’s fantastic, it makes life so much easier. The MM is actually just a transmitter, so the accuracy of the readings would depend on which app you use with the MM and how well calibrated it is.
I do not think underestimating is a bad habit, It all depends of how your body reacts to being active. Me for example: I'm usually not very active so my basal insulin is little high, so when I'm out it's "being active", and my insulin works much more effectively and I can't have same amount of insulin because I will go low. Sometimes when I eat honey cruller ( 37g carbs) I do not have to bolus at all and my blood sugar remains in range.
There's a reason for us not being perfect diabetics, cause we are people not a pancreas. We are essentially doing the work of an organ.
Makes you realize the pancreas has a tough job! Thanks for the video 🙂
My pancreas quit its job and now it's growing medical weed in california. ...
My son was diagnosed at 4, he's now 8, and I still struggle almost daily. Haven't made all of these mistakes, but made some and also different ones. My dad is Type 1 as well (diagnosed at 6) and he calls Type 1 "just a numbers game." Trial and error, always changing, ups and downs. New subscriber!
Your last one was so right on for me too! I don’t want to go low. I hate going low - I’d rather be high. I’ve had lows where I thought I was going to pass out. The fear is real. ❤️
Lows are super scary!! Especially if no one is around to help you. I'd rather be high (not all the time) than have a dangerous low. I've been doing this for 52 years and I'm still here so I'm not going to stress about it.
Chrissy Foley Wow 52 years!! Thanks for sharing because that gives me hope❣️
Pam Spicer I'm glad I can help. It's a tough journey but we are fighters. I wish you the best!
I've been on insulin for 1.5 years, dx'd at 49. I'm afraid all the time. It's so hard to be on the rollercoaster of "oh no, I'm going low, I'm going to die" and "I'm going high, my organs are going to fail and I'll die".
I remember when I was younger, I had a great diabetes team who educated me on injecting myself.
As I realised I was different from everyone else, for some cringeworthy reason I thought to myself “Why should I inject? Maybe they were wrong”
They weren’t wrong. I stopped injecting and testing for 2 weeks then I went into DKA. So severe that I will NEVER not do it again.
We all learn from our mistakes. We’re human.
I’m not type 1 diabetic but I recently started dating someone with it, so I appreciate this video. It seems like it is a continuous learning experience and we each need to keep a mindset of being informed. Always Be Learning. Thanks for being a resource!
Just found this video and I didn’t know other people were also afraid of going low when they’re not home, even if I’m at home but have guests over I will underbolus without even thinking about it - so glad I’m not the only one!
The faking BGs thing was so real for me as a teen! 😂 Thank goodness for the CGM now. On that note though, one of my bad habits is overriding my pump’s insulin on board warning to correct when I’m sick of staring at high numbers that don’t seem to budge on my Dexcom. Shocker: oftentimes I go super low after. 🤦🏼♀️
To be honest I think we’ve all made these mistakes at one point in our lives with Type 1 Diabetes
At first, I also reduced my glucose levels on a glucometer, which I wrote in a diary and showed to an endocrinologist. It seemed to me that if she saw big numbers, she would scold me that I had poor control of blood glucose levels. but now I understand that this is self-deception and no one will scold me, I just need to understand why this is happening, and not hide the numbers. Thank you so much for your videos ❤❤❤
Meanmado I always felt that I was scolded too when they flipped through my log book! 🙈 Thank God they don’t use log books anymore. They were awful.
Mine is probably over-treating hypos. I probably go into panic mode; my Freestyle Libre runs 15 mins behind and hey-ho, extra jelly babies for me! Doh!
me too!! and Jelly beans are the culprit also!!!
Me too! I get so confused and HUNGRY I tend to eat until the number is better but then im going to be high for hours. Its been tough getting the discipline to just consume 15-20 carbs and wait.
So happy I found this channel I’ve been a T1 for 7 years now and always wondered if someone had a channel like this updating my pump soon and now I feel like I have a community of people that get it😁 thank you for creating this channel!
Amber DeHoyos do you have Instagram? There's so many people with diabetes there. I made one just for the diabetes community. I've learned so much and I met a lot of great diabetics there. I love watching people make videos about it on RUclips but you can't always watch videos depending on what you're doing but I always hop on Instagram numerous times a day. You're not alone
i found this channel when i was getting my dexcom g6 she really helped me with her reaction
Same here, have had problems managing. I'm glad I found this community. There isn't enough information on T1. Thank you
Please don’t ever stop doing your videos. They are so informative, and I have learned soooo much from you. You are an angel. Thank you for what you do!!!
Hi Michelle,
My son was diagnosed with type 1 just over a year ago. He’s managing the disease exceptionally well and my wife and I have so much admiration for him. I’ve been using your ‘switch my site with me’ video for those rare times when he asks me to help and tonight I stumbled onto this one and watched. I’m grateful you put these resources together. I’m ordering a ketone meter this weekend. Thank you
I was diagnosed a year ago with type 1 Diabetes, the doctor told me to see an endocrinologist. But me being dumb, didn't seemed to take it seriously, I didn't go to an endocrinologist and I really didn't take it seriously, I thought diabetes isn't that of a big deal. I really regret that decision tho. Tomorrow I'll be seeing an internist because I want to take it seriously this time. I hope it's not too late 😭
How are you feeling ?
Awesome video!! In the 80's when I was diagnosed (juvenile diabetes) NPH and Humalog were my partners in crime. At that time I was only taking about 9 units of NPH per day! Now at 37 yes into T1D it's a split dose of 38 units of Tresiba in the morning then 38 units in the evening! Insulin resistance is taking a toll on manageable blood sugar levels. Do you have any videos on helpful ways to help combat Insulin resistance??
I have a very cringe worthy mistake. Taking MDI and mixing up your pens. On vacation in unfamiliar surroundings, I grabbed the Humalog pen instead of the Lantus pen and gave myself 25 units of fast acting instead of long lasting, 3 times what I normally take for meals. Lots of sugar water, multiple times over a few hours until all the fast acting insulin was gone from my system. Now I'm on a pump, never have to worry about that one again.
Can you please do more videos like this please they are interesting.
I do the same thing underestimating how many carbs , I just got diagnosed about 4 months ago , and I suffer with hypoglycemia for about 5 years before I became diabetic and I am just so terrified of going so low because I’ve passed out before from it so I always underestimate my carbs , it’s a bad habit haha
Not prebolising is my biggest problem!! I get so mad at myself sometimes lol
Haha I know what you mean!! I get frustrated with myself when I forget to prebolus.
Mine is, I do it or, but get soo busy and leave for work, and in the middle of my shift I drop, it's scary, the girls had to stop me and made me sit down and eat something, gave me some plain icecream and a hot dog for balance, and.then test in 15 minutes, sometimes I grabbed a apple sauce pouch out of the fridge
same lmao
Same 😭😭😤
I can totally relate to the last one! I always underestimate the carbs when I’m eating out.. I’m slowly learning to bolus for the full amount of carbs, but sometimes I get too anxious about going low, so I underbolus and my blood sugar spikes like crazy :(
I can so relate to subconsciously "miscalculating" carbs to avoid hypoglycemia... Sometimes we know what's right... but the emotions just modify our actions or final judgement... it's really great to hear I'm not alone
Thank you Michelle !!..I learn something new from every one of your videos ! I have been a Type 1 diabetic for about two years. I was mis-diagnosed as a type 2 for about 2 1/2 years. What a miserable time. Soooo not pre bolusing is a big bad habit for me. I also often underestimate (on purpose) the carbs in a meal ! Thanks for reminding me what bad habits can lead to. I really enjoy your channel !!
Our stories are similar! I was also misdiagnosed for 2 1/2 years. Nothing i did helped because i was treating for T2 but was T1. Glad we both lived through it!!
I have been a T 1 diabetic for 30 years .Afflicted at 35.
Only discovered your videos today.They are interesting and your style of presentation is commendable.
I would be interested to hear a presentation devoted to Hypos.
Thank you for your videos-I am 57 and insulin-dependent following a pancreatectomy and the changes to my lifestyle have almost been overwhelming. Your encouragement and honesty has been so helpful-keep it up!!
Some times when I’m out, I don’t really use alcohol paper..😭 just I inject my insulin.. :( and I don’t really rechange my rancet...:( haha
50 years type 1, I don't either, even the syringe. I go weeks without changing my lancets.
Me toooo!! I don’t always change my needles & lancets’ needles 😹 my worst habit
Same here
I also don't change them often as they are expensive where I stay in Zimbabwe. I'll use one for 3/4days. Also don't use spirit or alcohol paper. Bad habit
i tend over estimate carbs, especially when eating out😋 ❤️ your videos ... have learned so much 😊 cheers from Dana in Tennessee, a 65 year old newbie Type 1 diabetic 🥺
Michelle you are doing an excellent job of taking the time to inform people with your experiences. God bless you and keep posting videos. Thank you.
I am just switching from the G4 Dexcom CGM to the G6 and have come across your videos among the many I’ve watched, and I enjoy them.
I love my CGM. It has allowed me to better manage my A1C because I am not as afraid of going low since I now have a loud warning when a low is about to happen. So I now inject the proper amount of insulin before a meal based on my current blood glucose reading as well as carbs I plan to eat because I’m confident I can fix any low if I take too much insulin.
However, this loud, urgent warning for low blood sugar has caused me to make the following mistake many times. Due to the lag between eating some high-sugar food and its effect showing up on my CGM, it is very easy to way overdo the sugar intake in response to a low sugar warning. This is particularly the case with my CGM as it makes very loud warning sounds again and again when my blood sugar is low, and it is very easy to panic and overdo the sugar intake and swing from very low to very high in 15-30 minutes.
Here are a couple of other mistakes I’ve made: 1) not having a backup source of glucose with me at all times, and 2) injecting a bolus of insulin too soon before eating when I’m eating out (pre-coronavirus obviously). I’ve had really slow service occasionally, especially with large groups being served. I only somewhat joking say that I don’t inject before a meal until my food is clearly in sight. My wife has had to watch me open sugar packets on the table and pour them into my mouth on a couple of occasions.
I have done all of them and continue from time to time. D1 is a full time job. It's hard at times and you are correct. Everyone is different. Thanks for the great video. 💕
Love your videos. You explain things thoroughly , which I like . Keep those videos coming. Thank you.
I found you videos two days ago on 10/17/2020.
I enjoy seeing that people can live successfully with type 1 diabetes for more than decade, and lead a relatively normal life. I was diagnosed 5 years or so ago. My doctors actually call me on my phone and told me to park my car safely and then call 911. My blood sugar was at 700mg/dl. Now as I write, it's at 111 mg/dl. Quite a difference.
So keep up the good fight. And, best wishes to you and your husband! :)
If you don't mind, I would appreciate you doing a podcast on bad habits of type 1 diabetics. I think it would be quite informative.
Thanks again for sharing you life with people whe have a similar chronic disease. :)
Great video! More like this please, I love learning for you and other seasoned T1Ds. :)
I do all of them 😤 (except number one cuz I’m on MDI), but not all the time, of course I try to avoid them.
Mikasa Mikasa samee
You are awesome. Yes, I am guilty of being afraid of lows. I hate the feeling, but I'm guilty of not counting carbs correctly and eating right after I bolus.
Hats' off to you for recognising your mistakes. I will have to research ketone testers. My rationalising is that I don't need one as blood sugars are seldom over 180 for very long. My A1c proves this out. I used to severely crash from insulin stacking. Now with the T-slim Basal IQ those days are over but I am still very aware of how this occurs. My biggest problem is accurately knowing carb value of restaurant food. These are people you just can't trust because A) they don't know what a carb is & B) they don't care. I have become a very good cook knowing exactly what is in my food.
Great video Michelle! I have two mistakes, one minor and one which was serious. Let me start with the minor one. I never change my lancets and only do so only when it is so dull, it will not draw blood! Now onto the major mistake. When I was on M.D.I. many years ago, I was going to bed and accidentally confused my Novorapid with my long acting Insulin. Luckily I realized my mistake immediately and took action to correct the 19.0 units of quick acting Insulin I took by mistake! Needless to say I didn’t get much sleep that night! #strugglesofdiabeticsisreal
First of all , LOVED the style of this video . Second of all , I am the king of #5 😅 you’re not alone , Michelle ! We can work on this together 😌🙌🏼
Absolutely, we can all share our mistakes and work on them together!! That's what I love about our T1D community 😊. Thank you Dave!!
Michelle Lord I agree ! 😌
I have the same fear with my 5 year old, she just had an ER visit from going too low and i was terrified. Also thank you for these videos! it really helps me as her mom kind of get ahead of things and even pal ahead for her future IE the mensuration video!
Great video! I feel like it really showed us a little peak into your life in a different way than we normally get.
I never check my keytones. 😬
I drink a lot of water and keep an eye on my glucose and call it good!
If these are your worst you are doing great. Been a T1D going on 46 yrs. My biggest are: 1 - Forgetting to bolus even well after eating, OUCH. 2 - Pre Bolus, then stuff happens and you forget to eat, Double Ouch and the final one is the one that ALWAYS happens and its hard to get over. Getting a BS of 60 or so and you dont really feel all that bad but I do believe that symptoms are many times triggered by just knowing then over treating, or better yet......treat till I feel better. Big Mistake but as you say, its difficult.
#2 is MASSIVE. I mean HUGE. Beyond what's mentioned in literature that comes in my insulin packaging, this concept was never mentioned to me by a Dr or medical professional so reading it wasn't nearly as impactful to me as specifically being told. It took a lack of discipline where prebolusing is concerned to really prove to me the undeniable importance of it. Thank you for including this on your list because it's a reminder to me personally, but more importantly it could serve as introduction for someone who is unaware like I was. Job well done!
E S
I mistakenly took the wrong insulin. I took my fast acting Humalog at the nighttime instead of my slow acting Lantus. Luckily I immediately realized my mistake. My husband, the one not freaking out, calculated I needed 200 mg of carbs to make up for all that extra insulin. Only problem is we don't have carbs in the house at that level. Glucose tablets? I would have had to eat 50 of them. No bread, no cooked grains, no juice. We found a frozen english muffin in the freezer. Defrosted it and ate with honey. Whew! I'm about to get an insulin pump so that won't happen again. Love your videos!
I've done the same thing. Going to one insulin with the pump saved my life.
For some reason, I thought pre-bolusing was not necessary with the pump. I have only had a pump 5 days but have realized that was VERY WRONG thinking. So I am guilty of that mistake and starting NOW, will change my ways. Thanks Michelle!
Really scared of being low especially at work. Can totally relate.
Oh man when I was a teenager I used to fake readings in my log book as well! I would do the same as you, or I would just look at other numbers from the same time frame and fill them in my book so it looked like I was testing more frequently than I actually was... SO BAD! but I was young and thought my endo was stupid apparently haha 😂. And I too under estimate carb counting. I feel it stems from a fear of having that low blood sugar so we do less thinking that it will prevent the low..
Me too. My cousin, 48 years old and type 1 since age 2, does as well. He also eats garbage. I was diagnosed at 43 and I'm horrible at picking up habits. Horrible. I resent having it so much!
I hate, hate, hate the feeling of low sugar so I always take less than I need in fear of low sugar.
Oh, and my endocrinologist is so mean!
Hello Michelle Lord, my name is Andy Johnson type 1 diabetic since I was 8 and now I am 52 so just a mire 44 years I believe! So a lot of years to look back on, near death experiences, 3 different insulin pumps, so many needle pokes and fingers stick pokes. So I will come back at a later time and give you some of my most difficult times.
Pre bolus and temp basil rates are game changers for smoothing out the ride..
I just hate going high, and quickly bolus and then go low because I stack up if I'm not going down fast enough! The second is over treating a low and going up way over my target range. After a day of this makes me feel like a ran a marathon and the rest of the day is gone. Now on a pump with CGM and still make these mistakes! Oh so frustrating!
#5 I'm doing it! Thank you for calling me on it. I'm terrified of going low while out of the house and now realize I am.
Everything. I was diagnosed at age 43 with type 1. I'm ADD with poor executive dysfunction, and went my entire life eating what I wanted, when I wanted.
It's been awful. It's so hard to take on a lifestyle in middle age like diabetes. Plus I've had very little diabetes education. My cousin has had 1 since age 2 and does not take care of himself. My A1C is awful. It's gone from a 6.9 A1C to 14!!! I subscribed, thank you.
Hi Micehelle, I love watching your videos. They are as real as it can get. I am a new T1D person and I am wondering if I am on right Insulin. All the people I see online use your kind of Insulin but I am recommended by my doc - human mixtard twice a day. I am wondering if you know anyone else (as you know a lot of T1D people) using my kind to manager Type 1? Also, can you please also make a video about insurance that you are on, how much it can cost per month and related expenses. ( I will be moving to USA soon and these are my concerns). Sorry to bother you and ask so many questions. But I just dont know whom to ask. Thanks a ton in advance. You rock
Mixed my long lasting up w quick and took 35 units of novolog instead of my long lasting. 😢
Was searching for someone to own up to doing this…managed it last week.. but it was with only 7 units of novorapid…just chugged a few boxes of juice… wondering how you fixed for 35 units
I am type two but this use insulin pump. On number one, I am more afraid of being killed by an air bubble like on the spy movies so have never done this. I am terrible about prebolusing but your reasoning made sense. Sometimes people just don't tell me why in a way that I understand. I have downloading the Calorie King app which has the carbs for thousands of foods. Cupcake is 56g on there, lol. It has fast food and restaurants and individual foods. I have ketone strips for urine check but they expire quickly too. I have never heard of the test strips for a meter. Awesome! Thanks for sharing!
Great info, thanks. On another note: If you raise your camera level a bit higher, you'll like the result. Notice the video leading up to :43 seconds then a brief change as you lower your head for a few seconds. Keep up the good work.
Hey girl! Love this video, what camera do you use to record your videos?
Thanks! I use the Cannon Rebel T7i :)
Love your videos Michelle Lord and as I am in Ottawa it feels like a friend with Type 1 next door to me giving me advice just from watching your videos.
Interesting video - I am type 1 but inject manually rather than a pump. Have you considered or have any experience of the keto diet?
This is so interesting to hear as i have the opposite - extreme fear of HYPERglaecemia, which sadly led to an eating disorder for many years. So i'm working on not OVERestimating carbs! Hopefully we can find a balance, this does make me with too that i had T1D friends!
A combination and sequence of technical issues and mistakes, all while in the car: CGM indicates very high unexplainable glucose level → large correction bolus → suspicious of CGM measure, checking with glucometer, confirms CGM not working well, realize mistake with bolus → eats fruit jam found in the car → glucometer again, but didn't wash my hands, so it indicates super high glucose levels → more insulin → realize mistake of not washing hands → wash hands → glucometer: I'm ver low! → more and more jam… etc…
Been there, done that!
I haven't done any of these except the last one but instead of underestimating carbs I overestimate carbs but I am working on it and getting better. 😊
I enjoyed watching your video I’ve been a type one diabetic for over 40 years my body has changed I have to take at least one unit more for English muffin or most foods that I eat and seems to be helping and then I give a square bowls or duel for half an hour to 45 minutes and helps with the spiking thank you and good luck
Great idea for a video! So good to hear your experiences from this point of view. In a way it also gives us your top best advice for T1D as you tell us how you corrected these mistakes to make life better. :)
You talk about PreBolusing and that is something we don['t do. My grandson is 14, diagnosed 18 months ago. He does typically spike after dinner, not too high,. but I know pre-bolusing would help even more however here is what I don't understand. We count and weigh and measure everything and get as accurate of a carb count as possible. How do you do that prior to food preparation to be able to pre bolus? I may not know exactly how much of a portion he will be getting or the actual weight if it is frozen . Should we focus more on the importance of prebolusing and be less carb accurate. Being in puberty his insulin use is pretty high right now. He has a carb to insulin ratio of only 5 and therefore inaccurate carb count could make the difference of a couple of units or more. Am I overthinking this?
I got ketones a few weeks ago really bad. I drank the night before and I thought I was hung over and I puked. It wasn’t until later in the day that I realized my pump site wasn’t working and I hadn’t gotten insulin all day. I was very sick. ☹️ And I didn’t know it was my blood sugars for a while because I didn’t have my cgm on like I normally do. I definitely learned my lesson.
Great video. I have a question for you. Where do you put your pump while sleeping?
Pre Bolusing definitely a big one for me. This is probably the most important one because not timing your insulin intake properly causes spikes and you spend the rest of the day trying to lower your BS...accurate carb counting also important...
I think this is a more realistic list of Biggest mistakes type 1 diabetics make:
1) not bringing backup insulin/pods with you (who ISN'T on a pump now?)
2) not using xDrip+ software so you can use your dexcom sensors/transmitters for like 3x the time that Dexcom allows!
3) def not prebolusing. so annoying. Delaying a bolus for complex carbs is even harder to do
4) keytones I don't worry about unless my sugar WILL NOT go down. It usually wont go down because the site where my pump is won't take any more insulin and it just pukes the insulin back out.
5) yup. oh im going down let me eat a whole bag of gummy fruits LOL
i had another one in my head before but now I don't remember, of course.
Mistake #2, great point to know about pre-bolusing.
Mistake #3 is so funny because i would sometimes think my BG level was high and know i needed insulin. I would do the same thing as you but sometimes what i felt was actually completely opposite of what my BG level was... yes another cringing moment! All that changed when i went on a CGM. It happened early on for me as well, young and dumb lol
Mistake #4... My diabetic mgmt teams haven't really talked to me about having a keytone meter at all.
Mistake #5 underestimating carb counting is always a work in progress for me. It's been limiting on what types and kinds of food i eat. I hate to go low as well. But, i just keep liquids or simple sugar foods around if i do go low or start to go low. The CGM i'm on really helps on being more proactive. With the Tandem slim, being proactive is even better!!
I do the same thing on figuring the carbs. I wasn’t aware of the Ketone meter.
I wish I had a type 1 friend in NY. I am TERRIFIED of going low, so I never take enough insulin. 😐
I am newly diagnosed with LADA (Late Autoimmune Diabetes of Adulthood) as of April this year and in the beginning was so focused on diet that I completely forgot about prebolusing.
I no longer pre-bolus since I switched to Fiasp! It is SO fast acting (2.5 minutes) that I wait until I go over 125 (7) before bolusing up to 5 units. Any more needed I extend the bolus over 30-60 minutes.
I do, however, end up underestimating carbs sometimes to avoid going low, but I can always stack later....
taking my long acting dose with short acting insulin 😂
Mistake 5 is definitely me. I hate going low especially when i’m at work and I try to avoid it at all cost. Also my big problem is not giving myself insulin when i’m going to get a snack. I’m on pens and sometimes I just choose not to give myself insulin to avoid that stick. Hopefully i’ll get on the pump soon.
I do the underestimating carbs thing as well because my bolus schedule is quite off the mark to be honest. Unfortunately I haven't been called in to see my diabetes nurse for close to a year now so not really getting much in terms of help and it scares me a little bit to start making the adjustments necessary as I imagine they're quite big really. I seem to have become quite sensitive to insulin in the past year or so.
I totally underestimate carbs when I'm outside of my home. I talk to my Endo about it. I KNOW it's not good, but I have such a fear of lows, and how going low will affect me and everyone around me, and everyone's experience, that I can't help it. It is particularly bad a to work. I'd rather be at 250 all day than have a low in a meeting or have to lay down in someone's office shaking and sweating. I still feel so much guilt and shame when I have these experiences, that being high is just the better option. It is validating to hear that I'm not alone.
Hi Michelle, I guess we are all human. Lol. I did even a worst mistake, I didn’t flush my tubing before putting it in my pump but I filled the cannula I thought. No I didn’t. You see it was a new infusion set and I thought I’ll do it after I inject myself. Never did that mistake again. I climbed all night didn’t realize until about 5 am, I kept giving bolus injections with my pump but obviously I was getting air. I even changed my infusion set that’s when I realized what I had done. So silly. I then gave myself a bolus injection with a needle. I was high 22. All worked out it came right down. Thanks for sharing. Enjoy your day. 🙋😉😊
I have the same issue around worrying about hypoing out in public. I still after 17 years purposely eat carbs before going out and take a few less units of bolus to give me a buffer zone. Don't think I'll ever trust my body enough to be able to stop this habit.
One mistake I keep making is forgetting to input 'good' blood sugar results into my pump. If I test and it's in range 4-7 I just forget to still transfer that info to my pump, as no correction insulin is needed. Therefore when I upload my pump data it looks like I'm always out of range, and is pretty much a load of useless charts.
My worst mistake was when I was adjusting to a new very fast acting insulin. One morning, as usual, I was sleepy, I gave myself the dose of insulin, drank my coffee. Suddenly, I felt so bad and both of my legs went numb. I fell down and broken my ankles, one needing 2 surgeries. At the floor level, there is no sugar! I screamed for help! I spent 11 weeks in 3 hospitals! One physician reported me at the Government Driver’s permit. My driving permit was suspended. I had to take the bus with a big boot. It took 4 months to be allowed to drive again! I know it is not a contest, but I think I top most of you!
I think my biggest mistake was going to a Chinese all-you-can-eat restaurant and eating all I could. My sugar was high from 2PM to 2AM, probably peaking somewhere in the 300s (don't remember). I've been on MDI for about 4 yrs and just ordered a Tandem pump - covered by Medicaid :) I'm a bit nervous about how my body will react and the time it will take to learn the system. My last A1C (lab) was 7.0 in January, .2 higher than the Dexcom meter said it was.
I was never taught to pre-bolus. No clue why. Just one of the things my team missed. Now I have to do a duel wave and take insulin later than when I eat because my digestive system is slow. If I pre-bolus my BG will drop and then spike. My biggest bad habit that I need to stop doing is eating even with a high blood sugar. I never wait for it to go down AND THEN eat. It's like oh, my BG is at 18? Sure I'll still have ice cream right at this moment!
U should always try to get it down first before eating anything else
Hey Michelle 👋🏻 I’m wondering if the 90• sets have made a big difference for you with scarring. I used to use mios as a kid but switched to the silhouette a few years ago because of kinked cannulas but they’re causing a lot of scarring :/ Thanks 😊
Same mistakes unfortunately
Thank you Michelle for your video as usual
My husband is guilty of not pre bolusing, but when he does he gets low alerts, and tries to correct it with juice and then goes high, then he has to correct that so of course he gets the roller coaster affect on his meter. Where is the happy medium 🤔 it's very frustrating. He just got his Dexcom a couple of weeks ago so he is still getting use to that, hopefully things will balance out soon. Thanks for your videos that are very helpful and appreciated. 💁🏻
Love your video Michelle!
one of my main ones is priming the cannula but forgetting to press done, i’ve lost count of the times where i’ve gone to bed without pressing done so i’m not getting insulin until i realise in the morning when i have ketones😬 think i’ve learnt my lesson to change it before a meal
Thanks, Michelle. Can you please share a link for a good application for monitoring diet and carbohydrate intake. Thanks Aamir.
My honorable mention! We need a new photo!!
I know right?! We really do. Also, I was referring to cupcakes the whole time and we are definitely holding cookies 😂😂
Hi Michelle thanks for sharing! I am also specialist in not pre bolusing! and I am like why exactly? kind of lazyness or I dont know...but indeed it helps so I am trying to get better at that ;) I also did do the one of injecting previous to checking to see a nice number ;) oh well
i recently got the insuin pump and i kinda also forgot pre bolusing was a thing so id give insulin and eat right away and have my blood sugar sike hahahahha but thankss now i am actually gonna pre bolus hahaha love u
I use Calorie King to enter my carbs. How do you account for sugar?
Literally everything we were talking about today!! :'D
I know right?! That was so crazy haha
you didn't prime the "cannula" (about .3-.5 unit)? or the whole infusion set (7-10 units)?
bad habbit for many years 18yo-22yo not using a meter for blood sugar because i couldn't afford strips or just frequently forgetting to check, just went by feeling if i started to fill higher i would bolous for 15g of carbs about 5 units at the time and well it would work out fine, my a1c at the time were like 14s.
mistake 1 i learned this after it really happened, not much we could have done to avoid it, but a year or so after i was diagnosed i got stomach sick and trying to settle my stomach and get fluids to stay we fed me sports drinks that had sugar in them.... yeah 1200 bg DKA hospital visit 3 days icu a life lesson learned that i didnt know in my "training time" when i was with my doctor when i was first diagnosed.
mistake 2 not waiting to make sure the pump site is attached before moving on to doing something else, did this once the tubing came out under the patch and was laying ontop of the skin not in and the rest of the patch was sealed, i didnt know and went about my day i got sick throw up sick over the next 2 days and one day 3 i was found passed out naked (just getting out of the shower) in the hotel bathroom by the maid with a blood sugar of 1600 no joke worst time of my life i ended uo having a stroke while trying to recover from this dka and spent 2 weeks in the hospital icu, later found out that the tubing fell out from under my patch and the pepsi i got the night i got in was not a diet pepsi but a normal pepsi as the gas attendant got the syrup mixed up for the fountain drinks just wasnt a good combo. and i was no where near family or friends.
Relate to number 3 so much 😂 definitely guilty of placing too much emotion on the numbers.
Going to start pre-bolusing. Was told not to by my team in case I didn't finish my food but this rarely happens to me and is definitely not the best advice!
I would love to see a bad habit video for type 1 diabetes! I am t1d as well and I enjoy watching these types of videos!
Hi Michelle, my wife is a T1D since she was 7. We live in Montreal and I always watch your videos. Her most worrying bad habit is not checking her blood sugars often enough, so instead of anticipating a high or a low, she ends up treating them. She uses the miaomiao and I’m thinking to get her an iwatch. Maybe that’s easier for her to check more often.
How accurate you think the miaomiao is?
Alejandro Navas I have a Miao Miao and an Apple Watch and it’s fantastic, it makes life so much easier. The MM is actually just a transmitter, so the accuracy of the readings would depend on which app you use with the MM and how well calibrated it is.
I do not think underestimating is a bad habit, It all depends of how your body reacts to being active. Me for example: I'm usually not very active so my basal insulin is little high, so when I'm out it's "being active", and my insulin works much more effectively and I can't have same amount of insulin because I will go low. Sometimes when I eat honey cruller ( 37g carbs) I do not have to bolus at all and my blood sugar remains in range.
Do you have any videos about working out with Type 1?