As an old woman who occasionally goes to the park, I prefer that you assume I’m staring at you because you are a beautiful woman in a glamorous dress when everyone else is in jeans.
It's weird that people stare. When I see someone I'd like to stare at I ignore them completely, because I don't wanna be disrespectful. But if they're hot I'll steal a glance once in a while.
I agree the grouping could have been phrased differently. But I think it’s clear what people’s attitude is when they’re staring. They both noticed it, and they were specific about the difference between the looks they got in the previous trip. A stare of judgement feels different from one of acceptance. Jessica and Claudia aren’t crazy. Still, you’re within your rights, of course, to point out that you were offended that they mentioned all the judges seemed to be elder women. I’m sure there were some elder women who minded their own business.
Boy do i know it!! She's amazing and boy do i remember the struggles my family had with my 6 ft plus stepdad having to use a hospital reject manual chair ans what a nightmare it was! He was having a heck of a time getting around our old house, going to walmart was a special occasion and i can't even imagine the headache it was for him while at work as a teacher in a medium security prison (he taught GED, for those not from the US, the test to graduate from high school if you didn't get the typical diploma from staying in a traditional high school) it was really a relief when he got a scooter and how expensive it was really held him back from getting one until the sunsetting months of his life. It meant alot to him to be able to go outside since he really valued camping, used to race bicycles and being able to travel during his more able years. The one he had was fast, none of us could run past it and felt almost like a motorbike, so a little manly like he was, burgundy red which was his favorite color, so gave him some of the feelings he might have had when he was back on his bike. I'm so glad she gets to use one now and not only improve her current quality of life but potentially extend/improve her "normal" into her future for a longer period of time. So happy for her!
BuddyBontheNet the bike is foldable so she can keep it in the trunk of the car easily if need be, Fantastic feature! Honestly not much bigger folded than an ordinary wheelchair.
It's totally true though! I just got my second a few weeks ago, and it's because a mainly outdoor one can do things an indoor one can't - like allow me to keep up with my kids while they bike
I could imagine some sort of sticker on the mobility scooter saying "beautifully disabled" :) it would help with the staring and be super cool at the same time 😎
I guess because some have met people who act really rude with these scooters and it makes you feel like they are taking advantage of it - like just driving ahead and expecting everone to jump out of the way at full speed. It could of course be because they are tired of ableist people. (Which I get - but come on) If it's your first contact to disabled people, it gives a bad impression. (I had a very bad opinion for a long time - thank god for the internet and being exposed to more information.) Public places should be more accessable for disabled people, instead of "hiding" them away. At least thats how it feels to me.
@@Yakarash some people who aren't disabled are super rude and expect people to jump out of the way for them. I don't assume everyone who isn't disabled is like that though because I know that would be wildly inaccurate to generalize a group like that. I think the main problem really is disability and chronic illness are not well understood by society as a whole. I know I didn't understand them much until I got chronically ill and disabled myself. I wish at least the general public understood it's rude to stare at someone, and that definitely includes if you're staring because someone is disabled or ill. I feel like the reason I get stared at less with the stickers is because instead of staring at me and "trying to figure out what's wrong with me", the sticker blatantly tells them I'm chronically ill. It's like I literally have to label myself to get people to not stare which is ridiculous
@@michelleswanson6347 Wether we like it or not, we tend to generalize based on what we know. Only by being aware of it and fighting it, can we overcome this. When I met my future husband, he had the same name as a student of mine who had been in a horrible accident. That alone was enough for me to not become his friend, because it brought back those memories. It wasn't fair to him and I had to actively fight against those feelings. It takes time to unlearn prejudices. In my dream society, we would educate children and make sure, they have enough contact with people from all kinds of background regularly. I guess society as it is struggles with people who don't fit the norm. Although I believe a lot of that is because so many of us hide our differences. For those who can't it is double hard. I wonder if it would be easier if we'd be honest with "hidden" disabilities and illnesses as well. I know so many people with Depression, bipolar disorder, autism, etc. If we where more willing to talk about it, would we be more open to "imperfections" in general? I love that nowadays people can have a voice online. I have learnt so much through channels on youtube and podcasts.
I'm honestly so happy for you that these companies sent you their products and so now instead of having to choose, you have basically all the options right in the palm of your hand. The bike is absolutely my fav and you could so get that redone in a bodyshop to look more your style, look for places that do hotrods and that.
Its probably one of the few good things to come out of this whole pandemic thing. I can get tele-consults with my specialist where before i would have to take time off work, reorganise my roster, get to and from the specialists office....a phone call is just so much less stress
Couldn't agree more! Or purple velvet and gilt.....? I need to make my 'pimp my ride' service official... I've already pimped my walking stick and my Dad's 'chair.....
@@stephaniemcintosh2808 pimping mobility aids is essential! (Unless they look like Jessica's adorable new scooter ;) ) I never properly pimped my last powerchair - only partially - but I certainly will do with my new one
As a person with an invisible disability I truly appreciate your content. When you were talking about how people were staring at you on your mobility aid, I get that too because I don’t “look sick“. Thank you!!
I'm soooooooo happy for you!!! I too am young and have a mobility scooter that looks "too cool" and people often question if I can bring it certain places - especially in business and shops. However, I have found that if I hang my handicapped parking placard on the handles or the back, people are much nicer and it makes it so much easier to "prove" I can take my scooter wherever I need to go. I actually often use my expired parking placards for this so I can use my current one for parking!
I used to hang a disabled symbol on my daughter's pushchair (as I used it as both her pushchair and a walking frame for me!) so no-one would ask me to fold it on the bus or train and because of it people offered me seats frequently. The odd person here and there thought it meant my daughter was the disabled person though! Not quite sure why I'd hang a big sign on her pushchair advertising her disability if she had one though heehee
Ohh I absolutely looove when doctors ping pong me in between each other it's like when you were younger and you asked you dad a question but he tells you talk to your mom but then your mom tells you talk to your dad, just a wonderful experience filled with two specialists that have no Idea what is going on
You have to learn to speak doctor. If you can talk to them with the fancy terms they went to medical school to learn, it tends to put them off the "I know more than my patient" attitude. There are a few doctors out there that cheated their way through school, and tend to be the worst offenders for dismissive or ping pong tactics, while some are just under-educated in particular issues. This strategy plays both of these unhelpful doctor types; the cheater will be terrified since you can actually catch them in their fraud and will at least refer you to someone likely to help to ensure you won't come back (they are rare, but I've thus far met two and had one's license revoked due to malpractice); The under-educated gets played by their ego since you as a patient can know more than them but shouldn't by the general standards of how doctors tend to think (I went to school for so much money and time, it had to be worth something others can't just learn from a textbook right?). The family doctor I had in high school when my immune disorder kicked in was the under-educated type, he was a decent GP but clueless with immune issues. Well I figured it out, he tested for it, tests proved it, and he treated me better as a patient. He actually thanked me a couple years ago for teaching him to be a better doctor, he laughed that I was favorite difficult patient because I kept him humble as a doctor. Shame he told me he retired that same day and I'm now fruitlessly three years into trying to train his replacement, who is a stubborn egotist I get to replace when I move in 4-5 months.
Yeup! I thought I had carpal tunnel and have been ping pinging between general practitioner and physical therapist. Apparently I dont have carpal tunnel I just have forever pain with no explanation or compassion from people to continue trying to figure out why I am in a constant state of pain (:
I used to struggle with the concept of gears too!! Until my dad taught me this When going up hills or inclines you want the lowest number, for example 1. He taught me to think of it as carrying someone up the hill, you’d only want to carry one, not 2,3,4,5,6 as the gears on your gorgeous tricycle go. But if you’re on flat ground it’s much more manageable to carry more people (easier to push the pedals as there’s no resistance from the hill) (and obviously it uses a bit of your imagination because no one could POSSIBLY carry six people) It sounds silly but it really helped me get the hang of how they work, and I hope this helps you too!!!!
This series convinced me to finally get a walker so I can actually go places without searching for a place to sit every five minutes. I walked around the store with it and it’s wild how much of a change not lifting my cane every other step makes
I'm having a similar problem lately, except I don't think I need a walker. I walk with two canes, and that's okay for me now, but my problem is I get tired often and need a rest where there are often not places to sit. I'm hoping to find some sort of light, foldable/compact, but strong chair or stool I can strap to my backpack to have a quick rest on my hard days.
@@Marialla. I know this is a year later 😂 but there are canes with built in stools. They look a bit bulky, but could serve your needs well if you've yet to find a solution
When you expect her to get just one, and then she gets 3 😂 I'm so indescribably happy for you! Now everyone get of the streets and make room for Jessica! 😂
@@violightghost8592 exactly. I'd rather be noted for being pretty and disabled but I have that 'you've really let yourself go' aesthetic I'm working with here...
The price is about the same, so not an entirely inaccurate comparison. I wanted that tricycle. I do not have an extra £1500 for it sadly, so no adorable bike rides with my fiance.
I used a wheelchair for the first time out in public the other day!!! I went to the art museum to see the Claude Monet exhibit and it felt so freeing to not worry about rolling an ankle or dislocating my hip! 😊 Just wish people wouldn't walk in front of me while I'm wheeling lol!
Andrés Fincher it took me a while to realize some people just don’t look down at all. We’re the height of a child in a chair, so how many children do these people step on?! But truly elevators are the worst. They have no idea of personal space and the shall I say bits and bobs well and bums that end up in my face is appalling! People please be aware of people in wheelchairs on the elevator, and for goodness sake stop racing the disabled to the elevator or the checkout line.
@@melissamelech9536 they were very nice! Brought it right to me at the beginning of the exhibit and helped me beg from the second floor back down to the first through the employee only area. It was a great experience and honestly would do it again.
We need a right priority rule for wheelchair drivers in the law, so nobody can ever step in front of you without expecting it, and you can sue those people, muahaha!
When out and about, my SO is in a powerchair. That's a 300lb piece of gear that does NOT stop on a dime. They've clipped many a foot that's stepped out right in front of them. And yeah - I'm thinking of getting some kind of bike flag for them so that there's something there to draw the eye and get people to recognize that there isn't an open space there. Having said that - I suspect some of the feet clipped belonged to jerks who absolutely saw my SO and stepped closer to them than they ever would someone on their own two feet.
As someone who uses a wheelchair/mobility scooter in my 20/30s I definitely relate to getting odd looks for being 'too young' to need a wheelchair. I had to buy my own mobility scooter as when I asked social services they said I need to be accepted for needing an indoor wheelchair and use it for at least 6 months before applying for one to use outdoors. As I don't usually need a wheelchair inside (on my bad days I tend to use my stick - my flat isn't wheelchair suitable anyway) so that stopped me in my tracks. Am glad you've found your unicorn(s).
Tamara Epps that's insane. Plenty of people who need a scooter to get down to the shops or around the park or whatever can manage around the house - a few steps from one room to the next is not like getting down the street.
@@tealkerberus748 Exactly my feelings. Luckily I knew someone who could loan me the money for a scooter and it has really changed my life, but I put it off far longer than I should have because of this.
So the basic assumption is that you need to be stuck inside a house (if you don't feel comfortable /can't use the wheelchair outdoors) for half a year to get some help in moving around outdoors....Great system 😑😑😑
@@MrsScorpionette the basic problem is that UK social services are massively underfunded and oversubscribed. They are free to use, which is great and so much better than many countries, but you have to be at the most needy end of the spectrum before you qualify for any help at all, even then you usually need to push hard and shout loudly before you get it (voice of experience here). And, as the OT in the video says, they'll only really help with the most basic things, like washing, dressing, moving around your house and making a sandwich. Going outside apparently doesn't qualify as a basic necessity. When I needed a wheelchair (fortunately for quite a short time) we borrowed one from our local Red Cross, which lends them out in return for whatever donation you can afford, which was great because we were also broke. It was an absolute lifesaver for us.
I am so happy you were able to find your unicorn! And a retro scooter that will work for you to go out and about! AND A TRICYCLE! It will be amazing to see how this affects your energy levels and general life. Claudia, Tilly, and Walter are going to have to try to keep up!
Two bits of safety advise since you haven’t ridden a lot 1. Always always always use your back breaks before your front breaks (otherwise you’ll go head first over the handlebars) 2. It’s a three wheeler do not make a sharp left or right turn when you moving at any decent speed (you’ll flip the bike in the opposite direction of the turn you turn left but your body will go straight ahead or to the right). Other then that congratulations I’m so happy for you!
Oh geez, I got teary-eyed. I'm so excited for you, these 3 look absolutely stunning! I'm so glad that those companies reached out to you and that you're now so much more independent/comfortable. You deserve this. As a matter of fact, as an able-bodied person, this series taught me that many disabled people in need of a mobility aid might have the same problem of wanting to be mobile in- and outdoors and it frustrates me that nothing quite fits perfectly... I feel like every disabled person who is in need deserves to have access to a scooter AND an electric wheelchair.
I'm stuck on the horns of that same dilemma. I now have a second-hand Pride Go-Go scooter but it is hell to use inside because of the trouble getting onto and off elevators; same trouble outside using the bus or taking it apart to put it in a car. (sigh). Power chairs have the unlikeable "joy stick", are heavy and awkward to transport, and are too expensive for me to have both. There OUGHT to be something that considers these problems and combines the two aids!!!! Also. who has room to store 3 mobility aids?
Nona Hammon I’m in the same boat as you. I have a jazzy electric chair but the bloody ramp to get it into my car alone weights 45lbs not to mention the weight of the wheelchair. I can’t go anywhere alone with it. I want something I can travel easily with alone. That doesn’t cost me my precious violin (that’s what I had to trade for the ramp because insurance doesn’t believe you ever need to leave your home). We need better and more stylish options because they’re bulky and ugly now.
As a long time cycle commuter the most important is: make sure everyone knows where you are. On a road with cars? Make sure they can see you! Passing someone on a path? Announce to them your approach. And of course be respectful. If you can get out of the way of the vehicle or pedestrian when you share their space, do. As for gears, Higher is Harder but faster. The rest you will figure out from trial and error. Just like the rest of us! :)
Same. Mostly for the same reasons as Jessica. I used to stick training wheels on my bike but it the last bike I did this with has probably long since rusted away in the shed. Also I’m pretty sure it’s a children’s bike (i still might need a children’s bike as I’m only 4’8”). Also also I don’t remember where my old helmet is and there’s no way I’d ride a bike without one
Based off of the music at the beginning, I fully expected her to reach through my screen, grab me by the neck, and ask what my mobility scooter preference was.
not going to lie, after the: "If you can’t fond a unicorn get a stable of horses" bit I had to stop snd rewind the video because I was laughing so hard I couldn't hear the rest
Yeah, I got diagnosed with fibromyalgia years ago and I've gotten NO long term care. I need mobility aids, I need treatment, I need feeling like someone cares yet all I've gotten is I was mocked for using a cane by a physio therapist, got told I absolutely cannot take painkillers and got told I'm only in pain because I'm crazy
René Price I’ve had back problems since I was sixteen, all the doctors say is to lose weight. There’s no effort into finding out if there’s a real problem or not...
René Price that’s awful, I am so sorry to hear that. I’ve worked with people with fibromyalgia. In my country depending on how disabiling it is people get either physiotherapy or more (psychologist, art therapist, doctors, nurses etc). We also are very wary of (daily) pain medication with chronic pain, because when used frequently it can unfortunately no longer help or sometimes even worsen the pain. However, that doesn’t mean you shouldn’t have access to help and proper guidance in using tools and/or medication. Fibromyalgia does not mean you are ‘crazy’. It’s psychosomatic physical illness, which is not the same as a mental illness. The pain, fatigue and bowel issues are very real and disabiling. Anyways, I am sorry if I went off-topic, but I just wanted to say fibromyalgia is real and you are not faking it, René.
I'm really sorry, I don't have fibromyalgia but because of my mental health I can get anxious to the point of excruciating pain such as the time I had to be out of school for six weeks and I'm always nervous that people will think I'm being over dramatic because it's technically "not real"
Regarding the gears: If you're in a high gear, you'll need a high level of energy to pedal, if you're in a low gear, you'll need a low level of energy to pedal. Same goes for your engine. Thus when it goes up and it's already hard to manage, you go in a lower gear to compensate, whereas on flat surfaces, you want to be in a high gear to get the most speed out of your energy :)
I think that explains it pretty well. On a bike low gear is for going up hills while higher gears are for going downhill or on flat ground. Low is slow. High when you can let fly.
@Diejt Childs The Lazy Gamer it's the same logic in cars. I guess the easiest way to explain gears is that when you go slow -> low gear, when you go fast -> high gear.
😭 I have NEVER EVER been more proud that I signed up to be a member of The Kellgren-Fozard Club (since the day it launched) as I am right now!! Seeing the smile on your face, the freedom of going to the park easily, your phenomenal "Go ahead; mess with me" look you gave with your sunglasses on whilst cruising on the Green Power Mobility "Motorcycle" (that looks NOTHING like a power scooter, it is way too cool)! I cannot express my happiness for you as well as the whole gang. These are going to be life changing tools for you to use in all different circumstances. The world is now your oyster darling Jessica, grab Claudia & go explore! You never know what you might find!! 🤗💜🦋😘🐾🐾🙏🏻!
This is the best ending to this series I'm so glad these companies reached out to you. It's also awesome you were able to display all these awesome cool looking mobility options!! Its a win-win!
As an Occupational Therapy student I have been loving this series, it's been really eye opening to see what goes into choosing an aid and how difficult it can be to find something that allows you to fully participate in everything you want to do! Also I squealed when you mentioned Occupational Therapy and really loved the video interview with Jo Southall! Thank you for allowing us to follow you Jessica xx
I'm so happy for you, I think most of us crossed our fingers that one of these companies would reach out to you and provide you with the dreamy vintage scooter and the E-Tricycle! So very glad it happened, you deserve it. Can't say I learn much in this series because I've been through it as well and I pretty much know that the prfect solution is.... SEVERAL expensive mobility aids. Which I can't afford... BUT I loved watching it, and I found it useful to have videos that explain everything when I don't have the energy to, and it's just nice to know you're not on your own struggling. Countless of your videos helped out in the past, so it's just really cool to see your hard work paying off lately, and this is just a really cool example of it all! Can't wait to see tons of video and pics of you and Claudia riding along, and enjoying the extra bit of freedom and mobility
Actually it makes a lot of sense to need more than one mobility aid to get everywhere you want to go. People who are able to walk usually need more than one pair of shoes, like sturdy hiking boots for off road terrain or light and cozy slippers for indoors. It would be nice if there was a "one fits all terrains and situations mobility aid".
Yay for supportive companies. And yes, this really is a good solution - I have a recumbent trike, a powerchair, a manual chair with powered wheels (currently being fixed) and a lightweight manual for around the flat. I'm seriously considering a folding wheelchair in the future as currently none of my mobility devices fold which is a... disadvantage. Very few wheelchair users I know have only one chair - partly because they break so bloody much and partly for different situations. On the being stared at in the park - I'm not surprised - have you consider putting a disabled/wheelchair user sticker on it which would possibly make it very slightly less cool but potentially make people less confused. On the gears, I'm not sure this will help but think of it as they are trying to make it so you have to put in the same amount of effort all the time - so lower gear = easier work so it's for when other things make it harder (i.e. up hill), higher gear = harder work so for when other things are making it easier (down hill). Also when going up turn gears down, when going down turn gears up.
I am so happy for you! I legitimately teared thinking of all the places you can now go. So incredibly liberating! Also inspiring (in the none condescending way). This is a huge decision/change and I’m so impressed with how you handled it! As for the gears: I have vector related memory issues. What I ended up doing was taking a pretty gold paint marker and writing which way the gears shifted right on the gears themselves. Unless you were riding the bike it just looks like a little decorative flair. Have you considered designing a sign that says “this is a mobility aid” in a more stylish vintage way of course. You could put it on your scooter to avoid glares and also sell it in your store for people who are having similar issues.
Gear rememberance thingy- when you go uphill, you’re slow and want to be low (low gear), if that doesn’t help up is slow- slow DOWN (down aka low gear). When you’re going downhill you’re fast. When you’re fast you’re speeding UP (up aka high gear).
So happy for you! My son is only 5 but finding him a suitable wheelchair has been a nightmare, thankfully the wonderful people at Whizz Kids are helping and we his chair in February xx
so fantastic they are helping - it's hard enough trying to get mobility aids as an adult - that parents have to struggle to find aids for their children is horrendous - that the NHS/government don't even provide basic cover for all this is inhumane. Many many people I've spoken to think the NHS bought me my powerchair. Oh no sir. Some also think I am 'given a car for free'. Nope. Have to cash in all of my mobility allowance plus pay for petrol ourselves. I think the government do very well convincing the general public that they provide properly for disabled people when charities are the ones who really support us and our families. I hope his chair is fantastic and wonderful and gives him great support in his life. Sorry for the essay x best wishes x
@@ixykix If only it was just NHS, it is a common tactic of public health agencies. In Canada we do have a lot of stuff that gets covered, if you meet ridiculously specific criteria according to office workers with no medical expertise. My immune disorder causes horrifying muscle pain that made walking feel like I was doing it with a set of kitchen knives jammed in my thighs and thus actual torture. I have never been approved in 20 years for mobility aids despite having the immune disorder that causes severe mobility issues during flare ups (even as immune suppressed as I am now) and I had multiple instances of paralysis on par with spinal injuries during my kidney failure (No spinal injury, but potassium poisoning can mimic the symptoms as a not so fun fact). The agencies here move money around when they announce they fix an issue, there was a big stink at the beginning of the year about not being able to afford rent, so they cut our funding for new glasses from 1 pair/2 years to 1 pair/3 years so they could give us all a raise.. that still doesn't let us afford rent, and makes me have to pay for an extra pair of glasses that costs more than the raise over three years combined. The public and even a lot of our community falls for it because they go out of their way to make sure we have as hard a time as possible finding out what programs we might qualify for.
GOSH I wish I knew those power tricycle existed 10-5 years ago when my EDS legs were still working a bit sometimes! Yours is soooooo cool! Anyway, I have now a foldable power chair like yours and it's all I ever needed (I wish I could have a scooter too to look less 'disabled' but I don't have enough room in my house for this). Your stable of unicorns is perfect.
Ok so I am aware that these conpanies are of course sending her stuff for advertising purposes aswell, but like, can we all pls appreciate how amazing it is that Jessica now gets to have ALL of the 3 things she wanted? It makes me so happy for her!
As someone with varying conditions- this video has given me incredible hope. It’s hard to know what you need and to know how you’ll afford it- but seeing how happy you are having these and using them, and knowing that your life provided means so much ❤️
Every part of this video brought me joy, but as an able-bodied person who loves riding her vintage-style bicycle the most wonderful part was when you got the tricycle that allows you to experience the delight that is cycling ❤
This is amazing! I’m gonna have to look into it. I’m getting a manual wheelchair with a smart drive but it’s been since June trying to get everything through. My insurance finally overturned my appeal last week, my occupational therapist and physical therapists rejoiced because they really want me to have it... so now I have to wait for the appeal to make its way to the medical equipment company and be custom manufactured.... sigh. The process is ridiculous. This mobility aid is the cutest ever
I have epilepsy and other comorbidities. Recently I bought myself a tricycle. I call her my Red Lassie. She's enhanced my quality of life so much. The weird thing is by pedalling her, I've got more energy than ever before and I'm more active at home. Lassie has been a real life changer.
I think this video should be viewed by everyone because it shows what can happen when you enpower those of us with disabilities. The joy, excitement, happiness and pure emotion, satisfaction and empowerment was amazing!
As a current occupational therapy student, I absolutely love your videos! They are so educational both for the general public and for therapists. I find that I have learned so much from your decision making process for mobility aides, your views on "function" and "normal", and your wonderfully well put video on the problems surrounding the plastic straw war.
Ah you look like you are having lots fun. Congratulations lovely. I too have awful looks from people that are older than me. I am 37, I used to use a 4 wheeled walker a lot, and old ladies would spit lava at me they were horrid. I use a powered wheelchair now ........ And it's even worse!
that last bit with the tricycle made me actually start tearing up. as a kid, one of the few ways my dad would successfully bond with me was by us riding our bikes together (admittingly, because it was one way we could be together but not have to talk, because he was p awful. but i still craved good memories with him, just like all kids do with their parents. and i got the luxury of having good memories with him through bike riding, where, because we couldnt talk and bike at the same time, talking couldnt spoil anything). but as my chronic pain in my legs got worse as i got older, i kind of succumbed to the fact that id probably never get to go on a bike-ride again i found this channel relatively recently thanks to a friend recommending it to me, as i was looking for more disabled youtubers for comfort and advice as i struggle to get a diagnosis and, hopefully, mobility aids. which part of my journey of accepting that im disabled meant cementing the idea of not being able to do certain things, and though that is true, i had fully accepted until this moment that riding a bike again was one such impossibility for me since it drains my chronic fatigue too much and worsens my leg pain. and, tho i dont know if i want kids yet (in no small part because i want to make sure i have the emotional capacity/stability to be a good parent to them), the idea of not being able to ride a bike with them was an idea i apparently suppressed. and i hadnt realized how much the idea's possibility meant to me until i saw you riding one, and i realized "I could ride a bike with my future kids" and started crying before i even finished the thought i felt like Pam Beasley, from the US version of The Office, when she realized via talking aloud she would have to give up on her childhood dream of a terrace, and not realizing until she spoke the words how Not Okay with no possibility of the idea she was as she started sobbing mid-sentence. thanks for pointing me to a possibility for me, so i can keep the idea alive. it means a lot. i definitely have saved this video (and the others in this series) for future reference, should i decide i want beyond a possibility, that i want a reality, with that dream. thank you for that. thank you so much ♡
Jessica. I am so happy for you. I am so grateful that the two companies gifted you a mobility device and that now you can truly live your life to its fullest. Have fun biking with Claudia.
"Video calls are the future." And then, three months after this was posted, video calls with medical professionals became the standard way of doing things. I really hope it stays that way.
Congratulations on finally getting not one but three mobility aides that you legitimately need for yourself. They are truly amazing, and fit what your looking for at this stage in your life. I am so proud of you. Really, if someone is looking at you and Claudia and your dogs in the park, I would only assume they were admiring a lovely family outside enjoying beautiful day.
Oh. My. Goodness! 💜💜💜 “pimp my wheelchair” LOL I just imagined the funniest thing! Jessica looking fabulous as always💜 saying in her PERFECT accent “Yo, dawg! I was told you like moving around. So we put some wheels and a motor on this pretty folding chair so you can sit while you roll everywhere!” XDDD
I'm so happy for Jessica! Three different mobility aids that meet her various needs and that look as classy as her (or will soon)! I hope we'll get to see more of how these integrate into your life and the things they enable you to do that were not possible before.
I'm so excited for you!! I know the last time I tried to ride a bike I definitely took out some flowers and felt horrible about it. I didn't feel safe and ended up walking the bike back and decided that it was just beyond not safe to do that anymore. It's hard to accept that the things I did as a child with ease are just not a thing I can do anymore. You looked so happy though.
I love that you were able to get some aids that also happen to fit your aesthetic and make you look *completely adorable*. It seems like so many things made to help with disability are just always so bare-bones and sterilly practical.
Literally smiled so much throughout the entire video! I'm so happy for you that you found some great aids to help you move better and retain your independence (and have some fun!) :) I would suggest for the GreenPower scooter, to stop people glaring, perhaps put a large-ish sticker on sides or back that says "Mobility Aid" or something like that, so people can clearly see it's a mobility aid for you. That might help a bit!
The section talking about video calls being the way of the future is eerie as all hell nearly one year and a whole entire world pandemic where we cant leave our houses later lol. You two were right!!!
I can't believe they won't send you to an OT! I've been going since I graduated from high school. They help me by filling in where my executive functioning lacks, they help me advocate for myself and make sure that my school is following my accommodations. They'll help you with applying for jobs paying bills and doing the things you need so you can live independently. They had a practice apartment in the same building I lived in. They would help people with disabilities transition to independent living.
I welled up in tears a little to see you on a tricycle. It was wonderful to see an opportunity for more mobility aids in your life. I do hope that this helps others get more in theirs.
Oh my goodness that is such a cute scoot in the opening! As someone who used to ride about on a 50cc moped it's super nostalgic! I'm now ambulatory as well and looking into options and that one just landed in my heart.
I'm so happy you found your unicorn, it is so you! Also, I got my first wheelchair today and I was feeling a little bit wobbly about it, but after watching this I'm reminded that mobility aids aren't a bad thing and I'll get so much independence from this:)
I'm so happy for you! These are truly two of the best sponsorships/gifts I've seen on RUclips. Hopefully your new house has a garage with plenty of room to keep them in great condition! I also really wish we'd known about that folding electric wheelchair when my mom was alive. It could've really made all the difference for our family and her quality of life.
Wow! Huge shoutout to Green Power and Jorvik for reaching out to you, and for showing us just how cool and cute mobility aids can be! I would have never imagine a scooter like that, nor a tricycle like that AS A MOBILITY AID. They all look medical and like wheelchairs or scooters in markets.. NOPE. Not anymore! So Happy for you Jessica! I am happy that your fans helped you along the way in getting your indoor chair, which while somewhat boring, will be amazing once we get that episode of Pimp My Chair.
I honestly don't need a mobility aid or anything of the sort, but I simply adore watching and listening to you on the matter. I've learned so much through this series and I'm so happy you found your mobility match! 💕💕
You're lovely, eloquent, and I am thrilled that there are humans, like yourself, who take it upon themselves to inform, educate & advocate for the disabled. My journey speaks of similar struggles, obstacles, and epiphanies I've encountered. That's one helluva ride!
I would like to thank you for making these videos. I personally really enjoy your upbeat personality and informative videos, but I've also recommended you to my mother who has become progressively less-abled over the last 15 years. She really struggles with this, partly because she was only 42 when it all started. So I really hope that she enjoys your videos as much as I do, and that she finds them relatable. PS. I'm super happy for you that you were able to get such wonderful mobility aids! (that scooter is super awesome!)
As an able bodied cycling commuter (with hills in the US) I absolutely cried when you wheeled around on the tricycle and your response! My bicycle has given me so much freedom and I'm so happy for you to have a group of aides that give you independence! Really insightful to watch this series as an able bodied person. I definitely have more empathy for this search, I had no idea quite *how* complicated it would be! Now we need the attractive mobility aide revolution!
This put the absolute biggest smile on my face - I'm so happy you've found these aids that work with your variable condition! Love all of them, they're all incredibly unique and spiffy and well-suited to you!
I am an OT, in Germany, and I am so happy you found a way to get help and have the support you need. How ever things work for you is great. And I absolutely love seeing you so happy with your powered mobility aids. Lovely greetings from Jessy
I found myself getting excited when you were talking about your vintage goddess mobility aid! She's a beauty! Also, I think you should start a new series called "Look at me go" now that you can go on lil adventures by yourself. 😊
I am SO glad that this monumental decision has turned so so well for you. You definitely deserve it and those Companies were very smart to recognize your needs and influencer advertiser power! Kudos to all!
both the electric bike and the gorgeous scooter are just!!! wonderful!! they fit that vintage glamour perfectly!!! the bike also seems like a great way to get some very gentle exercise when you're feeling more energetic!! so happy for you!!
![I was misdiagnosed [CC]](http://i.ytimg.com/vi/xzBynfWHUMY/mqdefault.jpg)
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As an old woman who occasionally goes to the park, I prefer that you assume I’m staring at you because you are a beautiful woman in a glamorous dress when everyone else is in jeans.
I'll vote for that 👍️ :-)
It's weird that people stare. When I see someone I'd like to stare at I ignore them completely, because I don't wanna be disrespectful. But if they're hot I'll steal a glance once in a while.
She is pretty stunning.
@@unicorn1655 Same.
I agree the grouping could have been phrased differently. But I think it’s clear what people’s attitude is when they’re staring. They both noticed it, and they were specific about the difference between the looks they got in the previous trip. A stare of judgement feels different from one of acceptance. Jessica and Claudia aren’t crazy.
Still, you’re within your rights, of course, to point out that you were offended that they mentioned all the judges seemed to be elder women. I’m sure there were some elder women who minded their own business.
I really want someone to make a cute t-shirt design with Jessica on her scooter with the text "they see me rolling, they hating" in the background
I'd buy them as Christmas gifts for damn near everyone I know!
And she has to be wearing sunglasses
I'm so happy for Jessica, that she managed to get three aids for different occasions! If there was ever a most-deserved sponsorship, this is it!
My sentiments exactly!
My question is where on earth will she keep them all?! 😂
@@wilmaknickersfit 🤔
Boy do i know it!! She's amazing and boy do i remember the struggles my family had with my 6 ft plus stepdad having to use a hospital reject manual chair ans what a nightmare it was! He was having a heck of a time getting around our old house, going to walmart was a special occasion and i can't even imagine the headache it was for him while at work as a teacher in a medium security prison (he taught GED, for those not from the US, the test to graduate from high school if you didn't get the typical diploma from staying in a traditional high school) it was really a relief when he got a scooter and how expensive it was really held him back from getting one until the sunsetting months of his life. It meant alot to him to be able to go outside since he really valued camping, used to race bicycles and being able to travel during his more able years. The one he had was fast, none of us could run past it and felt almost like a motorbike, so a little manly like he was, burgundy red which was his favorite color, so gave him some of the feelings he might have had when he was back on his bike. I'm so glad she gets to use one now and not only improve her current quality of life but potentially extend/improve her "normal" into her future for a longer period of time. So happy for her!
BuddyBontheNet the bike is foldable so she can keep it in the trunk of the car easily if need be, Fantastic feature! Honestly not much bigger folded than an ordinary wheelchair.
Jessica saying “pimp my chair” in the most British accent possible is the best thing this century.
"If you can't get a unicorn, buy a stable of horses!"
Spoken like a true queen
Hyoko As an horse owner of 10... Yes!! ❤️❤️ Thats excactly it.
It's totally true though! I just got my second a few weeks ago, and it's because a mainly outdoor one can do things an indoor one can't - like allow me to keep up with my kids while they bike
This quote... actually makes a lot of sense and isn’t bad advice for different situations that are best handled by different solutions.
@@michelleswanson6347 I thought you were talking about horses for a bit and was terribly confused why you needed an indoor horse.
I could imagine some sort of sticker on the mobility scooter saying "beautifully disabled" :) it would help with the staring and be super cool at the same time 😎
That's why I use stickers. It just really stinks though that we even have to do this though. Why can't people just not stare? It's so rude
I guess because some have met people who act really rude with these scooters and it makes you feel like they are taking advantage of it - like just driving ahead and expecting everone to jump out of the way at full speed. It could of course be because they are tired of ableist people. (Which I get - but come on)
If it's your first contact to disabled people, it gives a bad impression. (I had a very bad opinion for a long time - thank god for the internet and being exposed to more information.)
Public places should be more accessable for disabled people, instead of "hiding" them away. At least thats how it feels to me.
@@Yakarash some people who aren't disabled are super rude and expect people to jump out of the way for them. I don't assume everyone who isn't disabled is like that though because I know that would be wildly inaccurate to generalize a group like that. I think the main problem really is disability and chronic illness are not well understood by society as a whole. I know I didn't understand them much until I got chronically ill and disabled myself. I wish at least the general public understood it's rude to stare at someone, and that definitely includes if you're staring because someone is disabled or ill. I feel like the reason I get stared at less with the stickers is because instead of staring at me and "trying to figure out what's wrong with me", the sticker blatantly tells them I'm chronically ill. It's like I literally have to label myself to get people to not stare which is ridiculous
@@michelleswanson6347 Wether we like it or not, we tend to generalize based on what we know. Only by being aware of it and fighting it, can we overcome this.
When I met my future husband, he had the same name as a student of mine who had been in a horrible accident. That alone was enough for me to not become his friend, because it brought back those memories. It wasn't fair to him and I had to actively fight against those feelings.
It takes time to unlearn prejudices. In my dream society, we would educate children and make sure, they have enough contact with people from all kinds of background regularly.
I guess society as it is struggles with people who don't fit the norm. Although I believe a lot of that is because so many of us hide our differences. For those who can't it is double hard.
I wonder if it would be easier if we'd be honest with "hidden" disabilities and illnesses as well. I know so many people with Depression, bipolar disorder, autism, etc.
If we where more willing to talk about it, would we be more open to "imperfections" in general?
I love that nowadays people can have a voice online. I have learnt so much through channels on youtube and podcasts.
@@michelleswanson6347 Sorry. I didn't want to make up excuse for people staring. It is super unconformtable.
I'm honestly so happy for you that these companies sent you their products and so now instead of having to choose, you have basically all the options right in the palm of your hand. The bike is absolutely my fav and you could so get that redone in a bodyshop to look more your style, look for places that do hotrods and that.
"[video calls] are the future" Oh if only we knew...
Literally got off call with my therapist and then read this comment
The number of times employers have said, "you can't possibly do your job from home" cut to now.
Its probably one of the few good things to come out of this whole pandemic thing. I can get tele-consults with my specialist where before i would have to take time off work, reorganise my roster, get to and from the specialists office....a phone call is just so much less stress
Lol glad I scrolled down before I posted my own, "Medical consults? On a VIDEO CALL?!?!?!" comment. Positive change through Covid-19?
She's a fortune teller!
Chair makeover suggestion: golden for the frame and red for the cushions. It'll match your hair and you'll look like the queen you are!
Yess
Ooh yes!
Awww, that's sweet, and so true!
Couldn't agree more! Or purple velvet and gilt.....? I need to make my 'pimp my ride' service official... I've already pimped my walking stick and my Dad's 'chair.....
@@stephaniemcintosh2808 pimping mobility aids is essential! (Unless they look like Jessica's adorable new scooter ;) ) I never properly pimped my last powerchair - only partially - but I certainly will do with my new one
As a person with an invisible disability I truly appreciate your content. When you were talking about how people were staring at you on your mobility aid, I get that too because I don’t “look sick“. Thank you!!
I'm soooooooo happy for you!!! I too am young and have a mobility scooter that looks "too cool" and people often question if I can bring it certain places - especially in business and shops. However, I have found that if I hang my handicapped parking placard on the handles or the back, people are much nicer and it makes it so much easier to "prove" I can take my scooter wherever I need to go. I actually often use my expired parking placards for this so I can use my current one for parking!
I was thinking the same thing. If that detracts from the style aesthetic, maybe a sticker on the back?
That's a brilliant suggestion!
I used to hang a disabled symbol on my daughter's pushchair (as I used it as both her pushchair and a walking frame for me!) so no-one would ask me to fold it on the bus or train and because of it people offered me seats frequently. The odd person here and there thought it meant my daughter was the disabled person though! Not quite sure why I'd hang a big sign on her pushchair advertising her disability if she had one though heehee
What a brilliant idea.
Ooh that's a /smart/ idea!
Jessica : choosing mobility aid is hard !
Jessica : ... so I took all of them
I happy for you and hope it will work out well !
Ohh I absolutely looove when doctors ping pong me in between each other it's like when you were younger and you asked you dad a question but he tells you talk to your mom but then your mom tells you talk to your dad, just a wonderful experience filled with two specialists that have no Idea what is going on
Except it's worse because you have to wait like a month in between every visit. 😫
You have to learn to speak doctor. If you can talk to them with the fancy terms they went to medical school to learn, it tends to put them off the "I know more than my patient" attitude. There are a few doctors out there that cheated their way through school, and tend to be the worst offenders for dismissive or ping pong tactics, while some are just under-educated in particular issues. This strategy plays both of these unhelpful doctor types; the cheater will be terrified since you can actually catch them in their fraud and will at least refer you to someone likely to help to ensure you won't come back (they are rare, but I've thus far met two and had one's license revoked due to malpractice); The under-educated gets played by their ego since you as a patient can know more than them but shouldn't by the general standards of how doctors tend to think (I went to school for so much money and time, it had to be worth something others can't just learn from a textbook right?). The family doctor I had in high school when my immune disorder kicked in was the under-educated type, he was a decent GP but clueless with immune issues. Well I figured it out, he tested for it, tests proved it, and he treated me better as a patient. He actually thanked me a couple years ago for teaching him to be a better doctor, he laughed that I was favorite difficult patient because I kept him humble as a doctor. Shame he told me he retired that same day and I'm now fruitlessly three years into trying to train his replacement, who is a stubborn egotist I get to replace when I move in 4-5 months.
especially when you know bringing mom and dad together to communicate the problem would solve it all
Gotta love all the additional copays for each visit between doctors for the same problem :’)
Yeup! I thought I had carpal tunnel and have been ping pinging between general practitioner and physical therapist. Apparently I dont have carpal tunnel I just have forever pain with no explanation or compassion from people to continue trying to figure out why I am in a constant state of pain (:
I used to struggle with the concept of gears too!! Until my dad taught me this
When going up hills or inclines you want the lowest number, for example 1.
He taught me to think of it as carrying someone up the hill, you’d only want to carry one, not 2,3,4,5,6 as the gears on your gorgeous tricycle go.
But if you’re on flat ground it’s much more manageable to carry more people (easier to push the pedals as there’s no resistance from the hill) (and obviously it uses a bit of your imagination because no one could POSSIBLY carry six people)
It sounds silly but it really helped me get the hang of how they work, and I hope this helps you too!!!!
i love the retro scooter!!! 1960's italian movie vibes going on...
Glad she didn't Fellini bush! 😋
This series convinced me to finally get a walker so I can actually go places without searching for a place to sit every five minutes. I walked around the store with it and it’s wild how much of a change not lifting my cane every other step makes
I'm having a similar problem lately, except I don't think I need a walker. I walk with two canes, and that's okay for me now, but my problem is I get tired often and need a rest where there are often not places to sit. I'm hoping to find some sort of light, foldable/compact, but strong chair or stool I can strap to my backpack to have a quick rest on my hard days.
@@Marialla. I know this is a year later 😂 but there are canes with built in stools. They look a bit bulky, but could serve your needs well if you've yet to find a solution
When you expect her to get just one, and then she gets 3 😂
I'm so indescribably happy for you!
Now everyone get of the streets and make room for Jessica! 😂
Abled people: YOU ARE NOT ALLOWED TO BE DISABLED AND LOOK GOOD
And then they're like: EEEEWWW WHY ARE DISABLED PEOPLE SO GROSS AND UGLY
I think they were probably just blown away to see someone who is disabled just living their best life.
@@violightghost8592 exactly. I'd rather be noted for being pretty and disabled but I have that 'you've really let yourself go' aesthetic I'm working with here...
@@toni5543 yeah, that doesn't happen often, sadly
You also forget the "You are too young to be disabled!"
I got that alot before (and while I was in recovery of) my correction surgery
If you can’t fond a unicorn get a stable of horses -Jessica 2019 🦄 ❤️
The price is about the same, so not an entirely inaccurate comparison. I wanted that tricycle. I do not have an extra £1500 for it sadly, so no adorable bike rides with my fiance.
"If you can't find a unicorn, get a stable of horses" merch please?? 😂
I second this!!
💯
Most definitely!
Yes plz!!
I used a wheelchair for the first time out in public the other day!!! I went to the art museum to see the Claude Monet exhibit and it felt so freeing to not worry about rolling an ankle or dislocating my hip! 😊 Just wish people wouldn't walk in front of me while I'm wheeling lol!
Andrés Fincher it took me a while to realize some people just don’t look down at all. We’re the height of a child in a chair, so how many children do these people step on?! But truly elevators are the worst. They have no idea of personal space and the shall I say bits and bobs well and bums that end up in my face is appalling! People please be aware of people in wheelchairs on the elevator, and for goodness sake stop racing the disabled to the elevator or the checkout line.
@@melissamelech9536 they were very nice! Brought it right to me at the beginning of the exhibit and helped me beg from the second floor back down to the first through the employee only area. It was a great experience and honestly would do it again.
We need a right priority rule for wheelchair drivers in the law, so nobody can ever step in front of you without expecting it, and you can sue those people, muahaha!
When out and about, my SO is in a powerchair. That's a 300lb piece of gear that does NOT stop on a dime. They've clipped many a foot that's stepped out right in front of them. And yeah - I'm thinking of getting some kind of bike flag for them so that there's something there to draw the eye and get people to recognize that there isn't an open space there. Having said that - I suspect some of the feet clipped belonged to jerks who absolutely saw my SO and stepped closer to them than they ever would someone on their own two feet.
Ooh might i ask what museum or what state you were in if you’re comfortable? I was at a Monet exhibit in Washington around the time this was posted!
As someone who uses a wheelchair/mobility scooter in my 20/30s I definitely relate to getting odd looks for being 'too young' to need a wheelchair.
I had to buy my own mobility scooter as when I asked social services they said I need to be accepted for needing an indoor wheelchair and use it for at least 6 months before applying for one to use outdoors. As I don't usually need a wheelchair inside (on my bad days I tend to use my stick - my flat isn't wheelchair suitable anyway) so that stopped me in my tracks.
Am glad you've found your unicorn(s).
Tamara Epps that's insane. Plenty of people who need a scooter to get down to the shops or around the park or whatever can manage around the house - a few steps from one room to the next is not like getting down the street.
@@tealkerberus748 Exactly my feelings. Luckily I knew someone who could loan me the money for a scooter and it has really changed my life, but I put it off far longer than I should have because of this.
So the basic assumption is that you need to be stuck inside a house (if you don't feel comfortable /can't use the wheelchair outdoors) for half a year to get some help in moving around outdoors....Great system 😑😑😑
That's such a stupid and depressing answer to get. Obviously we all need to be able to leave the house.
@@MrsScorpionette the basic problem is that UK social services are massively underfunded and oversubscribed. They are free to use, which is great and so much better than many countries, but you have to be at the most needy end of the spectrum before you qualify for any help at all, even then you usually need to push hard and shout loudly before you get it (voice of experience here). And, as the OT in the video says, they'll only really help with the most basic things, like washing, dressing, moving around your house and making a sandwich. Going outside apparently doesn't qualify as a basic necessity. When I needed a wheelchair (fortunately for quite a short time) we borrowed one from our local Red Cross, which lends them out in return for whatever donation you can afford, which was great because we were also broke. It was an absolute lifesaver for us.
I am so happy you were able to find your unicorn! And a retro scooter that will work for you to go out and about! AND A TRICYCLE! It will be amazing to see how this affects your energy levels and general life. Claudia, Tilly, and Walter are going to have to try to keep up!
Two bits of safety advise since you haven’t ridden a lot 1. Always always always use your back breaks before your front breaks (otherwise you’ll go head first over the handlebars) 2. It’s a three wheeler do not make a sharp left or right turn when you moving at any decent speed (you’ll flip the bike in the opposite direction of the turn you turn left but your body will go straight ahead or to the right). Other then that congratulations I’m so happy for you!
Oh geez, I got teary-eyed. I'm so excited for you, these 3 look absolutely stunning! I'm so glad that those companies reached out to you and that you're now so much more independent/comfortable. You deserve this. As a matter of fact, as an able-bodied person, this series taught me that many disabled people in need of a mobility aid might have the same problem of wanting to be mobile in- and outdoors and it frustrates me that nothing quite fits perfectly... I feel like every disabled person who is in need deserves to have access to a scooter AND an electric wheelchair.
I'm stuck on the horns of that same dilemma. I now have a second-hand Pride Go-Go scooter but it is hell to use inside because of the trouble getting onto and off elevators; same trouble outside using the bus or taking it apart to put it in a car. (sigh). Power chairs have the unlikeable "joy stick", are heavy and awkward to transport, and are too expensive for me to have both. There OUGHT to be something that considers these problems and combines the two aids!!!! Also. who has room to store 3 mobility aids?
Nona Hammon I’m in the same boat as you. I have a jazzy electric chair but the bloody ramp to get it into my car alone weights 45lbs not to mention the weight of the wheelchair. I can’t go anywhere alone with it. I want something I can travel easily with alone. That doesn’t cost me my precious violin (that’s what I had to trade for the ramp because insurance doesn’t believe you ever need to leave your home). We need better and more stylish options because they’re bulky and ugly now.
As a long time cycle commuter the most important is: make sure everyone knows where you are. On a road with cars? Make sure they can see you! Passing someone on a path? Announce to them your approach. And of course be respectful. If you can get out of the way of the vehicle or pedestrian when you share their space, do. As for gears, Higher is Harder but faster. The rest you will figure out from trial and error. Just like the rest of us! :)
oh man that is the coolest, most fitting mobility aid i have ever seen. :D congratulations!!
This is the type of tricycle I'd need as I can't ride a bike!
Same. Mostly for the same reasons as Jessica. I used to stick training wheels on my bike but it the last bike I did this with has probably long since rusted away in the shed. Also I’m pretty sure it’s a children’s bike (i still might need a children’s bike as I’m only 4’8”). Also also I don’t remember where my old helmet is and there’s no way I’d ride a bike without one
Same I thought I was the only one, because if where I live a bike wasn't practical and whenever I say I can't ride a bike people make fun of me
Based off of the music at the beginning, I fully expected her to reach through my screen, grab me by the neck, and ask what my mobility scooter preference was.
Christopher Metcalf 🤣😅
not going to lie, after the: "If you can’t fond a unicorn get a stable of horses" bit I had to stop snd rewind the video because I was laughing so hard I couldn't hear the rest
get u someone who calls u a “Cool trendy attractive young woman” 😘😘
I was thinking the same
You look like Peggy Cartee riding cap's motorcycle in that beginning montage.
That motorcyle scooter is the coolest damn mobility aid I have ever SEEN!
Yeah, I got diagnosed with fibromyalgia years ago and I've gotten NO long term care. I need mobility aids, I need treatment, I need feeling like someone cares yet all I've gotten is I was mocked for using a cane by a physio therapist, got told I absolutely cannot take painkillers and got told I'm only in pain because I'm crazy
René Price I’ve had back problems since I was sixteen, all the doctors say is to lose weight. There’s no effort into finding out if there’s a real problem or not...
René Price that’s awful, I am so sorry to hear that. I’ve worked with people with fibromyalgia. In my country depending on how disabiling it is people get either physiotherapy or more (psychologist, art therapist, doctors, nurses etc). We also are very wary of (daily) pain medication with chronic pain, because when used frequently it can unfortunately no longer help or sometimes even worsen the pain. However, that doesn’t mean you shouldn’t have access to help and proper guidance in using tools and/or medication. Fibromyalgia does not mean you are ‘crazy’. It’s psychosomatic physical illness, which is not the same as a mental illness. The pain, fatigue and bowel issues are very real and disabiling. Anyways, I am sorry if I went off-topic, but I just wanted to say fibromyalgia is real and you are not faking it, René.
I'm really sorry, I don't have fibromyalgia but because of my mental health I can get anxious to the point of excruciating pain such as the time I had to be out of school for six weeks and I'm always nervous that people will think I'm being over dramatic because it's technically "not real"
I'm sorry, so sorry that you're going through this. I have nothing useful to offer, only sympathy from a random internet stranger.
Tim Starkey your issue is 100% real and valid. I don’t know if you need to hear that right now but your pain is real and also valid.
Regarding the gears: If you're in a high gear, you'll need a high level of energy to pedal, if you're in a low gear, you'll need a low level of energy to pedal. Same goes for your engine. Thus when it goes up and it's already hard to manage, you go in a lower gear to compensate, whereas on flat surfaces, you want to be in a high gear to get the most speed out of your energy :)
I think that is backwards. You use a high gear in a car when you are already at cruising speed. You have already expended The energy in low gear.
thanks for this explanation, I think I finallyunderstand gears now
I think that explains it pretty well. On a bike low gear is for going up hills while higher gears are for going downhill or on flat ground. Low is slow. High when you can let fly.
@Diejt Childs The Lazy Gamer it's the same logic in cars. I guess the easiest way to explain gears is that when you go slow -> low gear, when you go fast -> high gear.
😭 I have NEVER EVER been more proud that I signed up to be a member of The Kellgren-Fozard Club (since the day it launched) as I am right now!! Seeing the smile on your face, the freedom of going to the park easily, your phenomenal "Go ahead; mess with me" look you gave with your sunglasses on whilst cruising on the Green Power Mobility "Motorcycle" (that looks NOTHING like a power scooter, it is way too cool)! I cannot express my happiness for you as well as the whole gang. These are going to be life changing tools for you to use in all different circumstances. The world is now your oyster darling Jessica, grab Claudia & go explore! You never know what you might find!! 🤗💜🦋😘🐾🐾🙏🏻!
This is the best ending to this series I'm so glad these companies reached out to you. It's also awesome you were able to display all these awesome cool looking mobility options!! Its a win-win!
Also, please do a year end review of all the mobility aids and which one ended up being the most used for various reasons.
+
As an Occupational Therapy student I have been loving this series, it's been really eye opening to see what goes into choosing an aid and how difficult it can be to find something that allows you to fully participate in everything you want to do! Also I squealed when you mentioned Occupational Therapy and really loved the video interview with Jo Southall! Thank you for allowing us to follow you Jessica xx
I'm so happy for you, I think most of us crossed our fingers that one of these companies would reach out to you and provide you with the dreamy vintage scooter and the E-Tricycle! So very glad it happened, you deserve it. Can't say I learn much in this series because I've been through it as well and I pretty much know that the prfect solution is.... SEVERAL expensive mobility aids. Which I can't afford... BUT I loved watching it, and I found it useful to have videos that explain everything when I don't have the energy to, and it's just nice to know you're not on your own struggling.
Countless of your videos helped out in the past, so it's just really cool to see your hard work paying off lately, and this is just a really cool example of it all!
Can't wait to see tons of video and pics of you and Claudia riding along, and enjoying the extra bit of freedom and mobility
Actually it makes a lot of sense to need more than one mobility aid to get everywhere you want to go. People who are able to walk usually need more than one pair of shoes, like sturdy hiking boots for off road terrain or light and cozy slippers for indoors. It would be nice if there was a "one fits all terrains and situations mobility aid".
Yay for supportive companies. And yes, this really is a good solution - I have a recumbent trike, a powerchair, a manual chair with powered wheels (currently being fixed) and a lightweight manual for around the flat. I'm seriously considering a folding wheelchair in the future as currently none of my mobility devices fold which is a... disadvantage. Very few wheelchair users I know have only one chair - partly because they break so bloody much and partly for different situations.
On the being stared at in the park - I'm not surprised - have you consider putting a disabled/wheelchair user sticker on it which would possibly make it very slightly less cool but potentially make people less confused.
On the gears, I'm not sure this will help but think of it as they are trying to make it so you have to put in the same amount of effort all the time - so lower gear = easier work so it's for when other things make it harder (i.e. up hill), higher gear = harder work so for when other things are making it easier (down hill). Also when going up turn gears down, when going down turn gears up.
You saying "pimp my chair" was the best thing ever
I am so happy for you! I legitimately teared thinking of all the places you can now go. So incredibly liberating! Also inspiring (in the none condescending way). This is a huge decision/change and I’m so impressed with how you handled it!
As for the gears: I have vector related memory issues. What I ended up doing was taking a pretty gold paint marker and writing which way the gears shifted right on the gears themselves. Unless you were riding the bike it just looks like a little decorative flair.
Have you considered designing a sign that says “this is a mobility aid” in a more stylish vintage way of course. You could put it on your scooter to avoid glares and also sell it in your store for people who are having similar issues.
You need matching 1960's babe outfits for you scooter! (Slacks and a bardot top for Claudia and a cute two piece set for you??)
Gear rememberance thingy- when you go uphill, you’re slow and want to be low (low gear), if that doesn’t help up is slow- slow DOWN (down aka low gear). When you’re going downhill you’re fast. When you’re fast you’re speeding UP (up aka high gear).
So happy for you! My son is only 5 but finding him a suitable wheelchair has been a nightmare, thankfully the wonderful people at Whizz Kids are helping and we his chair in February xx
Wish they'd existed when I was a kid, 40 years ago. 😢
so fantastic they are helping - it's hard enough trying to get mobility aids as an adult - that parents have to struggle to find aids for their children is horrendous - that the NHS/government don't even provide basic cover for all this is inhumane. Many many people I've spoken to think the NHS bought me my powerchair. Oh no sir. Some also think I am 'given a car for free'. Nope. Have to cash in all of my mobility allowance plus pay for petrol ourselves. I think the government do very well convincing the general public that they provide properly for disabled people when charities are the ones who really support us and our families. I hope his chair is fantastic and wonderful and gives him great support in his life. Sorry for the essay x best wishes x
@@ixykix Thanks, we have a mobility car as well and the comments you get from some people is ridiculous xx
@@ixykix If only it was just NHS, it is a common tactic of public health agencies. In Canada we do have a lot of stuff that gets covered, if you meet ridiculously specific criteria according to office workers with no medical expertise. My immune disorder causes horrifying muscle pain that made walking feel like I was doing it with a set of kitchen knives jammed in my thighs and thus actual torture. I have never been approved in 20 years for mobility aids despite having the immune disorder that causes severe mobility issues during flare ups (even as immune suppressed as I am now) and I had multiple instances of paralysis on par with spinal injuries during my kidney failure (No spinal injury, but potassium poisoning can mimic the symptoms as a not so fun fact). The agencies here move money around when they announce they fix an issue, there was a big stink at the beginning of the year about not being able to afford rent, so they cut our funding for new glasses from 1 pair/2 years to 1 pair/3 years so they could give us all a raise.. that still doesn't let us afford rent, and makes me have to pay for an extra pair of glasses that costs more than the raise over three years combined. The public and even a lot of our community falls for it because they go out of their way to make sure we have as hard a time as possible finding out what programs we might qualify for.
Oh awsome!
So happy for you and your kiddo that you get help on this way :)
GOSH I wish I knew those power tricycle existed 10-5 years ago when my EDS legs were still working a bit sometimes! Yours is soooooo cool!
Anyway, I have now a foldable power chair like yours and it's all I ever needed (I wish I could have a scooter too to look less 'disabled' but I don't have enough room in my house for this).
Your stable of unicorns is perfect.
Man, I didn't believe unicorns existed until one came to help you.
Ok so I am aware that these conpanies are of course sending her stuff for advertising purposes aswell, but like, can we all pls appreciate how amazing it is that Jessica now gets to have ALL of the 3 things she wanted? It makes me so happy for her!
You’ve helped me so much in understanding my child’s hypemobility and variable energy and abilities.
As someone with varying conditions- this video has given me incredible hope. It’s hard to know what you need and to know how you’ll afford it- but seeing how happy you are having these and using them, and knowing that your life provided means so much ❤️
Those old ladies were just jealous that they didn’t have such a cool scooter. Congratulations on finding your unicorn!!!
Every part of this video brought me joy, but as an able-bodied person who loves riding her vintage-style bicycle the most wonderful part was when you got the tricycle that allows you to experience the delight that is cycling ❤
This is amazing! I’m gonna have to look into it. I’m getting a manual wheelchair with a smart drive but it’s been since June trying to get everything through. My insurance finally overturned my appeal last week, my occupational therapist and physical therapists rejoiced because they really want me to have it... so now I have to wait for the appeal to make its way to the medical equipment company and be custom manufactured.... sigh. The process is ridiculous.
This mobility aid is the cutest ever
Make the chair look like those big velvet quilted chairs in offices (just obviously not big lol) adorable
That intro was the most epic thing I've seen in a long time. We stan our vintage rainbow queen.
I have epilepsy and other comorbidities. Recently I bought myself a tricycle. I call her my Red Lassie. She's enhanced my quality of life so much. The weird thing is by pedalling her, I've got more energy than ever before and I'm more active at home. Lassie has been a real life changer.
The last time I was this early was when I was born a week and a half before schedule lol. So excited to see the finale of this series :)
"If you can not find an unicorn, then get a stable of horses" 🦄🐎🤣🤣🤣 This made me SO HAPPY!!! 😄😄😄
When it comes to bike gears, do the opposite of what the terrain is doing! Going uphill? Gear down. Going downhill? Gear up! Xxx
I think this video should be viewed by everyone because it shows what can happen when you enpower those of us with disabilities. The joy, excitement, happiness and pure emotion, satisfaction and empowerment was amazing!
I can't balance on bikes so seeing that one at the end is giving me heart eyes
As a current occupational therapy student, I absolutely love your videos! They are so educational both for the general public and for therapists. I find that I have learned so much from your decision making process for mobility aides, your views on "function" and "normal", and your wonderfully well put video on the problems surrounding the plastic straw war.
Ah you look like you are having lots fun. Congratulations lovely.
I too have awful looks from people that are older than me. I am 37, I used to use a 4 wheeled walker a lot, and old ladies would spit lava at me they were horrid. I use a powered wheelchair now ........ And it's even worse!
Run them down! 😈 Just keep that between us, eh? 😜
I just became a wheeled walker. I live it and so far have only had a little abuse, but it's worth it to have some independence back.
Sera - Marie Please don't be bothered with other people and their nonsense. Smile and wave, my friend, smile and wave.
A tufted back seat. Beautiful vintage tapestry.
And the perfect depth of cushion, so your legs and hips rest comfortably.
higher gears for higher speeds! lower gears for when you're in a low point (and need to push harder to get out (like going up a hill))
that last bit with the tricycle made me actually start tearing up. as a kid, one of the few ways my dad would successfully bond with me was by us riding our bikes together (admittingly, because it was one way we could be together but not have to talk, because he was p awful. but i still craved good memories with him, just like all kids do with their parents. and i got the luxury of having good memories with him through bike riding, where, because we couldnt talk and bike at the same time, talking couldnt spoil anything). but as my chronic pain in my legs got worse as i got older, i kind of succumbed to the fact that id probably never get to go on a bike-ride again
i found this channel relatively recently thanks to a friend recommending it to me, as i was looking for more disabled youtubers for comfort and advice as i struggle to get a diagnosis and, hopefully, mobility aids. which part of my journey of accepting that im disabled meant cementing the idea of not being able to do certain things, and though that is true, i had fully accepted until this moment that riding a bike again was one such impossibility for me since it drains my chronic fatigue too much and worsens my leg pain. and, tho i dont know if i want kids yet (in no small part because i want to make sure i have the emotional capacity/stability to be a good parent to them), the idea of not being able to ride a bike with them was an idea i apparently suppressed. and i hadnt realized how much the idea's possibility meant to me until i saw you riding one, and i realized "I could ride a bike with my future kids" and started crying before i even finished the thought
i felt like Pam Beasley, from the US version of The Office, when she realized via talking aloud she would have to give up on her childhood dream of a terrace, and not realizing until she spoke the words how Not Okay with no possibility of the idea she was as she started sobbing mid-sentence. thanks for pointing me to a possibility for me, so i can keep the idea alive. it means a lot. i definitely have saved this video (and the others in this series) for future reference, should i decide i want beyond a possibility, that i want a reality, with that dream. thank you for that. thank you so much ♡
I adore how vintagey and how 'you' the scooter and the tricycle are! They're beautiful! And the chair looks awesome and super handy as well!
Jessica. I am so happy for you. I am so grateful that the two companies gifted you a mobility device and that now you can truly live your life to its fullest. Have fun biking with Claudia.
"Video calls are the future."
And then, three months after this was posted, video calls with medical professionals became the standard way of doing things. I really hope it stays that way.
Congratulations on finally getting not one but three mobility aides that you legitimately need for yourself. They are truly amazing, and fit what your looking for at this stage in your life. I am so proud of you. Really, if someone is looking at you and Claudia and your dogs in the park, I would only assume they were admiring a lovely family outside enjoying beautiful day.
Oh. My. Goodness! 💜💜💜 “pimp my wheelchair” LOL I just imagined the funniest thing! Jessica looking fabulous as always💜 saying in her PERFECT accent “Yo, dawg! I was told you like moving around. So we put some wheels and a motor on this pretty folding chair so you can sit while you roll everywhere!” XDDD
This needs to happen!
I'm so happy for Jessica! Three different mobility aids that meet her various needs and that look as classy as her (or will soon)! I hope we'll get to see more of how these integrate into your life and the things they enable you to do that were not possible before.
I'm so excited for you!! I know the last time I tried to ride a bike I definitely took out some flowers and felt horrible about it. I didn't feel safe and ended up walking the bike back and decided that it was just beyond not safe to do that anymore. It's hard to accept that the things I did as a child with ease are just not a thing I can do anymore. You looked so happy though.
I love that you were able to get some aids that also happen to fit your aesthetic and make you look *completely adorable*.
It seems like so many things made to help with disability are just always so bare-bones and sterilly practical.
Literally smiled so much throughout the entire video! I'm so happy for you that you found some great aids to help you move better and retain your independence (and have some fun!) :) I would suggest for the GreenPower scooter, to stop people glaring, perhaps put a large-ish sticker on sides or back that says "Mobility Aid" or something like that, so people can clearly see it's a mobility aid for you. That might help a bit!
The section talking about video calls being the way of the future is eerie as all hell nearly one year and a whole entire world pandemic where we cant leave our houses later lol. You two were right!!!
On the gears:
Going up hill - gear down
Going down hill - gear up
'i look lovelly standing' jessie you're a treat haha
Tilly watching the appoiment
I can't believe they won't send you to an OT! I've been going since I graduated from high school. They help me by filling in where my executive functioning lacks, they help me advocate for myself and make sure that my school is following my accommodations. They'll help you with applying for jobs paying bills and doing the things you need so you can live independently. They had a practice apartment in the same building I lived in. They would help people with disabilities transition to independent living.
I welled up in tears a little to see you on a tricycle. It was wonderful to see an opportunity for more mobility aids in your life. I do hope that this helps others get more in theirs.
Oh my goodness that is such a cute scoot in the opening! As someone who used to ride about on a 50cc moped it's super nostalgic! I'm now ambulatory as well and looking into options and that one just landed in my heart.
And with the trike you can take the pups along in the big rear basket!
Congrats on your successful search, Jessica! ♡♡
I'm so happy you found your unicorn, it is so you! Also, I got my first wheelchair today and I was feeling a little bit wobbly about it, but after watching this I'm reminded that mobility aids aren't a bad thing and I'll get so much independence from this:)
This is honestly such a therapeutic video series to watch as I'm home with fatigue and joint pain from arthritis/fibromyalgia. 😰❤❤❤
This series has made me so happy for you! I'm so glad my boyfriend recommended your channel. You are such a breath of fresh air 🤗
I'm so happy for you! These are truly two of the best sponsorships/gifts I've seen on RUclips. Hopefully your new house has a garage with plenty of room to keep them in great condition! I also really wish we'd known about that folding electric wheelchair when my mom was alive. It could've really made all the difference for our family and her quality of life.
Haven't watched through yet but if the mobility aid is that perfect fit. Stylish, un hospital-like and is dare I say a bit vintage
Wow! Huge shoutout to Green Power and Jorvik for reaching out to you, and for showing us just how cool and cute mobility aids can be! I would have never imagine a scooter like that, nor a tricycle like that AS A MOBILITY AID. They all look medical and like wheelchairs or scooters in markets.. NOPE. Not anymore! So Happy for you Jessica! I am happy that your fans helped you along the way in getting your indoor chair, which while somewhat boring, will be amazing once we get that episode of Pimp My Chair.
Laughed so much at "get a stable of horses" lol. I think for the paint job your signature colours are red and white!
I honestly don't need a mobility aid or anything of the sort, but I simply adore watching and listening to you on the matter. I've learned so much through this series and I'm so happy you found your mobility match! 💕💕
Aww, the end of the video made me cry too!! 💕💞 You deserve ALL of the good things, Jessica. And you look like a badass WW2 biker babe on that scooter!
You're lovely, eloquent, and I am thrilled that there are humans, like yourself, who take it upon themselves to inform, educate & advocate for the disabled. My journey speaks of similar struggles, obstacles, and epiphanies I've encountered. That's one helluva ride!
I would like to thank you for making these videos. I personally really enjoy your upbeat personality and informative videos, but I've also recommended you to my mother who has become progressively less-abled over the last 15 years. She really struggles with this, partly because she was only 42 when it all started. So I really hope that she enjoys your videos as much as I do, and that she finds them relatable.
PS. I'm super happy for you that you were able to get such wonderful mobility aids! (that scooter is super awesome!)
As an able bodied cycling commuter (with hills in the US) I absolutely cried when you wheeled around on the tricycle and your response! My bicycle has given me so much freedom and I'm so happy for you to have a group of aides that give you independence! Really insightful to watch this series as an able bodied person. I definitely have more empathy for this search, I had no idea quite *how* complicated it would be! Now we need the attractive mobility aide revolution!
This put the absolute biggest smile on my face - I'm so happy you've found these aids that work with your variable condition! Love all of them, they're all incredibly unique and spiffy and well-suited to you!
I am an OT, in Germany, and I am so happy you found a way to get help and have the support you need. How ever things work for you is great. And I absolutely love seeing you so happy with your powered mobility aids.
Lovely greetings from Jessy
I found myself getting excited when you were talking about your vintage goddess mobility aid! She's a beauty! Also, I think you should start a new series called "Look at me go" now that you can go on lil adventures by yourself. 😊
I am SO glad that this monumental decision has turned so so well for you. You definitely deserve it and those Companies were very smart to recognize your needs and influencer advertiser power! Kudos to all!
Online OTs are genius??? Dang I hope they become common, too!
both the electric bike and the gorgeous scooter are just!!! wonderful!! they fit that vintage glamour perfectly!!! the bike also seems like a great way to get some very gentle exercise when you're feeling more energetic!! so happy for you!!