Your story is so similar to mine. I really think autoimmune disease should be deemed a disability due to the symptoms that can impact your day to day life.
blujay Please turn to Jesus He loves you very much, i was ill for many years but the doctors couldn't really help me, i don't blame them, there was only so much that they could of done for me, Then Jesus gave me a miracle and healed me, He is the God of miracles, God has done amazing things in my life and in the life's of my family, He can do the same for you and yours, When you need Him call on Him, He is the God of comfort and will there for you when you call on Him, The bible tells us in Romans 10:13 For whosoever shall call upon the name of the Lord shall be saved, God saved someone i love from an illness leading to death, There is nothing impossible to God, It's as simple as asking Jesus into your heart and life to be your personal Lord and Saviour, confess your sins to Jesus, and Jesus will for give you, If you truly seek Him, Jesus will answer you, i know this because He answered me when i called out to Him
@@marishkababushka185 Please turn to Jesus He loves you very much, i was ill for many years but the doctors couldn't really help me, i don't blame them, there was only so much that they could of done for me, Then Jesus gave me a miracle and healed me, He is the God of miracles, God has done amazing things in my life and in the life's of my family, He can do the same for you and yours, When you need Him call on Him, He is the God of comfort and will there for you when you call on Him, The bible tells us in Romans 10:13 For whosoever shall call upon the name of the Lord shall be saved, God saved someone i love from an illness leading to death, There is nothing impossible to God, It's as simple as asking Jesus into your heart and life to be your personal Lord and Saviour, confess your sins to Jesus, and Jesus will for give you, If you truly seek Him, Jesus will answer you, i know this because He answered me when i called out to Him
Girl thank you for this!!! I was diagnosed with hyperthyroidism a few months ago and it is so trying!! No one seems to understand this, and my mom keeps telling me that I am just lazy! I was lucky enough to get diagnosed early on, I felt such a bad headache and got diagnosed afterwards. My symptoms consist of mainly tiredness and fatigue and a crazy appetite. I am tired by 12 pm no matter how much sleep I get. My blood pressure and heart rate is balanced right now, but I am still very tired and from time to time I feel like I am about to get a panic attack. My thyroid is still not balanced so I went through a hypo phase in which I gained tons of weight and slept most of the day. But it’s taking a toll on me mentally, I just don’t feel validated by my family, they are making me feeling like I am lazy and whiny whereas I am so tired, weak and anxious…
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@@AmberAsburyGD Hey girl, I don't know if you've gotten this diagnosed and straightened out yet, but your mom may not be totally wrong... Not that she knows what she's talking about necessarily, but there could be something to it, because there are many environmental toxins and other factors that can contribute to thyroid problems, such as parasites (it can't hurt to get checked for this) or toxic mold in the home, or other triggers that can tip your immune and/or endocrine systems into a hyper- or hypo- thyroid condition. I suggest anyone who suspects these kind of problems gets checked over thoroughly, including antibody testing for autoimmune problems in addition to thyroid panel, toxins, and yes even parasites. I had a very scary series of events to deal with when my dear cousin had a hyperthyroid storm and nearly died... I'm still trying to take care of her because the doctors don't know everything, and she is very stubborn.
Thank you for sharing! 4 days ago I did the RAI Therapy and I am house bound still. My life has been a whirlwind for the last 5 months. I am 54 and this is all so crazy. Back story: August I went to a new MD and she required a full blood panel. My routine MD quit and that is why I had to find a new MD. Within 2 days after my blood panel was drawn I got a call telling me I was in a full blown thyroid storm. I had tremors, hot flashes, lost 30 lbs. September I saw an Endocrinologist and was put on meds ASAP. October, November my numbers for thyroid went down but liver and bone hormones went sky high. December 10th I was given the choice of RAI or thyroid removal.... at the stage in life that I am I chose RAI. December 26th is where I am now. One day at a time. God bless! You are a beautiful young lady and thank you again for sharing your story!
My wife has Graves I been looking around trying to find all the info I can to help her she is so pitiful she is talking surgery she is down to 90 lbs and losing her hair, glad to see the surgery worked for you never lose your good attitude
Wow I have hyperthyroidism my weight was a solid 150, and I worked out in hooped still 150 it was only going up from 155 to 150 in I wasn’t complaining, but they put me on prednisone trust me it will have you gaining major weight about 15-20 pounds in a month it’s the wrost
I'm really grateful to Dr Onyeneke on RUclips who cured me from hyperthyroidism with his natural roots and herbs herbal medicine don't be scared of the unknown give it a try today and you will see the greatness in natural medicine ruclips.net/channel/UC5w6cJySjwsqevUmETSZoCg
I was just diagnosed with Graves Disease, and I have been through the wringer! Thank you for this video, there are hardly any on Graves and I am just happy to know I am not alone. Once Covid numbers go down in my state and the medication to calm my thyroid kicks in I will be having the surgery to remove it. I am currently in Beta Blockers for my heart and every doctor I have encountered has told me I will have a heart attack if I am too active and if I am too stressed. I have a long road ahead of me but I am fighting
I was diagnosed with Graves’ disease when I was in third grade(8 years old). Everyone who I live with has been to medical school and when I was sleeping my heart rate was super high, and basically most of the symptoms of graves and one day when my school had a snow day my mom took me to the doctors and set up an emergency appointment and went to go get my blood drawn once in 5th grade so 10 years old I was taken off of my medication and am now in full remission and am now 13 but recently we had thought I was going to be put on Synthroid but luckily my TSH was normal from my last blood drawn
I been living w graves disease for 8 plus yrs and finally oct 29 2020 I will have mine removed .. it has been a really scary n crazy journey I wouldnt wish it on a enemie it was that bad... god bless anyone who has or is going through this ...
It gets SO much worse untreated. Like sadness turns into "I just lost my mother" kind of feelings of loss, agony, depression, hopelessness, like it gets wors.e but, if you get it treated it goes back to normal fairly quickly lol
I'm really grateful to Dr Onyeneke on RUclips who cured me from hyperthyroidism with his natural roots and herbs herbal medicine don't be scared of the unknown give it a try today and you will see the greatness in natural medicine ruclips.net/channel/UC5w6cJySjwsqevUmETSZoCg
I'm really grateful to Dr Onyeneke on RUclips who cured me from hyperthyroidism with his natural roots and herbs herbal medicine don't be scared of the unknown give it a try today and you will see the greatness in natural medicine ruclips.net/channel/UC5w6cJySjwsqevUmETSZoCg
This is so similar to my own story! I was 19 years old (I’m 39 now) and away at school when I was diagnosed with Graves’ disease and an extremely overactive thyroid. My parents started to notice my bulging eyes when I was home for winter break but we did nothing about it. My eyes were getting worse and there was a noticeable goiter in my neck. 3 days before I was supposed to go to London for spring break my best friend picked me up and rushed me over to the hospital. She had been talking to her mom about how horrible I had been looking/feeling and her mom immediately knew what the problem was. She had gone through the same thing herself so she knew! I had them run blood tests and that’s when I found out. I had to immediately start taking a beta blocker for my heart palpitations, which were horrible btw. They kept me up all night. I went to London, felt like shit the whole time, came home and saw an endo. They put me on meds and after a few adjustments I was feeling so much better. My eyes started to go back and my energy felt good. Unfortunately after being on meds for about 3 years they stopped working. My thyroid levels were increasing. I elected to do RAI. I was fine for about two years when my thyroid started to grow again! I had to do the RAI again which killed my entire thyroid. I was officially now hypothyroid. I lost my job right before the 2nd RAI and my insurance ran out after a month. Instead of going back in to do follow up bloodwork and getting on the proper thyroid meds we waited. Horrible mistake. I became so lethargic, had foggy brain and was barely functioning. I luckily landed a new job with great insurance. I called a new endo to get in and there was a month long wait. I had to tell them how horrible I was feeling and sent them my last bloodwork. They called me back and said the doctor needed to see me ASAP because my levels were dangerously low. I got in, he was great. He put me on Levothyroxine and started feeling better within weeks. I eventually regained my energy and started working out again. I am still on the Levothyroxine and feel great. Oh btw, my first endocrinologist said the said the same thing about my overactive thyroid; it was HUGE. It was definitely a long journey to get to where I am at now.
@@Србомбоница86 hello am a living testimony to Dr iyaremoses on RUclips channel am completely cured after applying his herbs medication I'll advise you reach out to him
I'm so happy you shared your story. You look beautiful to me. Your eyes are so gorgeous. You are totally beautiful. And I'm so glad you made it through this surgery so well. It sounds like a real dramatic event for you and your family. I'm 73 and just found out a few days ago I too have graves disease. This anxiety and the shaking is so hard to deal with. I don't know yet if they are thinking of removing my thyroid but I would accept it and be happy. I know then I take meds for hypothyroidism but that's fine by me. I don't want to have to deal with such a surgery right now as my 39 yr old daughter had cervical cancer so I must be there for her. It's hard many times in life isn't it? We least expect it and here's a harsh problem thrown at us. Good luck and much happiness.
Thank you for sharing your story. Recently being diagnosed with hyperthyroidism. I also have difficulty swallowing food and I feel so pressure on my head after eating .
Thank you for sharing your story. I was diagnosed last week with Graves’ disease after being in and out of the hospital with such a high heart rate. I’ve just started taking cabamorazole. I keep bursting out in tears at the way I’m feeling but still carrying on at work like everything is fine
Hold on ... If u believed in holistic approach do that too .. Stress in one of issues if graves and if u have TED. going thru it meditation and deep breathing & pure essential oil keep my stress level,anxiety emo at bay at the same time getting proper food intake like proteins, magnesium, vit-b helped too but I did this with my functional med coach. It doesn't cure but at least I'm in control of my body and managing it. I'm still on camazol and monitoring bloodwork. If this round my antibody isn't cooperating I have to consider thyroid removal. It can be quite frustrating but if any means u can adopt holistically to manage ur condition u can try and see how it goes. Hold on and all will be good though it won't be the same but it will be good.
hi there i had this diagnosed last year and i have been takinh homeopathy and Ayurveda medicines for a year and it helped great deal in my hand tremors , rapid heart rate and weight loss .. also it helped my thyroid levels to come down to normal level . But only TSH was suppressed so I took carbimazole 5mg for two months and now all my thyroid levels are normal . Thank God
Hi, chica! I hope you come back and do a update. I was recently diagnosed with hyperthyroidism and I’m so confused and lost. I’m trying my best not to get overwhelmed by it all. So thanks for this video.
I have had thyroid problems for a few years now and I can chat with ya! I had my thyroid removed in 2019 after a long thyroid struggle with levels too high and being sick and lathargic. I recently had my eye surgery to fix my eyes from it and I’m hoping they’ll look better when they heal.
I was diagnosed with Graves in January 2020 and have been off and on medicine it was super high then went super low and now it’s going back high. We were planning on doing RAI but bc lately my eye sight has gotten super bad they wanted me to see an eye specialist. I see the eye specialist tomorrow and will talk with my endocrinologist to see if I will get the surgery or RAI. I also have rheumatoid arthritis on top of that and a heart condition that I’ve had since birth. I’m glad I found this video!
Best video hands down! Thank you so much, I appreciate you ! I was diagnosed about a month ago & it’s been a living hell since. You’re brave & your message has given me strength as well. Thank you,again!
i have graves but i refuse to treat it because i’m scared and sad that a part of my body is not going to work. .. but this video is so helpful and makes me feel understood
Please keep posting , I love this ! I got diagnosed in October of 2017 & I relate to this so much and try to spread awareness to everyone I meet ! Cause this disease is such a roller coaster and a journey ❤️❤️ and I’m happy somebody ! Is talking about it :)
I have Graves’ disease and hyperthyroidism it’s literally the worst ! It’s so hard on me especially dealing with people who dont understand . You have inspired me to start a RUclips channel and share my story thank you 🙏🏽🤍
I have Graves too. It really does mess with your life in so many ways. I had my first flare 3 years ago, recovered with methamizole and was in remission for two years, but it just came back. It messes with you physically but also emotionally and cognitively. Thanks for sharing your story because it’s really encouraging to see how well you’ve recovered, especially since I may need to consider surgery at some point if this keeps coming back. BTW you look beautiful, including your eyes, so don’t stress about that.
I was diagnosed in 1976 and I still have a droopy eye today. I had radioactive Iodine and it turned me hypothyroid. I never looked sick on the outside other than weight gain and loss. Thanks for posting this for people to hear
if you don’t mind me asking, after RAI did you notice any symptoms? relating to quality of life, fertility etc. i just had it done and i am trying to prepare myself for the future :)
@@ashb593 I seemed to have trouble getting pregnant but it may not have been related. Quality of life was not affected as far as I could tell. I was in my 20's and now I'm 65. I've always had trouble adjusting the synthroid they put me on but I've gotten used to the every 6 months bloodwork. Good luck to you.I'm sure its better now than in the 70's
its weird everyones different , i was sick for a few years with lightheaded dizzy weak achy joints and muscles puffy eyes feet and hands inner body buzzing tremors in muscles and dr said it was sinuses , they took bloodwork but i dont know what they checked for because nothing was found so i went on disabilty because i was so sick , then it got so bad i couldnt walk went to hospital again nothing found , then a year later again so weak dizzy foggy brain couldnt take 2 steps so weak , went to a walk in got blood work and they said i had graves for many many yaers and they said i had hyperthyroidism for so long it destroyed my thyroid and caused hypo , but i didnt have bulgy eyes or swollen neck , i didnt need surgery , its weird because they put me on a low dose of levo thyroxine and my thyroid went super high so i had to keep lowering the dose and now im on 0.5 mg wich is rael low . still on disabily i have ups and downs , but it took 8 months to finally start feeling better after medication , i couldnt even walk !
I also have graves disease i was forced to take leve without pay from a job i love. My thyroidectomy is in 2 days and i have never been more terrified in my life, and my family is not understanding what i am going thorough. That being said i was happy to see this video and it helped ralive some of my anxiety about surgery so thankyou.
I'm so sorry to hear that. I'm reading a lot of people say their family was not understand which blows my mind. Do you mind if I ask, when you say they weren't supportive did they not understand your symptoms or did they not understand why you feel Ill? I just got diagnosed and when I told my parents they were scared. The fact that it's autoimmune scared them. But when I told them with graves I could get a little anxious and irritable. That's when they don't understand and told me that's no reason to be moody.
It is soooo nice to be able to relate to someone who has Graves Disease. I was just diagnosed with it 3 weeks ago. I decided to do surgery and I am a little scared.
Lee Torres what were those consequences (if you don’t mind sharing) i just had rai done. my doctor said there are really no side effects to it. maybe the medicine has changed?
@@ashb593 My grandfather had his like 4 years ago and he lost sensation in his hands. He also has teary eye and can't taste food as well as he used to. I asked the doctor and they told me all those things can happen but the changes are low but since it happened to a family member it could happen to me. I thought about it for a while and didn't like the idea of being away from my family.
Bethany, you're so sweet and beautiful. My 14-year-old daughter was just diagnosed today with GD. My poor wife is so stressed out. My daughter is A-Symptomatic and has not shown any signs or symptoms of GD. My sister-in-law noticed a slight abnormality with my daughter's neck and GD was mentioned and we immediately had it checked out. IT was positive. So, we are starting on the meds to get her T3 and T4 to a normal level. We will wait 6 months to a year to see if it will go into remission on its own and if not, we will cross the bridge of which definitive treatment is best. You are very cool to share your story. You have a wonderful beautiful presence and that comes out loud and clear. Don't be too concerned about your eyes, they're beautiful. Thanks Again, Jon, A concerned Daddy.
I'm 51 normally healthy can keep up with the young people but today found out I have graves...I want to thank you for this video it started with my left eye to anger lots of crying lots of bathroom trips. I thought it was menopause boy I was wrong.
Thank you so much for posting! I was diagnosed with Grave's Disease two years ago and have had a fairly similar experience so far. It's super nice to hear someone else's story!
Some people just require less iodine in their diet. If anyone reading this has not gotten their thyroid removed yet please try reducing your dietary iodine WAY down. You will notice your eye bulging going down in 1-2 days. Just keep up with it, and try to eat healthy but without eating very much iodine.
Wow. I just got diagnosed with hyperthyroidism today. That’s exactly how my eyes look right now. I have an appointment with the endocrinologist later this month. Thank you for this video❤️
I was diagnosed 2 months ago. I had intense sweating, heat intolerance, insomnia, trembling, anxiety, etc. My eyes and neck were swollen too. The antithyroid medication has caused me muscle pain, headaches, coldness. I've been getting acne (never had it before). Ugh, it's been an ordeal
I just started the medication and experience chest pain i dont sleep now just if get worse il go to ospital...i feel i might not make it...chest pain for hrs now
@@SVETLANA_NICOLE im ok now i take methimazole but i had propanol for 2 to 3 weeks from the start. I also haf sleeping pills at first 4 weeks...my eyes bulge but getting back to normal just one side of eye that still lil bulging
Thank you for this video. It’s really comforting to know I’m not alone & someone else GETS it. My Graves‘ disease is in remission! Thankfully didn’t have to have surgery, but I’ve been managing Graves’ for 3 years now. No fun & the exophthalmus is sooooo annoying. I hate it so much. Hang in there though, we got this!
Thank you for sharing your story. I've just been told I have Graves desease. After about 6 month of giving birth I went through a full thyroid storm. I started shaking, heart racing, sweating, hungry all the time, anxious, and headaches. My aunt immediately rushed me to the hospital, where I was diagnosed with Hyperthyroidism. My grandmother had suffered from it as well and had the surgery done. I also have 3 cousins 2 with hypo and one 11 year old with Graves, now doing better. I honestly don't know if I am more scared of the surgery or of taking meds and making other things worse such as my liver or bones, which I've read others stating this as side affects. I just came out of a bad C-section, where I had lost too much blood as well and rushed back to the hospital 2 weeks later, because air bubbles had travelled to my lungs. I also heard that a study in Indonesia showed that most people who had an infection in the gums saw their thyroid levels go back to normal after taking care of the infection and I know I have one but won't be seen during the pandemic. Babies take a lot of calcium from the mother, which is said that that is the reason some mothers start showing symptoms about 6 months after birth. I am also going to try and follow a strick diet and do yoga. I watched a video explaining that yoga has helped many people bring their thyroid hormones back to normal. I also want to move back to PR where I can grow my own food. I am not allowed to even put a plant of vegetables on my porch. 😢 I am scared but going to have to try and fight this. I am not afraid of having a scar. I am afraid of leaving my kids. 😢😢😢😢 Thank you again for the video. You look great. I am so happy for you. Many blessings.
Just found your video. Thankyou for posting! Was diagnosed with Graves and TED last year and it’s been a strange journey! Everything you are saying makes sense, wish I’d found this sooner!!!!
Thank you for sharing this. I hope you're well. You got me emotional honestly. I'm due for surgery soon and have Graves too. It's a nightmare as you know. Again, thanks. Hugs x
Holy crap! I’m so sorry you had to deal with that! So scary! Can’t believe your thyroid was so big! I was recently diagnosed with Graves too! I had to find out the hard way, my thyroid caused me to have an elevated heart rate and I had a panic attack on top of that which cause me to have my heart stopped and shocked in the ambulance cause my heart rate wouldn’t slow down, I was at 180 for over an hour, it was terrifying ! Honestly! Thanks for sharing!
I'm really grateful to Dr Onyeneke on RUclips who cured me from hyperthyroidism with his natural roots and herbs herbal medicine don't be scared of the unknown give it a try today and you will see the greatness in natural medicine ruclips.net/channel/UC5w6cJySjwsqevUmETSZoCg
I'm really grateful to Dr Onyeneke on RUclips who cured me from hyperthyroidism with his natural roots and herbs herbal medicine don't be scared of the unknown give it a try today and you will see the greatness in natural medicine ruclips.net/channel/UC5w6cJySjwsqevUmETSZoCg
I've been dealing with Graves Disease for about 6 years now and I want to thank you for posting this. Knowing that there are others dealing with this and being open about it all gives me some type of hope. I hope all goes well for you! ❤
Thank You Bethany Marie- My daughter is the same age as you. She is going to a Doctor now, and really appreciated your Utube, as well as I appreciated it too.. Enjoy your new life now. Thank YOU
Thank you for sharing your story. I’m experiencing your initial symptoms and I’m not sure what’s going on with my body and I’m really afraid but I feel a lot less alone now
Just want to tell everyone that Horizon Therapeutics has a new drug, Teprotumumab, which hopefully will be approved in March 2020 that can help with Thyroid Eye disease. 82.9 percent of patients had reduction of proptosis (bulging of the eyes) by 2 mm or more. This will be the first drug to treat thyroid eye disease if it gets approved and hopefully an option vs. eye decompression surgery. Crossing fingers that this treatment will be approved!
@@anithakoduru7220 Please turn to Jesus He loves you very much, i was ill for many years but the doctors couldn't really help me, i don't blame them, there was only so much that they could of done for me, Then Jesus gave me a miracle and healed me, He is the God of miracles, God has done amazing things in my life and in the life's of my family, He can do the same for you and yours, When you need Him call on Him, He is the God of comfort and will there for you when you call on Him, The bible tells us in Romans 10:13 For whosoever shall call upon the name of the Lord shall be saved, God saved someone i love from an illness leading to death, There is nothing impossible to God, It's as simple as asking Jesus into your heart and life to be your personal Lord and Saviour, confess your sins to Jesus, and Jesus will for give you, If you truly seek Him, Jesus will answer you, i know this because He answered me when i called out to Him
I want to know when this new drug be approved. I have a thyroid eye disease and I want to get rid of this. My eyes are so dry and I couldn't close it properly and I want to try this before going into the surgery🙏🙏
I'm honestly glad I came across this. I was diagnosed with Graves Disease in 2019. I had a high heart rate and i had really bad hand tremors and lost a bunch of weight.
I got diagnosed in 2019 too😁 I was actually just admitted into the hospital. I felt weak and this video just put things into perspective. I am faced with a decision. Live feeling like crap or have the surgery.
Im 17 when i was diagnosed with hyperthyroidism and grave's disease. Luckily, its now under control without radioactive iodine and surgery. But i wish my eyes will back to normal 😭
I was diagnosed last October. I’ve been on Methimazole since. My right eye is drooping also. My left eye has a lot of puffiness hiding my eye lid and tear duct, along with puffiness on my cheeks. My hair has thinned and I’m losing more hair than ever. New hair growth is curly even though I’ve had straight hair all my life. My blood pressure and pulse are much lower since I’ve been on propranolol. The blood test last month showed my tsh is now high and t3 and t4 are low. I was already on decaf coffee. I’m still tired, anxious and hungry all the time. I’ve gained 25lbs now. But I was only 98lbs when diagnosed.
i am having surgery on the 17 july 2020 i was diagnosed with the same thing after 3 years i finally am having it removed thankyou yours is the best video i have watched it has been very helpful thankyou stay well
I have been diagnosed with graves disease a few months ago now, it really sucks and I have gone through all the things you have went through and I still am. When I got diagnosed they said we think you have had this for about 3 years... Which sounded right to me, I am still on carbimazole and propanalol at the moment.
@@bethanymarieco I have been diagnosed with graves disease a few months ago now, it really sucks and I have gone through all the things you have went through and I still am. When I got diagnosed they said we think you have had this for about 3 years... Which sounded right to me, I am still on carbimazole and propanalol at the moment.
Hey guys, feeling absolutely amazing 6 months after the surgery. Everything went super good...I had an issue with my eyes but after the surgery, all went to normal, all ugly symptoms are gone. I'm super happy that I did it. :)
Your story is literally the same as mine, and the past few weeks my eyes have changed and they look like the pic at the beginning of your video. I’ve had this for 4 years no surgery but I had radioactive iodine....:( now I’m hypo rather than hyper, and on levothyroxine - will need to keep on my eyes now :) positive thoughts people x
In the uk, surgery is a last resort. They now opt for radioactive iodine first, and if unsuccessful (after 2 tries) they would then consider surgery. My specialist even said that surgeons in the UK are not really trained in thyroid surgery any more. The radio active iodine had no side effects on me, you just have to isolate for 2 weeks and carry a letter when you travel for 6 months (you can set off alarms in airports!! Happened to me in krakow). The only thing they ask at the time is about your eyes as the iodine will irritate your eyes if you have TED.
This is so inspiring! I’m in tears right now because of how I feel . I was diagnosed in Jan and I feel so alone. You seem so happy now and I can’t feel this way again. Seems like you have supportive doctors etc. I’m going to do a documentary on the process. I’m trying to go the holistic route . Not sure how this will turn out but thank you for sharing.
Sorry about that dear? I was diagnosed in 2019 and felt bad but now been on carbimazole but my heart rate is always high though my surgery is in a month’s time.., hope u get better.
You look absolutely gorgeous!! Don’t see the bulging eyes or the tired eyes you talk about. You’re a beautiful girl! Thank you for sharing your story! ❤
I have this exact same thing! Graves and hyperthyroidism. Did they not remove the whole thyroid for you? It sounded like you still have a parathyroid gland from it. Did you not throw up a lot during the thyroid swell? :0 I used to throw up a loooot. I had surgery in 2019 and I just recently had my eye surgery to reduce the pressure in my eyes. I am sooo curious about more of your journey! :) love hearing about this, I don’t feel so alone.
Hello, I hope you're doing well. I had also my surgery couple of weeks ago. Did you have to deal with hair loss issues after the surgery? I am losing a lot of hair and I don't know if it's normal during the first weeks. Thank u in advance for the feedback ❤
Thank you so much for sharing! I'm having thyroid issues as well, started hypo now I'm hyper. They are adjusting my meds. I've recently developed scalp eczema too and I'm curious if anyone else has experienced having scalp and thyroid issues?
Thank you for sharing. Hope you’re feeling so much better now. I just got diagnosed with Hyperthyroidism and I’m scared. My doctor refer me to an Endocrinologist and gave me a prescription for Metoprolol for my high heart.
Thank you so much for this video I’ve just been diagnosed with Garves disease/hyperthyroidism. I’m not sure what a plan is yet but I feel a bit more informed now. All the best for your recovery
Thank you for sharing your story! I wish others will come out on RUclips and share their story. I was also diagnosed with Graves’ disease and thyroid eye disease and it is taking a TOLL on my self esteem. I hate it but I also have type one diabetes and was told once u have one autoimmune disease u are prone to getting more :(
I was also diagnosed with Grave's Disease and Hyperthyroidism last month. I experienced an abnormal sweating, a massive weight loss (from 61kg -46kg), weakening of the muscles (resulting to not being able to stand nor walk), insomnia, heat intolerance, above normal heartbeats, easily gets stress and a bulgy eye and neck. I am taking a medicine for my thyroid and heart. My t4 before was twice the normal and after a serious month long medication it decreased into a .something difference. I gained weight from 46kg to 55kg. I feel better as time passes by my only problem which I want to get rid off is my bulgy neck and eyes.
I have Graves disease too I took an online class by a doctor who revealed a connection between heavy metals lead and/or mecury in the body. Ive had amalgam fillings in my teeth for years, and they reportedly contain mercury, which can cause many of the symptoms I am having, like extreme fatigue, brain fog, vision problems, achy eyes. So I am looking into treatments for detoxing from these heavy metals. There are a lot if natural products out there. Also, I'm hoping to get those amalgam fillings replaced with a composite.
Hey Bethany, it was great to hear you out, I too have a grave disease with hyperthyroidism and exophthalmos with my right eye bulging more so yes I could totally relate this to me. I would be undergoing surgery next month so thanks a ton for sharing this out, it really prepared me from within. God bless you ❤️
I too had hyperthyroidism and had my thyroid removed. Like you it was enlarged and I could hardly eat. I was still in hospital when I got the tingly hands, they seized up and looked deformed. Scary. But I had no signs of Graves until 3 months later when double vision started. I’m now 3 years down the line and about to have decompression surgery tomorrow. Graves has only affected one eye, thank goodness. I’m menopause age so my problem is that I cannot shift any weight since the thyroid surgery. In fact I’ve put on 26lbs. Your video is great for anyone going through this. Well done for putting it out there. 😊
Im on day 5 of recovery and I am absolutely miserable. I wake up everyday with a migraine, dizziness, nausea. I cant eat because I'm so nauseous. I cant function or get out of bed. I'm absolutely devastated. I want this to end.
It is heart warming to hear silence again without sound disturbance, all thanks to Dr iyaremoses on RUclips channel for his herbal medication free from hypothyroidism..
Me also. I had half mine removed when it was the size of a fist. For me the pain was minimal. I felt better the next day but my neck looked like a 'gina because of the excess skin. The scar has become a wrinkle now.
Just got diagnosed with Graves’ disease the other day, and luckily i dont need surgery yet. But i love your attitude with everything. I felt everything you felt as well. Just crossing my fingers, have to go to an ophthalmologist soon and getting an ultrasound soon. Wahh, but just trying to educate myself more on this. And ur eyes dont look bad at all in this video. Glad ur ok now!
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On my 3rd thyroid test it finally came back hyper… I’m currently waiting for antibodies to come back to see if it’s graves. I started getting symptoms 3 years ago after I gave birth to my 2nd… my current doctor doesn’t believe it’s related but I DO!! I know it’s all thyroid related and I know when I’m in a flare up unfortunately by the time I see a doctor because it takes over a month to see one where I live my symptoms subside. But this last flare up was the worst and showed on my blood work. I don’t understand why all doctors don’t add the antibody test automatically to the thyroid panel! I hear rarely some doctors do.. but I feel I could have had answers a lot sooner. My joints hurt so bad, every single day for 3 years straight. I am chronically fatigued no matter how much rest I get. I get soo angry and short tempered now I scare myself. My eyes have been changing I joke around with friends that I’m becoming the opposite of cross eyed (didn’t know it was related), I can’t breathe even tho I workout, can’t gain weight (everyone tells me I’m sooo LUCKY to eat like this and not gain!) I went to see a new doctor obgyn to check my hormones because I thought that’s what it was.. I flare up during ovulation and then during period… she said let’s do thyroid panel too and I told her I did one already about 5 months prior but she said it’s okay let’s try again… and it came back abnormal this time.
@Samantha Privatera There are other ways. Don't cut something out of your body. That's irreversible. I have graves disease too but I resist a surgery and I'm currently researching alternative ways. I've found some promising stuff. As a last resort go for a partial removal of your thyroid because it's the only gland that can reproduce its cells and be whole again.
@Samantha Privatera I understand but unfortunately a surgery doesn't mean you won't be taking medicine. They "cure" your hyperthyroidism and give you hypothyroidism instead. Doctors like to present this as a mild inconvenience but it's not. I've read so many personal stories and people are sorry they went through surgery thinking it would be better. Instead, they feel like they've backed themselves into a corner. Once you remove your thyroid you have no other means to improve your condition but these pills they give you. Problem is, they don't work like doctors say they would. You can't replace a whole gland with just a single hormone (often a synthetic one) given as a pill (the thyroid secretes hormones in very specific cycles and by a negative feedback). The list of side effects is pretty long and the underlying condition remains untreated too. Once you remove your thyroid the antibodies start attacking your eyes or something else instead. To me, it just doesn't seem like a solution. it seems like another problem. A bigger one. There are circumstances where one may not have a choice but until then it might be worth it to try and find a way to save your thyroid.
@@nvmffs hi please can you help I’m begging you. I have hyperthyroidism too but I’m not getting surgery, no way. Please, what other ways are there to treat this? I really need help, looking everywhere but finding nothing.
@@GGGirl55 Hi Gabija! Don't ever lose hope! Start experimenting with alternative methods and don't stop until you cure your condition. I'm sure you know stress is a huge factor for your thyroid health. Try to minimize it in any way possible. Practice yoga, special breathing methods or whatever else you think helps you relax but don't let stress to take over because it'll ruin your efforts to get healthy. You can start your journey into the alternative methods aimed at reversing this condition by reading this: drruscio.com/natural-management-graves-disease/ and this allegrawakest.com/2010/04/19/hyperthyroid/ Depending on the cause of your hyperthyroidism you may need to take a different course of action from what was working for me. You'll need to identify it for yourself by a doing a lot of tests and experiments with your diet and lifestyle. But it's worth it at the end, I promise. Stay strong and know that you can always count on me if you need further help or support.
Thank you for sharing your story, I am still suffering because of my left eye, painful and gritty. Had been diagnosed in 2017, hyperthyroidism and Grave's disease.
I also gained weight while on treatment for Graves - 40 pounds. Glad I’m not the only one. Unfortunately I’m going back on treatment for Graves again and terrified of gaining even more weight.
Same to me. I've been on treatment with Tiamazol since September 2020(since I was diagnosed with Graves) and I gained 8 kg. I recently started working out as I have a sedentary life but it's so hard for me since I feel pain during exercises(plus, I'm a picky eater). I can't even recognise myself with this new weight. I'm afraid of all of this changes in my life rn. As I will graduate college next summer, I dunno how I will deal with all the stress...
I am so glad you posted this I have hyperthyroidism myself I was just put on a heart med because spikes in my EKG I sent a message to my Endocrinologist to talk to her about getting my thyroid removed
It is heart warming to hear silence again without sound disturbance, all thanks to Dr iyaremoses on RUclips channel for his herbal medication free from hypothyroidism..🥰
Omg just watching your Video, made me feel sooo at ease. I was diagnosed with Hyperthyroidism/ Graves’ disease in 2017 after my pregnancy. I’m still kind of taking it hard still and i lives with self guilty or just why Me. I’ve always had thick hair and the more the change my levolthyroxine i can see my hair thin out. And my weight was everywhere. My eyes started getting bulging months ago. And recently i started having symptoms again when my old endocrinologist raised me from 125 mg to 150 and within a month my body reacted, due to me being over prescribed. My levels are too high or too low and still have not advised or suggested me to get surgery (idk why not). Only reason why i noticed was the symptoms and my whole life I’ve had great vision and then outta nowhere during the symptoms i was seeing double vision, reduce of vision, puffy red eyes. I thought pink eye or allergies. So i went to my family optometrist they diagnosed me with astigmatism in both eyes in February 2019, i was like noooo it’s not that i saw a neurologist, 2 eye specialist, optic nerve was great, my MRI came back great, i was like okay No I’m not crazy and everyone was like your fine. Finally saw a retina specialist 2 weeks ago and my retina was perfect, i told him my back ground and history with this Graves’ disease battle for the last couple of years and scared it is affecting my eyes. He saw the look in my eyes and I’m only 23 years old. He referred me to a top surgeon that specializes in graves eye disease and they got me in within a few weeks so we can figure out the root of the cause. Still battling it. And depressed with my hair and lack of energy. I see the specialist in 2 weeks and i have so many questions. And they informed me it’s a great thing i did not just stick to its astigmatism and went with my gut because if i do have Graves eye or a thyroid eyedisease if it’s mild i can get my vision back or worst case scenario maintain my vision from getting worse. I have so many questions for you, But your Journey made me feel I’m not Alone. 🙏🏼💕
Wow- this is crazy! Glad to know that you're one step closer to hopefully finding the right treatment with Graves' Disease. It's no joke and so hard to deal with. Especially with bulging eyes and hair thinning out. I lost so much hair also and it's scary. It's crazy how our hormones play such an important role in our bodies. Hopefully you get some more answers soon!
Same here. Graves eye desease and quick weight loss😢 taking methimazole until now. Does eyes back to normal. Because I'm worried I'm single mom of two. Im afraid to get a job with this kind of sick
Lalah Valenzuela i just read this comment and i’m not sure if you have heard of this new medicine for graves eye disease :) i have a great eye doctor who has followed me throughout my graves’ disease diagnosis, in case i get graves eye disease. if this relates to you still, maybe ask your eye doctor about this new medicine.
Tara King Hello Tara, I’m doing way Better. I use to take methimazole and propanolol after i had my son. Then shortly after i switched to Levothyroxine and Now I’m Taking Tirosent. I love it so far. My thyroids everywhere but my New Endo has been monitoring every 6 weeks (something the other doctors should have did before) and my TED I just had an appointment June 9th and they came out with a Medication called Tapezza and i was a candidate 🤞🏼 the Success rate is insane and I’m super excited to start it. Just waiting for my insurance to give us the OK and start it ASAP.
Thank you for this video! I’m 23 years old and i was diagnosed with hyperthyroidism and graves 1 month ago.. I lost 10 kilograms for less than 2 months and i’m naturally very skinny so now i’m 38 kg and i’m literally looking like anorexic :( I love food and i eat 5 times a day and i’m always hungry. My hands were shaking like hell and my heart rate was awful. The worst thing was my period it almost stopped :X I’m sure all of this was caused by stress... It’s good to se how other people are dealing with this stuff because i’m pretty new to this so thank you! I hope you’ll get better! ❤️🙏🙏 Btw my first symptom was the “one eye” thing like you said... Now it affected my 2 eyes but i’m a little better now after taking my medications :)
@@GGGirl55 Hi :) Well unfortunately, i’m not better and i will have my thyroid all removed this April or May, because the medications i take doesn’t help and i’m getting worse and the second reason is that i also want to probably have a child soon if possible of course and my doctor told me that there is no point to even continue trying and trying to cure myself with medications because it’s not going to work :( Now i finally decided to remove my thyroid and hopefully get better because this thing is really exausting :X I am trying 2 years already and nothing is happening so my advice is to remove this shit sooner and be happy! 😂
What if your a 59 year Black woman with Grave's Disease? I've been taking Methimazole and a blood pressure medication..Chest discomfort that comes and goes,very scary..went to the eye doctor recently had close to the same prescription but she didn't find anything abnormal thank God! This whole thing started with rapid weight loss..
Natural roots & herbs are the best remedy which can easily eradicate all kinds of diseases and virus forever and permanently! My sister was able to beat hypothyroidism with natural root and herbs supplement from Dr Isibor and now she's cured and more healthy now
It is heart warming to hear silence again without sound disturbance, all thanks to Dr iyaremoses on RUclips channel for his herbal medication free from hypothyroidism..🥰
My Graves disease (misdiagnosis) was due to aspartame poisoning. I was facing thyroid removal and removal of aspartame from my diet resulted in normal, healthy thyroid function within 90 days. Good luck (cite: Texas Heart Institute, Houston.
You make me less scared of surgery 🥺😢 I already went through a complicated appendectomy, I stayed at the hospital for a week, it was traumatic - I’m praying to not go through that again 😔
Your story is so similar to mine. I really think autoimmune disease should be deemed a disability due to the symptoms that can impact your day to day life.
It is and unfortunately one must follow a long path to get there. It can be done.... don’t give up!
blujay Please turn to Jesus He loves you very much, i was ill for many years but the doctors couldn't really help me, i don't blame them, there was only so much that they could of done for me, Then Jesus gave me a miracle and healed me, He is the God of miracles, God has done amazing things in my life and in the life's of my family, He can do the same for you and yours, When you need Him call on Him, He is the God of comfort and will there for you when you call on Him, The bible tells us in Romans 10:13 For whosoever shall call upon the name of the Lord shall be saved, God saved someone i love from an illness leading to death, There is nothing impossible to God, It's as simple as asking Jesus into your heart and life to be your personal Lord and Saviour, confess your sins to Jesus, and Jesus will for give you, If you truly seek Him, Jesus will answer you, i know this because He answered me when i called out to Him
@@marishkababushka185 Please turn to Jesus He loves you very much, i was ill for many years but the doctors couldn't really help me, i don't blame them, there was only so much that they could of done for me, Then Jesus gave me a miracle and healed me, He is the God of miracles, God has done amazing things in my life and in the life's of my family, He can do the same for you and yours, When you need Him call on Him, He is the God of comfort and will there for you when you call on Him, The bible tells us in Romans 10:13 For whosoever shall call upon the name of the Lord shall be saved, God saved someone i love from an illness leading to death, There is nothing impossible to God, It's as simple as asking Jesus into your heart and life to be your personal Lord and Saviour, confess your sins to Jesus, and Jesus will for give you, If you truly seek Him, Jesus will answer you, i know this because He answered me when i called out to Him
Totally should be! I am practically paralyzed from mine!
@@jesussaves1827 jesus did not do one thing to you. Your body is powerful and your God is inside you. That voice you talk to daily. That's God
Girl thank you for this!!! I was diagnosed with hyperthyroidism a few months ago and it is so trying!! No one seems to understand this, and my mom keeps telling me that I am just lazy! I was lucky enough to get diagnosed early on, I felt such a bad headache and got diagnosed afterwards. My symptoms consist of mainly tiredness and fatigue and a crazy appetite. I am tired by 12 pm no matter how much sleep I get. My blood pressure and heart rate is balanced right now, but I am still very tired and from time to time I feel like I am about to get a panic attack.
My thyroid is still not balanced so I went through a hypo phase in which I gained tons of weight and slept most of the day.
But it’s taking a toll on me mentally, I just don’t feel validated by my family, they are making me feeling like I am lazy and whiny whereas I am so tired, weak and anxious…
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My Mom keeps telling me I have parisites. SO I get you! Did you ever do somthing about it.
How are you doing now?
@@AmberAsburyGD Hey girl, I don't know if you've gotten this diagnosed and straightened out yet, but your mom may not be totally wrong... Not that she knows what she's talking about necessarily, but there could be something to it, because there are many environmental toxins and other factors that can contribute to thyroid problems, such as parasites (it can't hurt to get checked for this) or toxic mold in the home, or other triggers that can tip your immune and/or endocrine systems into a hyper- or hypo- thyroid condition.
I suggest anyone who suspects these kind of problems gets checked over thoroughly, including antibody testing for autoimmune problems in addition to thyroid panel, toxins, and yes even parasites.
I had a very scary series of events to deal with when my dear cousin had a hyperthyroid storm and nearly died... I'm still trying to take care of her because the doctors don't know everything, and she is very stubborn.
I had RAI for Graves and beat it and I was already tested for mold two times, so yes she is just crazy and needs help with her own issues.
My 9year old son was just diagnosed with Graves Disease. Thank for the information. Helps me to understand what he might go through in the future.
No surgery I love your eyes YOU ARE SO BEAUTIFUL. Praying for your complete recovery.
Did you have nodules?
Thank you for this channel. Most times, hyperthyroidism is least talked about, like hypothyroidism. Sometimes, it feels like all hope is lost.
Thank you for sharing! 4 days ago I did the RAI Therapy and I am house bound still. My life has been a whirlwind for the last 5 months.
I am 54 and this is all so crazy.
Back story:
August I went to a new MD and she required a full blood panel. My routine MD quit and that is why I had to find a new MD.
Within 2 days after my blood panel was drawn I got a call telling me I was in a full blown thyroid storm.
I had tremors, hot flashes, lost 30 lbs.
September I saw an Endocrinologist and was put on meds ASAP.
October, November my numbers for thyroid went down but liver and bone hormones went sky high.
December 10th I was given the choice of RAI or thyroid removal.... at the stage in life that I am I chose RAI.
December 26th is where I am now.
One day at a time.
God bless! You are a beautiful young lady and thank you again for sharing your story!
What do you mean by liver and bone hormones... please elaborate.
Hi Veronica I was diagnosed last week and would like to know which medication you on and did it improves before opt for rai therapy
My wife has Graves I been looking around trying to find all the info I can to help her she is so pitiful she is talking surgery she is down to 90 lbs and losing her hair, glad to see the surgery worked for you never lose your good attitude
So sweet of you!!!
There are so. Many support groups on Facebook.that how I've learned to understand a lot about graves.and also I watch youtube and I google.
Take care of her that’s all she needs from you ☺️
Wow I have hyperthyroidism my weight was a solid 150, and I worked out in hooped still 150 it was only going up from 155 to 150 in I wasn’t complaining, but they put me on prednisone trust me it will have you gaining major weight about 15-20 pounds in a month it’s the wrost
I'm really grateful to Dr Onyeneke on RUclips who cured me from hyperthyroidism with his natural roots and herbs herbal medicine don't be scared of the unknown give it a try today and you will see the greatness in natural medicine
ruclips.net/channel/UC5w6cJySjwsqevUmETSZoCg
I was just diagnosed with Graves Disease, and I have been through the wringer! Thank you for this video, there are hardly any on Graves and I am just happy to know I am not alone. Once Covid numbers go down in my state and the medication to calm my thyroid kicks in I will be having the surgery to remove it. I am currently in Beta Blockers for my heart and every doctor I have encountered has told me I will have a heart attack if I am too active and if I am too stressed. I have a long road ahead of me but I am fighting
I was diagnosed with Graves’ disease when I was in third grade(8 years old). Everyone who I live with has been to medical school and when I was sleeping my heart rate was super high, and basically most of the symptoms of graves and one day when my school had a snow day my mom took me to the doctors and set up an emergency appointment and went to go get my blood drawn once in 5th grade so 10 years old I was taken off of my medication and am now in full remission and am now 13 but recently we had thought I was going to be put on Synthroid but luckily my TSH was normal from my last blood drawn
I'm happy to hear you're better !
I been living w graves disease for 8 plus yrs and finally oct 29 2020 I will have mine removed
.. it has been a really scary n crazy journey I wouldnt wish it on a enemie it was that bad... god bless anyone who has or is going through this ...
I've just been diagnosed. I feel sad but I don't know why. I will adjust, hopefully.
It gets SO much worse untreated. Like sadness turns into "I just lost my mother" kind of feelings of loss, agony, depression, hopelessness, like it gets wors.e but, if you get it treated it goes back to normal fairly quickly lol
me too :(
I'm really grateful to Dr Onyeneke on RUclips who cured me from hyperthyroidism with his natural roots and herbs herbal medicine don't be scared of the unknown give it a try today and you will see the greatness in natural medicine
ruclips.net/channel/UC5w6cJySjwsqevUmETSZoCg
I'm really grateful to Dr Onyeneke on RUclips who cured me from hyperthyroidism with his natural roots and herbs herbal medicine don't be scared of the unknown give it a try today and you will see the greatness in natural medicine
ruclips.net/channel/UC5w6cJySjwsqevUmETSZoCg
@@SAMEntalhealth Treated mean ..through meds, pills..??
Plis i don't want to get surgery
This is so similar to my own story! I was 19 years old (I’m 39 now) and away at school when I was diagnosed with Graves’ disease and an extremely overactive thyroid. My parents started to notice my bulging eyes when I was home for winter break but we did nothing about it. My eyes were getting worse and there was a noticeable goiter in my neck. 3 days before I was supposed to go to London for spring break my best friend picked me up and rushed me over to the hospital. She had been talking to her mom about how horrible I had been looking/feeling and her mom immediately knew what the problem was. She had gone through the same thing herself so she knew! I had them run blood tests and that’s when I found out. I had to immediately start taking a beta blocker for my heart palpitations, which were horrible btw. They kept me up all night. I went to London, felt like shit the whole time, came home and saw an endo. They put me on meds and after a few adjustments I was feeling so much better. My eyes started to go back and my energy felt good. Unfortunately after being on meds for about 3 years they stopped working. My thyroid levels were increasing. I elected to do RAI. I was fine for about two years when my thyroid started to grow again! I had to do the RAI again which killed my entire thyroid. I was officially now hypothyroid. I lost my job right before the 2nd RAI and my insurance ran out after a month. Instead of going back in to do follow up bloodwork and getting on the proper thyroid meds we waited. Horrible mistake. I became so lethargic, had foggy brain and was barely functioning. I luckily landed a new job with great insurance. I called a new endo to get in and there was a month long wait. I had to tell them how horrible I was feeling and sent them my last bloodwork. They called me back and said the doctor needed to see me ASAP because my levels were dangerously low. I got in, he was great. He put me on Levothyroxine and started feeling better within weeks. I eventually regained my energy and started working out again. I am still on the Levothyroxine and feel great. Oh btw, my first endocrinologist said the said the same thing about my overactive thyroid; it was HUGE. It was definitely a long journey to get to where I am at now.
All thanks to DR IYAREMOSES on RUclips. I have been sick from PCOS for several years now but I recovered after I contacted him thank you doc.
Your thyroid started to grow again?!?is that really possible???
@@Србомбоница86 hello am a living testimony to Dr iyaremoses on RUclips channel am completely cured after applying his herbs medication I'll advise you reach out to him
Hi whether you had any other side effects after RAI treatment?
Your eyes look really good. Did you have surgery or did they go back to normal on their own?
I'm so happy you shared your story. You look beautiful to me. Your eyes are so gorgeous. You are totally beautiful. And I'm so glad you made it through this surgery so well. It sounds like a real dramatic event for you and your family. I'm 73 and just found out a few days ago I too have graves disease. This anxiety and the shaking is so hard to deal with. I don't know yet if they are thinking of removing my thyroid but I would accept it and be happy. I know then I take meds for hypothyroidism but that's fine by me. I don't want to have to deal with such a surgery right now as my 39 yr old daughter had cervical cancer so I must be there for her. It's hard many times in life isn't it? We least expect it and here's a harsh problem thrown at us. Good luck and much happiness.
That’s me too! The anxiety the shaking and the heart palpitations are the hardest. I have had several full blown panic attacks as well.
Thank you for sharing your story. Recently being diagnosed with hyperthyroidism. I also have difficulty swallowing food and I feel so pressure on my head after eating .
Thank you for sharing your story. I was diagnosed last week with Graves’ disease after being in and out of the hospital with such a high heart rate. I’ve just started taking cabamorazole. I keep bursting out in tears at the way I’m feeling but still carrying on at work like everything is fine
I have gone through the same situation but believe me this will end and you will live a normal and happy life as I am living.
Hold on ... If u believed in holistic approach do that too .. Stress in one of issues if graves and if u have TED. going thru it meditation and deep breathing & pure essential oil keep my stress level,anxiety emo at bay at the same time getting proper food intake like proteins, magnesium, vit-b helped too but I did this with my functional med coach. It doesn't cure but at least I'm in control of my body and managing it. I'm still on camazol and monitoring bloodwork. If this round my antibody isn't cooperating I have to consider thyroid removal. It can be quite frustrating but if any means u can adopt holistically to manage ur condition u can try and see how it goes. Hold on and all will be good though it won't be the same but it will be good.
hi there i had this diagnosed last year and i have been takinh homeopathy and Ayurveda medicines for a year and it helped great deal in my hand tremors , rapid heart rate and weight loss .. also it helped my thyroid levels to come down to normal level . But only TSH was suppressed so I took carbimazole 5mg for two months and now all my thyroid levels are normal . Thank God
Hi, chica! I hope you come back and do a update. I was recently diagnosed with hyperthyroidism and I’m so confused and lost. I’m trying my best not to get overwhelmed by it all. So thanks for this video.
I have had thyroid problems for a few years now and I can chat with ya! I had my thyroid removed in 2019 after a long thyroid struggle with levels too high and being sick and lathargic. I recently had my eye surgery to fix my eyes from it and I’m hoping they’ll look better when they heal.
I was diagnosed with Graves in January 2020 and have been off and on medicine it was super high then went super low and now it’s going back high. We were planning on doing RAI but bc lately my eye sight has gotten super bad they wanted me to see an eye specialist. I see the eye specialist tomorrow and will talk with my endocrinologist to see if I will get the surgery or RAI. I also have rheumatoid arthritis on top of that and a heart condition that I’ve had since birth. I’m glad I found this video!
Best video hands down! Thank you so much, I appreciate you ! I was diagnosed about a month ago & it’s been a living hell since. You’re brave & your message has given me strength as well. Thank you,again!
i have graves but i refuse to treat it because i’m scared and sad that a part of my body is not going to work. .. but this video is so helpful and makes me feel understood
Please get it treated! Its understandable to be scared and worried but it needs to be treated :)
Im here with u
You need to get some help right away trust me you need it
Your symptoms will get worse if left untreated!
did that happen to you Georgia?
Bethany! Sending prayers your way. My mom informed me you had been dealing with the diagnosis a while ago. Love and hugs.
Katie R. Thank you!
Please keep posting , I love this ! I got diagnosed in October of 2017 & I relate to this so much and try to spread awareness to everyone I meet ! Cause this disease is such a roller coaster and a journey ❤️❤️ and I’m happy somebody ! Is talking about it :)
I have Graves’ disease and hyperthyroidism it’s literally the worst ! It’s so hard on me especially dealing with people who dont understand . You have inspired me to start a RUclips channel and share my story thank you 🙏🏽🤍
ill watch
Let us know
Would like to connect with u
Tami it’s so good to hear someone else has this story! I’d love to chat with you
@@12nacia okay thank you
I have Graves too. It really does mess with your life in so many ways. I had my first flare 3 years ago, recovered with methamizole and was in remission for two years, but it just came back. It messes with you physically but also emotionally and cognitively. Thanks for sharing your story because it’s really encouraging to see how well you’ve recovered, especially since I may need to consider surgery at some point if this keeps coming back. BTW you look beautiful, including your eyes, so don’t stress about that.
How many times a day do you take methimazole
I was diagnosed in 1976 and I still have a droopy eye today. I had radioactive Iodine and it turned me hypothyroid. I never looked sick on the outside other than weight gain and loss. Thanks for posting this for people to hear
if you don’t mind me asking, after RAI did you notice any symptoms? relating to quality of life, fertility etc. i just had it done and i am trying to prepare myself for the future :)
@@ashb593 I seemed to have trouble getting pregnant but it may not have been related. Quality of life was not affected as far as I could tell. I was in my 20's and now I'm 65. I've always had trouble adjusting the synthroid they put me on but I've gotten used to the every 6 months bloodwork. Good luck to you.I'm sure its better now than in the 70's
its weird everyones different , i was sick for a few years with lightheaded dizzy weak achy joints and muscles puffy eyes feet and hands inner body buzzing tremors in muscles and dr said it was sinuses , they took bloodwork but i dont know what they checked for because nothing was found so i went on disabilty because i was so sick , then it got so bad i couldnt walk went to hospital again nothing found , then a year later again so weak dizzy foggy brain couldnt take 2 steps so weak , went to a walk in got blood work and they said i had graves for many many yaers and they said i had hyperthyroidism for so long it destroyed my thyroid and caused hypo , but i didnt have bulgy eyes or swollen neck , i didnt need surgery , its weird because they put me on a low dose of levo thyroxine and my thyroid went super high so i had to keep lowering the dose and now im on 0.5 mg wich is rael low . still on disabily i have ups and downs , but it took 8 months to finally start feeling better after medication , i couldnt even walk !
I also have graves disease i was forced to take leve without pay from a job i love. My thyroidectomy is in 2 days and i have never been more terrified in my life, and my family is not understanding what i am going thorough. That being said i was happy to see this video and it helped ralive some of my anxiety about surgery so thankyou.
How are u??
I'm so sorry to hear that. I'm reading a lot of people say their family was not understand which blows my mind. Do you mind if I ask, when you say they weren't supportive did they not understand your symptoms or did they not understand why you feel Ill? I just got diagnosed and when I told my parents they were scared. The fact that it's autoimmune scared them. But when I told them with graves I could get a little anxious and irritable. That's when they don't understand and told me that's no reason to be moody.
It is soooo nice to be able to relate to someone who has Graves Disease. I was just diagnosed with it 3 weeks ago. I decided to do surgery and I am a little scared.
@ Lee torres Why not RAI..?
@@kishore4ore Honestly, I was scared to do it. My family have done rai and had really bad consequences so I decided surgery and turned out okay.
Lee Torres what were those consequences (if you don’t mind sharing)
i just had rai done. my doctor said there are really no side effects to it. maybe the medicine has changed?
@@ashb593 My grandfather had his like 4 years ago and he lost sensation in his hands. He also has teary eye and can't taste food as well as he used to. I asked the doctor and they told me all those things can happen but the changes are low but since it happened to a family member it could happen to me. I thought about it for a while and didn't like the idea of being away from my family.
@Tara King Hello! I am doing well. 😀 I feel like since the surgery my body went all wacky on me.
Bethany, you're so sweet and beautiful. My 14-year-old daughter was just diagnosed today with GD. My poor wife is so stressed out. My daughter is A-Symptomatic and has not shown any signs or symptoms of GD. My sister-in-law noticed a slight abnormality with my daughter's neck and GD was mentioned and we immediately had it checked out. IT was positive. So, we are starting on the meds to get her T3 and T4 to a normal level. We will wait 6 months to a year to see if it will go into remission on its own and if not, we will cross the bridge of which definitive treatment is best. You are very cool to share your story. You have a wonderful beautiful presence and that comes out loud and clear. Don't be too concerned about your eyes, they're beautiful. Thanks Again, Jon, A concerned Daddy.
Does she have nodules? Have you done a thyroid ultrasound?
Did anyone get just puffy eyebags every morning when you wake up, not as much the bulging eyes?
your story and the way you speak about it is so simple and compressive. easy to listen and identify with! great job! i wish you all the best Bethany.
I'm 51 normally healthy can keep up with the young people but today found out I have graves...I want to thank you for this video it started with my left eye to anger lots of crying lots of bathroom trips. I thought it was menopause boy I was wrong.
Thank you so much for posting! I was diagnosed with Grave's Disease two years ago and have had a fairly similar experience so far. It's super nice to hear someone else's story!
Some people just require less iodine in their diet. If anyone reading this has not gotten their thyroid removed yet please try reducing your dietary iodine WAY down. You will notice your eye bulging going down in 1-2 days. Just keep up with it, and try to eat healthy but without eating very much iodine.
@Tara King avoid table salt
@@Србомбоница86 so what salt do we use?
My mother has the same disease. She’s gone through so much. I pray that you are healed. God Bless you
Wow. I just got diagnosed with hyperthyroidism today. That’s exactly how my eyes look right now. I have an appointment with the endocrinologist later this month. Thank you for this video❤️
hey !! so r u going to get an opration or r u going to be on medication ????
Do you also have pain and darkening around eyes and white dots?
I was diagnosed 2 months ago.
I had intense sweating, heat intolerance, insomnia, trembling, anxiety, etc. My eyes and neck were swollen too.
The antithyroid medication has caused me muscle pain, headaches, coldness. I've been getting acne (never had it before). Ugh, it's been an ordeal
Jessica f have the darn thing removed... don’t wait do it now....
I just started the medication and experience chest pain i dont sleep now just if get worse il go to ospital...i feel i might not make it...chest pain for hrs now
@@aprilginnyelvas5340 Which medication? How do you feel now?
@@SVETLANA_NICOLE im ok now i take methimazole but i had propanol for 2 to 3 weeks from the start. I also haf sleeping pills at first 4 weeks...my eyes bulge but getting back to normal just one side of eye that still lil bulging
Did u experience eye pain?
Thank you for this video. It’s really comforting to know I’m not alone & someone else GETS it. My Graves‘ disease is in remission! Thankfully didn’t have to have surgery, but I’ve been managing Graves’ for 3 years now. No fun & the exophthalmus is sooooo annoying. I hate it so much. Hang in there though, we got this!
Looking up my symptoms online has brought me here. I really need to get my thyroid checked out. I have mixed symptoms
Thank you for sharing your story! I'm just somewhere in the middle of treatment and your positiveness is amazing and gives a lot of hope to me!
Thank you for sharing your story. I've just been told I have Graves desease. After about 6 month of giving birth I went through a full thyroid storm. I started shaking, heart racing, sweating, hungry all the time, anxious, and headaches. My aunt immediately rushed me to the hospital, where I was diagnosed with Hyperthyroidism. My grandmother had suffered from it as well and had the surgery done. I also have 3 cousins 2 with hypo and one 11 year old with Graves, now doing better. I honestly don't know if I am more scared of the surgery or of taking meds and making other things worse such as my liver or bones, which I've read others stating this as side affects. I just came out of a bad C-section, where I had lost too much blood as well and rushed back to the hospital 2 weeks later, because air bubbles had travelled to my lungs. I also heard that a study in Indonesia showed that most people who had an infection in the gums saw their thyroid levels go back to normal after taking care of the infection and I know I have one but won't be seen during the pandemic. Babies take a lot of calcium from the mother, which is said that that is the reason some mothers start showing symptoms about 6 months after birth. I am also going to try and follow a strick diet and do yoga. I watched a video explaining that yoga has helped many people bring their thyroid hormones back to normal. I also want to move back to PR where I can grow my own food. I am not allowed to even put a plant of vegetables on my porch. 😢 I am scared but going to have to try and fight this. I am not afraid of having a scar. I am afraid of leaving my kids. 😢😢😢😢 Thank you again for the video. You look great. I am so happy for you. Many blessings.
I pray for you to have a long life with no illness for you and your kids 🙏❤️
Just found your video. Thankyou for posting! Was diagnosed with Graves and TED last year and it’s been a strange journey! Everything you are saying makes sense, wish I’d found this sooner!!!!
I’m going to have a radioactive iodine therapy on aprli 5. Wish me luck 😭
how was it ?
How are u feeling?
The doctor told me to undergo radioactive iodine too but the OB says no cause I cannot have a baby if that's the case.
I wish you well. I just went to doctor had labs done to check for Grave's Disease. I'm so scared.
How did you get on
Thank you for sharing this. I hope you're well. You got me emotional honestly. I'm due for surgery soon and have Graves too. It's a nightmare as you know. Again, thanks. Hugs x
Holy crap! I’m so sorry you had to deal with that! So scary! Can’t believe your thyroid was so big! I was recently diagnosed with Graves too! I had to find out the hard way, my thyroid caused me to have an elevated heart rate and I had a panic attack on top of that which cause me to have my heart stopped and shocked in the ambulance cause my heart rate wouldn’t slow down, I was at 180 for over an hour, it was terrifying ! Honestly! Thanks for sharing!
I'm really grateful to Dr Onyeneke on RUclips who cured me from hyperthyroidism with his natural roots and herbs herbal medicine don't be scared of the unknown give it a try today and you will see the greatness in natural medicine
ruclips.net/channel/UC5w6cJySjwsqevUmETSZoCg
I'm really grateful to Dr Onyeneke on RUclips who cured me from hyperthyroidism with his natural roots and herbs herbal medicine don't be scared of the unknown give it a try today and you will see the greatness in natural medicine
ruclips.net/channel/UC5w6cJySjwsqevUmETSZoCg
I've been dealing with Graves Disease for about 6 years now and I want to thank you for posting this. Knowing that there are others dealing with this and being open about it all gives me some type of hope. I hope all goes well for you! ❤
Thank You Bethany Marie- My daughter is the same age as you. She is going to a
Doctor now, and really appreciated your Utube, as well as I appreciated it too.. Enjoy your new life now. Thank YOU
Thank you for sharing your story. I’m experiencing your initial symptoms and I’m not sure what’s going on with my body and I’m really afraid but I feel a lot less alone now
Bethany please take 200 mcg of Selenium for your eyes. It will over time, make them go back to normal. God Bless you. I have it too!
Just want to tell everyone that Horizon Therapeutics has a new drug, Teprotumumab, which hopefully will be approved in March 2020 that can help with Thyroid Eye disease. 82.9 percent of patients had reduction of proptosis (bulging of the eyes) by 2 mm or more. This will be the first drug to treat thyroid eye disease if it gets approved and hopefully an option vs. eye decompression surgery. Crossing fingers that this treatment will be approved!
Really ?
@@anithakoduru7220 Please turn to Jesus He loves you very much, i was ill for many years but the doctors couldn't really help me, i don't blame them, there was only so much that they could of done for me, Then Jesus gave me a miracle and healed me, He is the God of miracles, God has done amazing things in my life and in the life's of my family, He can do the same for you and yours, When you need Him call on Him, He is the God of comfort and will there for you when you call on Him, The bible tells us in Romans 10:13 For whosoever shall call upon the name of the Lord shall be saved, God saved someone i love from an illness leading to death, There is nothing impossible to God, It's as simple as asking Jesus into your heart and life to be your personal Lord and Saviour, confess your sins to Jesus, and Jesus will for give you, If you truly seek Him, Jesus will answer you, i know this because He answered me when i called out to Him
I want to know when this new drug be approved. I have a thyroid eye disease and I want to get rid of this. My eyes are so dry and I couldn't close it properly and I want to try this before going into the surgery🙏🙏
it cost $500k ! crazy...
I'm honestly glad I came across this. I was diagnosed with Graves Disease in 2019. I had a high heart rate and i had really bad hand tremors and lost a bunch of weight.
I feel you I was diagnosed at age 17
I was diagnosed at about 14!
@whatsernaame omgosh so young. Did you experience thyroid storm?
I got diagnosed in 2019 too😁 I was actually just admitted into the hospital. I felt weak and this video just put things into perspective. I am faced with a decision. Live feeling like crap or have the surgery.
@@nosikunene4021 how are you now?
Im 17 when i was diagnosed with hyperthyroidism and grave's disease. Luckily, its now under control without radioactive iodine and surgery. But i wish my eyes will back to normal 😭
Hi Camille. Did you take any supplements?
@@iam2908 Hi, yes. Bunch of natural supplements and healthy diet as well.
Hi it's been a year since I have hyperthyroidism it always I received bullying from others..it's sad and people fast to judge...
I was diagnosed last October. I’ve been on Methimazole since. My right eye is drooping also. My left eye has a lot of puffiness hiding my eye lid and tear duct, along with puffiness on my cheeks. My hair has thinned and I’m losing more hair than ever. New hair growth is curly even though I’ve had straight hair all my life. My blood pressure and pulse are much lower since I’ve been on propranolol. The blood test last month showed my tsh is now high and t3 and t4 are low. I was already on decaf coffee. I’m still tired, anxious and hungry all the time. I’ve gained 25lbs now. But I was only 98lbs when diagnosed.
i am having surgery on the 17 july 2020 i was diagnosed with the same thing after 3 years i finally am having it removed thankyou yours is the best video i have watched it has been very helpful thankyou stay well
Melita how are you feeling now
I have been diagnosed with graves disease a few months ago now, it really sucks and I have gone through all the things you have went through and I still am. When I got diagnosed they said we think you have had this for about 3 years... Which sounded right to me, I am still on carbimazole and propanalol at the moment.
Super brave and badass of you to make this video. Thanks for sharing 💕
Thank you for the sweet message
@@bethanymarieco I have been diagnosed with graves disease a few months ago now, it really sucks and I have gone through all the things you have went through and I still am. When I got diagnosed they said we think you have had this for about 3 years... Which sounded right to me, I am still on carbimazole and propanalol at the moment.
Got to get my thyroid tested too, i think anxiety is my middle name.
How was the results please?
@@nikkyshairades9078 was ok.
@@paulflint6254 I am happy to hear this after a long time you made the comment. I just got tested yesterday so I am waiting for the results.thank you
@@nikkyshairades9078 hope you are ok
@@paulflint6254 I am okay but I have been having some changes in my body lately
Thank you so much for sharing your story! Very encouraging 5 days until my surgery ...
How are you going??
Dealing for 3 years now 🙏
I have Graves, and tomorrow is my surgery...
Hope you’re doing well !
What happened?
how are you now?
Hey guys, feeling absolutely amazing 6 months after the surgery. Everything went super good...I had an issue with my eyes but after the surgery, all went to normal, all ugly symptoms are gone. I'm super happy that I did it. :)
@@tiborhribar9306what symptoms do you have?? And why you had need surgery??)
Your story is literally the same as mine, and the past few weeks my eyes have changed and they look like the pic at the beginning of your video. I’ve had this for 4 years no surgery but I had radioactive iodine....:( now I’m hypo rather than hyper, and on levothyroxine - will need to keep on my eyes now :) positive thoughts people x
Leonine, why did you choose radioactice iodine over surgery? I’m also having hyperthyroidism.
In the uk, surgery is a last resort. They now opt for radioactive iodine first, and if unsuccessful (after 2 tries) they would then consider surgery. My specialist even said that surgeons in the UK are not really trained in thyroid surgery any more. The radio active iodine had no side effects on me, you just have to isolate for 2 weeks and carry a letter when you travel for 6 months (you can set off alarms in airports!! Happened to me in krakow). The only thing they ask at the time is about your eyes as the iodine will irritate your eyes if you have TED.
RAI is way less complicated to remove your thyroid gland. You just need to take a single iodine tablet and youre done
Your eyes are gorgeous ! My daughter is now 20 but has been dealing with graves since she was 14
Omg....I don't feel as crazy now!!!! My situation is almost like yours to a T! Except no surgery yet...but can't wait!!!!! Thank you for this!!!
Awesome video. Is it possible to get your husband perspective on how he dealt with this during your experience with Graves Disease?
I'm sorry does your wife have it? May Allah give her full shifa (healing) Ameen 🙏🏿
Thank you so much for making this video. I'm getting the thyroidectomy in the next few weeks, and this makes me feel so much better!
This is so inspiring! I’m in tears right now because of how I feel . I was diagnosed in Jan and I feel so alone. You seem so happy now and I can’t feel this way again. Seems like you have supportive doctors etc. I’m going to do a documentary on the process. I’m trying to go the holistic route . Not sure how this will turn out but thank you for sharing.
My niece has been diagnosed. How has it impacted you?
Sorry about that dear? I was diagnosed in 2019 and felt bad but now been on carbimazole but my heart rate is always high though my surgery is in a month’s time.., hope u get better.
You look absolutely gorgeous!! Don’t see the bulging eyes or the tired eyes you talk about. You’re a beautiful girl! Thank you for sharing your story! ❤
I have this exact same thing! Graves and hyperthyroidism. Did they not remove the whole thyroid for you? It sounded like you still have a parathyroid gland from it. Did you not throw up a lot during the thyroid swell? :0 I used to throw up a loooot. I had surgery in 2019 and I just recently had my eye surgery to reduce the pressure in my eyes. I am sooo curious about more of your journey! :) love hearing about this, I don’t feel so alone.
Hello, I hope you're doing well. I had also my surgery couple of weeks ago. Did you have to deal with hair loss issues after the surgery? I am losing a lot of hair and I don't know if it's normal during the first weeks.
Thank u in advance for the feedback ❤
Thank you so much for sharing! I'm having thyroid issues as well, started hypo now I'm hyper. They are adjusting my meds. I've recently developed scalp eczema too and I'm curious if anyone else has experienced having scalp and thyroid issues?
@Gen Thank you so much! I'll def check out that book.
I had the same issue my scalp
Way to be strong! Just diagnosed....but I want to come through it like you did!
How are you feeling now?
Thank you for sharing this 💕 💕 alot of people don't talk about it, so thank you for your bravery and through the surgery!
Thank you for sharing. Hope you’re feeling so much better now. I just got diagnosed with Hyperthyroidism and I’m scared. My doctor refer me to an Endocrinologist and gave me a prescription for Metoprolol for my high heart.
Thank you for sharing. I’m sending this to a friend that’s going through this right now. I wish I had someone to share it with me. Again thank you.
Can you do another update? Everything going well for you?
Thank you so much for this video I’ve just been diagnosed with Garves disease/hyperthyroidism. I’m not sure what a plan is yet but I feel a bit more informed now. All the best for your recovery
Thank you for sharing your story! I wish others will come out on RUclips and share their story. I was also diagnosed with Graves’ disease and thyroid eye disease and it is taking a TOLL on my self esteem. I hate it but I also have type one diabetes and was told once u have one autoimmune disease u are prone to getting more :(
I was also diagnosed with Grave's Disease and Hyperthyroidism last month. I experienced an abnormal sweating, a massive weight loss (from 61kg -46kg), weakening of the muscles (resulting to not being able to stand nor walk), insomnia, heat intolerance, above normal heartbeats, easily gets stress and a bulgy eye and neck. I am taking a medicine for my thyroid and heart. My t4 before was twice the normal and after a serious month long medication it decreased into a .something difference. I gained weight from 46kg to 55kg. I feel better as time passes by my only problem which I want to get rid off is my bulgy neck and eyes.
Hi, what medicine are you taking? Is it still working? Are you considering surgery?
Thank you so much for giving me hope, i'm a 19 years old who got diagnosed with grave disease less than a month ago 😥
Sad to hear that
How have you been doing so far? My sister who’s 18 was diagnosed back in September of this year. She has her surgery scheduled for feb 2020.
Me too ! I've had it since I was 17 and I didn't know it until this year(19)
Same😰😰
Waiting for my test results 😭
I have Graves disease too I took an online class by a doctor who revealed a connection between heavy metals lead and/or mecury in the body. Ive had amalgam fillings in my teeth for years, and they reportedly contain mercury, which can cause many of the symptoms I am having, like extreme fatigue, brain fog, vision problems, achy eyes. So I am looking into treatments for detoxing from these heavy metals. There are a lot if natural products out there. Also, I'm hoping to get those amalgam fillings replaced with a composite.
Hey Bethany, it was great to hear you out, I too have a grave disease with hyperthyroidism and exophthalmos with my right eye bulging more so yes I could totally relate this to me. I would be undergoing surgery next month so thanks a ton for sharing this out, it really prepared me from within. God bless you ❤️
I too had hyperthyroidism and had my thyroid removed. Like you it was enlarged and I could hardly eat. I was still in hospital when I got the tingly hands, they seized up and looked deformed. Scary. But I had no signs of Graves until 3 months later when double vision started. I’m now 3 years down the line and about to have decompression surgery tomorrow. Graves has only affected one eye, thank goodness. I’m menopause age so my problem is that I cannot shift any weight since the thyroid surgery. In fact I’ve put on 26lbs.
Your video is great for anyone going through this. Well done for putting it out there. 😊
Im on day 5 of recovery and I am absolutely miserable. I wake up everyday with a migraine, dizziness, nausea. I cant eat because I'm so nauseous. I cant function or get out of bed. I'm absolutely devastated. I want this to end.
It is heart warming to hear silence again without sound disturbance, all thanks to Dr iyaremoses on RUclips channel for his herbal medication free from hypothyroidism..
Me also. I had half mine removed when it was the size of a fist. For me the pain was minimal. I felt better the next day but my neck looked like a 'gina because of the excess skin. The scar has become a wrinkle now.
Just got diagnosed with Graves’ disease the other day, and luckily i dont need surgery yet. But i love your attitude with everything. I felt everything you felt as well. Just crossing my fingers, have to go to an ophthalmologist soon and getting an ultrasound soon. Wahh, but just trying to educate myself more on this. And ur eyes dont look bad at all in this video. Glad ur ok now!
Hi me too I have a graves diseases 2015 I found out my thyroid problem .
Thank you so much for sharing! I was diagnosed with Grave’s in 2018 and I had a major flare up this February.
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On my 3rd thyroid test it finally came back hyper… I’m currently waiting for antibodies to come back to see if it’s graves. I started getting symptoms 3 years ago after I gave birth to my 2nd… my current doctor doesn’t believe it’s related but I DO!! I know it’s all thyroid related and I know when I’m in a flare up unfortunately by the time I see a doctor because it takes over a month to see one where I live my symptoms subside. But this last flare up was the worst and showed on my blood work. I don’t understand why all doctors don’t add the antibody test automatically to the thyroid panel! I hear rarely some doctors do.. but I feel I could have had answers a lot sooner. My joints hurt so bad, every single day for 3 years straight. I am chronically fatigued no matter how much rest I get. I get soo angry and short tempered now I scare myself. My eyes have been changing I joke around with friends that I’m becoming the opposite of cross eyed (didn’t know it was related), I can’t breathe even tho I workout, can’t gain weight (everyone tells me I’m sooo LUCKY to eat like this and not gain!)
I went to see a new doctor obgyn to check my hormones because I thought that’s what it was.. I flare up during ovulation and then during period… she said let’s do thyroid panel too and I told her I did one already about 5 months prior but she said it’s okay let’s try again… and it came back abnormal this time.
Did you get a thyroid ultra sound? Nodules?
I am being scheduled for my full thyroidectomy within the next 2 weeks. Thankyou for sharing at a time when I feel so alone ❤🦋
How do you feel ?
@Samantha Privatera There are other ways. Don't cut something out of your body. That's irreversible. I have graves disease too but I resist a surgery and I'm currently researching alternative ways. I've found some promising stuff. As a last resort go for a partial removal of your thyroid because it's the only gland that can reproduce its cells and be whole again.
@Samantha Privatera I understand but unfortunately a surgery doesn't mean you won't be taking medicine. They "cure" your hyperthyroidism and give you hypothyroidism instead. Doctors like to present this as a mild inconvenience but it's not. I've read so many personal stories and people are sorry they went through surgery thinking it would be better. Instead, they feel like they've backed themselves into a corner. Once you remove your thyroid you have no other means to improve your condition but these pills they give you. Problem is, they don't work like doctors say they would. You can't replace a whole gland with just a single hormone (often a synthetic one) given as a pill (the thyroid secretes hormones in very specific cycles and by a negative feedback). The list of side effects is pretty long and the underlying condition remains untreated too. Once you remove your thyroid the antibodies start attacking your eyes or something else instead.
To me, it just doesn't seem like a solution. it seems like another problem. A bigger one. There are circumstances where one may not have a choice but until then it might be worth it to try and find a way to save your thyroid.
@@nvmffs hi please can you help I’m begging you. I have hyperthyroidism too but I’m not getting surgery, no way. Please, what other ways are there to treat this? I really need help, looking everywhere but finding nothing.
@@GGGirl55 Hi Gabija! Don't ever lose hope! Start experimenting with alternative methods and don't stop until you cure your condition. I'm sure you know stress is a huge factor for your thyroid health. Try to minimize it in any way possible. Practice yoga, special breathing methods or whatever else you think helps you relax but don't let stress to take over because it'll ruin your efforts to get healthy.
You can start your journey into the alternative methods aimed at reversing this condition by reading this:
drruscio.com/natural-management-graves-disease/
and this
allegrawakest.com/2010/04/19/hyperthyroid/
Depending on the cause of your hyperthyroidism you may need to take a different course of action from what was working for me. You'll need to identify it for yourself by a doing a lot of tests and experiments with your diet and lifestyle. But it's worth it at the end, I promise. Stay strong and know that you can always count on me if you need further help or support.
Thank you for sharing your story, I am still suffering because of my left eye, painful and gritty. Had been diagnosed in 2017, hyperthyroidism and Grave's disease.
Thanks for the video, it really helps. I am also diagnosed with Graves diseases and hyper. I gained 30 pounds
I also gained weight while on treatment for Graves - 40 pounds. Glad I’m not the only one. Unfortunately I’m going back on treatment for Graves again and terrified of gaining even more weight.
Same to me. I've been on treatment with Tiamazol since September 2020(since I was diagnosed with Graves) and I gained 8 kg. I recently started working out as I have a sedentary life but it's so hard for me since I feel pain during exercises(plus, I'm a picky eater). I can't even recognise myself with this new weight. I'm afraid of all of this changes in my life rn. As I will graduate college next summer, I dunno how I will deal with all the stress...
Did you lose any of the weight later on?
Im so scared just diagnosed with hyperthyroidism
I am so glad you posted this I have hyperthyroidism myself I was just put on a heart med because spikes in my EKG I sent a message to my Endocrinologist to talk to her about getting my thyroid removed
It is heart warming to hear silence again without sound disturbance, all thanks to Dr iyaremoses on RUclips channel for his herbal medication free from hypothyroidism..🥰
Omg just watching your Video, made me feel sooo at ease. I was diagnosed with Hyperthyroidism/ Graves’ disease in 2017 after my pregnancy. I’m still kind of taking it hard still and i lives with self guilty or just why Me. I’ve always had thick hair and the more the change my levolthyroxine i can see my hair thin out. And my weight was everywhere. My eyes started getting bulging months ago. And recently i started having symptoms again when my old endocrinologist raised me from 125 mg to 150 and within a month my body reacted, due to me being over prescribed. My levels are too high or too low and still have not advised or suggested me to get surgery (idk why not). Only reason why i noticed was the symptoms and my whole life I’ve had great vision and then outta nowhere during the symptoms i was seeing double vision, reduce of vision, puffy red eyes. I thought pink eye or allergies. So i went to my family optometrist they diagnosed me with astigmatism in both eyes in February 2019, i was like noooo it’s not that i saw a neurologist, 2 eye specialist, optic nerve was great, my MRI came back great, i was like okay No I’m not crazy and everyone was like your fine. Finally saw a retina specialist 2 weeks ago and my retina was perfect, i told him my back ground and history with this Graves’ disease battle for the last couple of years and scared it is affecting my eyes. He saw the look in my eyes and I’m only 23 years old. He referred me to a top surgeon that specializes in graves eye disease and they got me in within a few weeks so we can figure out the root of the cause. Still battling it. And depressed with my hair and lack of energy. I see the specialist in 2 weeks and i have so many questions. And they informed me it’s a great thing i did not just stick to its astigmatism and went with my gut because if i do have Graves eye or a thyroid eyedisease if it’s mild i can get my vision back or worst case scenario maintain my vision from getting worse. I have so many questions for you, But your Journey made me feel I’m not Alone. 🙏🏼💕
Wow- this is crazy! Glad to know that you're one step closer to hopefully finding the right treatment with Graves' Disease. It's no joke and so hard to deal with. Especially with bulging eyes and hair thinning out. I lost so much hair also and it's scary. It's crazy how our hormones play such an important role in our bodies. Hopefully you get some more answers soon!
Same here. Graves eye desease and quick weight loss😢 taking methimazole until now. Does eyes back to normal. Because I'm worried I'm single mom of two. Im afraid to get a job with this kind of sick
have the thyroid removed for pity sake! Don’t f around with idiot doctors anymore!
Lalah Valenzuela i just read this comment and i’m not sure if you have heard of this new medicine for graves eye disease :) i have a great eye doctor who has followed me throughout my graves’ disease diagnosis, in case i get graves eye disease. if this relates to you still, maybe ask your eye doctor about this new medicine.
Tara King Hello Tara, I’m doing way Better. I use to take methimazole and propanolol after i had my son. Then shortly after i switched to Levothyroxine and Now I’m Taking Tirosent. I love it so far. My thyroids everywhere but my New Endo has been monitoring every 6 weeks (something the other doctors should have did before) and my TED I just had an appointment June 9th and they came out with a Medication called Tapezza and i was a candidate 🤞🏼 the Success rate is insane and I’m super excited to start it. Just waiting for my insurance to give us the OK and start it ASAP.
Thank you for this video! I’m 23 years old and i was diagnosed with hyperthyroidism and graves 1 month ago.. I lost 10 kilograms for less than 2 months and i’m naturally very skinny so now i’m 38 kg and i’m literally looking like anorexic :( I love food and i eat 5 times a day and i’m always hungry. My hands were shaking like hell and my heart rate was awful. The worst thing was my period it almost stopped :X I’m sure all of this was caused by stress... It’s good to se how other people are dealing with this stuff because i’m pretty new to this so thank you! I hope you’ll get better! ❤️🙏🙏 Btw my first symptom was the “one eye” thing like you said... Now it affected my 2 eyes but i’m a little better now after taking my medications :)
Hi how are you today???
@@GGGirl55 Hi :) Well unfortunately, i’m not better and i will have my thyroid all removed this April or May, because the medications i take doesn’t help and i’m getting worse and the second reason is that i also want to probably have a child soon if possible of course and my doctor told me that there is no point to even continue trying and trying to cure myself with medications because it’s not going to work :( Now i finally decided to remove my thyroid and hopefully get better because this thing is really exausting :X I am trying 2 years already and nothing is happening so my advice is to remove this shit sooner and be happy! 😂
@@Elsynce Good luck! Hope you feel better now.
Me too
What if your a 59 year Black woman with Grave's Disease? I've been taking Methimazole and a blood pressure medication..Chest discomfort that comes and goes,very scary..went to the eye doctor recently had close to the same prescription but she didn't find anything abnormal thank God! This whole thing started with rapid weight loss..
Natural roots & herbs are the best remedy which can easily eradicate all kinds of diseases and virus forever and permanently! My sister was able to beat hypothyroidism with natural root and herbs supplement from Dr Isibor and now she's cured and more healthy now
Thank you for making this video my 14year old daughter has just been diagnosed with graves and hyperthyroidism. So scary right now
It is heart warming to hear silence again without sound disturbance, all thanks to Dr iyaremoses on RUclips channel for his herbal medication free from hypothyroidism..🥰
My Graves disease (misdiagnosis) was due to aspartame poisoning. I was facing thyroid removal and removal of aspartame from my diet resulted in normal, healthy thyroid function within 90 days. Good luck (cite: Texas Heart Institute, Houston.
Thank you for sharing your journey!
Please share as much as possible, there's so much to know and we all need each others help.
You make me less scared of surgery 🥺😢 I already went through a complicated appendectomy, I stayed at the hospital for a week, it was traumatic - I’m praying to not go through that again 😔