TV is horrible. I always feel like my house is a dump when I watch HGTV. In actuality, I'm blessed to have a comfortable, paid for home. I'm grateful for the things the Lord has blessed me with, and watching shows just causes feelings of jealousy and resentment that I don't have nicer things.
Thank you Ladies, makes me feel better about how I get through the day.. I don't have CFS, but MS. I just have to learn tell people no and not feel guilty about it. 😀💕😀
I have a chronic pain syndrome, so I'm always dragging around. I definitely know how you feel! So glad you're sharing your story - the rest of us realize we're not alone.
I think you guys do great and I can see when Tawra is getting tired and I guess some folks just cant understand that there is no cure for CFS, it a little like, I do not look like it but I have a physical handicap you cant see it so I get some real looks when I park in the handicap section at the parking lot, just because you do not see it does not mean it is not there! God bless you wonderful ladies and please know there are many folks out here that not only appreciate you but that are blessed by your testimony.
In some ways depression does effect what I do. I love when you talked about having control in your life. I remember when my depression was so bad that in order to do the dishes I had to do them during the commercials so I understand when you talk about doing things during the commercials. One of the habits I have developed is to have RUclips playing while I am doing chores. I find that I am mostly concentrating on RUclips instead of the task that I am working on. I have also discovered that I make dinner in the morning because it is to stressful for me to do it in the afternoon just before dinner. I will then reheat everything in the microwave. I also remember going into the store and not being able to decide what color of post-it notes I wanted so I bought both packages. I am so grateful what you explained in this video. Thank you. Hugs to you all.
Thank you so much for sharing about Chronic Fatigue 💜 my husband suffers from it. You girls remind me to be more loving & understanding!! God bless you!! 🙌🏻🦋🙏🏻
My sister used to have the worst sores in her mouth. My parent's tried everything the doctor recommended and nothing worked. A pharmacist also told my parents about Lysine after weeks of pain, not eating and tears & my 8 year old sister after 3 days had nothing in her mouth. They were completely gone!
Jill & Tawra, your story has really touched my heart. Thank you so much for sharing. This segment really touches home with me. I have small fiber neuropathy which has similar symptoms to yours. SFN is a progressive disease of the small nerve fibers. Flairs can happen at any time & for an unknown length of time. So debilitating. The reason I am commenting is I thought I was the only one that would take 3 days to clean the bathroom, to do a little housework during each commercial, etc. I am embarrassed to tell my friends/family this because, like you said, they constantly wonder "why are you sick AGAIN, you look fine to me", "what's wrong with you this time", "why aren't you getting better". No one understands except the ones that are going thru it. Thank you so much for sharing. I look forward to your videos to come. Take care.
Lori Montana same here. The embarrassment and "harrassment" (is what it is really) causes more stress and more illness we don't need. Shame for being ill around the very people who should care. The same people who knew up pre illness and how busy we were. Yet choose to think we are now lazy and enjoy living on low incomes. Jill and Tawra are a rare tonic, aren't they!
Totally understand Lori because I have it too and my son has unbelievably bad. That was part of why I was wiggling in the chair so much because my feet and legs were starting to hurt bad
I have wondered if the cronic fatigue syndrom basically attacks women,like the majority of lupus sufferer are women? Want to thank Tawra specially for bravely pointing out that most of our choices are based on fair.only when you know the reason for your coices can you do something with it. Being an observant Jew, I still find great comfort and new strength with what you share with us of the spiri aspect of our suffering.
🙏🙏🙏 now I understand what is my illness . I Used to Spring clean my 2000 square feet top to bottom in 3 days, but now it takes a week just to clean my 500 square feet just hand broom it . I totally understand you guys , but yet again I believe the STRESS is the ROOT of all diseases. LOVE, HEALING, PRAYERS ,and PEACE 💝🤲💜☮
I don't have a disease like you two, but you have great advice on many levels. Your tips are also great for busy people, people who are sick short term, and many of the tips are great for average people! Excellent as always!!
Oh my gosh how you have helped me. I have had 2 seizures, and have to take a medication that makes me like what I call a zombie. I use to be so excited to get up and get started on doing things. Now I can barely get dressed because I am so tired. I loved "it is ok to be sick." That I do not have to have the house perfectly cleaned every day. I do not have TV only movies and TV CDs to watch. But I make cards and Junk Journals. It is the most relaxing thing for me. I do not have what you have. But you sure have helped me from watching some of the things you all do. Tonight I actually have dishes in the sink because I was too tired to empty the dishwasher. Most nights I already have it empty and loaded as I try and get supper together. We even ate on paper plates. The counters etc. are all clean just a dish pan full of dishes. I have a terrible time resting. On one good day I try to get it all done and then wipped out for 2 days. So am trying some of your suggestions. THANK YOU SO MUCH!
thanks Tawra and Jill for sharing your personal story about cfs. I am sure it will help some people who have this illness (and maybe, hopefully their family and friends to understand) I have been ill with this for 10 years and could have used your advice then.thanks
This is so helpful. Much needed to hear.i have 3 chronic illnesses. I cant tell you the amount of times people i know will ask are you better? Do you feel better? Or theyll say Boy! You sure are sick all the time you need to go to the dr.....this is so aggravating. I dont know any other way to spell it out that these are chronic conditions. And that there are good days and bad days and different levels of pain every day. I could go on and on.
Jill and Tawra, thank you for these videos. I was diagnosed with Fibromyalgia and CFS in 2008. Hearing your stories helps me feel less alone in this. My husband of 25 years left our marriage because he couldn't deal with it and I have family members who don't get it either. I am raising my teen daughters alone, working to support us, and not being able to get healthcare I can afford. So much of what you said is my story, too. Thanks again and may God bless you!
It amazes me how strong women with these medical issues are. My friend also has what you have and she is one of the hardest working women I know. You both keep trucking along, working thru the pain and stress . You amaze me.
My standard line for the "help us" is - thank you for thinking of me - No, I can't help. That is it - do NOT give more information or the persistent person will try and force you to change your mind. No means no. And for swimming words try colored acetate sheets. You may find that red/blue/or green sheets may help keep the words from swimming. I went into a stationary store with a typed sheet of words and was able to find that one of the three colors "tied" the words down for me. (didn't want to spend money only to find out that this didn't work). I was amazed that something so cheap worked . I carry a strip of acetate so I can easily read anything and if people ask I just say blue is my favorite color, it makes reading so enjoyable.
You are such an Enlightenment I do not have chronic fatigueness but I have rheumatoid severe and it really gave me permission to rest when I need to rest and to do just a little bit little by little bit by bit is my thing you are truly an inspiration God bless you both I could not wait to watch the next video thank you
Maria Conley I just listened to an man on a homestead video that cured his rheumatoid arthritis with one teaspoon morninga powder a day. I am going to try it for my fibromyalgia.
I have ALOT of health issues. Some of my family/friends don't understand it either. It's tough. I will pray for your whole family. ❤️🙏❤️I love your videos by the way!
Jill, Tawra, this was FANTASTIC!! While I do not have CFS, I am contending with other physical challenges that wipe me out!!! I think I will try some of these suggestions to better organize my home,for going places, and other areas of ordinary life. Tawra, I not only liked what you said about TV, but i haven't watched TV in over 100 days now!! As for clothing, I have a limited wardrobe. One black skirt, 2 black pants, 2 denim skirts, and mix them with various tops. I don't think anyone really notices or even cares. It works for me! I too stick to 3 basic meals everyday. This was great! And Tawra, you are an inspiration to me everyday! You live life fully and carry on while still dealing with CFS!!! I watch your show every time it comes on!!!!! I will "see" you later ----literally!!! Galina ♡♡♡♡♡
Hello 👋🏻 my lady’s I’m watching this 3 years later.... and I feel so much better by listening to you guys because I feel the same way because of my diabetes I think, but I just feel so overwhelmed when I have to go out just to think what I’m going to wear, or go grocery shopping ...I get them delivered because I can’t take it and this is way before the virus, because I started getting nauseous, getting cold sweats and sometimes I had to leave the store without my groceries. I can’t go to the malls because I get the same way. And I do the things in my house more or less the same way as you guys. I go and clean the shower and I rest 15 minutes and so on and go to the next thing. So I know how you guys feel and I still a 9-5 job I have 11 more months to retire and I can’t wait.
When you were talking about the visual confusion symptoms, I could only guess as to how stressful it probably is when stores do "resets or new mods" (changing location of products within departments or shelving). I don't have CFS and I get frustrated by too many choices. This series has been very helpful, as I now understand a little more of what a family friend has been through. Thanks for sharing your experiences with us. God bless and I hope you have a good week.
I've had severe depression when I was a teenager, my dad was sick and even after he passed away it would come and go. This was in 1976, and no one knew what depression was at the time. I wanted to quit school, that's how bad it was. So I understand some of what your mom is talking about. I did graduate in 1977, because my mom worked with the school and helped me to stay in school, I was able to go to school for one class for 10th grade. That would be unheard of today! I like that you talk about your Christian beliefs. You mentioned Dr. Charles Stanley, I've been watching him for years. He and Pastor John Hagee and a number of others. Love you, your family and your mom! God bless all of you!
You've absolutely explained my world of symptoms! To save exhaustion with getting dressed I wear one outfit for 3 days until I have my next shower, then I wear another outfit for 3 days. It's the only way I cope with what to wear without the exhaustion of choosing. For appointments I basically have only a few outfits that are rotated in my wardrobe to make it easier. I'm thankful that my brother & middle son understand as they also have CFS/ME, although it also saddens me that they do! 🥰 Blessings from South Australia💕🐨
Thanks so much for sharing this. I had forgotten about CFS, which is silly because I'm usually wiped out by 10am! I've suffered with this for many years also, since I was a young child. I'm going to try the Lysine to see if it will help me.
My daughter works at a health food store...im.going to have her pick up some Lysine for me tomorrow..I read it's good for acne too, I'm going to tell some teenage relatives about it. I also read it's one of the key component of collagen..probably why you look so youthful Jill.😊
It's L-lysine.... I take it ALL the time cause I have citrus issues. I have to take it often if I eat tomatoes, sauce, drink OJ, whenever I get too acidic. My friend took it for her Shingles also and she said it helped.
Love you guys! You are such a *reality* check!! Not saying that everyone's reality is the same as yours. I have decent health right now, but there are other things in my life that are not in my control. I just get up and do what I can and I get "it" done. I figure if you guys can accomplish so much in spite of all you have been and are going through, then I have NO excuse! :D
I also found I had to stop watching CNN and other news channels. I got sick two months before 9/11, and I didn't have the energy to watch the coverage and expend myself emotionally. It was only during the 10th anniversary of 9/11 I watched the videos of it. I no longer have cable tv, so I'm not up to date on all the disasters, shootings, and political upheaval. I just don't have the energy to expend on it. In many ways I feel bad that I'm not as up to date with the world's current events - but to me being here for my family is my #1 priority.
thanks for the information about lysine. I get cold blisters and so do other family members. I also get mouth ulcers, which I discovered is caused by peanuts and pineapples - which I love both. I haven't had any mouth ulcers though since I stopped eating both of those. Thanks for all your money saving advice too.
Thank you for kind remark. Like to add a piece of info. We have a product here in Israel ,called Anti-leg cramp. It is calcium+vitamin E. The calsium comes from the Dead Sea. You take 1-2 capsels when the pain from fibromyalgy is worse than usual. I know you can buy this in the US. Sure you can find it online. Annika Tetzner
Here's a tip for figuring out what to wear: Take a picture with you phone. The phone will date stamp the picture. Then next Sunday morning, you can look at the picture and don't wear the same thing you wore last Sunday or the Sunday before! Most of my stuff is mix-and-match, but a couple of skirts have only one shirt that matches them.
I don't worry about this. There are minimalists out there who have a uniform. How many people actually pay attention to whether you wear the same thing 2 weeks in a row. My attitude is that if other people are worried about whether I wear the same thing 2 Sundays in a row or look down their noses at me for that, I don't care. That is their sin. The sin of pride and arrogance. What about all those people in the world that don't have more than one or two outfits to wear anyway? In Mother Teresa's organization, each sister had only 2 saris - one to wear and one to wash. I often wear the same thing for many weeks in a row because that is all I have - no one says anything, and I don't care. What I care about is being clean and neat and presentable.
Please don't misunderstand - I am NOT condemning people for wearing multiple outfits to church. I just want to please encourage people not to look down on others who don't have as much or who just can't handle multiple outfits. There is simply no need to worry about it. I have a lot of problems finding multiple Sunday outfits in thrift stores that actually look good on me (because I am heavier), and shopping wears me out so badly that I can't do anything else the rest of the day, so when I find just one, I am so thrilled! I just don't worry if I only have one or two, and I don't think other Christians should look down on me if I am neat and clean.
If you have a Roku or something like that, search the Hallmark Movies Now channel. It is $35 (or was when I signed up for it in January) year and all the hallmark movies. I love it.
I do the five minutes too .. I agree don't watch things that pull you down ..turn the TV off ..phone a friend ..speak to them..social media can be shallow
Ido not have the problems you guys have but I can tell you that I can relate to the getting disoriented at Walmart but for me it is the fabric store. I have found that I can order things on line to get things like needles and thread there is just too much stuff in the store.
Should you take it everyday like a vitamin? And how much should we start taking? I have cronic fatigue all my life and doctors looked at me like I was crazy. So I gave up.
I take 1000mg in morning and 1000mg at night. Then if I feel a cold coming on I take 1000mg every 3-4 hrs during the day for 2-3 days. Don't worry you really can't take too much of it
I love 💕 your top, Jill! So pretty! Aldi-that is one good thing about there-no choices really. Also, good for gig apps because you don’t have all of these decisions. I can’t even decide what to cook 👩🍳 or order. I didn’t relate that to tiredness though-Indecision. I just thought that was my short attention span.
Thank you Jill for all your great advices built on personal exsperiences. I suffer from Systemic Lupus an autoimmun cronicle disease with no cure. SL is very similar to The Cronic Fatigue syndrom, with similar symptoms and problems. Following your videos has been helpful in so many ways with its down-to-earth approach to handle my dayly life in a better way. Blessings to you all from Jerusalem Annika Tetzner
Virginia Davis Im a Nurse practitioner of 18yrs..... please have ur daughter take EMERGEN-C (1000MG OF VITAMIN C) & ZiCAM ORAL SPRAY..... n its to be used IMMEDIATELY at first onset of ANY illness. With any illness, they sometimes make the cold sores pop up.
My CFS got better (it does with rest) and my Fibromyalgia got work (it's worse when you don't keep moving) because I was on bedrest for most of all my pregnancies.
Wow. I painted my osb subfloor. Lol needs repainting again now...hoping i can get it fixed b4 i repaint.lol a friend cleaning out her paints gave me a bunch of different colors so i have a modgepodge of colors on my floor ..tans greens creams. Dont care cause it protects it for now. Hate green but my floor is protected. Tv shows are perspective. I cant think of any csi or criminal minds etc. that depresses me. Looking at my own home depresses me at times and if too much i will leave and go do something or somewhere if i can(no gas no go. Dont have cfs but fatigue in PV issues).
Isn't it funny how people always want us to volunteer, and when we don't they try to make us feel guilty? Despite my pain problems, our church was always volunteering me to teachSunday school, run the nursery, bake sales, craft sales, renovating the church, etc... When I finally said 'no' everyone was so angry with me. People just don't understand what a chronic pain condition is like. They assume you're faking it, just depressed, etc... I finally had to give up going to that church - it was too stressful
I went through this too in part. People do not understand even being permanently disabled. It just takes them time. Slowly I lost all healthy friends. My children stood with me many many years but now I rarely leave my home so they have had to go on with life without me. They do help with shopping or taking me somewhere if I am not up to driving. They now have their own families.
I do not have CFS, I have had 2 strokes (the 2nd one was the worst) and I am 2nd stage C.O.P.D . A lot of what you explained about how you feel... I have the same symptoms, like memory loss, decision making, can't stand crowds, feeling over whelmed about everything, like you are going to shut down. You have given me some really good advice on how to cope with what I go through especially the extreme fatigue.. Dr.'s look at you like you are nuts when I explain the same symptoms over and over. I also have a lot of pain and weakness in my muscles, which could be the side effects of medication I have to take. Thank you, you both have been a blessing!
Do I come off negative when I say that those tips work for many? Do a little and be happy. I think it is good to say no. Dont feel bad. I was better when I stopped dealing with people that treat me bad! "Family" and "friends". Bu bye. There isn't a magic bullet. STOP comparing yourself to people on social media. A lady who thought her friend had it all together ask hered to come make cookies. After she did all the labor, the friend had the nanny bring out her kid, clean, groomed, dressed in expensive clothes, to share the cookies, in the background of a pricey kitchen to show their "mother/daughter cookie time". How hard it is when you've a nanny, housekeeper to clean, and the friend made the cookies? I'd sure love my DIY to be done on a weekend with a crew of professionals.
Here in Israel Cronic Fatigue Syndrom is counted as a autoimmune disease together withSystemic Lupus ,MS and a couple of others OPS brainfog.....they all have several symptoms and triggers. The most common trigger is stress for all autoimmune diseases. Another thing they all have in common is the uncertainess of the cause. My dr says he think autoimmune diseases often are genetic,but doesnt have to break out for a generation or two. But as you have it in your DNA, extreme emotional or psychical events will activate the dorment gen. In my case it is appearently the liberation from Auschwitz which triggered the Lupus. Besides the many physical problems there are the nevrological onex too. For me one of the real difficulties is the brain fog I am a writer after all...
The reason I am writing is that the doctors here treat autoimmune diseases especially lupus and cronic fatigue syndrome with Plaquenil an anti malaria drug which accidently it was discovered it works very well in patients like us. So if the patient reacts positively Plaquenil can be used for a long time instead of steroids which I am grateful I dont have to take. Maybe you should discuss this with your doctor?
Stress is a killer. Doing a lot of work saves money, but a married woman shouldn’t have to bear the financial responsibility alone. Her pay shouldn’t be counted on. I believe a man should protect vs wanting to be a spoiled boy with toys based on 2 incomes where neither is 100% responsible. If they don’t want the responsibility, women should do it alone but then don’t share it with them. It’s an honor to be responsible and a good trait to be brave. Makes you well off. I just cut off 5 years of a new home loan with extra principle payments. For all I have done I of course would expect more from a man because they used to be raised to provide. I prefer intelligence because it’s less work in understandings and goals. Even so, if they were raised wrong...to wait for a woman to pay half, their intelligence is negated and limiting.
I have very much appreciated and enjoyed Jill's inspiring story. Will there be a part 24? I'm just curious what she did for a living after the 8000 dollars ran out. Thanks to all three of you for the videos.
I am on no special diet at all. For years tried many different vitamins and diets and none made any difference so I eat just basic regular well balanced food.
Have u guys been teated for lyme disease? The only reliable testing is through Igenix. It's $600ish but so worth it if you have been diagnosed with CFS/ME or Fibromyalgia.
We have even more tips on our site. www.livingonadime.com/cfs-fibromyalgia-chronic-illness-tips/
TV is horrible. I always feel like my house is a dump when I watch HGTV. In actuality, I'm blessed to have a comfortable, paid for home. I'm grateful for the things the Lord has blessed me with, and watching shows just causes feelings of jealousy and resentment that I don't have nicer things.
I like a lot of the older shows like I love Lucy and Andy Griffith. It helps to watch good shows like that that are not depressing❤️
Thank you Ladies, makes me feel better about how I get through the day.. I don't have CFS, but MS. I just have to learn tell people no and not feel guilty about it. 😀💕😀
I have a chronic pain syndrome, so I'm always dragging around. I definitely know how you feel! So glad you're sharing your story - the rest of us realize we're not alone.
I think you guys do great and I can see when Tawra is getting tired and I guess some folks just cant understand that there is no cure for CFS, it a little like, I do not look like it but I have a physical handicap you cant see it so I get some real looks when I park in the handicap section at the parking lot, just because you do not see it does not mean it is not there! God bless you wonderful ladies and please know there are many folks out here that not only appreciate you but that are blessed by your testimony.
In some ways depression does effect what I do. I love when you talked about having control in your life. I remember when my depression was so bad that in order to do the dishes I had to do them during the commercials so I understand when you talk about doing things during the commercials. One of the habits I have developed is to have RUclips playing while I am doing chores. I find that I am mostly concentrating on RUclips instead of the task that I am working on. I have also discovered that I make dinner in the morning because it is to stressful for me to do it in the afternoon just before dinner. I will then reheat everything in the microwave. I also remember going into the store and not being able to decide what color of post-it notes I wanted so I bought both packages. I am so grateful what you explained in this video. Thank you. Hugs to you all.
Thank you so much for sharing about Chronic Fatigue 💜 my husband suffers from it. You girls remind me to be more loving & understanding!! God bless you!! 🙌🏻🦋🙏🏻
My sister used to have the worst sores in her mouth. My parent's tried everything the doctor recommended and nothing worked. A pharmacist also told my parents about Lysine after weeks of pain, not eating and tears & my 8 year old sister after 3 days had nothing in her mouth. They were completely gone!
I did the same "5 minute" little bursts, when I was having chemo. It was all I could do, and you're right, it really did work.
Your story is so amazing. God gave you miracle after miracle. Thank you for sharing.
Jill & Tawra, your story has really touched my heart. Thank you so much for sharing. This segment really touches home with me. I have small fiber neuropathy which has similar symptoms to yours. SFN is a progressive disease of the small nerve fibers. Flairs can happen at any time & for an unknown length of time. So debilitating. The reason I am commenting is I thought I was the only one that would take 3 days to clean the bathroom, to do a little housework during each commercial, etc. I am embarrassed to tell my friends/family this because, like you said, they constantly wonder "why are you sick AGAIN, you look fine to me", "what's wrong with you this time", "why aren't you getting better". No one understands except the ones that are going thru it. Thank you so much for sharing. I look forward to your videos to come. Take care.
Lori Montana same here. The embarrassment and "harrassment" (is what it is really) causes more stress and more illness we don't need. Shame for being ill around the very people who should care. The same people who knew up pre illness and how busy we were. Yet choose to think we are now lazy and enjoy living on low incomes. Jill and Tawra are a rare tonic, aren't they!
Totally understand Lori because I have it too and my son has unbelievably bad. That was part of why I was wiggling in the chair so much because my feet and legs were starting to hurt bad
I have wondered if the cronic fatigue syndrom basically attacks women,like the majority of lupus sufferer are women?
Want to thank Tawra specially for bravely pointing out that most of our choices are based on fair.only when you know the reason for your coices can you do something with it. Being an observant Jew, I still find great comfort and new strength with what you share with us of the spiri
aspect of our suffering.
🙏🙏🙏 now I understand what is my illness .
I Used to Spring clean my 2000 square feet top to bottom in 3 days, but now it takes a week just to clean my 500 square feet just hand broom it .
I totally understand you guys , but yet again I believe the STRESS is the ROOT of all diseases.
LOVE, HEALING, PRAYERS ,and PEACE 💝🤲💜☮
I do in home care this helps me to understand my clients much more. Also helps me to educate other caregivers. Thank you.
althea Janke You have such an important job.
I'm so sorry you have had to deal with this illness for so long.im having bone issues that limit me and it's so hard. God bless You!
Every thing you are saying is what I have been going threw for 45 years.
I don't have a disease like you two, but you have great advice on many levels. Your tips are also great for busy people, people who are sick short term, and many of the tips are great for average people! Excellent as always!!
Oh my gosh how you have helped me. I have had 2 seizures, and have to take a medication that makes me like what I call a zombie. I use to be so excited to get up and get started on doing things. Now I can barely get dressed because I am so tired. I loved "it is ok to be sick." That I do not have to have the house perfectly cleaned every day. I do not have TV only movies and TV CDs to watch. But I make cards and Junk Journals. It is the most relaxing thing for me. I do not have what you have. But you sure have helped me from watching some of the things you all do. Tonight I actually have dishes in the sink because I was too tired to empty the dishwasher. Most nights I already have it empty and loaded as I try and get supper together. We even ate on paper plates. The counters etc. are all clean just a dish pan full of dishes. I have a terrible time resting. On one good day I try to get it all done and then wipped out for 2 days. So am trying some of your suggestions. THANK YOU SO MUCH!
So helpful!! I feel the same way about getting ready for church.. overwhelming!! Great tip to break chores up too!
thanks Tawra and Jill for sharing your personal story about cfs. I am sure it will help some people who have this illness (and maybe, hopefully their family and friends to understand) I have been ill with this for 10 years and could have used your advice then.thanks
This is so helpful. Much needed to hear.i have 3 chronic illnesses. I cant tell you the amount of times people i know will ask are you better? Do you feel better? Or theyll say Boy! You sure are sick all the time you need to go to the dr.....this is so aggravating. I dont know any other way to spell it out that these are chronic conditions. And that there are good days and bad days and different levels of pain every day. I could go on and on.
Excellent show. I got a lot of good tips to control my fatigue.Thank You Very much.
Jill and Tawra, thank you for these videos. I was diagnosed with Fibromyalgia and CFS in 2008. Hearing your stories helps me feel less alone in this. My husband of 25 years left our marriage because he couldn't deal with it and I have family members who don't get it either. I am raising my teen daughters alone, working to support us, and not being able to get healthcare I can afford. So much of what you said is my story, too. Thanks again and may God bless you!
It amazes me how strong women with these medical issues are. My friend also has what you have and she is one of the hardest working women I know. You both keep trucking along, working thru the pain and stress . You amaze me.
Lori E. God bless you!
Thank you Lyn and Angela! The Lord has given me strength to overcome! May God bless you and all of the Living on a Dime community!
Lori E. God bless you with many blessings I pray.
Linda Moses thank you so much! I feel very blessed by your prayers!
My standard line for the "help us" is - thank you for thinking of me - No, I can't help. That is it - do NOT give more information or the persistent person will try and force you to change your mind. No means no. And for swimming words try colored acetate sheets. You may find that red/blue/or green sheets may help keep the words from swimming. I went into a stationary store with a typed sheet of words and was able to find that one of the three colors "tied" the words down for me. (didn't want to spend money only to find out that this didn't work). I was amazed that something so cheap worked . I carry a strip of acetate so I can easily read anything and if people ask I just say blue is my favorite color, it makes reading so enjoyable.
Lyn Hanna I learned about the colored acetate years ago in an educational psychology class for dyslexia. It changes lives literally.
I know I keep saying this, but y'all are truly God sent!!! Thank you soooo much!!!
Thanks for sharing, this is awesome.. God Bless
Thank you for the correct spelling. Thank you very much!!!!
You are such an Enlightenment I do not have chronic fatigueness but I have rheumatoid severe and it really gave me permission to rest when I need to rest and to do just a little bit little by little bit by bit is my thing you are truly an inspiration God bless you both I could not wait to watch the next video thank you
Maria Conley I just listened to an man on a homestead video that cured his rheumatoid arthritis with one teaspoon morninga powder a day. I am going to try it for my fibromyalgia.
I have ALOT of health issues. Some of my family/friends don't understand it either. It's tough. I will pray for your whole family. ❤️🙏❤️I love your videos by the way!
Tawra it looks like you aren't feeling well today. Rest up. I hope you feel better!❤
Jill, Tawra, this was FANTASTIC!! While I do not have CFS, I am contending with other physical challenges that wipe me out!!! I think I will try some of these suggestions to better organize my home,for going places, and other areas of ordinary life. Tawra, I not only liked what you said about TV, but i haven't watched TV in over 100 days now!! As for clothing, I have a limited wardrobe. One black skirt, 2 black pants, 2 denim skirts, and mix them with various tops. I don't think anyone really notices or even cares. It works for me! I too stick to 3 basic meals everyday. This was great! And Tawra, you are an inspiration to me everyday! You live life fully and carry on while still dealing with CFS!!! I watch your show every time it comes on!!!!! I will "see" you later ----literally!!! Galina ♡♡♡♡♡
Hello 👋🏻 my lady’s I’m watching this 3 years later.... and I feel so much better by listening to you guys because I feel the same way because of my diabetes I think, but I just feel so overwhelmed when I have to go out just to think what I’m going to wear, or go grocery shopping ...I get them delivered because I can’t take it and this is way before the virus, because I started getting nauseous, getting cold sweats and sometimes I had to leave the store without my groceries. I can’t go to the malls because I get the same way. And I do the things in my house more or less the same way as you guys. I go and clean the shower and I rest 15 minutes and so on and go to the next thing. So I know how you guys feel and I still a 9-5 job I have 11 more months to retire and I can’t wait.
When you were talking about the visual confusion symptoms, I could only guess as to how stressful it probably is when stores do "resets or new mods" (changing location of products within departments or shelving). I don't have CFS and I get frustrated by too many choices. This series has been very helpful, as I now understand a little more of what a family friend has been through. Thanks for sharing your experiences with us. God bless and I hope you have a good week.
I've had severe depression when I was a teenager, my dad was sick and even after he passed away it would come and go. This was in 1976, and no one knew what depression was at the time. I wanted to quit school, that's how bad it was. So I understand some of what your mom is talking about. I did graduate in 1977, because my mom worked with the school and helped me to stay in school, I was able to go to school for one class for 10th grade. That would be unheard of today! I like that you talk about your Christian beliefs. You mentioned Dr. Charles Stanley, I've been watching him for years. He and Pastor John Hagee and a number of others. Love you, your family and your mom! God bless all of you!
You've absolutely explained my world of symptoms! To save exhaustion with getting dressed I wear one outfit for 3 days until I have my next shower, then I wear another outfit for 3 days. It's the only way I cope with what to wear without the exhaustion of choosing. For appointments I basically have only a few outfits that are rotated in my wardrobe to make it easier. I'm thankful that my brother & middle son understand as they also have CFS/ME, although it also saddens me that they do! 🥰 Blessings from South Australia💕🐨
Thanks so much for sharing this. I had forgotten about CFS, which is silly because I'm usually wiped out by 10am! I've suffered with this for many years also, since I was a young child. I'm going to try the Lysine to see if it will help me.
My daughter works at a health food store...im.going to have her pick up some Lysine for me tomorrow..I read it's good for acne too, I'm going to tell some teenage relatives about it.
I also read it's one of the key component of collagen..probably why you look so youthful Jill.😊
Esther S Take it with high dose rosehip or amla fruit extract for high vitamin c, which also makes collagen.
It's L-lysine.... I take it ALL the time cause I have citrus issues. I have to take it often if I eat tomatoes, sauce, drink OJ, whenever I get too acidic. My friend took it for her Shingles also and she said it helped.
Anything viral related it helps so that makes sense bumble bee
Love you guys! You are such a *reality* check!! Not saying that everyone's reality is the same as yours. I have decent health right now, but there are other things in my life that are not in my control. I just get up and do what I can and I get "it" done. I figure if you guys can accomplish so much in spite of all you have been and are going through, then I have NO excuse! :D
Wow! So many things I thought were just me - it isn’t!! Thank you for sharing!!
I also found I had to stop watching CNN and other news channels. I got sick two months before 9/11, and I didn't have the energy to watch the coverage and expend myself emotionally. It was only during the 10th anniversary of 9/11 I watched the videos of it. I no longer have cable tv, so I'm not up to date on all the disasters, shootings, and political upheaval. I just don't have the energy to expend on it. In many ways I feel bad that I'm not as up to date with the world's current events - but to me being here for my family is my #1 priority.
You have chosen the important uplifting thing...family.
L-Lysine is an awesome mineral! I use the powder form in my shakes every day. I tell every one about this great product!
I have gingivitis and gum issues. I find that if I take lysine it helps a lot. So now I am taking it every day and I see a big improvement.
thanks for the information about lysine. I get cold blisters and so do other family members. I also get mouth ulcers, which I discovered is caused by peanuts and pineapples - which I love both. I haven't had any mouth ulcers though since I stopped eating both of those. Thanks for all your money saving advice too.
Setting limits are hard, but necessary....
Thank you for kind remark. Like to add a piece of info. We have a product here in Israel ,called Anti-leg cramp. It is calcium+vitamin E. The calsium comes from the Dead Sea. You take 1-2 capsels when the pain from fibromyalgy is worse than usual. I know you can buy this in the US. Sure you can find it online.
Annika Tetzner
annika tetzner I will try this.
Great advice. Thanks for the video, We are living in a fantasy world. Yes, people will make lobe making you accountable to them. Selfish.
Here's a tip for figuring out what to wear: Take a picture with you phone. The phone will date stamp the picture. Then next Sunday morning, you can look at the picture and don't wear the same thing you wore last Sunday or the Sunday before! Most of my stuff is mix-and-match, but a couple of skirts have only one shirt that matches them.
I don't worry about this. There are minimalists out there who have a uniform. How many people actually pay attention to whether you wear the same thing 2 weeks in a row. My attitude is that if other people are worried about whether I wear the same thing 2 Sundays in a row or look down their noses at me for that, I don't care. That is their sin. The sin of pride and arrogance. What about all those people in the world that don't have more than one or two outfits to wear anyway? In Mother Teresa's organization, each sister had only 2 saris - one to wear and one to wash.
I often wear the same thing for many weeks in a row because that is all I have - no one says anything, and I don't care. What I care about is being clean and neat and presentable.
Please don't misunderstand - I am NOT condemning people for wearing multiple outfits to church. I just want to please encourage people not to look down on others who don't have as much or who just can't handle multiple outfits. There is simply no need to worry about it. I have a lot of problems finding multiple Sunday outfits in thrift stores that actually look good on me (because I am heavier), and shopping wears me out so badly that I can't do anything else the rest of the day, so when I find just one, I am so thrilled! I just don't worry if I only have one or two, and I don't think other Christians should look down on me if I am neat and clean.
Thank you. This show helped me so much.
If you have a Roku or something like that, search the Hallmark Movies Now channel. It is $35 (or was when I signed up for it in January) year and all the hallmark movies. I love it.
Do you by any chance still have a copy of that brochure that was helpful?
What an amazing family❤️!
I do the five minutes too .. I agree don't watch things that pull you down ..turn the TV off ..phone a friend ..speak to them..social media can be shallow
Ido not have the problems you guys have but I can tell you that I can relate to the getting disoriented at Walmart but for me it is the fabric store. I have found that I can order things on line to get things like needles and thread there is just too much stuff in the store.
i love that smiley face cup jill
The explanation I give people is : "I don't want to talk about it".
Do you have a link for information on using the Sparks Naturals EOs?
Should you take it everyday like a vitamin? And how much should we start taking? I have cronic fatigue all my life and doctors looked at me like I was crazy. So I gave up.
You can just google the dosage or take it off the bottle.
I take 1000mg in morning and 1000mg at night. Then if I feel a cold coming on I take 1000mg every 3-4 hrs during the day for 2-3 days. Don't worry you really can't take too much of it
Routine, routine, routine. I love routines.
I know the lysine works. I get them when my stomach acid flares up
💡 moment! The hot showers!!! That's why I feel the need for a nap and weak after one! Omw!
I love 💕 your top, Jill! So pretty! Aldi-that is one good thing about there-no choices really. Also, good for gig apps because you don’t have all of these decisions. I can’t even decide what to cook 👩🍳 or order. I didn’t relate that to tiredness though-Indecision. I just thought that was my short attention span.
I can relate...
Thank you Jill for all your great advices built on personal exsperiences. I suffer from Systemic Lupus an autoimmun cronicle disease with no cure. SL is very similar to The Cronic Fatigue syndrom, with similar symptoms and problems. Following your videos has been helpful in so many ways with its down-to-earth approach to handle my dayly life in a better way.
Blessings to you all from Jerusalem
Annika Tetzner
Thank you, appreciate this video. :-)
Jill, does it make a difference what brand of the lysine I should buy?
Please spell limozine on next show so i can get it for my daughter. She has cold sores that wont go away either.
Virginia Davis lysine
Virginia Davis yes, Lysine. You can also buy lysine lip balm. Or make a paste out of the tablet and apply.
Virginia Davis Im a Nurse practitioner of 18yrs..... please have ur daughter take EMERGEN-C (1000MG OF VITAMIN C) & ZiCAM ORAL SPRAY..... n its to be used IMMEDIATELY at first onset of ANY illness. With any illness, they sometimes make the cold sores pop up.
How did you handle all your pregnancies Tawra? Did your symptoms get worse?
My CFS got better (it does with rest) and my Fibromyalgia got work (it's worse when you don't keep moving) because I was on bedrest for most of all my pregnancies.
Wow. I painted my osb subfloor. Lol needs repainting again now...hoping i can get it fixed b4 i repaint.lol a friend cleaning out her paints gave me a bunch of different colors so i have a modgepodge of colors on my floor ..tans greens creams. Dont care cause it protects it for now. Hate green but my floor is protected. Tv shows are perspective. I cant think of any csi or criminal minds etc. that depresses me. Looking at my own home depresses me at times and if too much i will leave and go do something or somewhere if i can(no gas no go. Dont have cfs but fatigue in PV issues).
There are some studies now on the use of Lysine as a preventative from COVID.
Povidine iodine also is great for covid
Isn't it funny how people always want us to volunteer, and when we don't they try to make us feel guilty? Despite my pain problems, our church was always volunteering me to teachSunday school, run the nursery, bake sales, craft sales, renovating the church, etc... When I finally said 'no' everyone was so angry with me. People just don't understand what a chronic pain condition is like. They assume you're faking it, just depressed, etc... I finally had to give up going to that church - it was too stressful
I went through this too in part. People do not understand even being permanently disabled. It just takes them time. Slowly I lost all healthy friends. My children stood with me many many years but now I rarely leave my home so they have had to go on with life without me. They do help with shopping or taking me somewhere if I am not up to driving. They now have their own families.
lysine works for cats and dogs too :)
I do not have CFS, I have had 2 strokes (the 2nd one was the worst) and I am 2nd stage C.O.P.D . A lot of what you explained about how you feel... I have the same symptoms, like memory loss, decision making, can't stand crowds, feeling over whelmed about everything, like you are going to shut down. You have given me some really good advice on how to cope with what I go through especially the extreme fatigue.. Dr.'s look at you like you are nuts when I explain the same symptoms over and over. I also have a lot of pain and weakness in my muscles, which could be the side effects of medication I have to take. Thank you, you both have been a blessing!
Julia Snider look up Dr Eric Berg on youtube. I think you'll find him interesting.
How could one find more information about lizean? or how to spell it?
EchoesOfAnAngel Lysine
Mom Of4 thanks for the spelling!
awwwwww good to know you have each other x I always get told your always ill !! no I'm not its the same thing lol x
Do I come off negative when I say that those tips work for many? Do a little and be happy. I think it is good to say no. Dont feel bad. I was better when I stopped dealing with people that treat me bad! "Family" and "friends". Bu bye.
There isn't a magic bullet. STOP comparing yourself to people on social media. A lady who thought her friend had it all together ask hered to come make cookies. After she did all the labor, the friend had the nanny bring out her kid, clean, groomed, dressed in expensive clothes, to share the cookies, in the background of a pricey kitchen to show their "mother/daughter cookie time". How hard it is when you've a nanny, housekeeper to clean, and the friend made the cookies? I'd sure love my DIY to be done on a weekend with a crew of professionals.
i have cfs and fibro. its awful isnt it?
Here in Israel Cronic Fatigue Syndrom is counted as a autoimmune disease together withSystemic Lupus ,MS and a couple of others OPS brainfog.....they all have several symptoms and triggers. The most common trigger is stress for all autoimmune diseases. Another thing they all have in common is the uncertainess of the cause. My dr says he think autoimmune diseases often are genetic,but doesnt have to break out for a generation or two. But as you have it in your DNA, extreme emotional or psychical events will activate the dorment gen. In my case it is appearently the liberation from Auschwitz which triggered the Lupus.
Besides the many physical problems there are the nevrological onex too. For me one of the real difficulties is the brain fog I am a writer after all...
The reason I am writing is that the doctors here treat autoimmune diseases especially lupus and cronic fatigue syndrome with Plaquenil an anti malaria drug which accidently it was discovered it works very well in patients like us. So if the patient reacts positively Plaquenil can be used for a long time instead of steroids which I am grateful I dont have to take.
Maybe you should discuss this with your doctor?
Thanks! I haven't heard of trying the Plaquenil. I will check it out!
Plaquenil = Hydroxy chloroquine sulfate 200mg
Stress is a killer. Doing a lot of work saves money, but a married woman shouldn’t have to bear the financial responsibility alone. Her pay shouldn’t be counted on. I believe a man should protect vs wanting to be a spoiled boy with toys based on 2 incomes where neither is 100% responsible. If they don’t want the responsibility, women should do it alone but then don’t share it with them. It’s an honor to be responsible and a good trait to be brave. Makes you well off. I just cut off 5 years of a new home loan with extra principle payments. For all I have done I of course would expect more from a man because they used to be raised to provide. I prefer intelligence because it’s less work in understandings and goals. Even so, if they were raised wrong...to wait for a woman to pay half, their intelligence is negated and limiting.
I have very much appreciated and enjoyed Jill's inspiring story. Will there be a part 24? I'm just curious what she did for a living after the 8000 dollars ran out. Thanks to all three of you for the videos.
yes it will be done in several weeks.
Great thank you
I stopped watching HGTV for that very reason. I see no reason to replace something that is the “wrong” color or style.
Echoes of an Angel and Virginia, this is the spelling of Lysine.
What's the diet?
I am on no special diet at all. For years tried many different vitamins and diets and none made any difference so I eat just basic regular well balanced food.
Have u guys been teated for lyme disease? The only reliable testing is through Igenix. It's $600ish but so worth it if you have been diagnosed with CFS/ME or Fibromyalgia.
Yes, we do not have lyme.