How To Manage Endometriosis. My 7 Basics of Living with Endo [CC]
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- Опубликовано: 5 июл 2024
- How do I manage and live with my endometriosis? In this video, I share 7 basics of living with endometriosis in the bid to help anyone who wishes to know what it's like to manage this condition, because endometriosis and chronic illnesses in general are pretty crappy to deal with, but it also teaches us a lot of things that we have to enforce in our lives to improve it.
If you're new to dealing with endometriosis, PCOS, adenomyosis or in fact any chronic condition then I hope this video helps you.
Please remember that I am not a medical professional. I am a patient and have created this channel to share my experiences. This is all purely informative and in no way am I providing medical advice, so please consult a medical professional.
Time Stamp:
7 Things I Have Learnt From Endometriosis
00:33 - Lesson no. 1
02:51 - Disclaimer
Detailed blog post: allthingsendometriosis.com/my...
03:02 - Lesson no. 2
Relevant blog post: allthingsendometriosis.com/tr...
05:13 - Lesson no. 3
Relevant blog post: allthingsendometriosis.com/en...
06:56 - Lesson no. 4
Relevant blog post: allthingsendometriosis.com/pa...
08:07 - Lesson no. 5
Detailed blog post: allthingsendometriosis.com/ec...
09:42 - Lesson no. 6
Detailed blog post: allthingsendometriosis.com/ti...
10:57 - Lesson no. 7
Detailed blog post: allthingsendometriosis.com/pr...
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Original article to this video:
7+ Things I Learnt From Endometriosis:
allthingsendometriosis.com/i-...
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Follow me on Social Media (and check out my website & podcast too!):
Website: allthingsendometriosis.com/
Instagram: / footprintsnoboundaries
Pinterest: / itstarot
Facebook Page: / footprintsnoboundaries
Podcast: open.spotify.com/show/2l9oX7A...
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Website Reference Links:
Natural Pain Relief Methods for Endometriosis & Ehlers-Danlos Syndrome:
Video: • Chronic Pain: 9 Natura...
Article: allthingsendometriosis.com/en...
From School Bullying to Adult Bullying - What I've Learnt:
allthingsendometriosis.com/po...
What it Takes to Keep Going:
allthingsendometriosis.com/po...
My Night-Time Routine While Having a Chronic Illness
allthingsendometriosis.com/ni...
Tips: How I Reduced Hair Loss Caused by Medication
allthingsendometriosis.com/re...
My Experience: Treatments to Manage Ehlers-Danlos Syndrome
allthingsendometriosis.com/tr...
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Disclaimer: I am not a medical professional. I am a patient and have created this platform to share my experiences. This is all purely informative and in no way am I providing medical advice. Please consult a medical professional.
#Endometriosis #PeriodPain #HealthAndFitness #EndometriosisDiet #PainManagement #Hypermobile #EhlersDanlosSyndrome #MentalHealth #Acceptance #HowToBeKindToYourself #LivingWithChronicPain #Fibromyalgia #HowToTalkToYourself #HealthBlogger #HowToTalkToADoctor #ChronicFatigue #PainRelief
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How do you manage your endometriosis? Do other conditions hinder your treatment plan?
Exercise really really helped me. It has at-least made my condition painless. But you are right, you have to be consistent. Plus, dietary changes. Great video!
@@84geetika thank you for watching Geetika. I'm so happy know how exercise and diet has made endo painless for you - that's a huge thing! 😀 Thank you for sharing.
I was just now diagnosed with endometriosis. I started losing my hair, my skin became suddenly dry...extremely dry, itchy skin etc. My doctor said that unfortunately there’s nothing they can do about my hair. I have done nothing but cried all day. I’m so devastated.
@@womanwithtoolbelt9171 that's so so tough. There must've been an explanation from the doctor as to what exactly is causing the hair loss and itchy skin? Is it a hormone? Is there something that he/she sees in your blood results that is off and can be balanced out to at least stop more hair fall and the itchy skin?
Is there a diet issue too? Is there another condition along with endometriosis that could be contributing to this?
Please don't lose hope and question the doctor and if they're no help, then look to see an endometriosis specialist.
I have endo and lost a lot of hair from it and from medication. Plus I have MCAS (which I've spoken of here: ruclips.net/video/M6ikBHIWWGw/видео.html). MCAS irritates my skin and contributes to endometriosis as well - that's what my doctor explained to me.
Also, I tried a few things for my hair loss, and I've written about that too here: allthingsendometriosis.com/reduce-medication-caused-hair-loss/
But honestly, it's best that the doctor guides you as to what is so off with your body that is causing such a symptom from endometriosis and look to first work on that. Like for me my hormones were off for many years and as that started to improve, so did my hair and skin. I'm trying so hard, not to send you too many links, but I just started a section of videos for skin and hair care - I'm gonna keep adding to it, so hopefully one day you may find something that helps: ruclips.net/video/j1hlUtHqmmg/видео.html
Please take care.
There are certain exercises that just make my pain worse. Fibromyalgia and ADHD definitely hinder me as well. And my severe anxiety. Im always scared that people will think im crying wolf or its not as bad as it seems.. or now that im finally getting my surgery.. im scared the people who didnt/dont believe me are going to be correct and theyll find nothing. Thank you for this video! Its definitely calming some of my anxieties.
I use TENSE machine for my period pain....helped a lot
That's such a good idea and works nicely for many :)
Very well done! I agree on all your points. I have been suffering from bulky uterus due to Adenomyosis, for the past 4 years. I by myself did research on what to eat and what not to eat to keep the heavy bleeding and pain in control. I am still doing research as some of the food aggravates pain and bleeding although some websites say safe to consume. You are correct about diet which should be customized for each individual. Because of heavy bleeding I became anemic. I go for iron infusion every 5 to 6 weeks. Had blood transfusion once. Yes, I lost lot of hair, my skin is dry and I always look pale. I try to consume healthy food to boost my energy. Some of the food to boost you: Dates (only 3-4 a day), Pomegranate (seeds or juice). Alternately, I drink Ensure to bring back my energy. Keep up the good work! Thank you
Hi Sutha... again such super valuable information. I wonder, you say that you did all the research yourself - but do you have a helpful doctor too?
@@FootprintsNoBoundariesByShruti Hey, Happy New Year! I do have a helpful, understandable family doctor who has been very patient with me for the past several years. I have to go for frequent blood test to check my hemoglobin level. Every time I follow up with him he asks me if I want to go for hysterectomy. I have told him that I am trying different things and I don’t want to think about hysterectomy for now. He listens to me 😊
@@kathiroli9381 Hi... I just saw your reply. I hope your doctor is aware that a hysterectomy will not resolve your endometriosis. This only really helps those who have adenomyosis or other conditions, but definitely not endo.
Great👍❤
Thank you :)
I like ur style
so sweet, thank you :)
I have fibromyalgia (diagnosed at 14) and endometriosis as well! Ive had awful periods since the day it started. Ive finally found a doctor that has listened to me and my cry for help. And now in 2 days im finally getting my diagnostic laparoscopic surgery to find if i do have endo and take it out if i do. Im so nervous.. and excited. Since no one has listened to me since the beginning.. its so nice to finally be heard. But im scared im crying wolf to myself and its not endometriosis and theyre going to find nothing in the surgery.. hopefully some one can relate to this. Sorry for the long post xx
Hi Kelsey,
I have had two laparoscopies - in one they did ablation surgery and the other was in 2019 when excision surgery was done. Despite the horrible pain and knowing my history with endo I still felt like you where I hoped they'd find something so that I was continued to be believed and that there was a reason for all this pain.
I'm assuming you've now had your laparoscopy and I really hope they find what is causing you the problems and remove it.
Hope you feel better very soon.
Good luck.
hi, i made a video about endo and coffee and yt suggested this one so I am here.I was diagnosed with endo 4 -3 surgeries and 20 years later I managed to put this illness into remission naturally just by making an anti-inflammatory diet a lifestyle so I want everyone to know that getting better IS possible. Never ever give up on yourself!
That's so good to hear Jola! I'll definitely check out your video and yes I agree with you 100% A change in diet / lifestyle makes a huge difference. :)
Coffe it's not good for endometriosis?
i never said it was in my video@@ralucabanica7090
Bt then in Indian diet & for the middle class Indian its not feasible to go gluten free. As an East Indian it is hella expensive & u cant afford those fancy foods all the time. I wish more dieticians from India spoke about better & more economical food replacements based on research on the Indian Endo population (serious lack of research there). Good video btw
Hi! Thank you for raising this question/concern - it's one I used to have a problem with too.
But over time, I have found Indian food provides me with helpful vegetarian and healthy options which are gluten free. In this video I speak of not eating whole wheat rotis/chapatis, instead having a mix of three gluten free flours which are easily available and way more economical than the expensive gluten-free bread out there. Yes, it requires more effort to think through it all, but there are economical options out there.
What I'll do is put together some of the foods I make for myself which may help.
But yes, I do feel Indian dieticians do need to be better aware of economical options out there rather than leaving it to their patients to do a lot of the research.
thanks for the videos
Hi.. I have a video on the exercises and physiotherapy I go through - I just explain it without a demonstration, so you could check that out. And as for a demo video - that will take some time to come since I also have EDS and am disabled.
here is the video: ruclips.net/video/pyBNEfP_1es/видео.html
@@FootprintsNoBoundariesByShruti okk thank you
so true, Doctor don't know anything. I have experience same thing.
I know what you mean but it might be better to see an endometriosis specialist - they will be able to help you better.
I did a video on the doctors that help me, in case you're looking for a better opinion, check this out:
ruclips.net/video/mVLkivgJ-G4/видео.html
Im 16 and has been diagnosed with endometriosis last year, i had laparotomy and laparoscopic. I also have my fallopian tube remove. I face these symptoms every day which is really exhausted and had to miss school for several days,
I try change my diet and fasting. Fasting help me improve my pain
Hey are you getting pain everyday or??
I finally found someone young too that I could relate to, I'm 18 and I had to lose my final exams and reach the university of my dreams due to that, and the worst is that it's never gonna change or get better so I'm really lost on how I'm going to cop this year and manage studying even through all this physical disorder my body is DAILY 24/24 going through!
diagonised with endo past week.. and i have terrible bowel system and pain throughout the month...endo got cleared by medicines only...but the pain is still there...i am just 22 and i am not ready to have kids.. and if you have knowledge pls tell me like will i have problems in future with my pregnancy?
Hi Annie,
Everyone's body is different and whether you will or you won't have kids is not for me to say. Only your doctor will be able to help you out there. Good luck :)
I m depressed because of endometriosis..what should i do??
Hi Ranjana,
I'm so sorry to hear that you're mentally going through so much because of endo.
The things that help me are: having a good doctor that understands endo well, an endometriosis diet in place, exercise, menstrual hygiene, relaxing the mind as much as possible, but I think what helped me very early on is also going through counselling - I did this as a teenager.
I feel all these factors are very important in helping maintain mental health.
Good luck with it.
Hi di . Aap kese ho .aap good life style or excise ke alava medicine pill bhi leti h kya period ko stop krne ke liye .plz btaiye
Mai apne periods ko stop nahi karti houn. Sirf sahi khaana, exercise, pain killers aur natural pain relief karti houn.
Natural pain relief ke liye meine ye video banayi thhi:
ruclips.net/video/S8WbxjuGIiQ/видео.html
@@FootprintsNoBoundariesByShruti tnx for reply
Hii I am madhu from india I was suffering endometriosis last 7 years still I visited 15 doctor but not a single doctor help me to came out this problem . Now my life is so horrible conditions pls help me 🙏.
Hi Madhu... Please email me on footprintsnoboundaries@gmail.com and I'll be happy to share me doctors information with you in the hope it helps.
I have Same condition dear........visited biggest doctors of India...had laproscopy....but still live in fear😢😢
Whenever I take gluten , pain increased so much
I hope then you're cautious of what you eat.
Diet and excercise do help in endometriosis pain. But when u carve for junk food wht u order frm restaurant..
Aaww I know what you mean and this is such a good question.
Once I'm all set with my diet, I am usually very very good at following it.
I also have some favourite places that serve gluten free and dairy free food - from burgers to pizzas to pasta - it's so delicious that I don't miss the authentic junk food flavours that come with some of these (although pasta isn't junk food but it's gluten).
Plus I think with Indian street food, like street dosa or bhel - I manage to avoid things I shouldn't have.
@@FootprintsNoBoundariesByShruti yeah I have dosa , idli, corn chaat, chana chaat, bhel of street food.. Being in Mumbai it's an added advantage of this things. Jst make more videos of food recipes, dessert too. If possible.