Finding Hope in ME/CFS: Alice's Remarkable Recovery Journey
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- Опубликовано: 30 июл 2024
- Alice shares her intense journey with ME/CFS (chronic fatigue syndrome) recovery including what didn't work, what did work, and the key resources that helped her fully recover.
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VIDEOS MENTIONED IN THIS VIDEO:
🎦 From Severe ME/CFS to Full Recovery: Suzi's Inspiring Transformation - • From Severe ME/CFS to ...
🎦 Powerful Meditation Strategies for ME/CFS Recovery + Sam's Full Recovery Story - • Powerful Meditation St...
🎦 Veronica's Severe CFS Full Recovery Story - • Veronica's Severe CFS ...
CONNECT WITH ALICE & LEARN MORE:
👉 Website - www.alicebowley.mbr.com
👉 Twitter - @alicebowleymbr
👉 Facebook - Alice Bowley- The MindBody Reconnect
👉 Instagram - @alicebowleymbr
LEARN MORE:
📖 Check out my book! Finding Freedom: Escaping From the Prison of Chronic Fatigue Syndrome. View on Amazon - amzn.to/2LtzBcl
LET’S BE FRIENDS:
💌 Sign up to my newsletter - mailchi.mp/3bd95045319b/raela...
💻 Join my Facebook group - / healingmecfs
🌐 Visit My Website - raelanagle.com
📸 Instagram - / raelan.agle
📌 Pinterest - www.pinterest.ca/raelanagle/
🐥 Twitter - / raelanagle
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TIMESTAMPS
00:00 - Meet Alice Bowley
01:20 - The unexpected onset of ME/CFS
03:40 - How Alice was told to accept bedbound life
07:53 - A ray of hope: Could I dance again?
09:40 - Five attempts, zero success
10:12 - Turning Point: A chat with a friend who recovered
12:00 - Why Alice initially didn't believe it
12:47 - What did the therapy look like?
15:32 - A fresh perspective on symptoms
18:47 - What else was helpful for Alice
21:19 - Uncovering the bruises of the past
24:54 - Having enough energy to run around with a toddler
27:44 - A horrible wake-up call nobody wants
30:36 - Why talking to people who have recovered matters
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REMINDER: This is for information purposes only and nothing I share should be considered medical advice. Please make your own assessment, do your own further research, and consult your trusted healthcare professionals before deciding if anything I talk about here might be right for you.
#chronicfatiguesyndrome #cfs #chronicfatigue #mecfs
👉 ✅ Come join me in my new course! 🧠 Brain Retraining 101: For ME/CFS and Long Covid Recovery. Enroll now: raelan-agle-s-school1.teachable.com/p/brain_retraining_101
right off the bat when alice said she already feels so far away from her experience with symptoms i felt so much hope! imagine symptoms being a thing of the past! beautiful -- thank you for sharing.
Thanks for sharing Alice. I'm in the UK too about to start one of the group courses offered by NHS! Problem is I'm already well into mind/body healing and doing brain retraining etc. I'll give it a go anyway it might help. I wish I could afford the mind/body reconnect program! I watched some videos if clare Caldwell. If only it could be offered on NHS. Having said thar its such a tricky thing to do to become aware of our thoughts, symptoms and emotions and find the connection. My biggest aha moment recently was the connection to my childhood. Because it gave me the 'why' that I needed all along. Healing my inner child is so key. Putting g ourselves first! Doing things we love! Im glad you got to have your baby and feel fully well! I got ill after habing 2 x babies 17 months apart and a teenager in tow! Its been hard but now theyre at school and sleeping better im slowly slowly healing but still a way to go. Thanks for sharing x
Laure do you mind telling me how much it is? I can't see anything on their sites, ty (:
My ultimate goal is to cycle my son to his school. Or to cycle at all. Its the only physical activity that made me feel free and happy.
Great goal, I'm rooting for you!
Always great to hear these recover stories, gives hope 🙏
How amazing by instinct I do the same happiness body-mind connection and I feel better, my only problem is being consistent 😬
What an incredible interview. Inspiring.
Very good interview, thank you!
Thanks for sharing Alice, so pleased for you on your full recovery and your dream of being a mother coming true. Thank you for the insight of the mind body experience. Hopefully I can find a way of using this kind of technique for myself❤
Great video thank you for sharing!
Really interesting interview, thank you. Think this might be for me as I'm covering so many other bases.
Thank you so much for this interview, so interesting, healing traumas resonate for me, many recovery stories share this point, i think its really important
Reelan I like when you said "Not just past trauma but what do we keep loading on every day" I have found myself sliding back into old behaviors like obsessing about a really bad haircut and feeding my sweet brain with the same trauma "feelings" over silly things, when a couple years ago I would have been happy the roll over in bed without symptoms I mean really silly to scare my brain with silly stuff like hair, duh? How quickly we forget our priorities. I am a work in progress. Love you both, Ava
I don't know really. I have been meditating for a long time. I eat healthy. Still tired. Not completely bedridden, but not able to work full-time and do all the hobbies I want. I want it back like it was before getting ill.
That said, I haven't been to therapy yet. Maybe it'll help. And I've had a lot of emotional trauma in my life.
The fact that you're still here currently making videos proves that what you said works.... You don't know the hope that this gives me
Not a lot of interviewed recovered people offer actionable advice. And a lot of them want to sell coaching.
I loved Junior's interview for example because he shared very actionable steps to recovery. Steps which people can actually follow.
This interview was a lot of blabla and a sales pitch again.
Thanks for the tip. Yes, I get frustrated about this as well with an enormous amount of CFS media.
I have CFS for over 15 years and I am now doing TMS/Mind Body work AGAIN after doing a variation of The Lightening Process several years ago and it not work for me. If this Mind.Body TMS stuff does not work - I have already had some progress in a matter of weeks to a few months - then nothing will. I seem to have lost the chronic pain pretty quick or should I say it moved a bit which is typical ! but the fatigue is still huge. I am also tapering off BENZO"s at the same time, so very hard to track progress properly. I loved your hack Raelan for just moving or stretching a little bit every day and increasing slowly . I am doing that - Thank you !! 🙏🙏
I'm doing TMS as well. Im following The Pain Free You stuff and love it!
@@privateperson5769 thats great! Yeah im doing his group coaching and love it!
@@kathystoner5239 yeah his group coaching sounds very cool. I kinda flip betweenDan and Nicole. Take the best of both , whatever my mood is. I have to do this for free as i have not worked for SO long I cannot afford to pay for any more courses.
I am SO interested in doing this therapy. I think having continued support ie face to face support every week even online face to face is helpful . I did a mind body course for 3 days but altho improved found it not sustainable, I noticed tho everytime I spoke to the tutor, afterwards my symptoms were way down, but only lasted one day. I could not afford more sessions but I possibly needed to talk to her every week for like one year !! I think being mentored could really really help
8:55 I think if we want to help change the scene of the medical world towards this illness… we have to work on ridding the world of the name CFS… this term caused me to be assailed through mockery, ridicule and lack of taking me seriously from the many doctors I went through for 3 yrs before meeting a good one. Even the doctor who « penned » the name in the 1980’s regrets deeply the name and apologized to the ME community international for penning such a negative name!!
So very true
I didn’t see the link to the meditation method you used. Could you please share it? ❤
In sports athelets that feel good can overtain without conseqences while if you are not feeling good overtraining can lead to a halt of everything. You have to start feeling better mentaly with positiviy and belive and then the boddy will heal and can continue.
Please, please, make a video with someone who is recovered from pppd, chronic subjective dizziness or something similar to that. Thank you!
Ignore this if it's not relevant, but have you ever come across the Dizzy Cook? She healed from vestibular migraine through a combination of medication, diet, and lifestyle changes. She had to go to multiple doctors before getting that diagnosis, because she didn't have head pain, so most didn't suspect migraine.
Ive been let down by doctors all my life! They are in my experience totally dismissive to people with a condition they cant prescribe for!
So very true. I have been to so many Drs. I hate Dr's. The arrogance, the interest in Symptoms only, you understand. I am sending you a big healing hug.
Sounds exactly like mickel therapy to me. Sadly i wasted nearly 1000 pounds on mickel therapy. It got me so angry; i could never identify the "keys" (emotions) , and would end up more in fight or flight than ever.
and reverse therapy!
I think that Clare Caldwell lady she speaks of began with Mickel Therapy before starting the Mind Body Recconnect. I've read reverse therapy x3 times and it's really helped me!
Mickel therapy was created by two Dr's. Dr mickel and the Dr that do s reverse therapy. I think they had a fight and went there separate ways lol
@@lauracowan100 Thanks for mention of that book. I'm going to seek it out. x
@@AnneAlready it's quire short and easy to read. I normally never make it through a whole book. Hope it helps you too!
I was diagnosed with long covid cfs 1 month ago after sleepingan averageof 21 hrs a day for weeks. My neurologist just told me get use to sleeping. I have no desire to do that. This is hard to get use to. I had never even heard of long covid before this.
I’m recovering from Long Covid and ME/CFS since April 2021. It’s quite the journey, but I keep getting better over time (variety of methods, most discussed on this channel). You got this. ❤
@@AnrupB what have you been doing? I am a long hauler too but this just seems to get worse and worse.
@@afshasultana6294 Pacing, trauma healing (EMDR and somatic), early on HBOT and acupuncture helped get me out of the worst of it, and Ayurvedic medicine seeing a doctor has made a huge difference too. Choosing to live differently, letting go of my last career and the version of myself that created ME/CFS (had symptoms long before Covid), and more. Soul level healing!
@@AnrupB wow that sounds great. Keep going. So any ayurvedic practitioner would do or in therr some specific good ones? I am so fatigued these days i can barely get out of bed.
Im living in Combe Down Bath
The mind- body relationship needs to be supported and healed. But what about the spirit and soul?
Exactly if we no a date it would go the fear would go down.dr schubiner says this to
That is so sad how finally being diagnosed with a chronic illness made you worse 😔
Mbr is also brain retraining, but also a way to cope with feelings the right way. But the only thong i didnt like about it is that every symptoms has an underligning trigger. I dont think you need to chase triggers, you rathed change beliefs and behaviours that dont serve you.
You don't need to chase down Triggers. I agree 💯
Then it's back to burn out.
Many mind body treatments made me worse.
Blessings.
Hope triggers dopamine, so maybe some neural pathway was activated which set off a curing thingy that fixed low-grade inflammation in the nervous system, which most of us assume ME basically is. And the circumstances that led to being ill (a Greek refugee camp must be one of the most stressful places on earth, with loads of viruses from all over the planet floating around, probably not a lot of sleep either) were not there anymore, that might help also. I take such stories seriously, but not everyone has the same version of this, some are (luckily!) fixable with 'mind tricks', apparently 👍
I was thinking there must be a dopaminergic effect that produces other physical/hormonal responses that effectuate that Healthful shift!
It really makes sense as we're always told it's the Type A's which are most affected
Really fascinating
Hope is a Blessing 🌷
@@Stak1776 Yeah but most of us need a little more than that I'm afraid.... Perhaps in this case CBT/GET would've worked as well, like it does in a small percentage.
Abilify affects dopamine/serotonin as well & that's been proven to relief ME sometimes, unfortunately the effect doesn't always stick 😒 I think all personality types are susceptible to it by the way, the type A's maybe a wee bit more because they keep going when they should rest.
Neuroinflammation is a stress response, just like nausea and pain are stress responses. It's a terrible symptom, but on its face it's harmless in the long-term; The brain is afraid, and will produce any symptom it can, including inflammation. Consider that IBS; POTS; Sleep Fragmentation; Unrefreshing Sleep; Nausea; Hippocampal Atrophy; Chronic Pain; etc. are all non-fatal symptoms _also associated_ with a history of anxiety and PTSD, and a picture is painted of a brain that's learned to bash the keys on its own control panel.
@@PiegyYTube Pls don't try to down-play ME, which is rarely fatal but it does happen, or any other illness.
@@themupsmuppet Just because a symptom or disease is by and large not fatal does not mean it isn't serious. I don't go on RUclips to argue or accuse, I have more fun things to do with my time. I'm just here to share information, and if anything I've said is misinformed, do tell, not just for me but for others too, including yer mum! Have a nice day
I can’t Nader stand her words/ British accent