I know you think it can not be cured. and as of today that may be the case. I was told by my doctor that the reason they do not have either a cure or a better way of treating it is that it is not a well known disease and drug companies do not want to find something to help it as it is not going to make them money. I just recently got a new doctor and when I told her what I have she looked at me funny and said. hmm I never heard of that. :( I felt defeated.
Yes, did they wait until she had open boils to take her to the ER? That's negligence. I'm confused by the father acting like one day he just saw a huge open hole...that doesn't happen overnight.
Its not negligence Jennifer. Parents only do what they think is in their kids best interests. They don't want to go to the Drs since its not free in the US so maybe they thought it was just a bad breakout from puberty. Also, maybe she was not complaining which is why she wasn't being taken to the ER immediately.
Its a disease that doesnt come to "light" until puberity and once it does it can go really quickly and spread a lot or it can take years for it to spread. Its different from person to person. Doesnt mean her parents didnt help her out.
well, she clearly doesn't have acne, so calling it "pimples" in the beginning of the video is extremely misleading. this is an entirely different case altogether, there, doctors.
it's hidradenitis suppurativa which is causing boils and Deep-acne like cysts. If you googled her condition you would see that it causing scaring. It's most common under the arms and along the bikini area
and i'm not saying that she doesn't have hildadenitis - i'm simply saying that i came into this thinking she had a bad case of acne. which is the farthest from the truth. a pimple is not a cyst or boil. i watched the video - i know what her condition unfortunately does to her. just pointing out how misleading it is to classify her as having "acne", when it is in fact a much more severe case.
the holes look so scary, i would have a heart attack seeing that on myself like gee i just cant even comprehend it all to imagine it happening to myself
me too. People just don't see the fight that we go through. This disease used to be thought of as rare now it's obvious it's not. So many FB support groups prove that. I've been dealing with this since I was her age. What saddens me is yes, I feel her pain but I can't imagine people that I don't know being able to see all my scarring. I really hope the more people hear about this the more we have a chance at a cure.
i have it to i was just diagnosed 3 or 4 years ago but had it for a good 12-15 yrs before i even was told what it was mainly under right arm atm but its just scars that flare
Me too , its so annoying and painful. I thought mine was bad but as soon i saw this girl i knew she had it because i get holes in my arms too , but she has humbled me and reminded me that i don't have it that bad and to be happy
My boyfriend has a severe case of HS. Doctors actually used his case in medical education books. The condition covers his entire body, every inch of it. I truly hope they find a cure for the condition. I've seen first hand the pain and turmoil it causes, and she's right, the medications they prescribe don't work. My boyfriend has had around 20 surgeries. I'm so happy to see that this girl is getting help.
This broke my heart since I have it too. I hope she's been on biologic by now because this is a serious disease. Aside from that, she's a beautiful, courageous warrior.
I have the same thing and I was diagnosed around the age of 17, but my lesions aren't nearly as bad. God Bless her. I am able to hide mine but the pain was and still is excruciating.
Sum Asian Being stressed ages you. Also, that was inconsiderate of you. This girl is in physical and emotional pain everyday and gets bullied, yet you comment on how her mother "looks younger than her"?
God this poor girl. I wish there was some way I could help her, she doesn’t deserve this. She seems like such a kind person. And the torment she goes through must be awful. She’s so beautiful, I’m not just saying that I genuinely think she is beautiful. I really hope she’s going to be okay. This isn’t fair at all, but she’s handling it so well. I really do wish her the best 💕💕💕
I have been battling this disease for a very long time. The pain is not describable. It negatively affects every part of my life. I pray my daughter doesn't wake up with it one day
awe my dear :( it will get better...I am truly sorry for your suffering! you're such a sweetheart and things will only get better...cuz really you deserve it!
she is such a sweetheart. i am sickened by those who bully her because of something she cannot control. i hope she finds a treatment that will help her. 💛
What a sweet girl and family. It pains me to see someone so innocent treated so badly. I hope she gets better soon and she gets all the happiness that she deserves.
I am terribly sorry for anyone that has dealt with this. You are incredibly strong for enduring such a disease. I hope you all find the relief you're looking for
Her parents didn't know. She was hiding it for some time. He saw rags with pusblood. thats when he took her to the doctor. The scars can be fixed with surgery.
I stumbled on this video on accident. Its a very emotional video. I'm glad she is getting the help she needs at a young age. I know is off topic, but It is just me or do most Latinos look really young? Alfredo should be at least 30 because his daughter is 15. How old is the stepmom? 25-30? If my man looked like him on this 30's. OMG! ! ! ! ! I could be wrong, but for some reason Alfredo reminded me of Wilmer Valderrama. 00:50 Alfredo shows his kind heart, So sexy. Love the name too.
Poor kid. This may sound crazy. But she should try a Ketogenic / low carb diet. Carbohydrates feed inflammation and bacteria, and even cancer. She has nothing to loose. Poor sweet thing.
I also suffer from this condition it's hard ...really hard very crippling But it's only in my armpit I'm grateful for that at least ! The comments section makes me feel better tbh as I'm suffering right now in bed as we speak missing school as always lol
I can’t even imagine going through this... why must some people suffer so much? She’s so amazing and strong and I really admire her. People who live with issues like this are real heroes.
*GOD, WHY ARE PEOPLE SO FKN VILE!. HONEY, YOURE ABSOLUTELY STUNNING. ANYONE WHO TRIES TO PUT YOU DOWN IS ONLY TRYING TO BRING THEMSELVES UP BECAUSE THEY HAVE SUCH LOW SELF WORTH. DONT LISTEN TO THOSE PEOPLE. THEY ARE MISERABLE. AND ITS TRUE WHEN THEY SAY MISERY LOVES COMPANY. ITS SO TERRIBLE TO SEE THAT INSTEAD OF TRYING TO HELP ONE ANOTHER BY BUILDING EACH OTHER UP WITH POSITIVE WORDS, KIND WORDS, ETC., WE ARE JUST TEARING OTHERS APART. ITS MADNESS. AND IT HONESTLY MAKES ME SOMEWHAT ASHAMED TO EVEN JUST BE HUMAN. NO OTHER ANIMAL ON THIS EARTH IS AS CRUEL. I REALLY PRAY FOR YOU AND MAY YOU HAVE THE STRENGTH TO OVERCOME THE NEGATIVITY. I KNOW ITS HARD. I WAS BULLIED FOR YEARS B.C I AM OVERWEIGHT. THEN I THOUGHT, ALL THESE PEOPLE WHO ARE PUTTING ME DOWN ARE THE ONES WHO ARE TRULY DEPRESSED AND UNHAPPY WITH THEMSELVES. I SORT OF FEEL SORRY FOR THEM. I THINK PARENTS, TEACHERS, AND OTHER PEOPLE NEED TO TAKE MORE OF A STAND AGAINST THE CRUELTY AND NEGATIVITY. ITS SO MUCH EASIER BEING NICE THAN IT IS TO BE MEAN.*
Wow, yeah HS is no joke 😔 I understand her to some degree, i don't have it in spots where people can see like my face! Now thats terrible, I'll keep her in my thoughts, as there is no cure for HS, only treatments...
I feel for her. poor thing, I hope that there is someone who can help her and that just by being on the show she won't be bullied anymore. look behind the difference to see a human being like you that wants to be accepted and loved. be kind
I will never complain about a pimple again.
Li West girl same 😭
She died
@@MP-fy9ho really?
literally I feel so bad for her
Zebra Safari yeah it’s so sad she ended up killing herself becuase of bully’s
And I complain about my acne. I need to really start being more grateful
Amy Mendez same here I have acne but I shouldn't complain after that
Amy Mendez I have acne since I was 9 and 8-9 months old now I'm 15 and you know I still have acne.8
Amy Mendez same..
agreed.
acne can get really bad.
but holes in your skin. thats on another level.
Same here.. After seeing this I feel a little bit more appreciative for what I have.
This poor girl.. I can't imagine what she goes through :(
She has the sweetest face and voice. Why are people so mean
Namita Mohile ikr
Namita Mohile exactly
Namita Mohile yeah but and everyone talking about stepmom she so nice compared for stepmoms
Namita Mohile because people who pick on her are assholes
Namita Mohile cause you wouldn't say that about a guy unless he got a lot of money.
That looks so painful :( hope she's doing well
I agree.
Ouch and she has infections too which make things worse for her painwise 😢
she committed suicide i think. bless her :(
@@lilyrose691 you don’t know this stop making shit up
I have this disease. After 6 surgeries I am currently in remission. This is a very hard disease to deal with. No cure and so painful.
April Marie I wish the best for you
April Marie keep strength. You're beautiful!
k hope u are okay after 5 months :))))
April Marie I'm so so sorry god bless🙏🏾
I wish the very best for u !💕
I hope she gets better 😢
HS can't be cured
I know you think it can not be cured. and as of today that may be the case. I was told by my doctor that the reason they do not have either a cure or a better way of treating it is that it is not a well known disease and drug companies do not want to find something to help it as it is not going to make them money. I just recently got a new doctor and when I told her what I have she looked at me funny and said. hmm I never heard of that. :( I felt defeated.
karmahascometocall She can go on their website and sign up to be on the show.
Nicole Johnson you sure!!!? 😡i hope u have like that and cant be cured
@@pandakat915 be positive please
Are her parents 21? Not to distract from the real issue here, but what a gorgeous family.
02:54. They do look really young.
I wish i could look that young.
HalieRenee They're her stepparents
Ellie Munholland The guy is her dad actually, the woman is her stepmother
HalieRenee I know!!!!
HalieRenee He must have gotten her when he was a teen himself, he looks 18. 😮
Why took her to dr that late ?!
Yes, did they wait until she had open boils to take her to the ER? That's negligence. I'm confused by the father acting like one day he just saw a huge open hole...that doesn't happen overnight.
Its not negligence Jennifer. Parents only do what they think is in their kids best interests. They don't want to go to the Drs since its not free in the US so maybe they thought it was just a bad breakout from puberty.
Also, maybe she was not complaining which is why she wasn't being taken to the ER immediately.
Its a disease that doesnt come to "light" until puberity and once it does it can go really quickly and spread a lot or it can take years for it to spread. Its different from person to person. Doesnt mean her parents didnt help her out.
Queen Akasha I would've gone as soon as those spots appeared becauae you could see they're not regular
Because
well, she clearly doesn't have acne, so calling it "pimples" in the beginning of the video is extremely misleading. this is an entirely different case altogether, there, doctors.
it's hidradenitis suppurativa which is causing boils and Deep-acne like cysts. If you googled her condition you would see that it causing scaring. It's most common under the arms and along the bikini area
and i'm not saying that she doesn't have hildadenitis - i'm simply saying that i came into this thinking she had a bad case of acne. which is the farthest from the truth. a pimple is not a cyst or boil. i watched the video - i know what her condition unfortunately does to her. just pointing out how misleading it is to classify her as having "acne", when it is in fact a much more severe case.
Congratulations sherlock, you need a cookie?
its a rare auto immune problem also called acne inversa its very painful and deforming to the body theres no cure and it can be heriditary which sucks
Amy F oj
"Alfredo" is the best name ever
Elizabeth B ikr
I go to school with a kid named Alfredo and when we were in 6th grade our teacher called him feduchini all the time
I died!😂😂💀💀💀💀
Chicken Alfredo 😆
Thats a very common name where i live so no surprise
the holes look so scary, i would have a heart attack seeing that on myself like gee i just cant even comprehend it all to imagine it happening to myself
I love how you spell your name.
:)
the mom looks like she is 18
people who bullied her should go through this for a day and see how it feels
She is so beautiful.... I am so sad for her I literally cried...
it's about time....I suffer everyday with this disease.
me too. People just don't see the fight that we go through. This disease used to be thought of as rare now it's obvious it's not. So many FB support groups prove that. I've been dealing with this since I was her age. What saddens me is yes, I feel her pain but I can't imagine people that I don't know being able to see all my scarring. I really hope the more people hear about this the more we have a chance at a cure.
i have it to i was just diagnosed 3 or 4 years ago but had it for a good 12-15 yrs before i even was told what it was mainly under right arm atm but its just scars that flare
Chrissy Chris I hope you guys get better❤ don't let it get you down you're all still beautiful
Me too , its so annoying and painful. I thought mine was bad but as soon i saw this girl i knew she had it because i get holes in my arms too , but she has humbled me and reminded me that i don't have it that bad and to be happy
Chrissy Chris prayers to you and your family 🤗
Her dads name is Alfredo ... Amazing
Raisinglittles lmfaooooo
There’s a kid at my school named Wilfredo but we all call him Alfredo
Theora_likes_things * wilfredo
She's beautiful and a very sweet girl. I don't know why people are so ignorant.
I can't believe i'm often complaining about my breakout which is nothing compared to her condition!
Ici Celia omg Same.
My boyfriend has a severe case of HS. Doctors actually used his case in medical education books. The condition covers his entire body, every inch of it. I truly hope they find a cure for the condition. I've seen first hand the pain and turmoil it causes, and she's right, the medications they prescribe don't work. My boyfriend has had around 20 surgeries. I'm so happy to see that this girl is getting help.
She is my cousin, and the sweetest person ever😊
This broke my heart since I have it too. I hope she's been on biologic by now because this is a serious disease. Aside from that, she's a beautiful, courageous warrior.
How is she doing now? I hope she's ok 😊
Update on her please
How is she?
I have the same thing and I was diagnosed around the age of 17, but my lesions aren't nearly as bad. God Bless her. I am able to hide mine but the pain was and still is excruciating.
And I, as a teen, worry about my shoes and losing 10 pounds... I really take things for granted.
I’ve suffered with acne for 30 yrs ,but it’s nothing like what this poor girl has to go through everyday. Counting my blessings.
poor her, i wish her all the best ❤❤❤
My heart goes out to her. She has such a beautiful personality, she doesn’t deserve this.
why the step mother look younger than her though? btw yes its sad shes had to go through so much pain and bullying but i jus dun geddit
Naqi Guay i think tiffany stress
Sum Asian Being stressed ages you. Also, that was inconsiderate of you. This girl is in physical and emotional pain everyday and gets bullied, yet you comment on how her mother "looks younger than her"?
I think the father was a teen mom unsure where the biological mother is
OMG poor baby, she's so strong !
Ocean lights Ikr
She looks the same age as step-mom
God this poor girl. I wish there was some way I could help her, she doesn’t deserve this. She seems like such a kind person. And the torment she goes through must be awful. She’s so beautiful, I’m not just saying that I genuinely think she is beautiful. I really hope she’s going to be okay. This isn’t fair at all, but she’s handling it so well. I really do wish her the best 💕💕💕
www.gofundme.com/qw3k6xe6
I have never wanted a young woman to get help as much as this beautiful girl. This is heartbreaking.
I just wanna give her a hug omg thats so bad
Praying for her pain. Beautiful girl, inside and out.
Seeing her like this makes me cry...she's such a beautiful girl inside out and I feel so sorry for her...
Oh my gosh, I couldn’t imagine having this, hope she’s doing well 😭🙏🏻
This poor little girl. She is so sweet and beautiful. Im sorry she is in pain:( I want to give her a hug😭❤️
I have been battling this disease for a very long time. The pain is not describable. It negatively affects every part of my life. I pray my daughter doesn't wake up with it one day
she needs to come to my school in england no one gets bullied everyone is so kind and she will be so popular there bc she's so beautiful
awe my dear :( it will get better...I am truly sorry for your suffering! you're such a sweetheart and things will only get better...cuz really you deserve it!
People are so evil to bully her. God bless her for being so strong!
Alfredo
feddhichini
Arlene Kataria Ravioli
Lasagna
egg
linguini
she is such a sweetheart. i am sickened by those who bully her because of something she cannot control. i hope she finds a treatment that will help her. 💛
i literally complain about acne on my forehead. i feel so bad now.
I just wanna give her a hug. She seems like such a great person to know.
I know her pain.. it sucks so much. Especially being young and having yo go through this. It makes ones self esteem get so low.
What a sweet girl and family. It pains me to see someone so innocent treated so badly. I hope she gets better soon and she gets all the happiness that she deserves.
Awww she's so beautiful and strong
Sienna Williams Marry her
@@Mr.Eminem shut the f****** up! Worm!
Poor girl, will never complain about my skin ever again, hope she gets better
Who else thinks that she doesn't look like a teen with her hair down
( she's really pretty)!!!
I am terribly sorry for anyone that has dealt with this. You are incredibly strong for enduring such a disease. I hope you all find the relief you're looking for
stepmom i thought was her sister at first..she looks so young!
She's so beautiful, I really don't understand why people are so mean to her, truly breaks my heart :(
So sad.
People like her don't deserve to live in pain. She's so beautiful too.
her parents are so young to be her parents 😰
Don't let's the cruel idiots get you down, you are beautiful and kind and amazing
Oh bless her heart. I pray her body heals and she never has to deal with this again.
Let's keep this Angel in
Our "PRAYERS" !
She's beautiful!!! If you don't see that ur lostt😌
I want to give this girl a hug, she is so powerful and strong!
DID THEY NOT THINK TO VISIT A DOCTOR WHEN THERE WERE ALREADY SYMPTOMS
I sincerely hope she gets better. She seems like a sweet girl.
I wish god to help her an make her live more happyer
Poor girl. I'm so sorry that she's in so much pain physically and mentally.
Why would you wait so long to take your child to the doctor? She was in pain, poor girl.
Btw, will she have permanent scars from it?
Her parents didn't know. She was hiding it for some time. He saw rags with pusblood. thats when he took her to the doctor.
The scars can be fixed with surgery.
yes
I feel so bad for her, she shouldn't deserve this! I bet she is an amazing girl!
I stumbled on this video on accident.
Its a very emotional video. I'm glad she is getting the help she needs at a young age.
I know is off topic, but It is just me or do most Latinos look really young?
Alfredo should be at least 30 because his daughter is 15.
How old is the stepmom? 25-30?
If my man looked like him on this 30's. OMG! ! ! ! !
I could be wrong, but for some reason Alfredo reminded me of Wilmer Valderrama.
00:50 Alfredo shows his kind heart, So sexy. Love the name too.
You'r stupid.
George Salcedo "You'r"
George Salcedo how
George Salcedo The irony
SHE'S SO BEAUTIFUL STOP BULLYING HER
poor girl she shouldn't have to go through this she seems so sweet and kind
Poor kid. This may sound crazy. But she should try a Ketogenic / low carb diet. Carbohydrates feed inflammation and bacteria, and even cancer. She has nothing to loose. Poor sweet thing.
A. Townsend yup that and a paleo diet and avoiding night shades like tomatoes eggplant peppers etc
She is such a brave young lady, I wish her all the best in Life!!
I also suffer from this condition it's hard ...really hard very crippling
But it's only in my armpit I'm grateful for that at least !
The comments section makes me feel better tbh as I'm suffering right now in bed as we speak missing school as always lol
Just be greatful it's not as bad. I wish it was still just in my arm :(
I can't believe people have the balls to bully a beautiful person like her, she's a masterpiece.
Is it just me or do her parents look super young? Anyway, I feel so badly for this girl. Hope she gets the help she needs for this condition.
I can’t even imagine going through this... why must some people suffer so much? She’s so amazing and strong and I really admire her. People who live with issues like this are real heroes.
*GOD, WHY ARE PEOPLE SO FKN VILE!. HONEY, YOURE ABSOLUTELY STUNNING. ANYONE WHO TRIES TO PUT YOU DOWN IS ONLY TRYING TO BRING THEMSELVES UP BECAUSE THEY HAVE SUCH LOW SELF WORTH. DONT LISTEN TO THOSE PEOPLE. THEY ARE MISERABLE. AND ITS TRUE WHEN THEY SAY MISERY LOVES COMPANY. ITS SO TERRIBLE TO SEE THAT INSTEAD OF TRYING TO HELP ONE ANOTHER BY BUILDING EACH OTHER UP WITH POSITIVE WORDS, KIND WORDS, ETC., WE ARE JUST TEARING OTHERS APART. ITS MADNESS. AND IT HONESTLY MAKES ME SOMEWHAT ASHAMED TO EVEN JUST BE HUMAN. NO OTHER ANIMAL ON THIS EARTH IS AS CRUEL. I REALLY PRAY FOR YOU AND MAY YOU HAVE THE STRENGTH TO OVERCOME THE NEGATIVITY. I KNOW ITS HARD. I WAS BULLIED FOR YEARS B.C I AM OVERWEIGHT. THEN I THOUGHT, ALL THESE PEOPLE WHO ARE PUTTING ME DOWN ARE THE ONES WHO ARE TRULY DEPRESSED AND UNHAPPY WITH THEMSELVES. I SORT OF FEEL SORRY FOR THEM. I THINK PARENTS, TEACHERS, AND OTHER PEOPLE NEED TO TAKE MORE OF A STAND AGAINST THE CRUELTY AND NEGATIVITY. ITS SO MUCH EASIER BEING NICE THAN IT IS TO BE MEAN.*
That poor girl. I can't even imagine how much pain she must be in. I hope she's able to be healed one day and that people are kind to her.
Wow, yeah HS is no joke 😔 I understand her to some degree, i don't have it in spots where people can see like my face! Now thats terrible, I'll keep her in my thoughts, as there is no cure for HS, only treatments...
She is such a strong young woman, she seems really nice
World is full of mean & corrupted people bless this world & bless her too from them.
Precious girl. I hope things get better for her soon.
Why are kids so mean!
Her parents are such a beautiful couple and she is so beautiful herself
She is still so pretty 💖
I feel for her. poor thing, I hope that there is someone who can help her and that just by being on the show she won't be bullied anymore. look behind the difference to see a human being like you that wants to be accepted and loved. be kind
*me* : ( *Gets a couple tiny pimples on my face* ) *omg I'm so ugly eww why did I brake out*
*I take my clear skin for granted*
Oh that sweet girl💔 I’m so sorry she has suffered so badly.
Are they really her parents?
Jemie Walmsley
that's her real Dad and her stepmom
She looks white
@@tangiechapman6219 white? Are you stupid or something?
She's so beautiful. So sorry she has to go through all that😞
That sucks
Tbh,I think she is the most beautiful girl I've ever seen!,I feel so bad for her and I pray that she gets better!
And im here like complaining about a pimple.
I feel bad :(
awwwwh :'( she's so sweet. why would people make fun of her :'((
Woah is the stepmom the same age as her!?
The fact that there are heartless monsters that could actually bully someone for something they can’t control.
And I thought that I had acne with like a couple bumps on my forehead
Aww she looks beautiful. I am outraged that people bully her!
Sorry Tiffany, hope you get better. Also, I'm not trying to be mean but why does she look more like her step-mom to me than her real dad?
Ew, your hands smell like mustard! Tf is up with that name
that poor girl oh my gosh, the pain is something I cant even imagine. my heart goes out to her..
And I freak out over one lil pimple X(
She is a beautiful girl,hope this treatment will provide relief and leassen the appearance of the scars