Medical Gaslighting Death? Maya Kowalski & Ketamine
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- Опубликовано: 2 июн 2024
- Dr. Anthony Kaveh, a Stanford and Harvard-trained anesthesiologist, discusses the complex issues surrounding a tragic case involving ketamine therapy and medical gaslighting. Dr. Kaveh explores the nuances of Complex Regional Pain Syndrome (CRPS), the controversial use of ketamine, and the devastating impact of medical gaslighting on patients and families. This video provides a deep dive into how misunderstandings in medical treatments can lead to severe consequences, and how to advocate for proper care in challenging medical situations.
Timestamps:
0:00 - Introduction and Background on the Tragic Case
1:25 - Understanding CRPS and Its Treatments
2:56 - The Role of Ketamine in Pain Management
4:00 - Explaining Medical Gaslighting and Its Effects
5:11 - Discussion on CRPS, Mindbody Health, and Conversion Disorder
7:03 - Case Details and Issues with Hospital Treatment Approaches
8:18 - Ketamine Coma Explained
10:00 - The Dangers of Misdiagnoses and Gaslighting in Medical Settings
11:55 - How to Advocate for Yourself and Loved Ones in Medical Situations
13:48 - Q&A Session
💛 Learn about Dr. Kaveh's transformational Ketamine clinic: www.clarus-health.com
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References:
- www.tampabay.com/news/health/...
This video/speech/channel DOES NOT CONSTITUTE MEDICAL ADVICE. Patients with medical concerns should contact their physician. If your concern is an emergency, immediately call 911. This information is not a recommendation for ANY THERAPY. Some substances referenced in this content may be illegal, and this content is not a recommendation for, or endorsement of, their use in any way.
#MedicalGaslighting #KetamineTherapy #CRPSAwareness
I have been following this trial since the beginning. I am also a Critical Care RN of 40 years. What these physicians, nurses, and especially the social worker did to this family is abusive and criminal. I hope they get every cent they are asking for. This family has been destroyed because of Johns Hopkins and their agents.
I was court order for ten years to take medication I was order by a judge tn order to keep my children my ex husband harmed my daughter while I was work as soon I I was kde aware of of what happened I had him arrested can't say I handled it perfectly but as a mother my only goal was to protect me kids any how I was ordered to take psych meds with Dr claiming I had bipolar no test just his opinion funny I never was bipolar test have been don finally I have Cptsd and dissociative amnesia with fugue I guess they dont know everything funny now they want me to try ketamine treatment no thank you i cant take anything mood altering with out loosing 5 days with no memory drs need to listen to the patient we know our bodies more than do I know after ten years of saying something is off medication makes me worse ... Lesson learned don't go to the Drs unless ur dying . I live in coastal NC and I'm personally tired off being a science project.
I've had CRPS for 20yrs and have worked in healthcare as well. I can not believe how a physician w/out privileges , Sally S. and social worker could label a pt w/o corroborating findings. The physician "retired" and SW resigned. The things they did to Maya and family are so egregious it physically and emotionally stripped her primary care giver - mother to suicide. The hospital in a nutshell kidnapped this girl, accused the mother of abusing her daughter, the mother's suicide was the last effort to free her daughter. If there is any justice for the family is bringing CRPS to millions of watchers.
Nice to have a professional opinion. Thank you!
There is a huge scandal in PA right now, many families are coming forward. It looks like Beata's death was not in vain.
@@terrilynn1110 It is obvious that they knew nothing about CRPS. I couldn't believe the unprofessionalism of the doctor who said he researched it by watching you tube videos! For example; they seemed to think it caused paralysis. They have repeatedly claimed that they could see that Maya was able to move her legs. Yes, she could do so, with pain. She was used to a level of pain that most of us would be in agony with, but for her it was a good level. Putting weight on her legs would raise that level to unbearable. To them, if she could move them then there was no reason that she couldn't stand and walk. That is so contradictory to any level of responsible medicine that it boggles my mind. I work in healthcare and have cared for people who were partially paralyzed. They could move their extremities, but could not fully control them or have enough strength to stand and walk. That situation is fully known by medical professionals. Why they equated the ability to move her legs with the ability to stand and walk is totally beyond me.
In the Maya case, the hospital didn't like Beata. They found her pushy and uncooperative. They took Maya away from HER. Within days of her suicide, Maya was released from state custody reunited with her family. After Beata's suicide the hospital STILL was disparaging Beata in their emails as though they were glad she was dead. The way the hospital behaved in this case, and it turns out other cases as well, was utterly sadistic. Beata was RIGHT. She knew Maya would be released from state custody if she was dead.
All it was was a power tripping tyrant who’s ego was hurt.
The mother was actually the most reasonable person of them all.
I believe this also. I believe that they didn’t understand her behavior, she was from a different culture and she had knowledge of medical practice. I think they didn’t like that she knew what she wanted for her child and she adamantly asked for what she believed would help her daughter immediately. And that is ALL she did
@@melissaowens6031 Yes, exactly! (I’m also Polish, like her). I believe she gave them quite a cognitive dissonance, being both a nurse (medical professional, respected, high in hierarchy) and an immigrant with an accent (white trash, not respected, low in hierarchy).
There is a profit motive for both hospital and state if they take custody.
Nothing upsets me more than doctors who don't believe you're in pain!!! I wish someone would be brilliant enough to invent something to prove pain. Just because others can't feel your pain doesn't mean you're not in pain. I finally have a doctor who believes me, and I am so grateful for her.
I cannot agree more with you. I'm so happy that you were able to find a trusted doctor. Unfortunately, it is incredibly difficult, if not impossible, to quantify pain. Fortunately, there are many intelligent minds working on this problem 🙏
I agree 100%. My psychiatrist and FPN are working together to try to manage my pain from my fibromyalgia. At least I have people willing to listen (and parents willing to listen too!), and I feel so blessed to have that in my life!!!
@@RebeccaKing1017supportive family can make the world of difference.
There is so much that medical science is still finding out... A few years ago, they discovered a whole new "organ" which is a type of tissue surrounding all internal organs and all internal surfaces. This was only discovered in the last decade. It's innervated, so pain signals can arise from this new organ no one knew existed.
The most dangerous thing in medical practice is arrogance of practitioners -- that leads to mistakes, or to actions based on hubris, or failing to admit that actually medicine is still a developing field (positioned between an art and a science).
Fellow fibromyalgia patient, I was offered lidocaine infusions, that same week diagnosed with a fast growing stage 3A breast cancer......
Have to say, all the meds I'm on for the nettles & knives mastectomy pain, has done wonders for the fibromyalgia!! Topical lidocaine-benzocaine (over a whole upper quadrant of my torso & arm) has actually helped systemically, as has morphine, melatonin, and others.
(Gabapentin is paradoxical for me, nsaids cause vomiting, anti-depressants send me full on loopy with serotonin syndrome even in small doses (meaning tramadol is also a no-go as it has that SSRI/SNRI component).)
But yes, supportive family is a life changer. We're so lucky to have this.... Know so many fibromyalgia/ME people who aren't believed by anyone (then the ME patients have autopsies, and found to have extensive ganglionitis causing all the neurological symptoms that were dismissed).
(None of this is medical advice, just saying what has worked for me personally!)
I have invisible illness. I have fibromyalgia. You cannot see how much I hurt. Fortunately after I was diagnosed I asked my family doctor (who I worked with when he opened his practice) who knows me. Nless his heart, My life is a bit more liveable!.
Same here
Retired RN here-I was blown off and labeled FOR 20 YEARS as depressed, anorexic, anxious, lazy, drug-seeking etc until I finally collapsed. Turns out I have a confluence of autoimmune illnesses which presented in my teens. Not one of the bastards apologized.
‘Bastards’ is a PERFECT word!
When specialists ask “do you trust me?” .. I look like this 😳 Nope! Earn it.
Sorry you had to go through this for so long !!
Oh my goodness that’s awful
I hear you!
So sorry to hear what happened to you! And, different, yet similar story. I'd had a neck injury that MRI showed as herniated discs. Since I was in my mid-20's docs told me this condition would heal on it's own in time. 22 years later when I was falling due to legs giving out (and had actually broken bones in these falls), difficulty using my arms due to numbness, weakness, etc. MRI showed either "within normal limits" or disc herniation (guess it depends on who reads the MRI), 3 neurosurgeon consults later....scared as I was due to 22 years of being told in many occasions the pain/symptoms were all in my head, had a 2-level neck fusion (in a cast left arm due to broken wrist from a fall prior to surgery). Surgery time was double the estimate as there was spinal cord compression (surprise to surgeon since it hadn't shown up in diagnostic tests), one vertebrae was "crumbled," and several other issues unseen on their "tests!"
Sadly, I woke up unable to use my right arm which the surgeon told me wasn't his fault...it was the result of the spinal cord compression (after spending 2 months of sending me for consults to prove I was faking it), and living in HEL# on earth of pain, fear, confusion, doubt, anger, grief, all while unable to care for myself! Broken left wrist and paralyzed right arm which meant I could not wipe my own self, feed myself, dress myself, etc. Finally, testing revealed severed nerves (considered a risk of surgery) and 15 years later, daily physical therapy (done at home for years now), in chronic pain, I have partial use of the right arm. This is one of many experiences with doctors not believing me about pain (as it turns out also have psoriatic arthritis.... undiagnosed for years), several other autoimmune conditions, and a primary care doctor of 22 years that got a special license to RX pain medication due to his belief in the pain I experience and the belief in the "horrific" way he's seen me treated by specialists in various areas of medicine.
I've watched the Maya case from the beginning and am confident this jury sees the truth of what happened to her and her family.
I really want them to find intent and break through mandatory caps on punitive damages to send a message loudly and clearly to the medical community at large to stop using the excuses of illegal drugs, etc. to punish people in pain!!! #Mayaforthewin💜
So sorry you’ve lived in hel# for decades🙏🏼
My mother was sick for many years. Her doctors thought she was a hypochondriac. No one believed she was in the pain she was describing. She was admitted to the hospital for an episode of stomach pain. She died after a few days. It was a surprise. We had an autopsy. Her entire body was full of cancer.
I'm so sorry.
Can't believe (well, I can believe, but it shouldn't happen) that no one sent her for an MRI with contrast.
Albeit cancers like lobular carcinoma, including metastatic lobular, are immensely hard to spot on imaging.
I am truly sorry your mother endured this. Whomever was her primary physician, and anyone else in her case, sound woefully undertrained in indolent cancers which are hard to spot on imaging. No one should endure what your mum, and your family, have.
No money compensates for your loss, but I hope they gave recognition to her post humously, and have learned from her situation (as well as decent compensation for her suffering, your loss, and her lack of treatment to prevent loss of life).
Oh my gosh, I’m so sorry. I hope you sue them!
I know a similar case, stage 4 cancer but treated as a mental illness, also given ketamine but with bad side effects.
@@indigobunting2431 oh my
So sad. Sorry this happened to your family!💔
It was officially diagnosed and that poor child was medically kidnapped. What they did to her and her family was so disgusting I hope that they are all held to task legally for their actions. I have followed this case from the start & it is shocking. Gaslighting! She was a well trained nurse who had spent all her spare time researching some form of relief from constant pain for her daughter. Shocking what was done in this case.
Exactly, kidnapped and tortured.
Well said
I worked for 34 years in for the Chief of Staff at a major university. When my Dad was admitted to Kindred Hospital with a temporary trach (and it was coded that way) I tried repeatedly to get him a decannulation trial, and was repeatedly ignored and endured horrible gaslighting by physicians I could not believe were even in licensed. He was held there, and not allowed to improve or transfer...another medical kidnapping as well. My boss was head of Resident training, so I was familiar with knowledge limitations. Our doctors were great, with great communication skills. Kindred could only make money by code farming, and creating more nosocomial complications. That actually was part of their revenue generation. Everyone in our family was gaslighted and belittled, and victimized. They even tried to put my Dad under guardianship when my Dad was under their care (with intended isolation). They even said we should let him die, because he lived a long life - they did not say put him in hospice. They actually said "let him die" right in front of him. Dad was made a part of the dry run for COVID elder abuse (and isolation was part of that). Later my Mom fell into that too. We removed her from Saddleback Hospital when they tried to kill her with dehydration, and double diuretics. We even found when we unwrapped the gauze covering her IV insert, it still had the needle guard on the needle, not even in her arm, just hidden under gauze. We took her out AMA , and the fools even sent APS after us. She was already getting better, and we escorted the Marshalls and APS agent out of the house. She has only had one good doctor in ages...a urologist who was so.knowledgeble, inquisitive and kind to my Mom (like the doctors I worked with at my university). I get PTSD taking my disabled brother to the VA...never met so many evil, disconnected "doctors" in my life. I don't go for checkups any more. I cannot handle it. I had a very good opthalmologist who did my cataract surgery, who brought back some of my faith. So glad you are addressing this.
Much of the Resident gaslighting is due to a wealthy, priveleged upbringing and not knowing how to deal with others different than them. It usually gets "beat" out of them, or they go to some other profession.
Hello, your.not paying attention to the case maya nearly died from the ketamine coma.her mother was subjecting her too. Demanding hardcore drugs on a child already caught lying about pain.....also read Beata s creepy emails on day 20 this is a classic case of Mbyproxy. Every medical professional from all over have stated in this trial the ketamine was very dangerous and nit needed...so they all against poor little.maya...
You people are watching the trial...that lady would of killed her if the hospital did not intervene...she just chose to kill herself because she was found out.
All of them should be stripped of their licenses, and be held personally financially responsible for the lawsuit, instead of the insurance companies paying them off and milking the public to pay for their crimes!
Thank you for validating that doctors do gaslight. I almost died from diverticulitis and my intestines burst. I drove myself to the hospital. My doctor said I was drug seeking. He kept me in his office from 7:30 until 5:30. I drove myself to the hospital, where I passed out and a nurse found me. I ended up with a colostomy and was in the hospital for a month.
This trial has really triggered me. I have been through so much with my daughter the last 14 yrs. At age 15, she woke up with her leg purple and swollen. I knew it was a blood clot. I rushed her to ER and it was very lg, from her hip to her knee. She was hospitalized for 2 wks and DX with APS. She’s has several PEs, and an HVT. She is now 29 and has primary Sclerosing Cholangitis in her liver (diagnosed at the Mayo Clinic), and IGA Nephropathy. This past June, she had a biopsy on her kidney and when she got home she experienced increasing pain so I took her to the emergency room since she’s on blood thinners I believed she was hemorrhaging after the surgery. The ER triage nurse ignored my pleas that she was bleeding internally after giving her all the evidence: surgery earlier in the day, blood disorder, on blood thinners, increasing pain in the area of biopsy. They didn’t call her back until hours had passed and by the time they did the CT scan and got the results, the hematoma was pushing on her kidney. They had to transfer her to another hospital. They next day she went into renal failure and then respiratory failure and had to be intubated and put in a coma. They didn’t know if she was goin to make it. I was so traumatized by the whole experience I fainted in the hallway. It was a nightmare. I was so angry because it was unnecessary had they just listened to me at the ER.
I'm so sorry you had to go thru that with your daughter.
@dianna1979 - The problem with all these people who have a god complex, is the fact that they automatically ‘know’, that you as a mother, are being hysterical, and over inflating the symptoms. I am sick to death of the medical profession, with whom I have had several terrible experiences over the years. I am in total sympathy with you over this, and all of it was so unnecessary, if they had just listened to you in the first place. The medical profession is not taught to listen, but to make a diagnosis, regardless!
That’s awful that y’all had to be traumatized like that. I’m so sorry I know how it is to be in pain
That nurse needs to be fired!!
I hope you will hire a good personal injury and negligence lawyer. Although it doesn't change your daughter's situation, a good lawyer can also help find the appropriate medical treatment/medical facility.
I have RSD and understand Maya's pain. Understanding her pain and as a mother I understand Beatas actions. I have watched everything about this case. Beata killed herself to get Maya out of Johns Hopkins. She was left with the only choice, taking herself out of the picture. It worked she was home a week later. I hope Maya wins this lawsuit and bankrupts Johns Hopkins.
I have CRPS as well and I completely agree with you.
I don’t have CRPS but I do have chronic pain in my thoracic &lumbar spine and my legs. I have had a painful time mentally dealing with drs that don’t believe my pain is real. I have had a fusion twice ,two implanted devices for pain and then had both taken out. The oral meds are helping ok now. Pain management drs that do give meds have to give random urine screens. Some refuse to even discuss the word opiate.
After watching much of the trial, I just can’t believe what they put Maya through! And her Father and Brother. Their lives were changed forever 😢🥵I agree that Beata killed herself to get Maya home! I expect the jury will find Johns Hopkins guilty . I don’t think they will be awarded 200 million but probably 90 million. That would be a million for each day of agony.
@@susanhawkins7435 they are seeking $200 million for lifetime care of Maya as well not just the time in captivity. They will probably be asked to take into consideration if Maya can never work due to the trauma they caused.
Although I don’t agree with the extreme of taking her life, I do believe that Biata, absolutely knew, that she was ensuring Maya’s safety. She knew that she was preventing Maya from coming home to the family, to their home. She sacrificed herself, so that her child could come home. She knew that as long as she was around, the hospital and CPS, would never release Maya from the hospital and, eventually she would be out in Foster Care. This was a tragedy. I don’t know if it was the right choice for Maya, because she blames herself now, for her mothers death. I hope she gets every single penny and more. I’ve been following this case, and there is no way this family is walking away with nothing. The treatment was absolutely disgusting. That woman who took the stand yesterday, was an awful witness for the defense. She was bitter, she was combative, and I believe she was lying.
couldn't agree more
Medical PTSD, glad we're talking about this being a reality.
I've got it so bad now at age 62 that I've not seen a doctor in over 12 years & can't MAKE myself go to 1, no matter how sick I get, spleen's blown up like a football, gallstones blocking up bile tubes, bleeding internally, high fever, bad pain ? Nope, I'll just wait for it to get better or to croak, can't make myself go, for years now I've tried to make myself & won't go.
I explained it to my 4 grown kids & 2 of my 6 sisters, told them I CAN'T make myself go & don't know why, asked them toplease help me by fussing at me togetme togo, or just take me there so I can't back out of another appointment. It took a lot of abusive, cold treatment by a lotof drs and nurses for me to finally giveup on getting better,a lot. But I always could havebeen helped if they'd bothered to look withMRI's or anyother tests..Now it'stoo late. The spine collapsed so much, by age 47 I lost 7 inchesin height as it curved, twisted & collapsed. Now it CAN'T be fixed cause no type of devices will fuse with what bone is left in my spine now if they tried any surgery to repairthe 8 ruptured/hernated discs, the spondylosis,spondylitis, ankylosing & osteoarthritis devouring my spine. Theres so much more wrong too...I've just had to suffer.
Now I'm realizing THIS, PTSD from abusive callous treatment, this is why I got where I can't make myself go & deal with even 1 more jerk dr or nurse, from so much pain I've been through paying my hard earned money to seek help from so called 'medical professionals' who then used me for years, prescribing highly addictive meds to ensure I'd HAVE to return every 30 days & pay their reoccurring high office VISIT FEE every monthly visit; so they could count on making money off of me & all those they failed to treat too, using them the same way, knowing there were MOST likely REAL injuries & other issues that needed to be treated or surgery done on to fix the problems; yet NO dr ever ran a MRI or xray even to see what was wrong until : I INSISTED they do some tests to find out what was CAUSING the pain.we had nointernet, we relied on doctors knowing what to do. This is what they did to us with insurance.
Instead of actually trying to help me get better. All they did was belittle me, look down on me & not believe what I said, or the symptoms any idiot could see that they should've seen & recognized & then did the appropriate tests to find out what was wrong.....
My belly swelled up & looked 9 months pregnant when I'd never had a big lump on my belly like that, it was ignored by drs who acted like all I was there for was pain pills & like they had more important things to do like play another round of golf. ALL I WANTED was to find out what was wrong & answers so I could find some relief from the constant pain.)
I'd actually rather just go ahead and be unalive than to be hurt , unbelieved, mistreated, disregarded, receive their disdain and looks of superiority that I've had to put up with from jerks, total unfeeling, unempathetic, cruel doctors and nurses over the years. My spine collapsed starting at age 37 & by 47 I'd lost 7 inches in height until I went from 5'9" to 5'2", when FINALLY they could SEE that it was EVIDENT I was in real pain.I'll never go to another dr and there are millions they've done like me it is a crime.
@@KathyHussey063 Bless your heart!! I feel your pain (a lot of it anyway)! I had back surgery at 19 because the doctor told me if I didn't let him operate, I would be wheelchair bound by 20. They tried to get an IV in which took 14 tries! I was begging them to just give me the solution and let me drink it. They kept saying "You wouldn't like the taste of it." I said "I would like it more than I like being stuck with more needles!"
The lady who finally got the IV in was totally blind and the head of the pediatrics and NICU dept. She got it on the first try. After all that, I found I had a heart problem, misdiagnosed as mitral valve prolapse, but actually it was a large tumor growing on my valve. He did the surgery, I woke up during it to hear him say "Man, this chick is really hot! I wish I could **** her in her *** (you can probably guess what the blanks are). Later the next day, his assistant came by and asked me the last thing I remembered. I said it was the doctor saying what he wanted to do to me. He turned about 30 shades of red and white, then told me that was a dream. Been in constant pain since then, after 22 surgeries I find out I have cancer. 40 years of constant pain and pain meds, I finally found something that helped and then the doctor went to jail. No others can give me what he did because supposedly it needs a special license to prescribe it. Now the lovely gov't. cuts doses so that nothing works. I love the gov't. haha
Back in 2006 my child was treated for CRPS. It was a nightmare to get that diagnosis and treatment. The way she was dismissed until her hand atrophied, was disrespectful to her. We went with anesthesia and nerve blocks. This case has triggered me, at the time I would have done anything. Many doctors told my child it was in her head, and made me feel helpless. I was later diagnosed with a nerve disorder that they now are researching its connection with CRPS.
❤
@moonspath1598 what nerve disorder? I’m curious of the ones in family
Doctors are worms if a patient says they have pain they are treated like criminal bc of prescription pain medication hysterical nonsense it's Marxist medicine not since 2017 due to corruption of US government & brain washed doctors & open border crisis.
@@jena880 Raynaud's disease, I didn't keep up with the research connecting the two. It was just before covid.
@@moonspath1598I just read that Raynaud’s is associated with TMA. Thrombotic Microangiopathy. There are immunotherapy drug treatments that are being used in the Seattle area for this. One drug is called Eculizumab. People are finding relief with this medication.
It is so refreshing to hear a genuine trauma-informed medical doctor speak about this and validate the lived experiences of peole who haven't been believed or mistreated within medical establishments.
Been an RN for over 30 years and the medical industry has definitely changed, and not for the better. I’m ashamed that those so called nurses did not stand up for her, instead talked about her at the nursing station where, she obviously, heard them talking about her. BTW, pain is subjective.
That's the truth! Being pushed to work faster and in the constraint of insurance has caused so many people to fall through the cracks.
I do remember years ago some doctors would tell the nurse to go in and push a couple ml of ns and tell the patient it was a pain med.
I remember recently after having a seizure I was still cognitive enough to inform them my dad was allergic to phenobarbital and I wasn't sure I was or not. They pumped me full of it via IV anyway. Luckily I wasn't allergic but I still felt very uncomfortable they ignored me. There was no room for me to have a room overnight I stayed in the ER. Thankful that worked out with insurance coverage. The physicians didn't discuss my health with anyone and right before I was discharged the PA was like "we're so sorry you didn't get a room and you had to spend 5 hours on a gurney in the hallway" and I told them "I'm about to be discharged" and they were like "oh cool!"
@@Flufferz626they never look at your records in er they never contact next of kin...my friend was hauled away with psychosis after giving birth and they never called her parents took them two weeks to find her. Didn't tell anyone.
I have kidney stones very frequently and every time I go to the ER I hear the nurses talking about me negatively. They seem to forget that the curtain around the bed isn't a door and that I can hear everything they say. Kidney stones are extremely painful but I'm always seen as a drug seeker even though I never ask for narcotic pain meds.
My son was dx in 1996 at age 14 w/ RSD. I too was accused of Munchausen to which thankfully his pain doc QUICKLY stood up for us. As a mom watching you child suffer with unrelenting extreme pain 24/7 is a living nightmare. I too would have tried the Ketamine coma in a heartbeat had it been an option. Thank God after 4 yrs he did find an experimental drug program that helped him. We both have PTSD but we are so grateful for the relief he has gained. He still has intermittent pain but has gone on to live a normal life and gave me 2 wonderful grandsons!
I am so glad for you!!! Dr. Kirkpatrick tried to tell them that this is NOT fake, this is a diagnosis, and they didn’t care
Yeah that’s what I thought and didn’t dr Hanna talk to them also In Er..I still don’t understand how they came to dx with conversion/abuse with confirmation from these doc specialist? so sad what u moms go thru…I’m glad ur son is doing well…I hope we get justice for maya❤
I also have CRPS ...It is so depressing having Drs dismiss me. May I ask which drug your son found helpful? I will be trying K boosters in small doses. Im also following the trial...
Wow thanks for sharing this beautiful story!💕
I’m so glad that has a lovely ending, interested to know what a relief helped him too, another CRPS patient one thing that’s rather lovely is how many of us have come out for this trial and connected. Justice for Maya. ❤
In other words parents can't be their child medical advocate or else your child will be taken from you 💔. Doesn't it boil down to ego on the part of the medical workers not wanting to be questioned and/or not wanting to do extra research which would take time out of their day. Very sad world 🌎 we live in.
Exactly this .but also CPS make big bucks from taking children and putting them into Foster care...it's a multimillion racket
It is very challenging, especially when unconventional treatments, like this ketamine coma are being used
@@MedicalSecrets well whether it's an child or adult it seems to me most medical doctors don't want to be bothered looking for the latest research. For instance my husband had a Clival Chordoma Tumor rooted at the base of his brain stem. Not only did he have to fight Kaiser Permanente but had to fight every place Kaiser sent him to for treatment to say their treatment wasn't the latest and best treatment for him. It was a literal nightmare trying to get him to Loma Linda in California for the best treatment at the time. Finally his persistence paid out and he was granted permission from Kaiser Permanente to go for treatment. I must say after that Kaiser Permanente was on board with anything he needed after that. Because of his persistence and Kaiser Permanente listening to the facts of the most current treatments he lived just over another 15 years. Patient Advocates are a must and I consider it child abuse for any hospital or medical staff to not do the research to find the most up to date treatments for any illness. Shame on them for not doing so and shame on them for twisting it to say the parents are abusive when it's truly them who are performing child abuse (neglect!!!!) toward the child😔💔.
Great comment!
@@MedicalSecretsgreat episode. Thank you!💔🙏🏼‼️
I've been a chronic pain patient for 16 years and I now find myself able to educate 80-90% of most doctors. I can tell you there is still a huge stigma coupled with a willful ignorance on the part of medical professionals. About 10 years ago, I had a psychologist recommended to me and this person made a huge difference in how I cope. I also started attending the support group he hosted. Knowing I'm not the only one struggling is important too - though we never wish others to have chronic pain
Mindset actually is so important when treating chronic pain; I wish doctors could say this in a way that doesn't seem like they don't believe us. Fear and stress increases inflammation/cortisol etc definitely increase pain. It made such a difference to me to be able to do that (although I still need opiates and feel dreadful those in the US aren't able to access the same standard of care.
At this point I am so defeated by the CONTANT medical gaslighting and under treatment of my pain. In the last 4 months I have literally had a 23 year old NA at my pain management tell me that because my steroid shots in my knees were only 30% effective that my insurance would no longer pay for them. This is after they scheduled each knee and each shoulder, 4 shots, 1 shot per appointment in a surgical theater 2 weeks apart. That is one shot every two weeks and I have to wait 6 months to get it again. But since the results weren't good enough they won't pay. I went to my rheumatologist, he gave me all the shots in his office no surgical theater without 3 people in scrubs. We agreed that was BS and probably insurance fraud but he also told me THERE ARE NO OTHER CHOICES in my town.
My heart hurts for the unimaginable pain the family will live with forever.
The unfortunate daughter will likely carry blame and guilt that she doesn't deserve. Only the medical community deserves that guilt.
@@justjosie8963I disagree.
In my opinion, the real villains were the social service system (CPS) and the judicial system.
This doctor is so compassionate and helpful explaining complex subjects. Very good at communicating, both on a technical and emotional level. His patients are very lucky to be under his care.
As a 22 year old female who has CRPS (diagnosed at age 12) along with several different chronic pain conditions on top of other chronic conditions, I personally have gone through the same type of situation and it had a horrible effect on me and my quality of life because not only did I get gaslighted by medical professionals and was treated like crap just by being a girl, I also got abused/neglected (more than I was before my chronic conditions started showing) after the suspicions of munchausens popped up.
I have so many su**ide attempts and a handful of them are because of doctors and their lack of empathy and treatment.
I'm so sorry. Please don't give up. 😢
I’m so sorry for all that you’ve been! Hopefully very soon we’ll know more about these rare diseases and how to treat the body,brain and the whole person. Please hang in there🙏🥰
Pain can get so bad sometimes, you just can't take it anymore. I get that. Please don't take any action on that thought. I scared the hell out of myself when I realized where my thoughts were headed. It was not CRS, but pain is pain.
I believe you and I’m sick of medical professionals gaslighting people who are suffering in pain.
Please do not take your own life.❤️
I am so sick and tired of medical abuse.
Amen...😢
She went under a 5 day ketamine coma ONCE. She had other treatments, but only one ketamine coma.
As a woman with endometriosis I know how doctors think we are lying about our excruciating pain. It took me 15 years to finally be believed. A surgeon agreed to look for endometriosis. After the surgery she said, “ it was everywhere all over your body”. Five surgeries later I am almost pain free.
The medical field needs to believe women when we say we have pain. We not drug seeking. We are seeking to be pain free so we can cook dinner for our family, clean the house, help our aging parents, and do the activities of daily life. We can’t do that if our pain is unbearable for years and years because NO ONE believes us.
Amen sister! Imagine a marble sized hormones producing mass in a testicle. That's what I wish on all those Drs who think it's a hysterical female problem!
Absolutely. It took me breaking my neck, fracturing my skull, and separating my shoulder in a bicycle race crash, then getting up and finishing the race injured, to get doctors to take me seriously when I told them how painful my periods were with endo. Pointing out that they were more painful than racing with multiple broken bones finally seemed to get the point across.
It simply shouldn’t take that much.
@@heatherjohnson7509 similar story after I was crushed under a low boy trailer 8 years ago. Whole body CAT scan found a pelvic fracture that I had and never missed a day of work. Weaker gender my butt! When I broke a titanium rib replacement stopping a dog fight, surgeons just shook their head! Hope you've recovered from your crash, age is certainly making itself known here but they're years I didn't think I'd see so enjoying every day.
Wowsers. You just explained my life, without help, counseling, or being able to completely trust anyone.
But, I think that if I had a chance to have a week, month, months, without pain, I would jump right in with both feet. I used to ask for a pain-free day, just one day, when anyone asked what I wanted as a gift.
I am heartbroken for this family. All they were doing was trying to help this child. It really is a shame that they made this mother feel so guilty that she felt that there was no way out. 😢😢😢
😢😢😢😢
When it may have been simple parasites all along!
Then they’ll put “pseudo” in front of everything they don’t have a diagnosis for, but guess when they look up symptoms.
We need a WHOLE LOT MORE docs like you🙏🙏
but would you kill for one day of no pain?
God I wish I could get lucky enough to get a dr like you. Thank you for being such a caring and amazing dr to your patients.
He really is a lovely, genuine, caring person. That makes the world of difference to patients.
Am lucky, my GP is immensely understanding. I know this is like gold dust.
Go review his video on his stance on the use of opioids... you may have a change of heart. As a CPP I was dismayed by his responses.
Me too , what a lovely Dr,
I have chronic pain everyday. I am on low dose pain management. My doctor is outstanding. I am so thankful for him.
LOL, he is gaslighting you!
That testing patients...
I was so abused by a doctor in CCCounty hospital. Had a 2 week migraine and she was sure I was faking. Kept moving me around -- telling nurses to position me so that when they opened the blinds the sun would be in my eyes. Moving me into a room with a loudly arguing couple who were blaring the TV. Great stuff for migraines. At least I got to watch her get dressed down and removed from my care by her boss after I started screaming at the top of my voice to get out of that last situation.
I won't dox that SF Bay area doctor here, but 20+ years later, I curse her being whenever she crosses my thoughts.
I can somewhat relate to your abuse. Because of a CT Mylogram I had a Spinal Fluid leak and the treatment was having a blood patch. The leak caused me to have an awful headache with sitting up. I went to two different hospitals where the Neurologist ordered the blood patch, but the Anesthesiologist at both hospitals refused to do it. My Pain Management doctor ended up doing it but because of his schedule I had to wait. I was basically bedridden for three months. I have lost all confidence in both of these “Teaching” hospitals. Stay well.❤
@@NavyWifeI can sympathise. I had it after a c section. Fortunately being in hospital I was given the blood patch within a day and until it happened I could keep lying down. My son was in special care so I wasn't having to be a full time mummy except for feeding. Lasting 3 months I could not have done. It felt like my brain was being ripped downward. You're a braver person than me!
@@NavyWifemy friend had a bladder mesh surgery. She had a headache at home and went to ER, she wondered if she had a spinal fluid leak. They didn’t do anything and sent here home. Later she passed out on the back of their motorcycle and fell off and was back in ER where they found the spinal leak from the surgery and then did a blood patch. Besides the bladder mesh being a total disaster requiring more surgeries.
@@NavyWife
I can’t believe you had you had to go through that for so long. I don’t know how you could take that kind of pain. I had the same thing happened to me I had to have a ambulance take me to a hospital the pain was so bad. I couldn’t move upright the pain was so excruciating. The hospital did a blood patch immediately. Mine was caused by an epidural and the hospital didn’t have me lay flat for the amount of time I should have. I am so sorry you had to go through that I can’t even imagine having to have that kind of pain for so long. That doctor should not be practicing! 😢
Im so sorry.
They took the child away from the parents for a very long time and the mom couldn’t even visit her daughter it was heartbreaking in so many ways❤
Just because they didn’t understand the treatment for her crippling painful CRPS. I hope they win the lawsuit!💕🙏🏼‼️
Killing herself was cruel to her whole family.
@@ldolan4051 yes the medical professionals gaslit her to the point where she felt the only way out was killing herself, so sad. She thought if she was out of the way now they’d take her daughters condition would be taken seriously. She obviously thought this was the only way out to help her family & especially her daughter. At this point she wasn’t thinking rational at all because her daughters pain was the only thing she was thinking about unfortunately . It’s a tragic outcome to a tragic story where the medical staff weren’t helping the family as a whole unit
@@nataliemcmanus113 nope. She used her son for her own sympathy
@@ldolan4051 daughter not son. Watch the documentary and the trial coverage at @lawandlumber they break it down piece by piece to understand both sides better
My daughter had an 8 hour surgery to correct severe scoliosis at the age of 12. They cut her open from the base of the neck down to the middle of her back and then pulled her spine back into place and then attached titanium rods to the length of the curve to hold it into its new position. After she came out of intensive care and up to the ward, I slept in the room with her. She was medicated via an epidural. In the ward, she was never without pain. Those first few days broke me as a mother as my child cried out in pain continuously. She did not sleep, or eat, and I told the nurses something was wrong. They told me to calm down, that she probably had a low pain threshold. At some stage I became agitated and started checking things for myself and I discovered a wet patch on her pyjamas where the epidural connected in. At that stage I went feral and demanded the anesthetist come in and sort it out. The nurse again told me to calm down and that everything is as it should be (without even checking). So I became extremely aggressive and told the nurse that they would have a team of lawyers in the room if she didn’t investigate immediately why my daughter was in so much pain. She rolled her eyes at another mother overreacting, and then went and checked my daughter and discovered low and behold, that there was definitely a large wet patch where the epidural was leaking. Called the anaesthetist in pronto and he didn’t say anything much (they never accept any responsibility) but he took the epidural out and gave my daughter morphine. She finally relaxed and slept and was able to recover after this. My analysis is that my daughter had little to no pain relief after an excruciating surgery and that pain was unrelenting for the 2 days that the hospital would not listen to her and believe that her pain was real.
They have a God complex.
God if she had a low pain threshold that's all the more reasonable to give her pain relief. I have a high pain threshold and usually don't need anesthesia for small things or meds after dental extractions things like that. I have a high pain threshold so I need less pain meds because I can handle a lot of pain. If she had low she needed more pain meds. And why on earth would they not establish that before surgery ..poke her with a stick and see if she cries poke me ten times and I won't mind and then they would know not to waste meds on me and give them more for her. Right. Like is that such a difficult mental thing for smart doctors to think about? Surely to god that's what would make sense? Sometimes I am baffled by the stupidity of people who did so well at school when I did so badly at school yet seem to have more sense. Am I missing sonething?
They NEVER apologize or admit their MISTAKES, and they make a LOT of mistakes.
Just went through this with my kid. Different surgery though. Had to push for her to get pain relief after surgery. It’s not ok
Oh this breaks my heart. I had a spine surgery and can imagine her pain and the overwhelm you felt as a parent. Thank goodness you were there advocating for her.
I’m so glad a doctor has named this phenomenon that has happened to the Kowalski family - medical gaslighting! Great video, Doctor. Thank you.
I'm so glad that someone finally said it! I know that the attorneys are just doing their jobs, but it seems like they are still medically gaslighting her. It's so sad to watch. Thank you for educating people about this problem!
The defense has been disgusting. Yesterday trying to enter pictures of her playing or smiling with her boyfriend, to show she is not sick or not traumatized. As someone with chronic illness that still try to live my life, is disgusting. Legal accusations can usually be defended with good faith, meaning one of these doctors could say that at the moment they didn’t know the condition and that is why they acted like that in good faith. They can even include what they say that the attitudes made them doubt, etc. However, years later, when all of them have hear how the condition works, how is episodic and they still go there and double down in the gaslight, is nasty.
I love your answer to the question about why women are more likely to get gaslit by doctors than men. It’s exactly that - people who enjoy practicing gaslighting will only target those, who they perceive as weaker than themselves. They might try to bring someone down a bit, but not a whole lot. And they will always step down and show respect to a more powerful person. This was the problem of Beata, Maya’s mother: she would stand up to people who consequently perceived her as weaker and didn’t hesitate to go all the way against her. If she tried to change this perception, she could have solved the problem (or not, one never knows with the Angry Authorities). I guess she might have expected respect, because she was a nurse. Well, apparently being a Polish immigrant and a skinny, polite, white woman trumps bring a nurse. In a negative way.
I've been following this trial. It is heartbreaking. The Mother was told as long as she lived in the home Maya couldn't come home. There's so much more to this case. It's heartbreaking. One thing that came out in this case was the hospital billed the insurance company for treating Maya for CRPS. As well as other things. I don't want to put the name of the channel that I am following the trial in without this Dr. Kaveh giving me permission.
Why wouldn’t you just share the channel. It’s all public. Just tell us.
Like most medical practitioners I have seen, they do not listen to the patient. We are a piece of meat to them, and they let their pride get in the way. That's what happened to Maya, a 10-year-old little girl, who had no advocate for her, at the mercy of a psychotic therapist and doctor.
I have had CRPS for 12 years and am a FNP. I undergo treatment of Ketamine at the Cleveland Clinic.
You did an amazing job on this video ❤
I’ve had RSD / CRPS for 22 years. I wish my doctors would entertain the idea of ketamine for me. I am blessed I get to be treated at the Cleveland Clinic
I am so glad they did not settle out of court for this medical disaster the cost of the life of poor Maya’s mother. If they had settled, we would never know about this and not only that other families that have been through it would never know that they were not the only ones.
OMG, I am a former surgical RN and a chronic pain sufferer after a traumatic injury. I so relate to this.
The “I’ve never heard of this or experienced this. So you are harming your child.”
The arrogance of these people
While I'm sure it is more nuanced than that, I agree that it is a terrible outcome 😔
@@MedicalSecrets true
The is how it comes across
A doctor told me that an experimental treatment he was not aware of must be invalid because he had not heard of it. It was HBOT (it's used already for non healing diabetic wounds) I was using it for a brain injury. The doctor tried to bash alternative medicine I called them out saying it's not alternative medicine when you are not providing any treatment.
Munchausen by proxy:
1. Almost all cases women
2. Majority of cases are mother with daughter victim
3. Significantly more likely to work in medicine, especially as a nurse
4. More likely to have had trouble conceiving the child
5. Switches doctors and clinics often
6. Does not start with conservative treatment, but jumps to extreme treatments first
@@MedicalSecretsactually it isn’t. The child abuse doctor has no experience in child psychiatry and neurology but decided she knows best. She didn’t ask for notes from Maya’s other doctors.
Thank you so much for this. This family was treated horribly by the hospital and their staff.
I’m so glad your channel was recommended to me. As someone who has dealt with chronic pain for 50+ years, told it was all in my head, and after 20+ years finally dx, I am so grateful there are doctors such as yourself that listen and understand their patients instead of just telling them they are crazy. Thank you for what you do. Newly subscribed.
This story is so heart breaking. Medical gaslighting is absolutely terrible. I got medically gaslit as a child and it has me doubting chronuc pain and any other pain i have at 35 . I waited 3 days to go to the hospital once, until my appendix burst and i couldnt get off the floor. Or the time i was in severe pain from preterm labor that was about 3 days too before i went to the doctor to find out i really was in pain. When this happens, you spend your life in denial of your chronic pain and any another pain. For Maya its even worse though especially because she not only will doubt herself and whether she'll even be believed by medical people but shell have a fear of being harmed them or the power they have to take her from her family.
Thank you for advocating for chronic pain patients, patients in general.
You’re fantastic. It is so refreshing to see a doctor who communicates no ego but a true desire to heal. Thank you for sharing information with everyone. You certainly have the knowledge, and I love the kindness that you have along with this. Sure wish you were my doctor!
Don't kid yourself , they are great actors also.
@@Fedeleness Aren’t we all? I’ll take a doctor that “acts” like this any day.
This is exactly the similar nightmare my son lives with. I don't even care what has been done to me but carried over to my child, now an adult under their full control. This world ....😢
I'm so sorry. That fear is horrendous and gnaws at the insides, and I'm sorry you're going through it: no one ever should.
Does your jurisdiction have a court of protection where you can apply to be awarded either guardianship, or power of attorney? If not to you then to another family member who can then make decisions on your son's behalf?
I'm sure he appreciates your support and that you didn't give up on him.
Don't ever give up,
Horrible..dont kill yourself as a solution though.
So glad to hear a doctor talk about this issue of ignoring and not believing their patients. Its so frustrating! I myself have had high blood pressure for as long as I can remember and I've never had a doctor tell me that. My sister works at the hospital and she saw it in my medical records. Same with my mom. My sister found things in her medical record that nobody ever told her. They also said that she was being non-compliant during her diabetes diagnosis situation which is simply not true. She was in excruciating pain and thought she was dying. She, we just wanted answers. We were all 100% compliant.
I'm so tired of the medical gaslighting that women face. I hope this highlights the problem. I had to deal with not being believed by my doctors and I lost organs due to doctors not being thorough and dismissing my complaints as somatic.
I was diagnosed with somatization. In other words, it's all in your head. SOB. He was head of medical at UC Irvine.
Thank you doctor. Briefly, I'm currently involved with an at home Ketamine therapy protocol. I was on Methadone for 7 years with the V.A. for chronic LBP and knee pain. After a 9 month detox period, I finally got of the medication. However, within 6 weeks after taking my last Methadone I gained 18 pounds. Consequently, I fell into a deep depression that lasted for over 2 years. During that period I was put on a combination of anti-anxiety medications. Nothing was bringing me out of the depression that I felt. Ketamine has been the most profound, effective and rapid acting medication I've ever experienced. I'm doing great now! I'm so thankful that I found my way to try Ketamine.
What state do u live in ?? I have a morphine pain pump now after my third back surgery. My last was a infusion at L-4/L-5 . And it helped my back pain but I ended up with neuropathy in my legs and I have pain in them still but not sure what to do about it.
Check out Better U, an in-home Ketamine treatment program. They are really great folks to work with. Do you ever notice how the cost of a Ketamine infusion is rarely discussed? It's a little pricy. At home treatment is about a 10th of what an in clinic treatment program would cost.@@amandacrawford4748
The truth is always a "nice ad"...@@scumfck2062
Maybe it was me, but specifically esketamine made me seize on the comedown and feel more splintered during the "trip"
I've only had experience with oral Ketamine. But I have to admit, after a session, I do get a bit of a hangover that last for a few hours. Nothing serious however...@@SarafinaSummers
I have a chronic illness and in the hospital a lot. Every doctor that comes in doing rounds give completely different opinions. My dad and I were talking about that in front of one of the nurses and he shook his head and said that's how it always is. I've always worked as a medical assistant for about 30 years. I've seen the best and the horrifying worst of physicians. You really do have to look out for yourself and if your gut is telling you something is wrong don't ignore it.
I have been gaslit for most of my life and at 50 diagnosed with auto immune diseases.
I also have asthma.
After Covid I was gaslit for 12 months at emergency and told it’s anxiety.
Finally found out I had clots in my lungs and mast cell activation syndrome.
I have lost all faith of the medical system in Australia.
Thankfully I found a great Dr that could see I was at crises & has been helping me.
I wish I could get money for every time I was told that it was all in my head and it wasn't. My latest surgeon said "You're a complicated case." How many times I've heard that one, too.
I feel like being labeled as complicated has a high association with having symptoms blown off, as well. That is so sad, because it should be the opposite!
The documentary truly broke my heart. Of all the documentaries I've watched over the last few decades, I watched with shock and disbelief. Nothing will bring her amazing mom back but would possibly set a precedent to avoid something like this from happening in the future.
I recently watched what happened to Maya. I almost couldn’t get through the entire thing. I’ve got lots of medical, PTSD, myself that was a really hard thing to watch. Devastating.
The people who have doctor shopped for pills.. and abused pain meds have hurt the actual people who suffer from chronic pain. I’ve known people who have had compound fractures who couldn’t even get pain medication at the Emergency room. I had severe Frostbite and went to the ER and they told me to take ibuprofen and aspirin… it’s a nightmare!!
This is not true the medical field became privatized so now it is about profit and not about patient. This is why it's almost impossible to see an actual doctor and you see a low-level care providers. They don't know how to interpret results from test they are ordering little to no oversight by the supervising physician... I forget it if you're on Medicaid or Medicare because if you complain about your care the insurance company hides it so they can pretend that they are performing better than what they actually are. You can't really complain to the hospital or to the clinic because most of these are providers are through a contracting service..
Have you considered how little that actually happens vs how much nurses and doctors assume that’s what’s happening?
You have to go to a pain management doctor!!
I’ve had two incidents of spiral breaks in multiple toes each time….1 year apart.
The pain from those broken toes was incredibly, more intense than a knee surgery. I didn’t take any strong medicine after the first few days because I don’t like taking strong medicine…I felt that pain. I took naproxen sodium, iced and elevated, but I can attest to the pain from a broken bone.
YES, It's Insane!! I had to Fight for pain management In the Hospital for an aortic replacement surgery. Did not receive Any pain management & was told I didn't need Any Follow up after surgery. Of a New Aorta. Doctors can't even tell who needs pain management & who doesn't. I was Told at a hospital that Pain Management Is Clinically Unnecessary! Sooooooo.....time to find the right shoe to bite on
Thank you so much for this channel! This education is needed.
I've been accused of drug seeking because I said my current regime of adderall wasn't working. I specifically asked if maybe there was more to my diagnosis. In the end I had to do intensive research on my own to figure out that part of my symptoms were ASD.
Doctors need to listen actively, not expectantly.
My daughter and I could write volumes of the gaslighting from medical professionals as well as outright abuse by medical professionals (I was having cord strokes after an ACDF complicated by EDS- I woke up with my nipples bruised! The ICU nurse said the team said that I had conversion disorder and that she knew how to force me awake!!!)!!! Denied anesthesia even though dxd with visceral hyperalgesia. I was accused of Munchausen by Proxy as well! Being treated like a criminal for self harm after being denied inpatient psych care due to medical complexity. The list goes on...
I suffer from EDS , ENDO , PCOS , CRPS AND MANY MORE RARE THINGS PLUS IVEBEEN ADOPTED UNDER X so whenever I went to see drs they always ask about my family history but I can’t show them so some dared to say I don’t have anything
Fortunately I found a good doctor in a different country tho who Behaves like a real doctor should
I am so sorry! I have had some cruel nurses and doctors myself.
I called the hospital one day, when I figure out the “allergy” I would get after a cluster of headache with the brain tumor I had could be CSF leak. I was like a month away from my programmed surgery, but I wanted to test the leak to have in record it was happening confirmed because I didn’t know how the surgery would go and if I needed that on record eventually. My treating hospital was 2 hrs away, so I called my local hospital to ask if they test the leak, in my case was nose leak. The person that answered the phone laughed at my question, seems like she had never heard we can leak CSF through the nose, but she found it funny and hung up the phone. I hate the ER so much.
Thank you for touching on this. As of yesterday Maya won her case, over $251 million dollars ….I have been gaslit with medical professionals all my life. Up until a few years ago when I found the right drs, through 76 operations, and 30 of sobriety I was made to think I was insane! drs actually telling me that torn joints where in my mind. Ive learned to advocate for myself and yes I was right being diagnosed with 22 separate disabilities ! Including a CSF leak, poly-arthritis in all my joints, debilitating back pain with turns out I was born with my spine fused with my hips….I fired many drs along the way and was tabled faking with HS was the diagnosis along with 10 years of diabetes the hospital hid from me. Not all drs are a good fit. If yo feel you are not being heard, its okay to ask questions, do research and look for better drs that listen!
You’re a great Dr. I appreciate your opinions. My son and I have been gaslit and I took him to India as he was very sick with what was diagnosed as Chronic Lyme and co infections like I had also. 14 to 19 years old no school, no support by family. Luckily he got better (remission) and is working right now.
He is much better… I can relate to Beata. 😢
I'm so sorry to hear that about your son, but I am also so happy to hear that he was eventually diagnosed correctly 😎 I hope that you can advocate for so many others who have been in that position
This case breaks my heart. I have suffered with chronic pain for most of my life. The amount of times I was told it was all in my head was ridiculous. I was told by gastroenterologists that my GI pain wasn’t in their realm only later to be told it was moderate gastroparesis as proven by a gastric empty study. I was told my hypermobile joints weren’t causing any issues. I was told my joint pain couldn’t be real as there was no cause. All blood tests were normal. Joint pain, hypermobility, easy bruising, random stretch marks, gastroparesis, POTS…. Anyone figure it out yet? When I was 30 years old I finally brought my suspicions up to my current primary. She thankfully believes me. Yep, it is in fact Ehlers Danlos Syndrome. Why they suspected I was a drug seeker I’ll never know. I refuse meds 9/10 times. I had TMD so badly I could move my jaw 17mm and refused meds to help with unlocking. I did it through physical therapy only. I’ve given birth to all 4 of my kids without pain meds. I don’t do meds. I’m almost afraid of them thanks to being told I was faking it since 10 years old.
I have CRPS from a leg injury. I choose amputation. Unfortunately, I now have CRPS now in my stump. I wish I could try Ketamine. I live in the UP of Michigan and there are no doctors who do it up here and mu Insurance will not cover it. I have been told by family that it is all in my head. They just think that I am a drug addict. I was once told that CRPS was called the suicide disease. I truly believe that. There are many days where the thought is there. Luckily my husband and doctor are amazing, So at least I have their support.
I might suggest you bring up "Mirror Therapy" and consider (just for a temporary argument) that if CRPS is a physical neurological disorder, then the amputation did (probably) what it's going to do... AND you are now "stuck with" a slightly different situation, like "phantom limb" (sometimes referred to as "phantom pain" by amputees, and you can pop over to "Footless Jo", a Channel on YT, for more about the experience from her perspective...)
Mirror Therapy helps by "hacking" your brain psychologically... and while it takes time and patience like so many psychological processes, once you can get a good place to start and refine the practice to best suit YOU (everyone is an individual, after all)... Coming from a background with CRPS, it's just a bit more of a B*TCH than it might be for the next person... so probably a bit longer and more "homework"... especially helpful bonus if your husband steps up to help out with it.
I only bring it up because it's a pretty recent method development for sufferers of Phantom Limb, but it seems (at least anecdotally) to be more helpful than harmful... AND in case you trust me as a rando' faceless mook (other than the green dude with a finger jammed in his nose in the pfp, give or take) here's a link to maybe save you the 30 seconds for scroogling up "Phantom Limb and mirror therapy"... haha
irp.nih.gov/blog/post/2019/07/mirror-therapy-alters-brain-response-in-phantom-limb-patients
I don't know a lot about UP Michigan from the last... prob'ly 20 years or so... SO maybe you've already heard of it, or even tried it... BUT maybe not, and it can't hurt to give you some thoughtful resource to maybe share with the Doc' and who knows what y'all might cook up... Hopeful for the best... ;o)
I have tried it, Thank you. That plus many others @@gnarthdarkanen7464
I watched a Netflix Documentary. The physician treating Maya ,that diagnosed her and prescribed the high does ketamine attempted to advise the doctors in the hospital and they blew him off.They completely disregarded his input !
As an RN....and human being,I am horrified by the treatment of this family.
Easy on the eyes and with a big brain and heart. Whatta' guy! ❤
Thank you for taking the time from your busy schedule to have this dialogue. Most people could never understand the hours a doctor works. I tried to get my husband, a physician also, to do just this type of channel a few years ago. But time is a precious commodity, as I know you know.
You are such a good doctor that you believe in patients advocating for themselves and give credence to their gut instincts. We need more doctors like you. Thank you for bringing light to this and for helping people with this in mind.❤
How can you even keep your job with all that you reveal? I'm glad you are able to describe what you know of your profession. I hope Stanford protects you. GB.
He is a good Dr. Highly Intelligent and Analytical, but his compassion is his most strongest Attribute. He chooses his Words wisely!
Thank you for the supportive comment. Fortunately, though things have reached a point where being compassionate and caring is/feels counterculture, it is still safe to advocate for patients 🙏
I hope the Jury watches this after the trial. It’s very informative and the information lines up with what we’re hearing at trial.
My medical provider, Kaiser California insisted that my chest pains were being cause by anxiety. After a heart attack I got a stent. Voila no more chest pains. Imagine that. They could have done some testing but took the easy way out and it nearly killed me.
I have been watching the trial. so tragic thank you for explaining all of this information is very helpful. When it comes down to it, you should always listen to your patient. It seems like there was a big conspiracy started and it is snowballed into a abusive situation. Maya, her father and brother will never be the same life was changed forever, trusting medical personnel would be Hard to live with every day
I've been through medical gaslighting. I was treated as an attention seeker and even had anything I found to help myself taken away from me. This lasted from when I was first taken to the doctor with severe pain and a consistent limp at the age of 3, until I was finally diagnosed with Ehlers Danlos in my 30's.
My connection with my own body has been shattered to the extent that I find it pretty much impossible to effectively manage my symptoms and I'm still, in my 40's, untangling potentially serious symptoms that I maybe should actually get checked out (as there are a lot of common co-morbidities with Ehlers Danlos), because I learned to assume everything was just not worth mentioning. I always fear a bad reaction to my symptoms and fear negative consequences every time I have to seek medical attention. I also fear that any medical or social care professional will look back in my medical notes and see that there's a lot of things about me supposedly faking things as a child and teenager, before my Ehlers Danlos diagnosis proved I wasn't faking, and make assumptions that will prevent me getting the care I need
I have that too and my records are filled with rubbish that makes doctors automatically ignore anything I say so I just don’t bother and always keep it to myself for ages because I just can’t handle the abuse and I know deep down that they aren’t going to help me anyway after years of being told to get out and that nothing was wrong with me.
I am actually having Ketamine therapy atm (yes, literally, I am in hospital with the canular in) as the trial for Maya Kolwalski is happening. I have suffered chronic back pain since having several surgeries and fusions for both lumbar and cervical, for a chorda equina injury. It has now been twenty years. I have tried many different types of pain relief, and opioids have proofed to be the best solution. (total immobilisation and heat packs provide some relief) I did not do well with quartizone injections to the spinal chord, or exercise programs that did not take my injury into account. I am hoping that this ketamine treatment therapy will be a positive solution for me.
I hope so, too! If it works, you could spread the word so it isn't so stigmatized or criticized.
Did you develop Arachnoiditis?
I'm so glad you defined what they did. It's absolutely gaslighting! And so much of it was so unethical and cruel. Our medical system needs an overhaul if this is acceptable behavior by doctors and nurses. It is criminal!
Thank you so much for doing these videos! I have to confess I could only get through half of it right now, because it hit too close to home. Even though I spent 20 or more years in the medical field, I never realized until just now that I too am a victim of gaslighting.
I've been on pain management for many years with a dx of chronic intractable pain (fibromyalgia, 5 herniated discs and a paragraph of other things). What I didn't realize until a year ago and 3 neurologists, is that I also have Myasthenia Gravis. I have had horizontal diplopia (double vision) for at least 7 years, so I have not been able to drive, watch tv, and I have no depth perception. I have been hospitalized twice this year, the last time for 5 sessions of plasmaphoresis 4 months ago. Now, I have all of the exact same symptoms again, and my neurologist says it is a pseudoexacerbation caused by stress and won't help me. I told him flareups are commonly caused by stress, so why would he think stress causing the same symptoms shouldn't be treated?
We had to leave his office before my husband lost his temper, but I'm beginning to give up hope that things will ever be better. I'm not suicidal or anything, but when you see two of everything, can hardly walk without your legs giving out, need a nap after 15 minutes of activity, and wake up choking on your own saliva, it's hard to be positive. Your video has made me see what is going on. I dealt with this gaslighting in my earlier life when I had chronic migranies and vomiting, and they found nothing wrong with my stomach. They told me it was in my head. Now I know it is spinal stenosis, coupled with 2 herniated cervical disks and vertebrae and a tumor on top of that causing achalasia.
Thanks again for the video. When I am calmer I will watch the rest of it. And thank you for actually caring for people.
I feel so bad for Maya and what she went through. For months after I had a knee replacement I had uncontrollable pain, yet I was told I shouldn’t have that much pain … no one knows how much pain another person has or can manage … I hope you win Maya, you have been through too much
They won over $200 million! Verdict reading is available on YT now.
I had a surgery that didn't go well and CRPS set in. It really is excruciating. For the first year I kept the arm covered as even breathing on it made me scream from pain. The arm became weak from lake of use protecting it. Then adhessions, scare tissue and arthritis took over. I was told the shoulder needed replaced but because of other medical isues I am not a candidate for surgery. I am also allergic to most pain killers. This now a lifestyle. feel for this person and really do understand the pain.
I'm so sorry you had that experience, but I greatly admire your vulnerability in sharing that. I hope you've found a trusted healer to integrate your whole story to give you the care you deserve 🙏
I’ve been following the trial and also have chronic pain so I 100% appreciate you doing a video like this!!!
Hospitals and social workers have too much power and should not have the power to remove a child from a parent in this way. My god, her mother just wanted the best for her child. Advocating for her daughter shouldn’t have caused anyone to think they are above the parents. This needs to stop.
My daughter had conversion disorder. She very sadly took her own life on 10/17/23. I had been doing my best to get her help for 10 years. Sadly it wasn’t enough. She had been 18 for only 7 days.
I’m so sad to hear this. What a struggle she must have experienced. No doubt she knew you loved her & were trying to get her the help she needed. I’m so sorry for your loss.
Good looking out doc - thanks for standing up for your (and other) patients!
I'm thinking of a certain patient of my clinic, hearing this story. It's so sad, but enlightening as well for conceptualizing the situation of chronic pain and medical ptsd patients
I have Not missed one day of this trial. Every family should be watching this - so important! My family have dealt with something very similar. Thank you for speaking up on this!! ❤❤ I pray Maya & her family gets every damn penny!
Thank you for being so candid!
I just started following this and HAD many questions. But you have answered them ALL. Telling that Beatra was a nurse EXPLAINED SO MUCH. You are very good at explaining things/!
I have the same diseae as Maya. Complex Regional Pain Syndrome which developed after breaking my foot, and I have Ketamine infusions there at Stanford Hospital here in California. I am admitted on Monday for 5 days of infusions. This case is heartbreaking. I hope that Maya wins her case.
I love your advice on how to confront a doctor you don't trust - I'm going to use your framing for a current healthcare sitch. These videos are so helpful!
Amazing info! Informative, kind, and such a wonderful mind willing to share with the world. Thank you! RA and nerve pain here, which when you cannot see a patients pain ie; broken arm, abscess etc a lot Not All Dr’s tend to question people which leads to a lot of us left suffering. That is not right! It’s horrible. It’s frightening. I hope the Kowolski’s trial brings a big “A~ha” moment to Dr’s that deal in pain specifically. We can only pray and hope. Thanks again Dr!
Soooo happy Maya and her family won the case!
Thanks for adding this info! They accused Beata (mom) of factitious disorder by proxy/Munchausen by proxy. They thought the mom was making her sicker which was not true 😢 thank you for talking about medical gas lighting! I see this a lot in the experiences of my chronic pain clients.
You're so good at explaining everything - super thanks!
Thank you so much for such an informative vid on Medical gaslighting and mentioning the issues with stoping opiate therapy for on-going moderate to severe pain. I was on opiate therapy for many years without any issues and when I had to get a new doctor, i was told I had to get off of them in a couple weeks, i found out she didn't look into my deep past medical history. So very difficult. Since then my life has changed and I walk bent over and don't engage in my life the way I used to. Keep up the great work and advocacy.
You must be the kindest most understanding Dr there ever was or ever will be. I am thankful I finally found a Dr who I don't think exactly thought there was anything wrong with me, but was willing to look. When he did figure it out, he said he was very surprised by how extensive the issue was. I am very grateful that someone was willing to look because of a previous experience. That really helps me appreciate the good Drs.
This happens in every area where someone gets a big head over being "the expert".
I have had Reflex Sympathetic Dystrophy Syndrome, which is now called Complex Regional Pain Syndrome, since the 1980s. It is an absolute misery! What they did to this poor little girl and her family is unconscionable! I am so sorry for the loss of Beata. I hope that Maya and her family get everything they are asking for! She deserved good treatment at that hospital, not the abuse she suffered!
I relate to this topic so much! This is a great video. Thank you for putting this out there!!
Thank you for this conversation! I feel so bad for those that have been gaslighted over the years. Your compassion and explanation show your true heart and soul.
Having had a spontaneous spinal leak caused by two venous fistulas started a 13-month journey of medical terror. Gaslighting is quite common for this condition also. All tests including MRIs were normal. I can’t even describe what suffered go through.
I go in to the doctor as educated about everything going on with me and potential treatments as anyone can. And that usually prevents doctors from even trying to gaslight me. However, should one do it, I'm not above calling them out on it directly. I will say, "I won't tolerate being gaslit here."
Be your own advocate!!!!
I love your very pleasant, kind delivery. You are very pleasant to listen to and to learn from.
Thanks for addressing this. It is a very unfortunate case. I pray for the family to find closure and to win their case
Health staff medical & physical did this to me. My narcissistic spouse embraced it, we got a divorce, & the kids got left messed up.
You are such a kind and compassionate doctor...I cannot thank you enough for spreading awareness of this issue. You really help patients worldwide. Xxx
Thank you for this. I have chronic intractable pain so I was immediately drawn to this case when I started watching coverage on Law&Crime and other "LawTube" channels. I was horrified, saddened etc
AND THANK YOU! Yes,even a few months without pain or with such small amounts it may get below my baseline is an amazing thing and helps my mental state so much,too.
I only just stumbled upon your channel, and wow! Are there some good topics! I can’t wait until my work break, so I can get started!