HEARING ISSUES / Hyperacusis & Tonic Tensor Tympani Syndrome / my personal experience
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- Опубликовано: 27 ноя 2023
- Hyperacusis wiki: en.wikipedia.org/wiki/Hyperac...
Tonic Tensor Tympani Syndrome wiki: en.wikipedia.org/wiki/Tonic_t...
Tensor Tympani muscle wiki: en.wikipedia.org/wiki/Tensor_...
PS: RUclips sometimes hides certain comments, I don't know why. So if you shared a personal story here but I didn't reply, it's most definitely because I get a notification of a comment but when looking for that comment it's simply not there. Very annoying, especially for subjects like this where people might open up just to feel ignored. 
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I have been living with tennitus for 12 years. It was so difficult at First, but the body is amazing. I have adjusted to it, I have calmed down and its just like a family member.... Unbelievable. Just hang in there and learn your new way of being. It truly is you to get a lot better with LESS ANXIETY. Let yourself cry through it
Hi Carol, do you have middle ear myoclonus spasms like thumping or ringing?
@@onur1378 yes.
@CarolMeeks thanks for getting back to me. Do you mind if I ask how long you had the thumps/pulsing and what are your triggers? Mine generally burps and yawns. Do you still get the thumps and how long the episodes are also how do you cope with it? I get really panicky when thumps start. Thanks in advance for your help.
@@onur1378 get you a good chiropractor and a good massage therapist. You need to keep your muscles relaxed and I got closer to God and to godly people. I had to start doing all things to show my self love. Your life must change and of course it will never be the same again, but it improves. It will one day know longer bother you. But now, you must get to the point where you have adjusted so that you can figure out what triggers you and make changes.
It was almost a year before, things began calming down. This is a mind, body, and Spirit process. I can tell you that it will be alright though.
A very good description of those of us who have experienced this condition. I had this exact same thing you describe...aka tts syndrome along with Hyperacusis and soft sound sensitivity. 5 years of using every possible sound therapy cured me. Retraining your brain to accept sounds again is like learning to walk again . Keep sound exposure to normal environmental sounds . Use nature sounds to sleep with and music at low volume daily. Don't use ear buds but over the ear headphones. You will slowly re adapt to sounds. Yes...you can beat this and return to normalcy but...its a lot if work and discomfort. Covering up sound will exacerbate it more.
Hey Bries, good luck with that fucking shit!
It’s been 14yrs I have the same condition and 17yrs with tinnitus. I had very bad moments with all of this but now I think that anxiety to get worse symptoms is driving us to focus and create more pain. I also noticed how « focus » can change the deal: sometimes I focus on tinnitus = no more TTS, sometimes i focus on TTS = no more tinnitus. Last summer I had problems with my eyes and had a surgery = no more TTS and tinnitus! When my eyes were healed, tinnitus came back. This shit is growing with the energy you put in it. I know it is difficult to switch your mind on something else but not impossible. Something that worked for me was classical music. This was important for me to get pleasure back through my ears. I used to play guitar and rock music. Even if I still like rock music, this was something that triggered all my issues so it was difficult to experience positive things with my ears with that music. So maybe this is important to find something outside music for you.
Last thing: in all these years with many tinnitus or TTS « crisis », i have always been better with time.
Good luck, I know how difficult it is.
It's a really really weird condition. I wish it would stop. Trying out magnesium right now.
@@briesmodular recently I developed a kind of workaround of the symptoms: I contract facial muscles, zygomatics,and tympani tensor muscle at the same time. This is weird… and it looks like I squint eyes exaggeratedly. When I do this, I hear a kind of different TTS contraction and it stop for some times… (from few minutes to almost all the day). This is very helping for me. It requires to be able to contract tympani muscle, I can do it and i discovered that not everyone is able to do it. This could be something to try.
@@sebastientimmerman5552I'm making all kinds of awkward faces here at the moment trying to discover if I can in some way contract my TT voluntarily. I don't think I can but I'm getting a lot better at looking like Dirty Harry.
Your comment is much where I am with it all. I Even had 1 surgery that didn't change the most alarming symptome. So strange how this many years and chats in how many Dr.s apts. and not one of them gave me a second thought. I watch the movie Horton hears a who. My latest learn after 11 years is they don't see blood flow near my ears. Im breathing again and promise myself to get up and go see my grandson when ever I can. Going to have a adult kid bubble party..Its spring!! I have to get on..I have vestibular juck and profound hearing loss in my affected ear...ear pplugs...lol
Bless you. A very painful situation. I don't have your problems but I do suffer with hearing issues, and other serious health issues, so I appreciate your candour and empathise with you. Sorry, no magical cure from me. The path to wellbeing is a journey, and you've been making steps (re: house move). I get a bit of that whoosh and thumping when my sinuses block, and they do maybe 4 out of 7 days averaged across the year. Also, my tinnitus is relentless. Keep creating (if you compete and compare, you live in defeat and despair; enjoy what you do as others including me, have!), because it helps us manage the crazy times we live in.
Thank you philip/dilip. It is a painful situation indeed. I love to make music and I love to cook, unfortunately music and cutlery are the worst. And I do think that it's worth something to share this with people, so even though it's a bit scary, there's nothing to be ashamed of when dealing with any health issues. Too often people close themselves off, as I do regularly as well. It's a choice I made long ago: doing the youtuber thing like I'm having the time of my life all the time, or doing it real and honest. Of course I chose honesty. Especially in these crazy times it's so important. Blocked sinuses are the worst in combination with hearing issues. Hope you have a good day nevertheless.
im so with youu here...11 years and now its happening in the other too..I had SCDS surgery in 2019. That did help with the hyperacusis ..I sit and sound just like you when i try to explain to people with the craziest looks. Im exhausted even talking about it. Im glad you have a channel. Ive almost started on but my brain turns to mush. I would need help engineering .Thanks for the tips about your vids!
Hey! It's terribly annoying and utmost disruptive. I don't think people who don't suffer from this can imagine what it's like to have loud sounds inside your head 24/7, how could they. I get that regular folk don't take it all too seriously, but doctors should. Of course they see a lot of hypochondriacs as well so it can't be easy. I hope you find some relief from this at some point.
I am sorry to hear this….very annoying I am sure. I wish I had more to offer in the way of relief. I really appreciate your channel, and I certainly wish you all the best. Cheers to you.
PS., for what it’s worth you bring FAR more value than those other channels you mentioned. My opinion of course, but I think you should know that.
Thank you so much. I very much appreciate that opinion!
I'm very impressed that you're into such noisy stuff despite all of this.
I read up on the links and it turns out I can control my tensor tympani - I can create that rumbling at will. It sounds extremely annoying to have that pop up at every slight sound going above a threshold.
I've personally gotten great relief when commuting by using airpods with noise cancelling, but I think you're way ahead of me in looking at such solutions.
Your tensor tympani fx were on point btw.
Hey vidret. I'm not really into noisy stuff, I don't think so, it sorta just happens with some modules. This also depends on ones definition of noisy of course. The thumping in my ears is extremely annoying. I've found it to be more with acoustic sources and a bit less with synthesized or even recorded sounds (althoug the sounds in this particular video trigger the heck out of my ears so it depends). It's certainly getting worse so I use a lot of de-essers to cut out annoying frequencies. I haven't really tried noise cancelling headphones as they are poor to react to sudden sounds, I can't imagine they would help for those tiny cutlery sounds. Instead I now just wear regular earplugs again. The hearing aid white noise masking did not work at all. I asked for personalized earplugs in the hearing center but they refused since hearing protection is actually the worst thing to do in the long term when dealing with hyperacusis, tinitus and ttts. It's all a bit shit.
@@briesmodular That's a dilemma for sure, I'm sorry to hear it dude.
I don't have nearly enough experience or knowledge to point you in a direction, but I hope you find something that improves this condition. It sounds incredibly frustrating :/
I was diagnosed with problems with my tensor tympani muscle two and a half years ago. My primary symptom is a low frequency rumbling in my right ear which sometimes is also in my left ear. I also feel pressure in my ears when the rumbling is bad.
The ENT thought it was related to TMJ issues. I clench and grind my teeth at night. I've worn over the counter night guards for years but had my dentist make me a prescription one about a year ago. While the night guard protects my teeth, it hasn't had an appreciable affect on my TTTS.
I occasionally have good days where the rumbling is absent or not as prominent. I haven't figured out why I have good days and bad.
The only thing I've figured out for certain is that if I sit up in bed at night (watching RUclips videos on my iPad), my TTTS will be worse the next day. Something about having my head in that position with the pressure from the pillows on the back of my head worsens the problem. Taking a nap can also aggravate the condition.
If I figure out more about my condition, I'll try to post it here in hopes that it may help you or someone else.
Best of luck to you, and thank you for sharing your story. I periodically search TTTS here on RUclips, and haven't found very much, so it's refreshing to see someone share their experiences with this condition.
Hi Leslie. Thank you for being so open and informative about this as well. I've been sleeping in a sitting position for years (a bit less nowadays), so that might be very very useful information. I do notice that a lot of my anxiety related issues are a bit better after a good nights rest (enough hours and actually lying down), which isn't surprising but maintaining good sleep is a challenge all in itself.
Hi Bries, I've been in shock for an hour after hearing your story. I can imagine some bits of it, because a long time ago I got an ear inflammation that raised my hearing threshold and made my eardrum sound like a broken snaredrum and getting a high pitched noise/hiss. Indeed, listening to high pitched sounds was painful. It's crazy, but what helped for me is eating a lot of baked eggs, leaving the yolk (dooier/Jaune d'œuf) intact. Use organic eggs so they're safe to eat and make sure they're hot enough but still fluid. I read it somewhere while trying a solution and there's 0 guarantee it works, but it worked for me. Suggestion is powerful too. The hiss went away in a couple of months, and now it's just there. I can filter it out and only hear it when I pay attention to it. I never took any medication (there wasn't any). Logic suggests you're now avoiding sound in general, keeping your environment as silent as possible. I've been thinking about noise cancellation headphones, but I am convinced in the end it will make things worse both socially and mentally. I am not an expert on these matters, but I think that exposure is your way out - if the doctor is out of options. Make sure it's not an chronic inflammation that can be treated.
Expose yourself to 1 minute of ~86 dB of transients, noise, tones, etc. once a day or as many seconds as you can handle. Make a reference track for it so you can track progress. Then build it up gradually, so your thresholds could go down. It's a bit like fixing a bug in a system. If this works, increase the volume a bit. The modular will be a great help because it will keep your mind off of things during this terrible minutes. Silencing your World can only lead to raised thresholds and indeed, a few years from now you won't be able to bear the sound of your bloodstream. Solutions are nearly always in the exact opposite direction of what you're trying to avoid. Wishing you all the best and sure, publish that video workflow. It's very important to keep doing the stuff you love most.
If all hope is lost, you can also try to listen to healing frquencies 174 and 285 Hz. Tune a VCO to it and make something that sounds nice for a long time. It doesn't have to be loud. You could make a rootnote drone and make music with it. Maybe you can sleep with it. They are supposed to relief pain, and repair stuff. Finally, nothing will work if you don't believe it will.
Get well,
Robert
Cinematic Lab
Hey Robert. Thank you so much for the heartfelt and personal reply. I'm not sure if exposure is going to help honestly, since every time I do the things I love the most (making music and preparing dinner) I'm exposed to it, heck waking up and opening a door, taking a mug out of the cupboard, etc... already triggers the thumping in my ear. I try not to wear ear protection but sometimes I try to give myself some relief from the constant annoyance. HEaring protection is indeed the worst thing to resort to for these issues, but if you're standing in a fire all day long jumping in the pool every once in a while should be the sane thing to do. I do realise intent is a big part of healing stuff like this, so I might give it a try, though 86dB is probably pushing it a lot. I've always monitored at relatively low levels, because I know how important hearing is for my life. It sucks though, because all the care I took for my hearing seems to have had the opposite effect as well. I keep pushing through the excruciation sensation though, literally 24/7, there's not a lot of alternatives. I'm trying to cut back on all animal products as well, 15 years vegatarian but more and more wannabe vegan, so a lot of eggs isn't immediately 'on the table' (see what I did there?!). I'm surprised that people watching the video are that impressed, when I really thought I should've made the thumping simulation louder, because it is.
@@briesmodular I am aware that commenting 'on the side' is very easy from where I am. Please remain confident someone, somewhere has a solution and indeed, noise cancelling headphones could be a pool while you're putting out the fire. Best wishes!
@@CinematicLaboratory I don't think commenting is easy (de beste stuurlui staan aan wal is soms van toepassing, maar niet altijd) - I appreciate all the input I can get. I think finding my personal median of all the things that could help is what might just improve the situation. Finding out what works for who and why is informative and useful... and what doesn't work for you or me might work for someone else who is searching the web far and wide to find out what the damn marching band inside their head is caused by. There's not a lot of information on this topic, research isn't really getting anywhere, so stirring up this issue is good. I believe strongly in being honest and sharing instead of keeping a straight face and pretending everything is right. In my experience, no progress can come from 'pretending everything is ok'.
your video quaity is good. love your videos . I think I have Tensor Tympani in my right ear. comes and goes. Not as serious as yours tho. i hope you can get it fixed or find a way to minimise it's imact on your life. Thanks so much for sharing and for your videos Bries.
Thank you Nick. It's so nice to read some comments about the production quality stuff as well. It's rarely talked about anyway.
Thanks for sharing, must be extremely unpleasant. I only have some tinnitus, so can’t contribute. But i wish you the best in finding solace. Great channel, thanks!
Hey Henric. I do have some 'regular' tinitus as well, but it's been with me for ages and it's not at a level that I can't cope with it, fortunately. It took three band practices without hearing protection (back in 2000) to get permanent hearing damage. Luckily I never failed to wear hearing protection ever since. It's a bit ironic that by protecting my hearing I (in a way) contributed to developing these issues, but who knows, there's so little research going on in this field. I'd hope to help change the awareness about all of it. My voice isn't that loud yet, but maybe some day. I do have some ideas for hearing aids that maybe could help, it's just finding people that are willing to try and make them. Thank you for commenting, I appreciate it.
such a mystery with hearing. seems sensitive ears are good for your music, but not for your health. take care and here's hoping in more research and results @@briesmodular
I started sleeping with earplugs. That makes my tinnitus more noticeably when waking up in the morning, however when I then remove the earplugs it gets pushed into the background and becomes less annoying during the rest of the day.
OMG! Yesss mine sounds exactly like that on my left ear it’s ttts, static tinnitus and pulsating tinnitus.
Hi Bries - Thanks for sharing and being vulnerable here. I have hypersensitivity in my left ear, and occasionally get the thumping sound you describe so well (blood pumping). It sounds like yours is worse than mine. I also have chronic, strong tinnitus, some hearing loss in the right ear, and a condition known as Diplacusis (thankfully not to the extreme). Diplacusis is when your ears do not agree on pitch, and for some people it is absolutely horrible. In my case, my left ear hears pitches a few cents sharp compared to the right. As you can probably imagine, it makes some experiences with headphones a bit confusing. In my life as a composer, I have had to change the way I approach orchestration because of this condition.
Thank you for sharing your story here as well. For the longest time I thought my issue would be something like Diplacusis, but the symptoms never quite completely lined up with what I'm experiencing. I can't imagine what that must be like trying to manage that as a composer.
Thanks for sharing. I have the same thumping sound - it makes so much sense now that you describe it. It can get quite annoying. At its worst it can become almost continuous (like at a concert) where the muscle starts to freak out.
For me that the brain is anticipating sound is the most helpful clue. An analogy could be when I’m exhausted, if someone asks me for help, I can react with a “no!” even before they ask. The solution in the analogy is that I need rest… and I’ve found that to be true with the thumping in my ears. It can be related to other stresses in my life, but generally if I’ve been thinking very hard or I’ve been hyper vigilant about something, the thumping is more likely to appear. So I often need to give my brain/ears a break from needing to pay attention.
I hope you find something that works for you, and I would like to hear more about your discoveries and experience along the way. Thanks for sharing.
Hey Trevor. Thank you for sharing your experience as well. I'm 'happy' I can reach some people that have similar issues because it's hard to find people that have this and are knowledgable enough about sound to try and find a solution that makes sense. And what you said makes a lot of sense. What do you do when you give your ears a break from having to pay attention? I've been so focused on sound for ages it's hard to turn it off. I suppose you just mean doing something relaxing and not related to music at all or do you do or listen to something specific? This is probably the type of exposure that could work better than just listening to triggers. If it gets too much sometimes I just play some noise (white or pink noise with a modulated filter) but that's mostly to drown out the rest while trying to work on a manual or something.
@@briesmodular It helps me to get out in nature - a walk on the beach, in a park or on a hike if I have the time. Sounds that aren’t human-generated seem to be more relaxing. I think there’s something in the repetitiveness of human noises that the mind starts trying to anticipate them and shut them out if my system’s had too much stimulation. Lowering my overall noise stimulation level helps too. I’ll wear noise-cancelling headphones when I’m out shopping, for example. And I’ve ended up gravitating towards materials in my house that have lower amplitudes and frequencies when struck (things like wood, plastic and iron instead of stainless steel and ceramics, for example)
In my opinion the production quality is way less important than the content. I always enjoy your presentations and never once thought about the sharpness of the video or the sound quality. It really sucks that you have to endure these hearing problems though. I have profound deafness and can hear nothing above 3k even with the amazing hearing aids that I totally rely on now. The tinnitus that I also suffer almost feel like a cruel irony. But my love for listening to music and making music keeps me going. I hope you find strength in knowing how much we appreciate your work.
Thank you David! Hearing loss above 3k sounds like a ... well very muffled experience probably. I do agree about the quality of content being more important than the production quality. That being said I just HAD to buy a studio light and a softbox setup because my dark walls literally soak up every watt of light here. Apart from that the audio quality probably matters a lot more so I try my best getting that right so it's not too annoying. It's pretty easy for me to catch those annoying sibilant frequenties :)
Hi, thank you so much for this video! As others descibed in the comments, I can control this muscle at will. In the past I did this if there is a very loud noise which I wanted to dampen. But since one year I am suffering from hearing only distorted sound on my left ear when certain noises like falling dishes occur. In lound conversations I am no longer able to hear something. Currenty, I am in a medical recreation center. They are telling us that stress can trigger such things. I recognizes now that my tensor tympani muscle is contracting by itself quite often and produces sometimes that drum sound you described. I could imagine that there is a connection between that muscle and my jaw joint face muscles. Often I feel pain in this muscles which are right in front of the ear. I will try to relax those muscles an see if it helps.
Hi Brie, I have this as well. My hyperacusis is about 70db loudness threshold, I get TTTS thumps just like you (had for a few years but recently happening more) and I have low-level tinnitus. The worst symptom I have now since June this year is reactive tinnitus/dysacusis. My right ear is like a broken speaker. When I hear certain sounds I also hear a high-pitched whistle/beep... it is horrible. I think it came from an acoustic shock from my car radio (hyperacusis and dysacusis started one week after this). I have dysfunctional eustachian tubes and a locked jaw on right side.
Apparently hyperacusis can improve with time and avoiding acoustic trauma. TTTS can improve with relaxation and reducing stress....as well as potential surgery if it becomes chronic. Also if you have issues with you jaw, neck or eustachian tubes etc. treating these might also help.
Hey! Thank you for commenting. I have an underlying anxiety disorder which is related to sound. Noise pollution has been a big cause of anxiety the last 12 years. This was before the hyperacusis and TTTS even started. Managing anxiety and stress doesn't get any easier. My eustachian tubes are working properly but I have issues with my neck that are troubling me and causing more and more headaches, so that's something I need to adress at some point. I'm not sure about the surgery, it doesn't seem like it always works.
@@briesmodular Yes I think addressing your neck is definitely worth a try. Problems with the neck can lead to a lot of symptoms including tinnitus, hyperacusis and headaches... maybe a concussion expert might be of use. They are very specialised in terms of their knowledge of the cervical neck anatomy, jaw, ears, skull and all the nerves etc. It's a very interconnected area. Anxiety and stress add to this tension for sure. So treating the physical might counteract the mental. Best of luck.
Thanks for sharing and sorry to hear that! I had a similarly annoying, but (probably) unrelated hearing issue for years: loud popping sounds and sensations during breathing. Every single inhalation or exhalation would create 1 to 3 'pops', usually in the left ear, but sometimes the right as well. A bit like your ears popping in an airplane, but more intense and continuously. The Eustachian tube was probably involved somehow, but I never managed to get a diagnosis. The worst moment was when a specialist doctor suggested that I was making it all up, in order to obtain a sleeping pill prescription.
Eventually, it went away and has been for some years now. I'm hoping your condition will also resolve itself with time. -Joran
Hey Joran. Thank you so much for sharing your story here. I'm hoping people searching for answers or support will get something out of the comments under the video. The popping sometimes gets as intense as 'airplane popping', but fortunately it's usually a bit more muffled. The physical sensation (ie feeling) is very similar though. I've had my Eustachian tubes checked, as well as my eardrum and possible inflammation. All of which the ENT people could rule out as causing the issues. After that my general practitioner concluded that it's probably psychosomatic which is of course no help at all and also just based on very superficial testing. He didn't go as far as suggesting I was doing it to get sleeping pills, fortunately. I would've gotten proper enfuriated for sure. I already actively try to manage my anxiety levels with the help of a healthcare professional anyway. Fun fact (that I checked with a psychiatrist): there's no such thing as 'sleeping pills' btw, it's all just anti-depressants.
Judging from your, and other people's stories here I get the feeling that most people with weird hearing issues end up not getting real answers nor help. It's both what I suspected and feared. It's all very annoying to say the least. Time will tell.
Hi,friend. I have a friend who has the same ear issue you mentioned. Every time she inhales, there will be some pops and this almost makes she mentally break down. We live in China, and she told me that there’s no one had the same problem and even the most experienced doctors can’t tell what’s going on. When I saw your comment, I feel so excited and immediately shared to my friend. Could you please share some tips for her for recovery? Or just let it be?
@@capybarabarabarabar Unfortunately, I still have no idea what it was and how it got resolved. In my case, time was the solution.
@@joranalogue thank you for your reply and I will tell my friend to relax 🫶
Hey brother, I'm dealing with absolutely the same thing. It started 10 years ago, I think from severe allergies, and me violently scratching my eustachian tube by scratching my ear and throat simultaneously, and i think I overpulled those muscles and damaged the ear drum a bit. I hear absolutely the same thing every time I talk, scratch my head or any sharp sound. I have it worse in the left ear, but generally in both.. A sound of wooshing, bubbling, crackling, papery tactile sensation, combined with the thumping of the ear drum, and even sometimes clicking from the bones. Generally I listen very carefully as I was into techno and trance production and that was my dream, and I listen to all the details in every track....Also its accompanied by sensation of fullness and sometimes too much air in the middle ear, as I think my eustachian tubes are quite open. However I don't get the hypersensetivity to sound, just those reaction that cause reactive tinitus. Its very frustrating, but i hear alright. Just minor hearing loss in the left ear, but nothing crazy. I'm trying to get back into music as I love doing it, and I though I'm suffering regardless or not .. Actually when I listen to my monitors, and music in general, these sounds are covered, and I'm into the creative process. I have noticed that when I wake up in the morning it's the worst... Also dehydration has a big role.. No fkn ENT specialist ever mentioned this to me, but after listening and studying the anatomy of the ear, I self diagnosed myself with TTS, Patulous eustachian tube and MEM... Most of those losers are useless... I hope I find someone good who can prescribe some sort of treatment, muscle relaxant or exercises that might help.... I miss making music, and I'm getting back to it, Fuk it....I have a lot to offer to the world, but It's an internal battle. I always think of Beethoven, Tiger Woods, and people like this for inspiration. Bukowski once said: Find what you love and let it kill you... All professional Music engineers and musicians are dealing with hearing loss, so I think we have to focus on t he work itself and the creation afterwards... We are just the instrument to to manifest the Ideas from the spirit realm. We are just a tool to be burned down to the ground. I try to think like this, but still, It's a battle. Keep me posted If you find anything that helps..
Hey, thanks for your message. I've tried some prescription medication over the past 2 years. It didn't help me at all but it's worth mentioning since it is known to help some people. Amitriptyline can help with anything related to tinitus, pregabaline could help as well. These come with their own risks and downsides: addiction, mental fatigue, loss of memory and even early onset dementia, to name a few. Talk to a doctor about these medications if you're curious.
Believe it or not...music therapy along with pink noise are very helpful in reestablishing ones sound tolerances from hyperacusis along with tts. I went to an audiologist who specializes in hyperacusis. They are quite helpful in helping one understand this condition. A proactive approach was the only way I beat this junk in 5 years. I constantly used environmental sounds with use of headphones ...examples are rain..ocean waves...and then bird sounds which were quite difficult. Exposing your ears to the most offensive sounds at your own level of volume and time span will benefit you.
@@lastcall170 Hey! Thank you for your comments. I have a few honest questions, not trying to be a smartass, just trying to understand because I really want to find some relief. I fail to understand how I can cope with this using exposure: from the moment I do something, anything, my ears are getting triggered (and so is my anxiety about it). Taking a mug out of a cupboard, eating something, slicing a tomato (however gentle), picking up a pen to write something down, typing on a keyboard is even triggering my ears right now. In my mind I'm exposed all the time, from the moment I wake up till I go to sleep. It doesn't matter the volume, my ears start pumping as soon as I engage in anything other than nothing. At this point doing anything is quite challenging, certainly interacting with other humans. How can I expose myself even more - I genuinely don't see how that works. In terms of noise desensitization, I tried the hearing aids with the help of a specialized audiologist and maybe it's because of autism or whatever but the physical sensation of something in or on my ears all the time is giving me even more anxiety. I understand the concept of exposure and desensitization, I just fail to understand how it works in practice.
@@briesmodular Hello. Fellow sufferer here. I understand it through chronic pain science. If it is related to what I think then it is very much related to why people experience chronic pain. Our brain starts to get into loop and misinterprets the same thing over and over again (but wrong and painful). So the key would be brain retraining not so much retraining the ears.. I'm shooting in the dark here as well as I'm suffering with the same thing months now but from what I've learned from beating chronic pain, it makes sense that hyperacusis would also be associated with the brain and chronic pain psychology... It would be tremendously associated with fear. Idk man, maybe it helps but if you haven't learned about pain science I think this too could help tremendously dealing with this *hit psychologically. This is the basis I try to keep myself sane at least. (I see parallels that chronic pain sufferers avoid doing things related to their pain if it is "actually" very safe to do so; at least that's how I beat nasty fibromyalgia and I'm personally planning to beat this sunofabit*h hyperacusis or whatever it is as well:)
@@MariiChiHey thanks for your reaction. I'm indeed convinced that all of this has something to do with an overactive nervous system, which is causing anxiety, pain and other weird issues like the hearing trouble. I generally am surrounded by all the things that trigger my TTTS all day: there's no way to avoid life - although I'm trying out switching to dishes made from bamboo and stuff like that to make everything a bit less overwhelming non-stop. I've been wearing hearing protection in one ear for months when I'm going to the supermarket or doing loud gardening (sometimes all day). I haven't noticed any negative effects from this which is surprising actually.
Hi. It's me again. I think I might have come across something .. I think you might have Patulous eustachian tube, which creates a lot of positive abnormal pressure in your inner ear. From there we get all the rest of the stuff. I discovered something that for the first time in my life helped. Type: Austin Goh - How to fix Patulous Eustachian Tube Dysfunction naturally! And : How to get rid of Misophonia the Hatred of Sound - Naturally!
Do this as he tells you, the second time, right before going to bed. Keep at it, and do it with intensity. Of course start slow and feel your inner ear, but you will realize you can push much more than you ever thought. I hope you find this helpful and Run for your life !
Ha, the one and only Austin Goh has all these great remedies. Even though they seem silly they sometimes actually work (not always though and certainly not for everything). I tried a few of his methods to get rid of my ear issues when they first started acting up but not that particular one. Even though I had my Eustachian tubes checked (there didn't seem to be any issues with it) I'll give it a go. Thanks for messaging!
@@briesmodular yeah. Amazing guy! Try it for longer period of time. Keep doing it.
Hi Bries, being much older than you I can say that I have experienced many hearing problems, some of which have unfortunately left permanent marks.
As for the "rumbling", I started having it as a child, after a terrible ear infection, but fortunately it was not a permanent phenomenon. I have noticed that it comes back from time to time when I expose my ears to the wind, which is why when the wind is too strong, I put some cotton wool in my ears to prevent this discomfort. 80% of the time it is successful. It seems, according to my doctor, that the wind can facilitate the sensitization of the eardrum. I have also experienced noise sensitivity but its source for me was times of stress. I remember that sometimes the slightest noise made me jump from my chair, but over the years I have learned to manage stress very simply and the phenomenon has almost completely disappeared, in its acoustic manifestation. I sincerely hope that you can find your way to mitigate the problem and make it bearable.
Hey Fabio. Thank you for sharing your story. It seems clear that a lot of these hearing issues are stress related or at least get worse when stress is involved. It's partly because of this that it scares me so much, since I've been trying to manage stress and anxiety with the help of healthcare professionals long before the hearing issues started. I've yet to find a way to deal with it.
How long did it take for tour rumbling sound to pass?
Feel for you. I have a constant vibrating rumble sound in my right ear following an ear infection. Dont know if it is tinnitus or TTS, and whether it will pass or not. Hope we both get better!
It's been years (very noticeable since 2020) so honestly my hopes aren't high but I wouldn't mind being rid of this. Maybe for your it heals when the ear infection has had its time to wear off. Let's hope so!
@@briesmodular Have you looked into the possibilities of surgery? There are certain specialists that will cut in the Tensor Tympani to reduce its sensitivity, but i don't know how good the prognosis is for actual improvement.
Hi, Bries. I’m from mainland China. I suffered this condition since I was 16, now I’m 24. The symptoms are very annoying and hard to describe, I know that wholeheartedly. There’s not much information about TTTS in our country so I start to search it on ytb. I definitely went through numerous heartbroken and severely depressed days especially when I was just a teenager girl.
Here’s some information might help you through my 7 years experience:
1. It doesn’t hurt our ears, which means it doesn’t cause hearing lose. My hearing test always being good these years.
2. It really become worse when I feel depressed and anxious, and according to a science paper, Middle ear muscle function is affected by the serotonergic system, which means that there is a correlation between emotional state and middle ear muscle contraction. There is central regulation of the threshold of the tensor tympani reflex.
3. When we suffer from hyperacusis, I know that the least we want to do is go out and endure the noisy of the world. High pitch sounds drives me crazy. Sounds like children screams, car honks can easily trigger my ear and immediately a rumbling sound appears. But stay in our room is definitely not helpful to hyperacusis. Try to step out our room, it’s very stressful at first, but I swear things will go better if you try.😂 trust me! Plz! From 7 years of suffering!
English is not my first language so I edited this comment very hard and slowly. The last trick I wanna share is that we cannot control what’s going on our ears but we can control how we react to it. For a quite long time, I was very very miserable, I felt so pissed and stressed every time it was triggered. It almost ruined my normal life. I was diagnosed with anxiety and depression bcs of that😢 but recently I try to be nice to my ears, every time I feel uncomfortable, I try to tell myself these words: honey, you went through a lot, and your ears love you, they are just love you so much that they over reacted. it’s neither your fault or your ears fault❤ we can still hear the world right? 🎉
@@capybarabarabarabar Hey! No worries I understand your English just fine! Thank you for you story and your nice and gentle words. The thing about the TTTS for me happens with almost every little sound,making dinner, cleaning, talking, even a wisper can be too much sometimes... which means I can't possibly escape it, even if I tried. I do go out every day to pick up groceries, go to the dentist, ... regular people stuff. The thumping is relentless and constant. They say exposure can help, but it doesn't seem to in my case. It doesn't hurt but it's nerve-wrecking nonetheless.
I hope you can keep dealing with it in your own way. Whatever works is good. Take care!
@@briesmodular yes, I understand what exactly you’re undergoing. Every little sounds, I know, I am going through it now, not just the high pitch sounds. You’re very brave to continually go out to keep a good life…🥹❤️ many times, I can’t do that… my heart goes for you, you are not alone🤲🤲
Hey man sorry youre dealing with this. Do you have TMJ or TMD? I find when I massage my jaw muscles (properly, which is hard to do), it really helps. Massage your masseter, temporals, etc, make sure your posture is good and youre not clenching your jaw a ton. OR just massage the jaw every day or so. That can really help.
Hey! I don't know if I have TMJ or TMD. Going to another doctor after a few bad experiences seems to be a bit of a hurdle. It's important to rule out a few possible causes that could be physical in nature (some very harmful, others treatable) but that's not something I can do myself. I'll try out the massaging, somehow I feel it might actually help. There's always been a lot of tension in my jaw, neck and shoulders. Thanks for caring!
Can you do an updated video how your doing please has it gotten any better? I’ve read people have gotten better with TTTs and Hyperacusis.
I unfortunately have Static tinnitus, Palatous Myoclonus, Hyperacusis and TTTs because it sounds like a vibration especially with planes/water shower sounds and nobody would understand it. Before it sounded a lot like a butterfly flapping its wings 🦋 but now it sound like what you have under simulation sounds. This was all cause from Right ear infection/inflammation.
Hey do you have crackling sounds too?
Keep trying magnesium, distraction and relaxation I know it’s hard but I have to do that no other choice - praying for healing for all of us🙏
Hey! The issue still persists. I have noticed that being tired from doing gardening and therefore sleeping better does help a little bit, but that's to be expected with an issue that is stress related.
I found your video because I'm hopelessly searching about this topic. I have the same exact problem in my left ear for last 10 months. For each high pitch noise I get this and also when I talk, when I chew or even when I scratch my head! I feel it more when I'm in a quitter place (I can't feel it that much when I'm in a place with background noise like when I'm driving). It is excruciating, here in US, there is a surgery that they cut the tympani muscle but not sure about the success rate! I hate this situation because I cannot even talk to people anymore, this vibration noise makes me very angry which definitely affects my relationships as well! I tried EVERYTHING you imagine but nothing has worked! I might just go with the surgery even though doctors say it may have crazy side effects and not that much of a success rate!
I'm very sorry to hear that you're also dealing with this. I've read about that surgery and how it's not really clear if it does actually help. Who's willing to take that risk. I think more research towards the exact cause of this (and I'm not talking about the symptoms but rather what sounds trigger it and why) so a more precise hearing aid or earplug can be manufactured. Does it happen for you when listening to recorded music or sounds as much as when you hear real sounds?
@@briesmodularI just added more details to my initial response. When I use my laptop for my meetings, that is the worse. When people talk over Microsoft Teams, my ear goes crazy! In those situations I put an Airpod in my left ear and turn on the "background sound" "dark noise" on my iPhone! It basically just masks the noises coming to my ear and mask the vibration itself so I do not notice it as much! Is there anything that helped you cope with this situation?
@@RRRRR-yh5cd Oh yes definitely phone and laptop speakers are the worst, worse than sounds in real life. Good headphones or studio monitors seem to be better than in real life. Haven't found any relief from this apart from using earplugs, which I wouldn't encourage as they make matters worse in the long run. After almost 4 years of this I have to wear them to be able to stand having my girlfriend over (it's so much worse when someone else makes the sounds).
I have the condition. The only thing that made a difference is magnesium citrate. It think it reduces stress and has a knock on effect for your tensor muscle. I am gojng to try ginkgo biloba and vinpocetine supplements. They increase blood flow, this helps the muscles.
From what I have found, TTTS could be physiological, psychological or neurological in nature or some combination of those. That makes a sizeable battle feild to attack... but making noticeable changes is subtle art.
If there is damage to nerves or muscles, vitamin b12 and the ones I mentioned before can help. Stress can happen in ways you may be unaware of and takes time and diligence to find and eliminate. Be more Zen?
Maybe your brain is not processing some of the sounds properly or your reactions to the environment. Be more different?
Mute buttons for everyone!!!
I have magnesium-citrate that I sometimes take. Let's try making it a daily habit. Thanks for the suggestions. It is a hard thing to deal with indeed. Being more zen is a life-long challenge.
@briesmodular which ear plugs have you tried? Can you name some brands or functions which are useful? There is one on the market by Soundbrenner, its just a passive attenuator with a slider on each plug, 7 - 25db attenuation. They are expensive for what they offer, plus Im looking for more features
I have TTTS and mild hyperacusis.
My hyperacusis threshold was lower before but it has become better now. I got hyperacusis 2017 from a fire alarm at work.
I got TTTS may 2021. I suffered from sharp and dull ache, burning sensations of level of pain around 10/10
Now 2023 my pain level is like 4/10. I think TTTS is highly a vascular issue for many.
The stuff you do in your video activates my TTTS.
The more one thinks about the issue the worse it gets.
Usually if you treat the hyperacusis / tinnitus it is said that the ttts symptoms can improve.
I have tried magnesium. It did not help.
What can help me is massaging the area above my ears. Like if you feel the tender points above your ear, try massaging it. It usually diverts my brain to feel some pain of that area.
I also feel getting involved in activities that are new and very important (like a new job) something that gives you some benefit in life. Keeping so busy one does not need to think about it.
I have tried some waterfall sounds with bird chirpint of extremely high quality keeping it on 24/7 in my home. It calmed my nerves and improved my ttts.
But i always feel it is there. My ears are not as clear as they used to be.
I would suggest trying to get rid of anhedonia if it is an issue. Try to heal dopamine receptors from any overdone habits. See if it works
What helped me go from 10/10 ttts to 4/10 was probably just time and acceptance. The more I try to fight or think, oh god why do I have this, do id deserve this, what can I do to trear it” it usually makes it worse.
Thank you for this reaction. It's 'nice' to read a similar story. I try to relax and focus on something else, unfortunately the things that give me most joy and relaxation are also the things that trigger the TTTS the most (making sounds/music and cooking). I find it very hard to ignore because, at least in my experience, the extra noises in my head are very loud and intrusive. I can't go anywhere without flinching from loud sounds (supermarkets are the worst, or places where people eat). By moving to a house with a bigger outdoor area I will hopefully be able to spend more time outdoors in sun, rain or cold. Hopefully it will help reset my nervous system or at least bring it down to manageable levels.
@@briesmodularyeah I was also very active in music. And now its like. Once in a while i feel better and the moment I try to get into music again.. it gets worse.
But I believe it can get better.
I spoke to several ents and audiologists. I think I have met close to 10 ents. They are useless in general, but I was prescribed cinnarizine for my vertigo that resulted from my acoustic shock from the burglar alarm
I was actually locked inside my office building by accident a friday afternoon. I was new at work (was my first week) i didn’t have the authority to shut it off. It went off just next to my ears.
Luckily I have not gotten tinnitus yet. But some say TTTS is a form of tinnitus.
cinnarizine removed my vertigo and decreased the dull and sharp pain in my ears (or maybe it was time) i am not sure.
I got extremely delighted seeing you uploaded this video. I think it can help many.
The important thing is to remember that TTTS does not hurt our ears even if it feels that way.
@@rashedsyed9402 I'm really amazed how many people have reached out in the comments with their stories or just for support. I was very reluctant to actually make this video public, but I'm glad I did. Thank you again for being one of them.
Apparently ENT specialists look at the clinical aspect of it, the things they can measure and see. I wonder how many people end up having some kind of growth in their head but just end up home being brushed off with a nasal spray.
Anyway... I do have light vertigo associated with the TTTS. I don't feel very safe on ladders anymore and I often have to regain my balance when I move my head to swiftly. It's something that worries me as well but it must be related to the hearing stuff. I'll ask my mental healthcare professional about the Cinnarizine, he's as puzzled as I am about the TTTS, but at least he's involved enough to try to help. We tried managing the symptoms with medication for a while as a last resort (amitryptiline in very high doses, which made my brain a little bit demented) but to no avail. I don't have any inflammation or allergies though, that much the ENT people ruled out.
I realised too late that it's very important NOT to mention any psychological issues (like anxiety disorder) to certain doctors or they will simply stop taking any symptom seriously. It should be important though to be able to mention any comorbidities.
@@rashedsyed9402 Sounds terribly btw about that alarm. I've had my fire alarm go off (for no reason) a few times the past few years. I get that those things are loud but damn, they should be a little less trigger happy. I imagine an alarm in an office building is much louder still. It's a total onslaught.
@@briesmodular waiting times take forever in Sweden to even get an appointment with an ENT
Stimulant medication - this was a happy accident finding this out. I'm not saying you are, but when I was diagnosed with ADHD I was put on stimulants (adderall at first, and now concerta)
I had thumping in my ears as well, also mostly my left. It was tolerable some days, and others, unbearable.
Once I started the stimulants, the thumping went away until the medication wore off. Maybe this can help you?
Good luck
I get random thumping and flutters that mimick my heartbeat. I’ve had it randomly for years but in the last month it’s been happening almost everyday. When I wake up and stretch while lying on my back I get it. It’s like a rush of blood that I hear the thump or flutters. And other times it can happen while doing exercises. Yesterday o was just sitting with company and it came on. It doesn’t hurt it is just odd. I also experience fullness and clicking and popping that is manipulating manually
Hello!
Let me tell you my story to see if it will help you or others.
January 2023 was when I began my hell of ear issues: I woke up that day with muffled hearing of my left ear, then 2 days later tinnitus, vertigo, headache, nystagmus, neck pain, nausea and hyperacusis distorted sounds (crackling etc). No ER’s or ENT here in the US did nothing for me so I had to go out of the country for medication. Thank god most of my symptom went away except for tinnitus and hyperacusis.
But then shortly after coming back to the US I developed TTTS, it sounded like (a butterfly flapping its wings in my left ear🦋). Shortly after that I also developed Palatous myoclonus (spams of soft palate) which also affect my ears.
Treatment:
- Don’t cover your ears they have to get use to the sounds otherwise it makes it worse.
- Tinnitus I am still praying it goes away or lowers a lot more but doing acupuncture & fasting.
- TTTs with time i didn’t hear it anymore because I wasn’t stressed on the loud sounds anymore.
My Theory:
- I believe and was told Tinnitus & Hyperacusis was acquired from not hearing anything in my left ear for that month.
- TTTS tonic tensor tympani syndrome I developed from MRI machine and other sounds (simple sounds too) that were too loud for me.
- Palatous Myoclonus I developed from antidepressants I took while going through these tough times.
Please keep us updated and try acupuncture, medication, natural herbs, massage, relaxation meditation everything and anything except surgery… most important god and praying 🙏🙏🙏
Do u stil have ttts?
@@SuperCamboRamboI hear like an appliance motor rumble in a farr distance so I don’t know if it’s tts or part of my tinnitus. But when I did have tts it sounded like a butterfly flapping its wings so it doesn’t sound like that anymore so not sure 🤷♀️ but I still have tinnitus and little bit of hyperacusis and Palatous Myoclonus. And like distorted hearing….. praying for more healing 🙏🙏🙏
@@blancacasillas8226 I hope u heal fast! 🙏🙏
I'm curious to know how's your ear right now is there any improvement or change?
because I'm suffering from this symptoms too and nobody helped me
Wat (h)erkenning, ik heb ook TTS, maar ook een whiplash gehad daarvoor. Niet-invasieve neuromodulatie was/is een life-changer voor mij. Er zijn dagen dat ik toch nog last heb, maar mijn levenscomfort is vele beter als ervoor, en ik heb meer goede dagen dan slechte.
Ik ga ervan uit dat je research gedaan hebt en dat je ook bij Dr. Boedts bent geweest?
Ik hoor het graag!
Hey Dieter, bedankt voor je berichtje. Ik ben al een tijd op de hoogte van wat brai3n doet - de theory althans. De praktijk van wat het juist inhoudt is me een beetje vaag en dat schrikt me af. Ik ben in het verleden nog bij specialisten langsgeweest (buiten de reguliere gezondheidszorg) die me onder het voorwendsel van baanbrekende therapie uiteindelijk vooral achteruit geholpen hebben (financieel). Ik sluit niet uit dat ik uiteindelijk toch eens langs ga bij brai3n - maar eerst moet ik nog een aantal andere zaken uitproberen en uitsluiten. Het stelt me wel al enigszins gerust dat jij vertelt dat je toch baat hebt bij de neuromodulatie therapie.
Dat financieel-plaatje begrijp ik helemaal, ik ben ook in die molen geweest van allerlei middeltjes, kiné, specialisten.
Voor mij is het in ieder-geval een life-changer, en naar mijn persoonlijke mening ook de toekomst wat betreffende het management van een aandoening in de hersenen en vooral naar "pijnen" toe.
Belangrijk om te weten is dat ieder persoon uniek is, en daarom een andere aanpak nodig heeft. Als je in de toekomst bij BRAI3N terrecht zou komen, zullen ze je dat allemaal uitleggen!
De toekomst naar de behandeling/management van allerhande aandoeningen in de hersenen is alleszins veelbelovend.
16:20 you mention Andrew Huang, he has a condition where he lost his hearing of low frequencies which I can imagine is very bad for a musician - think of Beethoven.
Is your hearing condition an advantage in making music? Because you can hear sounds an average ear cannot perceive or does it somehow affect your style - like do you low pass your tracks to filter the annoying high frequencies?
Regarding your production quality: Keep your authentic style! Musically I prefer your content over the super polished influencer channels where I always have the feeling that I am watching a gear commercial…
Thank you! I appreciate the feedback about the production quality and style. I'm sure I couldn't be unauthentic even if I tried, but I do sometimes wonder how other people do it. Your question is interesting btw. I don't find a lot of advantages in having constant intrusive popping and thumping. I can't play guitar bc it just distorts (I have like a built-in Marshall full stack in my left ear) BUT I do find I am very good at finding the resonant and annoying high frequencies, simply because they hurt. I'm sure if it hurts for me it's annoying for people with normal hearing, if not conscious than at least on an unconscious level. I do use de-essers and multi-band compressors for this goal (on audio tracks as well, not always, but sometimes). I strongly avoid low pass filtering everything because if it were for me, I'd put a 10k lp filter on everything just to make it more pleasing. I have to take my sensitivity into account when mixing (or at least try to). Mixing is a bit of a hit and miss anyway.
@@briesmodular my favorite electronic music is dark ambient and dub techno, basically run everything through delay, reverb and low pass filters 🤩
I can somehow relate: I have extremely sensitive eyes and bright light blinds and hurts. I have e.g. sold gear because of too bright LEDs… to some extend it affects what we do and it is not bad but special.
Hey! I have this condition too. I got mine after having an MRI to investigate the cause of another form of tinnitus (pulsatile) which is ironic. I did end up finding the cause of the PT and had neurosurgery for it but the TTTS remains. I have found what helps best is noise exposure at all times and a foam ear plug when it’s really bad. Do you also have any issues with your neck? When my neck is very stiff the TTTS is much worse.
Have you also looked into having the surgery? I hear also clonazepam has helped some.
Hey! I do have some issues with my neck and I also think it affects the TTTS. The surgery is a risk I'm not willing to take, especially since it's no guarantee it will help. I tried several meds for extended periods but to no avail. Some days are just terrible, other days are bad but manageable. I use hearing protection when it's really bad.
I know how you feel 😢 some days are worse than others for sure. I have seen two ENT’s about this and they have been so dismissive. I am in Australia and I am going to see a new ENT who is familiar with TTTS/has treated it. I’ll update you after
@@mikaelanina Hello. Please update us fellow sufferers:)
Hi Bries, I've tried leaving comments here with some links that might interest you, but they get cancelled out by the YT algorithm.
A note to YT, this is not the first time this happened on a modular channel, maybe you should check your filters?
Hey! Yeah it's been happening every once in a while and it's massively annoying. I don't have any filters on. You can always reach me through mail though, my adress is in the 'about' section of my channel.
@@briesmodular Okay, will do - I'm in Brussels (FYI - also a modular musician). BTW, it's something to do with YT algorithms, same happened on Robin Vincent's page.
@@cardboardmusic Hi. Can you send me the links as well?
Hey bries. This syndrome sounds veeery annoying. I see you suffer really hard. I'm nurse and i work in a hospital in Switzerland. My solution sounds a bit crazy but check out a orthomolecular doctor near your place. He should check your aminoacid and vitamin state. This can help a lot with the diagnose tinitus. Maybe it can help also with your diagnose. Stay well bro and keep doing your 🎵🎶🎵
Hey! I know of ortho-molecular medicine. A few years ago I did some heavy research about this for a couple of months. Tried talking to health professionals about possible supplements for all kinds of issues. Unfortunately it is considered pseudo-science in my country and very much frowned upon by most doctors here. I've had a few elaborate blood tests over the past few years, all have come back outstanding, even my B12 levels are great. Vitamin D is always an issue during winter, but that's a problem that general population as a whole suffers from nowadays.
Did you have any acoustic trauma before you developed this condition?
Hey! I have some very light tinitus but nothing serious (it's not bothering me). My real ear problems started when I spent a lot of time with someone who liked to yell at me in the car. She had bpd so the yelling was not always predictable. First my hearing just started distorting when she started yelling. Like a big Marshall guitar amp breaking up but inside my ear. This developed into the TTTS over time. I have always had a huge sensitivity to sound in the sense that it can oversaturate my nervous system (autism). That's why I've avoided certain places and sounds more and more, wearing hearing protection to not go into a sensory crisis, seeking silence away from obtrusive sounds. In the process I ended up increasing the inner 'gain' or volume knob of my hearing, which is just the perfect situation to get these kinds of issues. I'm able to hear a can of soda 'popping' across the room and it's LOUD.
Does touching your face set it off?
It doesn't, fortunately.
In my case caressing left cheek does set off fluttering sensation in left ear. And speaking as soon as I pause speaking I hear one clicking sound which could be objectively heard by a third party. Is that the case for you ?
@@imamslaoui4341 yes minus the part where it is heard by others. Yours is middle ear myoclonus. Similar to what I have which is tensor tympani syndrome
@@imamslaoui4341 No that's not my experience. I think that's another condition but I forgot what it was (there's so many once you start reading into them). Pulsatile tinitus maybe.
Hey man reach out to me if you can i would love to converse as we are exactly the same i am in hell and have been for a year now can’t be around my kids or animals can’t even run the dam shower some times
Hey! It can be quite a challenge being around other people especially during dinner time. I'm resorting to (the worst thing to do actually) just wearing hearing protection when I can't control the sounds around me. I know people say "it doesn't hurt and it won't damage your ears so don't worry about it" but I think being tickled is a good analogy. Being tickled does not hurt, but after a while it becomes unbearable, even after a few minutes, let alone after years. It's pretty debilitating.
@@briesmodularwondering if you have tried physical therapy for the ear popping as when i press certain parts of my neck face and back my ear pop i am 100 percent sure it’s related to a muscles somewhere else or maybe even some sort of vitamin mineral deficiencies (even tho my bloods show fine) but when i see my pt he does releases and deep massage then for a few hours my ear does not pop at all. Then one loud sound and back to hell he also does releases inside my mouth trigger point ones because he thinks this is tmj related. Although my Eustachian tubes seem to be working just fine. My right ear has hyperacusis and my left is the popping one :(‘ but now i am getting incredibly anxious with little noises it’s driving me mental. I have only just learnt from your channel about this condition after searching for years for an answer so for that thank you. Genuinely thought i was going crazy as the ent always say my ears are fine. Not sure how to test for hyperaucusis they really aren’t that interested in my country.