I am sorry but ANY child who has such deformities should be given free surgeries or something. My heart goes out to this mother and child and the whole family. Praying for you.
@@tothelostsheepofjacob5787 that has nothing to do with this, + gender reassignment surgery is only given to people who have been through years and years of therapy and hormones, trans people suffer too. its shitty of you to compare the 2
I do not know what can be done, if it were that simple i think it would have happened. The tumors are on nerves if i heard right that makes it beyond current techniques and technology. One day maybe but there is also a chance medical tech might never be capable of it. I think quality of life is the best bet to focus on.
How absurd, this child should have been given treatment immediately. Shame on the government and Healthcare system that have needlessly let this poor boy suffer.
I was just talking about this with my parents! Like, the government pays the libraries, right? And hospitals and treatment is more important, so why not make it free??
Because the payment for those things would come from increased taxes and people don’t want to pay them. Some people can’t, the way the tax system is set up now. Libraries are ESSENTIAL too, but they are cheaper to fund than our medical system. Part of that is because the USA looks at medical care as business. There’s no price cap on these companies, so they charge FAR more for their products than what it costs to make them. (Ex: 30 days of my eye drops used to be about $300. Then when the same medication hit the shelf, it was $20 for a larger bottle.) That’s what Obama Care was originally supposed to address & establish universal healthcare, but they fought it all the way to the Supreme Court and watered down much of what it was supposed to be. Then turned around and blamed it on him that the current state of the ACA is unaffordable for some people. That’s the summary, but it’s a pretty complicated set of circumstances.
och det är hennes superkrafft som gör hon stark och att vara anorlunda är en stark egenskap för om det inte fanns sonna som var anorlunda så skulle vi vara grottmeniskor fortfarande men tack vare att det finns anorlunda personer så har världen och utväcklingen gått frammot. och ju bättre vi axeptera dom som är anorlunda dästå mer utväcklas vår ras (människan)💚💚💚🙄🙄🙄🏳️🌈🏳️🌈🏳️🌈🏳️🌈🏳️🌈🏳️🌈🏳️🌈🏳️🌈🏳️🌈🍀🍀🍀
@@chadthundercock7897 We were all made with a purpose to live freely and fully, his tumors are surely a challenge yet to overcome and once he gets the help he needs, I bet he’ll become the greatest football player.
@@chadthundercock7897 multiple comments just sending prayers not hurting anyone and you constantly try to push them down for their beliefs. Go find something better to do with your time
On their GoFundMe it shows that they have raised shy of a million dollars. Not only is lil homie gonna get his surgery, but all of their lives are changed forever. This right here is what the world is meant to be about.
The fact that she has to raise money to help this poor little guy pisses me off. There should be a doctor willing to give up his time to help this child.
The fact that a woman has to beg and raise funds for such a critical treatment for her son is emblematic of a society and government system that has failed her
He receives SSI , so all medical bills are paid for (courtesy of taxpayers) . Hes receives monthly state disability , she receives monthly govt payment for being his full time care giver. Since she doesn't work, she gets rent paid for.
@@fay8687 IMAGINE if he had the surgery and treatment he needs and they could live a normal life! Wouldn’t cost you all your hard earned tax dollars! would be much better wouldn’t it 🤨
This little guy should definitely get a free surgery there is a doctor who can help this Child for sure.. my heart goes out to this mother, mother of the century
The wellbeing of all humans should be something universally funded. Not every problem that can ruin a person's life in this visual. We as Americans don't need the military budget we currently have. Apparently we could divide our military budget in half and still have the highest military budget in the world. And yet people can't afford Healthcare...
@Bill unfortunately it doesn't pay to cure diseases. Even if it were possible it's a bad investment for a doctor to solve an issue. unfortunately for this kid it would be quite the endeavor because of entwined tissue between the organs. I doubt fatal would be the result but blindness is definitely a high possibility and depending on the condition of his Skull it might not even be reversible...
Ngl, I honestly don't see anything wrong with how he looks. Some deformeties make ya look awful, but he honestly looks like a muppet, and I see no problem with that. Like, its horrible that he is suffering with it, but I don't think his condition makes him look bad, scary, or ugly. Tbh, I think that kid looks cool. I hope someday he can feel that way.
@@johnneygold4088 The fact that you say that he "looks like a muppet" or that you feel on the right to comment on his appearance doesn't sit well with me, ngl.
@@Ekraelum Pero remontate al origen de la palabra, era utilizado para algo que es fisicamente deforme, y eso no esta mal, si tu quieres darle un significado negativo a la palabra haya tu.
I agree!!! Drs in the US are treating people with rare conditions all over the world , why not right here where they live at home in the us ?!?! I pray someone sees his story and will help
@@imhere1303 to some extent yes i think. but also you have "malign" tumors and ones that aren't malign. so i'd figure they wanna know what makes that one so passive that it can grow like that without passing into the blood or any other such thing.
My son was at that globetrotters game here in Huntsville. Every time I see this young man it breaks me but I admire his strength. God bless this family.
One issue is that there is no cure, and I can only imagine constant surgeries and chemo would eventually destroy his body, hence why they stopped his chemo for a year.
if only his disease has a cure but the moment his mother says that it's incurable surgeries are pointless.. even if it's going to remove it still keeps on coming back.. if i am his mother i would rather choose to end his sons suffering than to let him live longer and to suffer more from his disease.. it's really hard but i think it's the only way 😔..
@@shred9178 just say you like killing kids instead finding a solution. If you are that ready to end someone else before exhausting ever resource then you didn't care about that person in the first place.
Unacceptable. No child should ever have to go through this. As a parent, this has to be so hard on her soul. This young man deserves a chance at the a normal life, yesterday.
@@KartelBeatz can’t tell if you’re saying that he doesn’t deserve medical care or if you’re just pulling excuses for why people who need medical attention shouldn’t get it.
That really is the world for it unacceptable, *unacceptable that he can't have what many others dealing with this get, especially considering how rare it is*
This is one strong child. His strength strengthens me for when I wanna quit, It's kids like this as well as my special needs child, that shows me what true strength is about and a mamma's loyal unconditional love only a momma can give. GOD bless you all.
Poor kid. Imagine how hard it is to do everyday tasks. Eating. Brushing your teeth. I hope he gets help for his tumors. He has so much strength! The mother is truly amazing as well.
@Dont BuyMeat DairyOrEggs CausesImmenseHarm GoVegan what are you trying to say??? Like she didn’t know her son was going to have this disease?? so disrespectful.
This needs to go viral! This is something that should be taken care of without a price tag attached! This boy is a human being who deserves to FEEL like a human being!!!!
Amen!!!!! I'm trying to find ways to get help for Amare. I don't know what to do other than beg all of the people that I know to donate to his gofundme page, but I pray that God will show me a way to help him! I've donated $500.00. I wish I had more to give!
@@truth4you349 I was under the impression that if he was at St. Jude's hospital the family would not have any medical bills ... I don't know if the mother knows of that hospital maybe you could go look on their Facebook as I haven't been on Facebook in 5 years and don't want to go back to that . You might want to also suggest a look into BLUSHWOOD BERRY which comes mostly from Queensland , Australia and is said to SHRINK TUMORS especially cancerous tumors very quickly .
Im so sorry. People are filled with poison. I know that myself. This boy deserves to have the happiest life possible and i believe his heart should be able to feel people love him the way he is. Im so sorry people look at you differently, you're a real warrior, i hope you have good days in this earth. God bless you.
Every single pro lifer should contribute money, to him and his mother, and be forced to donate money, to help her with the medical bills. Absolutely heart breaking, he has to live like this.
@Nikkolo Blah blah blah. Your life, is irrelevant to the topic. Stop being Narcissistic and making this about your own miserable life. This poor child is suffering, and pro lifers should set the example and show us how much they care, put those damn protest signs down, and step up to the plate. They talk a lot, and it’s time to start seeing them in action, and this seems to be the right time.
He is a person deserving of respect, but don't act like a kid calling him a monster is some crazy leap. Chop off my arms and legs and see them back wrong, I'm not a monster, but I'm not gonna get up on arms about looking monstrous. The kid needs help. He needs surgery sure (if possible), but more he needs to learn he got dealt a bad hand and needs to develop himself so he can navigate the world and find ppl who see him as valuable. Because it won't be for his looks. Like Andre the giant, this sweet soul has been given a monstrous form. Unfortunately , our RUclips comments are the opposite of that.
This is love from a real mother you're Child is you're Child what ever hé looks like and its a shaime nobody helpt him sometimes I'm a shaimed of mankind terribel
My heart just broke seeing this and it gives so much strength that the mother and the child is battling so hard to live with it. I love you Amari. May god give all blessings and strength to both of you
Like what was said, praying won't do much. The best thing would be to take initiative. However, I don't know what can be done, he's a kid for starters so that would probably make doctors uncomfortable to perform surgery on him, the tumors seem to be a part of his nervous system, they may just come back, and I'd imagine the face is a pretty sketchy place to do surgery without the patient being at risk. Edit: By taking a initiative I mean, such as making a gofundme page for the kid or something.
@Anonymous sorry you feel that way. Prayer does a lot more than you think . God hears the cries of the broken heart and gives us the strength to keep fighting when others say there is no hope. If you don't have a relationship with God or don't believe in him, it won't mean much. I thank God this child is trying to live and goes out into the world to say hey. I'm different, but I'm still here. I hear the mean ugly things some people say. I hear the laughter, the grip of my mother's hand, to help me stand tall. I can't see the world as easily as others, but I can feel it in my spirit when others stare. The most horrible part is when I hear my mother cry. Only the powers in heaven can comfort her. God is the reason that my mother and I can keep hanging on. I'm so glad my mother believes in him and doesn't mind praying. He just answers and doesn't judge anyone. Even those who think he's not real. I think about this child all the time, wondering how he's doing and Believing these two are not only heroes but also a living testimony that life may be hard, but YES, YOU CAN MAKE IT. 🛐♥️🙏🏾😮💨🤲🏾 BLESSINGS ON BLESSINGS TO THIS FAMILY, AND THE DOCTORS WHO ARE USING THEIR SKILLS TO MAKE LIFE EASIER. OH MY GOD, IN HEAVEN TAKE CARE OF THIS FAMILY AND OTHERS WHO ARE SUFFERING
@@lauralaura2070 Is it really that hard to respect other people's beliefs? Crazy how this person had nothing but kind words to say but their beliefs is the only part of the comment that you noticed
Nope she is the Monster here. 👎👎👎👎👎 Did her child give consent to be born with this and suffer whole life? She knew the problem but didn't care. Because her own motherhood ego is more important than the "to be born" child's health issue. She deserves hell. Same about the guy who is father gave birth knowing his genetic disease. They could have easily be parents by adopting, but nope. Their selfishness comes first. The poor kid has to suffer this terrible life because of his parents selfishness. DO whatever you want with your OWN life, but making someone else suffer if a monstrous act. 😡😡😡😡😡
@@me-df9re Exactly what went through my mind, except the adopting part. If she knew the chances and wasn't at the later stages of preagnancy at that point, it's hard to totally sympathize with her. Poor decision. Putting them on some sort of pedestal right now is even harder.
After his cousin said, "I like hangin with him just the way he is" the tears started to flow...I can't imagine. One good thing that has come from this story is that people really do care, and have donated to helping this family and they have exceeded their goal! I really hope there is a Doctor out there who is willing to help this young boy. He deserves a better way of living. May God bless you, your mom and family!
We are closer to Christ's second coming than to genetic medicine. We need to repent and believe and have faith I'm Jesus if we want to have eternal life.
@@kamau9ether179 God is definitely Not Fake and I will pray for you to see that, I Believe it's Evil people that talk about him like that Because they are scared of their already wrong doings. God Bless you read the Bible and you will understand what's going on in the world.
When she said the kids called him a monster as a father that hit me HARD.Hurts know that little boy struggles just to enjoy the basic things we take for granted like running in the Park 😢
Yes it's terrible, the parents should explain this to them. I know if I were a 10 year old kid that would probably scare the hell out of me until someone explained the whole thing.
People don’t understand how strong Amare is, how valuable and loving he is, Amare has one of the strongest supporting cast possible. Mama Amare is what heroes are really made of. May God bless you mama and Amare always. Peace be with you little man.
I'm amazed she kept it together in front of the camera. Imagine having to tell your baby boy he isn't a monster. This mother is stronger than anyone should ever have to be.
@@Sat630 1:25 She mentioned that he was taking a chemo medication that was helping and he’d been taken off for a year for testing. The medication plus surgery may yield amazing results ❤️
I have the same condition and unfortunately there's no cure. Even though I have it, I'm married and have one child who doesn't have it. NF NERUFIBORMATIOIS IS A GENTIC DISORDER. MANY PEOPLE HAVE IT AND DON'T KNOW THAT THEY HAVE UNTIL THEY ARE OLDER. HIS CONDITION IS A BIT LIKE MINES I HAD MANY SURGICAL PROCEDURES TO DEBULK MAJORITY OF THE TUMORS. JUST LIKE HIM I HAVE NF1. I WISH THERE WAS A CURE. WE SUFFER WITH CONSTANT IMAGINABLE PAIN. I wish more people would know about NF and teach their children not to make fun of others who are born different from them.
Years ago there was a man that had this same condition, he worked the Safeway I used to frequent, all the kids and people would be scared to check out in his line, one day I brought my son there to shop and there was this kid crying and scared of seeing him, my son and I calmly walk to his check stand, we pay and as we leave, my son politely says thank you, goodbye and have a nice day 👋 I can tell that little bit of kindness made him so happy. I was so proud of my son for not being scared and knowing how to treat people regardless of how they look.
The thing is sometimes kids are afraid of things that are different. If they have never seen something before a natural reaction is to be scared. Therefore, it’s up to the parents to explain to the kid that it’s ok and not to be afraid.
That is so awesome that went way over even triple the original amount that was asked on the gofundme. Prayers a miracle will be found. Its awesome to see his cousins wanting to hang and play with him and love him for him. Poor little boy being called a monster. My heart goes out to him and his family.
Nothing to complain about while her own son is living a nightmare of a life that will end with abrupt death? Maybe that's exactly the inner weakness that caused her to produce this kid this way? Or is it the black father? They're Americans though so it could also be radiations from anything around them and that they eat or drink. Although, face cancers are extremely common in Africa too. However here there's just so many possibilities piled up that there's more than 1 point to analyze to know why this child ended up like this, and no, it's not casuality.
This is crazy! How can this poor young child not get all the medical help he needs for free!?! No one should have to live through that. I am so sorry child. That's awful, and I'm praying for you.
True this is messed Up he didnt choose to be born like that and no way the average american Citizen could afford that ... I would cross the frontiere and go to Canada and try to obtain Canadian citizenship because then IT is would be at least Taken care of . This is why America isn't the land of the free if innocent childrens cant even afford the medical care they need for free or minimal cost
He definitely is NOT a monster! He’s a beautiful gift and he has a beautiful and loving mother. Prayers to this family for strength to get through this mean world.
Im a 69 year old man, and I am not ashamed to admit that I cried through the video. Utterly heartbreaking that anyone has to go through something like this.
He is a legend and really respectful and polite just a good kid even with what he has to deal with i wish i was rich so i could give his mum the money she needs to get him the best medical treatment in the world
@@Fillthesanityharsh words but it’s better than a life of pain and suffering, not being able to do anything etc, poor kid and deserves better but if I was the same I would agree with what u say
I hope this video ends up in front of someone who is capable and knowledgeable enough to be in a position to help this child. He truly deserves to be helped. Much love to amare and his family
I am praying so hard for you. My own daughter 31 passed away at the end of May 2024 from NF 2. She died at home, thank God it was peaceful. That’s where she wanted to be at home with her mom. I laid beside her the whole time and talked to her and her heart stopped. My beautiful girl had had enough she couldn’t take any more surgeries luckily she had the choice, we live in Canada so thank God our healthcare is free. I’m so so sorry you have to pay for surgeries It’s just not right. I’m sending you love and prayers and I wish you all the best in dealing with this awful disease.❤❤❤❤❤
And his sweet cousins hanging out with him & loving him the way he is. Oh my goodness Lord I hope this sweet boy can get the tumors removed & have like a facial reconstruction and have more of a normal appearance, bless his heart. 🙏🏼🙏🏼
I am a 74yr old man and this kid makes me cry because I got grandkids and great grad kids throughout the technology that they have nowadays I pray for a miracle for him
Stop making comments saying you should stop complaining! You can complain, still be grateful and empathetic. It doesn’t make you a bad person for complaining! Each of us has different struggles.
People who are saying that I feel are so heartless. She’s tell her and little man’s story….thats what she’s suppose to do. I really don’t understand some humans. I came to see if there were any updates this sweet young man . I really really hope he got the help he needed
At times like these I’m truly humbled. I complain about wanting clear skin or a better body when this trooper has lived with this condition his whole life and is only able to BARELY see from one eye. Thank you for sharing up your story with us.
This kid deserves respect and love . He’s special because he was born this way . When I was little my mom and dad told me when you see people who look different they’re just like you and me.
@Wernher von Braun You don't have to donate to the go fund me. She's asking for help because the treatments are expensive but when it's your child you don't worry about the cost but again helping anyone on go fund me is optional but like I said when it's your child you will look for any option. That's not making it other people's problem it's asking for help when you need it which we all do through our lives, she's the one physically caring for him keeping him as happy as possible. No matter how someone looks it is ok to remember they are people like everyone else and should be treated as such. It is ok cause you're no different when it comes to being a human being and any physical imperfections can be addressed if so desired. We're all perfectly imperfect to some degree.
@@nicoctane1669 that’s right . This mom is asking for help and support because he kid needs surgery . Some surgery’s can be very expensive but if you help a family out it’s always nice to share support.
@Wernher von Braun my dad once told me. People may seem different just because they’re facing a health condition does seem scary and not something to worry about. But sometimes it’s right to share support and respect. Like me I live in a world of life and remembering where I’ve been in the world. What I see is people being people .
I recognize watching these type of videos that a lot of people fail to recognize that all humans are equal and this could easily be any of us in this situation so be humble and be kind and teach our children to do the same as well ! Hearing how kids that are unique get bullied by other kids grieves my heart
My heart hurts for this little boy. How can anyone make fun of someone who needs more support than anything. He can’t help what his appearance looks like, it’s his heart that matters. We need to love him, and his dedicated mother.
Exactly if you see someone who has problems or is less fortunate than you ( not just in money but with health) why would you try and make thier life harder isneatd of trying to help them giving them the extra help they need. Those ppl need to think about how they would feel if they were him.
People can be so Cruel. You Never insult, bully, humiliate someone because they look different. This child was born with a Medical condition. Mom and Amarc you two keep being Strong. The Lord will make a way. I am sending up Prayers 🙏 right now that a Specialist takes Amarc's condition on and steps in Immediately to remove these huge tumors from his face so his Mom and loving Cousins and the whole world will finally be able to see this Beautiful child Smiling and Happy. God Bless You. Love 💕
I don't have kids but when I do, they will grow up learning about people like Amare. No one with any type of disability should ever be outcast or made fun of and that starts with parents educating their kids and encouraging empathy.
Respect is absolutely important but people get impressed and little children could be scared, sadly it's inevitable. Even adults could be surprised seeing this poor child walking down the street, sometimes it's just complicated to not stare
Her having to raise money for his treatment is sickening. This makes that Luigi guy even more of a hero. People are sick of the medical system and what they turn away. How sickening that this young man can’t get the help he deserves
They diserv a happy life, i pray for the kid to get better and to stay strong, the mother is such a brave woman. May god protect them both and help their difficulties.
This really made me tear up. Can't imagine the pain and stress this mother must be going through to see her child like this. They both really inspire me in my own life..
I was holding them in until his cousin spoke and just wow. Kids are so innocent and precious. I'm so happy he has such good cousins that keep him safe and they wouldn't trade him for the world. Beautiful.
He deserves all the help he can get . This world as an adult is a cruel world, some people don’t grow out childish behavior. The mother is beyond resilient, she is a phenomenal woman who wants the best for her son. Unconditional love is an intangible feeling that not everyone has the capacity to acknowledge it.
We got people bitching left and right about the stupidest stuff and then there’s someone who has to live like this. Stay strong little man! You’re braver and stronger than most.
It would be wrong to invalidate someone's pain based off of this video. I do agree though that you could be more thankful for things just based off of learning this young man's life.
I believe it was irresponsible of this lady to have given birth to this child given the information she had. Her decision brought about the suffering this boy has been going through. Now that he is in this world everything must be done to help him. However, anyone reading my comment can think whether they would like the life this boy has.
I pray that the doctors find a cure. He is so innocent. I can’t even imagine what you both are going through. Mom, you are doing a wonderful job!! Stay encouraged!
@@okjeffy6581 Agreed. If I could talk to god i would bribe him to change his crazy ways. In fact I would give all my money for him to change his craziness
I feel so bad. His mum is such a hero. Supporting him and everything. And he is also such a fighter against those who discriminate. Just being able to be whatever he wants to be
I wouldn't say she's a hero, but a really great mother. unfortunately there aren't that many good mothers in the world, so when we see something like this, we think that they are a hero, although they are doing what a good parent is supposed to do.
I feel so bad for this poor child. No one should have to suffer such a illness like this. Doctors should give out free treatments to people with such conditions. Hope he's getting better and that they are both ok.
I love that people think surgery cost is only a work of surgeon. If surgeon worked for free surgeries would be maybe 20-30% cheaper at most. Guys, costs of medical equipment, drugs, other staff, anesthesiologist etc. nurses, hospital. Especially in USA. Some countries have cheap or almost free medical insurance but then it is covered by government.
@@magearamil8626 Absolutely true. So...why doesn't the US have free healthcare? Cuzz i think even some 3rd world countries would have free healthcare before the US does...
@@dudemetslagroom8065 pois é nós que somos do Brasil temos qualquer serviço de saúde gratuito as vezes demora pela grande demanda mas temos! E estamos longe de um país de primeiro mundo
Watching this made me realize that most things I tend to worry about are just not as big as they may seem. For one thing, I’ve struggled for a long time with accepting my appearance; but after seeing this kid and what life is like for him, I understand more that I’m pretty blessed to look more “normal.” I don’t have to go through what he does, like getting treatment at the hospital, being limited from certain activities, or having difficulty seeing fully. So I know for sure that my struggles still matter, it’s just that I’ve got a lot that I forget to appreciate. Also, I love how Amare is still just himself. As a fellow teen I’m gonna try and do the same, even if it’s hard.
in the video, the screenshot they used for their gofundme page showed they had received $53,000 out of a $120,000 goal. i checked the page to donate a bit myself, and i'm happy to say that they now have over $400,000 in collected donations!!!! i really hope Amare can get the surgery and treatment he deserves, and I hope that we might get to see him again afterward living as normal of a life as possible--I can think of no one who deserves such happines more!!
@@lululovlie6175 I don’t think surgeons would be doing surgeries “for free.” OP was clearly saying the kid’s healthcare should be state subsidized, but whatever your read is I’m glad you’re happy with your situation. You should also be thankful you weren’t born with such a horrible condition as this kid and be forced to live in a world with horrible people such as YOU saying this CHILD should somehow get a job and pay for his own surgeries. Disgraceful
@@lululovlie6175 yes you said the mother is responsible to pay for the medical bills, that she assumed a risk when it came to getting pregnant. "anyone who decides to get pregnant assumes responsibility...." what you said is very literal. the only thing i'm making assumptions about is you being happy with your lot in life. you being unhappy with your lot in life actually makes more sense. only miserable human beings would take the time to post a comment about how this child should not receive free medical care. what am i doing to you that people are doing to this kid? i'm calling out your ridiculously stupid and calloused opinion. where's the equivalency in your eyes? you made a very literal statement. any REASONABLE person with an ounce of compassion would draw the conclusion that you're a dirtbag of a human being for saying something like that.
Yes we need universal care here in the us now!! Too many people are suffering and dying in this for profit healthcare environment. Paying insurance companies billions to be a middleman while we pay the highest costs for care and receive poor care. Absolutely unacceptable here in the great US of a for them to treat the citizens this way.
Amare, you are a hero. Your strength to get up each day and keep striving is remarkable. I love that you have things that you like and are helpful. Thank you for sharing your story. It is through you that others will have the courage to share their stories with the world, unafraid.
I don’t quite understand the bit where the mum says she knew there was a 50/50 chance her child would have this genetic condition…Did it mean she went into it knowing about that high chance?? Or she only found out after conceiving.
@@Smile936 no means her fault sad but true she was ether drinking or using while pregnant so technically her fault in the end we can't pick who brings u in this world
I cannot imagine watching my own son suffer infront of my eyes like this. She is so strong and amazing and so is her son. Her son deserves the best life ever, with vision.
My biggest respect to this awesome kid and his mom.. the only monsters are 99 percent of us who judge this kid for what he looks likes... God bless you and your kid.. you're an angel..
@@diegodig9 There is no surgery or cure for this. There is treatment...which he's getting. He's insured. His chemo treatment must stop from time to time because it does a lot of harm. They're not raising money for medical care. They have that. Theyre raising money for a house and family expenses. Please go and donate generously.
@@susansmith493 Thats not the point of my comment... The problem Im talking about is that in America u cant have access to surgeries, medical trathement without money
@@diegodig9 Go to any ER, in any state. Patients are treated all the time, free of charge. For a very small amount, you can get Obamacare.:) This child would not even be given the chemo treatment in a socialized medicine country because it's incurable. US hospitals are FILLED with patients looking for care that they were denied or that is simply too advanced for socialized medicine hospitals. US hospitals are also filled with surgeons and physicians from other countries. If they're the BEST they want to be paid .... just like you want to be paid. Want govt healthcare? Go to any VA in this country. You'll get to see exactly what govt healthcare is. This is not as simple an issue as you seem to think. You think socialized med is exactly what is avail in the US ... just free of charge. Not by long shot.
This is so sad..Poor baby.. The world is so cruel..I don’t know if I would’ve took the chance of having my child. Especially, once I found out while I was pregnant. I would have not wanted him to have that kind of life..Prayers and strength to your son and you..
She’s a great Mother, he’s a great kid and all of his siblings and cousins are great support. I wish all of them the best life. We all hope the doctors find a cure to make the tumor go away and heal completely.
There are billionaires sitting on money that they will never spend in 100 lifetimes and they can’t help this poor kid? This world is completely broken.
@@VictornHart how do you know? How do you know a millionaire didn’t throw in cash to the gofundme? You don’t. You’re just saying that because you have preconceived notions.
cant understand why all the people with vast fortunes cant pay for this lads medical care loose change a few million to them come on celebs get your hand in your pocket
![Felix "Unfair" | [Stray Kids : SKZ-PLAYER]](http://i.ytimg.com/vi/Oswujxm2Ag0/mqdefault.jpg)
If you’re interested to hear stories about other young people with Amare’s condition, you may like this: ruclips.net/video/cWb504zDuuc/видео.html
@@shinyhunteralechow is he now?
Can we please get an update on this family?
I'm the man for this vlog 🫵
You don't know what a vlog is @@shinyhunteralec
Pou
I am sorry but ANY child who has such deformities should be given free surgeries or something. My heart goes out to this mother and child and the whole family. Praying for you.
@@tothelostsheepofjacob5787 that has nothing to do with this, + gender reassignment surgery is only given to people who have been through years and years of therapy and hormones, trans people suffer too. its shitty of you to compare the 2
Agreed
I do not know what can be done, if it were that simple i think it would have happened.
The tumors are on nerves if i heard right that makes it beyond current techniques and technology. One day maybe but there is also a chance medical tech might never be capable of it. I think quality of life is the best bet to focus on.
I agree. Makes me wish I were a surgeon.
@@BionAvastar3000 Dude this and gender reasignment arent the same thing.
How absurd, this child should have been given treatment immediately. Shame on the government and Healthcare system that have needlessly let this poor boy suffer.
I was just talking about this with my parents! Like, the government pays the libraries, right? And hospitals and treatment is more important, so why not make it free??
This is true but also, if you Know theres a very high chance that your offspring will be born with a genetic disease...you absolutely should not...
Because the payment for those things would come from increased taxes and people don’t want to pay them. Some people can’t, the way the tax system is set up now. Libraries are ESSENTIAL too, but they are cheaper to fund than our medical system. Part of that is because the USA looks at medical care as business. There’s no price cap on these companies, so they charge FAR more for their products than what it costs to make them. (Ex: 30 days of my eye drops used to be about $300. Then when the same medication hit the shelf, it was $20 for a larger bottle.) That’s what Obama Care was originally supposed to address & establish universal healthcare, but they fought it all the way to the Supreme Court and watered down much of what it was supposed to be. Then turned around and blamed it on him that the current state of the ACA is unaffordable for some people. That’s the summary, but it’s a pretty complicated set of circumstances.
Exactly, but money is being sent to other countries and not using it to take care of the citizens like this child. SHAMEFUL!!
@@topazmiranda95 But yet in still our government send BILLIONS of dollars to other countries. 🙄
This kid has more psychological strength than all of us.
Mental strength
The last of us clicked irl
NOT BEING SERIOUS TOWARDS HIM!!!
❤ so true
och det är hennes superkrafft som gör hon stark och att vara anorlunda är en stark egenskap för om det inte fanns sonna som var anorlunda så skulle vi vara grottmeniskor fortfarande men tack vare att det finns anorlunda personer så har världen och utväcklingen gått frammot. och ju bättre vi axeptera dom som är anorlunda dästå mer utväcklas vår ras (människan)💚💚💚🙄🙄🙄🏳️🌈🏳️🌈🏳️🌈🏳️🌈🏳️🌈🏳️🌈🏳️🌈🏳️🌈🏳️🌈🍀🍀🍀
Not true you say that because you feel bad for him and his mom but ig I will say that ):
Some of us dont know how lucky we really are
This woman is the definition of a mother. God bless her and her child.
Your god's clearly done enough.
@@chadthundercock7897 We were all made with a purpose to live freely and fully, his tumors are surely a challenge yet to overcome and once he gets the help he needs, I bet he’ll become the greatest football player.
@@chadthundercock7897 multiple comments just sending prayers not hurting anyone and you constantly try to push them down for their beliefs. Go find something better to do with your time
@@chadthundercock7897 **tips fedora**
@@chadthundercock7897 The more you suffer, the higher your rank in heaven is
On their GoFundMe it shows that they have raised shy of a million dollars. Not only is lil homie gonna get his surgery, but all of their lives are changed forever. This right here is what the world is meant to be about.
💐💐💐🙏🏾🙏🏾🙏🏾🙏🏾
Faith in humanity restored
*ember restored sound
Ok I want those AI technology, technical doctors, surgeons, and face modellers work together to fix him and win over his genetic issue!
Good!!! Want update please 🤞
Please update us! Consider sharing his journey.
Under all that excess skin - all I can see is a strong, kind young man.
👁
Yessssssssss
Same here
He's so brave.
@@leahc.4749 you can check the video description there's a gofund link
2:55 does someone know the background song’s name? :)
Same, the only thing I see other than that is just excessive skin, I said the same thing when I saw this.
The fact that she has to raise money to help this poor little guy pisses me off. There should be a doctor willing to give up his time to help this child.
"child" ts an alien
@@stxresbro.
@@stxressybau
@@stxresbro, there's good and bad times to joke. Ts a bad time
@@stxres grow up
The only monsters are the people making horrid comments about an innocent little boy. Hoping you both have the happiest lives 👍🏼
❤️🙏🏻
I'm such a really good singer 🥰🔪 ruclips.net/video/Lz5x6vFqFN0/видео.html
👍🏻
Bless him!
i agree bullies should go to hell
The fact that a woman has to beg and raise funds for such a critical treatment for her son is emblematic of a society and government system that has failed her
But yet morons will start a go fund me and raise thousands of dollars for a splinter!
Exactly! In the state of Oregon a child can have a sex change without the parents consent on the taxpayers dollars!
Not the govs fault
He receives SSI , so all medical bills are paid for (courtesy of taxpayers) .
Hes receives monthly state disability , she receives monthly govt payment for being his full time care giver. Since she doesn't work, she gets rent paid for.
@@fay8687 IMAGINE if he had the surgery and treatment he needs and they could live a normal life! Wouldn’t cost you all your hard earned tax dollars! would be much better wouldn’t it 🤨
This little guy should definitely get a free surgery there is a doctor who can help this Child for sure.. my heart goes out to this mother, mother of the century
The wellbeing of all humans should be something universally funded. Not every problem that can ruin a person's life in this visual. We as Americans don't need the military budget we currently have. Apparently we could divide our military budget in half and still have the highest military budget in the world. And yet people can't afford Healthcare...
@Bill unfortunately it doesn't pay to cure diseases. Even if it were possible it's a bad investment for a doctor to solve an issue.
unfortunately for this kid it would be quite the endeavor because of entwined tissue between the organs. I doubt fatal would be the result but blindness is definitely a high possibility and depending on the condition of his Skull it might not even be reversible...
@@bill855 For our Creator YAHWEH, there is nothing impossible! We pray for mercy and a miracle only HIM can do!
Its fake man
....smh
@@hjames78 if this is fake or not, our Creator is the only one who knows and will put this situation to shame or for His glory.
My heart is breaking watching this. I can’t stop crying. That child stronger than anyone I know. You’re doing great as a mom. Sending my love.
He’s not a monster. He’s a brave, young, and a beautiful boy. Everybody should be respected by the way they look.
La definicion de mounstruo no es de alguien malo, es del alguien que a simple vista no es algo normalmente bonito.
Ngl, I honestly don't see anything wrong with how he looks. Some deformeties make ya look awful, but he honestly looks like a muppet, and I see no problem with that. Like, its horrible that he is suffering with it, but I don't think his condition makes him look bad, scary, or ugly. Tbh, I think that kid looks cool. I hope someday he can feel that way.
@@rodrigobenavidez395 Llamarle monstruo a una persona con una condición médica/con una deformación sigue estando mal, lo mires por donde lo mires.
@@johnneygold4088 The fact that you say that he "looks like a muppet" or that you feel on the right to comment on his appearance doesn't sit well with me, ngl.
@@Ekraelum Pero remontate al origen de la palabra, era utilizado para algo que es fisicamente deforme, y eso no esta mal, si tu quieres darle un significado negativo a la palabra haya tu.
I cannot believe this child isn’t being treated regardless of the cost, that little boy deserves something. Absolutely heartbreaking.
Wut
I agree!!! Drs in the US are treating people with rare conditions all over the world , why not right here where they live at home in the us ?!?! I pray someone sees his story and will help
you'd have thought they'd want to study him cos most people would die in 5 seconds with tumors like that.
@@megaxenu753 Does it depend on where the tumor is growing, what it's obstructing, and if it's cancerous? Along with blood supply.
@@imhere1303 to some extent yes i think. but also you have "malign" tumors and ones that aren't malign. so i'd figure they wanna know what makes that one so passive that it can grow like that without passing into the blood or any other such thing.
I just looked at his gofundme they have raised over a million dollars for him. That's incredible.
oh thank god
Does anyone have an update on how he’s doing?
@@hanatemonstas4485 they have raised over a million dollars for him and he has had several successful surgeries
Do you know if they got him a surgery? Although idk if there’s a surgery that could get off all the excess skin
For a million bucks they'd better give him a better haircut
My son was at that globetrotters game here in Huntsville. Every time I see this young man it breaks me but I admire his strength. God bless this family.
did they manage to give the boy treatment and surgery? it seems there aren't much update on how he's doing.
Why aren't we taking care of people like this? This cause is well worth my tax dollars. You have my support. Kudos.
One issue is that there is no cure, and I can only imagine constant surgeries and chemo would eventually destroy his body, hence why they stopped his chemo for a year.
if only his disease has a cure but the moment his mother says that it's incurable surgeries are pointless.. even if it's going to remove it still keeps on coming back.. if i am his mother i would rather choose to end his sons suffering than to let him live longer and to suffer more from his disease.. it's really hard but i think it's the only way 😔..
Because it's the USA.In Europe all médical Care is free
@@shred9178 just say you like killing kids instead finding a solution. If you are that ready to end someone else before exhausting ever resource then you didn't care about that person in the first place.
@@fermeautonomelotfrance76 That's not true if you recall Charlie Gard, they just deny the treatments you want
This child deserves all the care in the world. I can't imagine how he must feel about himself
he's feeling good
is it painful?
I hope he feels loved and cherished because he is. I hope he doesn’t think his mom will give up or people won’t help him
@@ellaelliott4415 you're so cruel!
@@rj_0401 You're terrible at being a troll.
Unacceptable. No child should ever have to go through this.
As a parent, this has to be so hard on her soul. This young man deserves a chance at the a normal life, yesterday.
Yesterday? More like years ago! I can’t imagine all the terrible things he must have gone through! I hope he is doing better nowadays.
Doctors are already busy enough, not their fault.
@@KartelBeatz can’t tell if you’re saying that he doesn’t deserve medical care or if you’re just pulling excuses for why people who need medical attention shouldn’t get it.
That really is the world for it unacceptable, *unacceptable that he can't have what many others dealing with this get, especially considering how rare it is*
@@KartelBeatz they should be busy with him, if that was your child you wouldn't have uttered such trash
Poor baby. I hope he has peace. He’s such a good lad and he is a strong warrior.❤
This momma needs some support....in every way. And also her child.
I'm such a really good singer 🥰🔪 ruclips.net/video/Lz5x6vFqFN0/видео.html
Agreed. I wrote something similar. They need kindness.
This is one strong child. His strength strengthens me for when I wanna quit, It's kids like this as well as my special needs child, that shows me what true strength is about and a mamma's loyal unconditional love only a momma can give. GOD bless you all.
He needs his father.
I agree wish I could help some how...🙏God bless her and her son.... amen
Poor kid. Imagine how hard it is to do everyday tasks. Eating. Brushing your teeth. I hope he gets help for his tumors. He has so much strength! The mother is truly amazing as well.
Right smh 💔 I pray some doctors are able to truly help him get rid of or better manage this condition 🙏🏽💓
@@John-ru4gz is he miserable?
@Dont BuyMeat DairyOrEggs CausesImmenseHarm GoVegan what are you trying to say??? Like she didn’t know her son was going to have this disease?? so disrespectful.
@Dont BuyMeat DairyOrEggs CausesImmenseHarm GoVegan then why did your mother have you
@Dont BuyMeat DairyOrEggs CausesImmenseHarm GoVegan or rather your breeder
This needs to go viral! This is something that should be taken care of without a price tag attached! This boy is a human being who deserves to FEEL like a human being!!!!
Absolutely 💯
Amen!!!!! I'm trying to find ways to get help for Amare. I don't know what to do other than beg all of the people that I know to donate to his gofundme page, but I pray that God will show me a way to help him! I've donated $500.00. I wish I had more to give!
@@truth4you349 I was under the impression that if he was at St. Jude's hospital the family would not have any medical bills ... I don't know if the mother knows of that hospital maybe you could go look on their Facebook as I haven't been on Facebook in 5 years and don't want to go back to that .
You might want to also suggest a look into
BLUSHWOOD BERRY which comes mostly from Queensland , Australia and is said to SHRINK TUMORS especially cancerous tumors very quickly .
@@gardensofthegods I will definitely look into this. Thanks for the suggestions.
@RAP IG LIVES True, surgery isnt a special treatment. If this child was in my country the surgerys will be totaly free, he NEEDS surgery
Im so sorry. People are filled with poison.
I know that myself.
This boy deserves to have the happiest life possible and i believe his heart should be able to feel people love him the way he is.
Im so sorry people look at you differently, you're a real warrior, i hope you have good days in this earth.
God bless you.
HE IS DEFINITELY NOT A MONSTER he has such a pure soul I wish him and his mom for the best
Poor baby. He needs help and I can't believe there isn't any way to help him with donations or Medicaid. There should be some way to help him.
@@hessinnen1212 hell hell hell 😭
@@hessinnen1212 😐
@@hessinnen1212 ok, now head out before i gind your house
@@hessinnen1212 hella disrespectful
What a terribly unfair illness. So hard to see a young boy going through such an incredibly difficult situation.
Exactly. He doesn’t deserve it at all .
Every single pro lifer should contribute money, to him and his mother, and be forced to donate money, to help her with the medical bills. Absolutely heart breaking, he has to live like this.
@Nikkolo Blah blah blah. Your life, is irrelevant to the topic. Stop being Narcissistic and making this about your own miserable life. This poor child is suffering, and pro lifers should set the example and show us how much they care, put those damn protest signs down, and step up to the plate. They talk a lot, and it’s time to start seeing them in action, and this seems to be the right time.
That's a shame he came from bad stock...
I know right
Monsters are those who discriminate against him. He is just a child. Blessings to him and his mother.❤
Exactly. He is a person too. He has feelings. These idiots are just heartless eight year olds on their mom’s iPad making fun of an innocent child.
He is a person deserving of respect, but don't act like a kid calling him a monster is some crazy leap.
Chop off my arms and legs and see them back wrong, I'm not a monster, but I'm not gonna get up on arms about looking monstrous.
The kid needs help. He needs surgery sure (if possible), but more he needs to learn he got dealt a bad hand and needs to develop himself so he can navigate the world and find ppl who see him as valuable.
Because it won't be for his looks. Like Andre the giant, this sweet soul has been given a monstrous form.
Unfortunately , our RUclips comments are the opposite of that.
Truth❤❤❤❤❤
Fk the haters he is loved more than them. The Almighty made you this way to show humanity a lesson.
This is love from a real mother you're Child is you're Child what ever hé looks like and its a shaime nobody helpt him sometimes I'm a shaimed of mankind terribel
My heart just broke seeing this and it gives so much strength that the mother and the child is battling so hard to live with it. I love you Amari. May god give all blessings and strength to both of you
This mother wins for having the biggest heart ever...God Bless Her! 100
God bless her? The same god that did this to her child?
Amen!
@@tsaki_titan how rude to get on someone's comments and beliefs and taint it with your negativity.
God blessed here and cursed his child
@@CMchyy he is literally right
Praying a kind hearted surgeon or surgery group will offer their services. What an amazing wonderful mom this woman is. Stay strong Amare!
Praying wont help anybody
Like what was said, praying won't do much. The best thing would be to take initiative.
However, I don't know what can be done, he's a kid for starters so that would probably make doctors uncomfortable to perform surgery on him, the tumors seem to be a part of his nervous system, they may just come back, and I'd imagine the face is a pretty sketchy place to do surgery without the patient being at risk.
Edit: By taking a initiative I mean, such as making a gofundme page for the kid or something.
@Anonymous sorry you feel that way. Prayer does a lot more than you think . God hears the cries of the broken heart and gives us the strength to keep fighting when others say there is no hope. If you don't have a relationship with God or don't believe in him, it won't mean much. I thank God this child is trying to live and goes out into the world to say hey. I'm different, but I'm still here. I hear the mean ugly things some people say. I hear the laughter, the grip of my mother's hand, to help me stand tall. I can't see the world as easily as others, but I can feel it in my spirit when others stare. The most horrible part is when I hear my mother cry. Only the powers in heaven can comfort her. God is the reason that my mother and I can keep hanging on. I'm so glad my mother believes in him and doesn't mind praying. He just answers and doesn't judge anyone. Even those who think he's not real. I think about this child all the time, wondering how he's doing and
Believing these two are not only heroes but also
a living testimony that life may be hard, but YES, YOU CAN MAKE IT. 🛐♥️🙏🏾😮💨🤲🏾 BLESSINGS ON BLESSINGS TO THIS FAMILY, AND THE DOCTORS WHO ARE USING THEIR SKILLS TO MAKE LIFE EASIER. OH MY GOD, IN HEAVEN TAKE CARE OF THIS FAMILY AND OTHERS WHO ARE SUFFERING
@@lauralaura2070 Is it really that hard to respect other people's beliefs? Crazy how this person had nothing but kind words to say but their beliefs is the only part of the comment that you noticed
Hi I have a doctor that can perform the surgery to remove these tumors he's done it before can someone please get me in touch with this family????
His mother is a strong woman. Praying for this family.
yeah she's incredible
Nope she is the Monster here. 👎👎👎👎👎 Did her child give consent to be born with this and suffer whole life?
She knew the problem but didn't care. Because her own motherhood ego is more important than the "to be born" child's health issue. She deserves hell. Same about the guy who is father gave birth knowing his genetic disease. They could have easily be parents by adopting, but nope. Their selfishness comes first.
The poor kid has to suffer this terrible life because of his parents selfishness. DO whatever you want with your OWN life, but making someone else suffer if a monstrous act. 😡😡😡😡😡
@@me-df9re ah but killing him in the womb cut alive into disembodied members as an innocent baby, isn't making him suffer??? What planet??!!!
@@me-df9re interesting take on this situation 🤔 not sure I totally disagree
@@me-df9re Exactly what went through my mind, except the adopting part. If she knew the chances and wasn't at the later stages of preagnancy at that point, it's hard to totally sympathize with her. Poor decision. Putting them on some sort of pedestal right now is even harder.
It’s stories like this that humble me real quick
After his cousin said, "I like hangin with him just the way he is" the tears started to flow...I can't imagine. One good thing that has come from this story is that people really do care, and have donated to helping this family and they have exceeded their goal! I really hope there is a Doctor out there who is willing to help this young boy. He deserves a better way of living. May God bless you, your mom and family!
Such Kind Words🙏🏿💞
Amazing to know that they've exceeded their goal! I pray that God puts the right doctor on their way! 🙏🏻✨
🙏🏽🙏🏽🙏🏽
Honestly, the only thing people need is someone who is there for them, no matter the situation
God loves you baby You 're beautiful baby ❤ Sherry
This poor child. My heart breaks for him. I hope we see huge breakthroughs in genetic medicine in the near future.
We are closer to Christ's second coming than to genetic medicine. We need to repent and believe and have faith I'm Jesus if we want to have eternal life.
She said she knew their was a chance of him having this disease while she was pregnant and she still gave birth anyways? 😳
@@xxbublebee123 I already have enternal life don't need no fake lord to achieve that lmao.
@@kamau9ether179 Have fun with your eternal existence deep down where not even the worm dies. Mark 9:44-48
@@kamau9ether179 God is definitely Not Fake and I will pray for you to see that, I Believe it's Evil people that talk about him like that Because they are scared of their already wrong doings. God Bless you read the Bible and you will understand what's going on in the world.
When she said the kids called him a monster as a father that hit me HARD.Hurts know that little boy struggles just to enjoy the basic things we take for granted like running in the Park 😢
Me too as a mama of a a three year old. I feel for both of them.
Yes it's terrible, the parents should explain this to them. I know if I were a 10 year old kid that would probably scare the hell out of me until someone explained the whole thing.
2:55 does someone know the background song’s name? :)
@@ShedowGame nah
I got a lump in my throat when she said that. Kids are cruel
God. Please help give this family strength. Bless this young man!
This woman is a true mother who never despises her child. I pray to God to give this family a normal life.
@@Charliefox71 wht tht mean?
@@rj_0401 u r pathetic making comments like that GROW UP!!
@@rj_0401u weird bro
@@rj_0401 hiding from a screen saying this but wouldn’t say it to his mother would you
@@nibblingconscience i would
People don’t understand how strong Amare is, how valuable and loving he is, Amare has one of the strongest supporting cast possible. Mama Amare is what heroes are really made of. May God bless you mama and Amare always. Peace be with you little man.
You said it all. Amen. May this little man grow to inspire others. Sweet angel.
Me and my children were trying to contact them. This really touched us ..my kids want to friend him ...they have not stopped bringing it up...
They seem like a really nice family. The other two sons seem really nice too.
@@jhowardsupporter That's his cousins. What an amazing family!!
@@glowil7883 Oh his cousins. I watching this without sound. My mistake 😅
I'm amazed she kept it together in front of the camera. Imagine having to tell your baby boy he isn't a monster. This mother is stronger than anyone should ever have to be.
Cryptaki, it also amazes me how mother hold herself: with such a dignity. I sincerely admire this Mother.
I agree. My mom told me there were no such thing as monsters. This poor lady has to convince her son that hes not.
@@maggs131 atleast she is adult but just imagine the situation of child 😐
Well she didn't keep it together did you see the tears
nah ur actually over exaturating liked this video before but sh your comment is so corny ima unlike the vid
I can't believe I complain for so many small things in my life. I pray for this strong little boy 🙏❤
This case needs to be insantly funded by the state. No human being should go without help in this.
Yes with all the money the state gives just anybody why not this innocent angel?
I agree 100%
i agree. the tumors are taking his eye sight away so thats a medical emergency to have them removed
Things that make me hate paying taxes that go into congress pockets and not into healthcare
Your absolutely right, but I'm not sure how altruistic the Alabama healthcare system is 🤨
I just donated and I am glad to see that they almost raised $600000! I truly hope something can be done to help him!
2:55 does someone know the background song’s name? :)
I can’t donate but am happy to see they made SO much more than they had set up for. Hopefully this can get him the treatment.
Isnt the growths incurable ?
@@Sat630 he can get surgeries tho. Or do smthing.
@@Sat630 1:25 She mentioned that he was taking a chemo medication that was helping and he’d been taken off for a year for testing. The medication plus surgery may yield amazing results ❤️
please god let this young man get the help he needs, stay strong mom.
Uhhh I don’t think god cares. You can pray all you want but it will have to be a doctor or someone real to give him the help he needs
@@Micheal1122 no kidding....
@@Micheal1122 < 🐕💩
Amen
@@Micheal1122 If he didn’t care then he wouldn’t be alive
This video shows me that we shouldn't take all of our normality for granted. I hope this kid lives a happy life in the future. .❤❤❤
He's still a baby and he deserves the world. I pray they find a medical breakthrough ♥️
YES.. HE DESERVES EVERYTHING... MY ❤ POURS OUT LOVE AND AFFECTION...
I have the same condition and unfortunately there's no cure. Even though I have it, I'm married and have one child who doesn't have it. NF NERUFIBORMATIOIS IS A GENTIC DISORDER. MANY PEOPLE HAVE IT AND DON'T KNOW THAT THEY HAVE UNTIL THEY ARE OLDER. HIS CONDITION IS A BIT LIKE MINES I HAD MANY SURGICAL PROCEDURES TO DEBULK MAJORITY OF THE TUMORS. JUST LIKE HIM I HAVE NF1. I WISH THERE WAS A CURE. WE SUFFER WITH CONSTANT IMAGINABLE PAIN. I wish more people would know about NF and teach their children not to make fun of others who are born different from them.
@@LadyMahogany God bless you. Hope genetic diseases will be cured soon. They are talking about it already.
@@Crazy_Rich_Asian They have been looking for an cure for decades, but it's hard because it is so much about this disorder that's unknown.
Amen
If she has to come out of pocket for ANY medical expenses, that would be proof we're living in a heartless world. Strength and love to your family.
That is not the only proof of the cruelty of the world budd
Heartless country you mean. The entire system in the US needs to change. Badly
Bro it’s not that, it’s that nothing can be done it’s not curable
Yeah, life is really just a combination of beauty and ugliness, modern life often makes us forget the second one
@@DracaliaRay every system has issues. Each country has equally good and bad healthcare, all for different reasons.
Years ago there was a man that had this same condition, he worked the Safeway I used to frequent, all the kids and people would be scared to check out in his line, one day I brought my son there to shop and there was this kid crying and scared of seeing him, my son and I calmly walk to his check stand, we pay and as we leave, my son politely says thank you, goodbye and have a nice day 👋 I can tell that little bit of kindness made him so happy. I was so proud of my son for not being scared and knowing how to treat people regardless of how they look.
ur a lovely human being. ur son is gonna grow up with all the right morals
You raised your little man well!
@@Raezioo yes many parents don’t do that
The thing is sometimes kids are afraid of things that are different. If they have never seen something before a natural reaction is to be scared. Therefore, it’s up to the parents to explain to the kid that it’s ok and not to be afraid.
@@lindseyellie932 fast forward to today, yes! he is 20 and has grown to be a respectfull solid young man, so proud.
That is so awesome that went way over even triple the original amount that was asked on the gofundme. Prayers a miracle will be found. Its awesome to see his cousins wanting to hang and play with him and love him for him. Poor little boy being called a monster. My heart goes out to him and his family.
I have "NOTHING" to complain about. Bless this mother and her son.
Nothing to complain about while her own son is living a nightmare of a life that will end with abrupt death? Maybe that's exactly the inner weakness that caused her to produce this kid this way? Or is it the black father? They're Americans though so it could also be radiations from anything around them and that they eat or drink. Although, face cancers are extremely common in Africa too.
However here there's just so many possibilities piled up that there's more than 1 point to analyze to know why this child ended up like this, and no, it's not casuality.
@@Terapagos3000 bro I read that like 3 times and I still have no idea what you’re trying to say.
@@jamesgreen9791 ikr like what was the point that they were trying to state💀
@@pickmegirl5706 I think they misunderstood the original comment
@@Terapagos3000 Her son's face melted away
This is crazy! How can this poor young child not get all the medical help he needs for free!?! No one should have to live through that. I am so sorry child. That's awful, and I'm praying for you.
True this is messed Up he didnt choose to be born like that and no way the average american Citizen could afford that ... I would cross the frontiere and go to Canada and try to obtain Canadian citizenship because then IT is would be at least Taken care of . This is why America isn't the land of the free if innocent childrens cant even afford the medical care they need for free or minimal cost
Of course, but in the united states Socialized Medicine is a taboo.
Because you live in the US. Anywhere else in Europe they would do it for free
@@adog3336 instead of commenting telling somebody else what to do.. why you didn’t do that !! And they raised over 900k
america
It's awesome that his cousins stick with him. Those kind of cousins are really special and it's great that they have his back
Definitely because most kids wouldn't understand but the fact that they do really makes me happy
Take a heart you're the strong woman may Almighty God intervene into the situations
Swear I busted up crying at that part yo... Family is everything. God bless them
0:33 yes! You are a strong young man. 💙
He definitely is NOT a monster! He’s a beautiful gift and he has a beautiful and loving mother. Prayers to this family for strength to get through this mean world.
your number would be a beautiful gift
He's so beautiful then let your daughter date him and see what she thinks. He isnt beautiful lets just be honest.
Well , you're wright he is beautifully made in god's image .🙏
@@Milk-hb5ve Beautiful doesn’t have to be physically.
@@sweetluvgurl FR
Bless his cousins for giving him friendship. And his mom for her big heart. He deserves all the love they give him
Amen
God richly bless them
He also deserves our love and friendship.
So what are you saying that if he didn’t have this deformity screw ‘em
I think that's your thought process not mine.
Im a 69 year old man, and I am not ashamed to admit that I cried through the video. Utterly heartbreaking that anyone has to go through something like this.
Nice….
@@idleoutcaster💀
I cry too
Ok I'm sorry but...
69 💀
😂 what
This young beautiful boy deserved the world😢
Your not a monster ... your probably the bravest person you could be
He is a legend and really respectful and polite just a good kid even with what he has to deal with i wish i was rich so i could give his mum the money she needs to get him the best medical treatment in the world
Stop lyin this boy never had a shot and I feel bad that he had such a selfish mom
If I was him I would’ve told my mom to shoot me while I’m sleepin when I least expect it
@@Fillthesanity God loves us all
@@Fillthesanityharsh words but it’s better than a life of pain and suffering, not being able to do anything etc, poor kid and deserves better but if I was the same I would agree with what u say
I hope this video ends up in front of someone who is capable and knowledgeable enough to be in a position to help this child. He truly deserves to be helped. Much love to amare and his family
Me too!!!
💜
I pray everyday for this Boy!!!! 🙏
@Refuse Collection This info needs to be given to them. I think this would help the boy greatly. I'm teary eyed.
Yes me too
I'm done complaining about anything every again. Bless this family.
Same thing here.
Me as well I'm heartbroken
Amen
Your problems still matter. It's not a competition.
@@redfin382true to
I am praying so hard for you. My own daughter 31 passed away at the end of May 2024 from NF 2. She died at home, thank God it was peaceful. That’s where she wanted to be at home with her mom. I laid beside her the whole time and talked to her and her heart stopped. My beautiful girl had had enough she couldn’t take any more surgeries luckily she had the choice, we live in Canada so thank God our healthcare is free. I’m so so sorry you have to pay for surgeries It’s just not right. I’m sending you love and prayers and I wish you all the best in dealing with this awful disease.❤❤❤❤❤
The only monsters are the bullies. ALL children are beautiful. Stay strong, Mama Bear! You're doing a fantastic job.
I mean those kids really didn’t know what to say and they just said what first came to there mind mean I can’t really blame them
It was through the teachings of Shaka Zulu that Africans learned to hate the "other." What can you do?
@@dullypuketon2932 what are you on about mate?
@@KolateralXC you are a fool. Learn English, I am not here to teach you.
@@dullypuketon2932 your tryna sound smart
You can tell this woman is an extraordinary mother. Shout out to her. Thank God he wasn’t born into a bad family, he was born into so much love
And his sweet cousins hanging out with him & loving him the way he is. Oh my goodness Lord I hope this sweet boy can get the tumors removed & have like a facial reconstruction and have more of a normal appearance, bless his heart. 🙏🏼🙏🏼
AMEN!
@@yeeyee6412
Thank God for family. Their warmth, money can't buy and sometimes, it's what you need to come home to after facing such a tough world.
He is no monster. He is a strong sweet kid who is different.
Only monsters are the ones picking on Amare for just existing
This guy has it even worse than me...
@@ThatWeirdGirlSuri kids can be very mean
I am a 74yr old man and this kid makes me cry because I got grandkids and great grad kids throughout the technology that they have nowadays I pray for a miracle for him
@@Theneves15 yea idk why I never been like that even tho I was one of the toughest on my school
Stop making comments saying you should stop complaining! You can complain, still be grateful and empathetic. It doesn’t make you a bad person for complaining! Each of us has different struggles.
People who are saying that I feel are so heartless. She’s tell her and little man’s story….thats what she’s suppose to do. I really don’t understand some humans. I came to see if there were any updates this sweet young man . I really really hope he got the help he needed
At times like these I’m truly humbled. I complain about wanting clear skin or a better body when this trooper has lived with this condition his whole life and is only able to BARELY see from one eye. Thank you for sharing up your story with us.
You right
Sometimes we don't appreciate what we have
Truth. Lord....may we ever be grateful for what we have, and shame when we complain about superficial things!
True. I body shame myself every day for not being picture perfect.
hm same, I wonder if gender dysphoria is dumb.
This kid deserves respect and love . He’s special because he was born this way . When I was little my mom and dad told me when you see people who look different they’re just like you and me.
Thank you Gabe, very cool!
@Wernher von Braun What's nonsense?
@Wernher von Braun You don't have to donate to the go fund me. She's asking for help because the treatments are expensive but when it's your child you don't worry about the cost but again helping anyone on go fund me is optional but like I said when it's your child you will look for any option. That's not making it other people's problem it's asking for help when you need it which we all do through our lives, she's the one physically caring for him keeping him as happy as possible. No matter how someone looks it is ok to remember they are people like everyone else and should be treated as such. It is ok cause you're no different when it comes to being a human being and any physical imperfections can be addressed if so desired. We're all perfectly imperfect to some degree.
@@nicoctane1669 that’s right . This mom is asking for help and support because he kid needs surgery . Some surgery’s can be very expensive but if you help a family out it’s always nice to share support.
@Wernher von Braun my dad once told me. People may seem different just because they’re facing a health condition does seem scary and not something to worry about. But sometimes it’s right to share support and respect. Like me I live in a world of life and remembering where I’ve been in the world. What I see is people being people .
I recognize watching these type of videos that a lot of people fail to recognize that all humans are equal and this could easily be any of us in this situation so be humble and be kind and teach our children to do the same as well ! Hearing how kids that are unique get bullied by other kids grieves my heart
My heart hurts for this little boy. How can anyone make fun of someone who needs more support than anything. He can’t help what his appearance looks like, it’s his heart that matters. We need to love him, and his dedicated mother.
Exactly if you see someone who has problems or is less fortunate than you ( not just in money but with health) why would you try and make thier life harder isneatd of trying to help them giving them the extra help they need. Those ppl need to think about how they would feel if they were him.
I know
Because the ones making fun of him were children. And children act like children
I disagree
People can be so Cruel. You Never insult, bully, humiliate someone because they look different. This child was born with a Medical condition. Mom and Amarc you two keep being Strong. The Lord will make a way. I am sending up Prayers 🙏 right now that a Specialist takes Amarc's condition on and steps in Immediately to remove these huge tumors from his face so his Mom and loving Cousins and the whole world will finally be able to see this Beautiful child Smiling and Happy. God Bless You. Love 💕
I don't have kids but when I do, they will grow up learning about people like Amare. No one with any type of disability should ever be outcast or made fun of and that starts with parents educating their kids and encouraging empathy.
You're going to make a great parent. Your children will be blessed! 🙂✝
Respect is absolutely important but people get impressed and little children could be scared, sadly it's inevitable.
Even adults could be surprised seeing this poor child walking down the street, sometimes it's just complicated to not stare
@@pamelareynaud8502 thank you so much! That was very kind of you 💛
@@pamelareynaud8502 I second that.
God bless you ❤️🙏🏽 I agree wholeheartedly
this child is so loved by his mommy, he's so strong! he deserves the world
I hope they can get him the surgery he needs since that raised over 600,000 dollars god bless him and his family 🙏
Yes, he does deserve the world!!!
I wonder where's the dad.
@@onehit9401 how wonderful :3 I hope so too
@@chelseycurry8960 yes
Her having to raise money for his treatment is sickening. This makes that Luigi guy even more of a hero. People are sick of the medical system and what they turn away. How sickening that this young man can’t get the help he deserves
I can feel the pain of his mother, her strength. I can’t imagine her son’s pain.
Yes same here❤
They diserv a happy life, i pray for the kid to get better and to stay strong, the mother is such a brave woman. May god protect them both and help their difficulties.
This really made me tear up. Can't imagine the pain and stress this mother must be going through to see her child like this. They both really inspire me in my own life..
me too .... I hope some medical breakthroughs come out for him and they get all the support that they need.
I was holding them in until his cousin spoke and just wow. Kids are so innocent and precious. I'm so happy he has such good cousins that keep him safe and they wouldn't trade him for the world. Beautiful.
I have cried and prayed for this child since seeing this-
I agree with you Patrick 💯
He deserves all the help he can get . This world as an adult is a cruel world, some people don’t grow out childish behavior. The mother is beyond resilient, she is a phenomenal woman who wants the best for her son. Unconditional love is an intangible feeling that not everyone has the capacity to acknowledge it.
We got people bitching left and right about the stupidest stuff and then there’s someone who has to live like this. Stay strong little man! You’re braver and stronger than most.
Ugh why is HE bitching about his face, there are starving kids in warzones…
Edit: bros it's sarcasm I used the original commenter's logic 💀
Woah man
It would be wrong to invalidate someone's pain based off of this video. I do agree though that you could be more thankful for things just based off of learning this young man's life.
What kind of stupidest stuff? I would like to know? 🧐
Fax
I don't think I could've brought myself to continue the pregnancy if doctors told me the child had a fifty fifty chance of this disease.
I believe it was irresponsible of this lady to have given birth to this child given the information she had. Her decision brought about the suffering this boy has been going through. Now that he is in this world everything must be done to help him. However, anyone reading my comment can think whether they would like the life this boy has.
I pray that the doctors find a cure. He is so innocent. I can’t even imagine what you both are going through. Mom, you are doing a wonderful job!! Stay encouraged!
Amen 🙏🏽
Amen
Well it hurts to tell u but nobody is innocent
@@natoyagreen3611 all babies are innocent.
Amen
Cannot believe what I'm seeing , this poor kid deserves as much help as he can get
@@HPVideoArchive , it wouldn't be any different anywhere else. 🙄
Good people have donated almost one Million dollars.
@@darksecretsandtipsoftrucki1230 that's true?
God created such a mess
@@okjeffy6581 Agreed. If I could talk to god i would bribe him to change his crazy ways. In fact I would give all my money for him to change his craziness
To watch your child suffer in this way is unimaginable, the courage of this little boy and his mother ....
THE COURAGE OF THE BOY.
Oh mama, my heart is with you and your beautiful son! You can tell he’s a special soul 🙏🏻
Such a brave young boy. He ain’t no monster, just so you know you just made a long distance friend. Keep your head up!
You're awesome for your comment!!!
@Ian Kochinski vs. The Age of Consent 🤣🤣
The father is an alien
@Ian Kochinski vs. The Age of Consent poor troll
Amen
I feel so bad. His mum is such a hero. Supporting him and everything. And he is also such a fighter against those who discriminate. Just being able to be whatever he wants to be
How does a deformaty make someone a hero?
She's a heroine, not a hero
I wouldn't say she's a hero, but a really great mother. unfortunately there aren't that many good mothers in the world, so when we see something like this, we think that they are a hero, although they are doing what a good parent is supposed to do.
@@casadoalfredo Seriously, you focused on that?! Smdh!
People who discriminate are heartless, it boggles my mind how anyone can treat people who suffer so differently when they aren't in their shoes
I feel so bad for this poor child. No one should have to suffer such a illness like this. Doctors should give out free treatments to people with such conditions. Hope he's getting better and that they are both ok.
Why Would They Give Out Free TreatMents.
@@b2anxle..486 Cuzz it's ridiculous that one would have to pay to have a decent quality of life. Money shouldn't be the problem.
I love that people think surgery cost is only a work of surgeon.
If surgeon worked for free surgeries would be maybe 20-30% cheaper at most. Guys, costs of medical equipment, drugs, other staff, anesthesiologist etc. nurses, hospital. Especially in USA. Some countries have cheap or almost free medical insurance but then it is covered by government.
@@magearamil8626 Absolutely true. So...why doesn't the US have free healthcare? Cuzz i think even some 3rd world countries would have free healthcare before the US does...
@@dudemetslagroom8065 pois é nós que somos do Brasil temos qualquer serviço de saúde gratuito as vezes demora pela grande demanda mas temos!
E estamos longe de um país de primeiro mundo
Watching this made me realize that most things I tend to worry about are just not as big as they may seem. For one thing, I’ve struggled for a long time with accepting my appearance; but after seeing this kid and what life is like for him, I understand more that I’m pretty blessed to look more “normal.” I don’t have to go through what he does, like getting treatment at the hospital, being limited from certain activities, or having difficulty seeing fully. So I know for sure that my struggles still matter, it’s just that I’ve got a lot that I forget to appreciate.
Also, I love how Amare is still just himself. As a fellow teen I’m gonna try and do the same, even if it’s hard.
in the video, the screenshot they used for their gofundme page showed they had received $53,000 out of a $120,000 goal. i checked the page to donate a bit myself, and i'm happy to say that they now have over $400,000 in collected donations!!!! i really hope Amare can get the surgery and treatment he deserves, and I hope that we might get to see him again afterward living as normal of a life as possible--I can think of no one who deserves such happines more!!
It’s almost at 500k now 😊
That's so fantastic!!!
Where did you see it I missed it. But would love to help ♥️💪
They deserve more 💔💔I hope even more wealthy people donate
Praise God.
That baby deserves a normal childhood, and so much respect for the mom. So many parents would have done awful things I am so happy he has her.
God loves uu
I really hope some kind of technologies can be used for him because theres so many risks with treating him 🙏🏽
This child should have free health care and free surgical procedures! He's such a sweet child! 🙏♥️ what a wonderful mother!
Hopefully all kids will have free health care someday 🙏
@@lululovlie6175 I don’t think surgeons would be doing surgeries “for free.” OP was clearly saying the kid’s healthcare should be state subsidized, but whatever your read is I’m glad you’re happy with your situation. You should also be thankful you weren’t born with such a horrible condition as this kid and be forced to live in a world with horrible people such as YOU saying this CHILD should somehow get a job and pay for his own surgeries. Disgraceful
beceome a surgeon and take on cases for free then
@@lululovlie6175 yes you said the mother is responsible to pay for the medical bills, that she assumed a risk when it came to getting pregnant. "anyone who decides to get pregnant assumes responsibility...."
what you said is very literal. the only thing i'm making assumptions about is you being happy with your lot in life. you being unhappy with your lot in life actually makes more sense. only miserable human beings would take the time to post a comment about how this child should not receive free medical care. what am i doing to you that people are doing to this kid? i'm calling out your ridiculously stupid and calloused opinion. where's the equivalency in your eyes? you made a very literal statement. any REASONABLE person with an ounce of compassion would draw the conclusion that you're a dirtbag of a human being for saying something like that.
Yes we need universal care here in the us now!! Too many people are suffering and dying in this for profit healthcare environment. Paying insurance companies billions to be a middleman while we pay the highest costs for care and receive poor care. Absolutely unacceptable here in the great US of a for them to treat the citizens this way.
Amare, you are a hero. Your strength to get up each day and keep striving is remarkable. I love that you have things that you like and are helpful. Thank you for sharing your story. It is through you that others will have the courage to share their stories with the world, unafraid.
This child shouldn't have to suffer like this at all and I'm praying that he gets the surgery and the help that he truly needs! 🙏💕
I hope so.. cause I'm literally over here crying after watching this
Where's God? Here?
I don’t quite understand the bit where the mum says she knew there was a 50/50 chance her child would have this genetic condition…Did it mean she went into it knowing about that high chance?? Or she only found out after conceiving.
Tbis is so tragic my god why why i pray there is hope no one should live like this he never asked this to happen to him praying for a miracle
@@Smile936 no means her fault sad but true she was ether drinking or using while pregnant so technically her fault in the end we can't pick who brings u in this world
Bro hearing his voice from under those tumors got me right away sounds like such a sweet kid man
❤️❤️❤️❤️❤️❤️❤️😍
😢❤
I cannot imagine watching my own son suffer infront of my eyes like this. She is so strong and amazing and so is her son. Her son deserves the best life ever, with vision.
My biggest respect to this awesome kid and his mom.. the only monsters are 99 percent of us who judge this kid for what he looks likes... God bless you and your kid.. you're an angel..
There Has to be a group of doctors in the world that will take this one for free. Your son deserves that so do you..
You got that Right!
Exactly
Please. I will pray for this to happen 🙏
i think they just cant do it. they would of raised money till now if it was about the money.
she actually raising money to buy a house and expenses, so yeah, there is no medical solution to this.
I agree he deserves free surgeries. What an incredible mother and child.
Go to medical school so you can work for free and give this boy what he deserves.
The "power" of america... If u dont have money dont have surgeries...
@@diegodig9 There is no surgery or cure for this. There is treatment...which he's getting. He's insured. His chemo treatment must stop from time to time because it does a lot of harm. They're not raising money for medical care. They have that. Theyre raising money for a house and family expenses. Please go and donate generously.
@@susansmith493 Thats not the point of my comment... The problem Im talking about is that in America u cant have access to surgeries, medical trathement without money
@@diegodig9 Go to any ER, in any state. Patients are treated all the time, free of charge. For a very small amount, you can get Obamacare.:) This child would not even be given the chemo treatment in a socialized medicine country because it's incurable. US hospitals are FILLED with patients looking for care that they were denied or that is simply too advanced for socialized medicine hospitals. US hospitals are also filled with surgeons and physicians from other countries. If they're the BEST they want to be paid .... just like you want to be paid. Want govt healthcare? Go to any VA in this country. You'll get to see exactly what govt healthcare is. This is not as simple an issue as you seem to think. You think socialized med is exactly what is avail in the US ... just free of charge. Not by long shot.
im at work crying. He is a strong young man and so is his mother. People need to teach their children to not be cruel bc someone is different.
Big Facts ..you have a Good Heart 👍🏽
Y'know... I wish everyone had the same mindset as you
Why are you on RUclips at work?
Lol, same thing happened to me.
100%
How old is he??
This is so sad..Poor baby.. The world is so cruel..I don’t know if I would’ve took the chance of having my child. Especially, once I found out while I was pregnant. I would have not wanted him to have that kind of life..Prayers and strength to your son and you..
She’s a great Mother, he’s a great kid and all of his siblings and cousins are great support. I wish all of them the best life. We all hope the doctors find a cure to make the tumor go away and heal completely.
you know that is not possible
@@superbotte1706 let’s think positive
@@superbotte1706 there may not be one but its possible
@@GodfuI think whatever you want
She's a cruel and selfish mother, not a great one.
This young boy has more strength than most of this Vain world- he’s a true hero!
Very true!!
Well said.
There are billionaires sitting on money that they will never spend in 100 lifetimes and they can’t help this poor kid? This world is completely broken.
People have raised over a million dollars for his go fund me
@@NigelThornberyyeah but that’s your average citizens money not you’re average billionaire or millionaires money. Rich people are douches
@@VictornHart how do you know? How do you know a millionaire didn’t throw in cash to the gofundme? You don’t. You’re just saying that because you have preconceived notions.
@@NigelThornberyI know because rich people are douchebags
cant understand why all the people with vast fortunes cant pay for this lads medical care loose change a few million to them come on celebs get your hand in your pocket
What a beautiful boy, and an amazing mother.