The Family Whose Faces Change Shape | BORN DIFFERENT
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- Опубликовано: 20 сен 2021
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A FAMILY in North Sumatra, Indonesia, are living with a rare condition that causes their faces to change shape. Out of the six children of the Manurung family, four of them are living with an undiagnosed and incredibly rare facial condition. Suyra told Truly: “The fact is, our faces they have changed shape but we accept it and just live with it. In my opinion, growing up with this condition made me feel inferior. But now, I don’t feel like that anymore.” Despite many suggesting the family had been cursed, they have realised their condition must be genetic, as their father is also affected. The family are yet to visit a doctor for any diagnosis and, due to the unusual nature of their looks, they have had to get used to people reacting negatively to their appearance.
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Videographer: Jefri Tarigan
Producers: Dav Rich and Ruby Coote
Editor: Vanessa Nascimento
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Развлечения
If you enjoyed learning about this inspirational family, check out our My Extraordinary Family Playlist: ruclips.net/p/PLUkdT9ljJ1caADldYIDbO25isEzqRVgKJ
No, I didn't, *_because you never say what rare condition they actually have!_*
@@WobblesandBeanyes, I really want to know how & why.
Também quero saber quê síndrome e essa
Aku ngga menyangka negara lain meliput berita tentang pria itu 😄😄😄
It explicitly states, "an undiagnosed medical condition" poke around on Google. One of the first people woth a similar condition was a beautiful woman who was a nurse. Her face began growing at a rapid rate and she had to work for a traveling carnival because of her appearance. Facial bones grow for your entire life. This rapid rate of growth is, as the family notes, abnormal.
I love the honesty, “We didn’t do it for pity, we did it for money” what absolute legends
I know right? Lol their honesty made me laugh
I'm Indonesian and I'm fluently speak bahasa indonesia actually the translation is a little bit wrong
@@widayle8235 what is the correct translation?
@@widayle8235 I am Indonesian my self, the translation is about right. They are saying that they got comment from people that their ;Tiktok viral' is based on people have pity on them. But they don't think it's true, they don't ask for a pity on their videos, they simply did Tiktok just like anybody else. Having fun while hoping for a good fortune that can help to raise their living standard. I would say it's fair. The cilp showing their tiktok video is showing that they're just trying to have fun while posting it to social media
@@Julia_BH im also a native speaker. The translation is technically right, they just didnt translate it word for word.
From 4:35 to the end, the translation is "wrong" . The girl is speaking all over the place, but the caption just states what she wanted to say better and the core meaning is still the same. They probably did that to make the ending of the vid more conclusive.
"where are we going after we finish this?"
"sleep"
girl same
In Indonesia we call it "generasi rebahan"
Iconic and Relatable Queen
Relatable queen😍💅
lmaooo
Just goes to show that they’re literally just like us, but look different lol
Thank God it's not causing them any pain. That is to say no serious health issues like not being able to blink etc. And that their neighbors are so cool. Blessings, good people.
Actually, this might be how we humans are supposed to look without the neoteny effect. Neoteny is an evolved feature where adults retain some features of a younger stage. It's one of the easiest ways for a species to adapt, and many species are neotenic. Humans are long known to be neotenic: out faces and skulls are identical to that of a baby ape. So, maybe this family is the case where the neotenic trigger doesn't work, and their heads develop as a healthy early human would. (Please don't read "early human" to mean something underdeveloped or primitive; nature is not an RPG.)
@@soevilcat This was fascinating information that I didn't know about re. human evolution. I'm off to look up neoteny and how humans evolved these characteristics. :) Post looking it up: I agree in general with your comment that the family's genetic abnormality reflects what humans may have looked like without the neoteny effect. However, Treacher Collins Syndrome (what they have) can also give people breathing, vision, and hearing problems, so it's just not optimal or a "healthy" way for human skulls to develop (though it seems as if these particular individuals don't necessarily suffer from those health complications).
@@MarysiaKosowskiyeah yeah if the condition doesn’t affect their quality of life then it’s not that big a deal and really does not matter. They say it doesn’t, that its mostly aesthetic and tbh aesthetics are subjective and influenced by our environment so if they’re got experiencing any health issues from this then it’s not really a problem except other people reacting negatively to it (which isn’t THEIR problem it’s the people’s)
Your mother shows the real definition of love, proud of your mother....❤
They're so close to each other, positive mind and full of love.
My thoughts exactly
In a world full of hate, it's refreshing to see positivity.
It's common in close knit villages in Indonesia. Since everyone knows each other, they're very kind to one another
Macha lah khtisara Channel kotch
cuz they're are brother n sisters.. children of same parents
It's nice to know that the people in their village and home town are not rude and treat them normally.
because they know them and used to see them everydays. but there's still some villagers talking rude behind them.
and some peoples on internet being rude too, because they're jealous of them being popular
But in the middle the girl said they have been bullied and ridiculed by people..sadly
@@gingerjudd1332 They themselves see it, though. Are you calling this family full of crap?
@@gingerjudd1332 are you stupid. You don’t see there face?? THATS WHATS SO DIFFERENT….
@@gingerjudd1332 just having a longer face. I understand people in third world countries have very odd beliefs in why people are born different. They often call them witches, demons etc. It's very sad how uneducated they are in the fact people can be born with conditions because if genetics and not because of witchcraft or the devil.
This really, really shows that looks don't matter. They're a family like others (and very strategically used their difference to go viral and get money, which I applaud them for), their condition luckily doesn't give them health problems, and so they just live with it. Really makes you rethink how much more what's on the inside of the person is worth than what they look like.
Looks decide the likelihood of you finding a partner, getting jobs and promotions, and even everyday interactions. They're incredibly important.
@@leguminous7564homer Simpson 😊
@@leguminous7564 Important for trying to fit into a fake society, but true happiness? Nah.
@@Tom_Arrowyou're right but unfortunately the reality is true happiness is determined by your environment. It's hard to be truly happy if people treat you badly for your looks
What a sweet family! They seem like they would be a lot of fun to be around. I hope they have lots of success! ❤
Their parents should be proud- they’ve raised a bunch of smart, well-adjusted kids.
This is satire, right?
They created absolute monsters.
@@basedcrusader1349 monsters ?? bro they can't help it
@@lennytnovel Why didnt they stop after the first one? Why make 3 more of these?
@@basedcrusader1349 bro what if they don't care about how they look
@@basedcrusader1349 they're not monsters but the parents shouldve used common sense instead of bearing so many children with this distressing condition. idk why people do this
I don’t blame them going viral for the money. They want to raise their standard of living. Honestly there’s nothing wrong with utilizing the internet for money as long as you aren’t exploiting someone else (like family RUclipsrs) or doing something harmful.
Absolutely love this family.
yeah but why would anyone blame them though doesn't make sense
@@shuzuka677 some people are just jealous that some get money by going viral on the internet, not knowing the sacrifice they made by doing so
Yep
Yeah but would you say the same for OnlyF
@@izzudinabdulaziz2502could you not say the same about people who do only fans?
볼수록 사랑스러운 가족이군요.
💬 dia secara harfiah, tidak beruntung, tetapi tetap menjalani kehidupan yang bahagia, dan terima apa adanya 😉📶💫🎀
네 저도 그렇게 느껴요.
Go and marry her then
@@Don_3k calm down you bot lol
I love their confidence, and maturity!!!! May they be blessed!!!!
They are human, they are people and nobody should forget that, Shame on those who ridicule people based on their looks.
yeah so tell this to people in indonesia not in yt comment section if u want a change
@@Hajdew theres a thing called cyber bullying
@@doodoofart7719 will ppl who do a cb will see this comment i dont think so
yes, you are right. but don't forget that human always judged the first person they meet by face and appearance. do you think you will be different ?
@@wonchulsim8076 personally I don't Judge one on looks, I understand what you mean as most people judge one on appearance and looks but who are we to judge? Have a good day and thank you for your input.
I love how they accept their looks and don’t judge themselves because they know that their father has the condition too. Their village must be the friendliest because they didn’t judge them either, what nice people 😌
big up to the villargers
May God bless the village!
Lol if only everyone is as kind as the villagers
They might have Barbar-Say syndrome or something similar. It's incredibly rare and genetic.
Jesus loves you all❤️
Beautiful family. With the difficulties they have endured and the humble and modest life they have, they are still positive and grateful, and pray before their meals. I admire and respect these people highly. Our world is so superficial and chaotic that it is easy to lose perspective of what is really important and meaningful in life. This family is a great example for all of us.
I'm sad that they have this condition, but i'm glad they're making the best of it and are hopefully having a happy life! They seem like very nice people!
All the best!
How can over two thousand people dislike this??? I guess they were born differently too… without a heart.
...
They might think it's fake that's what I thought at first
😂love your reply!
This comment made me laugh ahhahaah the sarcasm is on point
Maybe they are fatherless
I love this family. They’re intelligent, (‘we’re obviously not cursed; this is clearly genetic,’ and, ‘we strategically went viral to get that money,’) kind, and overall people you would want to spend your time with.
Of course they're not cursed. They're just from the twilight zone.
Not the Twilight Zone 🤣😂🤣😅😭😭😭😭😭😭😭😭😭
I couldn't agree more! This family is not only hilarious but also incredibly smart and creative. Their viral video was pure genius and it's amazing to see how they're using their platform to spread positivity and kindness. I can't get enough of their content and I'm always left feeling uplifted after watching their videos. Keep shining, you guys!
And close-knit, which is so endearing. They clearly care for one another deeply.
@@leavesofmytree 🔔ding!🔔ding!🔔ding!🔔
They are amazing. There is no perfect being in this world, everyone is affected in some way, be it physically, psychologically or both. Their genetics may cause visible change, but they are fine people with nothing to be ashamed of. I wish them health and happiness in their lives ❤
And these are the kind of people who would help anybody in need. They seem very content and part of the community. I would very much rather have these people as my neighbors, than some of the people out here in the western world. I love this family, and send hugs to all of them.
I've lived all over the world and there are good and bad people everywhere.
Happiness is not about the looks, it's about the smile in their faces. ♥️
“Nobody is born ugly. We are just born in a judgemental society” -Kim Namjoong
@@avatar5811 🧢
@@avatar5811 That is major cap.
Not all of Them are Smiling either, and We do not know if They are Happy or Sad
@@avatar5811 nice lies and cope
They have the one thing that many others wish they had ,and that is a loving caring and supportive family.
Exactly right 👍
they are strong
Amen. ~
@@mobilehubpb03 ķ
I love their warm funny faces. They are lucky to have each other. It would be a lot harder to live with this alone.
I can honestly say being judged by experience can strip you away and make you so insecure to even move. So I salute to every single one of them cause being judged is not fun as we are all the same specie. Respect. So nice to see them happy together & how their Village does not judge them! Only if they could breach a higher feeling of happiness without feeling judged and able to breathe easier you know!! I think after watching this video they look perfectly normal with good intentions:) I like good people and they should embrace whom they are to the max so their quality of life will be so good feeling for all of them! This video made my day:) KeepPushinEveryone
One more thing to say! I bet they have alot of love from their Sister that makes them all feel "One" I love that!! Hope they grow strong love forever in their bonds! Cause the World is cold it is when it comes to being labeled "Different". Causes discouragement and depression all sorts of negative emotions and feelings. I am glad they are good people through it all🦾💯💯💯💯💯💯💯💯💯💯 Yall are so strong & Congratulations to any success yall face along your natural path of life:) Just hope they face a better life from the outside looking in. One day the World will be "better".
Aww, they're so lovely. So glad that their condition hasn't caused them any additional difficulties. I think it would be great if they could get routine medical care, though, because I imagine whatever it is might impact things like eye health or sinus function over time. Knowing exactly what it is could help predict certain concerns or who knows- there could a treatment option to at least stabilize stuff so they aren't dealing with constant changes. They have a wonderfully positive perspective, but I'm sure dealing with that level of uncertainty and fluctuation (swelling? soreness?) day in and day out takes a toll.
It hurts seeing people making fun of them in the comments, they must've going through alot. And they've been so strong all this time. I'm loving their positive energy❤️
@@averroes1216 lol
احسنتي 🌹🍃
Especially school, oh god 😥
Yeh. I've seen alot of ppl on tiktok making fun during their live
@Cat Fish me neither. No one. Someone always has to make up that in order to act morally superior. It's so dumb lol
The translation didnt do enough, at the end they were basically explaining how after they got viral that a lot of people speculated that they were selling their looks to be popular and gain money but truth is they just want to motivate people to not blame God and destiny for their shortcomings and to just accept and find a way to adapt and overcome it
Even if they wanted to sell their looks for money, nothing wrong with that
I see nothing wrong if they wish to earn money from the uniqueness.
@Marcandme Seldon they could star in a horror movie
I really dont care if they even used their looks to earn money, if models can do it, so can they
@@shh11111 Well said !
This was surprisingly very inspiring. I love this sweet family. God bless them
Their kindness towards one another and support and oneness with their family is beautiful 😍❤️ I love
I think its awesome that they found a way to profit from their condition. And they aren't trying to hide it either. They want to raise their standard of living, and theres not a thing wrong with that.
Yesd Matt Jack
Right
You have never heard of Indonesia prior to this video I bet
Are you american? Name 5 countries in Asia without googling
@@mohammedkhanthepakistanipa3012 lol anyone can
Loved when he said he wanted to go viral for the money. You definitely have to respect his honesty ! This family seems so lovely. I hope they're successful.
What this guy doing while those women working hard in the kitchen to make food? This kind of sexist Msl society that men sit and watch TV while women serve them :). Its the real ugly thing.
not everyone wants to an inspirational disabled person xD better to just be a loaded disabled person
@@marycanary86 💀😭😭
If they want money, they should move to Hollywood. They could play aliens in movies.
Said no millennial
God bless this family!!! You are beautiful people!!!
You all have built my hope in humanity. Such beautiful souls I cried as I read all of the positive supportive comments left for these beautiful people. Than you all!
I cried when the neighbor asked how they are feeling and they said "Alhamdullah (thank God)" with smiles on their precious faces.
They have really lovely personalities, what a family
Yup, alhamdulillah basically means the same thing as hallelujah. They even sound similar because the word for God in Judaism, Christianity and Islam is Eloh/Alaha/Allah respectively
The fact that they can be so positive in the face of such adversity is simply phenomenal.
i see what you did there
Why do I instantly think of Eminem
They get along better than most of my relatives :'3
I love how close they all are. You feel the love.
They are a beautiful family! God bless them!
Even with this condition, look at them having positive energy, living with good morals, and having strong bond. They are shining and the most beautiful inside. I hope they live happily forever and only good things will bestowed on this family.
Everything gets used to after some time. Even ppl who go blind get used to it after some time.
God intrusted them with this gift to inspire others by how they response to how they see themselves and life 👍🙏
Seems like inherent optimism bias and terror management theory will always help regardless of ideologies such as antinatalism based on consent.
Amen!!
👍
This family is incredibly strong for accepting a condition they didn't ask for. We're all unique.
They have to since they had no choice in the matter. But I hear you. May their lives continue to be a blessing to one another and others. 💕🤗
They have no choice but to accept it
@@rexdeus7658 exactly 😂😂😂 they acting like they can just say “oh no I don’t want this ugly face” 🤦♂️
@@jay-on5nd foul
@@rexdeus7658 u right mb. I gotta do better 😔
They seem like nice people and I wish them well. I hope they don’t suffer any prejudice or bullying. They are lovely people and their stoicism is admirable.
What beautiful people, all 5 of them. Their spirit, their personality, shines through any flesh & blood. They all seem truly lovely people, a value to any village, having character that would them a good friend. My prayers for total provision in their lives!🙏🙏🙏❤️
They didn’t asked to be created this way. I’m happy that persons in their community are treating them with love and respect. God bless you guys.
Bless u guys .sending hugs to u
This story made me appreciate The love and mercy God has for us thank you guys for the positive hearts you guys have thankfulness will get you long long way God loves a thankful heart and you guys have it for sure bless you guys
@@CONQUISTADOR79 God gave these people the faces. He is super cruel and sadistic. Don't forget about babies with cancer.
it's not god fault, i am not gonna blame something who is not exist. It's clearly their parents fault for breeding 6 kids and now 4 of them have to suffer because of their father's bad genes.
Please follow
They have such a happy family.
No they dont
even they are famous on tiktok, and make money from their tiktok content
.
They are unique!!!!!!!!!
@@buurs2400 what did you gain from this comment💀
They're so beautifully happy together and supportive as a family! You don't see that often, not even in the "prettiest" Hollywood households.
I think this is what body positivity was suppose to be. People accepting and being happy with their bodies and faces regardless of if they were born with a condition or anything that makes them outside the "norm"
Well said. Not attention seeking narcissists showing their stretch marks on the gram😂
Frrrr this is what it was originally about
@@aak1992 stretch marks don’t go away tho. But they aren’t imperfect either
@@aak1992 : that's the problem though. A lot of us want unattractive people to stay on the fringes of society getting their shine through "well meaning" pity videos and accept themselves over there. Like the special Ed classroom mentality-- they can do what they want, as long as we don't have to see it. Some people who aren't conventionally attractive don't want that anymore.
The body positive movement was started by fat people for fat people. That's the original intend. Nowadays it's for everyone.
We need more science side of this video. I'm not a scientist but still curious.
We do
I bet its aliens
no thank you. modern reddit-tier "science" poisons everything it touches.
next thing you know these people will be the "scientifically approved" standard of beauty across the mainstream world and everyone will be trying to emulate them because "the science" said its good.
@@jaxxrr how disgusting u are??
barber-say syndrome
It hurts seeing sum people these people making fun of them in the comments.? that’s they are must’ve going thru a lot and they’ve been so strong still .. thru
Proud to you mother .... Praise the lord ... Mother your showing the real love n courging your kids .. god our lord will always be with you
By the way they talk and act, they are such polite and kind kids. They are growing in good environtment and grateful family. May Allah bless this family
there’s no allah lol
@@onmymomma1766 for you not for me bro
@@shesyrablavkdemon7242 why is allah doing this then?
@رويدا Bravo, to je sve Allahova volja, svi smo Allahovi i Allahu se vraćamo...Selam iz
BOSNE i HERCEGOVINE
Aamiin Yaa Rabbal’alamiin
Its easier said than done. Huge respect to this family for staying together and keep their hope up. I wish the very best for all people with health issues and special conditions.
Well... Like they say. They have to stay together because who else would have them.
@@captain_context9991 Youre right but I meant it in a way like they didnt fall into hopelessness and made the best out of their position. Most people tend to lose all their hope and get driven into bad habits or suicidal thoughts.
@@81Berserker
Pretty sure they would prefer to look normal. Dont you think? Maybe that "forced positivity" crap is best to keep on Facebook where it belongs.
@@captain_context9991 you sure can be angry but dont put all people in one cup. I have absolutely no bad thoughts or intentions while saying what im saying. So please calm down and "try" to look at things from all perspectives, if you can of course.
@@81Berserker I honestly am positive that the "positively" is for this 5 min segment...there are 2 of them who do not have the condition. The other one didn't even want to go on camera with them which says alot. It's unfortunate because there are so many females affected and they will not get married. The male, it's possible because his father did it IF he can make enough money to get a wife. I thought this was the disease that affects the adipose tissue (fat) but it's more than that in looking at their very wide mouth, eye shape, nose and other abnormalities...
What I love is that their village they live in they have peace and acceptance. Ppl adjust and become comfortable around ppl that are different once the initial surprise wares off. It’s human nature to stare at first when taken by surprise to someone who either looks very different or acts differently then everyone else. I say this bc of our son stands out wherever we go. Usually they hear us coming bc of his loud vocal stims. He looks, sounds and acts differently then our norm in society. But, he is accepted at his middle school and where we go to church. He doesn’t turn heads with ppl that have become accustomed to this person that is hard to not notice. It’s almost like ppl get desensitized to him and see him as non threatening. But, going into new public places he is stared at and alarms young children. The parents are often embarrassed and shushed their children. We just smile and keep going. I’m sad that this family experiences ridicule and mocking. Clearly their spirit isn’t broken and have a beautiful bond of love and support. Smart family to be unashamed and teach us all about being comfortable around all kinds of ppl. Xo
I love how close they are to each other.
Meanwhile so many normal families live in hate and fight nearly everyday, i am really lovin their energy and positivity. Lovely people!
They are quite normal actually for anyone that doesnt live on social media.
@@DuoFurey 4:51 as they gather for a group selfie. Let's just say everyones circumstance is different and normal is subjective since change in the external is constant.
Вы такие наивные!!! Неужели вы думаете,что они будут ссориться на камеру или рассказывать нам,что они ругаются? Вы очень глупы, если так считаете и верите всему что вам говорят! Ну правда смешно!
@@user-yv6gy7ck9g Bruh why did you reply in russian
@@thatguy7155 потому что я русская. Я живу в Санкт-Петербурге. А вы откуда?
I really like this type of video. The more we know about other's differences the less discrimination there is going to be in the world.
I agree🤍👍🏾
I agree wholeheartedly. It's natural for people to be scared of what they don't understand. With these videos educating us hopefully we will become more accepting.
Exactly
Absolutely
U really think so lawd humans r so terrible these days ,people dont think to put themselves in others shoe and see and feel others pain
It’s sweet to see due to fortunately no ill health they feel comfortable enough to understand they need no doctor being who they are. The love this family has is sweet ❤
Wow they are so positive about what happened to them, they are even thanking God. I really care about my appearance and stuff, so I would be devastated if that happened to me, because I know that some bullies and trolls might think lowly of me just because of my face. These people are inspiring and brave and strong.
At least they have a great relationship as siblings. Some people’s families are not so respectful towards one another. Thank goodness they are smart and do not cause each other problems.
Your welcome .
Your said 100 % right sir , Allah Lord bless than and also bless you and all your family , Ameen 💐🌺🌹🌸🌷❤️
True. I feel attacked
They look like a lovely family
There was a race who helped lord ram, we call that race vanar ,they were very strong and spiritual, we have scriptures proving that they existed 😊
While watching this video, I see confidence, acceptance, and comfort among these siblings. It's very admirable. And as for the one who didn't inherit their father's genes, it seems like she's been waiting for that time to express in the world about her siblings condition and proudly show that they've wonderful relationship regardless. 🌿
For real? For some reason I can't see any emotion it's hard to tell
i love how indonesians look it's like a whole new race
How is the spreading of bad genetics admirable?
@@mickey_287 weirdo
I see in🍞people
Beautiful. So inspiring. Their energy is beautiful.
Life happens. The more I live the more I see and here...including things around me.
Only got one life so live it to the fullest with love, happiness, and giving! God bless!
Many "normal" looking people have toxic relationships with their family members. Its heartening to see such a close knit family.
Because the all have similar crisis, so they band together to face it. Healthy people think they're perfect, so they "cannibalize" each others to get more.
Мне переведите
Это какая нация?
@@dowlong3395 muslim
@@hinarajpoot6812 Спасибо!
I loved it when she was like "People thought we did it for sympathy, but we just wanted money," like, Same, girl, Same! Everyone else on social media trying to disguise that fact & they own it right up front!
😆 truth. Yeh I caught that too
Because these people are not fake or vain and that's why they need more followers than the Kardashians. You can tell they are generally good people.
Lol right
I can't stop laughing because it's so true!!! 😆😆
I found it absolutely mad that you'd be insulted just because of the way you look, especially when you don't have a choice on the matter! God bless this courageous and creative bunch!
I saw a sweat heart in their smiles! Love to all of you. God bless you.❤
They look like a very loving and supportive family.
No they don’t
I agree. They are truly blessed!
@@diamondevans321 you don’t look like a very loving and supportive family smh
@@janicewang134 I’m one person ofc I don’t look like a family
Speaking as a portrait artist, I found their faces unusual-not unappealing, just shocking-at first but after two minutes of the video, I think they are quite beautiful with a rare kind a symmetry/balance. I also find the lines in the brother’s face especially interesting. To be completely honest, I can see them doing modeling for high fashion shoots. I’m not a fashion designer but I could imagine that some designers would like to see these siblings representing their works.
I was thinking the same. They might not be classically beautiful/handsome. But they have the unique charm and beauty like a Picasso painting. Their unique faces would look amazing in the hands of professional fashion photographer.
Ikr, if we look again. The impression of spooky changed to beautiful in an unique way
i agree, despite their initial shock it doesn’t really stay because their face is pretty symmetrical. I think that if one were to spend time with them they would get comfortable pretty quickly.
I also agree about the fashion! I think that some clothes would reallly fit their faces well, and I think that some styles would only work if it was them wearing them!
Same. I was a bit shocked initially, until I kept watching. Sweet and beautiful people.💓
Cope
I love it this beautiful family gets respected in there own town, there difiantly blessed and got brought up right!
I recently came across this family on Tiktok. I love watching them. They are always having a great time.
I hope they can live peacefully without being discriminated against and disturbed. I sincerely bless them
Their condition is something that $50000 and a plastic surgery in South Korea can fix
This! Just let them live in peace!
@@valorzinski7423 why would they want to fix it? it's them
@@blake911 why does anyone get plastic surgery? Are u gonna pretend they dont look incredibly strange?
@@georgebailey7256 and what are you to say what they should do?
im so jealous of their closeness. they’re such a happy family
Im afraid some peope do this only for the video, but who knows
Very inspiring! You are a beautiful family and I wish I lived near you!
This makes me to feel grateful with my life
I'm sure many doctors and biologists would be interested in studying their condition. It must be a dominant mutation in a gene that controls collagen production or bone structure or something similar. Maybe something that is already known in the literature. It's a shame they don't go to check it out.
The dad must be heterozygous (has one mutated and one normal gene) and the one daughter was lucky to get his normal gene (and of course the normal gene also from her mother).
As others have mentioned, it would be interesting to see photos of them at younger age, since they all said that their faces changed. Also, are there any other changes or just their head/face area? The video should have provided more information.
They seem happy, and say they are healthy and it hasn't affected their life, but surely they will find it difficult to find partners, and that is a major effect on their lives (although the father obviously managed to find a partner).
@@donovancallahan8505 this is a joke right
Yeah I'd be interested in seeing their "before" pictures too.
They need to know what passed it on so they can decide whether they want to pass that on too
@@donovancallahan8505 tell me you didnt take biology without telling me you didnt take biology
@@donovancallahan8505 Science brother 🙌 Its a wonderful thing
people who think they're smart because they believe whatever "science" tells them. It takes a form of faith to believe mainstream "science" do you know how many times mainstream science has failed or been proven wrong over the centuries? how many things do you 100% believe in that are just theories and not facts by mainstream scientists. get your head out of your ***
I hate when people bully others for any reason but especially something that the person has no control over. It makes me sad to think about the bullying they have had to endure. I am sure that they have hearts of gold and great empathy for others as a result.
Did u hate it when your friends laughed at others in school?
@@paulden3158 I Did😪I Stood Up For The Little People Though...
@@queene3oh3 👍
Yes:(
@@paulden3158 unfortunately, i was one of the kids that made fun of other people. I truly regret that with my whole heart. I've come to realize the God looks at our hearts and not our faces. Like the world tends to Judge on appearances.
I think they kind of look ancient! They give me a very wise feeling. Thanks for sharing 😊
I LOVE THEM ALL 🩷🩷🩷🩷🩷. Such sweet people
Speaking the same language as them, I dare say they are eloquent, smart and high-spirited. Not once did they pity themselves in this interview. God bless them for encouraging hopes among others who are discouraged by adversities.
Pokonya kalian hebat luar biasa. Sukses terus yaa...BarakaAllah...♥️
Where are they from? Which language are they speaking? Such a blessing to have each other. God bless 🙌🏽
@@fatimawales8735 they are from indonesia! speaking the indonesian language (^^)
they need to meet a sufi saint who can heal them. 100%👍🕋✔️
A grateful and contrite heart is what God wants from all of us❤️
Agree ❤
I like how close they are to each other. It's good to see honest affection between family members like this.
That's why they look they way they do. Their parents are most likely cousins
Their bunch is lucky to have each other . Gorgeous looking siblings cannot sometimes share a meal with such congeniality
Heartwarming video
The truth is stranger than fiction. It is beautiful how close the siblings are.
Family is everything
someone said family? 🧐
The important thing is to accept your condition . They look like a very fun close knit family !
The important thing now days is to go viral onTik Tok to.
Юж дщ
@@adiscatic2058 and make people know/aware about other people condition.
I have read about people born with different each eye color get bullied. A people that born with differently get bullied.
Maybe some get jealous and bullied them online.
They’re seems genuinely nice wishing for the great best stayed strong ❤
Wallahi they will have the most beautiful face in jannah
They have so much fun, and are a close family that's a blessing.
God bless them.
This Family might look different but clearly have the most beautiful souls and the kindest of hearts ☺️ bless them🙏
not every weirdo and bad faces persobs have beautiful souls...
@@hanyaimantanpabuktinyata8541 Yeah, but this family sure has a beautiful soul. So, what's your point again ?
The strength of family and love ❤️
Bless this family..I wish them many more healthy years 🙏🏾🙏🏾🥰🥰🥰
Their way of talking sounds bright and confident. The vibes are all positive. I wish they could stay happy like this forever.
dont worry indo people are mostly happy altho we are poor 😂 u got summer 24/7 who can complain🤣
Goddamn they're so strong and positive.
I know it's a stupid thing to say, but this makes me feel like I don't need to get that nosejob after all and just accept and live more positively.
Thanks for the strength and good vibes, lovely family.
Rhinoplasty
that‘s wonderful! you don‘t need a nosejob, i‘m sure
😂 me too nor that tummy tuck lol
That’s a wonderful takeaway! Not stupid at all.
Seemingly botched cosmetic surgery, can sometimes be chalked up to people trying to achieve an aesthetic before their own face and/or body has finished maturing.
Thank you for sharing your lives with us ❤
They should become motivational speakers. If you can overcome this an still have a happy, beautiful and resilient family you have something to teach each and everyone of us.
It would be most interesting for them to get DNA sequencing done to see what the common trait/sequences are that could be causing this. All in all I'm glad they are making the best of it and their village understands. To think that just a few hundred years ago that people that did not fit the norm were shunned from society to live as hermits or even executed. We truly do live on a strange and wonderful planet.
Hmm wonder if it's Barber-Say Syndrome... They seem to have similar facial features as a lady on Tik Tok ruclips.net/video/riB18eHPi0Y/видео.html
@@tzanckmen459 Thanks for sharing that, very interesting indeed!
In older times, people with such genetic conditions were worshipped as forms of God. People with albinism are still treated like royals in some villages.
Also, sequencing the whole human genome is really difficult as it is so big. The human genome project took several years.
@@limo-swine6537 I mean it depends on the culture and time period obviously but yeah many people with disfigurements were accepted or even praised by their communities.
@@tzanckmen459 that's the first thing I thought too, the TikTok lady is really cool too.
I love hearing cross-cultural references like "Strong like Popeye!" -- it shows we're all fundamentally the same.
That's also a really cool shot of the family turning at the same time!
I was shocked when he made that reference!
I’m American but used to live in North Sumatra Indonesia, which is the area this family is from. Though I lived in a city, Medan, not a village. What became quickly apparent while I lived there was the reach of Western cultural imperialism.
As an Indonesian I tell you we *know* Popeye! 🤣
Popeye is popular in Indonesia
i mean Popeye isnt an obscure character.ofc we know him lol
Bless this family.....u guys are amazing
One of the sister looks different from the rest of her family and feel guilty for that as well as feel sad for them when they get ridiculed by others. Now that’s a loving family. ❤
They might have the conditions but they have what most people don’t have Love and happiness
Well said 👏👍
What a beautiful statement ❤️
What a beautiful & very true comment to make 🥰
May God bless this family keep them safe & help them to survive xx
I have it and most people do. Don't try to say they are the happiest beings with your fake sympathy.
I'm glad they say as they get older, they become less self conscious. They are a beautiful family. 💙
IMAGINE a world without bullies, I wonder if you can...
@Marcandme Seldon Isn’t snide comments just verbal bullying?
@@Aethelhadas no.
bullying shouldn't be attached to every negative thing.
Bullying should be defined as RELENTLESS assault.
So someone who's ALWAYS making negative verbal assaults, yes, bullying.
One person making one or two remarks just out of their dark sense of humor, but otherwise leaves you alone mostly or even works with you and actually have fun with you. those negative remarks aren't bullying. it's just their sense of humor in that moment.
20 people making remarks you dont like isnt bullying. Theyr are 20 INDIVIDUALS that COULD potentially be bullied or potentially just be the type to say out loud their dislikes and likes which is personal to every one.
You feel like its 20 people, but each of those people don't think about the other 19.They are each one person. And as stated before, that one person may just have that humor or dislike, but otherwise leaves you alone can even hang out and have fun with you.
What a great positive attitude they have.
I would be interested to know more about the condition and how it affects them, or what is going on - just for curiosity's sake! Although, I love their perspective that, they're healthy so theres no need to see a doctor. Awesome.