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One Year Post Thyroidectomy | Thyroid Cancer Journey
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- Опубликовано: 5 янв 2018
- WOW I can not believe it has been a year already !!! I feel like I am forgetting to mention some things so please feel free to ask tany questions below. This past year post thyroidectomy has been quite a rollercoaster. Some days I totally forget I have this going on and I start to feel normal. Other days I feel like the inner sadness, exhaustion and muscle twitches will never end. Yea I complain about it here and there to my friends, family and coworkers but in general I just ignore the uncomfortableness ( knowing that they aren't serious symptoms for me) and go on with my day. Life goes on, I (we) need to keep pushing on and striving to find ourselves and our happiness once again.
Let me know if you guys are curious to see a video once I do my total body scan in March. This is when we will truly find out if I am officially cancer free!
My Thyroid Cancer Journey playlist : • I Have Thyroid Cancer
* Confession, I just rewatched my first video and it made me cry. Both watching the video and reading the comments. Thank you all so much for always being there for me !!
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Hi, I am Michelle Marino from Sparkle Me Pink. I am a professional makeup lover with a passion for finding the best affordable beauty products and sharing them on the internet. Here on SMP you will find makeup tutorials, first impressions, real talk product reviews, beauty bargains and lifestyle. Which of course includes the craziness that is mom life. Come join our fun, bubbly and down to earth SMP community. To do so simply click the SUBSCRIBE button.
I absolutely ADORE your attitude! While my thyroid cancer was caught in it's earliest stages 21 years ago, I am now going through the journey again with my 34 yo son. He's five weeks out of surgery and will be going through the radioiodine treatment in a few weeks. Your videos have been a God send for knowing what to expect, so that when he feels something, he'll know that's the way it's supposed to be because you shared your journey with us. Thank you so much! You are a beautiful and kind young lady!
Your videos are the only support many of us have going through PTC and thyroidectomy during Covid. THANK YOU! For vlogging your journey.
Your videos have been so encouraging through my own thyroid cancer journey! I’m only 26 and it’s encouraging to know there is someone going through a similar situation. I just got diagnosed in July with stage one papillary thyroid cancer and had a total thyroidectomy and am still struggling to feel better. I have to take a lot of calcium every day. I’m severely hypothyroid and have gained weight and can definitely tell and it’s very discouraging...This video helps me see that over time things get better! Thanks for sharing your story! 😁😊
Love your channel! I recently had my total thyroidectomy (3 weeks post op) and I was instantly drawn to your channel when I say you went thru the same thing as myself. Thankful to hear you’re doing well. Praying the same thing for myself in a years time ❤️❤️❤️❤️
Hey how are you feeling now that your about 6 weeks post surgery ? At 6 weeks I remember physically feeling better but that's when the hypo symptoms kicked in blahhhh
Hey thank you so much for responding! Now that I’m about 6 weeks post op I’ve been a lot more sluggish feeling. My appetite is off some days and large on other days. My bowels are more rapid some days, some days it’s not. I’ve been having stomach issues. Which I’m not sure are correlated to my thyroid surgery but I’m sure it is. Im more cold than ever! Lol. After doing blood work it turns out I’m now iron deficient. I guess my body is still trying to get used to things. I got freaked out by all of these symptoms and thought I was the only one :( can you share some of your symptoms you experienced after surgery?
Kennetria Gilmore did your hair shed
a lot ?and if so what did you take to grow your hair back ?
I really want to thank you for making me not feel alone 💗I just had my second surgery for my right side thyroid cancer I still have to go through my iodine radiation pill after but it’s nice to know I’m not alone 💕
I had to comment. My name is Michelle too, and I had my thyroid removed too back in November 2015 due to cancer. Just wanted to say hi and let you know that I get it, and I am sending you a huge hug. We kicked cancer's behind, and I hope life continues to get better for both of us.
I hope so to ! So glad to hear you are doing well !! I still feel like my hair is falling out like crazy though. Do you experience the same ?
Just want to say thank you again for making these videos. I am a few months behind you in my journey. When I was first told I might have cancer I thought my life was over. I looked around and found your videos and watched them, ever since then I've been following you and you've been a massive inspiration for me. I'm so pleased that hopefully, you'll only have to make the one more video about this subject, and at the end you can say you are cancer free. I've got my RAI follow up appointment in Feb and I'll have a Whole Body Scan later in the year. All the best.
Hi Christy, glad you are doing well and getting the meds balanced. I suffered with Hypothyroidism after my completion TSH was 58.3 ( 0.5 - 4 is the normal range ). It caused all the issues Michelle mentioned on the video. I've just started my 150 mcg Levothyroxine and all my symptoms are slowly going away. I eat a lot of fibre for breakfast and that helps everything. I've done a lot of research and Thyroid cancer is actually quite common. They think it's in at least 10% of the population but maybe closer to 15%. I've only just recently started to feel comfortable to make plans for the future again :/ ( I've added you on FB ). All the best
I've had hashimoto's disease for about 7 years now. I finally found an amazing endocrinologist and my last labs were perfect and I've been losing weight again. I know for me the hardest part was getting the medicine right. It's hard to explain to your friends and family how tired and exhausted you feel even after sleeping 10 hours. I hope your body scan shows you are cancer free.
You got your voice back. Good luck to you, Michelle.
As a thyroid patient (not cancer), the second I noticed your scar I thought "did she have a thyroidectomy?" so I searched your channel for this video. Your story is interesting and I'm glad you shared it! Healing from thyroid problems really takes a long time, it's not just a few weeks or a month long project. I know what you mean by the tiredness and the "off" feeling. I know this video is a year old but I'm subscribing.
Thank you for sharing and stopping by Carrie. I agree with you. Living with thyroid issues is no fun and often a forever thing unfortunately
I wish i was even a tenth as positive as you are. I got diagnosed with primary hyperparathyroidism and told I need surgery, then found out my tsh is low, so hyperthyroidism. I keep being nauseous, headaches, sore throat. Body aches, lots lf fatigue. I dont have health insurance and need scans, surgery, ect. Hoping your positivity rubs off on me.
I just had my thyroid biopsy today. It wasn’t to bad. Now I wait for the results. I have a funny feeling the results are going to be something I don’t want to hear! My grandmother had thyroid cancer when she was around my age, so I’m preparing my body and mind for what may be. Thank you for sharing your journey with everyone! Your story helps me stay positive and calm.
Don't worry. In my case I had to do a total thyroidectomy with a block dissection on the neck to remove lymph nodes. The surgeons removed over 50 lymph nodes on the right of my neck, removed two thirds of the STM muscle and patched up my neck from the right ear to almost bottom left corner of the neck, and I still feel okay, my voice is great, I don't have swallowing problems. You'll be fine. It'll just pass. :) Waiting for my radio iodine therapy now.
@@Tharindu87 hi how are you doing so far? My dad had biopsy done but he's going to have another one next week.
Great to see you looking so good with all that you have been through.Keep well.You sound great!💚
Will you do an updated video on your scar? How it’s healing, etc?
Hi Michelle, I’ve have a thyroid nodule which was detected in 2014 thru an mri for a seperate issue. It’s been monitored since then and I’ve had a biopsy on it which was benign and it’s caused no symptoms. I’ve recently had covid a few back and now I feel like I’ve got a constant lump in my throat it’s uncomfortable when I lay down and it’s tender to touch but no pain. I’ve been back to doctors and I’m waiting on another ultrasound. Im scared it’s grown. Really good to see you doing so well. ❤
Think your amazing for sharing your journey and very brave..Alot of people are suffering in silence but its so cool to know that I am not alone and people around the world going through similar experiences. You have given me hope. Thank you and wish you the best xxx
Thank you Elisa. I hope all is well with you
Michelle,I truly believe God has healed you also,I think You are Cancer free and if not yet you will be girl!Your a fighter
Wow! What a difference in your life from the video I just saw about an hour ago about your Nutrisystem journey in 2014 then seeing you 3 1/2 years later. I’m so sorry you had to go through this!
I remember you had mentioned in the 2014 video you had stopped taking thyroid medication and I wondered why.
I have been taking thyroid medication for several years now. I have all the fatigue symptoms because of hypothyroidism as well as having Fibromyalgia and more seriously, I have Secondary Progressive Multiple Sclerosis. So I’m in very poor shape.
It’s important for all women to have T3 & T4 blood testing done by your Primary Physician on a regular basis. Women in their 30’s & 40’s especially.
Keep eating healthy and stay positive. I wish you all the best.
Your voice does sound a lot closer to your 2014 videos. So that’s great.
Yes I have been through a lot. Bad relationships to freedom to health issues and recovery. I’m almost 2 yrs out from surgery and still feeling like I’m trying to get things balanced out.
Thanks for the video. I was diagnosed 2 mo ago with thyroid cancer and had the total thyroidectomy 4 days ago.
Oh man. How are you feeling ?
My 24 year old daughter just finished her third bout of surgery. It's been a struggle since 2011. I would offer the following advice to those going through this:
Become an expert on this disease. Research the disease, treatments, etc.
If possible get under the care of a noted endocrinologist with extensive thyroid cancer experience.
Find a board certified endocrine surgeon who has hundreds or thousands of these surgeries under their belt. Really important because your life and it's quality going forward depends on it.
If you can treat through one of the renowned research hospitals like Sloan in NYC, UPENN in Phila, Mayo or Cleveland Clinic. The have highly specialized endo, surgeons and pathologists.
Your surgeon's skill level effects their ability to remove the highest amount of thyroid tissue safely and without damaging the recurrent laryngeal nerves, carotid artery, jugular vein and trachea, Thyroidectomies expose these vital structures to possible damage which cause major life altering changes. Without a doubt your nerve (s) were damaged or severed to have it effect your vocal chords. Also, you mentioned your parathyroids were effected. With two you should be having fine but I'd question what they're telling you about that since you're having parathyroidal effects.
I can reiterate enough to make sure you have a skilled and experienced endocrine surgeon and NOT some general surgeon or ENT surgeon.
I've watched many of these vlogs and feel so bad that people are making uneducated decisions or just listening to their medical team without doing their research.
My daughter had her first two bouts with a great team but when the third bout started we decided that we'd go to get a second opinion. We had already consulted with new Yorks Sloan Kettering and Cornell. We went to UPENN for her last surgery. Just to show you UPENN revealed that our first pathologists misdiagnosed the type of pappillary thyroid cancer my daughter had. There are several types and some have sub variants.
Go for 2nd opinions. Ask tough questions. Don't be afraid.
Hope this helps all you very brave and courageous people. God bless you all.
I can attest to finding an endocrine surgeon and not a general or ENT surgeon. I am currently about to go into my third thyroid-cancer-related surgery and I finally am able to go with an experienced endocrine surgeon since the ENT surgeon left cancerous lymph nodes from the last time. Seriously, be adamant about this. It's important.
Michelle amazing story, I've bee following from beginning! I am so thankful that you shared this, it's extremely personal and it's so wonderful that you opened up about this personal journey. I love all your videos!! You look and sound wonderful 💜 thanks so very much for all you do
God Bless you - thank you for sharing so honestly
Thank you for sharing your journey.... I watched your videos before I had to have my total thyroidectomy for my papillary cancer and had to have radioactive iodine treatment. Thank you very much for your selfless sharing......I am now waiting for my second radioactive iodine treatment, I pray that I feel better like yourself after my treatments.....
Thank you for sharing! I can relate to SO much of your journey! I was first diagnosed at 26 in 2014 with papillary cancer, had a complete thyroidectomy, and radioactive iodine treatment. I just found out a couple days ago that I have recurrent papillary cancer, so I’ll be having another surgery to remove a small tumor in my neck.
Oh wow ! Did they just find it at a regular check up ?
Michelle Marino yes, my thyroglobulin went from 2 last Dec to 20 this Dec. My doctor ordered an ultrasound and they found a small tumor, so then it was a fine needle biopsy. Luckily he caught it early!
Hmmm very interesting thank you for sharing this. I’ll have to double check my endo is checking this for me. I’m sure she is, she is seriously wonderful. But I hadn’t heard of anyone who had a total thyroidectomy and had papillary come back. Especially after RAI. A little scary but at the same time you’ve been through this before. You are strong and I know you’ll get through this! If you don’t mind I would love for you to share your story of awareness in our FB support group, Thyroid Conscious. No pressure though !!!
Michelle Marino it’s important to have awesome doctors!! It’s crazy mine came back! I always knew it was possible for cancer to come back, but I thought it was rare esp after RAI. I will definitely join the Facebook group and share my crazy journey!
Thank you so much for sharing your story! I was diagnosed this past November (mine was follicular) and had a full thyroidectomy the week of Thanksgiving. I discovered your videos at that time and it really helped me know what to expect to prepare for it. I subscribed and now I LOVE all of your videos. Btw, I've been using the Scar Away silicone scar sheets for about 2 weeks now and they are amazing!!! I got them on Amazon.
Did u have enlarged lymph nodes?
@@gaillee26 no I didn’t
I 100% understand what your saying about being so tired that you felt heavy! I had so many & still have some days where I wake up feeling that way. I was diagnosed with papillary cancer in October of last year & had a total thyroidectomy at the end of January this year. For the most part I have felt better, but still I have days where I am exhausted! Strangely how you mentioned feeling weird in your body & not yourself, I feel like that sometimes & cannot explain it. It's odd... you sound good (voice wise)... I still can't yell or sing for a flip... some days I really get tired of sounding like a squeaky toy! I'm hoping & praying that it all comes back in time... yes, I wish I would have taken off of work longer than a week... anyway, thank you for sharing.
Sending you virtual hugs love and tons of support !!!!
@@MichelleRother thank you so much ❤
Most people's scar goes away after awhile.Mine disappeared in 8 weeks.Almosr completely.
I remember finding your channel a loong time ago when I tried to do nutri system lol
You've been thru a damn lot girl. ♥️ Makes me want to do better for myself too
Hey Ashley 🙌🏻 btw idk of those are yes girl hands or high fives or waving so we are just rolling with it. Thank you for the kind comment. I have been through a lot but I gotta roll on. I just started a new healthy and wellness journey too. Would love for you to follow along. I don’t have a video for it up ‘yet’ but I do have a Sparkle Me Fit FB group I would love for you to join if you haven’t already :)
Thank you videos it really helped me through my journey especially rai and calcium low issues thank you Michelle.
Hey girl! Your journey sounds crazy but you are doing amazing! Hearing that money is an issue is not nice to hear and a lot of us deal with it on a daily basis. Rodan and Fields has been a life saver for many of the ladies around me. Let me know if you want to hear more about it. I know it sounds crazy but it is actually an amazing opportunity financially. Let me know!!
I have watched your videos over and over. Thank you. I just got my second thyrogen shot today and my rai is tomorrow. I am just so sad to be away from my husband and kids for a couple days and just nervous.
After I have my thyroid remove I went through so much helthy problem and fatty liver and anlargman is hard to keep my wait
If I know I we'll never have the sergre sorry for my English
I just learned I have thyroid cancer. how are you doing after 6 years? Thank you so much for the video. xo
I gained about 15 pounds after surgery and lost it off and now I've lost 21 pounds!!!
Yeah, i noticed my weight going up and down quite a lot after the surgery but, apparently that's expected due to the thyroid etc.. It's been nearly two years now and feel as though I'm starting to lose a lot more weight 🤷🏽♀️
How do you guys loose the weight? I’ve gained 10-15 pounds as well it’s been a year and half of having it removed.
I soooo relate to everything you say Michelle and You were My rock all through My surgery and recovery.God sent you to Me at the exact righttime.I foumd yourchannel,when It was about 3 weeks till My Surgery.Thank you so Very Much L❤VE!
From far away your scar konda looks like a pair of pink lips so thats kinda cool. I hope you get even better than you are now and even though i don't have the exact same health issues you do i find some of your tips helpful so thanks.
Me too December 7 2018 and I had all this work during the holidays omg! I take my time here and there now! At times I’m still a couch potato lol last two days ugh just feeling like crap!
To the folks who are new to this like I am; In my case I had to do a total thyroidectomy with a block dissection on the neck to remove lymph nodes. The surgeons removed over 50 lymph nodes on the right of my neck, removed two thirds of the STM muscle and patched up my neck from the right ear to almost bottom left corner of the neck, and I still feel okay, my voice sounds the same , I don't have any swallowing problems. You'll be fine. It'll pass. :) Waiting for my radioiodine therapy now.
Fingers crossed.
I've taken antidepressants since I was 12 because Of manic depression, Anxiety Disorder, and OCD.But You are Exactly right,my skin is dry and My ponytail is half as thick as it was.
Hi, I had my Total Thyroidectory last July 15, 2019 and my voice is not the same as before. My doctor advised me to take thyroxine for 1 month then we will under go again TSH.
Now, I afraid that may voice will not get back.
Im sorry to hear you are having a hard time. Hopefully with some rest your voice will return !
Hey Michelle!I Love You Hun!
I really try to take it easy,and I'm very tired all of the time and have passed out twice.But I went one time without my calcium for 3 weeks.And I hurt so bad and My muscles were twitching.Ive lost a little weight now.
having huge calcium problems, they removed my parathyroid
Post op TT 4 months. Spot on!
My scar is Almost invisible, You have to look so close to even see anything.My scars always heal really good.
I had the surgery a week ago and I am having problems breathing. I can breath but not as well when my mouth is open. Did you experience this?
Hi just would like to ask if it’s okay to take vitamin C or whitening capsule if you have hyperthyroidism?
I understand exactly what You Mean.My levothyroxin is at 137.5.I was on 150 but my tsh was low so they had to take Mine down a bit.How many mcg.are you on?
Hi Michelle, thank you for the video. Is there any food restriction after / post the radioactive iodine ?
Yes, you want to stay on a low iodine diet for much of the first year post procedure and RAI
My surgery for PTC is tomorrow morning!! :D
I just found out I have nodules on my thyroid and I'm waiting for ultrasound results. Thyroid cancer and disease in my family. I'm terrified
Most nodules end up being nothing. I know it's easier said than done, but try not to worry about it. I am getting an ultrasound in March as a checkup after having my thyroid removed due to cancer, and I am nervous too, but I try to keep myself and my mind busy. If you do have cancer, don't panic. Find a good surgeon and have faith all will be ok. It won't be easy, but once you get through to the other side, all that you went through will just make you stronger. But for right now just try not to worry. Whatever comes your way, you will be able to deal with it. I didn't think I could do it, and I honestly cried my way all the way through it from panic and fear, but after all is said and done, I am a stronger person and life continues on. Good luck, and I am sending good vibes your way that it's just a nodule and nothing else.
Mousehead Studios thank you!! My ultrasound results show 2 solid nodules so they want to do a needle biopsy. My bloodwork was in normal range. He told me odds are good I'm just in a fog right now. Dreamy fog... or nightmarish kinda fog 😂 thank you for your kind words
Mousehead Studios my ENT does all his patients surgeries I believe. I'd go with him. He's the one who found it when no one else cared about any of my symptoms.
Mousehead Studios I'm really trying to stay positive and not worry. It's hard. I'm the definition of worry wart. Have been since I was 3. Now all of a sudden I have to stay calm 😂😂😂😂
Hi Pamela, I Saw your post. I had 3 Nodules on my thyroid ( 2 on oneside, 1 on the other). I elected to have my thyroid completely removed without a biopsy.
I had my surgery just over a week ago. On Tuesday I was told the biopsy on my thyroid came back positive for cancer. I have elected to do the
radioactive iodine treatment. I will have Lab work done in 4-5 weeks and then I assume some time after start the treatment.
Please don’t be afraid, try and relax and stay positive for yourself and family. I know Im going to okay, I trust my Doctor’s.
Remember your not alone, there is a lot of people going thru or have gone thru this journey. Take care
I had my whole thyroid taken out and can you still get pregnant with no hormones please reply ?
I have been constipated all the time but I take Suboxone so it does that.
I lost My voice a Year before My surgery.And it's still not back right.I have a deep voice naturally,but I have a deep sort of hoarse voice now.
Oh yeah, one question I do have is that my levothyroxine is giving me kind of a hard time. My skin has always been clear because of genetics. But since I’ve been on the medicine I’ve been breaking out with rash patches on my face, I’ve been EXTREMELY almost scarily tired and exhausted allllllllll the time. Is that normal?? Should I tell my doctor?? And also I find I’m restless at night... much love!!
It is normal, but you may want to talk to your doctor to see if they can do anything for you. I'm still dealing with feeling tired all the time, but I feel it's something I need to work around. Getting on a good diet and exercise might help with that. Good luck and I hope your doctor can help you find a way to deal with it.
I live in Arizona which Dr. can you recommend me for thyroid cancer?
Dr bianca Vazquez in Arizona
After one year what level(TSH) are you maintaining?
cool!!!
It would be interesting to see a video on how to conceal a scar when desired. Like which types/colors of concealer, etc. With/without sunblock.
That may be a good idea. Honestly I haven't really cared to much to put the effort into trying to cover it but I could see how some may want to.
Yea I think it would be a very popular video. For folks with any type of scar. Arm, etc. For folks going to some special occasion, etc. I personally still get confused on the yellow/green thing LOL
I’m having iodine it’s so hard😭😭😭
I've lost 21 pounds.I lost 9 pounds in 1 week.
How?
I want to lose about 20 more pounds.
I just had my biopsy done today
Hi, Michelle! Just watched your video now. I have the same diagnosis with you. Just this Oct 8 that I learned about my Papillary Carcinoma. I feel scared. Thanks for sharing your experiences. It helps me feel good. May I know your facebook account? Want to connect with you more. Thank you. 😊
I really want to thank you for making me not feel alone 💗I just had my second surgery for my right side thyroid cancer I still have to go through my iodine radiation pill after but it’s nice to know I’m not alone 💕
It’s so hard 😭😭same with you
I really want to thank you for making me not feel alone 💗I just had my second surgery for my right side thyroid cancer I still have to go through my iodine radiation pill after but it’s nice to know I’m not alone 💕
No Stacy you are not alone !! Go join the Thyroid Conscious FB group. Wonderful place to connect and ask Thyroid questions 🙌🏻 hugs!!