I'm a scientist who unfortunately has had to undergo a partial thyroidectomy which has led me to investigate what's happening re the thyroid treatment process. I am also a university professor. 1: unfortunately synthetic T4 is not identical to natural T4. It is sold as such, but it is not the natural substrate for the body. If you compare the chemical structure you'll see this. Here's the chemistry: the natural T4 has a COOH group, whereas the synthetic is CONa, the synthetic is a sodium derivative. OH and Na r-groups have different reaction profiles. Ideally the best treatment would be a natural T4, lacking the higher level of T3 seen in NDT. 2. TSH is a good indicator, but it does not pick up when the brain signalling is not working. I.e. Not responding to T4/T3. So T4/T3 and rT3 must be monitored, not doing so is a lazy approach by a doctor, and is one of the reasons for the patients struggle. Scientists always believe that one shoe does not fit all, and there is always more to learn. I agree that overdosing via the NDT due to T3 levels can be an issue, but not for all. 3. Last note: for those taking LT4, there are two nice scientific articles that show that taking your tablet with vitamin C (ascorbic acid) lowers TSH really nicely, one of the studies also shows that Vit C increases freeT4 and T3. If you do this you'd want to use pure vitC, not a fizzy version that is buffered with sodium bicarbonate or has other binders that would reduce absorption. Thanks for being an advocate, to change medicine it's important to make medicine change and not to be too accepting of old dogmas. We all only know so much..even the best doctors and Scientists in the world still don't know everything.
Thank you! Dr has me on that Levothyroxin & nothing changed. When I told him he did same blood test & said it's normal. If the full panel isnt too expensive I plan to be tested. Do you have a link for the natural cure? Thank you!
Thank you so much for that explanation. Finally some insight from someone who can speak on a medical level, but also you didn't address the "not covering issue".
Nailed it... thyroid is complex and lazy docs and lazy tests are hard to combat. Having to fight for the correct test and fight for the best type of treatment is a pain especially when you're fatigue is bad. I started having hypo after a litany of other late stage lyme disease symptoms and boy the battle hasn't stopped just to get tests to prove you're right so you can then fight uphill for treatment... I'm 9 years in and I have to attempt a new doc today to reprove my thyroid is hypo and then hope they believe in and will let me try np thyroid or ndt and not attempt levo cause I already got 99 problems
Ayurveda can cure hypothyroidism..? Ayurveda doctor told be happy don't take pressure.. Take it easy everything.. Thyroid will be normal.. Is it right sir?
Nobody on this earth should be eating gluten. Wheat is the most heavily sprayed crop on earth. The wheat today is definitely not the wheat in biblical times. So inflammatory!!!
Thank you so much for this video! It was so informative and educational. I have struggled for years with hypothyroidism and even though my levels have been "normal," I still have the symptoms. Also, I have low iron, I have a calcium deficiency and recently, I started having afib. I asked my gp for a referral to a endocrinologist and he told me there was no need for it. I have an appointment with a new gp at the end of this month and I hope to get that referral.
For many years I went through the same scenario with my GP. Even after much weight gain, significant hair loss, and eyes so dry that I had to change the type of contact lenses that I wore, he still insisted that I had no thyroid disease. Out of extreme frustration I made an appointment with an endocrinologist and received a diagnosis of Hashimoto's disease. He also discovered 3 nodules on my thyroid that he said had most likely been there for years. I'm so sorry that we both trusted the wrong doctors for much too long. My faith in the medical profession has certainly waned over the years.
To those who might be reading this and have been diagnosed with an autoimmune disease like Hashimoto's thyroiditis.....I just want to mention something from a nutritional standpoint. I have a biology degree and a diploma as a master nutrition therapist. Most physicians have received very little or no nutritional training in medical school. Unless they go out of their way to study the nutritional basis of preventing and treating disease, the "tools" in their treatment handbag are going to be either prescription drugs or surgery to treat just about everything. This is not to criticize physicians, but just to state the facts...physicians today don't have time to read all the new research and don't have time to spend with patients to go over this level of information. Plus, they know that many patients simply want a "pill" and don't want to make any diet or lifestyle changes. Instead of just treating the symptoms, try to find out WHY your body is attacking itself. This is not normal, and it's not usually genetic. It's caused by environmental factors, and patients with Hashimoto's are at risk of developing other autoimmune diseases like multiple sclerosis and rheumatoid arthritis. Often the cause is chronic inflammation because of something in our diets. I have personally witnessed Hashimoto's patients' antibody levels go BACK TO NORMAL after changing their diets. Yes, you can take medication for the rest of your life to manage your symptoms...but why not get to the root of the problem, which will also protect you from secondary diseases that could be caused by the inflammation in your body. I'm passionate about this because I hate to see people ignore warning signs from their body and just cover it up with medication. This could result in more serious problems down the road. Medication will suppress symptoms but it does not address the root cause. You will continually have to increase your dose until your body no longer has any thyroid tissue left to attack. A wonderful doctor to look into is Dr. Amy Myers. She is in Austin, TX. No, I am not affiliated with her in any way, and no, I am not selling anything or getting paid for mentioning this. Dr. Myers specializes in autoimmune conditions (she herself was diagnosed with Graves disease, which is an OVER active thyroid). www.amymyersmd.com/2016/03/conventional-medicine-autoimmune/ Dr. Kelly Brogan is another physician who was diagnosed with autoimmune hypothyroidism postpartum and is a great resource for information. kellybroganmd.com/thyroid-dysfunction-and-treatment/ Marnie is right....everyone must do what is right for them. If you are on this journey and you are happy with the path you are taking...then keep on doing it. But I want to make sure people know that there ARE alternatives and you don't necessarily have to take medication for the rest of your life if you are diagnosed with this disease. Listen to your body, seek out practitioners and specialists who dedicate their lives to teaching people how to prevent and treat these specific conditions, and know that there are resources out there to help you. xoxo
Thanks I will definitely look into this for myself and my daughter. I totally agree that medication is foolish. Why on Earth would you cover up your body warning signals, that makes zero sense but people have showed that they would rather turn over their health to someone who often have no more idea how to help them than they do. Unfortunately I learned that the hard way.😔
Ive read Anthony William's book on thyroid issues and found it amazing and insightful. He says there s no such thing as auto immune and the body never attacks itself which i find super logical. He says the epstein barr virus is behind it all. Ever since ive started eliminating the foods that feed the virus and implemented the foods and herbs that kill it, I feel so much better. So grateful that finally someone has showed me the truth and how I can heal. Look his book up and see if it makes sense to you.
yes Armour has had some recalls in the past.... so has Synthroid and Levoyxl. Natural Desiccated Thyroid meds like Armour Thyroid and Nature-Throid have changed my life for the better!!!! I am not over stimulated.... my very long list of hypo symptoms are treated! :) a lot of people with a thyroid problem do not properly convert T4 to T3 and need it directly from their meds. it sounds like this dr is at least open to prescribe Natural Desiccated Thyroid meds and I appreciate that.
My Free T3 and Free T4 are now in the range on NDT (they were below the range before getting on Natural Desiccated Thyroid meds). My TSH is suppressed but that is normal with treatment on NDT. also the TSH alone missed my thyroid problem for over 20 years even tho I had a long list of hypo symptoms. if they had run the Free T3 and Free T4 thyroid tests it would have showed that my levels were below normal. i've been on NDT for 15 years. thankfully I have a dr that pays close attention to treatment of my symptoms and i only do blood work once year. if my symptoms weren't treated with NDT then they wouldn't have been hypo symptoms... you know what I mean
Thank you so much for this video, Marnie. I was mis-diagnosed in my mid thirties with hypothyroidism by my ob/gyn when in fact, I had hyperthyroidism (Grave's Disease). From the little research I had done at that time, I knew his diagnosis was incorrect, but he was dismissive and unwilling to listen to me. He was dosing me with increasing levels of synthroid, exacerbating my symptoms. I could have been one of those persons who had a stroke at age 36. Thank God I quickly found another doctor, an endocrinologist, who was one of the most lovely, kind and brilliant doctors I've ever encountered. In my opinion, thyroid disease is sometimes not initially considered when patients present with those "non-specific" symptoms that you and Dr. Lupo talked about. It is critical that each of us takes responsibility to educate ourselves on our bodies and our symptoms, and to stand firm against physicians who are dismissive. The endocrine system is very complex, not to be treated by an ob/gyn or GP. Thank you again, Marnie, this was a wonderfully informative and always timely subject.
How were you misdiagnosed ? I am very skinny and got tested for antibodies which are over 600 indicating hashimotos... were your antibodies checked before u were diagnosed with hypo?
Marnie and Dr. Lupo, thank you so much for this! Dr. Lupo was so generous with his knowledge, I wish he was in my area. I have been treated by my GP for my hypothyroid issues for 10+ years (since my late 20s). I have asked if I should see an endocrinologist and told it wasn't necessary. I am on a very high dose of levothyroxine and have had frequent dosage increases. This is the most education I've ever received in all this time and has encouraged me to seek out an endocrinologist. I always have the concern that I'm not really "sick" enough to see a specialist. But this made me realize I need to take my condition more seriously. Thank you so much for making me a better educated patient!
Yes! Rachel-your comments are exactly why I wanted to do this program with AACE! We need to educate ourselves and be our own best advocates! Good for you and let me know how you do finding a specialist!
Hey Rachel, that is the same with my husband, his thyroid med goes up in mcg every time he goes to the doctor. It has gone from 88, to 100,110,125 in the last 6 months and this has been going on for almost 6 years and I wonder why they didn't suggest an endocrinologist by now. Luckily on our insurance we don't need a referal. Now if I can get my stubborn husband to go to one, I know it would help him tremendously. I hope you can get one with out a referral from your Doctor. Take care and good luck.
Thank you Marnie, one thing that distinguishes you as a vloger is your willing to serve and help others. Congratulations! You did a Fantastic job, you have the talent!
The doctor does not mentioned that gluten is implied in leaky gut syndrome (a confirmed medical condition), implied in all auto immune conditions, so I am surprised he only mentioned celiac disease, so as a nutritional medicine practitioner I would definitely seek elimination of gluten. Also that the adrenal and thyroid are directly related...so the higher the cortisol stress hormone more hypothyroidism. I highly recommend the videos of Dr John Bergman that does an excellent video on their correlation. If oestrogen is too high, this can also directly affect thyroid T4 to T3 conversion. So in other words hypothyroidism (non Hashimoto) can be incorrectly diagnosed when stress levels and/or oestrogen levels need to be normalised and, once corrected, the thyroid can often be normalised. In the UK thyroid problems are massively under diagnosed because they only check TSH and that is too broad 1-4! The reality is any women with a TSH over 3 will be likely to miscarry. Also reverse T3 tells you exactly what is getting absorbed by the cells, and he does not mention that.
ZOE'S HEALTH.BEAUTY.LIFESTYLE Gluten is fine for 99% of the population, in fact, people who follow the fad of a gluten free diet are less healthy. That's the research.
Me too, and I know there are many, many people just like us. I wonder why doctors want to dismiss the idea of NDT so easily? There are literally hundreds of people I know who have made the switch, but not without a lot of condescending behavior from medical personnel.
I've been through hell and back with my Hashis......I've spent years trying to find some balance and the best thing I've ever done is insist that my doctor at least try me on an NDT.....he doesn't know why it's working but he admits.....something is different! My objection with endocrinologists is that they're not open to alternatives....they shut down the conversation as soon as you mention that Synthroid is not helping......This particular doctor that spoke at least seems open to using T3 augmentation.....which is good.....I do object to his assertion that people feel better because they're "over medicated".....Over medicated people don't feel good.....especially on thyroid medication.....they feel hyper, shaky and have palpitations.....that's not feeling good!
My TSH was never out of range, went for almost two years deteriorating until I developed a goiter, then they ran all the tests, t4, t3 was slightly low, tsh still normal, antibodies through the ROOF!!! Gave me synthroid, kept telling me TSH was too low and would drop me down. After a decade of constant fight and now 70 pounds heavier I have found a bioidentical hormone practitioner that is treating me with armour at a dose which basically keeps t4 and t3 in range, but tsh is none existent. Haven't lost weight, but not gaining. Still not normal, but feeling much better. Also take vit d, iron, zinc, selenium, progesterone and dht blocker
Thank you so much I have learnt more in this vid than in the last 24yrs of having the condition. I'm in the UK now and the docs here do not inform us about very much at all. I was diagnosed 1995 in the US when I lived there had my first son and I was left with this debilitating condition for 2yrs, I couldn't get off the couch, before finally being diagnosed/treated. Pretty horrible time, prescribed Thyroxine and things improved dramatically, I had every symptom, most improved apart from GI symptoms, I came back home to UK my still fatigued all the time, doc tested me for coeliacs which was negative, although still recommended a Gluten Free diet it seemed to help me, especially for psoriasis, until recently when I've gained tonnes of weight, I had menorrhagia for 7yrs which I have just found out is all symptomatic of this condition. So plunged into early full on menopause after having a procedure to stop menorrhagia. I had been blissfully unaware of the full extent of this condition until now researching online. Trying to get answers from a trustworthy source is so important, so thanks again for this vid it is much appreciated. I wrote my story here to hopefully let others know you can live well with this for many years, I had another child too and all was well until recently the big M had to go mess up the hormones. All the best to everyone with thyroid issues.
Sooooooo informative!!! Thank you for sharing!!!😃His explanation about gluten free diet and whether or not it will benefit and the migraine linking to thyroid symptoms were so in depth.
I have hypothyroidism ( mom has it, sister has it) and it has only been recently that I have realized the significance of having it. I know that may sound dumb, but my GP has always treated me (diagnosed 6 years ago) and its only been since watching Marnie that I started to recognize that I know NOTHING about my hypothyroidism. There are so many things my doctor has never spoken to me about and I'm honestly feeling a bit overwhelmed. I have a lot of research to do. Thank you so much Marnie.
This was very interesting. I was diagnosed with hypothyroidism in my 20's, a few months after my twins were born. The doctors told me that The preeclampsia I had may have "killed" my thyroid. I am now 45 and take 250mcg/day of Levothyroxin for over 20 years now. I have also developed Rheumatoid arthritis by my late 20's. I wonder if any of this is goes together? I have never been told I needed to see an endocrinologist. May I should ask. Lol. I still always feel tired.
Thanks for this. I sent a link to my doctor. I have a lot of the symptoms but have always tested in the "normal' range. I suffer from chronic migraine. I learned a lot from this interview.
Excellent interview. Thank you so much for doing this. I have not been diagnosed with hypo, but I was told I have a low functioning thyroid. I have been on Armour for 2 years and I have had great success so far. Ever since I went gluten free in July 2015 and prescribed that medication, my labs have been normal. But, I will say that I was one of those that did not feel better with just the medication alone, though. I did research and had to make the hard decision to cut gluten. I can't really explain it, but I just did not feel like myself. I was sluggish, had horrible headaches, and just felt like I was living in a bubble. Once I cut the gluten out completely (I do not have cheat days), I felt so much better.
I was diagnosed with Hashimoto's thyroiditis a few years ago, and coincidentally was seeing my Endocrine specialist this morning. She told me that she was going to test me for Celiac disease, which surprised me because I really didn't understand the reasoning for it until watching this video. You asked, and the doctor answered questions that I didn't even know that I had. Thank you both for sharing!
Thanks a bunch to you for this Marnie. I have been suffering from celiac disease and Hashimoto's thyroid disease since last two years and his advice was really helpful. I thank Dr Lupo and you deep from my heart.
Seems like a very good Endo. I've had mostly bad luck with Endos. I'm on my fourth one and she seems to be fairly good. I get the impression most of them deal with diabetes more than thyroid. So finding one that deals with thyroid is helpful. One way might be asking the pharmacy who prescribes T3 medication. That would likely let you know they are a doctor that looks into more than just TSH. Going off of processed sugars, Dairy, and Gluten seemed to help me quite a bit. But always make sure you are getting enough calories. After I cut out those foods I didn't realize I wasn't getting enough calories. Which really hurt my progress. Fixing the gut is important. A high percentage of people with Hashis have low vitamin D. It's likely related.
The best presentation I have seen so far on Hashimotos disease. Both you and Dr. Lupo were eloquent, articulate and professional, a breath of fresh air.
Marnie please convey my appreciation to Dr. Lupo and also thanks to you for this very informative video. There is always something new to learn and we need to be our own advocates when it comes to our healthcare. Good for you and again, many thanks for giving us this information!
Marnie you missed your calling! lol :) You did a fantastic job interviewing. I watched the whole thing and learned about something that doesn't even effect me. So nice of the Dr. to take his time to answer your questions. It was so interesting and again you did a great job. ☺~Holly
Thanks Holly! It felt a little awkward since I didn't have a real microphone and since no one filming was nice enough to mention that I needed to fix my hair!!!
Marnie Goldberg Hi Marnie..just came across your channel...pls help me understand Hashimoto more..My 27yrs old daughter has Graves/hashimoto disease and feels so sick and cries alot because she just wants to feel normal..shes gone to her endocrinologist But her levels are Normal yet she's so sick.what advice can you give me I feel helpless....
Thankyou for explaining it so simply ,l was n HRT for about 20 years ,my Docter took me off it and almost immediately, l was diagnosed with under active Thyroid ,l now pay privately for Armour Thyroid, as it is not available on the NHS in the U K, ,still not feeling 100 per cent , follow a strict diet ,and l am quite active ,considering my age 76 , Thankyou again for explaining it in layman's terms
Here’s a question for you: Why don’t endocrinologists educate themselves about neuroendocrine cancer? It’s no longer rare, and it’s the cancer with the fastest increasing incidence-five-fold increase over three decades.
I'm so glad my doctor didn't dismiss my fatigue according to my TSH. I would probably be dead right now. I have no thyroid due to thyroid cancer, and dosing by TSH was disastrous for me. My doctor was open to NDT and trying whatever to help me. The symptoms don't lie and I find it super frustrating when endocrinologists dismiss it as something besides the thyroid. If you take out a major organ (or it's diseased), obviously it's going to be tricky trying to replace it. I don't need a medical degree to figure that out. In any case, hope those on synthroid continue to feel ok on it - I couldn't take it, literally made me sicker than I ever thought possible. Each patient is different.
This video is fantastic! I am getting tested for Hashimoto's next week because I still have symptoms in spite of being on levothyroxine and normal TSH lab results. This is very informative! Thank you both!
Thank you for this topic. Awesome interview. Very informative Marnie. You did an excellent job on this video. Well done 👍🏼. Stay fabulous. Hugs 🤗 and Have a great and productive week
I keep track of my migraines and found that I believe them to be hormonal, although I did not get migraines until I started having other symptoms and was finally diagnosed with Hashi/Thryoiditis.
Thanks Marnie and Dr. Lupo! This was so helpful! I was diagnosed with hasimotos last year and I have been having a difficult time finding conclusive answers to all my questions. I have started seeing an endocrinologist but he doesn't go into a lot of detail. Dr. Lupo's explanations were very helpful, particularly about gluten.
Marnie, thank you so much for this! I was not diagnosed with Hashimoto's until years after having my children, and Dr. Lupo raised an interesting point about the connection with thyroid imbalances and pregnancy. I had BP issues, preeclampsia with my first, and my son was diagnosed with Autism. My second born has some learning disabilities as well. I know I was having some thyroid issues prior to having children, but the Dr's I went to only tested one thyroid hormone and claimed I was "Normal" I know you can't go back in time, but boy I wish I could! Thank you again for this informative discussion. I go see my Dr. next month for a recheck, still not feeling great.
Cheers to Dr. Lupo for discussing these issues. This was informative and interesting. My husband sees an endocrinologist in Atlanta for his diabetes. His last appt. was about 2 weeks ago and his doctor was late for the appt. that morning. He was flying in from Austin on a very early flight but was delayed because of weather. He was probably at this conference.
I have recently been diagnosed with Hashimotos and this video was WONDERFUL and so helpful! Thank you! I have found an awesome endocrinologist here in San Antonio. This doctor would be so great to talk with!
He was fabulous! Would have loved for you to pick his brain on hyperthyroidism as well. My tsh has been low for years which would coincide with weight loss, severe sweating, terrible intolerance to heat! Constant tachycardia (racing heart) and tremors…the list goes on. A couple of years ago, when my tsh ascended into the normal range, I was actually have symptoms of hypo. My skin was dry, hair falling out, weight gain with no appetite and little food, excessive sleepiness, being cold. Recently the tsh has been sporadically low, but now my t3 is high and tsh is in the normal range (JUST). Resting heart rate is in the 140s and much harder to bring down. I have been having these issues for years. I also have several nodules (2 over 2.5cm and several smaller ones) which have never been biopsied. I’m under the care of an internist physician due to my autoimmune conditions (not thyroid related), but have never seen and endocrinologist. It all gets very frustrating when I know that the thyroid could be causing many of my issues! Please do an interview on hyperthyroid at some stage- if possible:) wonderful interview and you look amazing:) thank you. Much love from New Zealand xox
I have read that thyroid patients should avoid goitrogens? Soy foods: Tofu, tempeh, edamame, etc. Certain vegetables: Cabbage, broccoli, kale, cauliflower, spinach, etc. Fruits and starchy plants: Sweet potatoes, cassava, peaches, strawberries, etc. Nuts and seeds: Millet, pine nuts, peanuts, etc.
Soy I agree should be limited unless fermented (Tempeh supposedly OK but I personally don't like it)... but the other ones are more debatable. Many folks are realizing those shouldn't be left out of the diet...maybe not over doing them. Cooking them also reduces the goitrogens quite a bit. This book is a good one which talks to each food and has recipes: www.amazon.com/Essential-Thyroid-Cookbook-Nourishing-Hypothyroidism/dp/0991170504/ref=sr_1_4?keywords=hashimotos+cookbook&qid=1551495214&s=gateway&sr=8-4
I have Hashimoto's and read today that the thyroid is a store for toxins including the mercury from amalgams. 😟 What next?! How can I help that? Removing amalgam is harmful.
I have Hashimotos and I remembered how I felt when the doctor told me it will be very hard for me to conceive but, all to the glory of GOD that after using DR RORPOPOR HERBAL on RUclips natural infective herbal medication am a mother of four kids......🍀🍀🍀
After my thyroid removal in 2008 my real struggle started. Medication change after medication change. When my levels got so low I was hospitalized and could hardly walk I saw a different endo specialist. At that point I was on 475mcg's a day and should have been zooming around! Turns out my body would not process ANY of the synthetic thyroid meds I had been on. Now on Nature Thyroid daily and feel like I have my life back! This was an excellent video Marine!!!
Such an informative video. I learned so much more than I have ever been told. I Really liked hearing about the gluten free diet. I actually think it is beneficial to cut back on gluten if not all together omitting from the diet.
When the nurse called me and told me I had hypothyroidism. She didn't even explain what it was. Just told me that she would send in meds and that I need to be checked in 6 weeks. So I had to go researching it for myself. I'm happy that your videos are out here. I'm scared. I think I have nodules because.. I have had a bad cough with no explanation for it for years. The last year it has been worse. I wish they would have taken their time to explain it to me. My cholesterol is high and my liver enzymes are elevated. There was no explanation for that either. I find out on here that that could be because of the hypothyroidism. I'm going to search for a endocrinologist. I deserve better care than that
Check out the Facebook group Hashimoto's 411. It's a bit hardcore and leans toward functional medicine, but it's got a good amount of information and support.
@@tinal8398 don't feel pressure to follow their guidelines and conventional doctors and endocrinologists will not likely agree with much of it. But I think there is merit. Usually conventional doctors only treat the hypothyroidism and not the cause. Just realize it is a bit alternative and there are many opinions. I find hashimoto's and hypothyroidism is not well managed by doctors...especially if people are still having issues.
@@tinal8398 I hope that goes well. They can be a bit tough to deal with for this, but it's probably a good idea. Hopefully you can find one that specializes in thyroid treatment. Are you feeling hyper symptoms like tremors, anxiety, heat intolerance, diarrhea, etc? That would be a sign of too much medication. What medications are you on? They should test your TSH, FT4 and FT3...though, many will only test TSH. I'd ask for at the least FT4...especially if you are feeling hyper. I wish you luck!!
Thank you for this really informative Q & A Marnie and Dr. Lupo. I have Hashimotos and you addressed some of my unanswered questions. I hope there will be more of these in the future.
Marnie - thank you for the education. It is only because of you that I asked my doctor to test my levels of free T4 and T3. I have been on synthroid for more than 35 years, but no doctor had ever tested beyond the usual THS test which always came back within the normal range. My doctor called me today and told me that my T3 was very low and he was going to prescribe Cytomel (or liothyronine). I always watch and enjoy you on You Tube , but never dreamed that I would get such vital medical information!
Wow! Just wow! I could not figure out why I was following a younger than me beauty RUclipsr, other than I love beauty products too. But this! This is a god send, Marnie! Was so surprised to discover you and your son have these issues and am so thankful for all this information and al the work you have done on these videos. Thank you! Thank you! Thank you!
I wish he was my endocrinologist, I have Hypothyroid, Since my husband's Passing, almost 3 years ago, I have lost weight my primary Dr. Says I have had Hypo since 14 years ago maybe more. . I'm in my late 60's.
when people want to continue eating gluten...like you...interviews like this seem to tell you "its ok" your face said it all (i saw your relief when he "agreed" with you) but really, he wasnt agreeing that cutting out gluten wasnt absolutely necessary...what he said is "its inconclusive" meaning we don't know yet. he is a scientist/doctor after all. but whether or not you tolerate gluten is not guesswork or personal preference. there is science behind it. you can be tested. not a test for celiac, but actual advanced bloodwork looking for antibodies to the proteins found in wheat. (and eggs, and rice, and so on) these can be done by labs like Cyrex labs. if you are low thryoid, you really owe it to yourself to get a panel of bloodwork done from a lab like Cyrex testing for antibodies to common foods. if you have Hashimotos you really really should get this done. why? antibodies in your blood mean that your body is fighting off proteins from food as if they are viruses or foreign invaders. hashimotos is symptom of an overactive immune system. you body is targeting thyroid tissue. continue eating foods and your immune system is constantly flared up. if you are going to blog about low thyroid, you really ought to be up on the most current info, not advocating guesswork or personal preference. i too felt ok eating gluten. until i got tested, cut it out, and felt better than i ever thought i could.
Care to address the current problem with NDTs ? I was first on Synthyroid and felt like crap. Switch to Armour felt great for 1 year then they changed the formula it something. I had to switch to Naturethroid and then the same thing g happened and I switched to NP thyroid now there ya a problem with that now too. We need doctors to advocate for us to theses pharmaceutical companies to fix this problem!!!
I saw another endocrinologist at Dr. Lupi's practice when I was diagnosed with Hashi's a couple years back, also being hypothyroidism for 25+ years. That physician added liothyroxine to my existing regiment of levothyroxine. I asked how to treat or address the Hashi's and was told there is nothing to do to address the auto immune. My symptoms are getting worse. I wish I had seen Dr. Lupi rather than his associate. If you go to his practice, see him! This video was so informative and helpful.
wonderful content, questions and answers , thank you very much. how good see an expert giving sensible, clear advice , if you can inform yourself as much as possible , this reduces your anxiety , by being involved in your treatment and decisions you are half way to healing
I had Subclinical Hyperthyroidism and Graves Disease and Hypoparathyroidism and I had a total thyroidectomy. Two weeks after surgery the neuropathy in my hands and feet was drastically reduced.
I have Hypo & Hashi's. My TSH is NOW below 1.0 & I feel better than when it was high & out of range. Will I most likely EVER FEEL NORMAL. Auto immune is still in red zone. In hind sight this is my third bout with this disease in 35 or more years- but only THIS TIME WAS IT DIAGNOSED & do a lot of people who do everything right still get symptoms some days but not others. I only take 75 mcg of. Synthyroid plus the vitamin & minerals that were recommended D, B's, selenium + lots of brand NEW FOR ME , meds for high Chloresterol
Hi Marnie!!! Great interview, with Dr. Lupo...very informative...I've been doing research, because, my Endro was not doing anything or advising me of what to do regarding of still feeling very fatigue..his answer was to put me on Metaformin bc of borderline Diabetes...got sick on meds, not taking them..I have no diabetes, therefore, not necessary, of which my oncologist & primary dr. agree... but, earlier you had mentioned that B12 was recommended, light bulb went off, I did take & have been taking B12 so far okay, but I still need more care...so at this point since I cannot find a good Endro, I'm looking into vitamins. I'm still taking Lev.../Synthroid...2K units of Vit. D3...but need something more, and unfortunately, I may be having to self medicate myself due to lack of care, that I know I really need...Marnie, I am grateful for this video, as I'm sure others are too. Hugs :D
Try Chef AJ's Ultimate Weight Loss Diet (see her youtube Episode 36, Weight Loss Wednesday-What I Eat in a Day). This way of eating (Eat low density, healthy greens, etc as first meals in the day) cured my migraines, PAD, high LDL cholesterol. Also her condiment hints (Benson's Table Tasty, etc) are delicious!
That was fascinating. He IS A good educator.
he sure is, I learnt a lot from the interview.
I'm a scientist who unfortunately has had to undergo a partial thyroidectomy which has led me to investigate what's happening re the thyroid treatment process. I am also a university professor.
1: unfortunately synthetic T4 is not identical to natural T4. It is sold as such, but it is not the natural substrate for the body. If you compare the chemical structure you'll see this. Here's the chemistry: the natural T4 has a COOH group, whereas the synthetic is CONa, the synthetic is a sodium derivative. OH and Na r-groups have different reaction profiles. Ideally the best treatment would be a natural T4, lacking the higher level of T3 seen in NDT.
2. TSH is a good indicator, but it does not pick up when the brain signalling is not working. I.e. Not responding to T4/T3. So T4/T3 and rT3 must be monitored, not doing so is a lazy approach by a doctor, and is one of the reasons for the patients struggle. Scientists always believe that one shoe does not fit all, and there is always more to learn. I agree that overdosing via the NDT due to T3 levels can be an issue, but not for all.
3. Last note: for those taking LT4, there are two nice scientific articles that show that taking your tablet with vitamin C (ascorbic acid) lowers TSH really nicely, one of the studies also shows that Vit C increases freeT4 and T3. If you do this you'd want to use pure vitC, not a fizzy version that is buffered with sodium bicarbonate or has other binders that would reduce absorption.
Thanks for being an advocate, to change medicine it's important to make medicine change and not to be too accepting of old dogmas. We all only know so much..even the best doctors and Scientists in the world still don't know everything.
@@meera2531 I will try...
Thank you! Dr has me on that Levothyroxin & nothing changed. When I told him he did same blood test & said it's normal. If the full panel isnt too expensive I plan to be tested. Do you have a link for the natural cure? Thank you!
Thank you so much for that explanation. Finally some insight from someone who can speak on a medical level, but also you didn't address the "not covering issue".
Nailed it... thyroid is complex and lazy docs and lazy tests are hard to combat. Having to fight for the correct test and fight for the best type of treatment is a pain especially when you're fatigue is bad. I started having hypo after a litany of other late stage lyme disease symptoms and boy the battle hasn't stopped just to get tests to prove you're right so you can then fight uphill for treatment... I'm 9 years in and I have to attempt a new doc today to reprove my thyroid is hypo and then hope they believe in and will let me try np thyroid or ndt and not attempt levo cause I already got 99 problems
Ayurveda can cure hypothyroidism..? Ayurveda doctor told be happy don't take pressure.. Take it easy everything.. Thyroid will be normal.. Is it right sir?
Nobody on this earth should be eating gluten. Wheat is the most heavily sprayed crop on earth. The wheat today is definitely not the wheat in biblical times. So inflammatory!!!
I studied horticulture in that i learned that it was not ment for human consumption
I agreee.
i'm so sad to hear this but I know it's true :'(
Thank you so much for this video! It was so informative and educational. I have struggled for years with hypothyroidism and even though my levels have been "normal," I still have the symptoms. Also, I have low iron, I have a calcium deficiency and recently, I started having afib. I asked my gp for a referral to a endocrinologist and he told me there was no need for it. I have an appointment with a new gp at the end of this month and I hope to get that referral.
For many years I went through the same scenario with my GP. Even after much weight gain, significant hair loss, and eyes so dry that I had to change the type of contact lenses that I wore, he still insisted that I had no thyroid disease. Out of extreme frustration I made an appointment with an endocrinologist and received a diagnosis of Hashimoto's disease. He also discovered 3 nodules on my thyroid that he said had most likely been there for years. I'm so sorry that we both trusted the wrong doctors for much too long. My faith in the medical profession has certainly waned over the years.
To those who might be reading this and have been diagnosed with an autoimmune disease like Hashimoto's thyroiditis.....I just want to mention something from a nutritional standpoint. I have a biology degree and a diploma as a master nutrition therapist. Most physicians have received very little or no nutritional training in medical school. Unless they go out of their way to study the nutritional basis of preventing and treating disease, the "tools" in their treatment handbag are going to be either prescription drugs or surgery to treat just about everything. This is not to criticize physicians, but just to state the facts...physicians today don't have time to read all the new research and don't have time to spend with patients to go over this level of information. Plus, they know that many patients simply want a "pill" and don't want to make any diet or lifestyle changes.
Instead of just treating the symptoms, try to find out WHY your body is attacking itself. This is not normal, and it's not usually genetic. It's caused by environmental factors, and patients with Hashimoto's are at risk of developing other autoimmune diseases like multiple sclerosis and rheumatoid arthritis. Often the cause is chronic inflammation because of something in our diets. I have personally witnessed Hashimoto's patients' antibody levels go BACK TO NORMAL after changing their diets. Yes, you can take medication for the rest of your life to manage your symptoms...but why not get to the root of the problem, which will also protect you from secondary diseases that could be caused by the inflammation in your body. I'm passionate about this because I hate to see people ignore warning signs from their body and just cover it up with medication. This could result in more serious problems down the road. Medication will suppress symptoms but it does not address the root cause. You will continually have to increase your dose until your body no longer has any thyroid tissue left to attack.
A wonderful doctor to look into is Dr. Amy Myers. She is in Austin, TX. No, I am not affiliated with her in any way, and no, I am not selling anything or getting paid for mentioning this. Dr. Myers specializes in autoimmune conditions (she herself was diagnosed with Graves disease, which is an OVER active thyroid).
www.amymyersmd.com/2016/03/conventional-medicine-autoimmune/
Dr. Kelly Brogan is another physician who was diagnosed with autoimmune hypothyroidism postpartum and is a great resource for information. kellybroganmd.com/thyroid-dysfunction-and-treatment/
Marnie is right....everyone must do what is right for them. If you are on this journey and you are happy with the path you are taking...then keep on doing it. But I want to make sure people know that there ARE alternatives and you don't necessarily have to take medication for the rest of your life if you are diagnosed with this disease. Listen to your body, seek out practitioners and specialists who dedicate their lives to teaching people how to prevent and treat these specific conditions, and know that there are resources out there to help you.
xoxo
My Green Gypsy hi! Thank you for your post
Thanks I will definitely look into this for myself and my daughter. I totally agree that medication is foolish. Why on Earth would you cover up your body warning signals, that makes zero sense but people have showed that they would rather turn over their health to someone who often have no more idea how to help them than they do. Unfortunately I learned that the hard way.😔
My Green Gypsy thank you 😊
Ive read Anthony William's book on thyroid issues and found it amazing and insightful. He says there s no such thing as auto immune and the body never attacks itself which i find super logical. He says the epstein barr virus is behind it all. Ever since ive started eliminating the foods that feed the virus and implemented the foods and herbs that kill it, I feel so much better.
So grateful that finally someone has showed me the truth and how I can heal. Look his book up and see if it makes sense to you.
As I read your post, I was going to post to you about Dr. Kelly Brogan and you hit it! :)
yes Armour has had some recalls in the past.... so has Synthroid and Levoyxl. Natural Desiccated Thyroid meds like Armour Thyroid and Nature-Throid have changed my life for the better!!!! I am not over stimulated.... my very long list of hypo symptoms are treated! :) a lot of people with a thyroid problem do not properly convert T4 to T3 and need it directly from their meds. it sounds like this dr is at least open to prescribe Natural Desiccated Thyroid meds and I appreciate that.
Cathy-I know your symptoms are treated, but how are your levels?
My Free T3 and Free T4 are now in the range on NDT (they were below the range before getting on Natural Desiccated Thyroid meds). My TSH is suppressed but that is normal with treatment on NDT. also the TSH alone missed my thyroid problem for over 20 years even tho I had a long list of hypo symptoms. if they had run the Free T3 and Free T4 thyroid tests it would have showed that my levels were below normal. i've been on NDT for 15 years. thankfully I have a dr that pays close attention to treatment of my symptoms and i only do blood work once year. if my symptoms weren't treated with NDT then they wouldn't have been hypo symptoms... you know what I mean
+GotJesusCathy That's great news! So glad you feel great! That's all we can hope for, right?
DEFINITELY!!!! :)
Thank you so much for this video, Marnie. I was mis-diagnosed in my mid thirties with hypothyroidism by my ob/gyn when in fact, I had hyperthyroidism (Grave's Disease). From the little research I had done at that time, I knew his diagnosis was incorrect, but he was dismissive and unwilling to listen to me. He was dosing me with increasing levels of synthroid, exacerbating my symptoms. I could have been one of those persons who had a stroke at age 36. Thank God I quickly found another doctor, an endocrinologist, who was one of the most lovely, kind and brilliant doctors I've ever encountered. In my opinion, thyroid disease is sometimes not initially considered when patients present with those "non-specific" symptoms that you and Dr. Lupo talked about. It is critical that each of us takes responsibility to educate ourselves on our bodies and our symptoms, and to stand firm against physicians who are dismissive. The endocrine system is very complex, not to be treated by an ob/gyn or GP. Thank you again, Marnie, this was a wonderfully informative and always timely subject.
How were you misdiagnosed ? I am very skinny and got tested for antibodies which are over 600 indicating hashimotos... were your antibodies checked before u were diagnosed with hypo?
Marnie and Dr. Lupo, thank you so much for this! Dr. Lupo was so generous with his knowledge, I wish he was in my area. I have been treated by my GP for my hypothyroid issues for 10+ years (since my late 20s). I have asked if I should see an endocrinologist and told it wasn't necessary. I am on a very high dose of levothyroxine and have had frequent dosage increases. This is the most education I've ever received in all this time and has encouraged me to seek out an endocrinologist. I always have the concern that I'm not really "sick" enough to see a specialist. But this made me realize I need to take my condition more seriously. Thank you so much for making me a better educated patient!
Yes! Rachel-your comments are exactly why I wanted to do this program with AACE! We need to educate ourselves and be our own best advocates! Good for you and let me know how you do finding a specialist!
Hey Rachel, that is the same with my husband, his thyroid med goes up in mcg every time he goes to the doctor. It has gone from 88, to 100,110,125 in the last 6 months and this has been going on for almost 6 years and I wonder why they didn't suggest an endocrinologist by now. Luckily on our insurance we don't need a referal. Now if I can get my stubborn husband to go to one, I know it would help him tremendously. I hope you can get one with out a referral from your Doctor. Take care and good luck.
Kathy, good luck to you with your husband. They can be so stubborn sometimes :-).
Rachel, what is your dose?
Thank you Marnie, one thing that distinguishes you as a vloger is your willing to serve and help others. Congratulations! You did a Fantastic job, you have the talent!
Very informative video, especially since I have Hashimoto's Disease. I wish the Doc was in my area.
The doctor does not mentioned that gluten is implied in leaky gut syndrome (a confirmed medical condition), implied in all auto immune conditions, so I am surprised he only mentioned celiac disease, so as a nutritional medicine practitioner I would definitely seek elimination of gluten. Also that the adrenal and thyroid are directly related...so the higher the cortisol stress hormone more hypothyroidism. I highly recommend the videos of Dr John Bergman that does an excellent video on their correlation. If oestrogen is too high, this can also directly affect thyroid T4 to T3 conversion. So in other words hypothyroidism (non Hashimoto) can be incorrectly diagnosed when stress levels and/or oestrogen levels need to be normalised and, once corrected, the thyroid can often be normalised. In the UK thyroid problems are massively under diagnosed because they only check TSH and that is too broad 1-4! The reality is any women with a TSH over 3 will be likely to miscarry. Also reverse T3 tells you exactly what is getting absorbed by the cells, and he does not mention that.
So just confirming Zoe......the higher the cortisol stress hormone the worse the hypothyroidism condition/symptoms?
ZOE'S HEALTH.BEAUTY.LIFESTYLE Gluten is fine for 99% of the population, in fact, people who follow the fad of a gluten free diet are less healthy. That's the research.
Do you still stand by this nonsense statement some two years later?
Wheat has been altered genetically!! That’s the wheat/ Gluten that causes the thyroid problem.
Eat Organic and GMO free.
Interesting but I feel 100% better on my NDT than I ever did on Synthroid.....
Me too, and I know there are many, many people just like us. I wonder why doctors want to dismiss the idea of NDT so easily? There are literally hundreds of people I know who have made the switch, but not without a lot of condescending behavior from medical personnel.
I've been through hell and back with my Hashis......I've spent years trying to find some balance and the best thing I've ever done is insist that my doctor at least try me on an NDT.....he doesn't know why it's working but he admits.....something is different! My objection with endocrinologists is that they're not open to alternatives....they shut down the conversation as soon as you mention that Synthroid is not helping......This particular doctor that spoke at least seems open to using T3 augmentation.....which is good.....I do object to his assertion that people feel better because they're "over medicated".....Over medicated people don't feel good.....especially on thyroid medication.....they feel hyper, shaky and have palpitations.....that's not feeling good!
Me too!
My TSH was never out of range, went for almost two years deteriorating until I developed a goiter, then they ran all the tests, t4, t3 was slightly low, tsh still normal, antibodies through the ROOF!!! Gave me synthroid, kept telling me TSH was too low and would drop me down. After a decade of constant fight and now 70 pounds heavier I have found a bioidentical hormone practitioner that is treating me with armour at a dose which basically keeps t4 and t3 in range, but tsh is none existent. Haven't lost weight, but not gaining. Still not normal, but feeling much better. Also take vit d, iron, zinc, selenium, progesterone and dht blocker
Marsha Campbell why not take iodine?
Loved the doctor. You, not so much. Waaaay too distracted while he talked to the point where it was obvious that the good doctor was uncomfortable.
Thank you Marnie, this was a very helpful video, you are a natural at interviewing. Thank you to the lovely dr. For his time.
Thank you so much I have learnt more in this vid than in the last 24yrs of having the condition. I'm in the UK now and the docs here do not inform us about very much at all. I was diagnosed 1995 in the US when I lived there had my first son and I was left with this debilitating condition for 2yrs, I couldn't get off the couch, before finally being diagnosed/treated. Pretty horrible time, prescribed Thyroxine and things improved dramatically, I had every symptom, most improved apart from GI symptoms, I came back home to UK my still fatigued all the time, doc tested me for coeliacs which was negative, although still recommended a Gluten Free diet it seemed to help me, especially for psoriasis, until recently when I've gained tonnes of weight, I had menorrhagia for 7yrs which I have just found out is all symptomatic of this condition. So plunged into early full on menopause after having a procedure to stop menorrhagia. I had been blissfully unaware of the full extent of this condition until now researching online. Trying to get answers from a trustworthy source is so important, so thanks again for this vid it is much appreciated. I wrote my story here to hopefully let others know you can live well with this for many years, I had another child too and all was well until recently the big M had to go mess up the hormones. All the best to everyone with thyroid issues.
Terrific video!! Especially for those of us with hypothyroidism.. great job Marnie
Sooooooo informative!!! Thank you for sharing!!!😃His explanation about gluten free diet and whether or not it will benefit and the migraine linking to thyroid symptoms were so in depth.
I don't have a thyroid issue, but I stayed tuned because you were amazing ! Great interview, packed full of info for people.
I have hypothyroidism ( mom has it, sister has it) and it has only been recently that I have realized the significance of having it. I know that may sound dumb, but my GP has always treated me (diagnosed 6 years ago) and its only been since watching Marnie that I started to recognize that I know NOTHING about my hypothyroidism. There are so many things my doctor has never spoken to me about and I'm honestly feeling a bit overwhelmed. I have a lot of research to do. Thank you so much Marnie.
Thank You so Much for this Very informative Video. !
You did a world of good for so many people by sitting down and talking to this doctor. You’re awesome. He’s awesome. Thanks very much!
Thank you for watching!
This was very interesting. I was diagnosed with hypothyroidism in my 20's, a few months after my twins were born. The doctors told me that The preeclampsia I had may have "killed" my thyroid. I am now 45 and take 250mcg/day of Levothyroxin for over 20 years now. I have also developed Rheumatoid arthritis by my late 20's. I wonder if any of this is goes together? I have never been told I needed to see an endocrinologist. May I should ask. Lol. I still always feel tired.
Dawn Denton Just read your comment, preclampsia may be caused from vit B1 (thiamine) deficiency. It helps w sleep to but not inclusive.
Ahhh! I loved this! Having just been diagnosed, this was so helpful!
Just when I thought there might be a scientific breakthrough like finding a cause so there would be effective treatment- but no
Thanks for this. I sent a link to my doctor. I have a lot of the symptoms but have always tested in the "normal' range. I suffer from chronic migraine. I learned a lot from this interview.
Very interesting Marnie! Thanks for sharing this video, I learned a lot. Take care, Cathy
You are a natural at interviewing. Great information and interesting to watch!
Excellent interview. Thank you so much for doing this. I have not been diagnosed with hypo, but I was told I have a low functioning thyroid. I have been on Armour for 2 years and I have had great success so far. Ever since I went gluten free in July 2015 and prescribed that medication, my labs have been normal. But, I will say that I was one of those that did not feel better with just the medication alone, though. I did research and had to make the hard decision to cut gluten. I can't really explain it, but I just did not feel like myself. I was sluggish, had horrible headaches, and just felt like I was living in a bubble. Once I cut the gluten out completely (I do not have cheat days), I felt so much better.
Thank you Thank you!! What a great source of information! I appreciate you sharing.
Why don’t drs test the whole panel compared to just TSH. Don’t we need the rest of the panel rested annually to check what is going on?
I was diagnosed with Hashimoto's thyroiditis a few years ago, and coincidentally was seeing my Endocrine specialist this morning. She told me that she was going to test me for Celiac disease, which surprised me because I really didn't understand the reasoning for it until watching this video. You asked, and the doctor answered questions that I didn't even know that I had. Thank you both for sharing!
Also it seems mostly European descent have this issue, my mother has thyroid issues and she’s from Finland, definitely seems GENETIC 🧬
Thank you Marnie and Dr. Lupo. This video is incredibly educational. Wish Dr. Lupo could be my Doctor. He is amazing! I learned a lot too.
Thanks a bunch to you for this Marnie. I have been suffering from celiac disease and Hashimoto's thyroid disease since last two years and his advice was really helpful. I thank Dr Lupo and you deep from my heart.
Seems like a very good Endo. I've had mostly bad luck with Endos. I'm on my fourth one and she seems to be fairly good. I get the impression most of them deal with diabetes more than thyroid. So finding one that deals with thyroid is helpful. One way might be asking the pharmacy who prescribes T3 medication. That would likely let you know they are a doctor that looks into more than just TSH. Going off of processed sugars, Dairy, and Gluten seemed to help me quite a bit. But always make sure you are getting enough calories. After I cut out those foods I didn't realize I wasn't getting enough calories. Which really hurt my progress. Fixing the gut is important. A high percentage of people with Hashis have low vitamin D. It's likely related.
The best presentation I have seen so far on Hashimotos disease. Both you and Dr. Lupo were eloquent, articulate and professional, a breath of fresh air.
Marnie please convey my appreciation to Dr. Lupo and also thanks to you for this very informative video. There is always something new to learn and we need to be our own advocates when it comes to our healthcare. Good for you and again, many thanks for giving us this information!
Marnie you missed your calling! lol :) You did a fantastic job interviewing. I watched the whole thing and learned about something that doesn't even effect me. So nice of the Dr. to take his time to answer your questions. It was so interesting and again you did a great job. ☺~Holly
Thanks Holly! It felt a little awkward since I didn't have a real microphone and since no one filming was nice enough to mention that I needed to fix my hair!!!
Marnie Goldberg You looked beautiful as always!
Marnie Goldberg Don't be silly. You, and your hair, look lovely as always. Thanks for doing this for us!
Marnie Goldberg Hi Marnie..just came across your channel...pls help me understand Hashimoto more..My 27yrs old daughter has Graves/hashimoto disease and feels so sick and cries alot because she just wants to feel normal..shes gone to her endocrinologist But her levels are Normal yet she's so sick.what advice can you give me I feel helpless....
What about the role of selenium in hashimotos?
thank you so much Marnie, so educational, I forwarded this to my daughter who has hashimoto and celiac disease thanks again ❤
TSH alone is NOT the best test; one needs to test for t4, t3, rt3 AND TSH
While this doesn't affect me personally, the interview was facinating! Thanks for sharing!
I'm hypothyroid also. Wonderful information. Thank you so much!
Very helpful interview for me, Marnie as a thyroid patient with celiac disease. Thanks!
Thankyou for explaining it so simply ,l was n HRT for about 20 years ,my Docter took me off it and almost immediately, l was diagnosed with under active Thyroid ,l now pay privately for Armour Thyroid, as it is not available on the NHS in the U K, ,still not feeling 100 per cent , follow a strict diet ,and l am quite active ,considering my age 76 , Thankyou again for explaining it in layman's terms
My migranes stopped after thyroid medication. And started to feel and get better after quitting glutein and going full vegan.
Here’s a question for you:
Why don’t endocrinologists educate themselves about neuroendocrine cancer?
It’s no longer rare, and it’s the cancer with the fastest increasing incidence-five-fold increase over three decades.
How do you know they’re not?
I'm so glad my doctor didn't dismiss my fatigue according to my TSH. I would probably be dead right now. I have no thyroid due to thyroid cancer, and dosing by TSH was disastrous for me. My doctor was open to NDT and trying whatever to help me. The symptoms don't lie and I find it super frustrating when endocrinologists dismiss it as something besides the thyroid. If you take out a major organ (or it's diseased), obviously it's going to be tricky trying to replace it. I don't need a medical degree to figure that out. In any case, hope those on synthroid continue to feel ok on it - I couldn't take it, literally made me sicker than I ever thought possible. Each patient is different.
Marnie, Thank you so much for doing this. I have learned so much!!
This video is fantastic! I am getting tested for Hashimoto's next week because I still have symptoms in spite of being on levothyroxine and normal TSH lab results. This is very informative! Thank you both!
Thank you for this topic. Awesome interview. Very informative Marnie. You did an excellent job on this video. Well done 👍🏼. Stay fabulous. Hugs 🤗 and Have a great and productive week
I keep track of my migraines and found that I believe them to be hormonal, although I did not get migraines until I started having other symptoms and was finally diagnosed with Hashi/Thryoiditis.
Thanks Marnie and Dr. Lupo! This was so helpful! I was diagnosed with hasimotos last year and I have been having a difficult time finding conclusive answers to all my questions. I have started seeing an endocrinologist but he doesn't go into a lot of detail. Dr. Lupo's explanations were very helpful, particularly about gluten.
Hey, can you give me details on my questions, i also have hashimoto
Annette615 hey mind me
Annette615 i want to ask you something
Marnie, thank you so much for this! I was not diagnosed with Hashimoto's until years after having my children, and Dr. Lupo raised an interesting point about the connection with thyroid imbalances and pregnancy. I had BP issues, preeclampsia with my first, and my son was diagnosed with Autism. My second born has some learning disabilities as well. I know I was having some thyroid issues prior to having children, but the Dr's I went to only tested one thyroid hormone and claimed I was "Normal" I know you can't go back in time, but boy I wish I could! Thank you again for this informative discussion. I go see my Dr. next month for a recheck, still not feeling great.
Cheers to Dr. Lupo for discussing these issues. This was informative and interesting. My husband sees an endocrinologist in Atlanta for his diabetes. His last appt. was about 2 weeks ago and his doctor was late for the appt. that morning. He was flying in from Austin on a very early flight but was delayed because of weather. He was probably at this conference.
I have recently been diagnosed with Hashimotos and this video was WONDERFUL and so helpful! Thank you! I have found an awesome endocrinologist here in San Antonio. This doctor would be so great to talk with!
Christen Larko Who treats you? I'm in S A too :-)
He was fabulous! Would have loved for you to pick his brain on hyperthyroidism as well. My tsh has been low for years which would coincide with weight loss, severe sweating, terrible intolerance to heat! Constant tachycardia (racing heart) and tremors…the list goes on. A couple of years ago, when my tsh ascended into the normal range, I was actually have symptoms of hypo. My skin was dry, hair falling out, weight gain with no appetite and little food, excessive sleepiness, being cold. Recently the tsh has been sporadically low, but now my t3 is high and tsh is in the normal range (JUST). Resting heart rate is in the 140s and much harder to bring down. I have been having these issues for years. I also have several nodules (2 over 2.5cm and several smaller ones) which have never been biopsied. I’m under the care of an internist physician due to my autoimmune conditions (not thyroid related), but have never seen and endocrinologist. It all gets very frustrating when I know that the thyroid could be causing many of my issues! Please do an interview on hyperthyroid at some stage- if possible:) wonderful interview and you look amazing:) thank you. Much love from New Zealand xox
Wow!! This was so helpful Marnie!! What a fantastic educator! Wish I lived in Sarasota now. Haha My thyroid is messed up!
Wow this guy really has eyes which are an actual version of how eyes are in anime
This was amazing. Thanks. So glad I found you.
I have read that thyroid patients should avoid goitrogens?
Soy foods: Tofu, tempeh, edamame, etc.
Certain vegetables: Cabbage, broccoli, kale, cauliflower, spinach, etc.
Fruits and starchy plants: Sweet potatoes, cassava, peaches, strawberries, etc.
Nuts and seeds: Millet, pine nuts, peanuts, etc.
Soy I agree should be limited unless fermented (Tempeh supposedly OK but I personally don't like it)... but the other ones are more debatable. Many folks are realizing those shouldn't be left out of the diet...maybe not over doing them. Cooking them also reduces the goitrogens quite a bit. This book is a good one which talks to each food and has recipes: www.amazon.com/Essential-Thyroid-Cookbook-Nourishing-Hypothyroidism/dp/0991170504/ref=sr_1_4?keywords=hashimotos+cookbook&qid=1551495214&s=gateway&sr=8-4
thank you Marnie and Dr. Lupo, as someone with Hashimoto's myself I did really enjoy watching, very educational
thank you for making this video. it was very well done and very easy to listen to and learn from. Nice job!
I have Hashimoto's and read today that the thyroid is a store for toxins including the mercury from amalgams. 😟 What next?! How can I help that? Removing amalgam is harmful.
I have Hashimotos and I remembered how I felt when the doctor told me it will be very hard for me to conceive but, all to the glory of GOD that after using DR RORPOPOR HERBAL on RUclips natural infective herbal medication am a mother of four kids......🍀🍀🍀
After my thyroid removal in 2008 my real struggle started. Medication change after medication change. When my levels got so low I was hospitalized and could hardly walk I saw a different endo specialist. At that point I was on 475mcg's a day and should have been zooming around! Turns out my body would not process ANY of the synthetic thyroid meds I had been on. Now on Nature Thyroid daily and feel like I have my life back! This was an excellent video Marine!!!
What is nature thyroid?
Such an informative video. I learned so much more than I have ever been told. I Really liked hearing about the gluten free diet. I actually think it is beneficial to cut back on gluten if not all together omitting from the diet.
When the nurse called me and told me I had hypothyroidism. She didn't even explain what it was. Just told me that she would send in meds and that I need to be checked in 6 weeks. So I had to go researching it for myself. I'm happy that your videos are out here. I'm scared. I think I have nodules because.. I have had a bad cough with no explanation for it for years. The last year it has been worse. I wish they would have taken their time to explain it to me. My cholesterol is high and my liver enzymes are elevated. There was no explanation for that either. I find out on here that that could be because of the hypothyroidism. I'm going to search for a endocrinologist. I deserve better care than that
Check out the Facebook group Hashimoto's 411. It's a bit hardcore and leans toward functional medicine, but it's got a good amount of information and support.
@@astroblast9352 thank you very much. I will check it out
@@tinal8398 don't feel pressure to follow their guidelines and conventional doctors and endocrinologists will not likely agree with much of it. But I think there is merit. Usually conventional doctors only treat the hypothyroidism and not the cause. Just realize it is a bit alternative and there are many opinions. I find hashimoto's and hypothyroidism is not well managed by doctors...especially if people are still having issues.
@@astroblast9352 I feel like I need to see a endocrinologist.. The meds I'm on are making me very very sick
@@tinal8398 I hope that goes well. They can be a bit tough to deal with for this, but it's probably a good idea. Hopefully you can find one that specializes in thyroid treatment. Are you feeling hyper symptoms like tremors, anxiety, heat intolerance, diarrhea, etc? That would be a sign of too much medication. What medications are you on? They should test your TSH, FT4 and FT3...though, many will only test TSH. I'd ask for at the least FT4...especially if you are feeling hyper. I wish you luck!!
Excellent video! Thank you so much for doing this. I thought I knew I lot about my hypothyroidism but always happy to learn more.
I got hypothyroidism after my hysterectomy maybe a link?
great video, Marnie, thank you to you and Dr. Lupo for this very informative video.
Why is it so difficult to lose weight when one has hashimoto thyroiditis?
Thank you for this really informative Q & A Marnie and Dr. Lupo. I have Hashimotos and you addressed some of my unanswered questions. I hope there will be more of these in the future.
WOW, great and informative! Thanks Marnie and your great guest!
Thanks for a fabulous information about this disease! It was very helpful!
Visit Doctor okouromi channel on youTube, his Herbs freed my niece who was diagnosed with hypothyroidism and hashimotos within 4 weeks ❤…….❤❤❤
What a great doctor, so up to date and clearly not living in a box!
Marnie - thank you for the education. It is only because of you that I asked my doctor to test my levels of free T4 and T3. I have been on synthroid for more than 35 years, but no doctor had ever tested beyond the usual THS test which always came back within the normal range. My doctor called me today and told me that my T3 was very low and he was going to prescribe Cytomel (or liothyronine). I always watch and enjoy you on You Tube , but never dreamed that I would get such vital medical information!
Yay!! I am beyond thrilled that I could be helpful! I'm on the same drug too!
why didn't he mention iodine even once?
Stuff I didnr know about Hashimotos
Thank you for the informative video, Marnie. It has answered many questions for me. 💐
Wow! Just wow! I could not figure out why I was following a younger than me beauty RUclipsr, other than I love beauty products too. But this! This is a god send, Marnie! Was so surprised to discover you and your son have these issues and am so thankful for all this information and al the work you have done on these videos. Thank you! Thank you! Thank you!
Marnie you did a great job!!
He was excellent!!!
I need a doctor in the Houston,Texas area.
I wish he was my endocrinologist, I have Hypothyroid, Since my husband's Passing, almost 3 years ago, I have lost weight my primary Dr. Says I have had Hypo since 14 years ago maybe more. . I'm in my late 60's.
I have Hypothyroidism since my partner passed away too you think it’s the shock?
@@colettetuckey8949 It's a Possibility. But Stress is hard on the Thyroid.
when people want to continue eating gluten...like you...interviews like this seem to tell you "its ok" your face said it all (i saw your relief when he "agreed" with you) but really, he wasnt agreeing that cutting out gluten wasnt absolutely necessary...what he said is "its inconclusive" meaning we don't know yet. he is a scientist/doctor after all. but whether or not you tolerate gluten is not guesswork or personal preference. there is science behind it. you can be tested. not a test for celiac, but actual advanced bloodwork looking for antibodies to the proteins found in wheat. (and eggs, and rice, and so on) these can be done by labs like Cyrex labs. if you are low thryoid, you really owe it to yourself to get a panel of bloodwork done from a lab like Cyrex testing for antibodies to common foods. if you have Hashimotos you really really should get this done. why? antibodies in your blood mean that your body is fighting off proteins from food as if they are viruses or foreign invaders. hashimotos is symptom of an overactive immune system. you body is targeting thyroid tissue. continue eating foods and your immune system is constantly flared up. if you are going to blog about low thyroid, you really ought to be up on the most current info, not advocating guesswork or personal preference. i too felt ok eating gluten. until i got tested, cut it out, and felt better than i ever thought i could.
Care to address the current problem with NDTs ? I was first on Synthyroid and felt like crap. Switch to Armour felt great for 1 year then they changed the formula it something. I had to switch to Naturethroid and then the same thing g happened and I switched to NP thyroid now there ya a problem with that now too. We need doctors to advocate for us to theses pharmaceutical companies to fix this problem!!!
Looove this! Super informative! Great job! Xo
I saw another endocrinologist at Dr. Lupi's practice when I was diagnosed with Hashi's a couple years back, also being hypothyroidism for 25+ years. That physician added liothyroxine to my existing regiment of levothyroxine. I asked how to treat or address the Hashi's and was told there is nothing to do to address the auto immune.
My symptoms are getting worse.
I wish I had seen Dr. Lupi rather than his associate. If you go to his practice, see him! This video was so informative and helpful.
Great info. Thank you.
Sorry for a couple of typing errors
wonderful content, questions and answers ,
thank you very much.
how good see an expert giving sensible, clear advice ,
if you can inform yourself as much as possible ,
this reduces your anxiety ,
by being involved in your treatment and decisions you are half way to healing
I had Subclinical Hyperthyroidism and Graves Disease and Hypoparathyroidism and I had a total thyroidectomy. Two weeks after surgery the neuropathy in my hands and feet was drastically reduced.
Couldn't love this video more! 4 years after my Hashimoto's diagnosis and I'm still learning so much! Thank you Marnie and Dr. Lupo!
Hi i too have hashimoto what medications did you have ?
This was amazingly informative thank you
God I wish this was my doctor
I have Hypo & Hashi's. My TSH is NOW below 1.0 & I feel better than when it was high & out of range. Will I most likely EVER FEEL NORMAL. Auto immune is still in red zone. In hind sight this is my third bout with this disease in 35 or more years- but only THIS TIME WAS IT DIAGNOSED & do a lot of people who do everything right still get symptoms some days but not others. I only take 75 mcg of. Synthyroid plus the vitamin & minerals that were recommended D, B's, selenium + lots of brand NEW FOR ME , meds for high Chloresterol
Thank you for this video. I really learned a lot!
I am impressed. Being looking for an endochronloist. I am in Canada with a broken leg. Any way I can get insomuch with?
Watch on the Rupaul channel: Michelle Visage Reveals How Her Breast Implants Led to Hashimoto’s Disease. It’s a short video.
Hi Marnie!!! Great interview, with Dr. Lupo...very informative...I've been doing research, because, my Endro was not doing anything or advising me of what to do regarding of still feeling very fatigue..his answer was to put me on Metaformin bc of borderline Diabetes...got sick on meds, not taking them..I have no diabetes, therefore, not necessary, of which my oncologist & primary dr. agree... but, earlier you had mentioned that B12 was recommended, light bulb went off, I did take & have been taking B12 so far okay, but I still need more care...so at this point since I cannot find a good Endro, I'm looking into vitamins. I'm still taking Lev.../Synthroid...2K units of Vit. D3...but need something more, and unfortunately, I may be having to self medicate myself due to lack of care, that I know I really need...Marnie, I am grateful for this video, as I'm sure others are too. Hugs :D
Try Chef AJ's Ultimate Weight Loss Diet (see her youtube Episode 36, Weight Loss Wednesday-What I Eat in a Day). This way of eating (Eat low density, healthy greens, etc as first meals in the day) cured my migraines, PAD, high LDL cholesterol. Also her condiment hints (Benson's Table Tasty, etc) are delicious!