I too have HS but it’s not to this severity. It’s my underarms, and groin area(sometimes). God bless her on this journey. You have an army behind you lady bug. We love you.
@@enduranceasante2643 same here just noticed them under my breast. I hate this condition it feels like needles under my arms and in my groin. Only people who have it can relate to the pain and suffering.😔
My dad has this condition and I read that it can be genetic and I got a red spot on my armpit that hurts (I’m 14), I’m hopIn it’s just a pimple and not this
Steve Langlais we live in such a superficial society. i started loseing the enamel off my teeth from medications i was on. last Summer i had to go thru major extractions because the pain was so bad. i hav no bottom teeth and only 5top left and now they hav got to b removed. too. i cant afford dentures and i always had beautiful teeth. people can be so cruel ,mean, and judgemental about outside appearances. i very seldom go out anymore unless its for dr appts or grocery shopping because im so embarrassed about my teeth. i hav no company at my house anymore and stopped dating. became a recluse and severely depressed. people say its whats on the inside that matters,but in reality most are still judgemental and critical. society stinks 99%of the time. mayb one day before i die ,im 58now, i will hav a decent smile again and b able to eat a salad or somethin besides soft foods.
People who bully others are sometimes just sociopathic little pieces of shit. Not everyone is a good person. Some people are born assholes. To think that everyone in this world is good deep down is just being ignorant. There's no excuse for bullying.
they need to talk about hidradenitis suppurativa more... they need to come up with a cure! I'm still at stage 1 early stage 2 and it's so painful i can't imagine having to have visible tracs as a teen
hi I'm really sorry to hear that i think I'm at the early stages of it do you know how i can stop it from moving from stage 1 to 2 or keep it at where it is
Tara DV. I agree. it is sad doctors in US are not taught about the healing aspect of food. The 2 books on nutrition by Anthony Williams are mind blowing.
Tara DV Also non-soap body wash. I noticed that for me flare up stopped when I lived with a girlfriend. She used dove so that's what I used and I noticed significant improvement. I'm not sure what triggers mine. It just comes and goes. I see slight improvement when I try to cut out carbs, it mostly it just comes and goes. But for as long as I lived with her I didn't get an abscess. I attributed it to the dove soap.
It worked for me. Completing the Auto Immune Protocol diet allowed healing, and taught me which foods were harmful to my body. (I prepared for the diet for a whole month, tho!) Two years later, I have not had a recurrence.
My brother has this and it breaks my heart into pieces, he's such a nice guy and doesn't deserve it, im the one that deserves it .plz keep him in your prayers...Gods got him
needs multiple treatments of pinhole co2 laser on each abscess with pulsed dye laser targeted with the green dye on each abscess and then when flattened 6 weeks later radio frequency microneedling all over the face then ablative co2 fractional laser all over the face 6 weeks after that.
I have HS as well I sympathize with her. The worst part is there are medicine to help treat it but alot of insurance companies wont pay I wish someone would give me my life back. So I can be a mom again to my little girl bc the worst part of all this Is not the excruciating pain its knowing my daughter is missing out on a mom that can go biking with her or swimming or that I miss out on special moments bc its just to much pain. God knows I love her to the moon and back a 100 times over. It also has come between my husband and I. Our lives are falling apart but Im not lucking enough to get a team of doctors to treat me. To me its like a flesh eating desease and alone its unstoppable.
Reading the comments, this seems to be a really common condition. I’ve never heard of this before and having just watched a few videos on it now, oh guys, my heart is literally pained with compassion for you. Bless you all and may they very soon find a way to at least control this terrible condition.
This poor girl. I can't imagine how hard this must be for her. She's obviously very strong and brave. I hope she can find a treatment plan that gives her hope, and heals her. Inside and out. 💛
That poor girl. she has the cysts visible to everyone else and has to deal with the pain. I guess I should consider myself lucky that i get it where people cannot see 😔
My niece just had 2 surgeries for this under her arms. And she still has a few more to go. It's heartbreaking to watch ppl u love go thru this. Prayers for this young lady.
I feel so bad for this girl, she is incredibly beautiful and very brave to do this on TV - it's obviously a very painful affliction, so I do hope she gets some beneficial treatment. Xxx
I have no idea what this poor girl is going through but she is so strong to share her story with us so that maybe others out there can get the care they need. Would love to see a follow up on this perfect soul!
This place makes me sick. People have to go on a tv show to get help with their health because it's so damn expensive. I know the feeling. I have health insurance but I can't afford to use it. These insurance companies are thieves. Nothing not than a bait and switch. They tell you the copay to go to this Dr or that Dr is $$. When you get the bill it's $$$. I can't stand them. Cut the military budget and use that for healthcare. I mean come on who/what are we fighting for. Welcome to America.
i can guarantee they need to surgically remove the cysts from her ovaries, its clear her bloodstream is jacked from all the hormones being pumped into her from that. aswell as the the doctors should of told her to cut sugar from her diet completely... and possibly take estrogen, or metformin for insulin regulation, that would help so much with the super acne. but no, what do they do? chop off her armpit glands to make a pretty penny from the insurance company. I hate the medical profession. they will milk every penny out of you while you suffer.
Michael Wilson true that. I broke out near my groin nothing compared to this girl, but it was painful bump or two and my endocrinologist; sweet woman told me to cut out sugars because that could be causing me that along with dairy in take. Now I'm on my route of becoming completely plant based with maybe chicken the most I'll eat. I truly believe a lot things have to do with diets and some people's sensitivity to certain things like sugar and diary.
I cry whenever I see someone else dealing with this. I have stage 2 HS (stage 3 under my arms), breasts, groin, and recently butt. I’ve been dealing with this since the age of 15 (6 years) and I haven’t worn a sleeveless shirt since due to embarrassment. It really took a toll on my teen years because I was worried about what sort of bathing suits to wear and being questioned on why I walk or hold my arms a certain way. I also get holes like she does. And the pain is just so excruciating. Imagine laying in bed for hours trying not to move cause the slightest movement causes extreme pain. Then finally dozing off into a stiff sleep only to wake up in shock because you accidentally moved in your sleep. I’ve had to cry myself to sleep many times and felt so hopeless because it’s something I’ll be dealing with for the rest of my life. When not even doctors know much about it it’s frustrating. I feel so much for this young girl it aches and I’m only going through half of what she’s experiencing. Anyone else dealing with it just keep moving forward. And I know it hard, SO HARD, but we’ll find our ways through it. If anyone has any tips that could help me or others out please respond. Sending love and support.
I can only sudjest reading and learning more about being in the present moment. Something that helped me is reading the unthetered soul by Michael Singer. It makes life with HS more bearable and peaceful.
When we complain we need to remember others have a harder journey then we do often times. Try to be positive and grateful. I hope the best for this lovely lady.
It takes getting this severe for a doctor to actually take this seriously. So sad. If she would have tried this in the beginning I'm sure they will just be like, "it's an infection you need to have better hygiene and this will go away. Here are some antibiotics." That's what always happen to me. Terrible.
And Mary, technically it would get worse. Because there is no cure for HS. It's an Autoimmune disease, people like me will have HS for the rest of our lives until a actual cure is found. There are ongoing treatments available for HS suffers. But it doesn't make them go away permanently, it just helps a little bit.
Same. It got to the point where I asked my doctors to stop prescribing antibiotics because they didn’t help the HS at all but gave me constant yeast infections and intensional issues. My HS is absolutely connected to my hormones, flaring up right before I get my period, and the only medication that might’ve helped a little was spironolactone - which took over 10 years to be suggested/prescribed to me. Other than that, best treatments I have tried so far are steroid injections (gets rid of it 99% permanently immediately) which all my doctors are reluctant to do, and then I also had major surgery to remove all my lesions, which eliminated my flare ups for 3 years before some came back slowly. Surgery and injections are so effective, I just wish that doctors were more willing to prescribe those instead of shrugging and prescribing more and more antibiotics.
I have the same thing but just around my armpit and groin,any medication prescribed to be doesn't help calm down the cysts nor having a surgery done. I understand what she feels and goes through on a daily basis and it's painful. I wish her the best of luck
I have a similar thing happen regulary under my arms where I get like big boils in the folicles. The worse I had to take antibiotics but now I just regulary apply tea tree oil its really good natural antiseptic. I use australian body care products maybe that would help.
she mentioned a pilonidal sinus, that's from a sweat gland at the end of the spine. I had that get infected (like her's is) and let me tell you, I've had 10 operations in my life and a heart attack, that cyst on the tailbone was the most painful thing I've EVER had, it's excruciating. This girl has this kind of pain all over her body. I pray this doctor gives her all the help she deserves. It's been two years, I'd love to see a follow up on her.
So sad. I was diagnosed with PCOD AND DECLSRED INFERTILE 😭I WENT TO EVERY doctor to try Nd get pregnsnt.i pray for everyone who has this condition. Its the worst!! I can't describe the pain and embarrassment that comes with it. The worst places on my are groin areas. I get the fully filled cysts, they rupture and smell so bad.i will soak in a warm bath hoping to at least soften them. Right now I have three. Hard to take care of. I have diabetes, MS, Lupus and fibromyalgia. Two out of the 4 lumps are very infected. They won't heal,.its because of the diabetes. Yes, I've been to wound care. It's humiliating. Its like opening your legs for Playboy magazine. Ive gone everything they've ever asked. They wanted to starr Humia but I was already on the biologic Orencia. For Auto immune condition. I'm 50 but feel 80😭😭. Not giving up yet! Ive got 3 children who need m. I prayfor you and others fighting this! I wish all well and all the bedt!!🙏🙏🙏❤❤💖💖💜💜💙💙
I was supposed to get the sac off of my spine. But I backed out of it because I got scared of the pain!! See ive had 5 spinal taps in one week in the hospital and talk about pain. It was beyond pain it was at a big named hospital in Philadelphia, PA. Happy part, I didn't have meningitis!!🙂🙂🙂❤❤❤I had a small stroke while on vacation in Florida. It was so hot and crowded. Never again.
God bless you for telling your story. Im sorry that you suffered. One doctor wanted to remove it in his office! Ihim OH heck no!!!!!(really the h🤬ll no!!!!
when I see people on this show in makes me so grateful for what I have not for what I don't have...... things that we take for granted everyday or hands are arms are eyes are skin could make such a difference in our lives if something like that would missing.... instead we sit here and we bitch about money we bitch about how we're not happy we bitch about how we can't better ourselves.... just be thankful you have family be thankful you are healthy be thankful for the life you live
I agree that its important to remind yourself to be thankful. I started actively reminding myself to do so every so often, and it makes a difference. However, its just natural to have your own set of issues as an individual. Financial issues, body image issues, health issues, school issues, etc....they're all still issues that are very real and evoke emotional response. It's important to acknowledge our own issues and to not overlook what bothers us just because we are aware of other people with more serious issues around us.
I also feel like if you start to see people who have "more serious" issues as a comparative case for your own life, it creates a natural response where instead of empathizing with the individual, which requires the attempt to put yourself in their shoes, you're more aware of not being in their shoes and thankful for it. Not at all saying you're a bad person, just my thoughts.
Thank you for sharing your story! My daughter has some of these issues and it has been really hard for her to get diagnosed and treated but because of this video we can share this with her doc and hopefully get some help. Good luck to you, be well
Buffet Slayer , I have it too but I think mine is in stage 1 . And I may or may not have self diagnosed myself using google . I only get flair ups on my inner thigh , my bottom and i just healed from a small one under my right boob .
Buffet Slayer Ugh!!!! I get that "only!!!" I am in the same boat!!! the scale is only 1-3! what such fuckery is that? I tend to have no less than 5 cysts under each arm at a time EVERY DAY!!! All the Dr's and surgeons keep telling me is that surgery won't be necessary because I am "ONLY" stage 2. Power on, fight your docs!
I'm pretty sure I'll be diagnosed with this. My left armpit has seven right now and the right has three and one more that is starting to form. I'm beginning to finally get scarring after a few years of it. Thankfully it's only been in my armpits and nowhere else yet.
For Mild Symptoms 1- Getting hormones in check 2- Eating an extremely healthy diet including antioxidants and greens 3- Taking Multi vitamin, vitamin D, zinc, probiotics, fish oil and Collagen powder 4- Hibiclens body wash, works wonders.
My heart goes out to this young woman. You can see that she is clearly in pain... both physically and emotionally. She is a beautiful young woman. I pray she finds some solace.
I suffer with HS and stumbled across something that might help. I purchased some lovely Pineapples a week back and ate a good few slices . I noticed that it gave me relief from my recent flare up. After that i checked up on the benefits of pineapples and i see that it is a very good anti inflammatory. It contains a substance called Bromelain which is very good in breaking down proteins and serves as a good anti inflammatory. Try it if it helped me it might be beneficial for others also.
Brianna 21 I agree.. I'm having the worst ezcema flare up ever... but I know it's coming from stress... but watching this made me just feel like it could be worst.. I'm so sorry she's going thru this tho& hope she gets the help she needs
You must not be seeing all those Freddy Kruger like scars on her then.. it's a sin to lie. Liars burn in hell. So I guess I'll be laughing at you from heaven
What terrible symptoms this horrid condition have for the unfortunate patients.This lovely lady is so brave and can smile through adversity.I wish her well and others for a speedy recovery and cure.
Just got diagnosed with hs. Ha stage 3 under my arm and breast. With the pain I’m in I literally can’t imagine what she’s going through bless her heart
A ketogenic diet might be very helpful for her? Because not only is it an anti-inflammatory diet but it also is excellent for treating Polycystic Ovarian Syndrome! Also lazer hair removal is known to dramatically reduce if not stop HS flare ups completely.
blk bbw yes ketogenic diet is best for women with PCOS as a low carb diet helps due to the fact that the hormones have trouble absorbing the carbs that it stores it into fat which is what also causes the weight gain.
When they stick the needle into the infected area is so freaken painful😖... PCOS comes with so many underlying issues👎🏾.. I'm so sorry you have to suffer with this rest assured that your not the only one.
I have an IUD now for my PCOS. If I didn't get the kyleena, the big cyst on my ovary would have flipped my ovary over. You're not alone with PCOS. I'm only 18.
I have PCOS as well, I have certain periods/years where my symptons are almost gone but this stresfull coronavirus years has worsened everything. Haven't had a period for about 4 months now
I have HS, and so does my daughter. Ours is usually in the groin area, buttocks and only have had it in underarms a couple times. Draining and pain has been the worst of it. No one knows we have it unless we tell them. My heart goes out to this beautiful young woman.
the fact you went on TV to share your story shows your bravery,integrity and beautiful spirit!!! There are very few people who would do what you're doing with your head held high. I truely believe God has amazing plans for you and your life, stay strong never let what mean people say because they know they could never do what you're doing with such grace, confidence and poise. God only chooses his best to be his messengers!!! My prayers will be with you on your journey.
I've had Hidradenitis Suppurativa since I was 12 and I'm 21 now. I just pray it doesn't spread to other areas of my body. So far I get flare ups on my armpits, inner thighs, and now I have a lump on one of my breasts and tracks are forming in my inner thighs. I can only imagine the pain she goes through :(
Bunniicup sorry to hear that I had this condition for years my armpits was the worse part and extremely painful till I did my surgery and removed the infected skin. Best thing I ever did. After my surgery it seemed the other ones kinda faded away. Every once in a while around my period I get one maybe two but I use this cream by derma e skinbiotics with oregano and tea tree I put it on and after two days it's gone. It stinks but it works I put it at night. U can get it on Amazon.
I have this in my armpits and sometimes groin but its extremely mild - just looks like some ingrown hairs or acne at its early stage. The sign that its more is when its very difficult for them to go away fully or cysts develop. Once it gets to the stage where the tracts form (what she has) it's nearly impossible to treat on your own. I honestly did not know it could form on the face until this, poor girl. I hope she's better now.
My god do I feel for this poor woman. What a terrible situation to have to suffer through. I hope she finds relief from those treating her and is able to enjoy life instead of suffering through it.
The problem that I have with this is the doctor saying she has to smile. She does not have to smile unless and until all of the therapies work AND the scars are treated so they are not so obvious, which is difficult. I have HS and so far while on Humira it has gotten exponentially worse, not better. I'm also on a combination of topical and oral medications. However, I'm allergic to a broad spectrum of antibiotics and some fillers, so I have to be very careful. Just because I am on these medications doesn't mean I'm fixed - because I'm not. Just because this young woman is going to be placed on a regimen doesn't mean she is going to be fixed. HS (and related diseases) are the least researched because they occur in three times as many women as they do in men.
She's so strong I hope she's doing great now. I never told anyone about my hs during middle school. I'm a senior now and finally decided to make an appointment for it. My fam still don't know, i just said I have a skin condition. Its only on my sternum no where else. Thats why i never mention it, well that and its incredibly embarrassing.
Hi. I woke up during surgery and I tried to get off the table. I woke up, tried to run but my arms were out to the sides tied on those (I don't know what the heck they are called) things, my foot was in a vice like thing, my doctor was seated working on my foot, I was so frightened and what made it worse was I couldn't get off the table. I started screaming and my doctor is telling me to stop moving my foot so I was cursing him out because I was in pain! (I never curse at doctors so this was a first😳). The anesthesiologist wasn't at my side, he was too busy talking to a nurse. Since then I have had more surgery and I make sure my anesthesiologist knows exactly what happened. Fortunately it has not happened since then. Honestly I am always a bit nervous before surgery. So, I totally understand what you went through.❤️
Happened to me too! It was a foot surgery I was supposed to be out and I came to fortunately I didn’t feel anything but I looked up at the anesthesiologist and said am I supposed to be awake and within three seconds I was put back out but it is a terrifying feeling that you could just wake up in the middle of something like that it’s pretty scary
Lisa Boliaris I have this disease and it's spread a lot. My insurance will pay for narcotic meds but is refusing to cover the meds that can calm down the disease and stop it's progression.
Lisa Boliaris it's really sad. My doctors have been fighting my insurance company for quite awhile now. I'm also very lucky to have doctors who limit my pain med rx. Every now and then I could use an additional pill but I've seen how easily people get addicted, so I just stick with my one dose a day. I just wish they would cover more biologic meds. There's only one fda approved medication for this disease and it's only helping around 30% of the people of the people I know who have tried it. I tried it for over a year with no positive response.
amy thompson Amy I was in the same boat for the longest while. After years and years of suffering I completely changed my diet and started taking a peppermint and valerian root supplement. I haven’t had a flare in over 2 months and when I finally do - it will be stress related. The absolute, number one, guaranteed to help: is to manage your stress! A person making life chaotic? Cut em out! Boss making your life hell? Transfer! Best of luck!
I have mild adult acne & it really does impact your mental health. I too have PCOS, yet not with symptoms this intense. I so badly wanna hug this girl ❤❤❤
@@luisishere987 His believers will speak of Jesus again and again because He is our foundation. So dont be too surprised if you see someone that follows Jesus speak of Him again. 😊 the love is real and the seals are opening so of course me saying I'll say a prayer for you will sound nonsensical to you but I can't help it ☺
Poor girl. To live with that ailment must be difficult beyond belief. I pray she finds a treatment that offers her relief and importantly the ability to enjoy normalised life. The strength she have can’t be ignored, well done stay strong keep believing. God bless 🙏👏👏❤️
Doctors are still trying to figure out if this is what I have. I’ve been to 4 and they all say something different. Finally found a dermatologist at UofM that specializes in HS but they’re so booked up I have to wait until August to get in. I’ve been having flares up for over a year now and I’m so tired of it.
No, this causes insecurities as those acnes have an unusual odor and pus are coming out of those scars when you don't expect it plus the fact that the acne is very painful it feels burning. There's nothing cool with it.
I really hope they can do a follow up episode and let us know how she's doing. I've never been actually diagnosed with HS but I highly suspect I have it. I've got a pilonidal sinus track and I get the boils and cysts under both arms and in the bikini areas. It's embarrassing and I feel awful most of the time because they become so painful and inflamed. I'm going to talk with my doctor about this and see what we can do for treatment as getting an incision and drainage each time is exhausting. I really feel for her as she's so young and kids can be so mean.
I have Hs as well primarily in I’m armpits and flare ups in my groin area. I am contemplating surgery primarily in my armpits to get them removed before it’s get even worse. It’s been worse with time and seems like it’s trying to spread. I hope I can get this resolved so I can start working out and swim and just live life. I’m 28 n is so stressful. Has anyone ever got surgery, if so did it work for you?
@thedoctors. Is there a follow up on tiffany? I too suffered terribly with what was originally dx'd as hidrenitis(sp) when I hit puberty. Insane weight gain, these giant purple boils. These left So many scars, but thankfully never hit my face that hard. But finally found a grest doctor, PCOS was the main culprit. With an antihistamine, spironolactone 800mg a day, metformin 1000 mg a day. And some other meds for years.. now If I make it thru menopause lol... I would love to hear that tiffany followed thru with her treatments and its made her young life a beautiful one!!
I have it in my groin area and it's so embarrassing. I'm 19 and I have had it since I was like 10. I am scared to go to the doctor but I really want help. I'm scared to even have a boyfriend because I'd feel self conscious. It's so horrible and makes me so sad.
Jasmine Rose i have it in my behind and yes make u very self conscious and hesitant when thinkin of starting relationship especially with me having some kind of rubber band like thing sewn through my bum to keep glands open ....terrible !
Oh hun....don't feel bad!! You are NOT alone in this!! N PLEASE...go see a Dr!!! They are there to HELP you...not judge you!! Do you realize all the truly STUPID crap people come to the Dr with or for?! Pffttt ...you have NOTHING to be worried about! N they WANT to help n make u better!! Trust me....they will be a great sounding board and may have ideas you aren't even aware of to help you!! I truly hope you finds the answers you want n need and get the help you so deserve!! Good luck n best wishes!!
I have HS and I'm a guy I have it on my buttocks but got surgery on them and also I have HS on my groin and armpits those 2 areas are the ones that bother me now but I'm getting treatment later some more surgery
I have been dealing with HS for 11 years since I was 18. I was at stage 3 when I got my surgeries. I was so scared when I developed symptoms but I didn’t tell anybody. It had gotten so severe that there were open sores on my stomach, the pain was immense, and the sores were so severely infected, my PCP said if I had waited longer it could have gotten a blood infection. In total I had 6 surgeries done and I still have to get my groin surgically repaired and have fatty tissue from my left inner thigh removed. I wouldn’t this disease on anyone.
I'm 33 I've had moderate/sometimes severe acne since I was 18. I let a breakout keep me from doing so much in my life. People have told me I'm very beautiful and I didn't believe them. I walk around feeling like a monster. This child has really opened my eyes. I don't find comfort from her suffering instead I'm embarrassed that I havent been stronger than a 13 year old child. Thank you for sharing
This is a horrible disease. I pray for her and her recovery and for her peace and self esteem people in this world are sometimes awefull. Godbless her for allowing her to be filmed and informing people. To educate ignorant people and to show people who have it to give them hope that they are not alone! Your the strongest bravest girl I've known!!!!
Polycystic Ovarian Syndrome? Her pituitary gland should’ve been checked. That’s the gland that distributes hormones. If there’s a spot or growth on it hormone distribution is effected resulting in conditions such as polycystic ovaries & abnormal menstrual cycle. I had mine treated by my naturopath (melbourne Australia) 20 yrs ago and couldn’t be happier.
My sister I feel your pain I have HS! I pray for your healing, the Humira works for me. Hopefully you can have some relief from the physical, emotional, social, and mental anguish.
I know how she feels i have the worst case of this not on my face but my butt ans grion both butt cheeks have been cut out and a lot of my grion i have to ware a bag and its so painful hurts me every day all day in some from i could not sit down for a few year a and not good now but i keep fighting i wish it on no one
I truly hope she gets this healed and finds out why her body is causing this. When I was struggling with acne no dermatologist ever truly found the cause and will only mask the problem and the treatment's would not even clear my skin by much. once I found a functional doctor/holistic doctor that healed my candida and got my gut in balance including my lymphatic system detoxing is when I found true clean skin. This poor girl should continue to see a dermatologist and any doctor that can help her find out why the her body is causing this but she should also go the extra mile and see a holistic one . Dr.morsen is a miracle worker and truly knows how to heal the body, she should get in contact with him but still continue to visit her dermatologist . Her body can be healed
I suffer from this. I get boils in between my thighs. I use EMUAID MAX and stopped eating dairy and reduced sugar. I take iron and Ecenechia. It helps.
I enjoy learning from these videos, never had I ever felt so lucky to have been blessed. My problems seem so tiny to the real world. Hopefully the treatment works well for her. Anyone with this disease is not ugly. There incredibly strong for going through something like this.
I too have HS but it’s not to this severity. It’s my underarms, and groin area(sometimes). God bless her on this journey. You have an army behind you lady bug. We love you.
My every day nightmare my armpits and groin area have become darker with boils and my breast too I wish for a treatment
@@enduranceasante2643 same here just noticed them under my breast. I hate this condition it feels like needles under my arms and in my groin. Only people who have it can relate to the pain and suffering.😔
My dad has this condition and I read that it can be genetic and I got a red spot on my armpit that hurts (I’m 14), I’m hopIn it’s just a pimple and not this
@@Its_FamilyGuy God bless hun. I now take Humira and it helps maybe it’ll help your dad too.
I've found that eliminating dairy and reducing my sugar intake has helped my HS
Who ever bullies someone for the way they look it’s because there not happy with the way they look, everyone is beautiful in there own way
Steve Langlais very true
She is a very pretty red head, and with time, patience and proper treatment her beauty will shine fully😊
Steve Langlais they’re* not there 😀
Steve Langlais we live in such a superficial society. i started loseing the enamel off my teeth from medications i was on. last Summer i had to go thru major extractions because the pain was so bad. i hav no bottom teeth and only 5top left and now they hav got to b removed. too. i cant afford dentures and i always had beautiful teeth. people can be so cruel ,mean, and judgemental about outside appearances. i very seldom go out anymore unless its for dr appts or grocery shopping because im so embarrassed about my teeth. i hav no company at my house anymore and stopped dating. became a recluse and severely depressed. people say its whats on the inside that matters,but in reality most are still judgemental and critical. society stinks 99%of the time. mayb one day before i die ,im 58now, i will hav a decent smile again and b able to eat a salad or somethin besides soft foods.
People who bully others are sometimes just sociopathic little pieces of shit. Not everyone is a good person. Some people are born assholes. To think that everyone in this world is good deep down is just being ignorant. There's no excuse for bullying.
they need to talk about hidradenitis suppurativa more... they need to come up with a cure! I'm still at stage 1 early stage 2 and it's so painful i can't imagine having to have visible tracs as a teen
hi I'm really sorry to hear that i think I'm at the early stages of it do you know how i can stop it from moving from stage 1 to 2 or keep it at where it is
Tara DV. I agree. it is sad doctors in US are not taught about the healing aspect of food. The 2 books on nutrition by Anthony Williams are mind blowing.
Tara DV Also non-soap body wash. I noticed that for me flare up stopped when I lived with a girlfriend. She used dove so that's what I used and I noticed significant improvement. I'm not sure what triggers mine. It just comes and goes. I see slight improvement when I try to cut out carbs, it mostly it just comes and goes. But for as long as I lived with her I didn't get an abscess. I attributed it to the dove soap.
I'm about to try a tea tree oil non-soap
It worked for me. Completing the Auto Immune Protocol diet allowed healing, and taught me which foods were harmful to my body. (I prepared for the diet for a whole month, tho!) Two years later, I have not had a recurrence.
Poor sweetie. I hope they can help her.
Rosie Red so do I but underneath this she very beautiful and so much courage
My brother has this and it breaks my heart into pieces, he's such a nice guy and doesn't deserve it, im the one that deserves it .plz keep him in your prayers...Gods got him
No one ever deserves a horrendous chronic illness.
No one deserves life isn’t fair I have this to I can’t even have sex because of it
needs multiple treatments of pinhole co2 laser on each abscess with pulsed dye laser targeted with the green dye on each abscess and then when flattened 6 weeks later radio frequency microneedling all over the face then ablative co2 fractional laser all over the face 6 weeks after that.
@@spanishjohn420this cures it?
I have HS as well I sympathize with her. The worst part is there are medicine to help treat it but alot of insurance companies wont pay I wish someone would give me my life back. So I can be a mom again to my little girl bc the worst part of all this Is not the excruciating pain its knowing my daughter is missing out on a mom that can go biking with her or swimming or that I miss out on special moments bc its just to much pain. God knows I love her to the moon and back a 100 times over. It also has come between my husband and I. Our lives are falling apart but Im not lucking enough to get a team of doctors to treat me. To me its like a flesh eating desease and alone its unstoppable.
I have it too. Have you tried changing your diet? I'm on Keto and it has helped alot.
I can help you. No pills and it will fully heal it. Let me know if you see this message and ill be happy to explain
Ill be happy to help you
💖💚💟💙💜
Are you still active in this account? I can tell you how to heal it and fully get rid of it.
Reading the comments, this seems to be a really common condition. I’ve never heard of this before and having just watched a few videos on it now, oh guys, my heart is literally pained with compassion for you. Bless you all and may they very soon find a way to at least control this terrible condition.
Hearing your compassion is very touching. ❤
from vaccines..stop letting them put this crap in our children!!
This poor girl. I can't imagine how hard this must be for her.
She's obviously very strong and brave.
I hope she can find a treatment plan that gives her hope, and heals her. Inside and out. 💛
Get well soon girl....
Maya M 😕Yeah..
I pray they find a cure it's an evil disease god bless her
It doesn't get better....
@@non-existentmist6710 6 g 666 6 go to high school here in gta high schools for go to the gym in gta get g70h6yggyg66
@@non-existentmist6710 is a Ggg9yuyigygfg9ygy9ut69yu high high risk Ggg9yuyigygfg9ygy9ut69yu golf 6gb g that Ggg9yuyigygfg9ygy9ut69yu yg6666y6gg6y6gy
That poor girl. she has the cysts visible to everyone else and has to deal with the pain. I guess I should consider myself lucky that i get it where people cannot see 😔
XxDetrimentalxX same
XxDetrimentalxX lucky you..😭😞☹️I wish my acne was not viable
i had the same thought..
same
XxDetrimentalxX such a terrible I have it bed bound an aneroxic 3 years due to no help
Poor girl, my best wishes to her, x
Alan Dunn lo mmm
Pervert
Ohio Interior Design nigga how?
@@asphyxia2243 what?
@@JeromePJr don't be a dumbass!
My niece just had 2 surgeries for this under her arms. And she still has a few more to go. It's heartbreaking to watch ppl u love go thru this. Prayers for this young lady.
Did the surgery resolve her issue?
I would love an update on this young lady. Praying she’s found relief.
I feel so bad for this girl, she is incredibly beautiful and very brave to do this on TV - it's obviously a very painful affliction, so I do hope she gets some beneficial treatment. Xxx
I have no idea what this poor girl is going through but she is so strong to share her story with us so that maybe others out there can get the care they need. Would love to see a follow up on this perfect soul!
This place makes me sick. People have to go on a tv show to get help with their health because it's so damn expensive. I know the feeling. I have health insurance but I can't afford to use it. These insurance companies are thieves. Nothing not than a bait and switch. They tell you the copay to go to this Dr or that Dr is $$. When you get the bill it's $$$. I can't stand them. Cut the military budget and use that for healthcare. I mean come on who/what are we fighting for. Welcome to America.
i can guarantee they need to surgically remove the cysts from her ovaries, its clear her bloodstream is jacked from all the hormones being pumped into her from that. aswell as the the doctors should of told her to cut sugar from her diet completely... and possibly take estrogen, or metformin for insulin regulation, that would help so much with the super acne. but no, what do they do? chop off her armpit glands to make a pretty penny from the insurance company. I hate the medical profession. they will milk every penny out of you while you suffer.
naturegirl2110 TELL THAT TO TRUMP! haha
Michael Wilson true that. I broke out near my groin nothing compared to this girl, but it was painful bump or two and my endocrinologist; sweet woman told me to cut out sugars because that could be causing me that along with dairy in take. Now I'm on my route of becoming completely plant based with maybe chicken the most I'll eat. I truly believe a lot things have to do with diets and some people's sensitivity to certain things like sugar and diary.
Michael Wilson Dr's are like drug dealers. They don't fix you. They give you just enough to keep you coming back for more
Lol in my country (Canada) we have free health care ☺
I cry whenever I see someone else dealing with this. I have stage 2 HS (stage 3 under my arms), breasts, groin, and recently butt. I’ve been dealing with this since the age of 15 (6 years) and I haven’t worn a sleeveless shirt since due to embarrassment. It really took a toll on my teen years because I was worried about what sort of bathing suits to wear and being questioned on why I walk or hold my arms a certain way. I also get holes like she does. And the pain is just so excruciating. Imagine laying in bed for hours trying not to move cause the slightest movement causes extreme pain. Then finally dozing off into a stiff sleep only to wake up in shock because you accidentally moved in your sleep. I’ve had to cry myself to sleep many times and felt so hopeless because it’s something I’ll be dealing with for the rest of my life. When not even doctors know much about it it’s frustrating.
I feel so much for this young girl it aches and I’m only going through half of what she’s experiencing. Anyone else dealing with it just keep moving forward. And I know it hard, SO HARD, but we’ll find our ways through it. If anyone has any tips that could help me or others out please respond.
Sending love and support.
Are getting adequate treatment? Find a specialist. Some biologics have been shown to help.
I go through the same thing sometime life feels hopless
I can only sudjest reading and learning more about being in the present moment. Something that helped me is reading the unthetered soul by Michael Singer. It makes life with HS more bearable and peaceful.
When we complain we need to remember others have a harder journey then we do often times. Try to be positive and grateful. I hope the best for this lovely lady.
👏
Healthy ppl whoever complain are pathetic.
Danielle Mccarter this is a disease shut up
@@eliseregans1193 what are you talking about or to?
Dachdog I was replying to the person under your comment
It takes getting this severe for a doctor to actually take this seriously. So sad. If she would have tried this in the beginning I'm sure they will just be like, "it's an infection you need to have better hygiene and this will go away. Here are some antibiotics." That's what always happen to me. Terrible.
Totally agree! I have this too and I wish it was taken more seriously in the beginning. It would of never gotten as bad as it did.
It's not that it's that bad, it's the fact HS isn't a common study for dermatologist. They are still researching what causes HS, and how to stop it.
And Mary, technically it would get worse. Because there is no cure for HS. It's an Autoimmune disease, people like me will have HS for the rest of our lives until a actual cure is found. There are ongoing treatments available for HS suffers. But it doesn't make them go away permanently, it just helps a little bit.
Same. It got to the point where I asked my doctors to stop prescribing antibiotics because they didn’t help the HS at all but gave me constant yeast infections and intensional issues. My HS is absolutely connected to my hormones, flaring up right before I get my period, and the only medication that might’ve helped a little was spironolactone - which took over 10 years to be suggested/prescribed to me.
Other than that, best treatments I have tried so far are steroid injections (gets rid of it 99% permanently immediately) which all my doctors are reluctant to do, and then I also had major surgery to remove all my lesions, which eliminated my flare ups for 3 years before some came back slowly. Surgery and injections are so effective, I just wish that doctors were more willing to prescribe those instead of shrugging and prescribing more and more antibiotics.
@B V Me too!
I will never complain about a bump or zit on my face again. Not only is she in such pain it has scared her beautiful face
she is so beautiful..feel bad for her..but best wishes ..
I have the same thing but just around my armpit and groin,any medication prescribed to be doesn't help calm down the cysts nor having a surgery done. I understand what she feels and goes through on a daily basis and it's painful. I wish her the best of luck
Pierce These veins hopefully you and her can get rid if this condition 💕😭
Pierce These veins i'll pray for you
Pierce These veins I hope you find the best medical care😩❤️❤️
I have a similar thing happen regulary under my arms where I get like big boils in the folicles. The worse I had to take antibiotics but now I just regulary apply tea tree oil its really good natural antiseptic. I use australian body care products maybe that would help.
I have it too in the same places. I go through the same. no medication works and it hurts like hell.
She's really pretty and she has great hair. js
Wow! I'm hurting just by looking at her painful ordeal. I hope she gets the cure she deserves and is able to enjoy life without so much pain.
A very brave, beautiful young woman. All the best to her!
Very very brave.
she mentioned a pilonidal sinus, that's from a sweat gland at the end of the spine. I had that get infected (like her's is) and let me tell you, I've had 10 operations in my life and a heart attack, that cyst on the tailbone was the most painful thing I've EVER had, it's excruciating. This girl has this kind of pain all over her body. I pray this doctor gives her all the help she deserves. It's been two years, I'd love to see a follow up on her.
So sad. I was diagnosed with PCOD AND DECLSRED INFERTILE 😭I WENT TO EVERY doctor to try Nd get pregnsnt.i pray for everyone who has this condition. Its the worst!! I can't describe the pain and embarrassment that comes with it. The worst places on my are groin areas. I get the fully filled cysts, they rupture and smell so bad.i will soak in a warm bath hoping to at least soften them. Right now I have three. Hard to take care of. I have diabetes, MS, Lupus and fibromyalgia. Two out of the 4 lumps are very infected. They won't heal,.its because of the diabetes. Yes, I've been to wound care. It's humiliating. Its like opening your legs for Playboy magazine. Ive gone everything they've ever asked. They wanted to starr Humia but I was already on the biologic Orencia. For Auto immune condition. I'm 50 but feel 80😭😭. Not giving up yet! Ive got 3 children who need m. I prayfor you and others fighting this! I wish all well and all the bedt!!🙏🙏🙏❤❤💖💖💜💜💙💙
I was supposed to get the sac off of my spine. But I backed out of it because I got scared of the pain!!
See ive had 5 spinal taps in one week in the hospital and talk about pain. It was beyond pain it was at a big named hospital in Philadelphia, PA. Happy part, I didn't have meningitis!!🙂🙂🙂❤❤❤I had a small stroke while on vacation in Florida. It was so hot and crowded. Never again.
God bless you for telling your story. Im sorry that you suffered. One doctor wanted to remove it in his office! Ihim OH heck no!!!!!(really the h🤬ll no!!!!
@@michelehickman3191 blessings to you.
I have hydradenitis supperativia, i know what she suffers from, and i hope everyone who’s suffering from HS gets better soon including this girl ❤️
when I see people on this show in makes me so grateful for what I have not for what I don't have......
things that we take for granted everyday or hands are arms are eyes are skin could make such a difference in our lives if something like that would missing.... instead we sit here and we bitch about money we bitch about how we're not happy we bitch about how we can't better ourselves.... just be thankful you have family be thankful you are healthy be thankful for the life you live
I agree that its important to remind yourself to be thankful. I started actively reminding myself to do so every so often, and it makes a difference. However, its just natural to have your own set of issues as an individual. Financial issues, body image issues, health issues, school issues, etc....they're all still issues that are very real and evoke emotional response. It's important to acknowledge our own issues and to not overlook what bothers us just because we are aware of other people with more serious issues around us.
I also feel like if you start to see people who have "more serious" issues as a comparative case for your own life, it creates a natural response where instead of empathizing with the individual, which requires the attempt to put yourself in their shoes, you're more aware of not being in their shoes and thankful for it. Not at all saying you're a bad person, just my thoughts.
Thank you for sharing your story! My daughter has some of these issues and it has been really hard for her to get diagnosed and treated but because of this video we can share this with her doc and hopefully get some help. Good luck to you, be well
I have HS its 'only' stage 2 and already incredibly painful. The poor girl I hope they find a regime of meds that works for her.
Buffet Slayer I wish the best of luck for both of you! Im glad that awareness about this condition can be spread.❤️
Buffet Slayer , I have it too but I think mine is in stage 1 . And I may or may not have self diagnosed myself using google . I only get flair ups on my inner thigh , my bottom and i just healed from a small one under my right boob .
Buffet Slayer Ugh!!!! I get that "only!!!" I am in the same boat!!! the scale is only 1-3! what such fuckery is that? I tend to have no less than 5 cysts under each arm at a time EVERY DAY!!! All the Dr's and surgeons keep telling me is that surgery won't be necessary because I am "ONLY" stage 2. Power on, fight your docs!
I'm pretty sure I'll be diagnosed with this. My left armpit has seven right now and the right has three and one more that is starting to form. I'm beginning to finally get scarring after a few years of it. Thankfully it's only been in my armpits and nowhere else yet.
Buffet Slayer my son has it also. Very painful for him, too
For Mild Symptoms
1- Getting hormones in check
2- Eating an extremely healthy diet including antioxidants and greens
3- Taking Multi vitamin, vitamin D, zinc, probiotics, fish oil and Collagen powder
4- Hibiclens body wash, works wonders.
I’m so glad you’re getting the help you need. I suffer with this too. Praying for you and I support you 🙏🏾
Please update this ladies progress, she’s so sweet and she has such a difficult condition to treat 🙏🏻❤️
I've got hydradentitis too mostly on the pits though. Extremely painful and demoralizing. I understand.
Adam Dorris I had the surgery under both arms I haven’t worn deodorant in 20yrs
are you seeing a dermatologist what about medications like anti biotics topical oinments
My heart goes out to this young woman.
You can see that she is clearly in pain... both physically and emotionally.
She is a beautiful young woman.
I pray she finds some solace.
I suffer with HS and stumbled across something that might help.
I purchased some lovely Pineapples a week back and ate a good few slices .
I noticed that it gave me relief from my recent flare up.
After that i checked up on the benefits of pineapples and i see that it is a very good anti inflammatory. It contains a substance called Bromelain which is very good in breaking down proteins and serves as a good anti inflammatory.
Try it if it helped me it might be beneficial for others also.
Zaheer A it’s also great for a cough
that sucks, i hope the best for her, she's beautiful
That woman is such a smart doctor. We need more doctors like her who are passionate about their work!
and I'm over here stressing about my skin
Brianna 21 I agree.. I'm having the worst ezcema flare up ever... but I know it's coming from stress... but watching this made me just feel like it could be worst.. I'm so sorry she's going thru this tho& hope she gets the help she needs
She's really a beautiful girl ❤️
You must not be seeing all those Freddy Kruger like scars on her then.. it's a sin to lie. Liars burn in hell. So I guess I'll be laughing at you from heaven
IrishThreeFour you are fucked
Not telling lies makes a person fucked! Fucking snowflake generation .This planet is doomed.
Glitch the Dutchie yes she is
Glitch the Dutchie she really is
What terrible symptoms this horrid condition have for the unfortunate patients.This lovely lady is so brave and can smile through adversity.I wish her well and others for a speedy recovery and cure.
Just got diagnosed with hs. Ha stage 3 under my arm and breast. With the pain I’m in I literally can’t imagine what she’s going through bless her heart
My heart goes out to this poor girl! She so young I can't imagine the insecurities she must have.
A ketogenic diet might be very helpful for her? Because not only is it an anti-inflammatory diet but it also is excellent for treating Polycystic Ovarian Syndrome! Also lazer hair removal is known to dramatically reduce if not stop HS flare ups completely.
blk bbw yuck
+Shelby's Akward Channel ??
Shelby's Akward Channel What?
blk bbw yes ketogenic diet is best for women with PCOS as a low carb diet helps due to the fact that the hormones have trouble absorbing the carbs that it stores it into fat which is what also causes the weight gain.
a keto diet absolutely made my autoimmune disorder go haywire.
When they stick the needle into the infected area is so freaken painful😖... PCOS comes with so many underlying issues👎🏾.. I'm so sorry you have to suffer with this rest assured that your not the only one.
Sharon G omg yes that is painful. I've been through it probably 1000 times .
I have an IUD now for my PCOS. If I didn't get the kyleena, the big cyst on my ovary would have flipped my ovary over. You're not alone with PCOS. I'm only 18.
I have PCOS as well, I have certain periods/years where my symptons are almost gone but this stresfull coronavirus years has worsened everything. Haven't had a period for about 4 months now
I have HS, and so does my daughter. Ours is usually in the groin area, buttocks and only have had it in underarms a couple times. Draining and pain has been the worst of it. No one knows we have it unless we tell them. My heart goes out to this beautiful young woman.
the fact you went on TV to share your story shows your bravery,integrity and beautiful spirit!!! There are very few people who would do what you're doing with your head held high. I truely believe God has amazing plans for you and your life, stay strong never let what mean people say because they know they could never do what you're doing with such grace, confidence and poise. God only chooses his best to be his messengers!!! My prayers will be with you on your journey.
Any updates on Tiffany? I wish here the best!
Awe, poor girl. I had cystic acne on my jaw line, it hurt so bad! I couldn’t imagine going through this. I hope she’s doing better! ❤️🙏🏻
I too have HS. However its almost complete in remission via weightloss. And limit sugar. Seriously sugar (and alcohol) has EVERYTHING to do w this!
I've had Hidradenitis Suppurativa since I was 12 and I'm 21 now. I just pray it doesn't spread to other areas of my body. So far I get flare ups on my armpits, inner thighs, and now I have a lump on one of my breasts and tracks are forming in my inner thighs. I can only imagine the pain she goes through :(
Bunniicup sorry to hear that I had this condition for years my armpits was the worse part and extremely painful till I did my surgery and removed the infected skin. Best thing I ever did. After my surgery it seemed the other ones kinda faded away. Every once in a while around my period I get one maybe two but I use this cream by derma e skinbiotics with oregano and tea tree I put it on and after two days it's gone. It stinks but it works I put it at night. U can get it on Amazon.
Its a smart ass disease that once eradicated will go to another area all together in a new flare up. Just gotta pray you stay in stage 2
I have this in my armpits and sometimes groin but its extremely mild - just looks like some ingrown hairs or acne at its early stage. The sign that its more is when its very difficult for them to go away fully or cysts develop. Once it gets to the stage where the tracts form (what she has) it's nearly impossible to treat on your own. I honestly did not know it could form on the face until this, poor girl. I hope she's better now.
i want to keep up on her improvement
J WALKERS me too! I'm hoping to find her on Facebook but I can't seem to find her in any of my hs groups.
Black women fighting
Dr. Sonia is the most articulate and well educated medical professional at that table. She exudes pure excellence, poise, and confidence.
My god do I feel for this poor woman. What a terrible situation to have to suffer through. I hope she finds relief from those treating her and is able to enjoy life instead of suffering through it.
What a brave heart. My thoughts are with her in her therapy and a quick and speedy recovery!!
I'm so happy to see awareness being spread for this 💗
She seems like a really sweet girl, I hope she gets good results. As someone with chronic pain of various types I really empathise with her.
You can see the pain and suffering in her eyes...and just like me asking God "why me"?...I know exactly how she feels
Seeing a dermatologist as someone with a severe condition is so devastating because they are always so pretty and have such lovely skin.
Hope she gets the help she needs. Cant imagine what shes going through.
I have PCOS as well as HS. This brave young lady... I hope they were able to help her. Would love an update on her.
The problem that I have with this is the doctor saying she has to smile. She does not have to smile unless and until all of the therapies work AND the scars are treated so they are not so obvious, which is difficult. I have HS and so far while on Humira it has gotten exponentially worse, not better. I'm also on a combination of topical and oral medications. However, I'm allergic to a broad spectrum of antibiotics and some fillers, so I have to be very careful. Just because I am on these medications doesn't mean I'm fixed - because I'm not. Just because this young woman is going to be placed on a regimen doesn't mean she is going to be fixed. HS (and related diseases) are the least researched because they occur in three times as many women as they do in men.
She's so strong I hope she's doing great now. I never told anyone about my hs during middle school. I'm a senior now and finally decided to make an appointment for it. My fam still don't know, i just said I have a skin condition. Its only on my sternum no where else. Thats why i never mention it, well that and its incredibly embarrassing.
I have PCOS and Hidradentis Suppirativa It's a rough ass life with these things. God Bless GF
Would love a follow up. ❤
I wonder how she is doing now? Anyone know? Were they able to help her? I just found out I have HS too and I’m scared😢
You need to talk about people waking up during surgery.
Hi. I woke up during surgery and I tried to get off the table. I woke up, tried to run but my arms were out to the sides tied on those (I don't know what the heck they are called) things, my foot was in a vice like thing, my doctor was seated working on my foot, I was so frightened and what made it worse was I couldn't get off the table. I started screaming and my doctor is telling me to stop moving my foot so I was cursing him out because I was in pain! (I never curse at doctors so this was a first😳). The anesthesiologist wasn't at my side, he was too busy talking to a nurse. Since then I have had more surgery and I make sure my anesthesiologist knows exactly what happened. Fortunately it has not happened since then. Honestly I am always a bit nervous before surgery. So, I totally understand what you went through.❤️
Happened to me too! It was a foot surgery I was supposed to be out and I came to fortunately I didn’t feel anything but I looked up at the anesthesiologist and said am I supposed to be awake and within three seconds I was put back out but it is a terrifying feeling that you could just wake up in the middle of something like that it’s pretty scary
Dr. Batra is this girl's knight in shining armor so to speak. She brings hope to this girl and eventual smiles too.
Oh bless her heart. My heart stopped when they said "address your pain".. I hope they don't put this poor child on narcotics. Praying for her healing.
Lisa Boliaris If i was her i would be taking morphine everyday
Lisa Boliaris I have this disease and it's spread a lot. My insurance will pay for narcotic meds but is refusing to cover the meds that can calm down the disease and stop it's progression.
amy thompson that's sad
Lisa Boliaris it's really sad. My doctors have been fighting my insurance company for quite awhile now. I'm also very lucky to have doctors who limit my pain med rx. Every now and then I could use an additional pill but I've seen how easily people get addicted, so I just stick with my one dose a day. I just wish they would cover more biologic meds. There's only one fda approved medication for this disease and it's only helping around 30% of the people of the people I know who have tried it. I tried it for over a year with no positive response.
amy thompson Amy I was in the same boat for the longest while. After years and years of suffering I completely changed my diet and started taking a peppermint and valerian root supplement. I haven’t had a flare in over 2 months and when I finally do - it will be stress related.
The absolute, number one, guaranteed to help: is to manage your stress! A person making life chaotic? Cut em out! Boss making your life hell? Transfer!
Best of luck!
I have mild adult acne & it really does impact your mental health. I too have PCOS, yet not with symptoms this intense. I so badly wanna hug this girl ❤❤❤
I have this as well and it is awful. Mine are painful so I can imagine how she feels. Wow
I love this doctors bedside manner.
Praying for all who suffer from this...sad...looks very painful...
Virginia lohrey it is
God bless this sweet, strong girl.
May Jesus Christ be with her and every one in the world
Rick O'Shea He is coming again. I pray our Father wakes you up. All the world will bow before Him.
Another Christian bringing their religion into everything, what a surprise
@@luisishere987 His believers will speak of Jesus again and again because He is our foundation. So dont be too surprised if you see someone that follows Jesus speak of Him again. 😊 the love is real and the seals are opening so of course me saying I'll say a prayer for you will sound nonsensical to you but I can't help it ☺
Awww that's lovely!! 😘
@Rick O'Shea Please go away with your negativity. If don't believe then just scroll pass.
Poor girl. To live with that ailment must be difficult beyond belief. I pray she finds a treatment that offers her relief and importantly the ability to enjoy normalised life. The strength she have can’t be ignored, well done stay strong keep believing. God bless 🙏👏👏❤️
holy crap! I have PCOS and I am so grateful it's not as severe as this. I wish her the best of luck, lots of love and a happy life ahead ❤
She is do strong...I hope her situation gets cleared up ASAP...so sweet and beautiful she is...God bless her!!!
I'm so sorry I wish I could take that pain away from her but I can't. I hope her best wishes. X💕
Doctors are still trying to figure out if this is what I have. I’ve been to 4 and they all say something different. Finally found a dermatologist at UofM that specializes in HS but they’re so booked up I have to wait until August to get in. I’ve been having flares up for over a year now and I’m so tired of it.
She looks like a badass anime character, i hope she doesnt feel insecure about her appearance, much love to her
Omgg she does look like a badass cool anime character!!
This disease causes insecurities 😪
No, this causes insecurities as those acnes have an unusual odor and pus are coming out of those scars when you don't expect it plus the fact that the acne is very painful it feels burning. There's nothing cool with it.
I really hope they can do a follow up episode and let us know how she's doing. I've never been actually diagnosed with HS but I highly suspect I have it. I've got a pilonidal sinus track and I get the boils and cysts under both arms and in the bikini areas. It's embarrassing and I feel awful most of the time because they become so painful and inflamed. I'm going to talk with my doctor about this and see what we can do for treatment as getting an incision and drainage each time is exhausting. I really feel for her as she's so young and kids can be so mean.
Poor girl🙁 hope she'll get better soon.
I have Hs as well primarily in I’m armpits and flare ups in my groin area. I am contemplating surgery primarily in my armpits to get them removed before it’s get even worse. It’s been worse with time and seems like it’s trying to spread. I hope I can get this resolved so I can start working out and swim and just live life. I’m 28 n is so stressful. Has anyone ever got surgery, if so did it work for you?
@thedoctors. Is there a follow up on tiffany? I too suffered terribly with what was originally dx'd as hidrenitis(sp) when I hit puberty. Insane weight gain, these giant purple boils. These left So many scars, but thankfully never hit my face that hard. But finally found a grest doctor, PCOS was the main culprit. With an antihistamine, spironolactone 800mg a day, metformin 1000 mg a day. And some other meds for years.. now If I make it thru menopause lol... I would love to hear that tiffany followed thru with her treatments and its made her young life a beautiful one!!
She is unique. I bet many of us can relate to some of these conditions, but not necessarily having all of them together. She’s beautiful ❤❤
I have it in my groin area and it's so embarrassing. I'm 19 and I have had it since I was like 10. I am scared to go to the doctor but I really want help. I'm scared to even have a boyfriend because I'd feel self conscious. It's so horrible and makes me so sad.
Jasmine Rose i have it in my behind and yes make u very self conscious and hesitant when thinkin of starting relationship especially with me having some kind of rubber band like thing sewn through my bum to keep glands open ....terrible !
Oh hun....don't feel bad!! You are NOT alone in this!! N PLEASE...go see a Dr!!! They are there to HELP you...not judge you!! Do you realize all the truly STUPID crap people come to the Dr with or for?! Pffttt ...you have NOTHING to be worried about! N they WANT to help n make u better!! Trust me....they will be a great sounding board and may have ideas you aren't even aware of to help you!!
I truly hope you finds the answers you want n need and get the help you so deserve!! Good luck n best wishes!!
Jasmine Rose I saw in the comments that there are facebook groups for HS. I'm going to tell my son about it, too, bc he has it also
I have HS and I'm a guy I have it on my buttocks but got surgery on them and also I have HS on my groin and armpits those 2 areas are the ones that bother me now but I'm getting treatment later some more surgery
I have been dealing with HS for 11 years since I was 18. I was at stage 3 when I got my surgeries. I was so scared when I developed symptoms but I didn’t tell anybody. It had gotten so severe that there were open sores on my stomach, the pain was immense, and the sores were so severely infected, my PCP said if I had waited longer it could have gotten a blood infection. In total I had 6 surgeries done and I still have to get my groin surgically repaired and have fatty tissue from my left inner thigh removed. I wouldn’t this disease on anyone.
I'm 33 I've had moderate/sometimes severe acne since I was 18. I let a breakout keep me from doing so much in my life. People have told me I'm very beautiful and I didn't believe them. I walk around feeling like a monster. This child has really opened my eyes. I don't find comfort from her suffering instead I'm embarrassed that I havent been stronger than a 13 year old child. Thank you for sharing
I feel so bad I have hs as well about to be going on to 5 years really wish there was a cure for this.. it’s very painful
Is it spreading?
This is a horrible disease. I pray for her and her recovery and for her peace and self esteem people in this world are sometimes awefull. Godbless her for allowing her to be filmed and informing people. To educate ignorant people and to show people who have it to give them hope that they are not alone! Your the strongest bravest girl I've known!!!!
Polycystic Ovarian Syndrome? Her pituitary gland should’ve been checked. That’s the gland that distributes hormones. If there’s a spot or growth on it hormone distribution is effected resulting in conditions such as polycystic ovaries & abnormal menstrual cycle. I had mine treated by my naturopath (melbourne Australia) 20 yrs ago and couldn’t be happier.
This poor girl, I pray that she is doing better. God bless her soul.
My sister I feel your pain I have HS! I pray for your healing, the Humira works for me. Hopefully you can have some relief from the physical, emotional, social, and mental anguish.
I know how she feels i have the worst case of this not on my face but my butt ans grion both butt cheeks have been cut out and a lot of my grion i have to ware a bag and its so painful hurts me every day all day in some from i could not sit down for a few year a and not good now but i keep fighting i wish it on no one
I truly hope she gets this healed and finds out why her body is causing this. When I was struggling with acne no dermatologist ever truly found the cause and will only mask the problem and the treatment's would not even clear my skin by much. once I found a functional doctor/holistic doctor that healed my candida and got my gut in balance including my lymphatic system detoxing is when I found true clean skin. This poor girl should continue to see a dermatologist and any doctor that can help her find out why the her body is causing this but she should also go the extra mile and see a holistic one . Dr.morsen is a miracle worker and truly knows how to heal the body, she should get in contact with him but
still continue to visit her dermatologist . Her body can be healed
Tiffani, you're beautiful. Hope you're well and happy. Hugs from Australia 💕
I suffer from this. I get boils in between my thighs. I use EMUAID MAX and stopped eating dairy and reduced sugar. I take iron and Ecenechia. It helps.
I enjoy learning from these videos, never had I ever felt so lucky to have been blessed. My problems seem so tiny to the real world. Hopefully the treatment works well for her. Anyone with this disease is not ugly. There incredibly strong for going through something like this.
Thank god I live in Denmark, where treating things like this (or any other ailment) is free...
Doesnt help when it cant get treated properly ;)