I've had a mobility scooter for the past 4 years. Here are my notes on it: - Chair quality matters, especially if you intend to use it for longer periods of time. It can really hurt if it's too hard or too soft. - Don't ever put a purse in the front basket, it will get snatched. I've seen it happen before. - Get some finger less gloves for the summer, but always have at least a pair of cheap gloves on the scooter since it can get pretty cold pretty quickly. - Same for scarves, my neck gets cold super quickly since I sit still while there is wind from moving. - Can't put anything even slightly heavy in the front basket since steering will become difficult. - Have a poncho or a scooter cape with you at all times, since you will get caught out in the rain. This would be perfect to keep in a front basket. - Keeping both arms on the steering wheel can help with the shoulder strain you get after driving a little bit. - Three wheeled ones have a much shorter turn but four wheeled ones are much more sturdy. - Get one with a quick release stop because people will jump in front of you thinking they can make it. And just letting go and it immediately stops can help with the stress of not bumping into rude people and not getting into an argument. - Get it from a shop with a repair service since it can be a pain in the ass to get it repaired if you didn't buy it from them. On the same note look into reviews, I got stuck with a scam artist who charged me three times more than quotes three times in a row. - Be careful with long flowy skirts and dresses they can get caught on things. Fold it over so you can sit on most of it when you wear them. Also they can blow up into your face if there is enough wind. - The slower scooters tend to also have shorter distance battery life. They do charge quicker though. - You can add some bike handle flowers to the front basket to make it more pleasant - Add extra lights to the steering wheel and the back, in the dark it can be difficult to be seen if you only have low lights and there are parked cars between you and the cars driving. - On the same note look into getting reflectors added to the sides too.
Mobility scooters are great but I feel like many warnings must be given to those considering buying/using them. 1) NEVER put anything valuable in the front basket unless that front basket is non removable and can be locked (some are and can and that's good). A handbag, purse, phone, etc, is a target for thieves who take advantage of the often less agile and mobile mobility scooter. For example, many scooters have wide turning circles so if someone takes something while going past you in the opposite direction, you may have to make a dreadfully slow 3 point turn to be able to come back the way you came and the way they're going. They'll also have a very easy time outrunning you for short distances or getting into narrow spaces or crowds. An open front basket is a very vulnerable spot so please don't risk anything in it that is valuable or hard to replace for any other reason. Those items should remain on your person, in a closable back bag/basket, or between your legs. 2) Beware wearing flowey skirts or lap blankets while on a scooter. They can get caught in the wheels and give you an awfully painful and deep friction burn. This problem in particular happened to my mother when she wore a skirt that was just a little too long and the hem cut quite deeply into her shin. Please be careful to avoid such things or find some way to secure any loose fabric such as pins, straps or clips to keep it well away from the wheels. 3) Be sure you know exactly what you are buying and who you are buying it from. Try to ride the scooter you will be buying before you buy it, not just a show floor version. Read reviews of sellers to make sure their products and customer service is up to par. If you have any slight concerns about the scooter, resolve them before paying. Make sure the seat doesn't wobble, that you can set the speed to something you're comfortable with, that you can change the height and position of the seat and anything else you may need to (including being able to turn the seat 90 degrees to easily sit down and stand up from it), that you know what sort of batteries it needs and what sort of charging they need (how often and for how long) and how soon you will need to replace them and how much that will cost, that you understand anything on the dashboard (buttons, knobs, lights, switches, all of it), what sorts of surfaces and hill angles the scooter can handle (many can only go up 5 degree hills and many hills are much steeper than that!), and that the accelerator (and brake, if there is one) are placed somewhere you can easily control them and that they are a type/shape you can work with even on your worst days. My mother was convinced to take a machine she wasn't satisfied with and has regretted it ever since. Don't let that be you. A mobility scooter is a wonderful thing that can give you great independence and joy IF you do your homework and take the correct precautions. If you instead get a scooter that cannot scale your own driveway or a hill leading to your house, it becomes a VERY expensive paperweight of regret. Be happy with something that meets your needs and don't let scooter salesmen (much like car salesmen) push you around. Good luck!
It's likely she's considered it, but pointing out the skirt thing is a great idea. I've ruined a (slightly too floofy) skirt just riding a standard bicycle before but with motors involved that becomes more than just aesthetically dangerous.
@@hollaatthekid1796 try out as many as you can. I had to. But I was 7 months pregnant at the time so I was kinda in a hurry lol luckily I've had no complaints really and my powerchair is still going strong 5 years later - it's a really stressful decision and if you're like me I tend to put off things like this and then it gets even more stressful
Okay, first of all, HELL YES to this series. Secondly, if hiking shops have rocks and stuff to test hiking boots, mobility aid shops should have hills and kerbs.
Hi, just thought I'd drop into the comments here, as part of Jessica's video was filmed in our Eastbourne showroom. We completely agree with you, which is why our newest showroom in Glasgow actually does have a test track for mobility scooters and powerchairs, featuring the kind of obstacles that you might encounter on a day out and about. It's been a successful addition to that store, so we're hoping to build test tracks in more CareCo showrooms in the future. Thanks! Joe - CareCo Social Media Team
I was in a car accident when I was 16 and I ended up with a very messed up knee. The doctors heavily suggested walking with a cane, which I did for a few months after I recovered and was out of my wheelchair - but being a teen, walking with a cane, in high-school - was scarring. I still haven't fully recovered from that social hell, and I usually refuse to walk with my cane even now. I know I still need it. Walking for a while can be draining on the light side or painful on the heavy side depending on where/how long/stairs etc. Its been 13 years. I think its time I just admit it and accept I need it and move on. Watching your videos has definitely helped me get to this place. Thank you so much for being an inspiration.
@@craftgrrl14 Oh those look cool! The problem is I definitely need one with a handle that has grip. I live in Canada and it gets cold, and gloves would slip right off those! When we first went looking, I did look at lion/dragon head canes (gotta have that fantasy kick lol), but I had a similar issue with grip. Blah! My current cane is black with a dark grey ergonomic grip and adjustable height peg thing. Very medical. At least it is black and not grey all the way through, but I definitely agree the "style" is one of the reasons I refused to use it.
I don't know if you've ever heard of Hannah Witton, but she made quite a few videos about her experience as a young person with a cane and how it affected and helped her! She had 2 very severe abdominal surgeries which left her with very little core strength and she explained how her cane really helped her feel more in control and independent.
@@musicismydrugxo8217 Thanks for the recommendation! I've seen a few of her videos, but I didn't know she had some on this topic. I'll make sure to watch them!
@@kalystamainville8022 The lovely lady who makes Neo-Walk canes is working on making grips for the canes actually. If you contact her via her website or Instagram she is always very sweet and takes custom requests
Carolyn Frankly Yupyup, although mine are to match whichever colour I’ve dyed my hair currently! Pink atm, blue sometimes and green or red at other times.
I found a pretty foldable blue cane that matches my hair and makes me feel pretty, and I've actually gotten some nice compliments on it. Still want more tho, especially some woodden canes 😍
The one thing that I would recommend is to look carefully if it has a wet, gel or dry battery. Most airplane companies will not allow a wet battery to travel on their plain (eg. Ryanair) so that is another thing to take in consideration. Also, if the battery is completely detachable it will go up to the plane with you instead of being placed in the hold of the aircraft, which tbh is much safer and I would rather have a completely removable battery. Good luck on your search!!
Lithium battery only for planes and cruise ships. And they usually go further esp since you can have two. Affordable wheelchair can fold up and fit into a special suitcase so it can't be damaged as easily. Airplanes damage these things a lot. Don't assume you will never be going anywhere. Also don't assume you'll always have help to get it in and out. A person with a bad back might be driving you and they can't help you. Good luck. Your scripts getting tangled in the wheels definitely made me afraid for you as I was watching you drive. I don't know how old this is but I'll go and look and see what you finally decided on and I agree wheelchairs make you look sick and scooters don't but wheelchairs go further and decent ones are foldable, none veey comfortable except the 400 pound chair you need a trailer on your car to take.
Since you already have a manual wheelchair (like me!), I highly recommend a Smart Drive. It is an attachable motor for manual wheelchairs and solves the problems of hills, carpets, and long distances. I adore mine. It has been exactly the solution I needed. It is very light, and if you can disassemble and reassemble a manual wheelchair, you can assemble such a chair with the added Smart Drive. I have weak arms and a great deal of pain, and am able to do this with minimal difficulty. It is very compact - it doesn't really add bulk to your existing manual wheelchair, and it fits wonderfully in a car. I can take public transportation with mine. It is also permitted as a carry-on luggage on airplanes, so if you make a habit of flying, it's a good option. The battery lasts foreverrrrr, too. It also works in a variety of weather conditions, and can handle the same terrain as an average manual wheelchair.
I've been dreaming about trying one of these for over a year - ironically, I can't get out easily to go and try it. However the more I hear and learn about them, the more I want one! It's really helpful to get personal recommendations like this. Thanks.
My wife has used a mobility scooter for nearly 20 years, and you won't regret buying one. When we visit a supermarket together, I push the trolley, but she will often go off to another part of the shop to choose things which she will either carry back to me on her lap or in the scooters basket. Something to be careful of from Claudia's point of view, or whoever will lift a scooter in and out of the car, is not to buy one that's too heavy, because MY back has certainly suffered from lifting scooters in and out of vehicles over a long period. Good luck with your search!
I wonder if Jessica has considered detachable motors for her manual chair! That'd solve the "can't go up or down hills" problem, and you can use them outdoors and indoors
She may have but when I looked into them they were roughly £2000! And you have to have a specific style of chair for them to fit so these reasons may have put her off as they did me!
Does anyone have experiences with the Firefly attachment? gb-livingspinal.glopalstore.com/handcycle/firefly-electric-handcycle/firefly-electric-handcycle-wheelchair-attachment-next-generation-2-0
@@Robin-mh5wb is it like cycling? Can you get either caliper or disc brakes? Is there a drive wheel that has disc brakes? I wonder. It would be good to have something that can control downhill speed with gearing and braking.
@@lupeyloops246 It would be great to have power assist that helps with braking! The Smart Drive doesn't, and most wheel attachments don't either. I think the Alber E-Motion brand has rollback protection (so you don't fall back down a hill you're trying to get up) and maybe also some braking assistance on the new version, but I don't know anyone who uses them. The Firefly attachment probably does have braking, though! And there are cheaper, manual handcycles that work just like pedaling a bike.
Yay Jessica! I'm so happy you're doing this! Even though I've been through this, it's nice to see someone else going through it because I felt sooo alone when I went mobility aid shopping and one place even turned me away by not serving me coz I looked too well(???!) ugh
Society isn't very welcoming to excepting that not all people who need mobility aids are elderly people. The day when I see a young woman on the cover of a leaflet advertising a mobility aid would be the day pigs fly
yes! I have arm and hand strength issues - scooters aren't good for this, but powerchairs solve this problem as the controller is at the end of the arm rest
I've been considering a scooter and this is a very good point I hadn't even thought of!!! I really struggle with driving because it involves holding my arms up to steer so now I'm wondering if I could handle that aspect or if it'd be too much. Thank you for pointing this out.
Also, you have to factor in the ability to squeeze. My grandma couldn't squeeze her fingers for very long. We ended up rigging the thing with hair rubberbands and scrunchies. Turns out that it's easier to let off a tension scrunchy than adding an additional cost for another specialized gadgetry.
My dad used a mobility scooter for 15 - 20 years, before having a power chair supplied. He used it everywhere, and took it in the car. Then again, he had a station wagon (estate wagon?) and an electric hoist so he could transport it himself for work. We were able to take it apart for a smaller vehicle, and it did go on an aeroplane once. The power chair was very fancy, and could recline, which was useful in later years as he would drop off to sleep at any time.
There are also manual wheelchairs with powered wheels! They work on a battery and assist you when pushing, so it doesn't cost as much energy. They're called E-Move Power Assist Wheels, I think
Irthe - with the power assist wheels the warranty is cancelled if you get them wet, and it rains a lot in Brighton! I have a smart drive and it broke after a couple of months and took TEN MONTHS to be repaired! It’s definitely a lot lighter than any other option and can be used in the rain. Overall I’m happy with it though and have a mounting bracket on both my indoor and outdoor wheelchairs so I get two power chairs for the cost of one (£5,000)! Don’t rule out something heavy, because a ramp to get it into your car boot would only cost a couple of hundred pounds and you would get something more sturdy.
Some insurance companies in the U.S. cover them, at least some. Or government has disability coverage as well. Not sure if the UK helps on cost, but it should, in some way.
I finally got my diagnosis!!!!!!! Took 4 years and a lot of freaking crying but yay! thank you for your videos! They really helped me feel less alone. 😊 EDS sucks 🤦
Congrats! It's oddly the most relieving and satisfying thing to get the diagnosis, and there are plenty of EDSers out there. I discovered a fellow zebra in a game!
That's a good idea! Potentially a fairly neutral color for the device itself, and devise a way to easily attach a style matching bow on it (could be clip-on, actual ribbon, or some twist-tie equivalent). Covers can have this same effect - I'm imagining something equivalent to the scarf-on-a-chair style used to fancy up chairs at weddings, but actual products probably exist.
I'm not a wheelchair user, but my dad is and has been ever since he was 15 (he's 70 now). His wheelchair is slightly different to anyone else's I have seen, but he has used it for a good two decades (I am only 20 I don't know how long he's had it) and it has suited his needs very well. He has a wheelchair in which the back folds down and the wheels come off so it can fit in a small car like a Polo. When he want's to go into town, he has an electric front wheel (think of the front of a motorbike) that clips into his wheelchair under his seat and raises the two front wheels off the ground. The battery can take him around 20 miles on one charge, and he speeds around at halfway between jogging and running speed. It is good with moderate hills, but up steeper hills he wither needs a run up or a helping push. The front wheel does create the need for a bigger car such as an estate, but it has been taken on family holidays and is allowed in oversized baggage (the battery has to go in cabin hold). This option is good for people who want the independence of being able to push themselves around the house and be compact enough to fit under the table to eat, but also gives the option to explore where you want to go, rather than get pushed around to where other people want to go, at a decent speed. I also feel like he is more comfortable as when he's got the front wheel on in public, as it is more like a motorbike so people don't feel the need as much to ask him if he needs any help.
It’s my dream to start a company making lovely versions of medical devices. Think wheelchairs/scooters that look sleek or elegant, compression socks that look like normal stockings and come in a big range of sizes, grab bars for the shower/bath that will blend with your decor... The issue of course being that entrepreneurship takes spoons I don’t have, and there’s also the little problem that I live in the US and if I quit my job I’d lose my excellent employer-sponsored health care. I saw someone with a foldable periwinkle mobility scooter awhile back and I still regret I didn’t ask what it was. I struggle with the idea of getting a scooter because I am sometimes quite easily able to walk around and even work out. I’m going to Disneyland with my family in a few months and I’ve convinced my mom to rent a scooter for us to share (switching off), but I get nervous thinking about rolling up in one and then bouncing off and into a ride. But the whole reason I’d have enough energy to bounce is that I didn’t spend it walking around and standing in line!!! The last time we went was 6 years ago and I was a lot better then than I am now...and I still remember laying in bed every night with my legs and feet and knees burning and THROBBING and I cannot do that again. I’m just worried and it sucks, because it shouldn’t be a problem.
Also if you are overweight people really stare because they think you're just being lazy. It's hard for me to walk in places like that to. I want to be able to keep going as long as I can. Go ahead and use one. Your trip will be alot more fun if you are not in so much pain.
Do the scooter for Disney. And go to the Guest Services area and get a disability card so that you can keep your party together when you ride the rides.
I make wheelchair seat covers with pretty fabric, because I love pretty things, and it makes me sad that this isn’t a bigger deal! My daughter’s wheelchair has a little bit of color, but it’s still mostly black.
Revisiting this to mention that I ended up buying a mobility scooter. I got a Triaxe Sport and it was a LOT of money but it was so easy to use in Disneyland. That and the DAS pass made Disney very doable. And I’ve used my scooter a good amount since. I spent some time decorating it (basically just reupholstered the seat and added a huge wicker basket to the front) and it looks very cute if I do say so myself. I AGONIZED over buying a scooter and which one to buy, and I’m so glad I went with the Triaxe.
I,love how your need for a mobility aid doesn't phase Claudia she has your back. Keep,doing you Jessie and another topic that's informative.Claudia's, editing is sick!!
I've a powerchair that folds up like a buggy and its amazing!! Regained so much because that thing! Plastered it with stickers to help take away the 'hospital-y' feeling. Good luck in your search
I have seen someone fit a power chair into the back of a normal station wagon - the seat etc. folded down and then they used a ramp to drive it into the back of the wagon and off they went!
A neighbor has a very high power motorized chair, and has actually rigged up a little wagon that he tows to take his three kids to school! In the winter they enclose the wagon with clear plastic and decorate it with fairy lights. He uses the bike lane that most of the neighborhood streets have.
Ms. Jessica! I am a 46-year-old lady who accidentally stumbled upon your RUclips channel in the actual middle of the night when I was voraciously devouring tutorials on how to self-correct a persistent pelvic upslip (you can! It's painful!). And then there you were, speaking with eloquent realism about living with disabilities, dietary restrictions, and DEVIANT SEXUALITY (that's preposterous, of course, but thought it would be fun to type and it really was). You are absolutely magnificent. I know you're all the things you've been adulated for: brave, optimistic, strong...they're all absolutely true. But you're so fucking smart. You take such a complex and nettlesome subjects and make them not just understandable, but relatable. It's gorgeous, foremost, but offers a clarity of description that illuminates your experience and the human experience, at the same time. I don't have the same illnesses as you, but I sincerely better understand the things I DO have because of you. And I also feel as though I better understand other folks, as well, for your perspective. Plus, terrific vintage fashion, which is just a very nice bonus. I've suffered from mysterious illnesses for the last three years. I'm happy to elaborate granularly, but will refrain in this forum. This is relevant to this missive for only one reason: in the course of divining treatment for the most vexing of my issues, Sacroiliac Joint Dysfunction, I've landed on a treatment that you've undoubtedly already heard about, but I would feel remiss were I not to mention. It's called prolotherapy, and many many folks with Ehlers Danlos (which seems related to your more complex illness) rely on it, as well as PRP (Protein-Rich Plasma) to help stave off pain and loss of mobility due to joint laxity and degeneration. I wanted you to have that resource, on the off chance that it was useful to you. Because you deserve all the good things, piled up with fluffy bows. I know that's not how things work, and our goodness does not protect us, nor earn us big fluffy bows, necessarily. But I wish it, nonetheless. Thank you so much for all you do. It matters so much. PS: I have been on a low FODMAP diet for three years and after years of mastadon flesh, am similarly enamored of sweet potatoes (SWEET MERCIFUL HEAVENS). Related, I once sent an email to my nutritionist with the subject: HAVE YOU EVER TRIED RICE WHY ISN'T THIS THE ONLY THING EVERYONE IS EATING ALL THE TIME because I'd started eating a tablespoon of white rice with every meal and it was transcendent. (It still is.) If I thought it would translate well, I'd get a tattoo of rice on my forearm, so deep is my affection.
I adore your side eye moments. People really do get weird when you stand up out of your wheelchair. (Mine is bright pink.) I luckily can drive and have a strong 12 year old boy to help me push. I really wish I had been able to get the push extender for my chair though. Brighton is indeed just one big hill.
I really enjoyed the conversation about what you wanted it for. I am the opposite. I wanted a chair for taking my kids to museums and events. I drive to where I am going. It sounds like you need other things. (You have my sympathies on the accessibility of Brighton. I haven't been in 5 years but I remember.)
Jessica, have a look at max mobility and the smartdrive mx2, it would just attach to you normal wheelchair and do all the heavy work up hills for you (and on the flat pavement as well!). From what I could tell they are available internationally.
I feel exactly like you do when it comes to admitting I need a mobility aid at my "young" age. I want to be able to go on "walks" with my young family. I think people might wander why I've borrowed my mother-in-law's scooter when it's actually mine but I don't want to be held back by my illness when I could be out there enjoying things with my family instead of just watching them.
Really looking forward to this series! This is definitely a conversation that people don’t think about until they really really need it. The scooter certainly seems to fit your needs better! I hope you find a device you feel comfortable and happy with!!
Personally, I have a manual wheelchair that goes in the car, and it works really well for most of my destinations, as generally they're just a short distance outside on uneven ground and then going inside where it's flat. I do have strong arms though, so although this works well for me, I can see it being a different story for you. I also rent an electric scooter through the Motability scheme, which is great for going out near home. It definitely couldn't fit in the car, but it's very sturdy and I feel safe going on uneven ground on it, including grass. It can go up to 8mph, which is very fun, and my greyhound loves trotting alongside it when we go out together, and I can also go to a shop and back within half an hour, which is great for energy conservation and it not feeling like a big deal to pop out.
This is so helpful! I use a walking stick around my home but need the use of a wheelchair when going out. I finally got sick of being stuck in the house and ordered a wheelchair but it didn't stop me from being sad about it. It's made a big difference in my life but I'm not able to self propel for long so need someone with me if I go out. I've consider a scooter but have alot of the same fears/concerns as you. This series is going to be so informative. It's difficult excepting that it's come to the point in our lives that we need aids that society sees are for the elderly, but I try to focus on the positives that using them improves my quality of life and that's what's important. Thank you for putting out such great content.
Colors Do matter, and so do your pets!! I LOVE this video, because "just because you need a mobility aid" doesn't mean you can't have a bit of fun (personal preferences) with the options available to you!
Powerchair allows you to travel depending on the batteries and you can use ramp to get over the curbs, also get a joystick powerchair because keeping the handle in on the scooters to make them go hurts like f and if you have a bad day....also see if you can get one where you can change hands that makes a huge difference! Also you can get really good seat pillows for the powerchair both for back and seat. The chairs can also have electrical looks and also you can stick the joystick in your bag.
My grandfather had a stroke and was paralyzed on his right side, he had a motorized wheelchair since he had limited movement in his arms. It was so important to him to have freedom within the house and buildings by having something that was narrow enough to fit through doorways. They just got a lift for the back of the car to place the wheelchair on since it couldn't fold up. It worked out well for them. It would raise and lower at the touch of a button and he would just drive right on to it at ground level. The lift also folds flat against your car while you're not using it. I think that could be a great solution to your hang ups with this decision. That way you can get something sturdier that you never even have to worry about lifting or folding!
This website talks about the different styles of lifts for cars. There are lots to choose from: www.themobilityresource.com/adaptive-driving-equipment/scooter-lifts/ I hope this is helpful information!
RachaelAmber 22 my service dog provides mobility assistance (among other things). I have hEDS so my joints don’t like to stay in place or work as they should.
Service dogs are capable of so many things! I'm in the process of getting one and a part of what he'll provide for me is mobility work on top of medical alert and psych tasks. :)
Yes agreed.. Service/assistance animals are classed as axhiliary aids in the UK regardless of there tasks :) I know in amaerica its different but that's what it's like in the UK
I have heds and have an auxiliary aid assistance dog called Loki. He helps me with many things as does my powered wheelchair. I would never be able to us a scooter because I can't hold my arms up for long and I can go more places with an electric wheelchair.
The way you said "They're designed to fulfill a medical purpose" at 5:54 is peak British. Best of luck in finding your mobility aid! I'll watch this series (and the rest of your videos, of course) with interest.
Hello Jess you are a huge help you help me cope when I feel depressed. The thing is my hearing is getting worse and sometimes my family and I fight because I can't always hear them. So thank you, because when I feel very down I watch your videos. Oh my age also makes it difficult because I'm 20 and I'm studying and my deafness makes me want to loose hope. So thanks for being a ray of sunshine.
I understand you! My hearing has never been great, but it took a dip last year when I was 21! It’s hard having hearing issues so young and I often feel like no one (especially not my family) takes me seriously because of my age
Get your hearing tested and show your family the results. Check out hearing aids- they make the kind that is all inside your ear and hardly noticeable. It will help lessen the conflict and you will feel better. I used to be an interpreter for the deaf. It’s better to wear hearing aids than miss out on social aspects of life.
My goodness! What quality content this is! It's so informative and helpful for me trying to help my disabled and aging mom chose something that is right for her! I'm sure so many other people are also benifiting from this informative series! ... Do you feel better about finally getting the damn chair yet? Cause you've helped so many, and you needed this so badly. Don't beat yourself up.
It always puts a smile on my face when I see a new Jessica video notice in my email. I fall a lot, and use a walking stick. Since I'm trying to maintain muscle tone, and some semblance of fitness, I'm looking at an adult 3 wheel bicycle with an electric kit. That way I can pedal as much as I can, and switch to the electric when I need the help. Another benefit is they tend to have a large basket on the back behind the seat for packages, like groceries. They cannot be used indoors, but can be used wherever a bicycle can. Plus, with the electric, my service dog can get a good workout at a faster speed than I can walk. The cost is around $1000USD, which is beyond my means right now, but once our annual health insurance scheme turns over in January, I'll speak to my doctor about it. I thought you looked quite fashionable on the red scooter, and more secure. I'll be watching to see the future videos.
Something to consider since you've talked about wanting to be a mom is the steering. Can you steer 1 handed while holding your little one? You could wear the baby in a carrier to steer with both hands but as the baby grows that may not be as comfortable.
I immediately had to think about my dad. As he is getting older he can't really walk anymore outside the flat, so he bought an electric wheelchair last year. He seems really happy with it but unfortunately it's an German firm. But I saw at their website, that shipping is possible in other EU country's (so there is a little bit time left😉). Really great facts: the wheelchair is easily collapsible and fits on the trunk of the car (it even fits on the backseat of the car), it only weights 19 Kg, you can drive up to 6km/h and it's really comfortable. There is also an anti-theft system, so you could park it outside. The website is only in German, but if you are interested on the wheelchair you should definitely write them an email. And if you need any help on translating I'll be happy to help you. Lovely video by the way :) My dad has the movingstar 101, but the 100 is pretty similar and a bit cheaper. www.moving-star.de/movingstar-kaufen?gclid=Cj0KCQjwr-_tBRCMARIsAN413WSgqJ9fChkOHGiP4U9xbnLuAohtR4SU5jbxixSkm2tjS65dJ87fEYkaAiHkEALw_wcB
As someone with Synesthesia and an obsessive compulsive need to colour code literally everything, I felt 3:16 in my soul! Yes. Yes, colours are important. My life literally can not function properly without colours. And that's something I've been thinking of a lot in terms of mobility aids. On that topic though, this video, and the series it's starting, is an absolute blessing! I've been meaning to look into getting a chair or a scooter myself, because I've had to accept that I can't walk for long distances before the pain makes me collapse. I borrowed a wheelchair for a short period and it was absolutely life changing in every way! It definitely confirmed that this was something I need in my life, as my cane just isn't enough when I'm out and about for longer periods. But if I'm going to get one, what, exactly, should I be getting? That's something I've yet to wrap my head around, so definitely looking forward to seeing the rest of these videos to hopefully get some tips. ^^
I opted for the powerchair for a couple of reasons: 1. I don't have to have special permits to ride the bus/train, 2. I can actually ride the bus/train myself (like a real person), 3. I use the same chair for both pavement and inside shops/pubs/etc. But mostly because the powerchair gives me more freedom than the scooter. I am free to go to more places, I am free to do more things on my own, I also find that I get less..........resistance.... from the walking-types when I am in this powerchair (looks like a hospital version) than when I used the captain's chair version that was cheaper. Yeah, it's clinical-looking but there is fabric, yarn, and a myriad of other ways to decorate or even disguise the tacky if that is what one desires. Speaking of cost/expense, yes, I spent about £2000 on my chair. We saved for a long time and several ebay chairs died valiant deaths in service whilst we were saving. I paid for the extra battery life, horsepower, and mileage so that I could make my trips to Brighton and Bournemouth without worry.....and I had a very enjoyable holiday in Brighton without finding myself in the street because my chariot lacked the horsepower to stay on course on steep inclines/declines. It's truly been worth every penny I spent it for peace of mind alone. I paid for the kurb climber so that I can get into the local shops, etc that have stoops too short for a ramp but too tall for my wheelchairs. It's been worth every penny for me to be able to go with the social group to places I was previously unable to enter because of the entrances. Mine cannot be disassembled to be put into a car boot. I don't drive and being a woman of......... er............. uhm........ um..............great substance (yeah, we'll go with that), I was not entirely comfortable with the stability of the take-apart versions (that is MY feelings of safety, not a statement that they are less stable or more dangerous.) Chair seats must be comfortable, cushions can be purchased/made to improve seat quality as well as add style and flair. I keep my handbag buckled into my safety belt and either in my lap or beside me in the seat. I have a rucksack-type bag attached to the back of my chair in which I can put the loot from my trips to the shops, and the cashiers are usually very helpful at loading it for me (sometimes a bit TOO helpful, LOL) Colour most certainly matters! I chose a sparkly dirt brown colour because...........dirt is a thing and I don't want to have to scrub down my chair every time it gets used but I wanted sparkly because..........bling is always important. I am also currently working on other items to make it more............me (I'm the weird crochet/knit/quilt lady and I ROCK it!) A little bit of the adventurous and a crap tonne of hours on Pintrest is all that is required to make your chariot truly your own. Good luck finding the perfect chariot for you. I know it's hard to admit you are to the place where it is no longer a luxury but a necessity, and I am confident you will find it improves the quality of your life immensely......no matter which way you go. :) It took me a while to admit I had reached the point I needed it, once I embraced it I discovered I LOVE my chair. I truly do. I honestly hope you find similar freedom and joy with your mobility aid.
This came at the perfect time for me! The wheelchair rep is coming to my house this week to fit me and we are deciding between a manual with motorized accessories, or an electric wheelchair. Fun stuff! But very confusing when you’ve never gone down this path before. I have tethered spinal cord syndrome and am no longer a candidate for surgery, so the less time I spend standing and walking, the better my legs and back are! I am excited to finally get the aids I need. Thank you for this series. You rock
Claudia is very intuitive when it comes to disability. Like, I know she's been with you for a long time but a lot of able bodied people never seem to "get it" as much as she does, or put as much thought into it as she does. It was nice to see.
The bit in the car before the showroom where the frame cuts off most of your dress REALLY makes you look like Ariel. You're gorgeous! And I'm glad you're taking this step for yourself :)
😂 I've never met another wheelie who also struggles with using a mobility device for clashing with their clothes. So when i designed my TiLite TRA, i wanted it to be white and black, and i got a pop of colour on the casters, so that, if it clashes, it is much more subtle. ✨ you brighten my life. I have #ehlersdanlossyndrome, POTS, Narcolepsy, and hearing impairment.
I am seriously considering getting multiple sets of coloured push rim covers so I can change the colour of my otherwise jet black manual wheelchair. I have some blue ones I got off ebay but am thinking of getting a lime green pair too and then confusing people when I swap them out or go half and half kind of like odd socks :)
Brilliant idea for this series, Jessica. I have no doubt that countless people will be helped by the information you gather & share. I am looking forward to the next 3 episodes. My opinion, for you, I feel the Mobility Scooter is the choice. It allows for slightly more freedom of travel, especially out & about. Honestly though, whichever is most comfortable and useful to you is the best choice ... and the most fashionable color, of course. After all, "Colors are important, people!". LOL!!! 🤣🤣 Thanks again for this video, Jessica. Highly anticipating the next one. Take care! Lovely as always 👍🤟💝
I’m also chronically ill and I’ve been using a mobility scooter on and off for the past year. It’s been super helpful compared to walking with a cane... but since the mobility scooter is very long (plus the basket if you use it), it’s difficult to navigate doorways, any room with furniture, etc. Makes me wish I could afford a motorized chair instead. Much more compact!! Also, no matter which one you choose, be sure to get a big enough battery. The first mobility scooter I rented (long story) couldn’t even get up a little hill since the battery wasn’t powerful enough! Plus a larger battery means you charge it less, so it’s NBD if you forget to charge it right away (great for memory loss) 😊 Hope this helped someone! 💕 #BabeWithAMobilityAid
I love that you're doing this series, and I'll be watching (and sharing) every part of it 😊 I haven't used a mobility scooter or electric wheelchair, but the one thing that did come to mind is: please do your research before taking it on a plane! I've heard a lot of horror stories (particularly from the US) of wheelchairs being damaged by airlines, and disabled people being left with $100s or $1000s of damage (and even injuries from the damage) and no compensation. I think the UK has some clearer rules that make airlines responsible for compensating you if they damage your mobility aid, but 1) that could be a very difficult and stressful process, and 2) you'd still be without your mobility aid while waiting for repairs or a replacement, so in some cases it might not be worth it.
I often need a cane, and sometimes need a rollater (the walker with a seat), but I have to take the rollater out of the car myself, which sometimes doesn't feel worth the benefit as it hurts my back to take it out.
So incredibly helpful! It's very rare to find reviews such as these. You made it so personal and funny that it reduces one's fear of researching mobility aids. You really are a gem!
Thank you for this. I’m going through similar thoughts, but I’ve just ordered a manual wheelchair. TIP: you can get VAT relief if you sign a form listing your condition
When I was I ill,someone suggested to me to use a scooter and even though I had severe anaemia that meant I had to have blood transfusions I still felt I was too able bodied in hindsight I wish I used the scooter rather than suffered! I agree with Claudia there definitely is a perception of scooters like you I wear vintage dresses and I felt like I couldn’t wear those clothes and ride a scooter because people wouldn’t believe I was ill because I didn’t “look” ill!
first of all, whatever you choose, you have to be comfortable! that said, a powerchair seems more practical to me as it can be used both inside and outside, can go on public transport, better agility, more customisation options re seat etc. I hope you will find the right one for you! very interesting series, glad you felt able to share this!
I'm excited for you to finally be taking care of yourself in this way! One thought I had was regarding color, I'm wondering if you could take your chair or scooter to a car garage and have them custom paint it for you? Have a mechanic take it apart, paint the metal bits, and reassemble it for you?
I have both a power chair and a mobility scooter. My power chair comes apart and can go on the back of the car HOWEVER its ridiculously heavy, it does not feel sturdy and struggles even on some drop kerbs. Only really comfy on flat surfaces, no where to have your bag accessible to you. I would recommend a mobility scooter, the bigger the better too! They are comfy, sturdier, go up and down hills, go in shops with no problems and it goes so far on one charge. It has a basket so you can have your bag and shopping, i have a hook for shopping bags, stick holders and a cup holder! I've never had issues on my scooter and i couldn't imagine my life without it now, it really did change my life. Id suggest a foldable scooter for the car and a big comfy scooter for trips straight from home. Good luck and enjoy your new found freedom!
So I work in a museum and often we have patrons come in with mobility issues or an injury (on crutches or in a boot). The museum is quite large with gardens and such so we have a sign that says we offer mobility scooters upon request. Also, with the models we have, they just run on car batteries so we have shelves of batteries that we can just pop in. And we use standard bike locks to prevent theft. But we did have a basket pinched once.
If the front basket it removable chances are someone will just take it, and they are difficult/expensive to replace, but if it doesn't look removable then people tend to leave it be. If it needs a key to turn on somewhere down the road the key will break in the lock (currently watching a friend go through this problem of 'do I pay for a new scooter? or pay to have the lock redrilled and a replacement key?'). Please check if it can handle hard turns well, my grandfather didn't do this and he would make sharp turns and tip the whole chair over, this was a frequent occurrence with him. Find a company who repairs the mobility aid, I was very fortunate that my childhood hospital had a company on-site that continues to work with me now that I have aged out of that hospital, they will replace everything from worn wheel treads to whole nuts, bolts, and parts, and if the aid doesn't come with a basket or bag they can recommend ones that will fit. Don't forget to plug the mobility aid in at night, having it die in the middle of a store, or road in the middle of nowhere was not fun, and pushing it home was less so. Finally, make sure that the aid can actually reverse, above mentioned friend who broke their scooter is using a temp scooter that cant reverse and they have to try to push themselves backward with their legs, especially in small spaces its difficult for them.
Thank you for making this it's so important. When first diagnosed I thought you could only get a mobility aid through motability. Got ripped off with a £3000 weigh a ton, virtually useless 3 wheel scooter. Thanks Jessica this will help lots of people 💖
A previous tenant in my apartment had a motorized chair (not sure what type specifically) that was so heavy that the older elevator would sink a little and the floors would no longer line up and she'd have trouble exiting it
I do not need a mobility aid or know anyone who does, but I enjoy watching your videos and being educated about disabilities (or in this case, disability aids) and options. Thank you for your videos, cheers from Croatia 😊
I clicked fast I know everyone comments this But I really love your videos you are always so happy and somehow you are one of those amazing people whose happiness is contagious When ever I watch your videos I’m happy even if I have had the worst day P.S Also you always look amazing
My mom has breathing issues and has one very similar to the red Go Go Elite. It works really well. We’ve taken it on dirt paths and as long as it’s not muddy it does just fine. Goes up and down hills with no problem. She’s never felt out of control while on hills. Using it on a sidewalk is great. It doesn’t feel flimsy at all. We live in DC and go to museums quite often. She’s never had any issues with using it in museums. It steers easy and has a pretty tight turning radius. The basket has a surprising amount of room and she was able to put her oxygen tank between her feet comfortably. Once you get the hang of taking it apart and putting it back together it really takes no time at all. The only part you might have an issue with is the battery portion as that is fairly heavy. Everything else is pretty manageable. It’s been a lifesaver for her as now she can join us in our adventures instead of staying home. Also, she doesn’t get side eye from people when she stands up. I think the scooter makes it obvious to people that the person does have some mobility rather than a wheelchair which I think people would assume you have no mobility. When my mom wanted to go into shops that were small and cramped or not wheelchair accessible, it wasn’t a problem. She would just park it outside the shop. Kind of like what you would do with a baby stroller (pram?). Also, I agree with everything you and Claudia said in the car at the end. You’ve got it exactly right.
I use a power wheelchair and yeah they're hard to tip but steep hills make me very nervous. I typically use a tilt function to compensate but even then it can't go everywhere, hills are a huge inconvenience
Loved the conversation on the way home(or wherever) public perception is not a factor that should matter but yet it's still one to be mindful of. At the end of the day what works best for you is what matters and I appreciate you educating people in an area we are not familiar, good luck on your search!🤗
I'm writing from the US, so keep that in mind. I have Multiple Sclerosis and have a Pride Victory 3 wheeled scooter I use at home. The 3 wheeled scooter has a better turning radius than the 4 wheeled. I was on vacation this summer and didn't want to risk the airline damaging my scooter to I rented one and it weas the Go Go version you tried. I liked it. It was relatively easy to take apart and reassemble. I believe it has about a 13 mile charge on it. As for a power chair, in the US, insurance will only cover a mobility device once every 5 years. My neurologist said that my next device needs to be a chair because insurance will cover modifications, but they won't on a scooter. From the sounds of it, like with my MS, your disease may worsen over time, so consider whether or not you may need to make changes in the near future. Of course, check with your insurance to see what will and will not be covered. I say, if you like the Go Go, go for it. I think it's a solid choice for your situation. Hope this helps. P.S. I hope to reach out to you on Instagram soon as I think we have much in common. Cheers!
You really are an inspiration, I know you were feeling nervous about this video but thank you so much! No matter what the subject, you always bring such joy 💕
OMG. I’m totally binge watching this whole series. Glad you shared this with the world. These are the types of videos people need to see.... people with disabilities as consumers who choose accommodations that meet their needs on various levels. I especially like how you make it ok to consider needs like how it looks and how it makes you feel. One shouldn’t feel that they have to “take what is offered and like it.”
I an Electric wheelchair and I had it since I was 5 and now 13 PS if you need a adjustment the NHS(Doesn’t listen to you unless you Can’t get into your wheelchair) Strongly recommend a power chair please feel fee to reply.
You’re such an inspiration, not because of your disabilities (different abilities?) and your ability to overcome them, but because of your natural born ability to make people feel comfortable and loved.. Through a screen. I’ve dealt with my own problems for a while, mentally for the most part, and GUUURL, when I watch your videos, I realise how small my issues are in the greater scheme of things, because of your bright and cheery view of the world, but also a realistic one. Keep being spectacular ❤️
I CAN NOT THANK YOU ENOUGH!!!! I'm disabled & more or less housebound when my hubby is at work. My quality of life would really improve if I invested in some kind of motorised mobility aid but just like you am daunted by such a big financial investment and making the wrong decision. Will your series touch on being able to take these aids on & off trains? I really enjoyed this video and am looking forward to the others to come. Again, Thank you!xxx
You should definitely look into Alber's E-Fix. They turn a manual wheelchair into a power wheelchair with a joystick so they and the wheelchair will also fit in any car.
I am glad you are doing this. As someone who sometimes needs a cane and sometimes doesn't, it took me a while to accept that this is how it is and to just get used to having a folding cane in my bag. I had to look for one that was light enough to carry around (so I won't be tempted to leave it at home or leave ME at home), and folded small enough to fit into a regular purse (so I won't be tempted to leave the cane at home or leave ME at home ...), and that was pretty enough for me to look at (i.e. I get the 'not look medical' thing). It was worth the search, and I've had this cane for years and years now, and I'm not sorry for one moment that I'd gotten it, even though it cost four times as much as a regular (medical ucky unfoldy) cane. Now, I know that a cane is not the same as a motorized chair/scooter/thing, but the concept is: take your time, look for what you think would work and the things that matter most (it seems - portability and stability?), and you'll see that you'll find a way for it to work out. Life's too short to not be able to do what you want to do 'just' because of pain and fatigue. If there's a mobility aid that can help with one or both, go for it! You're worth it. Life's worth it.
Ive had to start looking at get a wheelchair and was trying to decide between the two so I totally understand where you are coming from, I still haven't figured out what is best for me. If you read this here are a bunch of things I found out that is actually helpful to know when looking that often people don't tell you until its too late! 1. There is no chair or scooter that will work in all situations. Best to work on the most common or important thing you want to be able to achieve and focus on that. 2. If you have PIP in the UK Motability is a good way to get a very expensive piece of much needed kit in an affordable way but make sure you do it through a shop so you get the right thing for your needs. Also if you have the chair or scooter but not the right size car to fit it in then motability can also help you out. BUT the very important thing they won't tell you on the website or anywhere clearly with motability is you can only get a chair/scooter OR a car. Not help with both. Which can put a real spanner in the works when you are realising you do really need both!! 3. take a 1/3 off the mileage that a chair or scooter claims to have. That is based on no incline, in a lab, on a treadmill. In real world the power needed to cover inclines and everything else really does sap the power. 4.Think about insurance for scooters and wheelchairs its important and not something that gets mentioned often. 5. with power chairs in stability is important look at mid-wheel drive chairs they are the most stable and cope best with lumpy bumpy pathways. 6.think about accessories these costs often get forgotten and add up - seat pads to stop pain and sores from prolonged sitting, a spare battery pack is something no one thinks about. 7. Try it outside and inside, on inclines and flat spaces everywhere and anywhere you are allowed for an minimum of 20 mins to really get a proper feel for it. Hope some of this is helpful to you or other out there. Its a tough thing to decide on when you feel like your independence depends on it, in the end go with what feels right for you and don't let sales reps talk you into something you aren't sure about.
Issue with motability too is the car can only be used for the disabled persons needs so it couldn't be the family car. Claude would still need her own car so they'd be funding two cars and a wheelchair to go in the car. lol I have powerchair from motability. A custom Q700m which is way better than what NHS can offer. Downside is chair needs adapted car but least it comfy to use on public transport. Portable powerchairs shake you round like a bag of spanners.
(apologies,it won't allow editing on mobile) we have a van from motability that can take 3 passengers,not including the wheelchairs,though it's a very large hassle to park.
I use a mobility scooter that can fit in the car, it's a little bit heavy but when you break it down to it's 3 components it's quite manageable. I love the fact that I can keep up with my husband when we go to the shops and it gives me the freedom to go off on my own.❤️🇦🇺
I love how your dog co-ordinates with you. Also I'm sure you can find some vintage accessories for any device. Like a cute wicker basket with lace trim.
Great idea. My brother started out with braces on his legs, many surgeries, and crutches, until he had enough. Then he used crutches and a manual wheelchair until he started wearing out his shoulders and had to have surgery on them, he got his first electric wheelchair in his late 30’s,. We use his manual chair when he goes places. The chair would need a lift put on the vehicle, it’s too heavy to lift. They do amazing things and he gets a new version every 5 years and donates his old version to someone in need. He is now 59. I know you’re at the beginning of your journey, and you will find the right one. Have fun test driving.
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I've had a mobility scooter for the past 4 years. Here are my notes on it:
- Chair quality matters, especially if you intend to use it for longer periods of time. It can really hurt if it's too hard or too soft.
- Don't ever put a purse in the front basket, it will get snatched. I've seen it happen before.
- Get some finger less gloves for the summer, but always have at least a pair of cheap gloves on the scooter since it can get pretty cold pretty quickly.
- Same for scarves, my neck gets cold super quickly since I sit still while there is wind from moving.
- Can't put anything even slightly heavy in the front basket since steering will become difficult.
- Have a poncho or a scooter cape with you at all times, since you will get caught out in the rain. This would be perfect to keep in a front basket.
- Keeping both arms on the steering wheel can help with the shoulder strain you get after driving a little bit.
- Three wheeled ones have a much shorter turn but four wheeled ones are much more sturdy.
- Get one with a quick release stop because people will jump in front of you thinking they can make it. And just letting go and it immediately stops can help with the stress of not bumping into rude people and not getting into an argument.
- Get it from a shop with a repair service since it can be a pain in the ass to get it repaired if you didn't buy it from them. On the same note look into reviews, I got stuck with a scam artist who charged me three times more than quotes three times in a row.
- Be careful with long flowy skirts and dresses they can get caught on things. Fold it over so you can sit on most of it when you wear them. Also they can blow up into your face if there is enough wind.
- The slower scooters tend to also have shorter distance battery life. They do charge quicker though.
- You can add some bike handle flowers to the front basket to make it more pleasant
- Add extra lights to the steering wheel and the back, in the dark it can be difficult to be seen if you only have low lights and there are parked cars between you and the cars driving.
- On the same note look into getting reflectors added to the sides too.
These thoughts were so helpful, thank you for taking the time to write it down
Thank you! This is super helpful as someone who is considering a mobility scooter
These are excellent tips. Thank you.
Great tips, thank you!
Thank you for these helpful tips for someone considering a mobility scooter.
Mobility scooters are great but I feel like many warnings must be given to those considering buying/using them.
1) NEVER put anything valuable in the front basket unless that front basket is non removable and can be locked (some are and can and that's good). A handbag, purse, phone, etc, is a target for thieves who take advantage of the often less agile and mobile mobility scooter. For example, many scooters have wide turning circles so if someone takes something while going past you in the opposite direction, you may have to make a dreadfully slow 3 point turn to be able to come back the way you came and the way they're going. They'll also have a very easy time outrunning you for short distances or getting into narrow spaces or crowds. An open front basket is a very vulnerable spot so please don't risk anything in it that is valuable or hard to replace for any other reason. Those items should remain on your person, in a closable back bag/basket, or between your legs.
2) Beware wearing flowey skirts or lap blankets while on a scooter. They can get caught in the wheels and give you an awfully painful and deep friction burn. This problem in particular happened to my mother when she wore a skirt that was just a little too long and the hem cut quite deeply into her shin. Please be careful to avoid such things or find some way to secure any loose fabric such as pins, straps or clips to keep it well away from the wheels.
3) Be sure you know exactly what you are buying and who you are buying it from. Try to ride the scooter you will be buying before you buy it, not just a show floor version. Read reviews of sellers to make sure their products and customer service is up to par. If you have any slight concerns about the scooter, resolve them before paying. Make sure the seat doesn't wobble, that you can set the speed to something you're comfortable with, that you can change the height and position of the seat and anything else you may need to (including being able to turn the seat 90 degrees to easily sit down and stand up from it), that you know what sort of batteries it needs and what sort of charging they need (how often and for how long) and how soon you will need to replace them and how much that will cost, that you understand anything on the dashboard (buttons, knobs, lights, switches, all of it), what sorts of surfaces and hill angles the scooter can handle (many can only go up 5 degree hills and many hills are much steeper than that!), and that the accelerator (and brake, if there is one) are placed somewhere you can easily control them and that they are a type/shape you can work with even on your worst days.
My mother was convinced to take a machine she wasn't satisfied with and has regretted it ever since. Don't let that be you. A mobility scooter is a wonderful thing that can give you great independence and joy IF you do your homework and take the correct precautions. If you instead get a scooter that cannot scale your own driveway or a hill leading to your house, it becomes a VERY expensive paperweight of regret. Be happy with something that meets your needs and don't let scooter salesmen (much like car salesmen) push you around. Good luck!
mbncd That seems to be solid advice. Thanks!
It's likely she's considered it, but pointing out the skirt thing is a great idea. I've ruined a (slightly too floofy) skirt just riding a standard bicycle before but with motors involved that becomes more than just aesthetically dangerous.
@@hollaatthekid1796 try out as many as you can. I had to. But I was 7 months pregnant at the time so I was kinda in a hurry lol luckily I've had no complaints really and my powerchair is still going strong 5 years later - it's a really stressful decision and if you're like me I tend to put off things like this and then it gets even more stressful
mbncd u r an amazing person for that!!!! Thank u so much for sharing some cautions!!!!
What a well thought out and detailed comment!
Okay, first of all, HELL YES to this series.
Secondly, if hiking shops have rocks and stuff to test hiking boots, mobility aid shops should have hills and kerbs.
Ray Ark - that was exactly what I thought! How do they not have a small obstacle type area to really test in?
Yes, four wheel drive vehicle dealerships often have that too. Now THERE's a thought - an all terrain powerchair or scooter.
Those exist, especially the wheelchairs. Expensive though.
@@Dain75 I think the HMSA member hannah ensor has one
Hi, just thought I'd drop into the comments here, as part of Jessica's video was filmed in our Eastbourne showroom. We completely agree with you, which is why our newest showroom in Glasgow actually does have a test track for mobility scooters and powerchairs, featuring the kind of obstacles that you might encounter on a day out and about. It's been a successful addition to that store, so we're hoping to build test tracks in more CareCo showrooms in the future. Thanks! Joe - CareCo Social Media Team
I was in a car accident when I was 16 and I ended up with a very messed up knee. The doctors heavily suggested walking with a cane, which I did for a few months after I recovered and was out of my wheelchair - but being a teen, walking with a cane, in high-school - was scarring. I still haven't fully recovered from that social hell, and I usually refuse to walk with my cane even now. I know I still need it. Walking for a while can be draining on the light side or painful on the heavy side depending on where/how long/stairs etc. Its been 13 years. I think its time I just admit it and accept I need it and move on. Watching your videos has definitely helped me get to this place. Thank you so much for being an inspiration.
Get yourself a really beautiful cane that you love the look of. I've been saving up to get one from Neo-Walk.
@@craftgrrl14 Oh those look cool! The problem is I definitely need one with a handle that has grip. I live in Canada and it gets cold, and gloves would slip right off those! When we first went looking, I did look at lion/dragon head canes (gotta have that fantasy kick lol), but I had a similar issue with grip. Blah! My current cane is black with a dark grey ergonomic grip and adjustable height peg thing. Very medical. At least it is black and not grey all the way through, but I definitely agree the "style" is one of the reasons I refused to use it.
I don't know if you've ever heard of Hannah Witton, but she made quite a few videos about her experience as a young person with a cane and how it affected and helped her! She had 2 very severe abdominal surgeries which left her with very little core strength and she explained how her cane really helped her feel more in control and independent.
@@musicismydrugxo8217 Thanks for the recommendation! I've seen a few of her videos, but I didn't know she had some on this topic. I'll make sure to watch them!
@@kalystamainville8022 The lovely lady who makes Neo-Walk canes is working on making grips for the canes actually. If you contact her via her website or Instagram she is always very sweet and takes custom requests
Looks at my ever growing collection of canes to match different outfits
same ;)
I need this in my life.
Carolyn Frankly Yupyup, although mine are to match whichever colour I’ve dyed my hair currently! Pink atm, blue sometimes and green or red at other times.
I found a pretty foldable blue cane that matches my hair and makes me feel pretty, and I've actually gotten some nice compliments on it. Still want more tho, especially some woodden canes 😍
I am sanding one now so I can paint it Tiffany blue. slow going because I have to wait for days my hands work due to ms
I've been there, I got an electric wheelchair off eBay, I got it repainted pink professionally ☺️
@adrianna Thanks 🌺
Pink is the way to go
@@roblox_lovers684 It really is. Thanks🌸
Yes! All the pink.
The one thing that I would recommend is to look carefully if it has a wet, gel or dry battery. Most airplane companies will not allow a wet battery to travel on their plain (eg. Ryanair) so that is another thing to take in consideration. Also, if the battery is completely detachable it will go up to the plane with you instead of being placed in the hold of the aircraft, which tbh is much safer and I would rather have a completely removable battery. Good luck on your search!!
have you ever picked one up and mine takes two
Lithium battery only for planes and cruise ships. And they usually go further esp since you can have two.
Affordable wheelchair can fold up and fit into a special suitcase so it can't be damaged as easily. Airplanes damage these things a lot. Don't assume you will never be going anywhere. Also don't assume you'll always have help to get it in and out. A person with a bad back might be driving you and they can't help you. Good luck. Your scripts getting tangled in the wheels definitely made me afraid for you as I was watching you drive. I don't know how old this is but I'll go and look and see what you finally decided on and I agree wheelchairs make you look sick and scooters don't but wheelchairs go further and decent ones are foldable, none veey comfortable except the 400 pound chair you need a trailer on your car to take.
I apologize, I put the pencil on the pavement.
Ida E-S Oh, did I drop my pencil? 😂😂
@@mxnjones No. It was purely sabotage.
Pencils are a menace to society!
Oh good I thought that was mine lol
I am so glad you are doing this. I need one myself and have no idea what to look for
Since you already have a manual wheelchair (like me!), I highly recommend a Smart Drive. It is an attachable motor for manual wheelchairs and solves the problems of hills, carpets, and long distances. I adore mine. It has been exactly the solution I needed. It is very light, and if you can disassemble and reassemble a manual wheelchair, you can assemble such a chair with the added Smart Drive. I have weak arms and a great deal of pain, and am able to do this with minimal difficulty. It is very compact - it doesn't really add bulk to your existing manual wheelchair, and it fits wonderfully in a car. I can take public transportation with mine. It is also permitted as a carry-on luggage on airplanes, so if you make a habit of flying, it's a good option. The battery lasts foreverrrrr, too. It also works in a variety of weather conditions, and can handle the same terrain as an average manual wheelchair.
I've been dreaming about trying one of these for over a year - ironically, I can't get out easily to go and try it. However the more I hear and learn about them, the more I want one! It's really helpful to get personal recommendations like this. Thanks.
I was super excited about the idea of smart drive...til I checked the price. £4,750! 😢😢
I think that's a great idea my arms are also weak so it gets too hard.
Abi Pereira Not easy for someone with limited hand function, the watch is ridiculously difficult for my husband
The concept is a great idea but the Smart Drive itself is more expensive than many power chairs and/or scooters!
My wife has used a mobility scooter for nearly 20 years, and you won't regret buying one. When we visit a supermarket together, I push the trolley, but she will often go off to another part of the shop to choose things which she will either carry back to me on her lap or in the scooters basket. Something to be careful of from Claudia's point of view, or whoever will lift a scooter in and out of the car, is not to buy one that's too heavy, because MY back has certainly suffered from lifting scooters in and out of vehicles over a long period. Good luck with your search!
I wonder if Jessica has considered detachable motors for her manual chair! That'd solve the "can't go up or down hills" problem, and you can use them outdoors and indoors
She may have but when I looked into them they were roughly £2000! And you have to have a specific style of chair for them to fit so these reasons may have put her off as they did me!
I love my Smart Drive, but power assist devices typically don't help with the downhill bit, unfortunately.
Does anyone have experiences with the Firefly attachment? gb-livingspinal.glopalstore.com/handcycle/firefly-electric-handcycle/firefly-electric-handcycle-wheelchair-attachment-next-generation-2-0
@@Robin-mh5wb is it like cycling? Can you get either caliper or disc brakes? Is there a drive wheel that has disc brakes? I wonder. It would be good to have something that can control downhill speed with gearing and braking.
@@lupeyloops246 It would be great to have power assist that helps with braking! The Smart Drive doesn't, and most wheel attachments don't either. I think the Alber E-Motion brand has rollback protection (so you don't fall back down a hill you're trying to get up) and maybe also some braking assistance on the new version, but I don't know anyone who uses them. The Firefly attachment probably does have braking, though! And there are cheaper, manual handcycles that work just like pedaling a bike.
Yay Jessica! I'm so happy you're doing this! Even though I've been through this, it's nice to see someone else going through it because I felt sooo alone when I went mobility aid shopping and one place even turned me away by not serving me coz I looked too well(???!) ugh
They did what? Eugh... so sorry dear 💖
lmao wtf were they thinking-
Society isn't very welcoming to excepting that not all people who need mobility aids are elderly people.
The day when I see a young woman on the cover of a leaflet advertising a mobility aid would be the day pigs fly
One thing to remember when driving mobility scooter is you can get arm ache from having to constantly hold them up to steer.
yes! I have arm and hand strength issues - scooters aren't good for this, but powerchairs solve this problem as the controller is at the end of the arm rest
I've been considering a scooter and this is a very good point I hadn't even thought of!!! I really struggle with driving because it involves holding my arms up to steer so now I'm wondering if I could handle that aspect or if it'd be too much. Thank you for pointing this out.
Also, you have to factor in the ability to squeeze. My grandma couldn't squeeze her fingers for very long. We ended up rigging the thing with hair rubberbands and scrunchies. Turns out that it's easier to let off a tension scrunchy than adding an additional cost for another specialized gadgetry.
Good to know!
^^^ this!
My dad used a mobility scooter for 15 - 20 years, before having a power chair supplied. He used it everywhere, and took it in the car. Then again, he had a station wagon (estate wagon?) and an electric hoist so he could transport it himself for work. We were able to take it apart for a smaller vehicle, and it did go on an aeroplane once. The power chair was very fancy, and could recline, which was useful in later years as he would drop off to sleep at any time.
There are also manual wheelchairs with powered wheels! They work on a battery and assist you when pushing, so it doesn't cost as much energy. They're called E-Move Power Assist Wheels, I think
There’s also a power-assist drive that can attach to any manual wheelchair.
@@juniper617 I have a power assist called a Smart Drive, Which is great for me as use wheelchair continuosly when outside.
Irthe - with the power assist wheels the warranty is cancelled if you get them wet, and it rains a lot in Brighton!
I have a smart drive and it broke after a couple of months and took TEN MONTHS to be repaired!
It’s definitely a lot lighter than any other option and can be used in the rain. Overall I’m happy with it though and have a mounting bracket on both my indoor and outdoor wheelchairs so I get two power chairs for the cost of one (£5,000)!
Don’t rule out something heavy, because a ramp to get it into your car boot would only cost a couple of hundred pounds and you would get something more sturdy.
Seeing how expensive mobility aids are made me even more determined to watch every single ad full through
I got an ad for... Mobility scooters. Well done RUclips target advertising!
Some insurance companies in the U.S. cover them, at least some. Or government has disability coverage as well. Not sure if the UK helps on cost, but it should, in some way.
I finally got my diagnosis!!!!!!! Took 4 years and a lot of freaking crying but yay! thank you for your videos! They really helped me feel less alone. 😊 EDS sucks 🤦
congrats from one EDSer to another
Congrats!! I'm still awaiting mine. Testing takes forever, lol.
Yay welcome to the family from another EDSer
@@Emilyweasel2023 I just got my diagnosis recently too and yes it does suck but you got this!
Congrats! It's oddly the most relieving and satisfying thing to get the diagnosis, and there are plenty of EDSers out there. I discovered a fellow zebra in a game!
My aunt made her scooter look super tacky because she is an icon and doesnt care what people think, lol
You could paint it with polka dots, put bows on it etc Or have different covers to match your outfit.
That's a good idea! Potentially a fairly neutral color for the device itself, and devise a way to easily attach a style matching bow on it (could be clip-on, actual ribbon, or some twist-tie equivalent).
Covers can have this same effect - I'm imagining something equivalent to the scarf-on-a-chair style used to fancy up chairs at weddings, but actual products probably exist.
I'm not a wheelchair user, but my dad is and has been ever since he was 15 (he's 70 now). His wheelchair is slightly different to anyone else's I have seen, but he has used it for a good two decades (I am only 20 I don't know how long he's had it) and it has suited his needs very well.
He has a wheelchair in which the back folds down and the wheels come off so it can fit in a small car like a Polo. When he want's to go into town, he has an electric front wheel (think of the front of a motorbike) that clips into his wheelchair under his seat and raises the two front wheels off the ground. The battery can take him around 20 miles on one charge, and he speeds around at halfway between jogging and running speed. It is good with moderate hills, but up steeper hills he wither needs a run up or a helping push. The front wheel does create the need for a bigger car such as an estate, but it has been taken on family holidays and is allowed in oversized baggage (the battery has to go in cabin hold).
This option is good for people who want the independence of being able to push themselves around the house and be compact enough to fit under the table to eat, but also gives the option to explore where you want to go, rather than get pushed around to where other people want to go, at a decent speed. I also feel like he is more comfortable as when he's got the front wheel on in public, as it is more like a motorbike so people don't feel the need as much to ask him if he needs any help.
“Providing they’re trips to flat places” _floored_ me 😂
That right there, is a solid pun.
It’s my dream to start a company making lovely versions of medical devices. Think wheelchairs/scooters that look sleek or elegant, compression socks that look like normal stockings and come in a big range of sizes, grab bars for the shower/bath that will blend with your decor... The issue of course being that entrepreneurship takes spoons I don’t have, and there’s also the little problem that I live in the US and if I quit my job I’d lose my excellent employer-sponsored health care.
I saw someone with a foldable periwinkle mobility scooter awhile back and I still regret I didn’t ask what it was. I struggle with the idea of getting a scooter because I am sometimes quite easily able to walk around and even work out. I’m going to Disneyland with my family in a few months and I’ve convinced my mom to rent a scooter for us to share (switching off), but I get nervous thinking about rolling up in one and then bouncing off and into a ride. But the whole reason I’d have enough energy to bounce is that I didn’t spend it walking around and standing in line!!! The last time we went was 6 years ago and I was a lot better then than I am now...and I still remember laying in bed every night with my legs and feet and knees burning and THROBBING and I cannot do that again. I’m just worried and it sucks, because it shouldn’t be a problem.
Also if you are overweight people really stare because they think you're just being lazy. It's hard for me to walk in places like that to. I want to be able to keep going as long as I can. Go ahead and use one. Your trip will be alot more fun if you are not in so much pain.
Do the scooter for Disney. And go to the Guest Services area and get a disability card so that you can keep your party together when you ride the rides.
I make wheelchair seat covers with pretty fabric, because I love pretty things, and it makes me sad that this isn’t a bigger deal! My daughter’s wheelchair has a little bit of color, but it’s still mostly black.
Revisiting this to mention that I ended up buying a mobility scooter. I got a Triaxe Sport and it was a LOT of money but it was so easy to use in Disneyland. That and the DAS pass made Disney very doable. And I’ve used my scooter a good amount since. I spent some time decorating it (basically just reupholstered the seat and added a huge wicker basket to the front) and it looks very cute if I do say so myself. I AGONIZED over buying a scooter and which one to buy, and I’m so glad I went with the Triaxe.
This is perfect timing - I’m looking into getting a powerchair soon.
Although I want one that looks like a beautiful fancy chaise lounge
I have always wanted that too! :D I'm still trying to find new ways to beautify mine
I've seen some pretty lovely steampunk powerchair makeovers!
Yeah! I have a manual chair but I can’t rly push it myself so I’m looking into an e-fix powerchair attachment :)
I,love how your need for a mobility aid doesn't phase Claudia she has your back. Keep,doing you Jessie and another topic that's informative.Claudia's, editing is sick!!
I've a powerchair that folds up like a buggy and its amazing!! Regained so much because that thing! Plastered it with stickers to help take away the 'hospital-y' feeling. Good luck in your search
That's what I did with my old cane. Plastered in decals with a silk tassel on the grip, I miss the old girl.
I have seen someone fit a power chair into the back of a normal station wagon - the seat etc. folded down and then they used a ramp to drive it into the back of the wagon and off they went!
Does your chair have a name I can search love that it folds
@@PattisLupusJourney Mine is the KD Smart Chair. Its built in Florida - so I got mine shipped internationally to CA
@@ElHutch27 Thank you !
Strictly based on aesthetic her on the scooter in vintage clothes is adorable. It reminds me of period pictures of women on bikes.
been loving the multiple angle shots!!
A neighbor has a very high power motorized chair, and has actually rigged up a little wagon that he tows to take his three kids to school! In the winter they enclose the wagon with clear plastic and decorate it with fairy lights. He uses the bike lane that most of the neighborhood streets have.
it still amazes me how much like a vintage doll you look like, how do you do it? 💗🌼
It's her happiness, next to Claudia. She loves doing her hair and makeup.
She has a bunch of tutorials on this channel to show you how!
She's so perfect looking it's almost stressful lol ❤️
@@stgm
Step 2: dress with style
Step 3: have cultivated mannerisms
Ms. Jessica!
I am a 46-year-old lady who accidentally stumbled upon your RUclips channel in the actual middle of the night when I was voraciously devouring tutorials on how to self-correct a persistent pelvic upslip (you can! It's painful!).
And then there you were, speaking with eloquent realism about living with disabilities, dietary restrictions, and DEVIANT SEXUALITY (that's preposterous, of course, but thought it would be fun to type and it really was). You are absolutely magnificent. I know you're all the things you've been adulated for: brave, optimistic, strong...they're all absolutely true. But you're so fucking smart. You take such a complex and nettlesome subjects and make them not just understandable, but relatable. It's gorgeous, foremost, but offers a clarity of description that illuminates your experience and the human experience, at the same time.
I don't have the same illnesses as you, but I sincerely better understand the things I DO have because of you. And I also feel as though I better understand other folks, as well, for your perspective. Plus, terrific vintage fashion, which is just a very nice bonus.
I've suffered from mysterious illnesses for the last three years. I'm happy to elaborate granularly, but will refrain in this forum. This is relevant to this missive for only one reason: in the course of divining treatment for the most vexing of my issues, Sacroiliac Joint Dysfunction, I've landed on a treatment that you've undoubtedly already heard about, but I would feel remiss were I not to mention. It's called prolotherapy, and many many folks with Ehlers Danlos (which seems related to your more complex illness) rely on it, as well as PRP (Protein-Rich Plasma) to help stave off pain and loss of mobility due to joint laxity and degeneration. I wanted you to have that resource, on the off chance that it was useful to you. Because you deserve all the good things, piled up with fluffy bows. I know that's not how things work, and our goodness does not protect us, nor earn us big fluffy bows, necessarily. But I wish it, nonetheless.
Thank you so much for all you do. It matters so much.
PS: I have been on a low FODMAP diet for three years and after years of mastadon flesh, am similarly enamored of sweet potatoes (SWEET MERCIFUL HEAVENS). Related, I once sent an email to my nutritionist with the subject: HAVE YOU EVER TRIED RICE WHY ISN'T THIS THE ONLY THING EVERYONE IS EATING ALL THE TIME because I'd started eating a tablespoon of white rice with every meal and it was transcendent. (It still is.) If I thought it would translate well, I'd get a tattoo of rice on my forearm, so deep is my affection.
I adore your side eye moments.
People really do get weird when you stand up out of your wheelchair. (Mine is bright pink.) I luckily can drive and have a strong 12 year old boy to help me push. I really wish I had been able to get the push extender for my chair though.
Brighton is indeed just one big hill.
I really enjoyed the conversation about what you wanted it for. I am the opposite. I wanted a chair for taking my kids to museums and events. I drive to where I am going. It sounds like you need other things. (You have my sympathies on the accessibility of Brighton. I haven't been in 5 years but I remember.)
A fun thing to do if people are getting weird when they see you stand up from your wheelchair is to exalt "Hallelujah!" ;-)
@@lupeyloops246 That's awesome!
@@lupeyloops246 Or look at the sky and say "Thank you Chtulu"
@@lupeyloops246 I would go with "Hail Satan" personally
YOU COORDINATE WITH TILLY IM DECEASED
Jessica, have a look at max mobility and the smartdrive mx2, it would just attach to you normal wheelchair and do all the heavy work up hills for you (and on the flat pavement as well!). From what I could tell they are available internationally.
I feel exactly like you do when it comes to admitting I need a mobility aid at my "young" age. I want to be able to go on "walks" with my young family. I think people might wander why I've borrowed my mother-in-law's scooter when it's actually mine but I don't want to be held back by my illness when I could be out there enjoying things with my family instead of just watching them.
Really looking forward to this series! This is definitely a conversation that people don’t think about until they really really need it.
The scooter certainly seems to fit your needs better! I hope you find a device you feel comfortable and happy with!!
Personally, I have a manual wheelchair that goes in the car, and it works really well for most of my destinations, as generally they're just a short distance outside on uneven ground and then going inside where it's flat. I do have strong arms though, so although this works well for me, I can see it being a different story for you. I also rent an electric scooter through the Motability scheme, which is great for going out near home. It definitely couldn't fit in the car, but it's very sturdy and I feel safe going on uneven ground on it, including grass. It can go up to 8mph, which is very fun, and my greyhound loves trotting alongside it when we go out together, and I can also go to a shop and back within half an hour, which is great for energy conservation and it not feeling like a big deal to pop out.
This is so helpful! I use a walking stick around my home but need the use of a wheelchair when going out. I finally got sick of being stuck in the house and ordered a wheelchair but it didn't stop me from being sad about it. It's made a big difference in my life but I'm not able to self propel for long so need someone with me if I go out. I've consider a scooter but have alot of the same fears/concerns as you. This series is going to be so informative. It's difficult excepting that it's come to the point in our lives that we need aids that society sees are for the elderly, but I try to focus on the positives that using them improves my quality of life and that's what's important. Thank you for putting out such great content.
Colors Do matter, and so do your pets!! I LOVE this video, because "just because you need a mobility aid" doesn't mean you can't have a bit of fun (personal preferences) with the options available to you!
Powerchair allows you to travel depending on the batteries and you can use ramp to get over the curbs, also get a joystick powerchair because keeping the handle in on the scooters to make them go hurts like f and if you have a bad day....also see if you can get one where you can change hands that makes a huge difference! Also you can get really good seat pillows for the powerchair both for back and seat. The chairs can also have electrical looks and also you can stick the joystick in your bag.
My grandfather had a stroke and was paralyzed on his right side, he had a motorized wheelchair since he had limited movement in his arms. It was so important to him to have freedom within the house and buildings by having something that was narrow enough to fit through doorways. They just got a lift for the back of the car to place the wheelchair on since it couldn't fold up. It worked out well for them. It would raise and lower at the touch of a button and he would just drive right on to it at ground level. The lift also folds flat against your car while you're not using it. I think that could be a great solution to your hang ups with this decision. That way you can get something sturdier that you never even have to worry about lifting or folding!
Here is an example of some for mobility scooters: www.bruno.com/scooter-lifts
This website talks about the different styles of lifts for cars. There are lots to choose from: www.themobilityresource.com/adaptive-driving-equipment/scooter-lifts/ I hope this is helpful information!
This website has compared different lightweight mobility scooters: www.aginginplace.org/best-lightweight-mobility-scooters/
At first glance I thought that the dog was snuggled up inside your sweater. And then it hit me! The dog has its own matching jumper! Awww!
OMIGOSH Tilly's matching sweater is giving me so much joy.
Assistance dogs are also classed as mobility aids/auxiliary aids.. Interesting to know..
RachaelAmber 22 my service dog provides mobility assistance (among other things). I have hEDS so my joints don’t like to stay in place or work as they should.
Many though not all are, and it can depend on where you are wether that’s considered to be the case, even if it is practically the case.
Service dogs are capable of so many things! I'm in the process of getting one and a part of what he'll provide for me is mobility work on top of medical alert and psych tasks. :)
Yes agreed.. Service/assistance animals are classed as axhiliary aids in the UK regardless of there tasks :) I know in amaerica its different but that's what it's like in the UK
I have heds and have an auxiliary aid assistance dog called Loki. He helps me with many things as does my powered wheelchair. I would never be able to us a scooter because I can't hold my arms up for long and I can go more places with an electric wheelchair.
The way you said "They're designed to fulfill a medical purpose" at 5:54 is peak British. Best of luck in finding your mobility aid! I'll watch this series (and the rest of your videos, of course) with interest.
Hello Jess you are a huge help you help me cope when I feel depressed. The thing is my hearing is getting worse and sometimes my family and I fight because I can't always hear them. So thank you, because when I feel very down I watch your videos. Oh my age also makes it difficult because I'm 20 and I'm studying and my deafness makes me want to loose hope. So thanks for being a ray of sunshine.
💜💕💚💓💛💞💙💕💜💗💞💕
I understand you! My hearing has never been great, but it took a dip last year when I was 21! It’s hard having hearing issues so young and I often feel like no one (especially not my family) takes me seriously because of my age
Get your hearing tested and show your family the results. Check out hearing aids- they make the kind that is all inside your ear and hardly noticeable. It will help lessen the conflict and you will feel better. I used to be an interpreter for the deaf. It’s better to wear hearing aids than miss out on social aspects of life.
💜
My goodness! What quality content this is! It's so informative and helpful for me trying to help my disabled and aging mom chose something that is right for her!
I'm sure so many other people are also benifiting from this informative series!
... Do you feel better about finally getting the damn chair yet? Cause you've helped so many, and you needed this so badly. Don't beat yourself up.
It always puts a smile on my face when I see a new Jessica video notice in my email. I fall a lot, and use a walking stick. Since I'm trying to maintain muscle tone, and some semblance of fitness, I'm looking at an adult 3 wheel bicycle with an electric kit. That way I can pedal as much as I can, and switch to the electric when I need the help. Another benefit is they tend to have a large basket on the back behind the seat for packages, like groceries. They cannot be used indoors, but can be used wherever a bicycle can. Plus, with the electric, my service dog can get a good workout at a faster speed than I can walk. The cost is around $1000USD, which is beyond my means right now, but once our annual health insurance scheme turns over in January, I'll speak to my doctor about it. I thought you looked quite fashionable on the red scooter, and more secure. I'll be watching to see the future videos.
i love how tillys sweater matches yours
Something to consider since you've talked about wanting to be a mom is the steering. Can you steer 1 handed while holding your little one? You could wear the baby in a carrier to steer with both hands but as the baby grows that may not be as comfortable.
Thank you for starting this series
I immediately had to think about my dad. As he is getting older he can't really walk anymore outside the flat, so he bought an electric wheelchair last year. He seems really happy with it but unfortunately it's an German firm. But I saw at their website, that shipping is possible in other EU country's (so there is a little bit time left😉).
Really great facts: the wheelchair is easily collapsible and fits on the trunk of the car (it even fits on the backseat of the car), it only weights 19 Kg, you can drive up to 6km/h and it's really comfortable. There is also an anti-theft system, so you could park it outside.
The website is only in German, but if you are interested on the wheelchair you should definitely write them an email. And if you need any help on translating I'll be happy to help you.
Lovely video by the way :)
My dad has the movingstar 101, but the 100 is pretty similar and a bit cheaper. www.moving-star.de/movingstar-kaufen?gclid=Cj0KCQjwr-_tBRCMARIsAN413WSgqJ9fChkOHGiP4U9xbnLuAohtR4SU5jbxixSkm2tjS65dJ87fEYkaAiHkEALw_wcB
As someone with Synesthesia and an obsessive compulsive need to colour code literally everything, I felt 3:16 in my soul! Yes. Yes, colours are important. My life literally can not function properly without colours. And that's something I've been thinking of a lot in terms of mobility aids. On that topic though, this video, and the series it's starting, is an absolute blessing! I've been meaning to look into getting a chair or a scooter myself, because I've had to accept that I can't walk for long distances before the pain makes me collapse. I borrowed a wheelchair for a short period and it was absolutely life changing in every way! It definitely confirmed that this was something I need in my life, as my cane just isn't enough when I'm out and about for longer periods. But if I'm going to get one, what, exactly, should I be getting? That's something I've yet to wrap my head around, so definitely looking forward to seeing the rest of these videos to hopefully get some tips. ^^
i remember when i was little i used to go on my nan’s mobility scooter and i bumped into absolutely EVERYTHING 😂
I opted for the powerchair for a couple of reasons: 1. I don't have to have special permits to ride the bus/train, 2. I can actually ride the bus/train myself (like a real person), 3. I use the same chair for both pavement and inside shops/pubs/etc. But mostly because the powerchair gives me more freedom than the scooter. I am free to go to more places, I am free to do more things on my own, I also find that I get less..........resistance.... from the walking-types when I am in this powerchair (looks like a hospital version) than when I used the captain's chair version that was cheaper. Yeah, it's clinical-looking but there is fabric, yarn, and a myriad of other ways to decorate or even disguise the tacky if that is what one desires.
Speaking of cost/expense, yes, I spent about £2000 on my chair. We saved for a long time and several ebay chairs died valiant deaths in service whilst we were saving. I paid for the extra battery life, horsepower, and mileage so that I could make my trips to Brighton and Bournemouth without worry.....and I had a very enjoyable holiday in Brighton without finding myself in the street because my chariot lacked the horsepower to stay on course on steep inclines/declines. It's truly been worth every penny I spent it for peace of mind alone. I paid for the kurb climber so that I can get into the local shops, etc that have stoops too short for a ramp but too tall for my wheelchairs. It's been worth every penny for me to be able to go with the social group to places I was previously unable to enter because of the entrances.
Mine cannot be disassembled to be put into a car boot. I don't drive and being a woman of......... er............. uhm........ um..............great substance (yeah, we'll go with that), I was not entirely comfortable with the stability of the take-apart versions (that is MY feelings of safety, not a statement that they are less stable or more dangerous.)
Chair seats must be comfortable, cushions can be purchased/made to improve seat quality as well as add style and flair. I keep my handbag buckled into my safety belt and either in my lap or beside me in the seat. I have a rucksack-type bag attached to the back of my chair in which I can put the loot from my trips to the shops, and the cashiers are usually very helpful at loading it for me (sometimes a bit TOO helpful, LOL)
Colour most certainly matters! I chose a sparkly dirt brown colour because...........dirt is a thing and I don't want to have to scrub down my chair every time it gets used but I wanted sparkly because..........bling is always important. I am also currently working on other items to make it more............me (I'm the weird crochet/knit/quilt lady and I ROCK it!) A little bit of the adventurous and a crap tonne of hours on Pintrest is all that is required to make your chariot truly your own.
Good luck finding the perfect chariot for you. I know it's hard to admit you are to the place where it is no longer a luxury but a necessity, and I am confident you will find it improves the quality of your life immensely......no matter which way you go. :) It took me a while to admit I had reached the point I needed it, once I embraced it I discovered I LOVE my chair. I truly do. I honestly hope you find similar freedom and joy with your mobility aid.
Well, Unicorns do coordinate with everything!🤷♀️🦄
Best of luck on your mobility aid search!
This came at the perfect time for me! The wheelchair rep is coming to my house this week to fit me and we are deciding between a manual with motorized accessories, or an electric wheelchair. Fun stuff! But very confusing when you’ve never gone down this path before.
I have tethered spinal cord syndrome and am no longer a candidate for surgery, so the less time I spend standing and walking, the better my legs and back are! I am excited to finally get the aids I need.
Thank you for this series. You rock
Having hurt my back lifting my daughter's wheelchair in and out of vehicles, we upgraded to a wheelchair accessible vehicle.
I like the idea of a boot hoist myself. Takes the physical effort out of loading.
Claudia is very intuitive when it comes to disability. Like, I know she's been with you for a long time but a lot of able bodied people never seem to "get it" as much as she does, or put as much thought into it as she does.
It was nice to see.
I love how the shot of Tilly made it look like he was just casually inside your sweater 😂
She.
Me too! I was like "How did she make the neck stretch that far?" then remembered it was a cardigan. lol
@@watermelonwishes4193 saaaaame
@@hs6596 Made me think of Jenna Marbles with her dog Kermit. lol
The bit in the car before the showroom where the frame cuts off most of your dress REALLY makes you look like Ariel. You're gorgeous! And I'm glad you're taking this step for yourself :)
😂 I've never met another wheelie who also struggles with using a mobility device for clashing with their clothes. So when i designed my TiLite TRA, i wanted it to be white and black, and i got a pop of colour on the casters, so that, if it clashes, it is much more subtle. ✨ you brighten my life. I have #ehlersdanlossyndrome, POTS, Narcolepsy, and hearing impairment.
I am seriously considering getting multiple sets of coloured push rim covers so I can change the colour of my otherwise jet black manual wheelchair. I have some blue ones I got off ebay but am thinking of getting a lime green pair too and then confusing people when I swap them out or go half and half kind of like odd socks :)
@@yogibbear such a good idea!
Katlyn Constance Webber can I talk to you
I'm another POTSie constellation person and that's why I've only had black chairs and removable decor. COLORS ARE IMPORTANT!
I got my aero z in acid green and black, then put rainbow spoke straws on it. Can't clash if you have ALL the colors!
Brilliant idea for this series, Jessica.
I have no doubt that countless people will be helped by the information you gather & share. I am looking forward to the next 3 episodes.
My opinion, for you, I feel the Mobility Scooter is the choice. It allows for slightly more freedom of travel, especially out & about. Honestly though, whichever is most comfortable and useful to you is the best choice ... and the most fashionable color, of course. After all, "Colors are important, people!". LOL!!! 🤣🤣
Thanks again for this video, Jessica. Highly anticipating the next one. Take care! Lovely as always 👍🤟💝
I’m also chronically ill and I’ve been using a mobility scooter on and off for the past year. It’s been super helpful compared to walking with a cane... but since the mobility scooter is very long (plus the basket if you use it), it’s difficult to navigate doorways, any room with furniture, etc. Makes me wish I could afford a motorized chair instead. Much more compact!!
Also, no matter which one you choose, be sure to get a big enough battery. The first mobility scooter I rented (long story) couldn’t even get up a little hill since the battery wasn’t powerful enough! Plus a larger battery means you charge it less, so it’s NBD if you forget to charge it right away (great for memory loss) 😊 Hope this helped someone! 💕 #BabeWithAMobilityAid
I love that you're doing this series, and I'll be watching (and sharing) every part of it 😊
I haven't used a mobility scooter or electric wheelchair, but the one thing that did come to mind is: please do your research before taking it on a plane! I've heard a lot of horror stories (particularly from the US) of wheelchairs being damaged by airlines, and disabled people being left with $100s or $1000s of damage (and even injuries from the damage) and no compensation. I think the UK has some clearer rules that make airlines responsible for compensating you if they damage your mobility aid, but 1) that could be a very difficult and stressful process, and 2) you'd still be without your mobility aid while waiting for repairs or a replacement, so in some cases it might not be worth it.
I often need a cane, and sometimes need a rollater (the walker with a seat), but I have to take the rollater out of the car myself, which sometimes doesn't feel worth the benefit as it hurts my back to take it out.
toocoolforcapes Rollators are so damn heavy!
Yeah mine is more cumbersome and awkward and harder to pack than my wheelchair
So incredibly helpful! It's very rare to find reviews such as these. You made it so personal and funny that it reduces one's fear of researching mobility aids. You really are a gem!
Thank you for this. I’m going through similar thoughts, but I’ve just ordered a manual wheelchair. TIP: you can get VAT relief if you sign a form listing your condition
I just adore you. You are so cheerful with that delightful dry humor
When I was I ill,someone suggested to me to use a scooter and even though I had severe anaemia that meant I had to have blood transfusions I still felt I was too able bodied in hindsight I wish I used the scooter rather than suffered! I agree with Claudia there definitely is a perception of scooters like you I wear vintage dresses and I felt like I couldn’t wear those clothes and ride a scooter because people wouldn’t believe I was ill because I didn’t “look” ill!
first of all, whatever you choose, you have to be comfortable! that said, a powerchair seems more practical to me as it can be used both inside and outside, can go on public transport, better agility, more customisation options re seat etc. I hope you will find the right one for you! very interesting series, glad you felt able to share this!
I'm excited for you to finally be taking care of yourself in this way! One thought I had was regarding color, I'm wondering if you could take your chair or scooter to a car garage and have them custom paint it for you? Have a mechanic take it apart, paint the metal bits, and reassemble it for you?
You can; you can also make it a craft project and customize it yourself.
I have both a power chair and a mobility scooter. My power chair comes apart and can go on the back of the car HOWEVER its ridiculously heavy, it does not feel sturdy and struggles even on some drop kerbs. Only really comfy on flat surfaces, no where to have your bag accessible to you. I would recommend a mobility scooter, the bigger the better too! They are comfy, sturdier, go up and down hills, go in shops with no problems and it goes so far on one charge. It has a basket so you can have your bag and shopping, i have a hook for shopping bags, stick holders and a cup holder! I've never had issues on my scooter and i couldn't imagine my life without it now, it really did change my life. Id suggest a foldable scooter for the car and a big comfy scooter for trips straight from home. Good luck and enjoy your new found freedom!
When they mentioned 28°C I was like "oh damn, that's chilly," and then they mentioned being sweaty and so i went "OHH riiiight, Britain"
So I work in a museum and often we have patrons come in with mobility issues or an injury (on crutches or in a boot). The museum is quite large with gardens and such so we have a sign that says we offer mobility scooters upon request. Also, with the models we have, they just run on car batteries so we have shelves of batteries that we can just pop in. And we use standard bike locks to prevent theft. But we did have a basket pinched once.
If the front basket it removable chances are someone will just take it, and they are difficult/expensive to replace, but if it doesn't look removable then people tend to leave it be.
If it needs a key to turn on somewhere down the road the key will break in the lock (currently watching a friend go through this problem of 'do I pay for a new scooter? or pay to have the lock redrilled and a replacement key?').
Please check if it can handle hard turns well, my grandfather didn't do this and he would make sharp turns and tip the whole chair over, this was a frequent occurrence with him.
Find a company who repairs the mobility aid, I was very fortunate that my childhood hospital had a company on-site that continues to work with me now that I have aged out of that hospital, they will replace everything from worn wheel treads to whole nuts, bolts, and parts, and if the aid doesn't come with a basket or bag they can recommend ones that will fit.
Don't forget to plug the mobility aid in at night, having it die in the middle of a store, or road in the middle of nowhere was not fun, and pushing it home was less so.
Finally, make sure that the aid can actually reverse, above mentioned friend who broke their scooter is using a temp scooter that cant reverse and they have to try to push themselves backward with their legs, especially in small spaces its difficult for them.
Thank you for making this it's so important. When first diagnosed I thought you could only get a mobility aid through motability. Got ripped off with a £3000 weigh a ton, virtually useless 3 wheel scooter. Thanks Jessica this will help lots of people 💖
A previous tenant in my apartment had a motorized chair (not sure what type specifically) that was so heavy that the older elevator would sink a little and the floors would no longer line up and she'd have trouble exiting it
I do not need a mobility aid or know anyone who does, but I enjoy watching your videos and being educated about disabilities (or in this case, disability aids) and options. Thank you for your videos, cheers from Croatia 😊
I clicked fast I know everyone comments this
But I really love your videos you are always so happy and somehow you are one of those amazing people whose happiness is contagious
When ever I watch your videos I’m happy even if I have had the worst day
P.S Also you always look amazing
My mom has breathing issues and has one very similar to the red Go Go Elite. It works really well. We’ve taken it on dirt paths and as long as it’s not muddy it does just fine. Goes up and down hills with no problem. She’s never felt out of control while on hills. Using it on a sidewalk is great. It doesn’t feel flimsy at all. We live in DC and go to museums quite often. She’s never had any issues with using it in museums. It steers easy and has a pretty tight turning radius. The basket has a surprising amount of room and she was able to put her oxygen tank between her feet comfortably. Once you get the hang of taking it apart and putting it back together it really takes no time at all. The only part you might have an issue with is the battery portion as that is fairly heavy. Everything else is pretty manageable. It’s been a lifesaver for her as now she can join us in our adventures instead of staying home. Also, she doesn’t get side eye from people when she stands up. I think the scooter makes it obvious to people that the person does have some mobility rather than a wheelchair which I think people would assume you have no mobility. When my mom wanted to go into shops that were small and cramped or not wheelchair accessible, it wasn’t a problem. She would just park it outside the shop. Kind of like what you would do with a baby stroller (pram?). Also, I agree with everything you and Claudia said in the car at the end. You’ve got it exactly right.
I had a friend who was in a power wheelchair. She struggled with going up and down steep hills.
I use a power wheelchair and yeah they're hard to tip but steep hills make me very nervous. I typically use a tilt function to compensate but even then it can't go everywhere, hills are a huge inconvenience
her voice is so soothing. when she says “Hello lovely people” it’s so lovely and soothing. ❤️❤️
This is so helpful, I started using a rollator and a wheelchair recently and it's great to know my options ^^
Loved the conversation on the way home(or wherever) public perception is not a factor that should matter but yet it's still one to be mindful of. At the end of the day what works best for you is what matters and I appreciate you educating people in an area we are not familiar, good luck on your search!🤗
Them: it’s 28 degrees
My American self: oh gosh cold
Kate Hanchon lol, I take it you’re not from Alaska? 😄
Celcius
I'm writing from the US, so keep that in mind. I have Multiple Sclerosis and have a Pride Victory 3 wheeled scooter I use at home. The 3 wheeled scooter has a better turning radius than the 4 wheeled. I was on vacation this summer and didn't want to risk the airline damaging my scooter to I rented one and it weas the Go Go version you tried. I liked it. It was relatively easy to take apart and reassemble. I believe it has about a 13 mile charge on it.
As for a power chair, in the US, insurance will only cover a mobility device once every 5 years. My neurologist said that my next device needs to be a chair because insurance will cover modifications, but they won't on a scooter. From the sounds of it, like with my MS, your disease may worsen over time, so consider whether or not you may need to make changes in the near future. Of course, check with your insurance to see what will and will not be covered.
I say, if you like the Go Go, go for it. I think it's a solid choice for your situation. Hope this helps.
P.S. I hope to reach out to you on Instagram soon as I think we have much in common. Cheers!
You really are an inspiration, I know you were feeling nervous about this video but thank you so much! No matter what the subject, you always bring such joy 💕
OMG. I’m totally binge watching this whole series. Glad you shared this with the world. These are the types of videos people need to see.... people with disabilities as consumers who choose accommodations that meet their needs on various levels. I especially like how you make it ok to consider needs like how it looks and how it makes you feel. One shouldn’t feel that they have to “take what is offered and like it.”
I an Electric wheelchair and I had it since I was 5 and now 13 PS if you need a adjustment the NHS(Doesn’t listen to you unless you Can’t get into your wheelchair) Strongly recommend a power chair please feel fee to reply.
You’re such an inspiration, not because of your disabilities (different abilities?) and your ability to overcome them, but because of your natural born ability to make people feel comfortable and loved.. Through a screen.
I’ve dealt with my own problems for a while, mentally for the most part, and GUUURL, when I watch your videos, I realise how small my issues are in the greater scheme of things, because of your bright and cheery view of the world, but also a realistic one.
Keep being spectacular ❤️
I CAN NOT THANK YOU ENOUGH!!!! I'm disabled & more or less housebound when my hubby is at work. My quality of life would really improve if I invested in some kind of motorised mobility aid but just like you am daunted by such a big financial investment and making the wrong decision.
Will your series touch on being able to take these aids on & off trains?
I really enjoyed this video and am looking forward to the others to come.
Again, Thank you!xxx
Thank you for taking us on this journey with you and your family
You should definitely look into Alber's E-Fix. They turn a manual wheelchair into a power wheelchair with a joystick so they and the wheelchair will also fit in any car.
I am glad you are doing this. As someone who sometimes needs a cane and sometimes doesn't, it took me a while to accept that this is how it is and to just get used to having a folding cane in my bag. I had to look for one that was light enough to carry around (so I won't be tempted to leave it at home or leave ME at home), and folded small enough to fit into a regular purse (so I won't be tempted to leave the cane at home or leave ME at home ...), and that was pretty enough for me to look at (i.e. I get the 'not look medical' thing). It was worth the search, and I've had this cane for years and years now, and I'm not sorry for one moment that I'd gotten it, even though it cost four times as much as a regular (medical ucky unfoldy) cane. Now, I know that a cane is not the same as a motorized chair/scooter/thing, but the concept is: take your time, look for what you think would work and the things that matter most (it seems - portability and stability?), and you'll see that you'll find a way for it to work out. Life's too short to not be able to do what you want to do 'just' because of pain and fatigue. If there's a mobility aid that can help with one or both, go for it! You're worth it. Life's worth it.
Ive had to start looking at get a wheelchair and was trying to decide between the two so I totally understand where you are coming from, I still haven't figured out what is best for me. If you read this here are a bunch of things I found out that is actually helpful to know when looking that often people don't tell you until its too late! 1. There is no chair or scooter that will work in all situations. Best to work on the most common or important thing you want to be able to achieve and focus on that. 2. If you have PIP in the UK Motability is a good way to get a very expensive piece of much needed kit in an affordable way but make sure you do it through a shop so you get the right thing for your needs. Also if you have the chair or scooter but not the right size car to fit it in then motability can also help you out. BUT the very important thing they won't tell you on the website or anywhere clearly with motability is you can only get a chair/scooter OR a car. Not help with both. Which can put a real spanner in the works when you are realising you do really need both!! 3. take a 1/3 off the mileage that a chair or scooter claims to have. That is based on no incline, in a lab, on a treadmill. In real world the power needed to cover inclines and everything else really does sap the power. 4.Think about insurance for scooters and wheelchairs its important and not something that gets mentioned often. 5. with power chairs in stability is important look at mid-wheel drive chairs they are the most stable and cope best with lumpy bumpy pathways. 6.think about accessories these costs often get forgotten and add up - seat pads to stop pain and sores from prolonged sitting, a spare battery pack is something no one thinks about. 7. Try it outside and inside, on inclines and flat spaces everywhere and anywhere you are allowed for an minimum of 20 mins to really get a proper feel for it. Hope some of this is helpful to you or other out there. Its a tough thing to decide on when you feel like your independence depends on it, in the end go with what feels right for you and don't let sales reps talk you into something you aren't sure about.
Issue with motability too is the car can only be used for the disabled persons needs so it couldn't be the family car. Claude would still need her own car so they'd be funding two cars and a wheelchair to go in the car. lol
I have powerchair from motability. A custom Q700m which is way better than what NHS can offer. Downside is chair needs adapted car but least it comfy to use on public transport. Portable powerchairs shake you round like a bag of spanners.
' car can only be used for the disabled persons needs ' it doesn't have to be,you can get ones with multiple seats if that's what you are meaning?
(apologies,it won't allow editing on mobile) we have a van from motability that can take 3 passengers,not including the wheelchairs,though it's a very large hassle to park.
I use a mobility scooter that can fit in the car, it's a little bit heavy but when you break it down to it's 3 components it's quite manageable. I love the fact that I can keep up with my husband when we go to the shops and it gives me the freedom to go off on my own.❤️🇦🇺
Some say, she is so posh that she has seen the queens knickers! All we know is, she's called The Jess.
I love how your dog co-ordinates with you. Also I'm sure you can find some vintage accessories for any device. Like a cute wicker basket with lace trim.
I reccomend looking at what the travel blog "spinning her wheels" recommends since she travels with hers
Great idea. My brother started out with braces on his legs, many surgeries, and crutches, until he had enough. Then he used crutches and a manual wheelchair until he started wearing out his shoulders and had to have surgery on them, he got his first electric wheelchair in his late 30’s,. We use his manual chair when he goes places. The chair would need a lift put on the vehicle, it’s too heavy to lift. They do amazing things and he gets a new version every 5 years and donates his old version to someone in need. He is now 59. I know you’re at the beginning of your journey, and you will find the right one. Have fun test driving.