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Thanks for sharing your story 👏👏👏👏... I'm currently a Stanford GI patient. Had to travel from FL to SF due to the lack of compassion from MD's in my hometown. Fixing to start first round of rifaximin & neomycin...

I ❤ your videos

🩷◀️ I’m newly diagnosed so thank you for sharing all of this!

Omg im in the middle of getting diagnosed every single thing youre mentioning im experiencing. rf high, ana high positive & abnormal, c protein high, rbc low, it all sucks. Im 40... The sore throat 100% real! Did throat pain eventually go away? It hurts my ears sometimes... & Weakness i cant open nothing... Mild fever too on & off. Dropped 27 pounds in 2 momths hard for me to eat...

Im going through all this. But my shoulder and hips are hurting. My voice does go in and out.

Thanks for sharing. How do you manage it? Does someone have to eat low inflammation foods ?

Hope all well. You’re very strong!x Which mg prednisolone you had? Mine is 20mg. I’m nervous to take.

Hi Elaine, woould you mind sharing ehich insurance you have? Im currently on my husband's plan which doesnt have good coverage. I was doagnosed with RA a dew months ago and the cost od regular vlood teats are adding up!

How long will the medicine take to work on our body?

useful video for me dear please share skin care routine scleroderma patient iam also scleroderma patient I can't wash my face. My stiffness finger 😢😢😢😢😢😢

This is wonderful video ...Lakshadi guggul from Planet Ayurveda are good and effective results on Rheumatoid arthritis .

I hope you feel better I know what you’re going through I’m sorry it is hard . I have most of what you have. Sometimes I can’t give wash my dishes it used to upset me but now I realize that this is my cross and I’m gladly carrying it for Jesus. I think the hardest is having your family except it ❤️

Thank You for all of these suggestions. I especially want the hair scrubber for the shower. I have Sjogren's Disease and my hands are always so dry and tight.

Glad to see you back ❤

I'd also like more videos like there; espectially any practical items in nail care.

The razer is genious. Thank you, I will share your tip.

Hey why can’t you take collagen with scleroderma? I have RA and I take it, but doc doesn’t mind. I do love my shampoo brush!

Can’t wait to get the book 🤣🤣I love these types of videos!❤❤❤

Recently.I have been diagnosed with GPA severe type of vasculitis. So I'm waiting for this treatment 😊

been having rituxan for 13 years now...only reacted once when they infused too quickly also tried truxima a substitute,rituxan is a life changer for R A

Strong woman right here❤

My wrists hurt then it went away by itself and has not been around more than a year . I think I need to check

Thank you for sharing how is your immune system after did u get sick easy

It does not kill good and bad bacteria, but rather stops reproducing of the bacteria. Big difference (some study says microbiome stays the same)

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You are such a strong woman. I admire how knowledgeable you are about all the medical conditions you face. I panic over bloodwork. ❤

❤️❤️❤️❤️ Thank you for the update! Saying prayers for good results from the new meds! ❤️❤️❤️❤️

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Do you see your scl70 level change after Rituximab

Thank you for sharing!!

❤glad you are coming along. Excited to see how your SCIG journey goes.

Thanks for sharing, I'm down to 5 mg and going down to 2.5 in a week then down to 2.5 every other day then none, we will see how that goes. Nice shirt!

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My b12 is high 4000 and I feel all that you are saying

I am taking Cellcept for kidney disease. I just started. Does it take awhile to kick in?

Thank you for sharing. You caught my attention when you said, sore throat. That was my first indication something was wrong. Then shoulder pain, wrist and hand and knee pain. Long story short I was dx with UCTD which is short for undifferentiated connective tissue disease. It’s awful. Was on plaquenil which caused terrible side effects. I’m on nothing because my rheumatologist offers me no other options. Searching for answers.

Took ten years to get my diagnosis after so many wrong ones. Started with tick bites to fibo. Was so stressed just keep giving me antibiotics and steroids

What side affects did you have.? I have to this infusion for neuropathy

urgh : ( sorry what a messed up period of time. RA I am going in on Monday to be tested hopefully. It's a new doctor. I am dreading this. My knees ache like hell, my neck has hurt for a long long time so not sure if it's related. The thing that is making me think RA is my fingers. At night my fingers swell up I am guessing and it leads to a few fingers on the left hand from being unable to close or grasp. By mid day they have improved. Right hand the thumb joint has hurt for about a year, sometimes more than other times and again difficulty bending. I also have nausea and dizzy feeling off and on. QUESTION: what medications have worked for you best? Do you feel stress makes you flare? I have started meditation hoping that will help.

I'm 18 year old Yi I'm suffering from arthritis 😷 5year. Hello my hand finger not working even my knees I have so pain so so pain I am😢

Great story, thank you. I believe I'm about to begin that journey.

Can you have any alcoholic drinks at all with this medication

Thank you for sharing!!

Hi thanks for sharing your experience,is your breathless ness issue resolved. My mother is RA overlap ILD ,pl share.

I'm waiting its in my bloods but I'm in so much pain 4 month waiting list

I wish you great success with this new treatment. I get infusions for lupus, so I’m not familiar with this type of medication that you’re taking, but I’ll be looking forward to your video to learn more. Blessings.

I feel the seme way, I have so many síntomas,that I don’t discuss whit any one

Thank you for sharing you experience; I was diagnostic whit Sjogren on 2022; I’m taking maycrophenolto , my side effects are GI problems

Thank u. I've decided to wait till I'm off work a few days just in case of side effects. I've recently been diagnosed with autoimmune disease. I sure hope this works. Have a blessed day. Thanks again.