Hi There, Sorry to hear about your DX. Its a long journey with DISH but the first thing you have to do is accept it. It took me about a year before I accepted that my life was going to change. You will learn to make adjustments, you will learn what help's you through the day but you must always try and remain positive. thx Gary
I am furious! So furious! I went to a reumatologist and he told me that I have dish and it's probably cause I am smoking, he also told that my back is like a 50 years old person and that I should do yoga and he send me away... I am 40, I work as a dog trainer for the air force and I live in Greece and I am mad. But I am greatful for your video, ty very much
Hi There. Try not to be angry, I know you feel you have been "singled" out and being quite young it would make most people angry but negative energy will make your sysmptoms worse. Be angry will make your muscles tight and that restricts your movement which you really need to keep this disease at bay. Look after yourself, eat well, keep your stress down and try and exercise/ stretch every day and you will learn to live with this disease. regards Gary
@@dishdiseasesimplified4728 i really liked your videos. And it helped me calm myself for a reason. Also i start to follow some of your tips and find them helpful. Ty very much, you dont know me but you helped me. Be strong
Excellent video Gary. I am in the process of being worked up for DISH. Most health care providers are not aware or framiliar with this condition. Even myself in spite of being in healthcare for 30+ years. I thank you for the video and hope you are doing well.
Thanks Ken, my physio said she thinks I am just as flexible as I was 5 years ago and that I actually look younger! must be all of that collagen I'm consuming! I am thinking about a new updated video soon.
Thank you Gary. Im from th US and I've been dealing with DISH since I've 35, I'm 48 now. I have the real severe case. I think it came from my many years of skateboarding and crashing on the vert ramp and falling from 10 ft high. But thank you for what your doing. Keep on keeping on. Keep moving brother.
Hi Brad, sorry to hear that you have been suffering from such a young age. I do think that trauma to the body somehow "ignites" DISH. I probably had it ticking away in my body until I came off a motorbike at 100mph! from that point on my body started to hurt and after many investigations they found DISH. Its a shit disease but at least we're alive! Yep keep moving Bruv!
@@garypul1245 Hey one more thing. I promoted your RUclips channel on a Facebook Dish page. Called "Forestiers/DISH support." So far they all love you and thank you so much. And so do I. I watched most of your post. Im actually going to try your Supplements that you suggested. I've tried everything. Even medical Cannabis pills and gummies. They do work for the pain but I don't always like the head high. If it's legal in the UK it does work. But when you come off it it feels like you got thrown off a building and suddenly hit the ground. But again thank. And thank for your time and response.
What are they doing for you? I'm having a very rough time atm with Dish, can barely breathe and struggling to move, the pain in rib area is horrendous. I'm scared what this is doing to me.
I'm 43 and suffered with DISH since I was about 35 years old. My GP surgery in Selby Yorkshire, and my local NHS Hospital Trust (York) have been appalling and if little to no help at all. Some days I can hardly move, and I also find I get really tired. I can't imagine how bad life will be as I approach/enter my 50s.
Hi Kyle, 43 is quite young to be dx with DISH, the positive from this is that you can now start to combat it as much as possible. Keep moving, learn some yoga and do it every day, find a good physiotherapist who knows about myofascial release. Take anti inflammatories in moderation but use the if you have to, to enable you to keep moving. You will find a way to cope and there will be dark days no doubt but DISH is a slow porgressive disease and the more you intervene now the better the prognosis for the future. Good luck in you journey.
@@georgiareed7743 - never been offered any form of treatment specific to the condition. Had to explore things like Amitryptaline myself but that was mainly for mood and lack of ability to sleep (due to back pain).
@@dishdiseasesimplified4728 I have been taking genacol the pain relief one here in Canada over the counter natural , look it up in 5 days it takes down inflammation , here cost is about 25-30 dollars , Walmart sells it along with pharmacies
Thanks so much first person I have come across explaining this from A personal perspective. Appreciate it. :) don’t be nervous you did really well came across with perfect info that I was looking for :)
Thanks for sharing. I find that staying active is the best thing for me. I had a very good paying office job but found it unbearable to sit all day. I've made my hobby my full time job now which allows/forces me to be more active. I start out slow in the morning but get more active as I loosen up. Then when I stop in the evening I get stiff and sore and muscle cramps. I was just recently diagnosed so I haven't had a chance to have my follow up with the rheumatologist yet. Just trying to learn what helps so I am looking forward to hearing more from your channel.
Hi Becki, sorry to hear about your diagnosis. In summary you cannot cure or halt DISH but there is a lot you can do to keep yourself in good shape and in fact lessen the long term impact of DISH. You need to check that your BMI is within limits and loose weight if necessary, if you have high blood pressure or Diabetes you need to treat these conditions and aim to lower your Cholesterol levels. You need to keep moving everyday, go for walks and ideally join a Yoga class or take up swimming. You need to make sure you have a diet low in Carbs, keep away from soda drinks, fast food, white and beige food stuffs, sweets and coloured foods are bad. Eat un-processed foods such as salad, chicken, fish, pulses, red meat, keep away from white flour. Use supplements such as Vitamin K2 vitamin D3 and especially magnesium. Have a shake with fresh fruit, made from coconut milk, banana, red cherries and high protein Quark and yogurt with pro biotics. Look after your gut, eat fermented foods and supplement with pro biotics. Finally if you are in a lot of pain speak to your doctor but you can use paracetamol, naproxen and codiene to help with pain and also ask for muscle relaxants if your muscles feel achey or tired. Hope this helps x
@@garypul1245 thanks so much for your reply Gary it's really appreciated ❤️ luckily I'm already doing a lot of this to manage my other conditions but I'm making a start on the others today. Got the collagen and k2 supplements arriving tomorrow 😊 thanks again for the reply, already meeting so many lovely people online who also suffer with DISH. Hope you're enjoying the sunshine and hope you have a lovely weekend ❤️
You need to make it very clear that you are giving your personal opinions about DISH . Some things you say are widely accepted. Others are definitely your own personal ideas. Well done for trying to get DISH better understood. You need to find out how to insert images not hold up images. Remember others will be having very different experiences to your own.
Having you share your experiences with this disorder at a personal level, is FAR more helpful to me than a stoic monologue from a doctor. Thank You.
Hi Steve, unfortunately the doctors just do not know how to deal with DISH so we're basically left to fend for ourselves! Thanks for the feedback.
Thankyou very much . This has made me understand alot more. Once again thanks
Thank you for your comments
Another Dishy hi Gary I was diagnosed last week do glad to have found this.
Hi There, Sorry to hear about your DX. Its a long journey with DISH but the first thing you have to do is accept it. It took me about a year before I accepted that my life was going to change. You will learn to make adjustments, you will learn what help's you through the day but you must always try and remain positive. thx Gary
This is great Gary. Thank you for taking the time to do this. I plan to share with my loved ones. 💜
I am furious! So furious! I went to a reumatologist and he told me that I have dish and it's probably cause I am smoking, he also told that my back is like a 50 years old person and that I should do yoga and he send me away... I am 40, I work as a dog trainer for the air force and I live in Greece and I am mad. But I am greatful for your video, ty very much
Hi There. Try not to be angry, I know you feel you have been "singled" out and being quite young it would make most people angry but negative energy will make your sysmptoms worse. Be angry will make your muscles tight and that restricts your movement which you really need to keep this disease at bay. Look after yourself, eat well, keep your stress down and try and exercise/ stretch every day and you will learn to live with this disease. regards Gary
@@dishdiseasesimplified4728 i really liked your videos. And it helped me calm myself for a reason. Also i start to follow some of your tips and find them helpful. Ty very much, you dont know me but you helped me. Be strong
I didn’t know smoking can cause it??
@@georgiareed7743 i don't know if it does. The stupid doctor said that.
@@sotoslee5437 oh. I see. I’ve never seen research proving smoking causes it
Excellent video Gary. I am in the process of being worked up for DISH. Most health care providers are not aware or framiliar with this condition. Even myself in spite of being in healthcare for 30+ years.
I thank you for the video and hope you are doing well.
Thanks Ken, my physio said she thinks I am just as flexible as I was 5 years ago and that I actually look younger! must be all of that collagen I'm consuming! I am thinking about a new updated video soon.
Thank you Gary. Im from th US and I've been dealing with DISH since I've 35, I'm 48 now. I have the real severe case. I think it came from my many years of skateboarding and crashing on the vert ramp and falling from 10 ft high.
But thank you for what your doing. Keep on keeping on. Keep moving brother.
Hi Brad, sorry to hear that you have been suffering from such a young age. I do think that trauma to the body somehow "ignites" DISH. I probably had it ticking away in my body until I came off a motorbike at 100mph! from that point on my body started to hurt and after many investigations they found DISH. Its a shit disease but at least we're alive! Yep keep moving Bruv!
@@garypul1245 Hey one more thing. I promoted your RUclips channel on a Facebook Dish page. Called "Forestiers/DISH support." So far they all love you and thank you so much. And so do I. I watched most of your post. Im actually going to try your Supplements that you suggested. I've tried everything. Even medical Cannabis pills and gummies. They do work for the pain but I don't always like the head high. If it's legal in the UK it does work. But when you come off it it feels like you got thrown off a building and suddenly hit the ground. But again thank. And thank for your time and response.
What are they doing for you? I'm having a very rough time atm with Dish, can barely breathe and struggling to move, the pain in rib area is horrendous. I'm scared what this is doing to me.
I'm 43 and suffered with DISH since I was about 35 years old.
My GP surgery in Selby Yorkshire, and my local NHS Hospital Trust (York) have been appalling and if little to no help at all.
Some days I can hardly move, and I also find I get really tired.
I can't imagine how bad life will be as I approach/enter my 50s.
Hi Kyle, 43 is quite young to be dx with DISH, the positive from this is that you can now start to combat it as much as possible. Keep moving, learn some yoga and do it every day, find a good physiotherapist who knows about myofascial release. Take anti inflammatories in moderation but use the if you have to, to enable you to keep moving. You will find a way to cope and there will be dark days no doubt but DISH is a slow porgressive disease and the more you intervene now the better the prognosis for the future. Good luck in you journey.
Did you ever take accutane? And does DISH show up on your X-rays?
@@georgiareed7743 - never been offered any form of treatment specific to the condition. Had to explore things like Amitryptaline myself but that was mainly for mood and lack of ability to sleep (due to back pain).
@@dishdiseasesimplified4728 I have been taking genacol the pain relief one here in Canada over the counter natural , look it up in 5 days it takes down inflammation , here cost is about 25-30 dollars , Walmart sells it along with pharmacies
@@pennypetrovic3682 do you have DISH? I can't imagine it would do much for DISH given the nature of the structural damage it causes.
Thank you for this video, and bringing attention to this disease.
Thanks for this - you are so calm and matter of fact. - will look forward to your other videos.
Thank you Betty, its nice to know someone want's more!
Thanks so much first person I have come across explaining this from
A personal perspective. Appreciate it. :) don’t be nervous you did really well came across with perfect info that I was looking for :)
Thank you so much!
@@dishdiseasesimplified4728 no thank you for caring and for educating us it’s much appreciated x
Thank for sharing
🙏
Thank you too
Thanks for sharing. I find that staying active is the best thing for me. I had a very good paying office job but found it unbearable to sit all day. I've made my hobby my full time job now which allows/forces me to be more active. I start out slow in the morning but get more active as I loosen up. Then when I stop in the evening I get stiff and sore and muscle cramps. I was just recently diagnosed so I haven't had a chance to have my follow up with the rheumatologist yet. Just trying to learn what helps so I am looking forward to hearing more from your channel.
Hopefully my future videos will be helpful for you. Soory to hear about your dx, but together we can make our lives more bearable. Thanks
Good work Gary l am surprised it has taken so long for somebody to get on youtube to get attention to this condition, thank you.
Thanks Scott.
Thanks for this. Diagnosed today and feel a bit adrift
Hi Becki, sorry to hear about your diagnosis. In summary you cannot cure or halt DISH but there is a lot you can do to keep yourself in good shape and in fact lessen the long term impact of DISH. You need to check that your BMI is within limits and loose weight if necessary, if you have high blood pressure or Diabetes you need to treat these conditions and aim to lower your Cholesterol levels. You need to keep moving everyday, go for walks and ideally join a Yoga class or take up swimming. You need to make sure you have a diet low in Carbs, keep away from soda drinks, fast food, white and beige food stuffs, sweets and coloured foods are bad. Eat un-processed foods such as salad, chicken, fish, pulses, red meat, keep away from white flour. Use supplements such as Vitamin K2 vitamin D3 and especially magnesium. Have a shake with fresh fruit, made from coconut milk, banana, red cherries and high protein Quark and yogurt with pro biotics. Look after your gut, eat fermented foods and supplement with pro biotics. Finally if you are in a lot of pain speak to your doctor but you can use paracetamol, naproxen and codiene to help with pain and also ask for muscle relaxants if your muscles feel achey or tired. Hope this helps x
@@garypul1245 thanks so much for your reply Gary it's really appreciated ❤️ luckily I'm already doing a lot of this to manage my other conditions but I'm making a start on the others today. Got the collagen and k2 supplements arriving tomorrow 😊 thanks again for the reply, already meeting so many lovely people online who also suffer with DISH. Hope you're enjoying the sunshine and hope you have a lovely weekend ❤️
You need to make it very clear that you are giving your personal opinions about DISH . Some things you say are widely accepted. Others are definitely your own personal ideas.
Well done for trying to get DISH better understood.
You need to find out how to insert images not hold up images.
Remember others will be having very different experiences to your own.
Hi Ann, this is my first video attempt and I appreciate your feedback. thank you.
He always makes it clear that he is not a doctor and that it’s his own personal opinion 👍 thanks Gary you are awesome 👏