"Just because I can list the kings of England, it doesn't mean I can cross the road safely." Honestly that is what it's like to have brain damage IN A NUTSHELL
Shabby Cat www.karmanhealthcare.com/blog/2018/10/17/what-are-pull-tabs-for-wheelchairs/ That’s the closest I could find. There is a link at the bottom of that post for the actual website of the charity.
Tips: Whenever you stop, turn it off to save the battery. You're NEVER too young to use a mobility aid - a pram is a mobility aid. Get an assessment from your local wheelchair service. Long skirts can get trapped in little wheels.
Yes on the long skirts!! wether a scooter or powerchair - always be SO careful with long and/or full skirts. I have had my share of clothing tragedies on mobility aids :(
You can either have a scooter or a car on mobility. However you can get an electric wheelchair from your local wheelchair service but there assessments are strict and determine what you get. Plus then you need a WAV car also a whole other issue and at least 10 videos on the process it’s a nightmare. there really is not easy or right way I guess you just work out what’s best for you
My grandmother had two types of scooters! The big one she could move around with one roads and go over the the next town without any power issues and maximum comfort. Second one was a tiny one she could collapse and take with her in the car easily so she could live her best diva life and go shopping. I can totally see why she needed BOTH! I'm glad you tried your options so far tho!
I am the same. The only problem is that when it comes to packing the small one in the car, I find it difficult to disassemble and lift into the boot - especially the battery. The big one looks quite flash (I had a kid ask me if it was a motorbike), and will easily take me into town and back (a round trip of about five miles).
I LOVED Claudia flipping off the scooter!! I have tears in my eyes. I hope in time, you're able to get all three types of mobility aid. I think you made a great point about how if it's not aesthetically pleasing, or reminds you of your medical trauma, you won't use it. I hope the mobility aid users out there continue to chime in with helpful information, and that you find one that passes the 'Claudia does not make an obscene hand gesture at it' test! 💘
I started with a stick and so far I have worked my way up to two walkers and a scooter! I do miss the days when I could just jump in the car and drive away!
As someone who is also not "visibly" disabled, but very young, and looking at mobility aids this series is so helpful! Honestly, your videos have really helped me be more "positive" about my own disabilities. You may not realize it, but you are positively impacting many lives with your videos. You are truly wonderful. Thank you, for helping me realize that being disabled doesn't mean I can't also be glamorous!
IN REFERENCE TO MOTORIZED WHEELCHAIRS: I would strongly recommend trying to find a mobility specialist who is familiar with different customization options for wheelchair, as this could help make a motorized chair a preferred option for you. (possibly in conjunction with a cheap foldable scooter for when you need to travel in a car) You can do all sorts of things, from changing the steering method (and where it’s located), changing the cushion or even the back of the seat, changing the foot and arm rests, and all sorts of things! I’m not sure how it works in the UK, but it may be easier to find exactly what you need if you’re working with a specialist in that area who can possibly even create something custom for you with the available modifications, and maybe even find a way to copay or have a charity pay for it.
You can do all this in the UK :) I got good advice when I bought mine. We have to buy our own generally. I spent a long time looking for grant funding and I was very very lucky that a church charity agreed to fund my last powerchair. I'm a bit stuck at the moment as I need a new one now, some years after the last one has had lots of replacements and I need to retire it. I'm struggling to get any funding. The NHS wheelchair services staff are coming out to see me to see if there is anything they can do to help. They can usually only supply indoor wheelchairs which is useless to me (have to take my daughter to school etc), apparently there is a 'tiny' possibility that they can apply for an indoor/outdoor powerchair for me! (like I have now) but I think the criteria are hugely strict and I've no idea if I would qualify (I suspect not), but keeping everything crossed. Otherwise my current chair may have to limp on for a few more years whilst a few more bits fail here and there! (obviously mobility aids failing over time isn't limited to powerchairs and some can take more punishment than others :) )
@@ixykix indoor/outdoor powerchairs usually only funded if you a full time powerchair user. The powerchair must also fit into your house so you can access bathroom, kitchen etc with foot plates extended. There is also medical criteria like cant have seizures etc
@@ecologist_to_be yes it's pretty strict. I don't qualify because I'm not in my chair all the time. I'm in the process of applying to charities again though
I live in the US so some of my tips may be irrelevant to you. That said, I have Cerebral Palsy and have used a manual wheelchair all my life and a power wheelchair since age 12. Generally, scooters like the ones you used here easily break down and are less reliable over time. Given your disabilities and symptoms, I would recommend a power wheelchair and a fold up hospital style chair for when you need to use a chair but also need to ride in a car. Power wheelchairs tend to be considerably more stable, last longer, and more easily fit indoors and out. I charge my wheelchair nightly when I go to bed and it’s fine. Be careful in rain storms though. I once got caught in a heavy downpour and my chair had to be fixed. Power chairs can be cute! As a kid, I decorated mine with stickers! My current wheelchair is purple and black. My old one was blue and silver. Another pro is that they last a long time. Both my power wheelchairs have lasted 10 years. My second one is still functioning. I got a new one because I need to tilt my seat and elevate my legs. If people are ignorant enough to think you’re faking, that’s THEIR problem, not yours. You are never too young/old for a mobility aid. This is a BLESSING. This device will give you more independence and enhance your quality of life. And yes, people do tend to stare/ignore you/generally forget how to be decent in the presence of a power wheelchair. People are ignorant. Ignore them. You’re doing amazingly well. Hope this was helpful.
heads up on the motorized wheelchair. there are 3 types. front wheel drive, mid wheel (which is the most common) and rear wheel. mid wheel makes it easiest to turn. I once got stuck in an elevator in a rear wheel drive because it makes much wider turns. I am commenting in mid video, but I just wanted to share that before I forget it.
I have mid wheel. So much easier. Depends on how many wheels the chair has though. Mine has 2 main drive wheels in the middle and 2 stabiliers (!) front and back which makes me feel a little like a toddler on a training bike but makes a huge differenct to stability and also its ability to climb chunky kerbs :) I've never had a chair that had 4 wheels though (rather than the 6 on mine). Might try one of those out as I need to start looking for my next one!
some of the most useful things I've learned from watching your videos are; 1) I get brain fog (though not to the extent you do) 2) the ability to recognize when I'm going/about to go into a brain fog state 3) the knowledge that I don't have to try to push through it, because that's impossible 4) that it's OK to have brain fog 5) the fact that I've got a butt load of internalized ableism about my own (and others') disabilities, even years after I was first diagnosed with an acquired brain injury thank you for making these videos, I can't tell you how much they mean to me.
I know how you feel when it comes to thinking "am I allowed to?" Or fear that people think you're too young. I had an encounter last month. I was recently diagnosed with epilepsy, so while I can walk sometimes I feel ill and other times it's just safer for me to ride in a scooter at the store. I was with my little sister who by the way has Cerebral Palsy and wears AFOs daily. I had the scooter and she was getting on and off looking at Halloween costumes. Mom was with us but in another part of the store. If something had happened I would have been sitting down so safely and my sister knows to get mom. While driving around looking a group of adults made a comment when they thought I couldn't hear "How lazy do you have to be that you cant even walk while you take your kid to look at costumes. Honestly they shouldnt even go trick or treating you know shes going to be the one to eat it all and then we'd get higher prices to pay for the replacement scooter." I came down the aisle and I thought they realized that I heard them but while I was looking at something another person who had a cast that went from ankle to hip and a sling on her arm came down in another scooter and the same group of grown adults said "oh look heres another one abusing the system and being to lazy to walk. Those are supposed to be for elderly people who need help, not fat lazy people." The girl went off. She point to her very visible cast and started shouting about how dare they make assumptions on what other people are going through and assume that because they are young (she was like 40) they dont need help. I just sat there and watched. They pointed at me and said "fine but she doesnt have a broken leg so not everyone needs the help" my sister then spoke up and said "but she does have epilepsy and could die if she had a seizure and I have cerebral palsy but I can walk a short distance with frequent breaks." I finally said "you know her leg will heal, I may find medication that will make me better and my sister is beautiful and works hard to do what she does, but for you guys? Theres no cure for an ugly personality." They all just kind of shifted and walked away. But even before that day I've always felt bad about using those scooters, I have a service dog and cant drive myself anywhere and I know I need them. But people judging my illness because they cant see it hurts.
Vanessa McCoy that is an awful, awful experience. your sister and the other mobility device user are WONDERFUL. while i can't think of how to wreck karmic vengeance upon any who incite such malice unto others, i CAN offer up some cool Halloween costume/cosplay options that incorporate one's mobility device? some arts&crafts, stickers, ribbons/scarves/ties, &/or clip-on bike/hair accessories big enough to clip onto the device. 1. Barbara Gordon, the first Batgirl &, with the moniker "Oracle", the leader of the all-femme Birds Of Prey team, and information broker to DC's superheroes. she was a permanent wheelchair user when she went by Oracle & operated from a secret hacker's lair in a clocktower in a Mission Control role. she got retcon'd to being the ONLY Batgirl (erasing the history of her choosing & mentoring her successors + aging her down) & is completely ambulatory currently BUT! with a red wig, some glasses, a "laptop", &/or the entire batgirl costume (to mix her two roles together), you can ask your sister to dress up as Cassandra Cain (Batgirl II, essentially wears Batman's costume but with a full-face mask & yellow outlines) or Stephanie Brown (Batgirl III, long blonde wig & a purple Batman suit). 2. any of the Scooby Doo characters with some cardboard or other craftiwork to dress your mobility device as The Mystery Machine! your sister can dress up as one of the other members to match! 3. a Star Wars rebel pilot: wear a white bike helmet with a visor, an orange outfit, & a white jacket/vest. use any vaguely recognisable Star Wars symbols you like (on scarves/pins/stickers/etc) to dress up your mobility aid! if VERY crafty, you could mock up a cardboard cockpit, blaster turret, or an exterior ship! 4. Pirate King Elizabeth: dress to mimic any of her film costumes or just as a generic pirate & deck out your aid to be the ship you captain! 5. Wonder Woman in her "invisible" jetplane - since it's invisible, you don't need to accessorize your scooter/chair at all! 6. any Disney queen or princess with your mobility aid dressed up as your throne! (if you have the cardboard/craftiwork, you could mock up an Iron Throne for a crossover or Just For Fun). 7. a knight/prince/princess (specific or generalised) on your trusty "steed" (be it a tiger, unicorn, dragon, or mortar&pestle if you want to be Baba Yaga). coloured scarves/ribbons tied onto the mobility aid can mimic the hair/fur/mane & tail/s of your "steed" and googly eyes stuck on (if you have lights on your device, no need to do up a face: it "has one" already). i always find dressing up makes me feel more secure & more confident: the visibility makes it safer for ME (i have low vision: if i stand out it means others see me coming when i can't perceive them, & it also makes me more "public" so that if anyone hassles me others will notice immediately. i am able-bodied but frail & often anxious, dissociative, or unaware of my surroundings. dressing up makes me feel as powerful as those i'm dressed as & it also heightens my visibility - it also tends to endear me to "the public" so people are more forgiving when i have to squint right-up-close or when i miss social cues. i know that most people restrict "costumes" for special events but, since my ventures outdoors are so few, when i go out i am almost always Dressed Up in SOME way or other. if this isn't helpful at all, sorry! i do hope it at least gives you some ideas on tinkering/decorating your mobility aid/s that are so very essential to your wellbeing. anything that give you a bit of confidence, fun, or fancy when using it is something to delight in!
BOOM. Well done for speaking up. You don't ever have to ofc, it's not our responsibility to educate people. But I'm glad that you did. Hope you're not too scarred from the experience.
Caroline oh Caroline I’m sure it’s beautiful when you say it! I’ve heard the most beautiful sounding word in the english language is “windowsill” which looks unpleasant but sounds lovely.
You should see if one of the companies that makes these chairs/scooters would like to sponsor your RUclips channel by donating you a free unit! They may not say yes, but it wouldn’t hurt to make some calls and give it a shot, lesser internet personalities have gotten stranger and more specific things out of sponsorships before.
This video inspired me to finally use my cane again, for the 15 min walk to the student center, instead of roughing it out. My legs and I thank you Jessica ❤️
I went through this process a few years back and went through pretty much every mobility shop in Central Scotland. By far the most professional and non pushy places that actually helped me and were extremely caring and informative were, Albion Mobility in Alloa, and Mobility Solutions in Glasgow. I was totally disgusted by some retailers who seemed to know very little about mobility issues or the equipment they were selling, all the while trying to Tell ME, what I needed, without bothering to ask me what my difficulties were!!!! So buyer beware, do your own research and do not let anyone force you into buying anything you don’t need. So I ended up getting my power chair from Albion ( who had their own resident Occupational Therapist ) and assisted with a funding application. I also got my Wheelchair Accesible Vehicle (WAV) through Motablity and Allied Mobility (the car part of Mobility Solutions).
I have to admit you look very fashionable and cute on this scooter, and particularly in this pride outfit. I hope that doesn't influence your decision to the worse. Claude also looks great with this headband and the sleeveless shirt.
My wife and I went through this process last year. She's an ambulatory wheelchair user aswell. We ended up settling on a wheelchair called the forcemech: navigator. It folds flat in a few second and can be easily placed in a trunk. I recomend it to anyone looking for a powerchair.
I have a scooter because of my ME/Chronic fatigue syndrome. I can walk around in our house. Take short walks on a good day. Today it's a bad day. On the bed watching you. Your such a breath of fresh air. Beautiful, witty and honest.
But it also comes with the large turning radius that gave her so much trouble on the scooter. And you cannot put your feet on an even surface like you can do on the ground of a scooter. A bike saddle is also not as comfortable to sit on as a wheelchair or scooter seat is. IMHO the trike is a cool thing but only for exercise and not for attending events where you have a lot of "standing around" time.
I was just kidding a bit. :) The trike has a lot of issues, it's probably giant and weighs a ton, wouldn't help at the airport or on public transit. But it's so dang cute, I had to encourage it.
I almost never feel disabled enough - even though I receive Disabled Student Allowance I always feel so embarrassed when I have to use a disabled loo because I have a mental disability not a physical one- I use disabled loos sometimes to stop myself from getting melt downs in public
*hug* Well, then you obviously need it. For any weird incidents, you could carry little cards that say "Yes, I have a disability, even though you don't see it and using this toilet makes things easier for me." So if somebody gives you shit for going on it, you just hand them the card and don't have to deal with them personally.
I can get claustrophobic very easy. And if the normal stalls are really tiny then I don't feel comfortable in them and so I go into the disability stall. Normally it's fine because there's not a high demand specifically for that stall and you only need to use it for a couple of minutes. I did have one lady very rudely remark on me using the disability stall though. Which makes her the a$$hole.
@@ebunni5862 it's a real problem at my school because there are *2* disabled toilets and only the kid in a wheelchair with a full time carer is supposed to use them. I have arthritis and often need to lever myself up but can't in a narrow, smoothsided stall.
Not gonna lie, I'm so ridiculously happy seeing other young people trying (and/or using) mobility aids-because, dang, I feel you. That aside, being a long haired lady myself, I'd be super interested in learning if one set of wheels or another was better or worse about getting tangled up with human and pup fluff, and which might be easier to clean up once they are all jammed up.
As someone who also has connective tissue/daily subluxations and dislocations I've been curious about these for a bit. especially if things get more clunky in my joints as time goes on. Right now I am in LOVE with my Ergobaum elbow/lofstrand crutches. They actually have shock absorbers and a really nice stability foot that has really cut down on my shoulder issues, wrist dislocations, and takes the weight off my hips and knees while getting around. They also have a flashlight and a horn built in, and you can get them in a bunch of colors (I got black because Cr*ple-punk aesthetic is my jam). I honestly cannot recommend them enough for fellow crutchies.
I feel you with the worry that people will think you're faking it. With both of my pregnancies I got to a point where my chronic back pain and fatigue were so bad that I HAD to use the crappy mobility scooters they offer at some supermarkets in order to shop. I got so many dirty looks and heard people talking out loud about how I was "taking resources from people who need it" that I felt absolutely awful about needing help. Luckily my mom was with me often enough to tell them to stop being so judgmental and ableist. Bless her willingness to get into a fight with someone in order to defend her pregnant trans son's need for mobility aid.
Just wanted to say thank you for your videos and normalizing disability. I have mental health disabilities and chronic pain that often make my brain quite foggy and make it very difficult to concentrate. But because you can’t see them, people assume I’m just being dramatic or lying for attention. It stinks .(
I watched these videos in the wrong order, so when I came across a young woman with Downs syndrome riding one of those tricycles the other day, I instantly thought of you. Hers had a sort of handle in the back, so the person walking with her was able to move the bike a bit if necessary, like when she miscalculated how much she had to swerve to avoid me and my friend. I thought that was quite nifty.
Perhaps keep your crutches on the scooter, so it looks less "recreational"? Plus, then you have a backup aid for if the battery runs out on a hill again, or if you feel like walking around somewhere that has stairs. Just a thought.
You literally took the words out of my mouth about feeling embarrassed with having to use a mobility aid and i can partially walk. im 24 and im constantly worried about being judged even when i use my cane.
From context clues, I'm assuming a buggy is what I would call a stroller. What I mean when I say buggy is what I think you mean when you say trolly. Sometimes they are also called shopping carts here. Trollies are a type of streetcar. American vs British English, sometimes confusing, but fun.
As a 21 year old with mobility issues, migraines and nerve damage I genuinely appreciate you, your channel, and how much everyone around you cares! I often struggle to accept that I'm disabled and worry that I won't have a "normal" life, but every time I see you and how honest you are with your struggles you give me the motivation to keep trying and not sit in my pity puddle. Much love and happy pride!
I love me some rainbow, but I wouldn't say they make for the height of sophisticated fashion; but you managed to make it look classy! Your style is simply impeccable.
I'm glad you are helping dispel misconceptions around who uses mobility aids and why and how they might be used. In a perfect world, you'll have more than one mobility aid, to fit what you need at a given day (think: one usually has more than one pair of footwear for their mobility ... wellies and tennis shoes and slippers ... for a start) and situation. That said, there's not only cost, but also space considerations ... so it gets down to trying to find what would work in the most necessary circumstances in the least toss-it-into-the-road way ... Sigh.
My grandmother had all of these things, power chair, electric wheelchair, electric scooter. (Evidently the first two are different and that blew my mind.) she however, was pretty permanently bound to one. She could try to get in and out of cars, she could try to walk a few feet, but she needed to be in the chair a majority of the time. If I had to guess which she used the most, it would be the power chair. It’s kindof a happy medium between the two. The model she had, had a charging cable actually attached to it and a place for you to store it in the chair. So while you’re sitting somewhere, you can plug it in, so your battery is always up.
In my country you go onto the bus by the back door/alighting door. The driver comes out, pulls the ramp out for you, you drive backwards, straight into a big empty parking spot meant for wheelchairs and mobility devices with no poles or anything to bang into. Then you tell the driver your stop, and when it's your stop he does the same, pulls the ramp out for you, and all you have to do is drive forward off the bus. No steering required :)
its easy to see how finding a proper mobility aid (or multiple mobility aids) that suit you can be an overwhelming and stressful task, even when the person making the purchase is NOT making a video about the experiences. i'm almost surprised that there haven't been more videos on this topic in particular since it's kind of A Huge Deal for anyone. they're expensive and can directly affect your options in day to day life, and it's wonderful that you're making a space to talk about this and bring light to it. it's incredible seeing the commitment you've made, and the time and effort and thought you've put into finding what works best for you. as someone whose executive functioning suffers somewhat severely at times (adhd + mental illnesses for myself [irrelevant but that's fine. we vibing.]), seeing you remain steadfast in your decision to continue searching for ways to improve your quality of life in the long term, despite feeling confused and frustrated and embarrassed in the moment, is something that is very much appreciated and taken to heart. it means a lot. [rambling ending here, my apologies haha] as always, looking forward to see what you post next! 💜
I have EDS and use an E-motion wheelchair. It is a regular wheelchair with battery driven wheels. You still have to roll but the wheels but the battery helps with how much energy you need to use. Normal settings are 50 and 80%. So if you push on the drive wheels it gives them 50-80% more force/drive of how much you push. I hope that makes sense. My shoulders, right elbow and right wrist dislocate frequently, but When I use my E-motion it rarely happens. If you have a chassie that is foldable, then the chair can be put in the car boot. The down side is with the E-motion wheels and the chassie, it is quite heavy- 27 kilos. My husband can get my chair in and out by himself. They can be taken on trains, buses, etc but you have to be careful with the drive rings as they can be damaged if someone drops your chair or runs into the drive rings repeatedly. If you go with this option, make sure to have the anti-tip device down as you learn. Hope this helps.
I sometimes used a mobility scooter when I was suffering from a bone infection in my foot. I am 5’10” tall and was not used to being ignored while waiting on lines or reached over when trying to find my size in a store. People are rude! And they think you are mentally slow when you can’t walk? A woman actually reached over me to put her purchases in front of a clerk who was in the middle of checking out My purchases. My daughters said I should have stood up and intimidated her fight back!
I can definitely relate to worrying about looking too young for a mobility aid. Part of the reason I have rainbow stickers and unicorn plushies all over my walker is to wrench its aesthetic away from 'medical device' and toward 'cute gadget'.
I spent AGES choosing a scooter and it still doesn't do exactly what I wanted. Main thing I learned is there is NO such thing as a lightweight scooter. They are ALL heavy to lift by yourself. This really only matters if you want to take your scooter in the car or on the train, etc. If you just want a scooter to get around locally, then you just need to think about where you will keep it. There are several ways to manage the weight and finding the best way for you will probably be one of the main deciding factors for the kind you choose. I wanted to be able to take my scooter on long train journeys, so looked at folding scooters. In the end I chose the remote controlled Monarch Smarti (also called the Solax Transformer) and apart from the weight problem, it is pretty fantastic. BUT I can't get it in and out of my car by myself because despite it being classed as lightweight, it's too heavy - and I have great upper body strength. Unfortunately my car is not suitable for a hoist either, so I can't take it with me on my own. I bought a spare battery and carry it on the back of the seat in case I need to change it. At the moment I use it when I'm at the hospital or doctors, and if I'm going shopping in supermarkets or at retail parks. I can't change my car at the moment, but my next car will be one suitable for a hoist. Only then will my scooter give me the freedom and independence I really want!
Oh my, that retro style mobility scooter...you would look adorable on that but you are so smart to be trying out different options. It's a big decision. I have knee and hip pain, look totally normal, but there are some days where I look like a drunk walking down the street. I'm debating whether to get a cane or not and that seems to be a huge enough decision for me!
I feel embarrassed, as well. Along with all of those reasons, I'm to young, they will think I'm faking, but, I also feel like being fat or plus sized that comments will be made. You are absolutely gorgeous and shouldn't care about what ignorant people think. You don't have to prove anything to anyone and you bought that one, what you do with your money is your business, even if you were able bodied. I've been looking into tricycles, too. I was absolutely worried about being to weak to use it, now that I know that they can be motorized, too, I'm thinking about them again. Hmmm I wonder if those can be rented out for testing
I feel very similar to to you and hate that people might think I need my scooter because I'm too fat, not because I have a disability (MS). It's hard enough to accept you need something for support.
I don't have brain "damage" but I do have moderate-to-severe chronic mental health issues and your comments about guilt over your needs really hit home for me. ♥️
I’m 26 and I have Ehlers Danlos Syndrome Type 3:Hypermobility I’m still getting use to needing all the braces I need. For the first time I went out in public with my wrist, and ankles both taped at the same time! In order to help me, I bought the pink tape and matched my outfit! Hahaha 😂 I really should use my braces more but I hate all the medical devices... I’m strange and try to coordinate them with my outfits lol. It’s quite hard when they always come in black! I was able to buy the silver ring splints that look like jewelry though!
Johanna Geisel I wish. They’re Velcro. You don’t to have anything that slides of the arm because it’ll pop my joints out. Weirdly I have different color RayBans so I’m just matching them to the color tapes I get. Haha
I always have my walking stick visible when I'm on my mobility scooter (usually poking out the basket) as I feel it almost legitimises my need for the scooter. I do think it's sad that I feel the need to do that though. Also, when I applied for a pass to take it on the bus they actually brought an empty bus and parked it outside my flat so I could practice getting on and off which was so helpful. Shout out to West Yorkshire Metro! 😁🙌
I spent about 6 months accompanying my mom places while she was in a mobility scooter due to injury and I just want to say thank you!!! Thank you for normalizing disability and even making it cute as well! I am also so glad to have somebody acknowledge the fact that SOME PEOPLE WILL JUST STRAIGHT UP IGNORE YOU! I can't tell you how many times I had to walk up to people and repeatedly ask them to move so we could get through the one handicap accessible door. Maybe they were trying "not to see the disability" but I would so much rather have people "noticing" and being considerate than pretending like nothing was going on and making life more difficult for a someone that can't walk.
@age issue: For me, people using mobility scooters has become a very common sight. The notion, of a kind widely believed "nornal", that expects that mobility aids are exclusively used for old age related disabilities, is one, that no more exists. Where I live, and work (Hamburg, and a suburb) people of all ages, using all kinds of mobility aids, are a common site. On my bus commute of 22 to 29 minutes, the ramp for wheelchairs and mobility scooters goes down, at least one or two times, per tour. Often the driver doesn't have to do it, because one of the passengers already, gave it a hand. Nobody makes a fuss about it, because we are all so accustomed to it. I should mention, that this bus gets pretty crowded in the course of it's tour. So when there is one scooter, there are often one or two buggies...I remember a time, when people generally thought, mobility aids are something for old people. That was in my childhood. I am 57.
Thank you for your videos! You and others like you make disability less scary. I've started having joint pain of unknown origin in my knees that requires me to wear knee braces anytime I have to be standing for more than a few minutes. Thank you for helping to normalize mobility aids and just for being a lovely person 💜
You are too adorable and gorgeous to be worried about how the mobility device will look since you and yours (Miss Claudia) will fill whatever beauty gap may exist.
Protip for motorized scooters: the 3 wheeled ones have a tighter turning radius and maneuver better than the 4 wheeled ones! I've managed tight queues at amusement parks with a 3 wheeled design
Thank you for being so candid. You guys are such a beautiful couple, and weirdly it's really great to see the natural tension around getting a scooter, because of that independance/dependance factor.. And also, all the very understandable anxiety around getting yourself properly set up, and accepting your valid need for the right kind of support. Seeing you a bit frazzled makes me feel so much more OK about my occasional frazzles and frustrations about really important things to do with my mobility and dependance on other people when I can't donit myself. It's so understandable that it feels like a big deal, because it kind of is, and will have a major impact on your life. Thanks again for the genuineness, and not hiding the realities of being disabled, but still making it an understandable and approachable topic for allies
Your struggle to figure things out was mine and yes batteries are a thing! Also if it’s cold the batteries go out quicker ( normally you end up with 2/3 distance) tip though a warm place like a gas station or a coffee shop is your friend you might be able to thaw up the batteries to actually get home .
I have a medical issue that causes me extreme pain when I walk longer distances. I usually only use a mobility aid when my husband and I go to shopping malls and big box stores for groceries. I'm only 44, and I always feel guilty for using it, even if I'm having great issue even getting into the store, or can even barely walk after using the aid. I don't have any recommendations, I just wanted to empathize with the guilty feeling when using one.
The guilt of using mobility aids while young is one of those nasty things that society doesn't really help with. If it helps though, I've been using mobility aids (mostly canes) since I was 16 and I'm nearly 20. I've been able to work physically demanding jobs but I still get a lot out of using mobility aids. In the end if it helps manage your pain it's definitely worth it and I hope you find a system that works well for you!
@Liz I find it so hard to not feel guilty even though I I have no reason to think that way. Daftest thing is not one person has ever said anything unpleasant to me and yet I still think I know what they're really thinking lol!
I'm 17 and recently diagnosed with pretty severe rheumatoid arthritis after being ignored and dismissed by male GPs for months. I get real imposter syndrome applying for anything, and it's not helped by the blue badge rejection and THE hospital's insistence that I'm not disabled, even though I need access to uni disability services when applying and will likely continue to
Elegance matters! My first walking stick was eye-opening in terms of I can do all the things now, but it was also ugly & medical and I never went anywhere with it. I got my new pretty walking stick and I'm making excuses to go out with it. It is worth the money to get something beautiful because then you will use it.
I have a foldable mobility scooter and it has literally changed me life. But I’m am also an ambulatory wheelchair user, so I’m okay with a smaller lighter scooter. I love it over a wheelchair because I can just park it and leave it in a place and it still makes it easy to go around shops in I want to. It’s also a lifesaver at an airport. And you get really used to it driving it through heavy crowds, especially with a smaller scooter because you can maneuver very quickly. The only issue I have with it is my scooter is not made to sit in for a long time so it can be painful to sit in it in for a while. And people do still give me weird looks when I get off of it or move my legs. A tsa agent ever asked me if “I really needed it”. So you know ableism still there.
They do make mobility scooters with a smaller turning radius, my dad and my aunt both had 4 wheel ones that they could easily take on the bus. The one you rented may need a new battery because if my 300lb dad could take his up and down multiple steep hills you should've had no problems.
How do you find mobility scooters with a smaller turning radius? It is the biggest problem I have with mine. Can’t get it in buses and generally can’t use it inside most places. It is very outdoor only which is a problem as my mobility is too poor to walk in shops and stuff too.
@@lotusflower474 my dad got his from the Veteran's Administration and I'm not sure how my aunt got her's and as she passed recently I can't ask her. I did go with her on the bus in Milwaukee several times and she had no problems so it may just be an issue of trying them out? I just know that they do exist.
I love those white shoes you have on, they are identical to an amazingly comfortable pair I have from M&S that I’ve had for about 6 years. One bonus of needing a power wheelchair is that you don’t wear down shoes and they forever look new!
I recently had to buy a mobility aid- I went with a scooter as I felt more stable in it and can use it outside and it feels easier to use. I adore your videos and you are an inspiration xx
I weighed this up a lot when I changed from a scooter. I went for a more substantial powerchair that I use outdoors a lot but its ok indoors in most spaces. It's a pretty big chair but it's a good compromise between both
@@ixykix Do you take out in a car? Staying local gives you far more choice, but if you need to transport it then that can be a different kettle of fish.
I've run out of battery in a mobility scooter several times before so you're definitely not alone there 😁 They're really great when they don’t die on you, but I agree they can be a nightmare in smaller places like lifts or buses etc ❤
Im 38 and have a type of adult onset muscular dystrophy and in all reality will need a walker and or scooter in probably another 10 years. Thank you for doing this video series!! So much to think about so many things to learn.
I, kinda feel the same way you do "I can walk, basically an hour! And I'm only 21!" Even though 1. I injured my left knee, twice. And both my ankles 2. I, apparently used a walker when I was younger? 3. That's only on a "good day" 4. A lot of the places, I'd like to go to, are about an 1h+ walk. And that's both ways 4. I think there might be people younger than me, who need mobility aids
Thank you so much for making this! I’m 24, have HSD and suspected chronic fatigue and I’m looking for a mobility aid for the first time beyond my walking sticks. These videos are really useful and help me feel less alone ❤️
I am so grateful for my mobility scooter, as without it I'd never leave the house. I found my current one on Facebook, though would also recommend looking on Gumtree. Getting second hand ones is better for your first time as it's not quite as big an investment. The main issue I have with mine is that the battery is extremely heavy. I would advise not to use Careco as they are cheap for a reason (found out the hard way). In general most public transport in the UK does not allow mobility scooters on to them, so I'm surprised they let you on the bus in the first place. There are also different types of mobility scooter from big ones, to ones you can take apart to put into a car, and ones where you can fold them into a suitcase size for travel (these tend to be a lot more expensive). Also most similar in size to the one you're using have a maximum of 8-10 miles on one battery charge.
I totally feel both your pains! Having been the person pushing the scooter with automatic breaks for 45 minors minutes, whilst being the person who needed to be in it! Keep up the fight (both of you)!
As someone with a brain injury I really related to you talking about swinging between everything is a lie to being far too trusting. I've never been able to put this into words and it's something I struggle with. Also when you talked about being overwhelmed and that it was okay and hopefully we can get through it together, I felt so much relief and realized I wish more people would understand that and say that to me. P.S. Your look for pride was amazing! Loved your bag and the stars you put on your face specifically but the whole outfit was a look!
Feelings are fine - you're human! While not being in the position of needing a mobility aid, I imagine that hearing about the emotional side as well as the practical could be very helpful for somebody.
The first minutes actually were therapeutic to ME. They made me feel a lot less stressed about my own "incredibly capable" "incredibly incapable" self. "Yes, I did just write a sixteen-page paper on that one thing, did the legal work for my friend and am *also* completely unable to fix my own dinner or go outside without someone with me. 0v0 No, no it's *not* because I'm not 'trying hard enough'. Thanks, though, random person who probably thinks they're being helpful but is just making me self-loathe and -doubt." Also, I'm so happy RUclips took me to this channel
1. I hope Claudia is good! I hope she's not still mad at the scooter! 2. Even though I am an able-bodied girl, from my perspective, please don't feel embarrassed to ride a mobility aid. I have learned a lot from your videos and wouldn't think twice about someone doing so. Anyone who cares doesn't matter. Do what's right for you. 3. Please don't feel nervous about posting your videos. All of your videos are always amazing and these are no different. I'm sure they are bringing lots of help to people and I find it fascinating and informative. Thank you, always, for your love and support to others, your kindness and everything you do to help and inform the world. Your truly my favorite RUclipsr!
Loved the "One more thing!" at the end. The tricycle does look cool. I'm enjoying watching your journey and hope you find the best thing for your needs.
Girl I feel you 🤣🥰 I have a trike, not powered but I love it ❤️ I have balance issues and can’t use a regular bike and it make it so much better and if I need a break while riding I can just stop and sit without tipping over but make sure to get a new seat with more support and padding like a seat for plus size riders to help keep pressure off your tush 🤣
I am not disabled and have no reason to watch these videos. But your videos are so amazing, I can't help but watch! I appreciate your sunny and sarcastic disposition more than words can say!
Just want to let you know that I watch the ads on your channel all the way to the end because I understand that you need that to get paid properly. I only do that for a handful of channels. Love you so much!
Oof the shame that comes with using a mobility aid SO REAL! I used one in Disney World of all places when I was having a really rough pain day and the looks I got from people 🙄🙄🙄 just because I’m not “old” and I don’t “look” disabled...
I would just like to say that I regularly feel too young to use a mobility aid (I use a cane), but you inspired me to start using it and your videos and instagram give me so much confidence. It has made such a difference in my life.
Dear Jessica, I wanted to let you know that I’m enjoying this series so much already, I’m learning along with you and I appreciate just how hard it must have been for you on so many levels to film all of this! My wife and I have a mobility scooter that we share and we find it is hard to charge as we have to charge it outside because it’s too big to get into our home, and what with the blasted English weather...! We can’t take it to many places because it doesn’t fold down so it won’t go in our car (despite it being a huge Honda CR-V!) There are a lot of pros and cons to weigh up and we are in the same boat as you, trying to figure out what is best for us and our situation (we both have chronic illnesses that makes our abilities fluctuate) and it’s just a big jumbled mess in our heads, we know we need something but it’s all so overwhelming!! So we know exactly how you feel approaching this, Jessica, and we wanted you to know that you’re not alone either. Thanks for all you do for the disabled community, and thank you again for making this terrific series!! With warmest wishes, Stacey (& Catie) xxx (Also, 2 woofs for Walter & Tilly from our two dogs, Ria & Rolo 🐾)
This. Was. DARLING! I love you two. I love that you can laugh at being able to list the kings of England while not being able to cross the road safely. I love when we can laugh at the absurdities of our various experiences in life. I really appreciated the list of your feelings about the decision and how it is complex and fraught. Thank you for another lovely video, Lovely Person!
this video really resonated with me as i also only need to use a mobility aid quite regularly but still not all the time and i always feel bad about it even in days where i can barely stand without fainting so this video comforted me a lot and made my disability feel valid! thankyou for making this series as it could not have been made at a more perfect time for me as i’m also trying to find the perfect mobility aid for myself, i’ve rented a few powerchairs and i find them the best for me (especially because i can hold my girlfriends hand at the same time) but it also feels more comfortable as i have very long legs and i don’t fit into any of the cheap scooters! thankyou so much for making me feel so much better about myself and my disability with your videos💗
You’ve helped me so much, dealing with needing a mobility aid- like more than I can possibly explain. Nobody really knows what’s wrong with me yet but sometimes my legs stop working and I also have quite bad full body chronic pain so I started using a walking stick 2 years ago when I was 18, a year after that as I got worse still I got a cheap manual wheelchair for when a walking stick wasn’t enough and I use that now for longer outings, but because I am normally ambulatory - even seen as active of “fit”- or at least able to walk a little I felt so ashamed and like I was deceiving everyone when ever I used an aid- especially the chair, but you have helped me realise I’m not at fault or a bad person for needing aids sometimes and thanks to you I recently just posted pictures on my social media of me using a mobility aid ( the chair) for the first time ever 😁💜💜💜💜 thank you to the ends of the earth for being you and sharing it with us 💜💜💜💜
I love my electric bike! I mean yes I have balance issues and I have fallen off the bike twice (well...more accurately, the bike tipped over with me on it...) but most of the time it's GREAT! I can ride like an able-bodied person! Hills are doable! IT'S SO ADORABLE. That electric trike is sweet. You'd have so much fun on it!
I'm looking at the electric tricycle, too. I'm not quite to scooter/wheelchair yet, but I'm not driving just now, and walking can be a problem, especially with doing the shopping (even owning a folding cart), or getting my service dog enough exercise. However, they are incredibly expensive, and here in the US, not covered by insurance, as a scooter might be. You would look very nice on that racing green trike.
First 5 min of the video: The normal human condition. After that, it was normal issues with electronics. My favorite lesson that I can contribute. If you are worried about the color or feel of the "medical feel" they make colored magnetic strips that attach to the metal. They are easy on and off and still have that snap of those kid bracelets that makes it fun to put on or take off. The other option is fabric with Velcro as covers. Those can be machine washable and can match your outfits.
Thank you so much for making this series, from another young, part-time mobility aid user who is also very overwhelmed by my options and has a lot of feelings!!
![It's time to sit down... // Mobility Aids 1 [CC]](http://i.ytimg.com/vi/e77wkKOnC6s/mqdefault.jpg)
![My exams went horribly wrong... [CC]](http://i.ytimg.com/vi/3Fp4ppqBOm8/mqdefault.jpg)
"Just because I can list the kings of England, it doesn't mean I can cross the road safely."
Honestly that is what it's like to have brain damage IN A NUTSHELL
Cognitive issues tend to be indiscriminate alright.
Yep or remember stuff from 20 years ago but not remember words or where you put your keys. Mine was caused by a radiotherapy beam through my brain.
That's basically my NVLD 😯
“It’s like riding a bike. You never forget.”
Jessica: Watch me.
Miss Adjusted In America we say: ”hold my beer.”
Colleen Nikstenas
In this case it would probably be “Hold my earl grey.”
Kenji is a SMOL boi Hehe!
@@mikadoedwards3117 as an American who drinks tea but not beer, I shall adopt your saying.
I want a fundraiser for Jessica's electric tricycle please
RIGHT????
Shabby Cat www.karmanhealthcare.com/blog/2018/10/17/what-are-pull-tabs-for-wheelchairs/
That’s the closest I could find. There is a link at the bottom of that post for the actual website of the charity.
I vote yes on the bike!
I’d love to see the attire she’d choose ! I could absolutely see her in a sidecar :) picturing her in Amelia Earhart esquires goggles and neck scarf
Tips:
Whenever you stop, turn it off to save the battery.
You're NEVER too young to use a mobility aid - a pram is a mobility aid.
Get an assessment from your local wheelchair service.
Long skirts can get trapped in little wheels.
PageMonster thanks for sharing these tips, these are really helpful
Yes on the long skirts!! wether a scooter or powerchair - always be SO careful with long and/or full skirts. I have had my share of clothing tragedies on mobility aids :(
You can either have a scooter or a car on mobility. However you can get an electric wheelchair from your local wheelchair service but there assessments are strict and determine what you get. Plus then you need a WAV car also a whole other issue and at least 10 videos on the process it’s a nightmare. there really is not easy or right way I guess you just work out what’s best for you
Do you Think i'd should get one?? I AM dyspraxic and trip a lot, it's dificulta to climb stairs
She's unlikely to get one on NHS as she can walk around her house x
My grandmother had two types of scooters! The big one she could move around with one roads and go over the the next town without any power issues and maximum comfort. Second one was a tiny one she could collapse and take with her in the car easily so she could live her best diva life and go shopping. I can totally see why she needed BOTH! I'm glad you tried your options so far tho!
I am the same. The only problem is that when it comes to packing the small one in the car, I find it difficult to disassemble and lift into the boot - especially the battery. The big one looks quite flash (I had a kid ask me if it was a motorbike), and will easily take me into town and back (a round trip of about five miles).
I LOVED Claudia flipping off the scooter!! I have tears in my eyes. I hope in time, you're able to get all three types of mobility aid. I think you made a great point about how if it's not aesthetically pleasing, or reminds you of your medical trauma, you won't use it. I hope the mobility aid users out there continue to chime in with helpful information, and that you find one that passes the 'Claudia does not make an obscene hand gesture at it' test! 💘
I started with a stick and so far I have worked my way up to two walkers and a scooter! I do miss the days when I could just jump in the car and drive away!
As someone who is also not "visibly" disabled, but very young, and looking at mobility aids this series is so helpful! Honestly, your videos have really helped me be more "positive" about my own disabilities. You may not realize it, but you are positively impacting many lives with your videos. You are truly wonderful. Thank you, for helping me realize that being disabled doesn't mean I can't also be glamorous!
IN REFERENCE TO MOTORIZED WHEELCHAIRS:
I would strongly recommend trying to find a mobility specialist who is familiar with different customization options for wheelchair, as this could help make a motorized chair a preferred option for you. (possibly in conjunction with a cheap foldable scooter for when you need to travel in a car) You can do all sorts of things, from changing the steering method (and where it’s located), changing the cushion or even the back of the seat, changing the foot and arm rests, and all sorts of things! I’m not sure how it works in the UK, but it may be easier to find exactly what you need if you’re working with a specialist in that area who can possibly even create something custom for you with the available modifications, and maybe even find a way to copay or have a charity pay for it.
You can do all this in the UK :) I got good advice when I bought mine. We have to buy our own generally. I spent a long time looking for grant funding and I was very very lucky that a church charity agreed to fund my last powerchair. I'm a bit stuck at the moment as I need a new one now, some years after the last one has had lots of replacements and I need to retire it. I'm struggling to get any funding. The NHS wheelchair services staff are coming out to see me to see if there is anything they can do to help. They can usually only supply indoor wheelchairs which is useless to me (have to take my daughter to school etc), apparently there is a 'tiny' possibility that they can apply for an indoor/outdoor powerchair for me! (like I have now) but I think the criteria are hugely strict and I've no idea if I would qualify (I suspect not), but keeping everything crossed. Otherwise my current chair may have to limp on for a few more years whilst a few more bits fail here and there! (obviously mobility aids failing over time isn't limited to powerchairs and some can take more punishment than others :) )
Downside is the custom powerchairs are eye wateringly expensive between like £7 and £25k depending on what you have on it!!!
@@ixykix indoor/outdoor powerchairs usually only funded if you a full time powerchair user. The powerchair must also fit into your house so you can access bathroom, kitchen etc with foot plates extended. There is also medical criteria like cant have seizures etc
@@ecologist_to_be yes it's pretty strict. I don't qualify because I'm not in my chair all the time. I'm in the process of applying to charities again though
I live in the US so some of my tips may be irrelevant to you. That said, I have Cerebral Palsy and have used a manual wheelchair all my life and a power wheelchair since age 12. Generally, scooters like the ones you used here easily break down and are less reliable over time. Given your disabilities and symptoms, I would recommend a power wheelchair and a fold up hospital style chair for when you need to use a chair but also need to ride in a car. Power wheelchairs tend to be considerably more stable, last longer, and more easily fit indoors and out. I charge my wheelchair nightly when I go to bed and it’s fine. Be careful in rain storms though. I once got caught in a heavy downpour and my chair had to be fixed. Power chairs can be cute! As a kid, I decorated mine with stickers! My current wheelchair is purple and black. My old one was blue and silver. Another pro is that they last a long time. Both my power wheelchairs have lasted 10 years. My second one is still functioning. I got a new one because I need to tilt my seat and elevate my legs. If people are ignorant enough to think you’re faking, that’s THEIR problem, not yours. You are never too young/old for a mobility aid. This is a BLESSING. This device will give you more independence and enhance your quality of life. And yes, people do tend to stare/ignore you/generally forget how to be decent in the presence of a power wheelchair. People are ignorant. Ignore them. You’re doing amazingly well. Hope this was helpful.
heads up on the motorized wheelchair. there are 3 types. front wheel drive, mid wheel (which is the most common) and rear wheel. mid wheel makes it easiest to turn. I once got stuck in an elevator in a rear wheel drive because it makes much wider turns. I am commenting in mid video, but I just wanted to share that before I forget it.
I have mid wheel. So much easier. Depends on how many wheels the chair has though. Mine has 2 main drive wheels in the middle and 2 stabiliers (!) front and back which makes me feel a little like a toddler on a training bike but makes a huge differenct to stability and also its ability to climb chunky kerbs :) I've never had a chair that had 4 wheels though (rather than the 6 on mine). Might try one of those out as I need to start looking for my next one!
When I was a carer on of the service users wheel chair was a NIGHTMARE to steer. Think it was rear wheel.
Ran myself over SO many times
some of the most useful things I've learned from watching your videos are;
1) I get brain fog (though not to the extent you do)
2) the ability to recognize when I'm going/about to go into a brain fog state
3) the knowledge that I don't have to try to push through it, because that's impossible
4) that it's OK to have brain fog
5) the fact that I've got a butt load of internalized ableism about my own (and others') disabilities, even years after I was first diagnosed with an acquired brain injury
thank you for making these videos, I can't tell you how much they mean to me.
I know how you feel when it comes to thinking "am I allowed to?" Or fear that people think you're too young. I had an encounter last month. I was recently diagnosed with epilepsy, so while I can walk sometimes I feel ill and other times it's just safer for me to ride in a scooter at the store. I was with my little sister who by the way has Cerebral Palsy and wears AFOs daily. I had the scooter and she was getting on and off looking at Halloween costumes. Mom was with us but in another part of the store. If something had happened I would have been sitting down so safely and my sister knows to get mom. While driving around looking a group of adults made a comment when they thought I couldn't hear "How lazy do you have to be that you cant even walk while you take your kid to look at costumes. Honestly they shouldnt even go trick or treating you know shes going to be the one to eat it all and then we'd get higher prices to pay for the replacement scooter." I came down the aisle and I thought they realized that I heard them but while I was looking at something another person who had a cast that went from ankle to hip and a sling on her arm came down in another scooter and the same group of grown adults said "oh look heres another one abusing the system and being to lazy to walk. Those are supposed to be for elderly people who need help, not fat lazy people." The girl went off. She point to her very visible cast and started shouting about how dare they make assumptions on what other people are going through and assume that because they are young (she was like 40) they dont need help. I just sat there and watched. They pointed at me and said "fine but she doesnt have a broken leg so not everyone needs the help" my sister then spoke up and said "but she does have epilepsy and could die if she had a seizure and I have cerebral palsy but I can walk a short distance with frequent breaks." I finally said "you know her leg will heal, I may find medication that will make me better and my sister is beautiful and works hard to do what she does, but for you guys? Theres no cure for an ugly personality." They all just kind of shifted and walked away. But even before that day I've always felt bad about using those scooters, I have a service dog and cant drive myself anywhere and I know I need them. But people judging my illness because they cant see it hurts.
Vanessa McCoy that is an awful, awful experience. your sister and the other mobility device user are WONDERFUL.
while i can't think of how to wreck karmic vengeance upon any who incite such malice unto others, i CAN offer up some cool Halloween costume/cosplay options that incorporate one's mobility device? some arts&crafts, stickers, ribbons/scarves/ties, &/or clip-on bike/hair accessories big enough to clip onto the device.
1. Barbara Gordon, the first Batgirl &, with the moniker "Oracle", the leader of the all-femme Birds Of Prey team, and information broker to DC's superheroes. she was a permanent wheelchair user when she went by Oracle & operated from a secret hacker's lair in a clocktower in a Mission Control role. she got retcon'd to being the ONLY Batgirl (erasing the history of her choosing & mentoring her successors + aging her down) & is completely ambulatory currently BUT! with a red wig, some glasses, a "laptop", &/or the entire batgirl costume (to mix her two roles together), you can ask your sister to dress up as Cassandra Cain (Batgirl II, essentially wears Batman's costume but with a full-face mask & yellow outlines) or Stephanie Brown (Batgirl III, long blonde wig & a purple Batman suit).
2. any of the Scooby Doo characters with some cardboard or other craftiwork to dress your mobility device as The Mystery Machine! your sister can dress up as one of the other members to match!
3. a Star Wars rebel pilot: wear a white bike helmet with a visor, an orange outfit, & a white jacket/vest. use any vaguely recognisable Star Wars symbols you like (on scarves/pins/stickers/etc) to dress up your mobility aid! if VERY crafty, you could mock up a cardboard cockpit, blaster turret, or an exterior ship!
4. Pirate King Elizabeth: dress to mimic any of her film costumes or just as a generic pirate & deck out your aid to be the ship you captain!
5. Wonder Woman in her "invisible" jetplane - since it's invisible, you don't need to accessorize your scooter/chair at all!
6. any Disney queen or princess with your mobility aid dressed up as your throne! (if you have the cardboard/craftiwork, you could mock up an Iron Throne for a crossover or Just For Fun).
7. a knight/prince/princess (specific or generalised) on your trusty "steed" (be it a tiger, unicorn, dragon, or mortar&pestle if you want to be Baba Yaga). coloured scarves/ribbons tied onto the mobility aid can mimic the hair/fur/mane & tail/s of your "steed" and googly eyes stuck on (if you have lights on your device, no need to do up a face: it "has one" already).
i always find dressing up makes me feel more secure & more confident: the visibility makes it safer for ME (i have low vision: if i stand out it means others see me coming when i can't perceive them, & it also makes me more "public" so that if anyone hassles me others will notice immediately. i am able-bodied but frail & often anxious, dissociative, or unaware of my surroundings. dressing up makes me feel as powerful as those i'm dressed as & it also heightens my visibility - it also tends to endear me to "the public" so people are more forgiving when i have to squint right-up-close or when i miss social cues. i know that most people restrict "costumes" for special events but, since my ventures outdoors are so few, when i go out i am almost always Dressed Up in SOME way or other.
if this isn't helpful at all, sorry! i do hope it at least gives you some ideas on tinkering/decorating your mobility aid/s that are so very essential to your wellbeing. anything that give you a bit of confidence, fun, or fancy when using it is something to delight in!
BOOM. Well done for speaking up. You don't ever have to ofc, it's not our responsibility to educate people. But I'm glad that you did. Hope you're not too scarred from the experience.
That's so brave that you waited, observed and spoke up. I'm sorry they were so mean and small minded.
Hello sunshine person. I would like to share an Afrikaans word with you. Sonskyn it means sunshine because your videos brighten my day.
Cool~ ill add the norwegian word Solskinn to the list🌞
In German it's Sonnenschein. ☉
In Dutch, zonneschijn :)
Italian is considerately less beautiful sounding, but it's "luce di sole"
Caroline oh Caroline I’m sure it’s beautiful when you say it! I’ve heard the most beautiful sounding word in the english language is “windowsill” which looks unpleasant but sounds lovely.
Love this video... also love how Claudia flips the chair off and you say you have never seen her that angry. That is adorably angry. 🙃
You should see if one of the companies that makes these chairs/scooters would like to sponsor your RUclips channel by donating you a free unit! They may not say yes, but it wouldn’t hurt to make some calls and give it a shot, lesser internet personalities have gotten stranger and more specific things out of sponsorships before.
This video inspired me to finally use my cane again, for the 15 min walk to the student center, instead of roughing it out. My legs and I thank you Jessica ❤️
I went through this process a few years back and went through pretty much every mobility shop in Central Scotland. By far the most professional and non pushy places that actually helped me and were extremely caring and informative were, Albion Mobility in Alloa, and Mobility Solutions in Glasgow. I was totally disgusted by some retailers who seemed to know very little about mobility issues or the equipment they were selling, all the while trying to Tell ME, what I needed, without bothering to ask me what my difficulties were!!!! So buyer beware, do your own research and do not let anyone force you into buying anything you don’t need. So I ended up getting my power chair from Albion ( who had their own resident Occupational Therapist ) and assisted with a funding application. I also got my Wheelchair Accesible Vehicle (WAV) through Motablity and Allied Mobility (the car part of Mobility Solutions).
You’re such a driving force for ending stigma.. You just don’t understand how much impact you have!
Loves ya 😍❤️
I have to admit you look very fashionable and cute on this scooter, and particularly in this pride outfit.
I hope that doesn't influence your decision to the worse.
Claude also looks great with this headband and the sleeveless shirt.
My wife and I went through this process last year. She's an ambulatory wheelchair user aswell. We ended up settling on a wheelchair called the forcemech: navigator. It folds flat in a few second and can be easily placed in a trunk. I recomend it to anyone looking for a powerchair.
I have a scooter because of my ME/Chronic fatigue syndrome. I can walk around in our house. Take short walks on a good day. Today it's a bad day. On the bed watching you. Your such a breath of fresh air. Beautiful, witty and honest.
The electric tricycle seems like the best overall option, can't wait to see you in it with the pups.
But it also comes with the large turning radius that gave her so much trouble on the scooter.
And you cannot put your feet on an even surface like you can do on the ground of a scooter.
A bike saddle is also not as comfortable to sit on as a wheelchair or scooter seat is.
IMHO the trike is a cool thing but only for exercise and not for attending events where you have a lot of "standing around" time.
Even though I have a power chair I actually really want one of these as well!
I don’t think she meant that as a primary choice. Just for fun.
I'm pretty sure that you still have to pedal some of the time too.
I was just kidding a bit. :) The trike has a lot of issues, it's probably giant and weighs a ton, wouldn't help at the airport or on public transit. But it's so dang cute, I had to encourage it.
I almost never feel disabled enough - even though I receive Disabled Student Allowance I always feel so embarrassed when I have to use a disabled loo because I have a mental disability not a physical one- I use disabled loos sometimes to stop myself from getting melt downs in public
*hug*
Well, then you obviously need it.
For any weird incidents, you could carry little cards that say "Yes, I have a disability, even though you don't see it and using this toilet makes things easier for me." So if somebody gives you shit for going on it, you just hand them the card and don't have to deal with them personally.
I can get claustrophobic very easy. And if the normal stalls are really tiny then I don't feel comfortable in them and so I go into the disability stall. Normally it's fine because there's not a high demand specifically for that stall and you only need to use it for a couple of minutes. I did have one lady very rudely remark on me using the disability stall though. Which makes her the a$$hole.
@@ebunni5862 Yes, I can imagine.
@@ebunni5862 it's a real problem at my school because there are *2* disabled toilets and only the kid in a wheelchair with a full time carer is supposed to use them. I have arthritis and often need to lever myself up but can't in a narrow, smoothsided stall.
@@emjenkins464 that's pretty awful. Do people not take your arthritis seriously?
Not gonna lie, I'm so ridiculously happy seeing other young people trying (and/or using) mobility aids-because, dang, I feel you. That aside, being a long haired lady myself, I'd be super interested in learning if one set of wheels or another was better or worse about getting tangled up with human and pup fluff, and which might be easier to clean up once they are all jammed up.
That tricycle at the end is adorable 😭❤️
Heads up if you are in the UK - You don't need a licence for the larger scooter, but you are supposed to register it with DVLA. Xx
It took me 4years to accept mobility help as I felt I was too young and wanted to be independent. Now use shop mobility regularly. It's helped so much
As someone who also has connective tissue/daily subluxations and dislocations I've been curious about these for a bit. especially if things get more clunky in my joints as time goes on. Right now I am in LOVE with my Ergobaum elbow/lofstrand crutches. They actually have shock absorbers and a really nice stability foot that has really cut down on my shoulder issues, wrist dislocations, and takes the weight off my hips and knees while getting around. They also have a flashlight and a horn built in, and you can get them in a bunch of colors (I got black because Cr*ple-punk aesthetic is my jam). I honestly cannot recommend them enough for fellow crutchies.
US websight: www.ergoactives.com/products/crutches
UK store: www.mytravelmobility.co.uk/ergobaum/
I feel you with the worry that people will think you're faking it. With both of my pregnancies I got to a point where my chronic back pain and fatigue were so bad that I HAD to use the crappy mobility scooters they offer at some supermarkets in order to shop. I got so many dirty looks and heard people talking out loud about how I was "taking resources from people who need it" that I felt absolutely awful about needing help.
Luckily my mom was with me often enough to tell them to stop being so judgmental and ableist. Bless her willingness to get into a fight with someone in order to defend her pregnant trans son's need for mobility aid.
Just wanted to say thank you for your videos and normalizing disability. I have mental health disabilities and chronic pain that often make my brain quite foggy and make it very difficult to concentrate. But because you can’t see them, people assume I’m just being dramatic or lying for attention. It stinks .(
I watched these videos in the wrong order, so when I came across a young woman with Downs syndrome riding one of those tricycles the other day, I instantly thought of you. Hers had a sort of handle in the back, so the person walking with her was able to move the bike a bit if necessary, like when she miscalculated how much she had to swerve to avoid me and my friend. I thought that was quite nifty.
Perhaps keep your crutches on the scooter, so it looks less "recreational"? Plus, then you have a backup aid for if the battery runs out on a hill again, or if you feel like walking around somewhere that has stairs. Just a thought.
You literally took the words out of my mouth about feeling embarrassed with having to use a mobility aid and i can partially walk. im 24 and im constantly worried about being judged even when i use my cane.
From context clues, I'm assuming a buggy is what I would call a stroller. What I mean when I say buggy is what I think you mean when you say trolly. Sometimes they are also called shopping carts here. Trollies are a type of streetcar. American vs British English, sometimes confusing, but fun.
As a 21 year old with mobility issues, migraines and nerve damage I genuinely appreciate you, your channel, and how much everyone around you cares! I often struggle to accept that I'm disabled and worry that I won't have a "normal" life, but every time I see you and how honest you are with your struggles you give me the motivation to keep trying and not sit in my pity puddle.
Much love and happy pride!
PS: you and your wife are absolutely gorgeous and I am so happy for you both!
I love me some rainbow, but I wouldn't say they make for the height of sophisticated fashion; but you managed to make it look classy! Your style is simply impeccable.
I'm glad you are helping dispel misconceptions around who uses mobility aids and why and how they might be used. In a perfect world, you'll have more than one mobility aid, to fit what you need at a given day (think: one usually has more than one pair of footwear for their mobility ... wellies and tennis shoes and slippers ... for a start) and situation. That said, there's not only cost, but also space considerations ... so it gets down to trying to find what would work in the most necessary circumstances in the least toss-it-into-the-road way ... Sigh.
My grandmother had all of these things, power chair, electric wheelchair, electric scooter. (Evidently the first two are different and that blew my mind.) she however, was pretty permanently bound to one. She could try to get in and out of cars, she could try to walk a few feet, but she needed to be in the chair a majority of the time.
If I had to guess which she used the most, it would be the power chair. It’s kindof a happy medium between the two. The model she had, had a charging cable actually attached to it and a place for you to store it in the chair. So while you’re sitting somewhere, you can plug it in, so your battery is always up.
In my country you go onto the bus by the back door/alighting door. The driver comes out, pulls the ramp out for you, you drive backwards, straight into a big empty parking spot meant for wheelchairs and mobility devices with no poles or anything to bang into. Then you tell the driver your stop, and when it's your stop he does the same, pulls the ramp out for you, and all you have to do is drive forward off the bus. No steering required :)
its easy to see how finding a proper mobility aid (or multiple mobility aids) that suit you can be an overwhelming and stressful task, even when the person making the purchase is NOT making a video about the experiences. i'm almost surprised that there haven't been more videos on this topic in particular since it's kind of A Huge Deal for anyone. they're expensive and can directly affect your options in day to day life, and it's wonderful that you're making a space to talk about this and bring light to it.
it's incredible seeing the commitment you've made, and the time and effort and thought you've put into finding what works best for you.
as someone whose executive functioning suffers somewhat severely at times (adhd + mental illnesses for myself [irrelevant but that's fine. we vibing.]), seeing you remain steadfast in your decision to continue searching for ways to improve your quality of life in the long term, despite feeling confused and frustrated and embarrassed in the moment, is something that is very much appreciated and taken to heart. it means a lot.
[rambling ending here, my apologies haha] as always, looking forward to see what you post next! 💜
I have EDS and use an E-motion wheelchair. It is a regular wheelchair with battery driven wheels. You still have to roll but the wheels but the battery helps with how much energy you need to use. Normal settings are 50 and 80%. So if you push on the drive wheels it gives them 50-80% more force/drive of how much you push. I hope that makes sense. My shoulders, right elbow and right wrist dislocate frequently, but When I use my E-motion it rarely happens. If you have a chassie that is foldable, then the chair can be put in the car boot. The down side is with the E-motion wheels and the chassie, it is quite heavy- 27 kilos. My husband can get my chair in and out by himself. They can be taken on trains, buses, etc but you have to be careful with the drive rings as they can be damaged if someone drops your chair or runs into the drive rings repeatedly. If you go with this option, make sure to have the anti-tip device down as you learn. Hope this helps.
I sometimes used a mobility scooter when I was suffering from a bone infection in my foot. I am 5’10” tall and was not used to being ignored while waiting on lines or reached over when trying to find my size in a store. People are rude! And they think you are mentally slow when you can’t walk? A woman actually reached over me to put her purchases in front of a clerk who was in the middle of checking out My purchases. My daughters said I should have stood up and intimidated her fight back!
I can definitely relate to worrying about looking too young for a mobility aid. Part of the reason I have rainbow stickers and unicorn plushies all over my walker is to wrench its aesthetic away from 'medical device' and toward 'cute gadget'.
I spent AGES choosing a scooter and it still doesn't do exactly what I wanted. Main thing I learned is there is NO such thing as a lightweight scooter. They are ALL heavy to lift by yourself. This really only matters if you want to take your scooter in the car or on the train, etc. If you just want a scooter to get around locally, then you just need to think about where you will keep it. There are several ways to manage the weight and finding the best way for you will probably be one of the main deciding factors for the kind you choose.
I wanted to be able to take my scooter on long train journeys, so looked at folding scooters. In the end I chose the remote controlled Monarch Smarti (also called the Solax Transformer) and apart from the weight problem, it is pretty fantastic. BUT I can't get it in and out of my car by myself because despite it being classed as lightweight, it's too heavy - and I have great upper body strength. Unfortunately my car is not suitable for a hoist either, so I can't take it with me on my own. I bought a spare battery and carry it on the back of the seat in case I need to change it.
At the moment I use it when I'm at the hospital or doctors, and if I'm going shopping in supermarkets or at retail parks. I can't change my car at the moment, but my next car will be one suitable for a hoist. Only then will my scooter give me the freedom and independence I really want!
Oh my, that retro style mobility scooter...you would look adorable on that but you are so smart to be trying out different options. It's a big decision.
I have knee and hip pain, look totally normal, but there are some days where I look like a drunk walking down the street. I'm debating whether to get a cane or not and that seems to be a huge enough decision for me!
I feel embarrassed, as well. Along with all of those reasons, I'm to young, they will think I'm faking, but, I also feel like being fat or plus sized that comments will be made.
You are absolutely gorgeous and shouldn't care about what ignorant people think. You don't have to prove anything to anyone and you bought that one, what you do with your money is your business, even if you were able bodied.
I've been looking into tricycles, too. I was absolutely worried about being to weak to use it, now that I know that they can be motorized, too, I'm thinking about them again. Hmmm I wonder if those can be rented out for testing
I feel very similar to to you and hate that people might think I need my scooter because I'm too fat, not because I have a disability (MS). It's hard enough to accept you need something for support.
Claudia just being done with the whole thing just made my evening.
theres this family in my town and they all have awesome mobility scooters and one of them (the dad) has speakers and disco lights on his its awesome
I don't have brain "damage" but I do have moderate-to-severe chronic mental health issues and your comments about guilt over your needs really hit home for me. ♥️
I’m 26 and I have Ehlers Danlos Syndrome Type 3:Hypermobility
I’m still getting use to needing all the braces I need. For the first time I went out in public with my wrist, and ankles both taped at the same time! In order to help me, I bought the pink tape and matched my outfit! Hahaha 😂
I really should use my braces more but I hate all the medical devices... I’m strange and try to coordinate them with my outfits lol. It’s quite hard when they always come in black!
I was able to buy the silver ring splints that look like jewelry though!
Hm, could you sew coverings for the braces? Like, from fancy fabric with decorations on them?
Johanna Geisel I wish. They’re Velcro. You don’t to have anything that slides of the arm because it’ll pop my joints out.
Weirdly I have different color RayBans so I’m just matching them to the color tapes I get. Haha
I always have my walking stick visible when I'm on my mobility scooter (usually poking out the basket) as I feel it almost legitimises my need for the scooter. I do think it's sad that I feel the need to do that though.
Also, when I applied for a pass to take it on the bus they actually brought an empty bus and parked it outside my flat so I could practice getting on and off which was so helpful. Shout out to West Yorkshire Metro! 😁🙌
I just love someone who spreads positivity❤️
I spent about 6 months accompanying my mom places while she was in a mobility scooter due to injury and I just want to say thank you!!! Thank you for normalizing disability and even making it cute as well! I am also so glad to have somebody acknowledge the fact that SOME PEOPLE WILL JUST STRAIGHT UP IGNORE YOU! I can't tell you how many times I had to walk up to people and repeatedly ask them to move so we could get through the one handicap accessible door. Maybe they were trying "not to see the disability" but I would so much rather have people "noticing" and being considerate than pretending like nothing was going on and making life more difficult for a someone that can't walk.
@age issue: For me, people using mobility scooters has become a very common sight. The notion, of a kind widely believed "nornal", that expects that mobility aids are exclusively used for old age related disabilities, is one, that no more exists. Where I live, and work (Hamburg, and a suburb) people of all ages, using all kinds of mobility aids, are a common site. On my bus commute of 22 to 29 minutes, the ramp for wheelchairs and mobility scooters goes down, at least one or two times, per tour. Often the driver doesn't have to do it, because one of the passengers already, gave it a hand. Nobody makes a fuss about it, because we are all so accustomed to it. I should mention, that this bus gets pretty crowded in the course of it's tour. So when there is one scooter, there are often one or two buggies...I remember a time, when people generally thought, mobility aids are something for old people. That was in my childhood. I am 57.
Claudia is a superhero with super strength. :-) oh my goodness, I love real electric tricycle.
I was literally just thinking about this series hoping a new episode would come out soon!
Best part was the trike at the end. I have a tricycle and I LOVE IT. mine’s orange but still cute. I take my Labrador for jogs. SO stable. ❤️❤️❤️
Thank you for your videos! You and others like you make disability less scary. I've started having joint pain of unknown origin in my knees that requires me to wear knee braces anytime I have to be standing for more than a few minutes. Thank you for helping to normalize mobility aids and just for being a lovely person 💜
You are too adorable and gorgeous to be worried about how the mobility device will look since you and yours (Miss Claudia) will fill whatever beauty gap may exist.
Protip for motorized scooters: the 3 wheeled ones have a tighter turning radius and maneuver better than the 4 wheeled ones! I've managed tight queues at amusement parks with a 3 wheeled design
British racing green is possibly the best green but I'm biased, it's my favourite green.
You and your wife are so cute together. Thank you for all you do to help others. 💙
Thank you for being so candid. You guys are such a beautiful couple, and weirdly it's really great to see the natural tension around getting a scooter, because of that independance/dependance factor.. And also, all the very understandable anxiety around getting yourself properly set up, and accepting your valid need for the right kind of support. Seeing you a bit frazzled makes me feel so much more OK about my occasional frazzles and frustrations about really important things to do with my mobility and dependance on other people when I can't donit myself. It's so understandable that it feels like a big deal, because it kind of is, and will have a major impact on your life. Thanks again for the genuineness, and not hiding the realities of being disabled, but still making it an understandable and approachable topic for allies
Your struggle to figure things out was mine and yes batteries are a thing! Also if it’s cold the batteries go out quicker ( normally you end up with 2/3 distance) tip though a warm place like a gas station or a coffee shop is your friend you might be able to thaw up the batteries to actually get home .
I have a medical issue that causes me extreme pain when I walk longer distances. I usually only use a mobility aid when my husband and I go to shopping malls and big box stores for groceries. I'm only 44, and I always feel guilty for using it, even if I'm having great issue even getting into the store, or can even barely walk after using the aid. I don't have any recommendations, I just wanted to empathize with the guilty feeling when using one.
Did... did a sea witch turn your fishtail into legs at the price of you being only able to walk with pain? Is your husband a prince?
The guilt of using mobility aids while young is one of those nasty things that society doesn't really help with.
If it helps though, I've been using mobility aids (mostly canes) since I was 16 and I'm nearly 20. I've been able to work physically demanding jobs but I still get a lot out of using mobility aids.
In the end if it helps manage your pain it's definitely worth it and I hope you find a system that works well for you!
@Liz I find it so hard to not feel guilty even though I I have no reason to think that way. Daftest thing is not one person has ever said anything unpleasant to me and yet I still think I know what they're really thinking lol!
@@johannageisel5390 Do you ever wonder if Hans knew someone with a chronic illness?
I'm 17 and recently diagnosed with pretty severe rheumatoid arthritis after being ignored and dismissed by male GPs for months. I get real imposter syndrome applying for anything, and it's not helped by the blue badge rejection and THE hospital's insistence that I'm not disabled, even though I need access to uni disability services when applying and will likely continue to
Elegance matters! My first walking stick was eye-opening in terms of I can do all the things now, but it was also ugly & medical and I never went anywhere with it. I got my new pretty walking stick and I'm making excuses to go out with it. It is worth the money to get something beautiful because then you will use it.
I have a foldable mobility scooter and it has literally changed me life. But I’m am also an ambulatory wheelchair user, so I’m okay with a smaller lighter scooter. I love it over a wheelchair because I can just park it and leave it in a place and it still makes it easy to go around shops in I want to. It’s also a lifesaver at an airport. And you get really used to it driving it through heavy crowds, especially with a smaller scooter because you can maneuver very quickly.
The only issue I have with it is my scooter is not made to sit in for a long time so it can be painful to sit in it in for a while.
And people do still give me weird looks when I get off of it or move my legs. A tsa agent ever asked me if “I really needed it”. So you know ableism still there.
They do make mobility scooters with a smaller turning radius, my dad and my aunt both had 4 wheel ones that they could easily take on the bus. The one you rented may need a new battery because if my 300lb dad could take his up and down multiple steep hills you should've had no problems.
Yes i bet the rental company aren't charging them correctly
How do you find mobility scooters with a smaller turning radius? It is the biggest problem I have with mine. Can’t get it in buses and generally can’t use it inside most places. It is very outdoor only which is a problem as my mobility is too poor to walk in shops and stuff too.
@@lotusflower474 my dad got his from the Veteran's Administration and I'm not sure how my aunt got her's and as she passed recently I can't ask her. I did go with her on the bus in Milwaukee several times and she had no problems so it may just be an issue of trying them out? I just know that they do exist.
I love those white shoes you have on, they are identical to an amazingly comfortable pair I have from M&S that I’ve had for about 6 years. One bonus of needing a power wheelchair is that you don’t wear down shoes and they forever look new!
I recently had to buy a mobility aid- I went with a scooter as I felt more stable in it and can use it outside and it feels easier to use.
I adore your videos and you are an inspiration xx
I weighed this up a lot when I changed from a scooter. I went for a more substantial powerchair that I use outdoors a lot but its ok indoors in most spaces. It's a pretty big chair but it's a good compromise between both
@@ixykix Do you take out in a car? Staying local gives you far more choice, but if you need to transport it then that can be a different kettle of fish.
I've run out of battery in a mobility scooter several times before so you're definitely not alone there 😁 They're really great when they don’t die on you, but I agree they can be a nightmare in smaller places like lifts or buses etc ❤
Never feel bad or worry, stress isn't good. I'm happy your alive and still with us enjoying life out n about🤗💫
Im 38 and have a type of adult onset muscular dystrophy and in all reality will need a walker and or scooter in probably another 10 years. Thank you for doing this video series!! So much to think about so many things to learn.
I, kinda feel the same way you do
"I can walk, basically an hour! And I'm only 21!" Even though
1. I injured my left knee, twice. And both my ankles
2. I, apparently used a walker when I was younger?
3. That's only on a "good day"
4. A lot of the places, I'd like to go to, are about an 1h+ walk. And that's both ways
4. I think there might be people younger than me, who need mobility aids
Thank you so much for making this! I’m 24, have HSD and suspected chronic fatigue and I’m looking for a mobility aid for the first time beyond my walking sticks. These videos are really useful and help me feel less alone ❤️
I am so grateful for my mobility scooter, as without it I'd never leave the house. I found my current one on Facebook, though would also recommend looking on Gumtree. Getting second hand ones is better for your first time as it's not quite as big an investment. The main issue I have with mine is that the battery is extremely heavy.
I would advise not to use Careco as they are cheap for a reason (found out the hard way).
In general most public transport in the UK does not allow mobility scooters on to them, so I'm surprised they let you on the bus in the first place. There are also different types of mobility scooter from big ones, to ones you can take apart to put into a car, and ones where you can fold them into a suitcase size for travel (these tend to be a lot more expensive). Also most similar in size to the one you're using have a maximum of 8-10 miles on one battery charge.
I totally feel both your pains! Having been the person pushing the scooter with automatic breaks for 45 minors minutes, whilst being the person who needed to be in it!
Keep up the fight (both of you)!
As someone with a brain injury I really related to you talking about swinging between everything is a lie to being far too trusting. I've never been able to put this into words and it's something I struggle with. Also when you talked about being overwhelmed and that it was okay and hopefully we can get through it together, I felt so much relief and realized I wish more people would understand that and say that to me. P.S. Your look for pride was amazing! Loved your bag and the stars you put on your face specifically but the whole outfit was a look!
Feelings are fine - you're human! While not being in the position of needing a mobility aid, I imagine that hearing about the emotional side as well as the practical could be very helpful for somebody.
The first minutes actually were therapeutic to ME. They made me feel a lot less stressed about my own "incredibly capable" "incredibly incapable" self.
"Yes, I did just write a sixteen-page paper on that one thing, did the legal work for my friend and am *also* completely unable to fix my own dinner or go outside without someone with me. 0v0 No, no it's *not* because I'm not 'trying hard enough'. Thanks, though, random person who probably thinks they're being helpful but is just making me self-loathe and -doubt."
Also, I'm so happy RUclips took me to this channel
1. I hope Claudia is good! I hope she's not still mad at the scooter!
2. Even though I am an able-bodied girl, from my perspective, please don't feel embarrassed to ride a mobility aid. I have learned a lot from your videos and wouldn't think twice about someone doing so. Anyone who cares doesn't matter. Do what's right for you.
3. Please don't feel nervous about posting your videos. All of your videos are always amazing and these are no different. I'm sure they are bringing lots of help to people and I find it fascinating and informative.
Thank you, always, for your love and support to others, your kindness and everything you do to help and inform the world. Your truly my favorite RUclipsr!
Loved the "One more thing!" at the end. The tricycle does look cool. I'm enjoying watching your journey and hope you find the best thing for your needs.
Girl I feel you 🤣🥰 I have a trike, not powered but I love it ❤️ I have balance issues and can’t use a regular bike and it make it so much better and if I need a break while riding I can just stop and sit without tipping over but make sure to get a new seat with more support and padding like a seat for plus size riders to help keep pressure off your tush 🤣
I am not disabled and have no reason to watch these videos. But your videos are so amazing, I can't help but watch! I appreciate your sunny and sarcastic disposition more than words can say!
Just want to let you know that I watch the ads on your channel all the way to the end because I understand that you need that to get paid properly. I only do that for a handful of channels. Love you so much!
Oof the shame that comes with using a mobility aid SO REAL! I used one in Disney World of all places when I was having a really rough pain day and the looks I got from people 🙄🙄🙄 just because I’m not “old” and I don’t “look” disabled...
I would just like to say that I regularly feel too young to use a mobility aid (I use a cane), but you inspired me to start using it and your videos and instagram give me so much confidence. It has made such a difference in my life.
In Warwickshire you need a bus pass to ride your scooter on and off the bus and you have to take a test to get the pass.
Same where I live x
That electric tricycle is fabulous!!!
Dear Jessica,
I wanted to let you know that I’m enjoying this series so much already, I’m learning along with you and I appreciate just how hard it must have been for you on so many levels to film all of this!
My wife and I have a mobility scooter that we share and we find it is hard to charge as we have to charge it outside because it’s too big to get into our home, and what with the blasted English weather...!
We can’t take it to many places because it doesn’t fold down so it won’t go in our car (despite it being a huge Honda CR-V!) There are a lot of pros and cons to weigh up and we are in the same boat as you, trying to figure out what is best for us and our situation (we both have chronic illnesses that makes our abilities fluctuate) and it’s just a big jumbled mess in our heads, we know we need something but it’s all so overwhelming!! So we know exactly how you feel approaching this, Jessica, and we wanted you to know that you’re not alone either. Thanks for all you do for the disabled community, and thank you again for making this terrific series!!
With warmest wishes,
Stacey (& Catie) xxx
(Also, 2 woofs for Walter & Tilly from our two dogs, Ria & Rolo 🐾)
This. Was. DARLING!
I love you two. I love that you can laugh at being able to list the kings of England while not being able to cross the road safely. I love when we can laugh at the absurdities of our various experiences in life.
I really appreciated the list of your feelings about the decision and how it is complex and fraught. Thank you for another lovely video, Lovely Person!
this video really resonated with me as i also only need to use a mobility aid quite regularly but still not all the time and i always feel bad about it even in days where i can barely stand without fainting so this video comforted me a lot and made my disability feel valid! thankyou for making this series as it could not have been made at a more perfect time for me as i’m also trying to find the perfect mobility aid for myself, i’ve rented a few powerchairs and i find them the best for me (especially because i can hold my girlfriends hand at the same time) but it also feels more comfortable as i have very long legs and i don’t fit into any of the cheap scooters! thankyou so much for making me feel so much better about myself and my disability with your videos💗
You’ve helped me so much, dealing with needing a mobility aid- like more than I can possibly explain. Nobody really knows what’s wrong with me yet but sometimes my legs stop working and I also have quite bad full body chronic pain so I started using a walking stick 2 years ago when I was 18, a year after that as I got worse still I got a cheap manual wheelchair for when a walking stick wasn’t enough and I use that now for longer outings, but because I am normally ambulatory - even seen as active of “fit”- or at least able to walk a little I felt so ashamed and like I was deceiving everyone when ever I used an aid- especially the chair, but you have helped me realise I’m not at fault or a bad person for needing aids sometimes and thanks to you I recently just posted pictures on my social media of me using a mobility aid ( the chair) for the first time ever 😁💜💜💜💜 thank you to the ends of the earth for being you and sharing it with us 💜💜💜💜
I like the trike option, or addition. You can pop off to the grocery store for lite shopping, use their scooter in store and then back.
I love my electric bike! I mean yes I have balance issues and I have fallen off the bike twice (well...more accurately, the bike tipped over with me on it...) but most of the time it's GREAT! I can ride like an able-bodied person! Hills are doable! IT'S SO ADORABLE. That electric trike is sweet. You'd have so much fun on it!
Honestly I’m freaking out about college stuff right now so this video is making me less wanting to die
I'm looking at the electric tricycle, too. I'm not quite to scooter/wheelchair yet, but I'm not driving just now, and walking can be a problem, especially with doing the shopping (even owning a folding cart), or getting my service dog enough exercise. However, they are incredibly expensive, and here in the US, not covered by insurance, as a scooter might be. You would look very nice on that racing green trike.
Do you know you still have to tread the tricycle? The battery is only helping you, not doing all the work. You can still get very tired legs.
First 5 min of the video: The normal human condition. After that, it was normal issues with electronics. My favorite lesson that I can contribute. If you are worried about the color or feel of the "medical feel" they make colored magnetic strips that attach to the metal. They are easy on and off and still have that snap of those kid bracelets that makes it fun to put on or take off. The other option is fabric with Velcro as covers. Those can be machine washable and can match your outfits.
Thank you so much for making this series, from another young, part-time mobility aid user who is also very overwhelmed by my options and has a lot of feelings!!