I'm on the verge of getting a diagnosis after suffering intermittent bouts of if since 2016 after strep. I'm quite scared but am hopeful that I can get through this. Thanks for sharing your story, these positive anecdotes really help.
Sorry to hear that Wolfgang, I know this is not an easy situation to face. I hope you find what you need to put this behind you soon and the support to keep you managing well until then ✨
Such an insightful interview. I love Mel's frankness and laughed multiple times throughout. I had a similar onset to Mel with pushing myself through a virus + water damaged home and had similar learned-the-hard way epiphanies. Her self-reflections are really powerful, and I love her top takeaways especially around small goals and what she said about validation. Your discussion about waiting for joy also really resonates. PS. I absolutely love Mel's motorized bike scooter - amazing (and looks super cool)! Mel, you've got this!! Sending my support and healing vibes. 🦋
Mel had me laughing too! Even while I was editing and hearing her comments for the third or fourth time 😂 Glad you enjoyed this, Liz, and thanks for sharing ✨
I was improving until three weeks ago. Had migraines every week. Lost a lot of muscle mass. Tingling in my limbs. Muscle weakness . Muscle . Crashed hard. Feel like I’m starting over again. New doctor running tests for MS etc. It’s strange to want something life threatening. I pray every day. Take me or heal me.
I'm so sorry to hear this, that sounds devastating. And I empathize - I wanted any diagnosis (no matter how grave) that could give me some clarity and potential treatment plans. I hope you are managing ok and hang in there! I have to believe that you too will find what you need to improve soon 🌷
Mobility scooters = freedom! I think those of us who use them and are young should make them cool and promote using what is available to us to live our lives as fully as possible. Your bike thing looks amazing! I really hate it that people feel ashamed to use mobility aids. I'm bedbound a lot of the time but last year I managed to go to Disneyland Paris with the kids for 5 days and be normal because of the scooter! I even managed to carry 2 sleeping children back to the hotel on it
Jenna 100000% I agree with you! We need to not only normalize these things that give us freedom but make them cool 😎 It's ridiculous really. An electric scooter is cool, but a scooter meant for mobility somehow isn't? What's the difference?! I'm so glad you have this aid that gives you freedom and allows you to do so many amazing things. And I'm with yah on the cleaning too! It's a REALLY hard one for me to be at peace with as well. Thanks so much for sharing and I LOVE your awesome energy on these topics! 🙌✨👏⭐️
I enjoyed this video. I have to mention that Mel's beginning is so similar to mine. And it isn't a huge help, but can give a person another route of treatment to look into. I found an awesome doctor who knew to check for a genetic mutation that can lead to CFS/ME. 25% or more of the population has this HLA-DR genetic issue that makes their body not able to recognize mold & mycotoxins as bad so instead of getting rid of them, they are stored in fat cells & brain. It causes issues with immune, endocrine, & central nervous system. It is possible the garage apartment had water damage & if Mel has this genetic problem she could take binders and focus on supplements that could help with the mycotoxins. I also noticed great help from acupuncture & started out with flu-like including dizziness.
@@crescentmoon1861 thanks. Yes here are some of the sites I've found most helpful. The first one is actually run by a nurse who can suggest tests through Life Extensions site which can help determine which binders may be best for the individual. My doctor had me on prescription Cholestyramine powder for first year then switched me to OTC activated charcoal capsules & liposomal glutathione acceleratenaturalhealth.com/ www.jillcarnahan.com/2015/02/08/toxic-mold-exposure-cause-symptoms/ Moldy documentary by Dave Asprey blog.daveasprey.com/moldy-movie-coming-soon/
@@crescentmoon1861 I had high levels of mold, and found the sauna to make me feel the best (not medical advice, just my personal experience) starting slow and increasing the time. Our bodies can actually sweat it out. The Cholestyramine can bind to anything in the GI tract, including other nutrients. I ended up taking about half my 3 month prescription if I can remember. I also took glutathione, and was actually taking it before I realized I had mold. PS. I didn't do a genetic test. Knowing I had a gene risk wouldn't have changed the course of action for me personally (getting out of water damaged home, sweating it out - which I did - my numbers went all the way back down after several months). For me, I also did a neuroplasticity program, which helped heal my fight-or-flight response so I wouldn't have a stress response to normal amounts of mold. This was a lot of work, but worth it so I could fully function in society again. None of this was meant to be prescriptive, just sharing what worked for me! Sending you healing vibes.
Hi,I wish ur videos were shorter cause I really like to watch them but they tire my eyes most of them are over 20min long n it's hard for a cfs patient to watch thanks
This helped me a great deal.
Your positive attitude had me smiling and do not underestimate the positive effect it has on others.
Thank you
I'm on the verge of getting a diagnosis after suffering intermittent bouts of if since 2016 after strep. I'm quite scared but am hopeful that I can get through this. Thanks for sharing your story, these positive anecdotes really help.
Sorry to hear that Wolfgang, I know this is not an easy situation to face. I hope you find what you need to put this behind you soon and the support to keep you managing well until then ✨
Such an insightful interview. I love Mel's frankness and laughed multiple times throughout. I had a similar onset to Mel with pushing myself through a virus + water damaged home and had similar learned-the-hard way epiphanies. Her self-reflections are really powerful, and I love her top takeaways especially around small goals and what she said about validation. Your discussion about waiting for joy also really resonates. PS. I absolutely love Mel's motorized bike scooter - amazing (and looks super cool)! Mel, you've got this!! Sending my support and healing vibes. 🦋
Mel had me laughing too! Even while I was editing and hearing her comments for the third or fourth time 😂 Glad you enjoyed this, Liz, and thanks for sharing ✨
I was improving until three weeks ago. Had migraines every week. Lost a lot of muscle mass. Tingling in my limbs. Muscle weakness . Muscle . Crashed hard. Feel like I’m starting over again. New doctor running tests for MS etc. It’s strange to want something life threatening. I pray every day. Take me or heal me.
I'm so sorry to hear this, that sounds devastating. And I empathize - I wanted any diagnosis (no matter how grave) that could give me some clarity and potential treatment plans. I hope you are managing ok and hang in there! I have to believe that you too will find what you need to improve soon 🌷
So helpful! Thank you Mel :)
Glad it was helpful!
Wow Raelan, you look amazing lifting those weights and catching the waves!
Aw thanks so much, Cindy!
Thank you 😊 🙏 for these interviews. They are so helpful. They help me to feel like I am not alone. ❤️
So glad, Sheila!
Thank you so much! ❤
I resonate with so much in this interview. Thank you both so much for sharing your stories.
Thanks for listening, Antonia!
Yet we all manage to smile!!! Horrible feeling. Glad you’re feeling better! 💜
It's amazing, isn't it Irene? We go through hell but can find a way to smile and share our stories. Mel is especially skilled at this!
Raelan Agle yes I can relate!!! I’m doing so much better just by doing what I want when I want! 💖
Mobility scooters = freedom! I think those of us who use them and are young should make them cool and promote using what is available to us to live our lives as fully as possible. Your bike thing looks amazing! I really hate it that people feel ashamed to use mobility aids. I'm bedbound a lot of the time but last year I managed to go to Disneyland Paris with the kids for 5 days and be normal because of the scooter! I even managed to carry 2 sleeping children back to the hotel on it
Jenna 100000% I agree with you! We need to not only normalize these things that give us freedom but make them cool 😎 It's ridiculous really. An electric scooter is cool, but a scooter meant for mobility somehow isn't? What's the difference?! I'm so glad you have this aid that gives you freedom and allows you to do so many amazing things. And I'm with yah on the cleaning too! It's a REALLY hard one for me to be at peace with as well. Thanks so much for sharing and I LOVE your awesome energy on these topics! 🙌✨👏⭐️
Within the first minute of the video I totally related to Mel ❤️ great video
Aw Katy I'm so glad you enjoyed this! 💗💗💗
Great interview thank you so much Mel and Raelan 💜
Glad you enjoyed it, Janie!! ✨
I enjoyed this video. I have to mention that Mel's beginning is so similar to mine. And it isn't a huge help, but can give a person another route of treatment to look into. I found an awesome doctor who knew to check for a genetic mutation that can lead to CFS/ME. 25% or more of the population has this HLA-DR genetic issue that makes their body not able to recognize mold & mycotoxins as bad so instead of getting rid of them, they are stored in fat cells & brain. It causes issues with immune, endocrine, & central nervous system. It is possible the garage apartment had water damage & if Mel has this genetic problem she could take binders and focus on supplements that could help with the mycotoxins. I also noticed great help from acupuncture & started out with flu-like including dizziness.
This is so interesting to hear, Eydie, thanks for sharing 🙏
Eydie, can you elaborate on which binders and supplements that might help with this? Any website you'd recommend? Thanks!
@@crescentmoon1861 thanks. Yes here are some of the sites I've found most helpful. The first one is actually run by a nurse who can suggest tests through Life Extensions site which can help determine which binders may be best for the individual. My doctor had me on prescription Cholestyramine powder for first year then switched me to OTC activated charcoal capsules & liposomal glutathione
acceleratenaturalhealth.com/
www.jillcarnahan.com/2015/02/08/toxic-mold-exposure-cause-symptoms/
Moldy documentary by Dave Asprey
blog.daveasprey.com/moldy-movie-coming-soon/
@@crescentmoon1861 I had high levels of mold, and found the sauna to make me feel the best (not medical advice, just my personal experience) starting slow and increasing the time. Our bodies can actually sweat it out. The Cholestyramine can bind to anything in the GI tract, including other nutrients. I ended up taking about half my 3 month prescription if I can remember. I also took glutathione, and was actually taking it before I realized I had mold. PS. I didn't do a genetic test. Knowing I had a gene risk wouldn't have changed the course of action for me personally (getting out of water damaged home, sweating it out - which I did - my numbers went all the way back down after several months). For me, I also did a neuroplasticity program, which helped heal my fight-or-flight response so I wouldn't have a stress response to normal amounts of mold. This was a lot of work, but worth it so I could fully function in society again. None of this was meant to be prescriptive, just sharing what worked for me! Sending you healing vibes.
@@HealwithLiz and @Eydie thanks.
❤️ freedom yes! Enjoy it and thank you for your trust en hope to totally cured ❤️👼🏼
What a lovely girl! How are you now Mel ❤
Hi,I wish ur videos were shorter cause I really like to watch them but they tire my eyes most of them are over 20min long n it's hard for a cfs patient to watch thanks
Try listening and not looking at screen instead?