Thyroid Cancer Update | 3 Years Post Thyroidectomy - new symptoms
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- Опубликовано: 20 окт 2019
- Lately I have been dealing with some new symptoms which is frustrating. Watch to see how its been going this past year and what we are going to do about the way I've been feeling lately.
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I had my thyroid removed 10 years ago due to cancer. I am so tired of people saying to me oh that’s a good kind of cancer to have because all you have to do is take medication ! And of course I go and say seriously! Do you wanna know what it’s like to have no thyroid, days are good , days are bad , you have to have your levels done, and regulated. Once I wasn’t feeling good they increased my medication, I take armor, and after was doing well. About 2 1/2 months on that dose, I started having anxiety, heart palpitations, and my doctor said that I was starting to go into heart tachycardia. It was hell until my levels came down. So for those of you that think thyroid cancer is the best cancer to have, do not judge us
until you walk in our shoes. It’s life-changing and it’s forever!
Really 10 years over again it came back few people say we die in 5years is it true
😭😭😭
I haven’t been able to get my levothyroxine in many months.... I am miserable!
Yep, had my thyroid removed 2 years ago and it’s been very up and down since. Been through some really dark time. It’s a constant struggle to find a balance and feel okay
@@davidandronicomusic stay strong y'all! Prayers all around
I go tomorrow to have my complete Thyroidectomy along with my lymph nodes removed in a surgery that the doctor said will take 7 hrs. I pray that all the cancer is removed. I'm glad to have found your videos and will watch them as I recover.
I had a similar operation as you on the 1st Feb but only 3 hour surgery, still getting over the surgery. Most of the numbness is gone but still a bit of pain around the scar and the right hand drain scar (2 drains, left and right). How are you doing? I'm in Perth, Western Australia
@@craigrik2699 To be completely honest I am miserable. I didnt end up with any drains but I did wake up from surgery without use of my right arm ( opposite arm of potential nerve issues). It has taken 2 weeks for me to regain about 90% use of the arm with sever and constant pain from the nerves. I can't sleep from the pain and nothing works to helps to reduce it. The doctors won't prescribe any type of pain medication so I'm stuck in the viscous cycle. My incision scar is 6 inches long and looks great, I have lots of numbness and pain to the touch mostly in my chin area. The doctors ended up finding 8 cancerous lymph nodes upon completion of the pathology reports. Hope you are doing well day by day. I'm in Arizona, USA
Hope you are doing fine now.
how is the life after doing the surgery.
Hi my sister is 20 years old and in FNAC test the report said Suspicious for Malignancy: Bethesda Category:V.
Advised for Thyroid uptake scan and biopsy. I couldn't sleep last night. I hope everything will be good soon.
How are you feeling and doing now? Just had mine removed 4 days ago.
Sending you positive vibes and blessing hun. Hope the meds help you and I love how positive you always are ❤️
You are so strong,! Thank you for sharing your story, it has help me a lot after my thyroidectomy.💖
First of all thank you so much for making this video. Thank you! I’m so grateful I found this video. Thank you for sharing your story, wow you have no idea how you have helped me today. I had my thyroid ablated in 2004 and have suffered for years with some of the symptoms you have mentioned and I thought I was just going crazy and today I feel a sense of relief and validation that is such a blessing to feel. Thank you again for sharing and being open and vulnerable. God bless you always.
Aw.... it’s been 19 years since I had melanoma and I still have those times where when something is odd I am like oh crap could this be cancer?! I don’t think it ever goes away....and it’s always better to be safe than sorry. Glad you’re diligent! Glad you are taking care of yourself. 💕
Had my surgery 2 years ago. And just found somebody on RUclips who had the same experience. So nice not to be alone)
You are so sympathic and I resonate so much with your paranoia if I have a cold or something, that it is gonna be another dramatic health event I am gonna have to deal with. I had a similar journey as you and it is like a self help group an RUclips I am thankful for your videos. Thank you! :) greetings from austria
You sound exactly like what I've been experiencing. And just in the last hour of watching this, I had an episode that you describe. 5 years ago I had my thyroid removed, cancer in goiters and nodule. Just had a medication change from Armour Thyroid to Tirosint. Levels looked great. I'll be 50 in November and for me docs believe my hormones get wonky around my cycle and I'm perimenopausal...yay me 🤗 I was telling my husband that i hate feeling like this. It literally feels like I'm dying and it's very disruptive to my life. So I appreciate your take on it in this video cause its exactly the way I feel.
Wow.. this video and reading all the comments.. God bless you ladies who are going through it ♥️
Thank you Bridget for being here and for your support
Thank you so much for sharing your story!! You are helping so many people. I know I appreciate it very very much! Hope you feel 100% better very soon! *Hugs*
I think you are really brave and positive. ❤
I had both my thyroids removed just three years ago and I have no marks on my neck; you wouldn’t even know that I had had two operations on my throat. You have a beautiful face and thank you for sharing your experience on Thyroid as I am sure that you have helped many people. Good luck!
Have you noticed any side effects since having your thyroid removed? I'm still up in the air about it... I'm concerned more about cardiac side-effects like palpitations and chest pain
I appreciate this video soo much!
Good to see your doing well.
hey girl, I know these videos are old and you may not see this but WOW. you are the only person who’s had the EXACT same symptoms as me. been trying to find answers since 2016 and this year I’m finally getting them. Hashimotos. Tumor on right thyroid. Surgery is on 11/25/20. They’re only planning on taking right side but may be TT if biopsy comes back cancerous. FNA biopsy came back undefined so they will know in the OP room. but WOW. everything you said is what I’ve experienced. every little thing. so thank you.
Crazy !! That was the plan going into my surgery too. I hope all goes well for you and you’re feeling good by Christmas cookie devouring time :) honestly healing from the surgery wasn’t terrible - at least thinking back now on it lol it was more so adjusting to hormone fluctuations and realizing diet is a huuuuuuge non negotiable part of feeling my best. Wishing you the best and a speedy recovery !
I've watched your story and I'm so glad you shared it. I was diagnosed with hypothyroidism in my early 20's with life and things that I just can't understand, my body has felt like it's in a constant state of fight or flight, or stress I guess and that's been for over a decade to where I can't even have a moment of peace, even in my own home. It's a whole other thing but I know how these things have to be harming my body. The way you felt after your surgery is the way I feel constantly and how I've felt for a long time...I know there's quite a bit wrong. I need to get into the endocrinologist but I've just been dealing. I wake up daily with a headaches that turn into migraines often, I have a goiter and I can feel the nodules. I'm not saying I have cancer, with other life things it's really hard to tell what is going on. I just know I need to get in to the endocrinologist and I'm glad you've shared your journey.
Thank you for sharing.You are not alone
You're not alone..I thought it's only me felt those...thanks for your video
Whoa.... I just started watching your video, and I’m shook! I have developed endometriosis as a result of my thyroid cancer and removal/not being able to acquire my levothyroxine often enough to stay level with my hormones.
Thanks for shariing your exoerience, I do my thyridoctomy 3 years ago and I go through all of it, I was asking my self what am i going through but youb clear some points.. thanks alot
I have Hashimoto’s disease and oh, do I struggle daily. You are such a strong woman- thanks for sharing ❤️
I’m here for you too 🙌🏻 not an easy autoimmune disease to deal with
@@MichelleRotherthe morning green green
Thank you for your update, though I dont have what you have had. I suffer from anxiety, I can relate to that, I actually caught a rare virus in my inner ear and permanently damaged my left ear, I was dizzy from my balance bring gone, I had to relearn to drive walk cook and clean, its taking a year to get over but the anxiety is crazy described just like you said you know your fine bye your brain is like nope everything is wrong, its horrible, I'm glad you doing well 😁💕
thank you for sharing you story, prayers
This video is really helpful. Thank you for sharing. I'm getting my partial thyroidectomy done this next thursday.
Hi Jackie, how are you doing?
I am having surgery in one week since I had a partial thyroidectomy two months ago, and they found out that it was cancer. So they decided to take it all off this time.
How did it go your surgery and post surgery? Any advice on how to cope with the situation (practically and/or emotionally)?
Wishing you the best, take care.
@@84Elenai Hi Elena,
I'm doing well, thank you. My surgery went very well and my recovery was a breeze (I don't really even have much of a scar, which I'm almost disappointed about -- I feel like i should have something a little more to show for all of the stress it put me through). It turned out my tumor was benign, so there was no need for a second surgery. Emotionally I have no idea how any coping works because I really didn't have time to think since everything happened at the onset of the Covid lockdowns. I will say that I have a very supportive family and workplace, so that helped a ton. I was basically laid up for like a week and then I was perfectly fine. I hope your (hopefully only) next surgery goes well for you!
@@jackien9852 Oh, I am glad to hear this, Jackie. I can relate, my family is also amazing and really supportive, they are helping me out a lot emotionally. Thanks hun, take care and stay strong (I will too!).
Hi sweetie I know exactly how you feel. I am in remission from a blood cancer called multiple myeloma. I had a stem cell transplant in 2017. I am on a daily maintenance chemo and while everything has been pretty good I always have the big C word in the back of my mind and it will always been something I live with 😭.
I am in school for full specialty right now and I am loving it but I have gained a bit of weight 🙈 and the last month I started having flashes in the corner of my eye. I went to the dr and they tell me my retina is fine and my eye looks ok but the only thing I can think of is I am straining my eyes in school. So now I am anxious about that. I am praying nothing is wrong with my eye! I have a channel and I did health videos too.
I pray all is well with you! ❤️❤️
Ohh is the eye thing maybe a blood pressure thing? I’m curious to hear what the cardiologist says . I sometimes get the fireworks flashes too. Thank you for sharing your story !!
Thank you for the update Michelle! I'm almost at the 2 year mark. I just went thru LID, 5mci of RAI, and my WBS.
Your candid and honest experiences have helped me a lot in the past 2 weeks. I noticed that I had difficulty swallowing and went to see my dr. I was referred for an ultrasound on my thyroid. I was then referred to a specialist and had a biopsy. I get the results tomorrow...I hope I'm ok
Please come back and let us know the results. Crossing fingers for positive news
@@MichelleRother My results are in and a huge relief, its benign. I have the option of doing an ablation or monitoring the nodule (its 3.4cm) for the next year. He wants to see me in a year. I am going to wait and see if anything becomes more noticeable when I swallow. I truly appreciate you and sharing your journey. Your positive outlook is such a gift 💖💖💖
@@cathycolton1387 Please let us know how has the past 2 years went regards the thyroid nodule
Nobody has warned me about any of these symptoms, even when I had many of them while on medication. They treated them nonchalantly even though I still suffer from them today (off meds, with thyroid). I’m so glad I didn’t decide to have mine removed, although it’s seeming to be more and more of a better option. I hate having these symptoms. I’m trying to make other aspects of my life healthy in the hopes that they’ll go away, or at least quiet down.
My thyroid journey is ridiculous and has ruined so much. I’m glad to find solace here.
Why did they want to remove your thyroid? Was it MCT?
I just ran across this video,, thank you so much its very helpful,, i am going on this journey and have a large nodule on my left side,, 2 biopsys in and im waiting for the next answer via an Afirma test,, but it clearly isnt working right ,, got the muscle twitches random all over the place,, have anxiety meds,, sounds like all the things you have menioned here ,, thank you
Thanks for sharing!
I'm going through the LID diet now and set to take the pill the week of Nov 4th. I'm going to keep you in my thoughts. We are strong together :)
You got this Betty ! I got all worked up about being Quarantined but it really wasn’t that bad. Or at least that’s how I remember it now lol
@@MichelleRother please share for me what food you eat after surgery and after radiation therapy,i have the same situation as with you 🙏
Thank you for sharing I have terrible days after the surgery and radiation iodine and this video help me 🙏😇
Love these types of videos & updates from you... I hope you continue this topic (Health & Thyroid)...🦋😊👍🌺🌹
I got 99 problems and I’m more then happy to share about 98 of them with you 🤣 but I’m a serious note thank you for the feedback. I will try to be better about updating you moving forward. I’m going to see my endo on Wednesday
Just had a thyroid nodule biopsy done 🤞🤞🤞 you're videos keep me calm and stay positive, you're such an inspiration. God bless you 🙏
Sending you hugs !
Stay strong! I had to get 2 of them due to unclear results. But it’s always to catch anything before it continues
I'm so glad I found your channel, I found it threw your fff unboxing. But I have Graves and they are removing my throyid January 7th 2020. Have to take tapozole and vitiam d daily. My journey is just starting but I've felt sick for a while and didn't know. I got pregnant and that's how they found mine my resting pulse stays over 200 and very high blood pressure. I feel alot less alone now. It's effects so many diffrent things.
So glad they found out what was going on and are offering a solution!! Positive vibes and hugs leading up to the big day. You can do difficult things !!
I can relate 100% I'm almost at my 3 years as well and found you right around the time I had my thyroid out. Hang in there girl! If you ever need a friend that can relate let me know! My pharmacist told me to take my vitamins/calcium at night before bed which has helped me a ton. I have weight issues to now, only advice I have there is just keep going it just takes a little longer for us 😒
Ohhh take the calcium at night ? I’ve been taking it in the morning. Ok I can switch. An night I’ve been taking zinc and collagen. I know calcium and zinc don’t mix.
Can you tell me what vitamins do you take please ?
I have Hashimoto’s disease and leukemia. I swear the hashi’s is more of a pain than the leukemia. Thanks for updating us, wishing you well always! 😘💕
Always Sarah 💗 you are one strong lady to be dealing with both those conditions !!
I'm rooting for you Sarah I was diagnosed with Hashimoto's as well I am wondering if we take out our full thyroid in surgery do we still have the Hashimoto's disease?
@@hailamojica8925 yes. It’s an autoimmune disease so getting rid of the thyroid doesn’t actually get rid of it. I would recommend ordering books on it specifically. It really helped me understand better, and sadly doctors aren’t super informed on Hashi’s.
@@hailamojica8925 oh and rooting for you too!
@@hailamojica8925 I've hashi too and a lot of nodules. Doctor recommends taking it out as the antibodies will go down significantly. Because there's nothing more to attack! And my doctor also had Hashi and she has had no thyroid for the past 36 years. So yeah, no thyroid, no Hashi left is what she basically told me.
Thank God I’m not the only one dealing with this.
All the best to you and everyone watching this
Thanks fo sharing your story!! I doing my 1 year post RAI body scan but I’m struggling with severe salivary glad swellings and pain and they can’t give me a answer
great to hear your story - please post an update :)
I have a few updates posted :)
God bless you
I really appreciate your videos! They have really helped me dealing with all this mess I’m going through. It’s been 3 weeks since I had my surgery. My voice is so horrible and it makes me so sad! I did have thyroid cancer and because we caught it super early they feel like it was no big deal but to me cancer is cancer!! The Dr came in my room the day after and said your nerve did take a beating so it will be a little while before your voice comes back. I don’t know if I was so out of it after surgery that I didn’t pay attention to what he was saying or what BUT I thought by 3 weeks it would be back. The Dr doesn’t want to see me until I’m 6 weeks post surgery about my voice. I seen him a week after and he said yes you will have to come back in 6 weeks 😢
Hi! Did your voice come back? And how are you doing otherwise?
@@j00f I had to have my vocal cord repaired so I had another surgery. My voice came back about a week after that surgery. I’ve been ok.
@@amber2088 very glad to hear!
I hope youre better now dear
@@amber2088 which country did you operate in?
Getting an ultrasound tomorrow due to my doctor feeling a “lump” on my thyroid. Two months ago I had blood work, it showed hypothyroidism, had more blood work one month ago and my numbers jumped. I already have lupus so this is just a bummer. Went and put me on thyroid medicine last week.. I’m definitely nervous about the ultrasound. I know a lump could be non cancerous but it’s definitely a thought in my head😬 wishing you nothing but the best and you feel better!💕
Was it cancer?
Hi....
After searching through many blogs i found yours.
I feel the same way you described.
Its almost going to be 2 years now.
I went through 2 surgeries one one 1st April 2019 and than total thyroidectomy on 12 july 2019.
So many panic attacks, anxiety and calcium deficiency. Not finding ends to this. Consulted many doctors but no relief.
Hi I just removed my thyroid on the 14 of November. I didn't see back my doctor as yet. But I feel the same so far no different my voice is clear and I can do everything for my self.
A small advice: calcium supplements should be taken at least 4 hours after levothyroxine :)
Hi, I was searching for voice after thyroidectomy and came across you, I am 3 weeks post surgery and sound exactly like you did prior to vocal cord surgery. I also having breathing issues and make like a noise when breathing, I feel like something is blocking my throat and is vibrating when I breath heavy. Anyway I was hoping you can do another update on your voice and anything else you've had done, I'm so upset I wish I never had the surgery now, the breathing issue has impacted me the most, I can't sleep due to the noise, can't exercise like I used to, they've wrecked my life 😭
Had my thyroid removed 4 days ago started my levothyroxine yesterday I pray that I will be finally okay.
You need 3 hours gap between levothyroxin and any kind of calcium. Food or suplement. It's on the leaflet from your levothyroxin that taking it in less then 3 hours gap effect both your hormons and calcium levels.
I went under surgery in September 2019, due to cancer, life is really hard, everything, weight gain, PCOS, muscle pain, fatty liver, depression, insomnia, snoring, a Greek tragedy.
Im glad this video is here. I was diagnosed with Thyroid cancer in February 2021 and I am trying to get educated prior to my thyroidectomy, I am so scared. I am pretty active and I dont want this to change me.
Everyone experience is different. I had thyroid removed due to thyroid cancer. It's been 3 years now. I only had surgery no RAI.
How are you feeling now, when did you have your surgery, I was diagnosed too two weeks ago.
@@marbella7305 Can you share your experience with us, we need to hear positive coments, I was diagnosed too.
I had thyroid cancer and a total thyroidectomy and I feel much better on brand synthroid. Also make sure you don’t take biotin within a few weeks of your blood tests. It throws off the tests somehow.
I was diagnosed with thyroid cancer 11/2018. I was at stage 1. I got my thyroidectomy done 1/2019 and as of 6/2019 was officially cancer free. 🙏🏼🙏🏼 I take my meds everyday and struggle with weight gain due to it. But y doctor is not concerned since my thyroid levels are so good with the dosage I am on. I also always fear when I feel something wrong or different with my body a sense of omg, is it a new cancer? Is my cancer coming back? What else could it be? But like you said and do also is go to my doctor and he usually talks me down. Lol. He checks everything and orders whatever I need to ease my mind. 😂 Glad I found your channel ❤️
Did u took RAI treatment mam?
Something I can relate to.
full TT in oct 2020 didnt even go into remission before we found more lymphnodes and a lung nodule ( waiting 6 months for pulmonary) symptoms again but my doctor keeps telling me the symptoms cant be cancer related. we are waiting for the cancer to grow to have surgery in dec. this type of cancer is so frustrating.. im tired of being told im lucky to have it and the like, im on 250mcg of synthroid now.. and feel like im always going to deal with it. i was in school for my first diagnosis and had to drop out. this has ruined my life and i wish everyone here the best.
I know this is an old post-I just found it and watched it bc I had a thyroidectomy in Dec 2019 and am struggling-I literally right before watching this video had an episode like you were explaining-how are you being treated now for this? It's the 2nd I have had this week and it's a scary feeling...I just feel horrible and can't put into words you described it so close to what I was feeling
I'm 1 month post thyroidectomy I'm on 150 mcg for a month now, I notice I'm always sleepy, I feel always weak I don't know why, my doctor told me I'm suppose to be back to normal once I start my med but it doesn't. Hope you are well now your video help me.feel that I'm not alone in this
How long are you waiting to eat or take any medication after? I felt horrible the first couple of months. It helped when they increased my levothyroxine. And just time for my body to adjust to the medicine. I hope you start feeling better soon. I know how miserable it is and no one understands until it’s happening to them.
It took me over a year to have my TSH where it should be and I still have my days. Hope you are feeling better.
I'm on 125 mcg and my hair loss so much ...
After this video and the comments of others I think I'm going to pass on surgery for mine
Best thing I ever did for myself. Definitely seek a second professional opinion
I have terminal cancer it went from stage 3 to terminal in 1 month doing chemotherapy but i was forced to do treatment. It started in oct 7th 2006 after my daughter passing away. Then we thought it was gone nope. It came back in 2012 and then i changed my life around started celebrate recovery to become closer to god and help others then i started bible studies wed nights clelebrate studies on Thursday, Friday nights was church. 2017 is when i started seening more signs about the cancer came back i get a call from the dr. It started from cervical and spread very quickly now i have thyroid cancer my face looks like miss puff on sponge bob. I do have a hard time breathing
Hi are you doing okay? I hope you are doing okay and in remission now 🙏❤️
Omg 😳 I’m so sorry you’re going through this, I’m praying for you
Hey Michelle! Commented on one of your late video about iodine Therapy. Unfortunately my results came back positive for remaking thyroid cancer and have to do the whole diet etc AGAIN!!!
Also..any creams etc that really helped with your scarring?
Oh no !!! That is so annoying !!! I’m glad they found the regrow though rather than something happening down the road. As far as my scar. I used silicone strips for a while but they didn’t do a terrible amount. Vitamin e or better yet mederma is worth investing in. My scar doesn’t bother me too much though so at one point I’ve just left it alone
Michelle Marino
Yeah this time of this sucks again. It ruined my thanksgiving meal and now Christmas I’m sure!!! In regards to the scar I always simply got over it too but being 20 is figuring get it to look “pretty” now at a young age
I have stage 3 thyroid cancer they can't operate on mine because of my lung function scaring from covid. I am scared. They found lesions on my liver now and my bone . Thanks for sharing your videos
Living with hypothyroidism was so hard and painful, but thanks to doctor okouromi treatment using herb’s to get rid of thyroid problems…☮️🌸💖❣️💗❤️🔥☪️💙💘💘🌼🌼💘❤️🔥🌼
I had hasimotos, I just got my total thyroid removed 3 days ago. My surgeon said it was the most angry infected thyroid he’s ever battled with. My calcium dropped so I’m taking calcium pills. Even though my neck is very sore I can swallow without choking!
Yea low calcium is no fun ! So glad they were able to remove it without any additional complications
Have they checked you for adrenal issues. I had the same problem until they got me on cortef for low adrenal problems. When you're not producing enough cortisol, you will have surges of adrenal at times to make up for low cortisol. I had everyone of your symptoms, but now have a great doctor who has help me so much. I'm also on t3 and t4 because a lot of people can't convert t4 to active t3. Your test results might look good, but without sufficient working adrenal glands you won't be able to get the thyroid you take into your cells, you'll have big time issues. Read the book stop the thyroid madness. It's a great book for people to read, it really breaks down how everything works. If you have adrenal issues, you'll have anxiety attacks. 😃🤗
Thank you for mentioning this ! I’m visiting my endo on Wednesday and will absolutely ask her
I’m new here !! I’m 22 & getting my thyroids out September 14 🥲
I’m still struggling to loose weight too can you do a video with the prescription vitamins you take for people that had a thyroidectomy?
I have had two thyroid surgeries because it was not thought to be cancer then they found out it was so I was of thyroid for o er a month and when I started the med back I thought I was going crazy like for real , invasive thoughts non stop and extreme anxiety, it was two weeks of hell to but I kept taking the thyroid meds it did get better but I noticed that anxiety, something that was never an issue before is always on the verge of coming back or flaring up, I will say that Kava oil helps, I also weigh more than ever in my life and I’m eating less and working out so that might just be a problem for everyone. You are super cute and your video does help people because they have nothing to compare their experience to and doctors, at least mine are zero help for this part of it.
Living with hypothyroidism was so hard and painful, but thanks to doctor okouromi treatment using herb’s to get rid of thyroid problems…😄🌼🌺🌼🌺🌼💚💚🌸🌺🌼☪️💗💘✝️☪️💗💖💖☪️❣️❣️🌺🌼❣️💖
I had my antibodies tested. They are 121. I'm waiting for an ultrasound now to (hopefully) rule out cancer. If clear, on to checking for Hashimotos. In any case, my thyroid is toast.
I just got my antibodies results back last week 257.7 🤯 ultrasound in the morning. Fun times.
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My biopsy just came back that my thyroid nodule is cancerous as well. Having my thyroid removed soon thanks for posting it helps a lot.
I just got one like yesterday,good luck!
What is ur tsh level plz share with me
WAit i am experiencing the thing that you said where it feels like my muscles get tight or cramp up. why is that? should I bring that up with my doctor?
I've been taking my levothyroxine at night, but is it better to take it in the morning?
I get work up alot, I am trying to deal with it all
It has been 5 months since my thyroidectomy for papillary carcinoma and this video helped me beyond belief. I feel like a different person now and my energy/mood has not been the same since. I'm only 20 and I'm trying to finish my degree, but the loss of my thyroid is making it harder. I feel guilty for complaining about this cancer because people make it seem less valid since I did not need chemo. Will the symptoms ever go away?? ):
@Marry James Hello! I am in remission, but the hypothyroidism symptoms are still kicking my butt.
@Marry James I will definitely give it a try! Thanks so much
Not feeling like its valid or people dismissing it because of that is so real and hurtful
I had a complete Thyroidectomy in 2014, how is your voice now?
I’m 6 months post surgery. I have chronic hypocalcemia, I can’t remember anything like I used to, I have no period and I’m only 29 years old. My general practitioner is the only doctor who helps me. I’m taking .2 mcg of levothyroxine and like 15,000 mg of calcium. Along with anxiety and depression medicine because of my surgery. I have had to go to the hospital on average twice a month since my surgery to get calcium iv. I’m just distraught because this all happened because a doctor lied to me and said I had cancer. And removed my thyroid completely and damaged my parathyroid permanently. I twitch all the time now and I don’t sleep regularly which before my surgery I could fall asleep and stay asleep. Also I wake up in the middle of the night because I’m starving. It’s just been a huge nightmare.
Hi katherine..how are you now?
How do you overcome the anxiety and panic attacks and all those anxiousness.. It's been a year and 2 months since I got a thyroidectomy due to thyroid cancer..
Hi! Do u hv chest.pain or palpitations since your thyroidectomy? I hv hashis and wandering of just taking it out will help...im not on meds yet but my TPo is always btwn 400 and 4500..i also hv alot of palpitations... so I was just wondering if I were to just take it out if I would feel better. One of my endocrinologist in the past said that I would because my body and no longer had anything to attack but historical I have not had a good experience with endocrinologist so I take what they say with a grain of salt and would rather ask people who have actually had a thyroidectomy.
Hey . I’m not sure I have personally experienced issues with heart palpitations but this would be a great question to ask in the Thyroid Conscious FB group :)
I've had that standing up, then almost blacking out happen frequently. Mine is due to extremely low blood pressure. I also have fibromyalgia, trigeminal neuralgia and hypothyroidism. Yep, life is fun LOL ;-) Please ask your Dr. to check the levels for your adrenal glands. Mine bottomed out so bad that no one even knew why I was alive. I had to go in for infusions to try to activate them again. Thankfully it worked both times.
Keeping you in my prayers hun. You're doing great !!!!! Hugssssss ❤❤❤❤
Oh wow !! Yes a few others have mentioned the adrenal stuff too. I’m totally going to ask my dr when I see her tomorrow
I'm keeping you in my prayers hun ❤
I had thyroid cancer in 2019 I had it fully removed along with my glands and lymph nodes ! I haven't had any treatment done after that even had two babies but now I have this cough that won't go away and pain in my chest and lost of hair loss n sometimes it feels hard to breathe but I don't even have a thyroid anymore ! I can't even get in to see a doctor anywhere in California for months !!! Been waiting for an appointment to open up since April and barley I got a call the other day to schedule me an appointment for December!!! Did any of you guy have just the surgery and was fine or did you have to do more treatments ????
I had to do RAI treatment and man I’m scared cuz idk if I should take the meds there gave me cuz I already have high cholesterol and I heard levothyroxine increases it
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I had my whole gland removed 1 and a half week ago, is there any possibility that u can still get pregnant with no hormones cause this sucks but i hope all of u stay positive n remove those people who stress u 💗
I have had Mine removed because of cancer 10 years ago Off the back of this My heart has been knocked out and I am Taci most of the time I have a GN spray for when its bad ,I have gained 30lb i cannot shift I am 60yrs old I have Not seen an endocrine since I had it removed I dont know if this is the Norm in the UK ,I have restless legs also most night .No Body understands what your Thyroid does till you dont have one Stay strong xx
While I don't have thyroid disease or anything like that, I do have anxiety and Catastrophic Thinking (yes it is a thing lol). I've had the Catastrophic Thinking since i was a kid. Like you, my mind goes to some dark places, the absolute worst case scenario thinking. It's gotten worse as I've gotten older and even worse after having my daughter 4 years ago. And it's really sucks that most if those dark thoughts I have now always involve her and everything and anything that could happen to her. My husband who suffers from Bipolar and Anxiety, told me last year that he finally understood what it was that my mind goes through. We had had a lot of fatal car crashes in our town within a month time span ( I HATE being in cars or having my daughter it husband in a car), and 3 of them involved cars crashing into the aquaduc here and one involved a mother and all 4 of her kids, three of who died with her. That caused a lot of anxiety and dark thinking in me, but my husband said his mind went there in thinking what if that was us in the car with our daughter and he played out the whole thing in his head. he said he finally understood what I go through. And yes it sucks SO bad to have these kind of thoughts and feeling and to never truly enjoy your life or the things you are doing in life because I always have these bad feelings and thoughts in the back of my head. all these WHAT IF'S....I hope everything can get figured out for you and you can get back to being yourself. You know you can always talk with me 😊💖
Giving you the biggest hug right now. Dealing with all of this isn’t easy. It’s draining. I can absolutely relate. It’s almost like those feelings and thoughts are always there but when I’m in a good place mentally I can combat them easier and move on. But if something’s wonky mentally or medically ( for me its my thyroid meds) its harder to combat them and I get a bit frantic with my thinking. It interesting and frustrating to see ourselves go through that change though. Sometimes I can watch freaky or graphic movies and be like whoa those were cool FX and such. And other times it kinda haunts me and will pop up throughout the next week or so. Like it’s not just that night sleeping under the covers kinda thing it’s for a while afterwards.
Had my thyroid removed three years ago. Had pretty heavy periods right after, and I switched to Armor Thyroid. Life Changing!
Also, I have issues with low calcium too. I can feel my lips tingle, and fingers go numb. So, I have calcium supplements to take asap to help.
Very low Vitamin D levels also. It's nice to hear a story so similar to mine.
It’s equally as nice to hear about your story too. My dr is so eh about me wanting to try armor. And I’m a nervous nelly like if it ain’t broke don’t fix it . But when I hear stories like this that things could be better for me I’m like damn. I should try it ! Maybe after I’m done nursing I’ll switch for a bit
Hi thanks for sharing your story. Do you take calcium capsules every day now or all the levels of calcium is normal now without any medication please?
@@bhushanchandrashekar1756 I take a calcium supplement about once every few months. My levels test normal, but I can tell when I need to take one, and I feel better after a few hours.
Thanks a lot. I am going through the initial phrase of cramps. This has help me understand better thanks again
Hi I have no tyroid. I am really not well I am having all that u talked about in this vedio I am a single parent of three girls. I feel sick everything pains I get cramps, my throat pains, y do I still have tyroid issue even after removing it... I take levothyroxine 100ml a day... Can someone please help with some advice....
I had my surgery one year ago. All my numbers look good from blood work but I have been having these weird palpitations where I feel like I’m having a heart attack and then go into full blown anxiety attack. It’s horrible. My endo doesn’t want to switch my medication levels because he says it is perfect. I’m going to find a primary doc to get this checked out.
wow I wonder if you levels are ok but other outside factors are causing the issues ? I just went to the dr yesterday and got a few answers. Hopefully that video will go up shortly !
Michelle Marino’s i have been stressed but this never used to happen before my surgery so it has to be related to this somehow. Look forward to your next video :) oh and I gave up coffee a couple months ago and they seems to go away but now I’m getting them again and have not been having any caffeine. My symptoms seem really similar To yours where I just have to go lay down and try to relax to feel better.
i had tty , got anxiety, hair loss, fatigue thats all within 3 months post op, am so depressed ,i dont know what to do
are you okey now??
@@Bmgjumsi thanks for checking , I was put on antidepressant for a year ! I asked my dr to lower my synthroid med bec am damn sure all these symptoms of panic, dropped blood sugar stmptoms bec of over medication , and i was right
You said you were on 150 levothyroxine. I wonder how much you weigh? I think my doctor lowered my dose 3 months ago and I just horrible. Nooo energy at all. He has me on 112 levothyroxine.
Ok just heard you mention your weight. I am 213 . Highest I’ve ever been. I was smaller when I was 125 Levo.
I wonder about adrenals and cortisol levels ect because I have these issues but I can't ever sleep
Someone else had mentioned this too ! Totally asking my endo on Wednesday
Did your hair shed a lot after surgery if so what did you do to grow your hair back ?
It’s been a while but I remember shedding a bit and I feel like perhaps my hair is a tad thinner than it used to be but I don’t remember a time where it was extremely so or that it grew back. I’m not much help sorry !!!
sorry to hear that how r u now
Hey, doing pretty decently as of lately. Just ridiculously tired / lack of motivation etc
@@MichelleRother Good to hear that ur doing good , tc hope u will get motivated as u came out of such a great fight keep it up
Hi dear ,you still have the calcium deficiency?
I having same right now but my muscle pain is bad my legs is the worst, blurry vision and dizziness that I feel like I’m going to fall not able to drive cause of pain and blurry vision and my feet start cramping for my others on the road since I don’t feel safe driving I stop and having been able to work and they are going to terminate me if I don’t bring FMLA papers but doctors keep telling me go to the ER
I'm getting mine removed on the 24th of August. Luckily it's not cancer but I have a 5cm goiter that has pushed my trachea over. I'm not looking forward to it.
Sending you hugs and healing vibes
That happens to my hand and I’m now on 125 mg and I’m still under active
Hello dear, Could you please help me..I had total thyroidectomy and RIA because of thyroid cancer.. after 3 month I am having heavy hairloss.. if it will be like this I will become bald in a month...will it stop please help anybody what I should do..
So you don't know what's causing these symptoms even though the cancer was removed and you're on medication? I want to know what causes the symptoms to persist after treatment.
Do you experience hairfall after total thyroidectomy?
Hi - I had thyroid cancer 10 years ago. My doctor removed my parathyroid glands (even though they say they regenerate if damaged) accidentally ...I have been struggling with low blood serum calcium for 10 years. I've tried everything I could afford. No change. So I get the tetany, tingles, pins and needles, twitches, heart racing, restless legs, cramps all the time. But the alternative was worse, I guess.
I take vitamin D and calcitriol everyday . Do you take these and still have issues ? I only have issues if I skip or forget to take them too many days in a row. Parathyroids can repair themselves if left in the body. Mine just pooped out on me. He said he left me two of the four but who knows I guess
@@MichelleRother Yes - I am supposed to take 150 mcg calcitriol and 2000 mcg calcium daily. But like you - I forget to go back to them 1 hour after I take my 175 levothyroxin (which I never forget to take) . My endo wanted to put me on natpara (sp?) shot but that cost like 12k!!
@@wendygoldstein3541 hi wendy are you from india...how are you now...my mother is also having same problem...please reply me...
My sister also having totalthyroidactomy few months ago she is under medication but Life after surgery is not easy she is suffering from hair loss any body have same problem?