I know the struggle , working full time and being married bring to someone dealing with a chronic illness.how do you manage time and energy for friendships, when you run out of energy for the day. Do your friends understand when you have to say no not today? Thank you for your honesty in all your videos, you truly are a help to others!
Ah yes, I haven’t talked much about my prednisone journey recently. It’s time to give you all an update. Thanks for the questions. I’ll add them in. And thank you for the compliment on my sweatshirt…it’s one of my favorites. 😁
How often do you have flare ups.? Just started my RA journey. Well diagnoses is only been 5 months. I had total knee replacement and then my whole body just felt like my strength was leaving me. Now my shoulder and hands are pretty covered with deterioration. Currently on methotrexate, prednisone and Humera…. I was To the point I like you knew something was bad wrong. I couldn’t even get my covers pulled up by myself. Prednisone has been a real problem but getting me through till hopefully Humera kicks in.
I’ve been prescribed 10mg Methotrexate for skin tightening with scleroderma. What was your experience with this medication? Were you ok with occasionally having a glass of wine or did you give up alcohol entirely?
How is Wednesday ? Does having a pet bring comfort and calmness to your RA journey? My dogs have provided me with so much love and comfort on my AI journey.
Thank you for all the questions! The video is now live. Link here: ruclips.net/video/3wBUPNj0O-U/видео.htmlsi=INALcf--QVnn90Qu
I know the struggle , working full time and being married bring to someone dealing with a chronic illness.how do you manage time and energy for friendships, when you run out of energy for the day. Do your friends understand when you have to say no not today? Thank you for your honesty in all your videos, you truly are a help to others!
Thank you for your question! I’ll definitely include it in my upcoming video! ❤️
You look like you are feeling much better. I love your colorful sweatshirt! Are you still trying to get off of prednisone, and how is that going?
Ah yes, I haven’t talked much about my prednisone journey recently. It’s time to give you all an update. Thanks for the questions. I’ll add them in. And thank you for the compliment on my sweatshirt…it’s one of my favorites. 😁
How often do you have flare ups.? Just started my RA journey. Well diagnoses is only been 5 months. I had total knee replacement and then my whole body just felt like my strength was leaving me. Now my shoulder and hands are pretty covered with deterioration. Currently on methotrexate, prednisone and Humera…. I was To the point I like you knew something was bad wrong. I couldn’t even get my covers pulled up by myself. Prednisone has been a real problem but getting me through till hopefully Humera kicks in.
Thank you for the question! I’ll definitely add it to my upcoming video. ❤️
I am taking Cellcept for kidney disease. I just started. Does it take awhile to kick in?
While you take Mycophenolate do you also do the Rituximab infusion as well at the same time ? Thank you 😊
Thank you for your question! I’ll definitely include it in my upcoming video! ❤️
No question - just want to let you know how much of an inspiration you are for my fiancee.
Thank you so much! And thank you for being such a support to your fiancée! I know caregiving isn’t an easy journey. ❤️
I’ve been prescribed 10mg Methotrexate for skin tightening with scleroderma. What was your experience with this medication? Were you ok with occasionally having a glass of wine or did you give up alcohol entirely?
Good questions! I will definitely talk about it in my upcoming video. 😊
How is Wednesday ? Does having a pet bring comfort and calmness to your RA journey? My dogs have provided me with so much love and comfort on my AI journey.
Awesome questions and we all know I love talking about Wednesday. 😂 I’ll add these to my upcoming video! Thank you! ❤️
Whats your ana titer when you first diagnose?
Great question! I definitely add it to my video. 👍🏼
Do you have brain fog and it’s hard to concentrate?
Thank you for the question! I’ve added it to my upcoming video! ❤️