LIVING WITH ENDOMETRIOSIS
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- Опубликовано: 31 янв 2017
- LIVING WITH ENDOMETRIOSIS | A Chronic Condition -- Ayla shares what a day living with endometriosis is really like and talks more about how it affects her life. Thanks for watching and don't forget to subscribe, like and comment! **Other Endo videos down below!
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The endo waddle. I know that feel.
That's a good way to describe it!
i have a friend that ttc for 7 years and she had endometriosis as well and she finally got her miracle baby piper! i pray the same happens for yall.
Thank you so much for making this video! Endo is never talked about to the point where a lot of women don't even know it exists. I have brought up endo with female managers at work and they have had no idea what I was talking about so it's great to get some information/awareness out there about it. I got my period at 11 and it was all downhill from there. Endo was first suspected at age 12-13 because of my severe pain, heavy flow ect. I'm almost 19 now and have been "diagnosed" with endo by 3 seperate gynaecologists and a few GPs but I haven't been able to have surgery yet to confirm diagnosis or find out the stage because of a few other health problems. I say I have "undiagnosed endo" because all the specialists have basically confirmed it but there hasn't been any surgery yet. My pain is pretty bad, to the point that I can hardly walk when I have my period. Recently over the last 6-9 months I have also began experiencing dull, stabbing pains in the area around where my ovaries are. As you said, it's terrible when you can feel the pain getting worse and you can literally feel the endo growing and not being able to stop it.
It's always scary to speak out about endo because you are almost always met with comments such as "all women have period pain" and "period pain isn't that bad, stop making such a fuss about it". People don't know about endo since there is very little education out there surrounding it but hopefully videos like this inspire people to be gain sharing their experiences more openly and teaching others in the process!!
So sorry you are feeling so sad! I wish I could give you a hug. I might have had to deal with different issues but I do have so much empathy with your pain. Big hugs sweetie!!
Thank you so much for sharing your journey! I've been undiagnosed for 3 years and believe I finally found a doctor who can help. I debate quite often about how much of my journey I should share. Part of me wants to shout it from the rooftop because I truly understand how hard it is when you look "healthy" but you know something is wrong. You've definitely inspired me to keep sharing! Thank you for your bravery! & I hope you're having a pain free day! 💛 God bless!
Ayla I am so sorry u have endo. I often was hospitalized the week of my period from 13 yrs of age on. Unfortunately at 24 I was so sick as my endo had caused my bladder and intestines to adhere to the abdominal wall, a ovarian cyst had ruptured and I was hemmoraging. I will never forget my Dr's fromm John Hopkins face when he said I think we might have to perform a possible hysterectomy if we can't stable you. I don't know who was more upset him or me. I did end up having a hysterectomy but I must tell you it was tragic but in some ways it was great and still is not to have a period. We also were blessed with 2 adoptive children which we would not have if it were not for my surgery.
A lot of people do not realize that endo can affect other organs. Also people do not realize that u can end up with endo after a hysterectomy. Less than a year after my surgery I began experiencing that pain and had to go back in for a 6 hr surgery where they scraped the endo from the abdominal wall as well as removed alot of scar tissue. Thankfully that ended my endo journey and I have been endo pain free for 22 years. Hugs and best of luck on your adoption journey.
i totally feel you Ayla! i, too, is suffering of endo. just found out last Nov2016 but been dealing with all the pain for a long time. people do not understand the frustration... the way you said it all.. GIIIIRRL, we are on the same page. just want to know you're not alone and that my heart goes out to you. been trying to conceive for a year now, but you know, i know babies are also a miracle so im sure God will give us ours. cheer up, girl!❤
Oh Ayla, so sorry you struggle with this! I take neurophen for cramps and it helps, but I feel your pain! I wish endo was something that was talked about more/researched more because it seems like something that's actually far more common than it seems. I had an ultrasound once because of the pain and they told me I may have it but obviously they couldn't diagnose anything so I've just dealt with it for years but it's always in the back of my mind! Wish there was a better way of diagnosing and treating it. Thanks for talking about it, I'm sure you'll help someone💕
Thank you so much for making this video... I had a big endomitroma removed last year and lost part of my left ovary.... it's so hard to deal with and you are being so brave to share your journey and making us feel that we are not alone.... love and hugs ❤
+moumita kundu Thank you! 😊
I am sorry you have to go through all of that, It is crazy how surgery is the way to really know. I know many women who finally were diagnosed with endo during surgery. Hang in there! God bless.
I agree 100%. I have endo too and suffer horrible pain all month long that is intensified during my period. We've been trying for almost three years and have just started the tests for fertility treatments, I am going into my second month of follicular scans and blood tests. It is so upsetting to not only be reminded your not pregnant, and also that it's unlikely you ever will be naturally, constantly throughout the day from the pains this disease brings xxx you're such a strong lady for sharing your journey xxx
Hello Ayla & Caleb,
My husband &I I have been watching you for about 6 months and you bring so much reassurance to our lives. I have stage 3 endo &a my hsusband has male factor infertility. We are in the process of our first IVF cycle. I just wanted to tell you that I get a lot from your vedios & they truly are making a difference. Thank you for sharing the hardest, day in and day out journey of this battle.
Thank you so so much for telling me this! Wishing you so much luck!
I completely relate to what you say about your period arriving and feeling like your body has failed you again, it's such a horrible feeling. I don't have endometriosis (I have pcos) so cannot imagine the pain you must have to go through, but can totally relate to you on an emotional level, having been through miscarriage and currently on Clomid to try and conceive. Crossing my fingers for you as always and hope you get your rainbow baby very soon, whatever route you may go down X
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Don't give up hope! God is good!! :) I have Endo. I am 8 weeks and 4 day pregnant with TRIPLETS after 7 years and 7 months of TTC!!! By the way we 100% naturally conceived!! :) My husband and I adopted our son from birth almost 3 years ago. We are fostering to adopt our daughter. She came to us at only 10 weeks old. She is 16 months old now. :) God has a plan for you! Keep the faith! :) Praying for you both!
Hey Ayala, I found I had endometriosis after having horrendous right sided back pain last summer, I had a laparoscopy in October and was diagnosed with stage 4 endometriosis, currently on zolodex injections before another laparoscopy to remove it.. mine is mostly on my bladder and right side. Suffered with bladder issues and utis my whole life.. all makes sense now. Never really had painful periods only started getting more pain in my period last summer.
After my next surgery which will mean I am ‘technically’ endo free for that period of time so it’s the best chance before it grows back. Horrendous illness. Wish you and Caleb the best in your journey very similar to us and our dog x :)
oh girl I feel so bad for you my partner has suffered from this for so long but I never realised how bad it must be for her but after watching your vid I feel so sorry for every woman with this terrible problem wishing you all the luck in the world to getting pregnant xxx
I use to feel like I was being a baby and all my pain was normal,i just didn't handle it well. Nights spent in the bathroom holding my stomach crying,wanting to go to the doctor but feeling like they would laugh at me for showing up with cramps.ive recently been diagnosed and started doing my own research .I hate to see others in pain but so happy I'm not crazy and I'm not the only one.thank u all for your endo stories it truly helps.
Stephanie Lockman
Stephanie Lockman
I have stage 4 endometriosis and sending you hugs. I understand xxx
Ayla, I do a lot of the same things you do to help with Endo.One thing that helps me is laying with my knees up or in a recliner and putting a pillow between my legs and laying on my side. I am not sure what it is about it I think it has to do with pressure points but it certainly helps the pain. I I just posted a video a few weeks ago about our TTC journey and Laparoscopy surgery for Endo.
Thank you for making this video even on a day you aren't feeling well! I am actually going to show this video to my SIL because I've always been concerned she may have have endo. She has always had really painful periods even to the point of having to go to the ER because she was in so much pain. She has never been diagnosed or even had it looked into very thoroughly. She has always managed it by taking BC pills. She is only 22 and is single so is not looking to have kids quite yet but I'm worried she may struggle with infertility due to potentially having endometriosis. I'm going to encourage her to get it checked out now so that she knows what she is up against in the future when she does want kids.
+Sarah Riehm Its great to see your support for her! I honestly thought my whole life that the pain was "normal" and it took rushing into surgery to realize the opposite. Best of luck to you both!
2nd comment . I was march 2016 as well 🙌🏼 our stories are very similar. I have kept my ovaries but have blocked tubes. Going back in march this year to remove my appendix and try to unblock tubes. Then most likely onto ivf. I thought it was normal as well- makes me feel so sad that for years I thought that. Feel so robbed 😞 even though my tubes are blocked - I hope. So sad isn't it, so sad. Xxx
Hello Endo Sister. Endo is one of the worst conditions that I had no idea about until my diagnosis. I'm unfortunately one of the unlucky ones that has Endo pain 24/7. I just wanted to let everyone know that feeling pelvic pain whether it's during your period or not isn't usual. I went through horrible periods but didn't know anything until the pain started happening all the time. xxx
oh girl, I completely understand :( endo sucks.
I'm scheduled for my next (3rd) one on March 2nd. I cannot wait for relief.
Praying for u guys
Hello Ayala & Caleb. I've been watching youse for a couple of months. Just a
Quick hello from Irish living in Germany.
I total understand the feeling of failing . I just found out the I had (have) Edno, when I got my Laparoscopy surgery done last September. 🙁
I have also had heavy for periods all my life and my doctor also said it's normally, since I've always had them and that makes me angry she didn't even come to her
Mind, since she knew I was trying to conceive . Anyways I can't change that now.
When I asked my some of my girls friends if they had painful periods most of them said no. So I thought that I'm just one of the unlucky ones. 🙁The worst is that I'm 40 now . If i had of known it earlier. I could of got help earlier, but it's to late now.
The only good thing is that I have had my first period ever without any pain at all, 🤗since my lap. Sept. 2016 .
I'm not sure if the tablets helped or not. I've been taking vitamin b complex and some Kelp tablets (Sea seeweed) to stop the endo coming back again and tried to not eat as little bread or wheat and it s worked out this time. I hope it keeps up.
I wish youse all the best! And that you soon have a lil baby in your arms
I just wanna say, i think you are really brave🖤
+Camilla Aannestad I so appreciate you saying that ☺
This is a great video! I am worried about endo for myself, may I ask what other symptoms you have? My periods are painful and heavy for the first 2 days and then they are fine, if I take advil I am fine but I have to take it every few hours the first day of my cycle. Is this considered normal or could that be a sign of endo? Been TTC for almost a year now :(
Hey!This is good of you. I have been living with my sister all my life. She has been going through endometriosis too. But these days I am helping her battle the illness. Thanks we got some help in Bio tex clinic. Perhaps can also share her symptoms. Since there are some few more you never tackled on. A major symptom of endometriosis is severe recurring pelvic pain. The pain can be mild to severe cramping that occurs on both sides of the pelvis. Radiating to the lower back and rectal area and even down the legs. The amount of pain a woman feels is not necessarily related to the extent or stage (1 through 4) of endometriosis. This is where things get even more complicated. Endometriosis symptoms have a great deal of overlap with many other conditions. Often, it can be lumbered into the same category as PCOS. With many women not knowing the difference. Unlike PCOS the symptoms revolve around pain. Rather than weight gain. Excess hair or acne. Heavy periods, clotting, spotting between periods, irregular periods, fatigue, depression, disrupted sleep and infertility are just some of the endometriosis symptoms to look out for
I'm literally crying in pain RN. I haven't been diagnosed. Last night they were so bad it was hard to breathe. My cramps have never been this bad.
Omg. I know this is a super serious topic, but Jean Bean behind you in the first minute, cleaning herself like a cat is WAY too adorable to not mention.
+jmleeinla You're totally right! I never notice what's she's doing behind me until I edit later ☺️
Thank you so much for sharing this. I feel the same as far as the pain & feeling like a failure month after month. I don't take any meds for my endometriosis. The only drugs I take that gives me relief is Advil which is horrible for your stomach but I only take it for my period. What I find really works if you are consistent is eating an endometriosis diet. It's tough though as you can't have much dairy 😕 (my fav), gluten or sugar. I followed the diet for 2.5 month & got pregnant but lost it early at 5 weeks this past June 😔. I am back on it not expecting to get pregnant ( I blame the dang endo for my losses) but it seems to be the only thing that gives me relief during my period. When I follow this diet I would say my pain has been reduced by 75% which is huge! There was one month when I didn't have to take Advil at all. I know endo is different for every women but I wanted to support a fellow endo warrior. I love you guys you are my favorite vloggers to date & I'm routing for you guys to finally have your baby in yours arms! 💕. I relate to you guys in so many ways regarding our infertility journey. Take care & stay strong.
-Crystal-
Did you have the endo excised? Excision is the best for endometriosis removal I am so scared of surgery just wondering what you had done
This whole video I kept thinking you were telling my story! I went to my doctor when I was 16 complaining about how my periods were getting progressively heavier and more painful. He told me that it was normal and brushed it off. That happened with 2 more doctors after him. When we were married and were looking into our infertility issues, I brought it up again. Again, I was told it was normal but this time I insisted that it be looked into. Sure enough, I had a mild form of Endo. They removed what they could and continued to push birth control on me which I was not about to go for considering I want to get pregnant and birth control is a class 1 carcinogen right up there with alcohol and tobacco. I am currently just dealing with it using pain meds. I was having to take T3 & Extra Strength Ibuprofen and would still be out for a full day. More recently I have stopped drinking caffine and I don't even have to take any pain meds unless I want to sleep.
I hope you are well.
Ayla my endo was located mostly in what they call the culture de sac....behind uterus somewhere and on every nerve ending. Make sure they check there as well.
I have stage 2 endo and have been dealing with it for almost 3 years now. I've had 2 laps done to remove it. I tried birth control, but it made me sick and honestly it doesn't seem to stop it growing in a lot of people. Just kind of hides the symptoms. I'm currently trying a natural supplement called endovan. I've only been taking it for 2 weeks so far, but I already feel like it might be making a difference. It might be worth looking into.
I'm 25 with stage 4 endo. I've had 9 surgeries for my endo. I also lost an ovary and appendix due to an endometrioma. It's fast growing and severe but I have 2 children with my husband. Don't lose hope it is def possible! Have any of your Drs mentioned having your endo excised? Most Drs ablate/burn the endo away however there is a select number of specialists who excise (cut out) the implants and it is more effective and sometimes will not recurr once cut out. After many failed surgeries I finally had excision with a specialist and it has definitely reduced the amount of endo and I truly think that surgery is why I was able to conceive my little ones. I am so grateful. But still dealing with awful periods and weighing the decision with my husband about whether a hysterectomy is our next step or if we want to tough it out in hopes of having another child. Please let me know if you want to chat more about all this. I have known about my endo for 6 yrs now and I feel like I've experienced and learned a lot over the years with it.
I have endo but i haven't been diagnosed yet, but I know that it is because I have all the symptoms on the list. And the doctors tell me that surgery could make it worse etc. so right now i have an IUD and it has stopped my periods and the pain is better but i still have pain every now and then
I was diagnosed with polycystic ovaries last year, and came back to have tested this sept. To find out that i still have polycystic left ovary and a 2cm cyst on my right ovary, i went to an OBGYN to seek for her advise, i told her that i am experiencing sharp pain in my lower abdomen pre,during and post menstruation. I have irregular periods but never had excessive bleeding. Her diagnosis made me confused because her findings were endometriosis. She didnt even ask me other symptoms and the like. I am really disappointed in her. I wasted money for a stupid OB.i cant believe her! This kind of doctor should have their liscence taken.
just wanted to tell you your very strong im going threw infertility also and youv been threw soo much i just admire you so much. i do have a question what age did you start you period
I feel very hopeless and defeated at the moment. I'm 36 years old and I have known, or at least suspected, that I have endometriosis ever since high school. I got married when u was 29 and I finally became pregnant a year later, but I had a miscarriage. Ever since that miscarriage the pain got even worse and I had to accept that I was never going to have children. I have accepted it but it's really hard especially if your body reminds you almost every day that I will die childless. I don't just have cramps on or near my period anymore. If I'm lucky, I will spend 3 (at the most) days of a week without blinding pain. Most days I can manage the pain with over the counter painkillers, but some days (like today) the pain is stronger than the medication. I try to explain to people where it hurts by saying, "it starts at the waist of my pants, at the front and my lover back, throughout my entire pelvis, my hips, my thighs, the inside of my knees and legs. I can literally not walk."
I have a high pain tolerance, but on days like this day, I can NOT tolerate it. I start crying and I feel like going to the emergency room.
Recently I broke my collarbone in a motorcycle accident. It was a bad break, it broke in half and the 2 bones were overlapping. I walked around with my broken collarbone for 2 days and even THAT was tolerable.
I knew that this is just something I would have to live with for the rest of my life. So I decided that I was going to go for a hysterectomy and my problems would be solved. I someone told me today, that it might work for a while and then it won't work anymore. I also heard, that if I have not had a baby yet at the age of 36 I will never fall pregnant AND that I have a higher risk for cancer. My future looks bleak, and I'm devastated. Does anyone know if there is a support group I can join?.
I got told by one doctor a few years ago that i have endometriosis but then changed doctor and this doctor told me that i dont...im still not convinced after watching this, especially about the pain you have, being similar to mine. x
it is possible to get pregnant with that I know from experience I was told I would never get pregnant I had a surgery that cleared my faloupin tubes and got the endometiosis removed the next year I was pregnant and I have 2 girls now .hopefully it helps you
Stage 3 endo which started a decade ago (I'm 24) and 4 years of infertility. My endo caused me such severe pain that no pain relief would touch it. Turns out my bowel was completely attached to the ovary, tube, uterus, pelvic wall on the left hand side (the right was fine hence it only being stage 3 instead of 4) and endo way down by my bladder and everything. Luckily I'm in a symptom remission since fixing up that bowel but still get the symptoms... Just not hospital worthy pain any more. But it will come back unless babies come. We start ivf the end of this year which will mark 5 years ttc
I have endometriosis as well and it sucks but I've gotten some removed but a lil is still there and I hate it and it's affecting my fertility I wish I never had it ☹️
Do you use a menstrual cup? There is a RUclipsr itsjustKelli and she has Endometriosis. She started a period series on her RUclips channel and said that her periods are so much lighter and I believe she said less painful since using a menstrual cup and natural menstrual products.
Been dealing with this for 12 years, many surgeries. I get where I'm in too much pain to talk.
Found out last month that I have endometriosis. They put me in temporary menopause and placed a double J stent in my ureter last monday to save my kidney. I'm facing a big operation this year. Me and my partner were actually planning to get pregnant this year, I guess that's not happening:( I don't know if I ever get pregnant after the big operation. Doctor said ivf is our option.
When my doctors started mentioning endometriosis as a possible cause for my 24/7 pain, I started doing a TON of research. I learned that most doctors don't know how to treat endo and sometimes say they removed it when they didn't. Some doctors just look in and close the person up. We actually have an endo center near me and I found out how bad they were. I never would have known had I not did so much digging for answers. There is a group on FaceBook called Nancy's Nook. There you can find an excision specialist. I learned that excision takes the endo completely out (it can grow back) but it's the best treatment they have right now. A lot of women go on to have healthy pregnancies after excision. I've talked to hundreds of women over the last two years. Endo is tough because some women do get cramps but don't have endo. They need better testing and treatments. You can get through this and there are treatments out there (stay away from lupron). Always praying for you❤
MakeupByRae yes join Nancy's Nook! And my comment above was just saying that I conceived my two children after having excision surgery. I have stage 4 and have had 9 total surgeries (2 excision).
MakeupByRae Hi. I found out last month that I have endo. They gave me Lupron. Can you tell me why I shouldnt have it? They will give me my 2nd 3month-lupron next week.
+Abigail Goress It is an awful drug and since most doctors don't know how to treat endo properly they often push it. If you have a Facebook look for the group "Nancy's Nook" within the group there is a search feature, type in lupron you will get tons of personal stories. I believe there are even articles pinned within the group about lupron. I've talked to many women who have taken it and have yet to hear any good stories. Many have life long negative effects.
Yesssss to this!!!
you should ask your Dr about pelvic floor physical therapy..I know ppl who have almost no pain after getting this therapy
:( Hope you are feeling better! Just an FYI, Advil works MUCH better than tylenol for ends and menstrual cramps. It helps to decrease prostaglandins(which cause constriction of the muscles, causing pain, diarrhea, etc.) not just pain in general. If you take it the day before, regularly every 4-6 hours throughout your period, instead of just when you are in pain it can help a lot!!! :)
I'm getting symptoms of,endo my doc,told my,next step is surgery I get pain that is excrushiating
Hi a couple of months ago I had symptoms of endometriosis and it kind of stopped but now the pain has come back and even though my period has just finished it feels like I have cramps , I have gone for an ultrasound but nothing came up but I'm not sure it's bad enough to have an operation or not , it just makes me feel like I'm not normal and I have no idea what to do 😔
Paris Ryab endometriosis is only diagnosed through surgery. Yes have the surgery. If you do not have it then that is amazing news. If you do then they should zap most of it out. Unfortunately it will most likely come back in the future and you will need additional surgeries. But without the initial surgery you will never know..
Have you tried yourtea.com fertility tea to help with your endometriosis symptoms? I didn't use it for endo but know people who have and said it helped their cycles more bearable and with less pain.
Thank you for sharing... Xxx My endometriosis is so bad that I need to take prescription painkillers (mefenamic acid) every 6hrs as well as Diazepam for the cramps. I regularly get something what I can only call "endo attacks when the pain gets so much that I first break out in cold sweats and faint and then vomit repeatedly as well as sitting on the toilet... Been to ER a couple of times, so yes - it's bad!! I am bed bound 3-4 days a month. However, there are things that totally make a difference - please check out Melissa Turners blog and endo resolved website. Diet makes a HUGE difference and cutting out sugar, caffeine, dairy and red meat helps a lot. There are also many supplements that help - Pycnogenol being one of the best ones. I was already doing really well symptom wise and then started eating treats again, little by little a bit more as well as coffee and so have ended up in a lot of pain recently. Have now cut sugar out again and after 1 month it has already made a difference again. It totally sucks but I'm already starting to emotionally be feeling better about it too, you also get used to not having sugar quit quickly! Anyway, thought I'd share and really encourage you to look into the natural route as it does work, and can work relatively fast too.
Wanted to add that my friend who has had extremely painful periods from a young age and diagnosed endo, she's been in the pill, had a surgery etc etc and in her own words "rolling on the floor in pain every month" went hard core sugar free 9 months ago meaning no sugar at all in any form (also known as the anti candida diet). She said that after just 4months the pain was completely gone!!! She has zero pain with periods. She is still gobsmacked how that is even possible. So I really should know better but finding it hard to resist the coffee especially...! If you want to speak with my friend - she lives in Australia - happy to put you in contact. Xxx
Check out Endometriosis Online Support Group on FB!
does anyone know if an endometrioma can go away on its own? ayla...did u ever get ovulation pain or have noticed in past looking back.
Karleen Carretas unfortunately they don't go away on their own😟
MakeupByRae . Thank you for your reply. wat r other symptoms to endometriosis besides painful periods? ovulation pain ? recurrent complex bloody cysts?
K C some people have no symptoms at all. They suspected it in me because I literally woke up one day in severe abdominal pain that never went away. I've talked to women who had normal periods, no pain, no cysts. They found out when they were trying to get pregnant. If you suspect you have endometriosis definitely bring it up to your doctor and do a lot of research as there is so much misinformation it takes time to weed through it all.
I'm 22 I was told I had Endometriosis wen I was 16 today I was I had stage 4 Endometriosis
My gyno thinks i have this.. have you tried the pill?
miss dollhouse
Question for you my dear, have you tried diet and holistic treatments at all? My symptoms used to be debilitating and after years of diet and lifestyle changes I was lucky enough to see drastic changes. Doesn't work for everyone, but curious if you ever needed/wanted help to reach out. I feel you my dear
Liv 4 Today things NOT to say to someone with Endometriosis
Liv 4 Today she has changed her diet they did a vlog on it
hey ayla how were you diagnosed with endo?
+F The Great through surgery when I had a cyst rupture and had to get my appendix removed! 😢
Ayla and Caleb oh i'm so sorry :(
I have it,I hate it
How is your endometriosis now?
Do you have ovaries? What was your diagnostic?
I believe Ayla has one ovary after having one removed due to advanced endo.
Hi Ayla and Caleb my friend my me both had endo. She had one ovary removed. But both got pregnant naturally. With diet and exercise for both husband and wife. I also saw a naturopath dr. She helped me pinpoint my problem. I also did the water therapy. Healing the body with water. Also tell your self all the time that I AM FERTILE. Donating to a children's hospital. And put pictures of a baby with both of you in the house. A fertility goddess or God pics in the room. Telling the universe what you want. I am sure you will have what you have dreamed of.
I know this is personal, but does your endo make sex painful at all?
ya thats pretty personal.
keepinitreal I have endometriosis & yeah sex is painful 👎
That's personal but a valid question. The answer is YES for many couples with endo they experience painful intercourse. Depends on the couple.
keepinitreal yeah it may be personal. But it's not something that's talked about enough because it is really emotionally painful. And yes I have really bad endo right now (seeing s specialist in 2 weeks). And currently sex is extremely painful, so you're not alone.
Ayla I am so sorry u have endo. I often was hospitalized the week of my period from 13 yrs of age on. Unfortunately at 24 I was so sick as my endo had caused my bladder and intestines to adhere to the abdominal wall, a ovarian cyst had ruptured and I was hemmoraging. I will never forget my Dr's fromm John Hopkins face when he said I think we might have to perform a possible hysterectomy if we can't stable you. I don't know who was more upset him or me. I did end up having a hysterectomy but I must tell you it was tragic but in some ways it was great and still is not to have a period. We also were blessed with 2 adoptive children which we would not have if it were not for my surgery.
A lot of people do not realize that endo can affect other organs. Also people do not realize that u can end up with endo after a hysterectomy. Less than a year after my surgery I began experiencing that pain and had to go back in for a 6 hr surgery where they scraped the endo from the abdominal wall as well as removed alot of scar tissue. Thankfully that ended my endo journey and I have been endo pain free for 22 years. Hugs and best of luck on your adoption journey.