Prednisone, Rituxan and SCIG - My Health Update

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  • Опубликовано: 16 окт 2024
  • My July 2024 health update including my prednisone journey, my recent Rituxan infusions and my start to SCIG.
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    📸 On Instagram:
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    #prednisone #rituxan #scig #rituximab #truxima #immunoglobulin #autoimmunedisease #autoimmunediseasewarrior #rheumatoidarthritis #rheumatoidarthritiswarrior #scleroderma #systemicsclerosis #sclerodermawarrior #lupus #lupuswarrior #chronicillness #chronicillnesslife #chronicillnesswarrior #spoonie #spoonielife #healthupdate #rheumatology #rheumatologypatient #patientexperience #patientperspective #chronicillnessvlog #autoimmunediseasevlog

Комментарии • 32

  • @denisemurray149
    @denisemurray149 3 месяца назад

    You are such a strong woman. I admire how knowledgeable you are about all the medical conditions you face. I panic over bloodwork. ❤

    • @ElainesAutoimmuneAdventure
      @ElainesAutoimmuneAdventure  3 месяца назад

      Awe, thank you but I don’t want to deceive you I do still panic over certain medical procedures and things. 🙂 Trying to learn everything I can is my coping mechanism and I’m so happy I can share what I’ve learned with you all, my friends! Sending you extra spoons today! ❤️❤️❤️

  • @malindaduncan7089
    @malindaduncan7089 3 месяца назад

    ❤️❤️❤️❤️ Thank you for the update! Saying prayers for good results from the new meds! ❤️❤️❤️❤️

  • @TammieRenea
    @TammieRenea 26 дней назад

    Thank you for sharing your journey, Elaine. I have Hashimoto's, lupus (SLE), and likely Sjogren's. I am a new subscriber and appreciate your openness very much. You help to make the journey a bit less lonely and scary. ❤

  • @Strong_selflove
    @Strong_selflove 3 месяца назад

    Strong woman right here❤

  • @GlowWithScleroderma
    @GlowWithScleroderma 3 месяца назад

    Thank you for sharing!!

  • @RosieGumaponwarrior
    @RosieGumaponwarrior 2 месяца назад

    ❤❤❤ we are all warriors in different aspects of our lives 🙏🙏

  • @terrisameron488
    @terrisameron488 3 месяца назад

    ❤glad you are coming along. Excited to see how your SCIG journey goes.

    • @ElainesAutoimmuneAdventure
      @ElainesAutoimmuneAdventure  3 месяца назад

      Thank you! As soon as I learn SCIG more, I’ll film a full SCIG video to share with you all. ❤️

  • @curtmetheny6520
    @curtmetheny6520 3 месяца назад +1

    Thanks for sharing, I'm down to 5 mg and going down to 2.5 in a week then down to 2.5 every other day then none, we will see how that goes. Nice shirt!

    • @ElainesAutoimmuneAdventure
      @ElainesAutoimmuneAdventure  3 месяца назад +1

      I’ll be sending good vibes that your body does great with the prednisone decreases. 💪🏼 I’m a total Dave Grohl fan so when I’m not in a Nirvana shirt, I’m wearing Foo Fighters. 😂

  • @dianamatias4322
    @dianamatias4322 2 месяца назад

    I did the same trying to get off and it didnt work.❤ Thank you for giving me hope .

    • @ElainesAutoimmuneAdventure
      @ElainesAutoimmuneAdventure  2 месяца назад

      I’m glad I could give you a bit of hope and thanks for sharing your experience makes me feel less alone too! Sending you extra spoons today! Hugs, Warrior! ❤️

  • @joshita86
    @joshita86 2 месяца назад

    Hope all well. You’re very strong!x
    Which mg prednisolone you had? Mine is 20mg. I’m nervous to take.

  • @mtntm5628
    @mtntm5628 3 месяца назад

    ❤❤❤❤

  • @lisacarol5427
    @lisacarol5427 2 месяца назад

  • @zuodai
    @zuodai 3 месяца назад

    Do you see your scl70 level change after Rituximab

    • @ElainesAutoimmuneAdventure
      @ElainesAutoimmuneAdventure  3 месяца назад

      Since SCL-70 levels aren’t used for a marker of disease activity, that isn’t a blood test that is run regularly for me. It was used during my diagnosis. But for disease activity markers, we look at CRP, Sed Rate, Neutrophils and WBC to see how the Rituxan is working. It does decrease the levels of inflammation in my blood. I hope that helps. ❤️

  • @rtmaeda
    @rtmaeda 3 месяца назад

    ❤💪😁

  • @michellewojciechowski4690
    @michellewojciechowski4690 2 месяца назад

    🩷◀️ I’m newly diagnosed so thank you for sharing all of this!

    • @ElainesAutoimmuneAdventure
      @ElainesAutoimmuneAdventure  Месяц назад

      I’m sorry you’ve found yourself on this journey but I’m so glad you found my channel. Glad my journey is helpful to you! Thank you for watching and commenting. I’m sending you good vibes and prayers for stability. Hugs, Warrior! ❤️

  • @heathermccarol2246
    @heathermccarol2246 3 месяца назад

  • @bettireissinger5510
    @bettireissinger5510 3 месяца назад