Life with CEBV

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  • Опубликовано: 16 сен 2024
  • Just a quick (for me, I think) talk about Chronic Active Epstien-Barr Virus and what it's like having it.

Комментарии • 21

  • @andrealuna8686
    @andrealuna8686 5 лет назад +2

    Thank you so much for this video! It's helped me feel not alone and understood. Words can't describe, thank you very much!

  • @robertworton2394
    @robertworton2394 Год назад

    It has ruined my life. I’m an active athletic dude. He’s 42 now he can’t even get the strength to walk around the block let alone go hang out and do the things I love likes, surf and hike with my friends.

  • @amyoles5727
    @amyoles5727 7 лет назад +6

    I have had it my whole life and now i am 46 and two years ago i was diagnosed with CEBV and my life is just horrible,and my life is so screwed up because of it,i knew i was sick my whole life and no one helps and no doctors could find out what's wrong they misdiagnosed me with depression and panic disorder...NOW after all these years of being made fun of that i was lazy..couldn't hold a job because of my illness..It made me so depressed ,but now my chart and numbers are PAST the chart...Been like that for two years now...Been trying to do Medical medium's protocol..

  • @phoenixmoon3
    @phoenixmoon3 9 лет назад +1

    I just got diagosed with this a few days ago. I didn't remember getting Mono ever. it's been a long journey to get here. thank you for this video. Bless you.

  • @nhuedragon
    @nhuedragon 10 лет назад +2

    I have CAEBV as well. I literally sleep 20 hours a day and wake feeling I haven't slept in days. My EBV load is 23 times the norm. This is not living. I merely exist. Moreover, I live greater Orlando, and primary doctor is the only doctor that knows the difference between CAEBV and EBV. He does not specialize in Infectious Disease, but reads up on whatever he can get his hands on in an attempt to help treat me. It has a 5 yr life expectancy with a mortality rate of 56%. Local ID docs refuse to even listen to me. There is an option that proves fairly effective in eradication, but Western medicine is reactive rather than proactive. The treatment is only open persons in end stage. Can't believe they are watching me die. They always say the earlier you catch it the better. How much more early than pre-malignant can you be? Oncology refuses to even see. I've had so many doors close in face, it's not even funny. I live only for my avatar photo.

    • @thatnorachick
      @thatnorachick 7 лет назад

      Kat Long hi do you have the name of this doctor? I was just diagnosed with cebv and i live in Orlando too and really need to start treatment. Thank you.

    • @e-brezzzy9410
      @e-brezzzy9410 4 года назад

      How are u now kat

  • @78twood
    @78twood 6 лет назад +1

    I had chronic mono for 6 years. Went to natural doctor. Used Electro Magnetic Therapy !!! Brought my levels down to almost normal!!! There IS help. I couldn’t work over 20 hrs a week. After treatment I could even work overtime!!! Treatment is done with a Rife Machine. Please study up on this. It’s fairly hush hush due to powerful pharmaceutical industry

  • @sakhrnabil7
    @sakhrnabil7 7 лет назад +3

    I really feel that you are exactly talking about me. I have the same exact story. From problems with doctors, to the virus ruining my whole life.
    What did you do about it?
    I will be really thankful if you could help me with any information to treat this nightmare :'(
    Best regards, Sakhr

  • @jessiestargirl
    @jessiestargirl 9 лет назад +1

    Have you heard of Low Dose Naltrexone?! I just started it for CEBV and wanted to share with you in case it could help! Dr. Mercola had a great article on it and Suzy Cohen the pharmacist!! Hope that helps!! Here if you have any questions

  • @LSAMace
    @LSAMace 7 лет назад +2

    i feel your pain